Newbe

[Guest guest]

oh yeah,when you said fastfood,i knew right away that was the culprit,lolthee

other day i broke down and had fries and quarter pounder at mcdonalds and i knew

my tummy was going to react after i was done and it did. wont go there for a

long while again.im a salad nut,i love tomatoes/green

peppers/cucumbers/celery/broccoli all together with sun flower seeds on top and

a little dressing. i eat that about every other day sometimes everyday now with

all the fresh veggies out there and my garden.try drinking gratefruit juice

everyday,theres more to it then we realize.its called simply gratefruit.theres

simply apple and orange too,there pasturized!!! glad your feeling betta

From: Haj <emily_sweethang@...

<mailto:emily_sweethang%40sbcglobal.net> >

Subject: RE: newbe

Hepatitis C

<mailto:Hepatitis C%40>

Date: Sunday, August 1, 2010, 8:16 PM

Hi all ,

I hear the frustration and feel it too. I have genotype 1a/b and spent a lovely

weekend of severe diarrhea vomiting and had to get iv fluids. They did some

tests says it is related to the hep C and everything is viral. Funny because all

my students got food poisoning at the local wendy’s before we went to clinical

everyone was sick. Yet. It is all viral. My white count was ok. So I guess it

hit me harder than the kids. I am just weak as hell and I have to head back to

work tomorrow because I am pretty much the supporter of our family. I would

rather be hit by a bus and call it a day lol. Anyway I guess I will get my

negative butt back in bed and hope for the best and that the screaming sshhhh

leave me alone tomorrow at least long enough to get thru work.

Hugs to all,

Em

From: Hepatitis C

<mailto:Hepatitis C%40>

[mailto:Hepatitis C

<mailto:Hepatitis C%40> ] On Behalf Of Jackie Ware

Sent: Saturday, July 31, 2010 10:07 AM

Hepatitis C

<mailto:Hepatitis C%40>

Subject: Re: newbe

, there is absolutely nothing to be ashamed of, when, how or where you

contracted this disease, it is what it is. What makes me really upset is what

the doctors are prescribing doesn't work for many people, particularly with

genotype A. I've been taking a combination of natural supplements for about six

months. Can't tell if they are working as I don't feel any better or worse.

Maybe next round of blood will have some answers. When the doctors prescribe a

treatment that costs $5900/month, how in the world can the pharmaceutical

companies don't seem to care if the treatment works or and they don't offer

anything else. Keep your faith, drink lot of water. god bless, and you aren't

alone. Jackie

________________________________

From: maria rudloff <mariafrancesr@... <mailto:mariafrancesr%40>

<mailto:mariafrancesr%40> >

Hepatitis C

<mailto:Hepatitis C%40>

<mailto:Hepatitis C%40>

Sent: Sat, July 31, 2010 10:41:23 AM

Subject: Re: newbe

hi nilda, i share your opinion on privacy. believe me, i live for my family. to

me all others are strangers and there is no question who comes first. i have 3

grown children and 6 grandchildren for now. i think there will be one more and

that is all. makes a lot of shopping for christmas.... i keep saying that i will

cut back but maybe this year. have a good weekend/

________________________________

From: Nindy <nindy327@... <mailto:nindy327%40>

<mailto:nindy327%40> >

Hepatitis C

<mailto:Hepatitis C%40>

<mailto:Hepatitis C%40>

Cc: deborah brown <heaven_scent_in_55@...

