Welcome New Members

[Guest guest]

OOPS..Im stage 1 not 2..duhhh...

RE: Welcome new members

Will he adjust my treatment meds according to what I take? Or, does he just account for the vitamins etc. when he looks at my labs? Thank you, Vickie Motley <dmotley@...> wrote:

Vickie, be sure to ask your doc about the herbs. You don’t want to take anything without him knowing while you’re on tx cuz anything you take can throw off your labs.

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of Vickie GraySent: Friday, April 13, 2007 9:06 PMHepatitis CSupportGroupForDummies Subject: Re: Welcome new members

Hi, Pat. Thank you for the warm welcome. I too missed the meeting. I had it on my mind all day but was still getting dinner ready when the meeting started and forgot about it until an hour after the meeting was over. I really wanted to participate in that meeting too.

I am 56 until July, at least. Will be starting tx probably in July. That is the next appointment with my dr. anyway. I'm waiting to hear what my genotype is. Hopefully it won't be too long before they get back to me with that as blood was taken for that test last Friday. Everyone in this site has been so good to me and I am glad I found You all. Reading the stories of some of the members has reminded me about some things I need to have ready when treatment starts. I am starting on St 's Wort and Milk Thistle right away as well as vitamins B, C and E.

I need to get offline as we are having a bad thunder storm tonight. We'll talk more later. Thank you again, Vickie

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

I am using the free version of SPAMfighter for private users.It has removed 2746 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

I am using the free version of SPAMfighter for private users.It has removed 2749 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

Thank you, Pat for your information. My dr. said my viral load was only 1100. It seems a shame to have to undergo treatment for that. However, I know it can go up from there. It has stayed low for several years now though. I'm not sure what the stage numbers mean. Maybe stage one is early. hopefully. The best of luck to you VickiePat McBride <pmcbride1@...> wrote: OOPS..Im stage 1 not 2..duhhh... RE: Welcome new members Will he adjust my treatment meds according to what I take? Or, does he just account for the vitamins etc. when he looks at my labs? Thank you, Vickie Motley <dmotleybellsouth (DOT) net> wrote: Vickie, be sure to ask your doc about the herbs. You don’t want to take anything without him knowing while you’re on tx cuz anything you take can throw off your labs. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of Vickie GraySent: Friday, April 13, 2007 9:06 PMHepatitis CSupportGroupForDummies Subject: Re: Welcome new members Hi, Pat. Thank you for the warm welcome. I too missed the meeting. I had it on my mind all day but was still getting dinner ready when the meeting started and forgot about it until an hour after the meeting was over. I really wanted to participate in that meeting too. I am 56 until July,

at least. Will be starting tx probably in July. That is the next appointment with my dr. anyway. I'm waiting to hear what my genotype is. Hopefully it won't be too long before they get back to me with that as blood was taken for that test last Friday. Everyone in this site has been so good to me and I am glad I found You all. Reading the stories of some of the members has reminded me about some things I need to have ready when treatment starts. I am starting on St 's Wort and Milk Thistle right away as well as vitamins B, C and E. I need to get offline as we are having a bad thunder storm tonight. We'll talk more later. Thank you again,

Vickie Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. I am using the free version of SPAMfighter for private users.It has removed 2746 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now! I am using the free version of SPAMfighter for private users.It has removed 2749 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Hi...I guess I'm new, even though I've been kind of floating around

for a while. I'm a writer and former graphic designer who lives in New

York's Hudson Valley with my husband. I spent a lot of years writing

novels but I'm taking a little break from that and writing for the

web, mostly about medical/wellness/alternative health issues (It's a

trip to finally get paid for writing, even thought it isn't much).

Thank you all for your wonderful words so far...I have few friends and

some supportive family members, but nobody who REALLY gets what this

is like. It's great to have this forum and thank you to Dominie for

setting it up and the others (I'm sorry, I lost track of your names)

who work on it too.

