Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 I had came to the reality of having to do one thing a day and doing it slow....but to give me back my life in full for even that short time plays a mental toll....I will take it in stride, but I am mad today I am very happy to hear you are clear...that is awesome news thanks Gloria Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php F H T--- almost 2 full weeks dang near pain free with Lyrica and tordol with acetaminophine, and tonight, boom, it is all back...anyone else this really stinks, i could do almost everything, and now back to the reality that I can do darn near nothing...docs say it is nothing they ever learned in med school, I fit in no category, yet numerous people here know exactly what I am talking about...butt pain, complete bone pain, hands and feet that want to wrinkle, even muscles thruought body feeling like wrinkling up and bones gonna just shrivel...muscles don't work, fatigue from just doing one simple little thing...this is mentally hard..I was facing the fact of what my life had become, but to get it back, get that taste, this is so not fair I am disabled, but can't prove it...I live in constant pain, but no ne knows why, yet numerous hep c treated people have my same pains I have a special needs son that depends on my arms and legs to be his arms and legs...I need my life back....what now Tonni Brende Wife, Mother, Grandma too... "Life is not about waiting for the storms to pass... it's about learning how to dance in the rain." athan, PVL, ACC, Unknown Leukodystrophy, scoliosis, ITB therapy- He can't sit alone, who wants to. He can't stand alone, who needs to. He can't speak our language, but is more understood than most. He can melt anger with a smile. He can quiet a loud room without speaking. And he can teach every single one of us that the little things are what are important. He is our gift and we are forever grateful. http://johnathanourgift.synthasite.com/index.php Quote Link to comment Share on other sites More sharing options...
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