<mailto:heaven_scent_in_55%40> <mailto:heaven_scent_in_55%40>

>

Sent: Tue, July 20, 2010 9:09:46 AM

Subject: Re: newbe

Hello! My Name is Nilda, you had choose a good group to have support, I started

just like you, will all the fears, worries, you name it, so far I havent

experienced the symptoms just like you. But you know what the more you know

about this disease which I call the monster, the more you learn how to cope with

it. Just continue to live your life just like youve been doing, dont stop

enjoyning your family, I have 3 kids and 3 grandchildren, but I decided to keep

it between my husband, kids and my parents. Some people thinks that it is better

to let everyone know, but I decided to keep it that way. The support that I

have from this group and my family is enough for me. There is a person in this

group her name is Deborah she will cheer you up, she helped me a lot, also Patti

and others. Dont be afraid to ask, God still have us here for a reason so just

hang on and God bless you. Hey Deborah I bet you you are proud of me right

now.

________________________________

From: maria rudloff <mariafrancesr@... <mailto:mariafrancesr%40>

<mailto:mariafrancesr%40> >

Hepatitis C

<mailto:Hepatitis C%40>

<mailto:Hepatitis C%40>

Cc: Hepatitis C

<mailto:Hepatitis C%40>

<mailto:Hepatitis C%40>

Sent: Mon, July 19, 2010 10:30:17 PM

Subject: newbe

HELLO EVERYONE;I am overwhelmed at the response of the postings. I am

really new to this and maybe I have not even accepted that I have hep C. I was

quite naive about the severity of it all, and a little imbarassed to say that I

have been relatively symptom free until recently. I have decided to not have

treatment but maybe it is going to be time to reconsider. I guess I have been

just burying my head in the sand. I just recently had my first real bout of

fatigue,joint aches and nausea. It lasted for a week. Will this happen

again?how often?If it starts to interfere in my life, then what? it is very

scarey, especially when you can't share your fears with others. After all, I am

the mom and grandmom that everyone counts on. I am about as normal as they

come. This is a world that I know nothing about. I have been reading a lot

about C. In my job, I am vaccinated for A & B but wham I got C. I don't know what

else to say except goodbye for now. Stay strong everyone, its just nice to see

the support that you give each other.

[Guest guest]

Hi all, I signed up here, well, because there's not a whole lot to do when

you're sails with the C bug.. I've came down with it a couple yrs. back, and

just sort of been doing the up & down battles with it ever since. Was told I'm

too far gone to be considered for the interferon treatment etc. so the doc's are

surprised to see me coming in now and again for blood test.

Like probably most of everyone here, I've tried truck loads of all kinds of

herbs, and actually got my best results when doing the ozone/saline IV's. Ozone

get's after the virus within the bloodstream, but is harder to get down within

the tissue of the liver.. so after a few months of doing 3 treatments a wk. I

stopped and kind of back to a low tide again.

All in all.. I've just excepted the fact of a short life span left, and in

many ways, am kind of looking forward to continuing on my journey home, whenever

that day comes.

Well...so much for an introduction, thanks for listening....

[Guest guest]

Hello Don, As for me saying that I was told I'm too far gone for treatments,

this is just my own expression, what the doctors said when I asked him how much

time would I have left to live, he told me that maybe 6 months, maybe less,

maybe more..

From there, I went to the big city to see the liver specialist,and he told me

that because I have ascides and do to my age, [62] that the disease has

progressed to chronic and he feels the interferon treatment would kill me. [As

if I have another choice.]

He wanted to do the endoscopes and biopsy but I wouldn't let him because in one

breath, he gives me a death sentence, and the next breath he wants to do all

these procedures on me before I kick the bucket.. Good for his wallet..but

nothing in it to benefit me really..so I walked out..

I've been seeing another General Med Doctor who cares, but he admits that it

seems nothing can be done since I've already been denied treatments. But he

keeps my diuretic prescriptions filled for me, and does a blood test every few

months.

I do try to keep my pH levels up, and take folic acid, selenium, and other

vitamins, as well as a custom mix herbal formula that I make up of a few Chinese

herbs. But I must admit too, that for the last month or two, I've really slacked

off from taking much of anything on a daily bases.. After a couple years of

fighting this thing night and day, it just become draining to keep at it.