Gentle hugs,

Laurie

[Guest guest]

Hello members I just joined today,what a great site,it just helps to

know other people are out there to talk to,My name is Sherie and I was

diagnosed in Nov. 07 with fibro. I had to quit my factory job in late

Sept. due to all over pain and fatique,On top of coping with this I

have the stress of no income which doesnt help,I am a mess!So any

information or hugs would be a big help.

Thank You

[Guest guest]

Welcome, Sherie! Everyone on this board understands what it's like

to have fibro or CFS and all the problems that go with it. You will

find help and support here! I have 100 Tips for Coping with

Fibromyalgia at http://www.fms-help.com/tips.htm

If you need info on getting SSD, see http://www.fms-

help.com/disability.htm - tips from readers who were able to get

disability for fibro. I know how bewildering it can be when you are

first diagnosed. Life seems to be spinning out of control! I have

had fibro since 1982 (pre-internet) and felt so lonely and

misunderstood. I am very happy that we have ways now to connect with

others who are going through this. Some of my early fibro

experience is at http://www.fms-help.com/interview.htm - Dominie

>

> Hello members I just joined today,what a great site,it just helps to

> know other people are out there to talk to,My name is Sherie and I

was

> diagnosed in Nov. 07 with fibro. I had to quit my factory job in

late

> Sept. due to all over pain and fatique,On top of coping with this I

> have the stress of no income which doesnt help,I am a mess!So any

> information or hugs would be a big help.

> Thank You

>

[Guest guest]

Hi Laurie - Just wanted to say WELCOME! It sure does help to have

people who understand. There's a great little (classic)article

called " My Name is Fibromyalgia " at

http://www.fms-help.com/mnif.htm - I think it can help " normal "

people understand what it's like to have fibro. - Dominie

>

> Hi...I guess I'm new, even though I've been kind of floating

around

> for a while. I'm a writer and former graphic designer who lives in

New

> York's Hudson Valley with my husband. I spent a lot of years

writing

> novels but I'm taking a little break from that and writing for the

> web, mostly about medical/wellness/alternative health issues (It's

a

> trip to finally get paid for writing, even thought it isn't much).

> Thank you all for your wonderful words so far...I have few friends

and

> some supportive family members, but nobody who REALLY gets what

this

> is like. It's great to have this forum and thank you to Dominie

for

> setting it up and the others (I'm sorry, I lost track of your

names)

> who work on it too.

>

> Gentle hugs,

> Laurie

>

[Guest guest]

Hi Sherie,

You will meet many great caring members here. Many ideas that actually work because they have been tried and then shared by members. So once again, welcome, and I hope we have something shared here that will benefit you, too.

Hugs, Elaine

From: sherielynn58 <sherielynn58@...>Subject: Re: Welcome New Membersdominie Date: Friday, May 9, 2008, 7:15 PM

Hello members I just joined today,what a great site,it just helps to know other people are out there to talk to,My name is Sherie and I was diagnosed in Nov. 07 with fibro. I had to quit my factory job in late Sept. due to all over pain and fatique,On top of coping with this I have the stress of no income which doesnt help,I am a mess!So any information or hugs would be a big help.Thank You

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Thanks Mike. I'm new here, have failed back syndrome with chronic pain, deg.

disc disease and arthritis. I got my SCS implanted in Feb. and was told that

they couldn't attatch one of the leads due to ligaments or bone that was in the

way. So I have only one paddle attached. My trial gave me 99.9% relief but the

permanent one is giving me only about a 50% reduction in pain. Needless to say,

I'm thankful for the 50% but very disappointed that they couldn't get the other

lead attached. Most of my pain is in my legs so I still have a lot of pain

walking. I also have trouble going to sleep.

Does anyone know if they can go back in and try to attach the other lead again?

I would love to have the relief that I got during the trial implant.

Thanks for starting this group Mike, I've learned a lot from just reading the

posts and I hope I can help others.

