to all

[Guest guest]

I think "BINGO!"

I wonder how many rheumys would be willing to cooperate and give out the number of patients they have who have breast implants.

Gosh, my doc didn't get it!! She didn't put it together.

When she made that statement to me, "I have lots of patients with implants," she was trying to convey to me that it's not connected, therefore, what's my problem???.

Then when I said, "That's my point." She paused. The light bulb went on!

I stumped her but she made it clear through her enormous attitude that she did not want to "go there."

I think it would be great if your son's girlfriend did that. If she does, let us know what the results are.

As for the FDA, I find it difficult to believe that they have not already considered this. They've made it clear through their inactions that they don't want to help us.

----- Original Message -----

From: cricket5641000

Sent: Sunday, July 13, 2003 11:35 AM

Subject: To All

Here I go thinking again. in one of her posts mentioned her visit with her new RA. The RA doctor said that she had lots of patients with implants and said to her "thats my point"It would be very interesting to get a survey of RA doctors and find out how many patients they have and how many of them have implants.I've already talked to my son's girlfried who is in college and asked her if she would call some RA doctors and tell them she is doing a report for school on the contention of implants and illness. And if they would be willing to give her this info. (number of patients and patients with implants) Chances are they don't have this inforamtion. But it's worth a try.Seems to me that all of us who get sick end up at a RA sooner or later. I think every one would be surpised at the numbers if the truth came out. I wonder if the FDA ever did this.What do you guys think?

[Guest guest]

In a message dated 7/13/2003 3:39:37 PM Eastern Daylight Time, DepoReporter@... writes:

-- Joint pain

-- knees

-- ankles

-- elbows

-- hands -- hands really bad at night and early morning.

-- feet

-- ribs

-- hips

-- Rib pain especially in the morning.

-- Muscle pain.

-- Leg pain.

-- Hands get cold at random.

-- Hands get tingling sensation.

-- Hands get numb sensation especially in the palm and tips

of fingers.

-- Feet get a tingling feeling.

-- Feet get numb.

-- Painfull sensation creeps up the legs from the feet and

goes up as high as the knees. A sleepy/exhausted

feeling comes over me when this happens and I want to go

to bed.

-- Plantar fascitis - severe pain in heel of foot. Pain

radiates throughout foot (underside).

-- Chronic fatigue.

-- Difficulty breathing at times. Get winded walking to the

mailbox.

-- Brain fog (feeling like I'm about to have a stroke).

-- Lack of focus and concentration, dizziness.

-- Eye pain consisting of sharp pain and/or tension-like

pain. Difficulty with vision.

-- Neck pain and stiffness.

-- Head pain.

-- Upper back pain between the shoulder blades.

-- Weakness in arms and/or fingers causing inability

to type properly.

-- Memory loss.

-- Muscles twitching all over the body at random.

-- Nightsweats.

-- Sleep disturbance.

-- Heart palpitations. (Incessantly pounding heart).

-- On-and-off depression.

-- Apthous Ulcers in mouth and esophogus (last breakout was

back in November 2002 -- Imuran controls these well).

-- Left-sided facial numbing.

-- Ears (both) tingling/numbing feeling in tips of ears.

I'm game

-- Joint pain 

   -- knees - all the time

   -- ankles - in the am

   -- hands - only when first waking up.

   -- feet- in the am

-- Muscle pain. 

-- Leg pain.

-- Chronic fatigue. 

-- Difficulty breathing at times.- i think i'm allergic to my house or have develped chemical sensitivity!!??!.

-- Upper back pain between the shoulder blades.

-- Nightsweats.

-- Sleep disturbance.

-- On-and-off depression

--irritable bowel syndrome

--weight gain 30 lbs. (just quit smoking 9 mos. ago so could be that too.)

--Intolerance to alcohol

--pain and tenderness of breasts

 

[Guest guest]

Now you've got me thinking.........

My rheumy got very indignant with me when I stated that we women all have the same symptoms. She cut me off in conversation and said, "You all have the same symptoms?" I said, "Virtually, yes."

In a very loud and intimidating voice she said, "I don't believe that! I have two lupus patients and each one has different symptoms." I said, "Well, we do differ somewhat in that some of us pass out whereas others don't and one or two other differences like my ears tingle but no one else's do, but the base of our symtpoms are the same. How many autoimmune patients do you have who proclaim they have 'brain fog?" She said, "What do you have?" I said, "We all call it 'brain fog." She immediately began to jot it down in my chart. Said she never heard of it before.

In hinesight, I wish I had turned it back around on her and said, "Well, I guess silicone autoimmune disease is just like all other autoimmune diseases, it has varying symptoms." Oh, well, next time maybe??

Anyway, my point here is this got me thinking that maybe we should all post our symptoms individually. I'll print them up and compare them. I'm thinking that along with our "Stories," maybe it's equally important to have listed on the website each person's name and their specific list of symptoms, call it "Symptoms List or something like that, detailing each one of us and our own individual symptoms. Patty, what do you think? Then if anyone, even a doc who may get real curious, checks the site, they can click on each member's name and read their symptoms.

What do you think? If that's too much of a project or whatever to do, maybe everyone can just list theirs on a post. I'll print up every one of them and compare. I also would like that so I can bring the lists to my doc next visit.