As for my viral load, it was almost 1 million 3 months ago, before I had been

keeping it down between 250,000 to 750,000 with working so hard at herbs etc...

I've been a non-drinker for the past 16 or so yrs & I'm a Geno type 3a. Fatty

liver, and even though I was overweight a couple years ago, I lost 70 lbs. first

6 month.got kind of skinny but am back up to a normal weight now about 175lb.

The major problem is not only just the disease, but the damaged liver portal

veins, which are restricted that is causing the ascides, for the first couple

months, I had to go into the hospital and they'd stick a long needle into my

stomach lining and draw off 6 to 7 liters of fluid every 10 days or so... this

" liver restriction " also causes loss in liver functions and sluggish blood flow

through the liver. So you see, Don, the cards are sort of stacked against me in

overall survival outlook...

Thank you for your concern, I've made my peace with it.. and it's okay..

>

>

> From: fathersplace <fathersplace@...>

> Subject: [ ] Newbe

>

> Date: Friday, April 15, 2011, 1:28 AM

>

>

> Hi all, I signed up here, well, because there's not a whole lot to do when

you're sails with the C bug.. I've came down with it a couple yrs. back, and

just sort of been doing the up & down battles with it ever since. Was told I'm

too far gone to be considered for the interferon treatment etc. so the doc's are

surprised to see me coming in now and again for blood test. 

>   Like probably most of everyone here, I've tried truck loads of all kinds of

herbs, and actually got my best results when doing the ozone/saline IV's.  Ozone

get's after the virus within the bloodstream, but is harder to get down within

the tissue of the liver.. so after a few months of doing 3 treatments a wk. I

stopped and kind of back to a low tide again.

>   All in all.. I've just excepted the fact of a short life span left, and in

many ways, am kind of looking forward to continuing on my journey home, whenever

that day comes. 

>   Well...so much for an introduction, thanks for listening....

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi

Something is wrong with this picture.

I am not a medical professional, but this is my opinion - and Im not going to mince words.

You need to get in to a good HEPTOLOGIST - ASAP.

Not a Gastrologist [they dont know enough], and seeing a GP [PCP] is useless.

If you see a Hepto and they arent positive, go find another.

You may have portal and ascites problems, but all this is treatable.

You need a doctor who will fight for you - but you need to fight for you too.

NEVER give up, because life is beautiful and worth living.

You can believe that the cards are stacked against you if you like, but I will bet that your wrong.

Medical science has come a long long ways just in the last 10 years alone.

I know, because I have watched it unfolding.

Any doctor who will say that your dying is not looking to help you.

How can any doctor predict when your going to die?

[- grrrrrrrr - sorry, but I have heard this same story so many many times.]

No man has that power, and I for one, would distance myself from any doctor who was so negative.

, I am 60, and you are 62 - this is not old my friend.

It is not too old to find a treatment plan either.

I know many people much older, who have really serious health problems, and they have or are treating.

I know people who have had liver cancer [HCC], and they have cured.

I want to give you two links to two other groups I would like you to check out.

Click on these links -

- liver cirrhosis

livercirrhosissupport/

- liver transplant

liver_transplant/

Both of these groups are excellent groups.

Good people and lots of information.

In the Transplant group, there are suvivors of transplanting for over 20 years.!!!!!!

Furthermore, I would suggest that you get a liver biopsy, ASAP.

Your liver may not be in as bad a shape as you have been led to believe.

Your viral load means very little.

VL does not indicate liver damage.

VL is only useful 3 ways -

- in the beginning to show Chronic HCV

- during treatment to show responce

- 6 months after treatment to show cure or relaspe.

One million VL is not high.

I know many people who have a VL in the tens of millions.

My own VL is 1.2 million, down from 1.9 million.

- Here is a tidbit for you.

Did you know that HCV copies tend to clump together in the blood?

You can take two consecutive blood samples, and you will get two different results.

, I cannot stress on you enough, that you can survive this.

There are answers.