Ginny

[Guest guest]

HEY GINNY!

THAT IS GREAT THAT YOU GET 50 % OF HELP WITH THE STIM!!!

I HAVE HAD MINE FOR OVER 4 YEARS NOW, AND RSD FOR OVER 25 YEARS. THE STIM

DOES NOTHING FOR ME AT ALL. I WAS JUST TOLD BY MY NEUORSURGOEN THAT THERE IS

A NEW STIM OUT THERE THAT HAS MORE COVERAGE...MAYBE THAT WILL HELP YOU EVEN

MORE!!

GOOD LUCK.

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

>

> Thanks Mike. I'm new here, have failed back syndrome with chronic

pain, deg. disc disease and arthritis. I got my SCS implanted in Feb.

and was told that they couldn't attatch one of the leads due to

ligaments or bone that was in the way. So I have only one paddle

attached. My trial gave me 99.9% relief but the permanent one is

giving me only about a 50% reduction in pain. Needless to say, I'm

thankful for the 50% but very disappointed that they couldn't get the

other lead attached. Most of my pain is in my legs so I still have a

lot of pain walking. I also have trouble going to sleep.

> Does anyone know if they can go back in and try to attach the

other lead again? I would love to have the relief that I got during

the trial implant.

> Thanks for starting this group Mike, I've learned a lot from just

reading the posts and I hope I can help others.

> Ginny

>

>

[Guest guest]

-Thanks. I'm so sorry you got no relief with your SCS. I have the

Boston Scientific Precision unit, it's supposed to be the best, of

course they tell you that, but I find it easy to use and I am getting

some relief, thank God. I have 4 programs that are connected to 4

areas of my body but only one of them does me any good. I still have

lots of pain when walking and even with taking Flexaril I get bad

cramps at times. I tried the oral Baclofen but that had me

sleepwalking in the middle of the day, I was so dizzy and more dopey

than usual, lol.

Maybe you will get some relief if you try the one your neuorsurgeon

was talking about, it's worth a try. Wow, 25 years with RSD is a

terriably long time, my heart goes out to you.

Wishing you the best and a pain free night.

Ginny

-- In Stimulator , KGAVI@... wrote:

>

> HEY GINNY!

>

> THAT IS GREAT THAT YOU GET 50 % OF HELP WITH THE STIM!!!

>

> I HAVE HAD MINE FOR OVER 4 YEARS NOW, AND RSD FOR OVER 25 YEARS.

THE STIM

> DOES NOTHING FOR ME AT ALL. I WAS JUST TOLD BY MY NEUORSURGOEN

THAT THERE IS

> A NEW STIM OUT THERE THAT HAS MORE COVERAGE...MAYBE THAT WILL HELP

YOU EVEN

> MORE!!

>

> GOOD LUCK.

>

>

>

> **************Get trade secrets for amazing burgers. Watch " Cooking

with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4 & ?

NCID=aolfod00030000000002)

>

>

>

[Guest guest]

Thanks for the information Mike, I'm going to ask my doc about trying

it again, maybe this time with another doctor. My neurosurgeon is a

very young guy ( while I'm very old, 65 now) and I guess that's why I

don't have much confidence in him. My trial gave me 99.9% relief but

now I'm getting maybe 50%, with my meds and it seems like the pain is

slowly coming back. I know what you mean about putting alot on your

spouse, I do too and my hubby is disabled also, so we're a great

mess, lol.

It puzzles me that my Pain Management doc who did the trial gave me

so much relief but the permenent one is so much less, I can't figure

that out. The neurosurgeon said that he couldn't get the paddle in

the right position but obviously my PM doc could do it. Doesn't mmake

sense to me.

Thanks for the help Mike, this gives me hope. Have a great vacation!

Ginny

> >

> > Thanks Mike. I'm new here, have failed back syndrome with chronic

> pain, deg. disc disease and arthritis. I got my SCS implanted in

Feb.

