Re: appt tomorrow

August 12, 2003

Good luck on your appt tomorrow, or maybe today I guess i should say.

If I was you I still think I would see your Dr about getting some

labs drawn, ya never know something may still be off that is making

you feel crappy. I know that it sucks to go to get blood drawn but

sometimes ya gotta do what ya gotta do ya know! Anyhow honey, as for

me I am doing good but still got issues with my left foot. I honestly

think that the plantar fscitis is going to continue to be a source of

pain for me till I get that ossatron treatment. I mean the

inflammation in my heel is so stubborn once it flares up it gets so

hard to get a hold of it. The blood circulation in the heel is very

poor so it just does not heal well. The shock wave therapy is really

my only hope to solve this permanently. It is not as bad as last year

but def an issue for me. Anyhow I am awaiting the word from my

insurance to see what will happen. Meanwhile all I can do is wear

orthotics. I don't think this is really related to implants at all. I

believe it is something with my walk, from running and bad shoes over

the years. I mean it just makes no sense that everything else is

healed cept this.

hugs

C

In , " *~Patty~* " <fdp@l...> wrote:

> How are you guys all feeling? Especially some of our recent

explantees?

>

> I decided to make an appointment with a naturopath tomorrow morning

and get an IV of vitamins and minerals. Even though I have been

feeling better, it hasn't " stuck " . I was really tired yesterday and

again today, so I decided I need a good dose of nutrients to boost

me. I gave myself a shot of B12, but I want the whole spectrum.

>

> I'll let you know how it goes, but I've done this before a couple

times, and I believe it to be beneficial. In fact, it was last year

at this doctor's office that he discovered my Hashimotos. I always

noticed I felt alot better after the IV's of vitamin C, B's and

hydrogen peroxide. (That last one there sounds scary, but it

actually did make me feel better. ) I really hope I can feel full of

energy here soon!

>

> Lena, is your sinus infection better?

>

> , did Dr. Mercola ever suggest H202 iv's or any other kind of

IV for you?

>

> Shirl, did you ever got on disability? Are you feeling any better?

>

> , are your feet still hurting?

>

> Sunday, is your brain fog gone or did it come back again?

>

> Kathi, I am glad you are back from your cruise and that you had

such a refreshing time! How are you doing on your mycoplasma

protocol?

>

> Just wanted to check in and see how you all are doing! I am hoping

you are all feeling improvements.

> Hugs,

> Patty

August 12, 2003

My appointment today went great. Dr. Royal was so nice and attentive, and after I told him what has been going on, and my concern about the C3 Complement and rheumatoid factor, he just asked if I wanted to get them tested today, and I said sure! He said he was interested in seeing where they stood himself. He is a D.O., so he is capable of ordering those tests as well. I guess I didn't realize he was a D.O., because he does so much in the way of alternative treatments.

Today he gave me a bunch of stuff--I think I got poked 4 different times, after I got poked for the blood work. He gave me injections of NADH, homeopathic remedies, and an IV of vitamins, and also gave me stuff to take at home--DHEA, pregnenolone, some kind of homeopathic pill to alkalize, and a heavy dose of progesterone cream that I am to apply twice daily. That surprised me. I told him my cycle was off last month, and he seems to think that is what I need.

He said I should start feeling better from my injections within 24 hours. I actually feel better already. : )

I was very pleased, and am anxious to see what happens with my blood tests. He said he will have it back tomorrow. I'll let you know. One thing I LOVE about Dr. Royal is that he goes over your blood work very carefully, then writes you a letter stating everything he found to be off and what you can do about it. No other doctor I have ever been to has done that. You can't forget what he said this way!

Patty

----- Original Message -----

From: naturalbeauty38

Sent: Tuesday, August 12, 2003 8:23 AM

Subject: Re: appt tomorrow

Good luck on your appt tomorrow, or maybe today I guess i should say. If I was you I still think I would see your Dr about getting some labs drawn, ya never know something may still be off that is making you feel crappy. I know that it sucks to go to get blood drawn but sometimes ya gotta do what ya gotta do ya know! Anyhow honey, as for me I am doing good but still got issues with my left foot. I honestly think that the plantar fscitis is going to continue to be a source of pain for me till I get that ossatron treatment. I mean the inflammation in my heel is so stubborn once it flares up it gets so hard to get a hold of it. The blood circulation in the heel is very poor so it just does not heal well. The shock wave therapy is really my only hope to solve this permanently. It is not as bad as last year but def an issue for me. Anyhow I am awaiting the word from my insurance to see what will happen. Meanwhile all I can do is wear orthotics. I don't think this is really related to implants at all. I believe it is something with my walk, from running and bad shoes over the years. I mean it just makes no sense that everything else is healed cept this.hugsC

June 17, 2008

can never predict on an individual. You and your team must

experiment with it to see what works best for you.