Please dont just give up - fight like hell.

I would like you to think about these suppliments - click on these links -

- Alpha Lipoic Acid [ALA]

http://health.dir./group/ /links/010___Alpha_Lipoic_Acid_001253432866/

- Glutathione [GSH]

http://health.dir./group/ /links/glutathione__GSH__001253423166/

- Silymarin [MILK THISTLE]

http://health.dir./group/ /links/010___Silymarin__MILK_THISTLE__001253433103/

- Vitamin D and K

http://search./search?ei=utf-8 & fr=slv8-tyc8 & p=hepatitis%20and%20vitamin%20D & type=

http://search./search?ei=utf-8 & fr=slv8-tyc8 & p=hepatitis%20and%20vitamin%20K & type=

I would like you to read up on a liver friendly diet too -

http://health.dir./group/ /links/HEP_C_DIET_INFO_001245398019/

, I swear to you, there are answers.

love

don in ks

From: fathersplace <fathersplace@...>Subject: [ ] Re: Newbe Date: Friday, April 15, 2011, 3:51 PM

Hello Don, As for me saying that I was told I'm too far gone for treatments, this is just my own expression, what the doctors said when I asked him how much time would I have left to live, he told me that maybe 6 months, maybe less, maybe more.. From there, I went to the big city to see the liver specialist,and he told me that because I have ascides and do to my age, [62] that the disease has progressed to chronic and he feels the interferon treatment would kill me. [As if I have another choice.] He wanted to do the endoscopes and biopsy but I wouldn't let him because in one breath, he gives me a death sentence, and the next breath he wants to do all these procedures on me before I kick the bucket.. Good for his wallet..but nothing in it to benefit me really..so I walked out.. I've been seeing another General Med Doctor who cares, but he admits that it seems nothing can be done since I've already been denied

treatments. But he keeps my diuretic prescriptions filled for me, and does a blood test every few months. I do try to keep my pH levels up, and take folic acid, selenium, and other vitamins, as well as a custom mix herbal formula that I make up of a few Chinese herbs. But I must admit too, that for the last month or two, I've really slacked off from taking much of anything on a daily bases.. After a couple years of fighting this thing night and day, it just become draining to keep at it.As for my viral load, it was almost 1 million 3 months ago, before I had been keeping it down between 250,000 to 750,000 with working so hard at herbs etc... I've been a non-drinker for the past 16 or so yrs & I'm a Geno type 3a. Fatty liver, and even though I was overweight a couple years ago, I lost 70 lbs. first 6 month.got kind of skinny but am back up to a normal weight now about 175lb. The major problem is not only just the disease, but

the damaged liver portal veins, which are restricted that is causing the ascides, for the first couple months, I had to go into the hospital and they'd stick a long needle into my stomach lining and draw off 6 to 7 liters of fluid every 10 days or so... this "liver restriction" also causes loss in liver functions and sluggish blood flow through the liver. So you see, Don, the cards are sort of stacked against me in overall survival outlook... Thank you for your concern, I've made my peace with it.. and it's okay.. > > > From: fathersplace

<fathersplace@...>> Subject: [ ] Newbe> > Date: Friday, April 15, 2011, 1:28 AM> > > Hi all, I signed up here, well, because there's not a whole lot to do when you're sails with the C bug.. I've came down with it a couple yrs. back, and just sort of been doing the up & down battles with it ever since. Was told I'm too far gone to be considered for the interferon treatment etc. so the doc's are surprised to see me coming in now and again for blood test. > Like probably most of everyone here, I've tried truck loads of all kinds of herbs, and actually got my best results when doing the ozone/saline IV's. Ozone get's after the virus within the bloodstream, but is harder to get down within the

tissue of the liver.. so after a few months of doing 3 treatments a wk. I stopped and kind of back to a low tide again.> All in all.. I've just excepted the fact of a short life span left, and in many ways, am kind of looking forward to continuing on my journey home, whenever that day comes. > Well...so much for an introduction, thanks for listening....> > > > > ------------------------------------> >

[Guest guest]

Thank you Don, for this information, I will check out the links below as you

suggested.

