Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Cher, Go to this page: http://www.rxlist.com/cgi/generic2/ribav_ids.htm Scroll down to 'table 7'. This gives you all the labratory levels at which a dose should be dropped, AND, if the levels continue to fall, at what level the medication should be discontinued. It also tells the correct medicine to dose-reduce. The danger of too low WBC is is an increased risk of infections. I would suggest you print out this page and take it to your doctor. After that, I don't know what to tell you. Afterall, I'm not a doctor, and he isn't about to listen to anything I have to say. You might ask him for a copy of the prescribing information (NOT patient information) for the Peg-Intron, and the Rebetol. Maybe if he has to dig it out and look at it he will read it. C __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 Cher, Go to this page: http://www.rxlist.com/cgi/generic2/ribav_ids.htm Scroll down to 'table 7'. This gives you all the labratory levels at which a dose should be dropped, AND, if the levels continue to fall, at what level the medication should be discontinued. It also tells the correct medicine to dose-reduce. The danger of too low WBC is is an increased risk of infections. I would suggest you print out this page and take it to your doctor. After that, I don't know what to tell you. Afterall, I'm not a doctor, and he isn't about to listen to anything I have to say. You might ask him for a copy of the prescribing information (NOT patient information) for the Peg-Intron, and the Rebetol. Maybe if he has to dig it out and look at it he will read it. C __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Congrats!!!!!!! Terri here, I'm glad to hear the good news for you. Keep us inform....Good news is good for all of us. Love Terri RE: Good news > I want to report some good news.....I got the report back on my biopsy....No > Cirrhosis!!!! I am in the 4th stage of fibrosis....still time for > treatment!!!! I have an appt for April 11th to talk about treatment. Doctor > said the biopsy was consistant for chronic hepatitis c of many years....judy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 Patty, Bobby, Alysha, Congratulations Alysha!!!!! I must know your secrets on training as my year and a half old lab is still coming around slowly on his training. Rob _________________________________________________________ good news > We are very proud of our daughter, Alysha. (We are proud of her every day - but this is a new accomplishment) At 12 years old, she has trained her dog and passed the testing for her dog, Dougalss to be a therapy dog. She and s can now visit people in hospitals, nursing homes, schools and wherever else they can bring a smile. > Patty & Bobby > Proud parents Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Congrats! Wow, trainer @ 12. I used to also bring animals to childrens hospitals & cheer the kids up. It was an amazing experience. This post was more of the good stuff needed on this list thing. Kim -------------------------- www.geocities.com/kimmay5 -------------------------- --- Abrams <SuperMom1313@...> wrote: > We are very proud of our daughter, Alysha. (We are > proud of her every day - but this is a new > accomplishment) At 12 years old, she has trained her > dog and passed the testing for her dog, Dougalss to > be a therapy dog. She and s can now visit > people in hospitals, nursing homes, schools and > wherever else they can bring a smile. > Patty & Bobby > Proud parents __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 way to go Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Congratulations , How hot is it anyway? My daughter moved to Tx two years ago and she claims she loves it. Is it hot enough yet to make her change her mind? sanmic wrote: Saw Dr today, 12wk labs WNL. Isn't that the best!!!!! If Baylor hadn't lost my medical records, I could check but I think enzynes didn't return to normal until much later in previous treatment.....it's working!!!!, so I guess I can put up with the side effects a bit longer. :-) in HOT TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Congradulations ! Hope you have a great day. Love,Teri Good news Saw Dr today, 12wk labs WNL. Isn't that the best!!!!! If Baylor hadn't lost my medical records, I could check but I think enzynes didn't return to normal until much later in previous treatment.....it's working!!!!, so I guess I can put up with the side effects a bit longer. :-) in HOT TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Actually we have had a mild summer here. Where is TX does you daughter live. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 San . She got a real introduction this spring when they had the flooding. Her house had 2 feet of water in it. She says she never saw anything like it. A storm drain got blocked and in came the water. They aren't even in a flood suseptable area. wrote: Actually we have had a mild summer here. Where is TXdoes you daughter live. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Janet , I Believe that you don't take Predizone out of you cocktail { meds taken daily to keep a balance } all together but just keep it on a 5mg a day won't hurt you but it is for maitenence . Just My Opinoin ... Walter@... or essexhaus@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 In a message dated 5/9/2003 2:02:18 PM Pacific Standard Time, jturner@... writes: > my heart echocardiogram > (ultrasound) done on Wednesday was completely normal, That IS wonderful news!!! K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Oh Janet.....It is wonderful to hear som good news.. Please don't feel bad to share it. It's nice that at least one of us does have some to share:) BIG HUGS Our group sticks together through GOOD things as well as bad right????? We kind of ebb and flow with life's events....And that is wonderful.... Liz ~~~~~~ " This is the day which the Lord hath made; Let us be GLAD and rejoice in it! " Psalms 118:24 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 Janet wrote: > My rheumatologist called me today and told me that my heart echocardiogram > (ultrasound) done on Wednesday was completely normal, not even the slightest > valve abnormality. Great news Janet. Funny, worrying about the results of these tests can make us sick. +Dave --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.478 / Virus Database: 275 - Release Date: 07/05/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 That's great news! Glad things are working out! -Jeff. Good News We just got back from Katelyn's appointment. The doctor was amazed at how much the hole in her eardrum (post op infection) had healed from her last visit in April. He said he could barely tell which ear had had the surgery! Anyway, the good news is that rather than having a surgery in August to look around to make sure the ctoma hasn't returned again, he said we could probably wait until Oct/Nov. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Thats awesome news!!!..Yipppeeee!!!!! So happy for you both.... Have a great Holiday weekend everyone!! Sincerely, Renonda (mom of ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Marilyn, So good to hear the news about . I know how worried you are about her, and it must just make your heart sing to hear that she is responding to TX. Marilyn (not 's mom!) good news although i havent gotten the official call from my daughter anna (got the call from the ex), but she got some good news from hep dr. and after 6 weeks or so of tx.........her liver is at 38 (35 being normal) and her viral count down 200,000.........but will post the exact info when i get a call from anna banana .... lol.......just had to share this good news with someone and i know that you all would understand my happiness.......glad you are all here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 That's good news, yes... I am a 3a as well, and I've been off treatment for 8-9 months now and am non-detectable *knock on wood*... I don't think I really correspond with anyone else who is a 3a at the moment, and so I'd like to keep in touch with you. My e-mail address is wistful@... ... Princess hcsai Good News Hey just wanted to let you all know that I went to the Dr. today and found out that I have genotype 3a I feel this is good news, the dr. said I would only have to do 24 wks of treatment and that the success rate with 3a is very good. I still have my biopsy to do but blood work and ultra sound looked good. Viral load was 3,500,000 and alt and ast were up but he said thats to be expected everything else was good,liver seems to be functioning like it is supposed to. The Dr also said that after treatment reoccurance is rare with 3a so I am very excited about that it seems I caught it in time before there's any real problems. Anyway I just wanted to let you know. It is nice to have people to talk to here without feeling like a freak. Even though I haven't met any of you I feel you all will get just as excited as I do with good news and just as sad with bad. Thanks !!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 WOW that is GREAT news about your genotype!! Remember that the viral load and liver enzymes don't tell a real story about your liver condition either. Lots of things can cause elevated liver enzymes and they fluctuate naturally, as does that viral load. Here's hoping your biopsy shows no damage either. You will do great on a 6 month treatment regime!! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Thanks everyone for your words of encouragement it means alot to me. I feel that with you all in my corner that no matter what the future holds I'll make it. Princess, I sent you an e-mail but I'm not sure you recieved it. I would love to keep in touch since you to are 3a genotype maybe you can give me some words of wisdom since you have already been through it. Well Thanks again!! > WOW that is GREAT news about your genotype!! Remember that the viral > load and liver enzymes don't tell a real story about your liver > condition either. Lots of things can cause elevated liver enzymes and > they fluctuate naturally, as does that viral load. > > Here's hoping your biopsy shows no damage either. You will do great > on a 6 month treatment regime!! > > LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Excellent news, Jana!! I'm so happy for you and Jake. Diane (, 4, pauci) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 That's wonderful news! On the contrary, please don't hesitate to share such great news, I for one find it very hopeful for my own daughter when I read about things like this. Besides (and I haven't been here for the whole year), when I've read of people's struggles and ached and prayed with/for them during those times, it's a blessing to be able to rejoice with them during the good times also! I'm so very happy for you and Jake, and hope that he does as well without the celebrex . Sherry http://www.ittybittybirdiebites.com *** See you at the West Michigan Parrot Festival *** ==> Sat., 10/11 at the Holland, MI Civic Center! <== Farmer's Market will be adjacent, stock up on fall goodies too! This is a GREAT bird fair...Don't miss it! ----- Original Message ----- From: " jana_jake " <janajake@...