caregiving - Pam

[Guest guest]

Hi Pam

Thank you for sharing such a good message with all of us.

Im so glad that your husband only has 12 more weeks to go, and he hasnt had to suffer a great deal.

Wow and Excellent.

That is great news, and I know that your both probably much relieved that the end of the road is in sight....finally.

Hearing this, you all give everybody else dealing with treatment a lot of hope.

And what is wonderful too, is that you can help other caregivers from your own personal experiance.

'That' - is gold Pam.

Treatment is hard on the patient, but it is also hard on their caregiver if they have one.

Thanks again for the sunshine for all of us.

love

don in ks

From: pamelag52@... <pamelag52@...>Subject: [ ] Re: nervous Date: Tuesday, March 29, 2011, 10:15 AM

Hi,I know exactly what you're going through, because last year at this time, my husband was getting ready to start treatment after learning that his liver had gone from stage 0 to stage 2 since his last liver biopsy. He tends to take things in stride, but I'm an anxious person, and I'm the one who does the reading and research. I wsa pretty petrified about the whole thing. However, I've found this group to be wonderfully informative and supportive, and would like to give special thanks to Don, Teri and Gloria, particularly, who seem like amazing, caring, wonderful people.My husband has 12 more shots to go, and we're looking forward to the end. However, it has not been terrible. He has not missed any work due to his treatment, though fortunately he has a desk job so he doesn't have to exert himself too much. He's pretty tired most of the time, he takes Prilosec every day to help with

his stomach, he's itchy, and he had a bit of a scare with some eye trouble which the doctor keeps a close watch on. Obviously, it hasn't been a pleasant experience, but it hasn't been unbearable either. He's dealt with it quite well, and life has gone on. We've shared the information about his treatment with only a few close friends and family members, and no-one else has noticed anything that they've mentioned.Keep asking questions of the doctors until you're satisfied with the answers. As long as you're "nice" about it, your husband will get better care, I believe. It's pays to speak up.Once my husband finishes the treatment in June, we'll be holding our breath to see if he's cured. We're definitely hoping for the best!Please feel free to email me if you have any other questions or need support. Most likely, your husband will do fine and you'll both get through with minimum

trauma. Take care!>> Hi, First I want to say that it was good to read that Donna was doing ok with treatment and still working. I have been very scared of treatment for my husband. I think that the people who post the most are those that have a hard time with treatment so it all becomes a bit lopsided. I would love to hear from others that have not had major problems too.> We are going to the Hep doctor on Friday and I am incredibly anxious. I have to hide my feelings from my husband, I don't want him to know how scared I am of him having to do the treatment. I have a hard time with anxiety and have, as my daughter says , self isolated, just going to these appointments

with him has been hard. I feel like such a jerk to have these issues when it is he that has to deal with the virus. I wish that he would ask questions and advocate for himself but it doesn't seem to be in him so I do it. I guess it bothers me because I don't want to make the decisions for him, he has to make them but if I hadn't questioned the first doc we saw he would have gone blindly along with the guy. I don't know if I am making sense here just don't know how to walk the line in this.> Don I am so jealous that you have had warm days, it has been running ten degrees below normal here and I still have a bunch of snow in the yard.>------------------------------------