> and was told that they couldn't attatch one of the leads due to

> ligaments or bone that was in the way. So I have only one paddle

> attached. My trial gave me 99.9% relief but the permanent one is

> giving me only about a 50% reduction in pain. Needless to say, I'm

> thankful for the 50% but very disappointed that they couldn't get

the

> other lead attached. Most of my pain is in my legs so I still have

a

> lot of pain walking. I also have trouble going to sleep.

> > Does anyone know if they can go back in and try to attach the

> other lead again? I would love to have the relief that I got during

> the trial implant.

> > Thanks for starting this group Mike, I've learned a lot from just

> reading the posts and I hope I can help others.

> > Ginny

> >

> >

[Guest guest]

By the way Mike, my SCS is a Boston Scientific. I recharge it with a

seperate charger that I wear in a belt, I'm not tied down to anything

when I charge it, it's great. I have 4 programs but only one works on

my pain. If they had been able to connect the second paddle they all

would have worked to one degree or the other. The pain seems to be

creeping back, is this normal too Mike? It's getting harder and

harder for me to walk lately. Thanks so much for your help.

Ginny

-- In Stimulator , " mike2boys " <mike2boys@...> wrote:

>

>

> >

> > Thanks Mike. I'm new here, have failed back syndrome with chronic

> pain, deg. disc disease and arthritis. I got my SCS implanted in

Feb.

> and was told that they couldn't attatch one of the leads due to

> ligaments or bone that was in the way. So I have only one paddle

> attached. My trial gave me 99.9% relief but the permanent one is

> giving me only about a 50% reduction in pain. Needless to say, I'm

> thankful for the 50% but very disappointed that they couldn't get

the

> other lead attached. Most of my pain is in my legs so I still have

a

> lot of pain walking. I also have trouble going to sleep.

> > Does anyone know if they can go back in and try to attach the

> other lead again? I would love to have the relief that I got during

> the trial implant.

> > Thanks for starting this group Mike, I've learned a lot from just

> reading the posts and I hope I can help others.

> > Ginny

> >

> >

[Guest guest]

Hi. I was wondering if anybody in the group uses the Stimulator for pain

in their feet. If so, do you know if the surgeon attached the leads to

your spinal cord or to the nerve root. I ask because my surgeon attached

the leads to the spinal cord and for the sensation to reach my foot, I

experience the masking sensation down my entire leg. The problem is that

I don't have a problem with the leg. It's only with the foot. I was

wondering if I could avoid the sensation going though my leg if the lead

were attached directly to the nerve root instead of to the spinal cord.

Thanks in advance.

Mark

[Guest guest]

hi mark yes i have have the stim for my foot and its attached to the cord? i was

glad he did this because my rsd spread into my leg from my foot?? i only notice

it when i have to really crank it up

Re:welcome new members

Hi. I was wondering if anybody in the group uses the Stimulator for pain

in their feet. If so, do you know if the surgeon attached the leads to

your spinal cord or to the nerve root. I ask because my surgeon attached

the leads to the spinal cord and for the sensation to reach my foot, I

experience the masking sensation down my entire leg. The problem is that

I don't have a problem with the leg. It's only with the foot. I was

wondering if I could avoid the sensation going though my leg if the lead

were attached directly to the nerve root instead of to the spinal cord.

Thanks in advance.

Mark

[Guest guest]

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the

answer to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion

and common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue affected so many " (honest answer). we

need to make it well known, we want some quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

________________________________

From: oldstylemike1 <oldstylemike1@...>

Stimulator

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

 

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree309@...> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

________________________________

From: oldstylemike1 <oldstylemike1@...>

Stimulator

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

________________________________

From: Deanna Ramsey <Photobug33777@...>

SCS support group <Stimulator >

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

 

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree309 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

Hi Josh. As I have stated before, I have 2 stims. I have a cervical and a lumbar

spinal cord stimulator as well as a pain pump. The stims have helped me a great

deal. They have helped me with my mobility. The lumbar stim kept me out of a

wheelchair. The cervical stim gave me back the mobility of my arm. The stim does

not cure your problem, but it does hopefully give you back your quality of life.