> > Hello everyone! Well, it's been one year since my then 5-year-old > son, Jake, was diagnosed with JRA. He was started on a short dose > of prednisone followed by naprosyn. He was soon maxed out on the > naprosyn and still suffering with pain and inflammation. Dr. Jung > then asked if we would be interested in a FDA study for celebrex. > Once my initial fears were conquered (thanks to advice from this > very group!), we went ahead with the study. Thank goodness! Jake > responded to the celebrex within the first two weeks and we haven't > seen signs of the arthritis since then! > > The FDA study ended this summer. At that time, we kept Jake on the > celebrex, but cut the dosage in half to 100 mg once a day. We went > for another follow up yesterday and we are happy to report that > there are still no signs of JRA. The doctor has given me the green > light to stop the celebrex and see if Jake is indeed in remission! > It's been a whirlwind of emotions - fear and utter joy all in one! > > So, this morning Jake did not take his celebrex pill. I don't think > he understands everything that is associated with it, but loved the > fact that they didn't take his blood yesterday! > > A part of me finds it difficult to post with good news. I know that > there are others who are still struggling with this horrible > disease. I truly credit our doctors with this remission - medicated > or not - because Jake was diagnosed within 3 weeks after the first > signs of pain. I also want to thank everyone involved with this > group (especially Georgina for all the hard work 'behind the > scenes')! All the advice and knowledge here is priceless! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Any time one of our kids can reduce or stop a med altogether is great news for all of us. I hope that Jake continues to do well without the Celebrex. My son was maxed out on it at 800 mgs a day, before we had to introduce MTX. He has been able to significantly reduce the amount of Celebrex he takes. I think it was wonderful of you to agree to the study (and anyone who has the chance to for any med) as the info that researchers get from that may ultimately help other kids. Congrats again!!! Michele (16,pauci & spondy) Good News Hello everyone! Well, it's been one year since my then 5-year-old son, Jake, was diagnosed with JRA. He was started on a short dose of prednisone followed by naprosyn. He was soon maxed out on the naprosyn and still suffering with pain and inflammation. Dr. Jung then asked if we would be interested in a FDA study for celebrex. Once my initial fears were conquered (thanks to advice from this very group!), we went ahead with the study. Thank goodness! Jake responded to the celebrex within the first two weeks and we haven't seen signs of the arthritis since then! The FDA study ended this summer. At that time, we kept Jake on the celebrex, but cut the dosage in half to 100 mg once a day. We went for another follow up yesterday and we are happy to report that there are still no signs of JRA. The doctor has given me the green light to stop the celebrex and see if Jake is indeed in remission! It's been a whirlwind of emotions - fear and utter joy all in one! So, this morning Jake did not take his celebrex pill. I don't think he understands everything that is associated with it, but loved the fact that they didn't take his blood yesterday! A part of me finds it difficult to post with good news. I know that there are others who are still struggling with this horrible disease. I truly credit our doctors with this remission - medicated or not - because Jake was diagnosed within 3 weeks after the first signs of pain. I also want to thank everyone involved with this group (especially Georgina for all the hard work 'behind the scenes')! All the advice and knowledge here is priceless! Jana (mom to Jake, age 6, poly) To leave this mailing list, send request to: -unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Hi Jana, What wonderful news! Praying for permanent clinical remission. My son was diagnosed within 3 weaks of the first unobvious symptom and he has gone from 5 drugs to two and slowely tapering one of them.We all love to hear news like this.It gives many hope. Becki and 5systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 -Jana.. This is wonderul news!!! News im sure the whole list will rejoice with you. I think everyone is here for the good times as well as the bad. Im very happy for you... Hugs Helen and (6 systemic) -- In , " jana_jake " <janajake@h...> wrote: > Hello everyone! Well, it's been one year since my then 5-year-old > son, Jake, was diagnosed with JRA. He was started on a short dose > of prednisone followed by naprosyn. He was soon maxed out on the > naprosyn and still suffering with pain and inflammation. Dr. Jung > then asked if we would be interested in a FDA study for celebrex. > Once my initial fears were conquered (thanks to advice from this > very group!), we went ahead with the study. Thank goodness! Jake > responded to the celebrex within the first two weeks and we haven't > seen signs of the arthritis since then! > > The FDA study ended this summer. At that time, we kept Jake on the > celebrex, but cut the dosage in half to 100 mg once a day. We went > for another follow up yesterday and we are happy to report that > there are still no signs of JRA. The doctor has given me the green > light to stop the celebrex and see if Jake is indeed in remission! > It's been a whirlwind of emotions - fear and utter joy all in one! > > So, this morning Jake did not take his celebrex pill. I don't think > he understands everything that is associated with it, but loved the > fact that they didn't take his blood yesterday! > > A part of me finds it difficult to post with good news. I know that > there are others who are still struggling with this horrible > disease. I truly credit our doctors with this remission - medicated > or not - because Jake was diagnosed within 3 weeks after the first > signs of pain. I also want to thank everyone involved with this > group (especially Georgina for all the hard work 'behind the > scenes')! All the advice and knowledge here is priceless! > > Jana (mom to Jake, age 6, poly) Quote Link to comment Share on other sites More sharing options...
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