You're right, it was a Gastro that I saw, he is like the King Kong of the

hospital that I went to up in Montana, the largest in the area, and then I had

to keep going back several times, doing all the testing, evaluations etc. before

I finally got into see him...[took 2 months] He is suppose to be the Specialist

for Livers..

I've never heard of a Heptologist before..didn't know there was such a doctor

other than Gastrologist. I'm not sure where I'd find one of those doctors, may

not be within driving distance from me here in WY. but I'll do some research on

it to see..

Last Fall, my regular GP doctor got around and ask me, [after 1 1/2 yrs.] why I

wouldn't go back to the Gastro, so I told him the truth, that he told me that he

couldn't do anything to help me, so I figured it was a waste of my time to see

him. So for the first time, he gave me a referral to the dept. of disease

control, also within the hospital, and they did some test on me to see if I'd be

a good candidate for the interferon treatments. They called me at home a few

days later and told me that they'd kill me if they tried to give me the

treatments, as my Platelets were down, [ 58,000 ]and I'd simply not survive the

treatments period.

I just got the results of my last blood test in the mail today, and my

platelets are 53,000. Red blood count at 4.3, Lymph's @ 0.8 but my AST look much

better at 70 and ALT at 78

As I said earlier, I haven't been taking all my herbs like I should, so these

test results are from me just taking multi-vitamins, and my Chinese formula that

I mix up and put into capsules.

It sounds like you are very knowledgeable Don, I'll see what I can find out

about the Hepto-doctor.. It seems like every time I get my hopes up the bottom

drops out though.. I try though..THANKS!!!

> >

> >

> > From: fathersplace <fathersplace@>

> > Subject: [ ] Newbe

> >

> > Date: Friday, April 15, 2011, 1:28 AM

> >

> >

> > Hi all, I signed up here, well, because there's not a whole lot to do when

you're sails with the C bug.. I've came down with it a couple yrs. back, and

just sort of been doing the up & down battles with it ever since. Was told I'm

too far gone to be considered for the interferon treatment etc. so the doc's are

surprised to see me coming in now and again for blood test. 

> >   Like probably most of everyone here, I've tried truck loads of all kinds

of herbs, and actually got my best results when doing the ozone/saline IV's. 

Ozone get's after the virus within the bloodstream, but is harder to get down

within the tissue of the liver.. so after a few months of doing 3 treatments a

wk. I stopped and kind of back to a low tide again.

> >   All in all.. I've just excepted the fact of a short life span left, and in

many ways, am kind of looking forward to continuing on my journey home, whenever

that day comes. 

> >   Well...so much for an introduction, thanks for listening....

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

I just did a search on any Heptologist within driving distance from me, and the

Gastrologist that told me that there's nothing he can do for me is also listed

as the only " Heptologist " in the area.. Rats! Oh well..

> >

> >

> > From: fathersplace <fathersplace@>

> > Subject: [ ] Newbe

> >

> > Date: Friday, April 15, 2011, 1:28 AM

> >

> >

> > Hi all, I signed up here, well, because there's not a whole lot to do when

you're sails with the C bug.. I've came down with it a couple yrs. back, and

just sort of been doing the up & down battles with it ever since. Was told I'm

too far gone to be considered for the interferon treatment etc. so the doc's are

surprised to see me coming in now and again for blood test. 

> >   Like probably most of everyone here, I've tried truck loads of all kinds

of herbs, and actually got my best results when doing the ozone/saline IV's. 

Ozone get's after the virus within the bloodstream, but is harder to get down

within the tissue of the liver.. so after a few months of doing 3 treatments a

wk. I stopped and kind of back to a low tide again.