The stim will not take away all of your pain, but will hopefully reduce your

pain by about half. The stim makes it possible for you to have more good days

than bad days. You can't overdo things, or your pain level will increase, but

you should be able to do more with the implant. You go for a trial before the

implant to see if the stimulator will help you. I suggest you try the trial. If

it helps, and you get enough relief, then you know it's worth going for another

surgery. Good luck. Keep us posted.

Sue C

________________________________

From: Tinkler <tinklerjoshua@...>

Stimulator

Sent: Friday, August 14, 2009 12:53:32 PM

Subject: Re: Re: Welcome new members

 

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@gro ups.com>

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

 

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree30 9 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1@ ..com>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

THANK YOU I WILL BE DOING THE TRIAL AS SOON AS I GET DONE WITH THE COUNSELING

THAT THEY SAY I HAVE TO GO TOO. THANX FOR YOUR INPUT AND I WILL KEEP YOU (THE

GROUP) INFORMED

________________________________

From: Corn <butterfliesrfree309@...>

Stimulator

Sent: Friday, August 14, 2009 12:22:49 PM

Subject: Re: Re: Welcome new members

 

Hi Josh. As I have stated before, I have 2 stims. I have a cervical and a lumbar

spinal cord stimulator as well as a pain pump. The stims have helped me a great

deal. They have helped me with my mobility. The lumbar stim kept me out of a

wheelchair. The cervical stim gave me back the mobility of my arm. The stim does

not cure your problem, but it does hopefully give you back your quality of life.

The stim will not take away all of your pain, but will hopefully reduce your

pain by about half. The stim makes it possible for you to have more good days

than bad days. You can't overdo things, or your pain level will increase, but

you should be able to do more with the implant. You go for a trial before the

implant to see if the stimulator will help you. I suggest you try the trial. If

it helps, and you get enough relief, then you know it's worth going for another

surgery. Good luck. Keep us posted.

Sue C

____________ _________ _________ __

From: Tinkler <tinklerjoshua>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 12:53:32 PM

Subject: Re: Re: Welcome new members

 

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@ gro ups.com>

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

 

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree30 9 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1@ ..com>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

You're welcome. I hope you are able to get the appointment for the counselor and

then the trial ASAP. If you have any questions or need any information, please

contact us.

Sue C

________________________________

From: Tinkler <tinklerjoshua@...>

Stimulator

Sent: Friday, August 14, 2009 4:40:14 PM

Subject: Re: Re: Welcome new members

 

THANK YOU I WILL BE DOING THE TRIAL AS SOON AS I GET DONE WITH THE COUNSELING

THAT THEY SAY I HAVE TO GO TOO. THANX FOR YOUR INPUT AND I WILL KEEP YOU (THE

GROUP) INFORMED

____________ _________ _________ __

From: Corn <butterfliesrfree309 @>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 12:22:49 PM

Subject: Re: Re: Welcome new members

 

Hi Josh. As I have stated before, I have 2 stims. I have a cervical and a lumbar

spinal cord stimulator as well as a pain pump. The stims have helped me a great

deal. They have helped me with my mobility. The lumbar stim kept me out of a

wheelchair. The cervical stim gave me back the mobility of my arm. The stim does

not cure your problem, but it does hopefully give you back your quality of life.

The stim will not take away all of your pain, but will hopefully reduce your

pain by about half. The stim makes it possible for you to have more good days

than bad days. You can't overdo things, or your pain level will increase, but

you should be able to do more with the implant. You go for a trial before the

implant to see if the stimulator will help you. I suggest you try the trial. If

it helps, and you get enough relief, then you know it's worth going for another

surgery. Good luck. Keep us posted.