May your pressure be low!

CE Grim MS, MD

High Blood Pressure Consulting

Clinical Professor of Medicine Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jun 17, 2008, at 6:19 PM, Valarie wrote:

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of mmcandmcc

>

> I'm going to see the Endo tomorrow for hair loss. I've lost everything

> on my arms, legs, elsewhere. I'm drawing on eyebrows and wearing my

> hair in a pony tail it's so thin. I'm on 100 mg Spiro 2 times a day

> and 100 synthroid (for replacement after surgery). Would switching to

> something like Armour thyroid (extracted from pigs) help it the hair

> loss is synthroid?

June 19, 2008

I saw the Endo yesterday and he won't let me go back to Armour Thyroid,

says there are better things on the market. He drew labs and said if

the T3 comes back low there is a pill we can add to the Synthroid. He

thinks the hair loss is from the Spiro which he said is also used for

women with excess hair. He's reluctant to do much different until

after I go to the Cleveland Clinic in August.

June 19, 2008

, please keep us informed. My hair comes and goes and mostly goes

on Synthroid but I've been unable to tolerate Armour or any T3. I've been

on spiro for about three months and have not noticed any greater loss of

hair. I am interested to see how you tolerate Cytomel (synthetic T3). How

much T4 are you on and do you tolerate it okay? I had to cut my T4 down.

It seemed to make the anxiety worse.

I trust you know that you cannot have AVS if you're on spiro?

I've been trying to give myself an episode so the new cardio can re-check

for pheo. I managed to do it today by ingesting 1500 mg Na/d for the last

four days. Even had a bout of paralysis this morning. I just cannot

tolerate more than 800 mg Na/d. When I saw him on Monday, I told him I was

feeling better than I had in five years.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of mmcandmcc

I saw the Endo yesterday and he won't let me go back to Armour Thyroid,

says there are better things on the market. He drew labs and said if

the T3 comes back low there is a pill we can add to the Synthroid. He

thinks the hair loss is from the Spiro which he said is also used for

women with excess hair. He's reluctant to do much different until

after I go to the Cleveland Clinic in August.

June 20, 2008

On Jun 19, 2008, at 1:41 PM, Valarie wrote:

>

> I've been trying to give myself an episode so the new cardio can re-

> check

> for pheo. I managed to do it today by ingesting 1500 mg Na/d for

> the last

> four days.

I think he was testing you for PA if you were being salt loaded.

I think you must have misunderstood him when he said that all PAs he

had seen had had sarcoidosis. Please clarify.

> Even had a bout of paralysis this morning.

This is classic for PA. Please call his office to let you know you

had this problem with sodium loading.

> I just cannot

> tolerate more than 800 mg Na/d. When I saw him on Monday, I told

> him I was

> feeling better than I had in five years.

And you were on Spiro and low sodium and high K. Duh!

>

> Val

June 20, 2008

If you are otherwise dong better with BP and K I would agree.

CE Grim MD

On Jun 19, 2008, at 8:37 AM, mmcandmcc wrote:

> I saw the Endo yesterday and he won't let me go back to Armour

> Thyroid,

> says there are better things on the market. He drew labs and said if

> the T3 comes back low there is a pill we can add to the Synthroid. He

> thinks the hair loss is from the Spiro which he said is also used for

> women with excess hair. He's reluctant to do much different until

> after I go to the Cleveland Clinic in August.

>

June 21, 2008

Sometimes the written word doesn't come across well. He wanted a 24-hr

urine while I was having an episode. Therefore, I was liberal with the salt

for four days (average 1463 mg/day) to bring on an episode. I am generally

at 750 - 850 mg. I need to clarify that he was not doing salt loading.