> >   All in all.. I've just excepted the fact of a short life span left, and in

many ways, am kind of looking forward to continuing on my journey home, whenever

that day comes. 

> >   Well...so much for an introduction, thanks for listening....

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi

I looked up your blood counts, and its probably true that you shouldnt treat with them like they are.

- platelets 53,000 - normal 150,000-400,000

http://www.nlm.nih.gov/medlineplus/ency/article/003647.htm

- red blood count [RBC] 4.3 - normal 4.6-6.0 for men

http://www.wisegeek.com/what-is-a-red-blood-cell-count.htm

- lymphs 0.8 - normal depends on which typehttp://www.remm.nlm.gov/normal_lymph_count.htm

http://search./search?ei=utf-8 & fr=slv8-tyc8 & p=what%20is%20a%20normal%20lymph%20count & type=

Im going to back off suggesting to you to seek HCV treatment, but I am going to encourage you to

- get a liver biopsy

- keep looking for another liver doctor who can explain stuff to you [better than me], and will work with you

I do believe that this is very important - you need to know whats up.

I am sorry I dont have better answers for you, but I dont believe in just giving up either.

love

don in ks

From: fathersplace <fathersplace@...>Subject: [ ] Re: Newbe Date: Saturday, April 16, 2011, 11:59 PM

Thank you Don, for this information, I will check out the links below as you suggested. You're right, it was a Gastro that I saw, he is like the King Kong of the hospital that I went to up in Montana, the largest in the area, and then I had to keep going back several times, doing all the testing, evaluations etc. before I finally got into see him...[took 2 months] He is suppose to be the Specialist for Livers.. I've never heard of a Heptologist before..didn't know there was such a doctor other than Gastrologist. I'm not sure where I'd find one of those doctors, may not be within driving distance from me here in WY. but I'll do some research on it to see.. Last Fall, my regular GP doctor got around and ask me, [after 1 1/2 yrs.] why I wouldn't go back to the Gastro, so I told him the truth, that he told me that he couldn't do anything to help me, so I figured it was a waste of my time to see him. So for the

first time, he gave me a referral to the dept. of disease control, also within the hospital, and they did some test on me to see if I'd be a good candidate for the interferon treatments. They called me at home a few days later and told me that they'd kill me if they tried to give me the treatments, as my Platelets were down, [ 58,000 ]and I'd simply not survive the treatments period. I just got the results of my last blood test in the mail today, and my platelets are 53,000. Red blood count at 4.3, Lymph's @ 0.8 but my AST look much better at 70 and ALT at 78 As I said earlier, I haven't been taking all my herbs like I should, so these test results are from me just taking multi-vitamins, and my Chinese formula that I mix up and put into capsules. It sounds like you are very knowledgeable Don, I'll see what I can find out about the Hepto-doctor.. It seems like every time I get my hopes up the bottom drops out though.. I try

though..THANKS!!! > > > > > > From: fathersplace <fathersplace@>> > Subject: [ ] Newbe> > > > Date: Friday, April 15, 2011, 1:28 AM> > > > > > Hi all, I signed up here, well, because there's not a whole lot to do when you're sails with the C bug.. I've came down with it a couple yrs. back, and just sort of been doing the up & down

battles with it ever since. Was told I'm too far gone to be considered for the interferon treatment etc. so the doc's are surprised to see me coming in now and again for blood test. > > Like probably most of everyone here, I've tried truck loads of all kinds of herbs, and actually got my best results when doing the ozone/saline IV's. Ozone get's after the virus within the bloodstream, but is harder to get down within the tissue of the liver.. so after a few months of doing 3 treatments a wk. I stopped and kind of back to a low tide again.> > All in all.. I've just excepted the fact of a short life span left, and in many ways, am kind of looking forward to continuing on my journey home, whenever that day comes. > > Well...so much for an introduction, thanks for listening....> > > > > > > > > >

------------------------------------> > > >