Sue C

____________ _________ _________ __

From: Tinkler <tinklerjoshua>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 12:53:32 PM

Subject: Re: Re: Welcome new members

 

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@ gro ups.com>

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

 

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree30 9 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1@ ...com>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer).. we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

Hi my name is Kerrie and I have a pump with continous medicine. I had it

implanted in 8/07 and it has given the ability to return to work but every day

is still a struggle. I still have pain from RSD in my left leg. It is

absolutely worth it but is has been a rough road back.

Kerrie

________________________________

From: Tinkler <tinklerjoshua@...>

Stimulator

Sent: Friday, August 14, 2009 11:53:32 AM

Subject: Re: Re: Welcome new members

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@gro ups.com>

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree30 9 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer). we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

I am so glad that I found this group! I am really looking forward to finding the

support from other who are in the same place. I also have RSD....in my left leg

and I feel it is spreading. I feel in 06 and needed a complete ankle

reconstruction.

Kerrie

________________________________

From: oldstylemike1 <oldstylemike1@...>

Stimulator

Sent: Friday, August 14, 2009 6:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the

answer to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion

and common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the

issue affected so many " (honest answer). we need to make it well known, we

want some quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>

[Guest guest]

THIS IS JOSHS WIFE AND I JUST WOULD LIKE TO KNOW ABOUT THE BATTERY DOES IT GO

DEAD AND IF SO HOW DO YOU CHANGE IT

________________________________

From: Corn <butterfliesrfree309@...>

Stimulator

Sent: Friday, August 14, 2009 4:10:21 PM

Subject: Re: Re: Welcome new members

 

You're welcome. I hope you are able to get the appointment for the counselor and

then the trial ASAP. If you have any questions or need any information, please

contact us.

Sue C

____________ _________ _________ __

From: Tinkler <tinklerjoshua>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 4:40:14 PM

Subject: Re: Re: Welcome new members

 

THANK YOU I WILL BE DOING THE TRIAL AS SOON AS I GET DONE WITH THE COUNSELING

THAT THEY SAY I HAVE TO GO TOO. THANX FOR YOUR INPUT AND I WILL KEEP YOU (THE

GROUP) INFORMED

____________ _________ _________ __

From: Corn <butterfliesrfree30 9 @>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 12:22:49 PM

Subject: Re: Re: Welcome new members

 

Hi Josh. As I have stated before, I have 2 stims. I have a cervical and a lumbar

spinal cord stimulator as well as a pain pump. The stims have helped me a great

deal. They have helped me with my mobility. The lumbar stim kept me out of a

wheelchair. The cervical stim gave me back the mobility of my arm. The stim does

not cure your problem, but it does hopefully give you back your quality of life.

The stim will not take away all of your pain, but will hopefully reduce your

pain by about half. The stim makes it possible for you to have more good days

than bad days. You can't overdo things, or your pain level will increase, but

you should be able to do more with the implant. You go for a trial before the

implant to see if the stimulator will help you. I suggest you try the trial. If

it helps, and you get enough relief, then you know it's worth going for another

surgery. Good luck. Keep us posted.

Sue C

____________ _________ _________ __

From: Tinkler <tinklerjoshua>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 12:53:32 PM

Subject: Re: Re: Welcome new members

 

HI MY NAME IS JOSH AND I HAVE CHRO NIC BACK PAIN EVEN AFTER MY SURGARY. I HAVE 2

TITANIUM RODS IN MY BACK. I AM LOOKING INTO THIS STIMULATOR IMPLANT AND WOULD

LIKE SOME INPUT ON IT. SO IF ANYONE WHO HAS IT WOULD PLEASE LET ME KNOW SOME

INFO ON IT. LIKE HAS IT HELPED AND IF SO HOW MUCH AND IS IT WORTH ANOTHER

SURGARY. THANK YOU FOR YOUR TIME

____________ _________ _________ __

From: Deanna Ramsey <Photobug33777@ sbcglobal. net>

SCS support group <Stimulator@ gro ups.com>

Sent: Friday, August 14, 2009 10:45:15 AM

Subject: Re: Re: Welcome new members

 

One day would never be enough to gain understanding of our pain. Pretty much

anyone can get thru a day or two cause they know it's gonna end...light at the

end of the tunnel syndrome. Give them a few weeks thinking it's never going away

would be much better! Not that I wish chronic pain on anyone...I'm just saying!