Eating 600 more mg of Na for four days was my way of bringing on an episode.

He asked me what brought on an episode and the best I could explain it was

salt. Indeed, salt did it this time. It was a good test for me, too. I

would never do a salt-loading test without supervision. If 1500 mg of salt

gives me a paralysis, think what 7200 would do! Explaining these episodes

is so difficult that I took notes periodically throughout the time I was

collecting urine. I got another jug in case a worse episode comes before I

see him again.

I 'm not sure of his exact phraseology about sarcoids but what I heard was

that he had seen PA and sarcoids together. Please keep in mind that

National Jewish is a respiratory hospital. He is not yet settled on PA

because he says I have symptoms that are not consistent with PA. I

neglected to ask what they were. I know I have some physical attributes

that would suggest Cushing's and my sweating would suggest pheo. Indeed, I

sweat as I write this, I don't flush though. In fact, when I've looked at

myself in the mirror after getting up at 4 a.m. with terrible sweats, I am

white as a sheet.

In reading through symptoms people on this list have reported, there are

many more than I've found in the literature. I think the scientific world

is ripe for a good study of the symptoms of PA other than hypertension and

the common ones we've heard about. If I'm not mistaken, the members here

who have had the worst symptoms are also the ones who were helped by

surgery. It seems that, in general, those with hyperplasia didn't complain

as much.

I gave him my U of Colo record complete with my comments. The endo there

concluded that since my ARR was just over 20 and my CT (5mm) was negative, I

didn't have PA.. I jotted down various references about CT's ability to

miss 40%. She totally neglected the 32.5 ARR and said both ARRs done were

just over 20. I corrected various other errors. Throughout, she talks

about my metabolic syndrome and my need for more HCTZ and Actos. I'd

already done Actos with a 10 lb weight gain and no benefit. She never

connected metabolic syndrome to HCTZ and PA. My fasting glucose was 105 -

116 in 2004-05. On two weeks of triam/HCTZ, it was 99. On April 3, NOT

FASTING, it was 91. I'd been on spiro 50 mg for two weeks.

Dr. Weinberger has some connection to CU. Some of his publications were

from there. My luck is he and that endo are good friends.

I did tell him that I was feeling better that day than I have in several

years. I had my family visiting last Sunday. It was the first time I have

been with them since sometime last November or December that I didn't take

an Ativan or Valerian Root beforehand. That is real progress. Duh!

Monday, I'm having an adrenal MRI with and without contrast, and two

different echos.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

On Jun 19, 2008, at 1:41 PM, Valarie wrote:

> I've been trying to give myself an episode so the new cardio can re-

> check

> for pheo. I managed to do it today by ingesting 1500 mg Na/d for

> the last

> four days.

I think he was testing you for PA if you were being salt loaded.

I think you must have misunderstood him when he said that all PAs he

had seen had had sarcoidosis. Please clarify.

> Even had a bout of paralysis this morning.

This is classic for PA. Please call his office to let you know you

had this problem with sodium loading.

> I just cannot

> tolerate more than 800 mg Na/d. When I saw him on Monday, I told

> him I was

> feeling better than I had in five years.

And you were on Spiro and low sodium and high K. Duh!

June 24, 2008

Hey Val,

your posts are always full of interesting info, please keep it up!!

Just wanted to comment on your observation " If I'm not mistaken, the

members here who have had the worst symptoms are also the ones who

were helped by surgery. It seems that, in general, those with

hyperplasia didn't complain as much. " I am diagnosed as hyperplasic

and complain all the time!! I always tell my Dr. that I am probably

his only patient who wishes for a tumor...My symptoms are: daily

headache/migraines, muscle aches, joint inflammation and aches,

fainting, vomiting, nausea, general feeling of malaise, concentration

and memory difficulties, anxiety, depression, and i've probably

forgotten a few...

Kim

June 24, 2008

Kim, thank you for telling me to keep it up. Sometimes I wonder. I know

you are suffering a lot, Kim. I feel very badly for you because I know

exactly where you are. I think you need AVS to see if, in fact, you are

hyperplastic. Sometimes I wonder if something else is going on with you -

like hyperparathyroidism. I also wonder why you're on anything but

spiro/Inspra.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of kimsstay