Like here is my list:

DENISE'S SYMPTOMS

-- Joint pain -- knees -- ankles -- elbows -- hands -- hands really bad at night and early morning. -- feet -- ribs -- hips

-- Rib pain especially in the morning.-- Muscle pain. -- Leg pain. -- Hands get cold at random. -- Hands get tingling sensation. -- Hands get numb sensation especially in the palm and tips of fingers. -- Feet get a tingling feeling. -- Feet get numb. -- Painfull sensation creeps up the legs from the feet and goes up as high as the knees. A sleepy/exhausted feeling comes over me when this happens and I want to go to bed.-- Plantar fascitis - severe pain in heel of foot. Pain radiates throughout foot (underside).-- Chronic fatigue. -- Difficulty breathing at times. Get winded walking to the mailbox.-- Brain fog (feeling like I'm about to have a stroke). -- Lack of focus and concentration, dizziness.-- Eye pain consisting of sharp pain and/or tension-like pain. Difficulty with vision.-- Neck pain and stiffness. -- Head pain.-- Upper back pain between the shoulder blades.-- Weakness in arms and/or fingers causing inability to type properly.-- Memory loss.-- Muscles twitching all over the body at random.-- Nightsweats.-- Sleep disturbance.-- Heart palpitations. (Incessantly pounding heart). -- On-and-off depression.-- Apthous Ulcers in mouth and esophogus (last breakout was back in November 2002 -- Imuran controls these well).-- Left-sided facial numbing. -- Ears (both) tingling/numbing feeling in tips of ears.

----- Original Message -----

From: cricket5641000

Sent: Sunday, July 13, 2003 11:35 AM

Subject: To All

Here I go thinking again. in one of her posts mentioned her visit with her new RA. The RA doctor said that she had lots of patients with implants and said to her "thats my point"It would be very interesting to get a survey of RA doctors and find out how many patients they have and how many of them have implants.I've already talked to my son's girlfried who is in college and asked her if she would call some RA doctors and tell them she is doing a report for school on the contention of implants and illness. And if they would be willing to give her this info. (number of patients and patients with implants) Chances are they don't have this inforamtion. But it's worth a try.Seems to me that all of us who get sick end up at a RA sooner or later. I think every one would be surpised at the numbers if the truth came out. I wonder if the FDA ever did this.What do you guys think?

[Guest guest]

Im trying to come up with questions for the RA doctors for (research

paper) Here are a few I've come up with, do any of you have some

others. Thanks!

1. Do you ask new patients if they have breast implants?

2. How many patients are you treating at this time with

autoimmune dieses?

3. How many of those patients have breast implants?

4. Have you personally thought that there could be a connection

between breast implants and autoimmune disease?

5. Have you ever had a patient with implants that you were

treating for an autoimmune disease get better after removing

implants?

6. Is it common for your patients to have many kinds of

autoimmune diseases at once? (Women on the support group seem to get

symptoms of more than just one.)

7. Is there a common age range that women develop autoimmune

diseases?

8. Is it common for young women in there 20's and 30's to have

come down with RA, lupus, fibromyalgia, connective tissue disorder?

9. Do you have any personal thought on this issue?

[Guest guest]

Awesome!

I think that's so smart of you to think to go to autoimmune disease support sites and tip them off. I bet there's a ton of women in there who haven't got a clue!!!

Let's see.........

There's Lupus sites.

There's Behcet's disease sites.

There's Crohn's disease sites.

Fibromyalga sites.

Where else can we go to inform?

----- Original Message -----

From: cricket5641000

Sent: Sunday, July 13, 2003 5:13 PM

Subject: to all

Hi everyone. Ok this is what I've been doing this afternoon. I thought to myself, well I didn't have a great responce to the implant site. They didn't what to hear anything about us. So I posted on support groups for autoimmune diseases. Told them about us. asked if any in the group had breast implants and if they had ever made the connection between the two. We shall she want happens. But like I said in an earlier post most of us end up at a RA. While looking at the members names, looks like women outnumber men 9 to 1.

[Guest guest]

Oh, yeah,

I know........

Graves Disease sites (thyroid)

Hashimotos sites (thyroid)

Must be more...............

----- Original Message -----

From: DepoDeeva

Sent: Sunday, July 13, 2003 5:38 PM

Subject: Re: to all

Awesome!

I think that's so smart of you to think to go to autoimmune disease support sites and tip them off. I bet there's a ton of women in there who haven't got a clue!!!

Let's see.........

There's Lupus sites.

There's Behcet's disease sites.

There's Crohn's disease sites.

Fibromyalga sites.

Where else can we go to inform?

----- Original Message -----

From: cricket5641000

Sent: Sunday, July 13, 2003 5:13 PM

Subject: to all

Hi everyone. Ok this is what I've been doing this afternoon. I thought to myself, well I didn't have a great responce to the implant site. They didn't what to hear anything about us. So I posted on support groups for autoimmune diseases. Told them about us. asked if any in the group had breast implants and if they had ever made the connection between the two. We shall she want happens. But like I said in an earlier post most of us end up at a RA. While looking at the members names, looks like women outnumber men 9 to 1.