Deanna

Sent from my iPhone

On Aug 14, 2009, at 8:47 AM, Corn <butterfliesrfree30 9 @> wrote:

Hi Mike. I'm glad that you are getting relief from your pain. What works for one

person might not work, or be right for someone else.

We must stand up and advocate for ourselves. You are so right when you say that

we want our quality of life back. It's not right that other people (drs,

insurance cos, politicitians, etc) make the decisions that effect our lives.. We

are the ones living in pain, we are the ones who can't function, and they are

the ones who dictate what can and cannot be done. If only they trade places with

us for one day!! We must take a more active role in our own lives. We must do

what we can to take back whatever control we can. We must move our bodies. Some

form of excersie is important. Immobility makes the body stiff and increases the

pain.

Sue C

____________ _________ _________ __

From: oldstylemike1 <oldstylemike1@ ...com>

Stimulator@gro ups.com

Sent: Friday, August 14, 2009 7:19:41 AM

Subject: Re: Welcome new members

>

> I want to welcome all the new members to the group. My name is Sue. I have RSD

along with several other medical conditions. I have 2 spinal cord stimulators

and a pain pump.

>

> The stims and pump have made it possible for me to be able to function

> again. Yes, there are still things that I cannot do, yes, I still have pain,

but I am able to function. The stim is not a cure, but a means of giving you

your life back. The key is doing things in moderation.

>

> Everyone in the group knows what everyone else is going through. We are all

going through, or have gone through the same thing. Only someone who lives in

chronic pain can understand what it is like to be in pain each day, every minute

of the day. We are here to support each other. If you have any questions, or

need any information, please contact us.

>

> Sue C

>

>hey sue, its a pleasure to talk. my name is mike graham, i'm a 46 year old

disabled man. i have suffered from a degenerative condition in my spine. i

currently have a spinal cord stimulator and a morphine pump installed inside my

body. back during my first spinal fusion, i was prescribed very large doses of

medication to battle some of the pain i was in. the oral opiates almost killed

me, i was bedridden and had lost over seventy pounds. if not for the

recommendation of a hospice nurse, i wouldn't be here writing letters on this

issue, i would have died. i'll leave that as the reader's digest version.

there are too many people that are suffering needlessly. is marijuana the answer

to everything, obviously no, but it works for me, and many others, so why

shouldn't a doctor have the ability to alleviate pain and suffering in some, if

they can? it doesn't make sense. i was taking more prescribed medications for

the side effects i was having from the opiates i was taking.

in 2009, we made great strides towards making a difference in the lives of many,

and that is why i got involved, to make a difference. many folks have put in

countless hours to get where we are, and it will take more to get this job

complete. state senator haine led the fight through the SENATE and state

representative lou lang has gained the support of fellow state congresspersons

across the state. we were proud that 30 SENATORS had the courage, compassion and

common sense to allow patients access to something that has been used as

medicine in CHINA for over 5000 years. when the " powers that be " down in

springfield get all the votes counted, they will bring it before the HOUSE for a

vote and then on to the GOVERNOR. we want a system that will be " patient

focused " & one that will be used as a model when other states work on their own

legislation. we need more patient's to help educate those members of the HOUSE

that may " not have had any idea the issue

affected so many " (honest answer).. we need to make it well known, we want some

quality of life back!!!

sue, this is my " form " letter i send to my local politicians, along with a

little tweaking, it truly has saved my life.

>

>

>