Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 , If you are this bad then I would be getting Lennie NOW, to take you to the BIG city to an ER there and get some help !!! They will NOT let you go if you are in such bad shape!!! If they do then go to a different one till you get the help you need!!! DO IT TONIGHT!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ((((((((((( Very Worried Hugs ))))))))))) Helen > Dear trusted friends and family, > > I write this because I need medical help NOW and am having an extremely > hard time finding the appropriate dr(s). I saw a gastro dr. today. He is > from Longview, TX, but comes here to Sulphur Springs every so often. This > is a small hospital, a small town. This dr. seemed to want to rush and > gloss over my many multiple SERIOUS health problems and issues which must > be contendedwith in order for me to undergo a colonoscopy. He did agree > that I need one ASAP, preferably next week before my school starts again, > and before my physical condition worsens further. Due to my Ehlers-Danlos > Syndrome, it MUST be done under general anesthetic, not loca. EDS patients > do not always respond to local. A good personal example is when I had a > c-section with in 1985. They gave me a routine spinal (way before > my EDS Dx), and it didn't take. I felt the entire horrific procedure, and > it caused both me and to go into shock, both our body temps to fall > to 95, and we both almost died. He was whisked away to neonatal ICU, and I > was cared for separately. He was also premature by 6-6 1/2 weeks. When > the gastro dr. sent me to visit with the anesthesiologist, he just sent me > round in a big, energy sucking circle. The anes dr. took a good look at > me, looked up EDS, listened to my patient and detailed medical history and > problems, and said he was very uncomfortable and afraid to put me to sleep > for ANY reason. This is a small place, and he would have no back up to > step in. Among his many valid concerns were first that my cervical spine > is very unstable and in need of a second cervical fusion beneath the first. > He feared compressing my spinal cord with the breathing tube and > paralyzing me (very possible). Another concern was my fragile skin and my > defective veins which don't support IV's well at all. I don't have > Vascular EDS, but I do have vascular components...so does . I am > stuck in a horrible, life threatening Catch 22. Yesterday on a dr.'s > scale, I weighed 87. This morning on a dr.'s scale, I weighed 86. I still > have bloody stools and diahrrea and great difficulty keeping food in my > stomach. This has been a deadly downward spiral since I contracted a > bacterial infection in my intestines from food poisoning in May > 2001....which sent my Irritable Bowel Syndrome spinning waaaaaaay out of > control. I was so weak by the time they had me walk down long hallways at > the hospital and talk to various people, I needed a wheelchair to get back > to the lobby. The EMT who showed up with one insisted that the hospital > social worker accompany us because he was afraid I would collapse/die/etc. > on him! She did so. A kind woman. She even attempted to reach my regular > GP for another referral to a different hospital/gastro dr. who is familiar > with EDS as well, and he is on vacation for the next 2 weeks! I am losing > weight and growing weaker by the hour. I can literally feel the life > ebbing away from my body. I lack the physical and emotional strength to > locate a gastro dr. with some knowledge of EDS who can see me SOON and DO > SOMETHING, lest I literally die. The trip to Toledo with my son took the > last bit of strength and determination I possessed, but I don't regret it > for a second. I live in Sulphur Springs, TX, which is about 75-80 miles > from the Dallas-Ft. Worth area. With God's help (which I will desperately > require), I am willing to travel anywhere if I can get the right help in > time to save my life......for my sons' sakes if not my own. There is no > possible way I could exaggerate this nor over dramatize it. I am truly > fading fast, and I don't have time to lose. If anyone can help me locate a > gastro dr. with EDS knowledge who can and will do a colonoscopy next week, > please email me. If it wasn't a matter of life or death, I wouldn't ask. > The many stomach meds I'm on are not helping nearly enough to save me. > Again, if you can help me find a dr., I thank you. > Love, > Get more from the Web. FREE MSN Explorer download : > http://explorer.msn.com > {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} */*\* */*\* */*\* */*\* */*\* */*\* */*\* RAINBOW ANGELS TO PROTECT YOU !! <body background= " http://home.talkcity.com/CupidsCt/wackydoodles/rainbowangelbg.jpg " bgcolor= " white " text= " #800080 " > <div align= " center " ></div> <div align= " center " ></div> <div align= " center " >~Rainbow Angel~</div> <div align= " center " ></div><bgsound src= " http://home.talkcity.com/MemoryLn/wackydoodles2/rainbow.mid " > angelbear1129@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 I agree!!!! There is obviously bleeding...this is life threatening!!! Get to the city, get to a major hospital...let them help you find a good gastro dr. You need help NOW!!!!! SueH --- angelbear1129@... wrote: > , > If you are this bad then I would be getting Lennie > NOW, to take you to the > BIG city to an ER there and get some help !!! They > will NOT let you go if > you are in such bad shape!!! If they do then go to > a different one till you > get the help you need!!! > DO IT TONIGHT!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > ((((((((((( Very Worried Hugs ))))))))))) > Helen > > > Dear trusted friends and family, > > > > I write this because I need medical help NOW and > am having an extremely > > hard time finding the appropriate dr(s). I saw a > gastro dr. today. He is > > from Longview, TX, but comes here to Sulphur > Springs every so often. This > > is a small hospital, a small town. This dr. > seemed to want to rush and > > gloss over my many multiple SERIOUS health > problems and issues which must > > be contendedwith in order for me to undergo a > colonoscopy. He did agree > > that I need one ASAP, preferably next week before > my school starts again, > > and before my physical condition worsens further. > Due to my Ehlers-Danlos > > Syndrome, it MUST be done under general > anesthetic, not loca. EDS patients > > do not always respond to local. A good personal > example is when I had a > > c-section with in 1985. They gave me a > routine spinal (way before > > my EDS Dx), and it didn't take. I felt the entire > horrific procedure, and > > it caused both me and to go into shock, > both our body temps to fall > > to 95, and we both almost died. He was whisked > away to neonatal ICU, and I > > was cared for separately. He was also premature > by 6-6 1/2 weeks. When > > the gastro dr. sent me to visit with the > anesthesiologist, he just sent me > > round in a big, energy sucking circle. The anes > dr. took a good look at > > me, looked up EDS, listened to my patient and > detailed medical history and > > problems, and said he was very uncomfortable and > afraid to put me to sleep > > for ANY reason. This is a small place, and he > would have no back up to > > step in. Among his many valid concerns were first > that my cervical spine > > is very unstable and in need of a second cervical > fusion beneath the first. > > He feared compressing my spinal cord with the > breathing tube and > > paralyzing me (very possible). Another concern > was my fragile skin and my > > defective veins which don't support IV's well at > all. I don't have > > Vascular EDS, but I do have vascular > components...so does . I am > > stuck in a horrible, life threatening Catch 22. > Yesterday on a dr.'s > > scale, I weighed 87. This morning on a dr.'s > scale, I weighed 86. I still > > have bloody stools and diahrrea and great > difficulty keeping food in my > > stomach. This has been a deadly downward spiral > since I contracted a > > bacterial infection in my intestines from food > poisoning in May > > 2001....which sent my Irritable Bowel Syndrome > spinning waaaaaaay out of > > control. I was so weak by the time they had me > walk down long hallways at > > the hospital and talk to various people, I needed > a wheelchair to get back > > to the lobby. The EMT who showed up with one > insisted that the hospital > > social worker accompany us because he was afraid I > would collapse/die/etc. > > on him! She did so. A kind woman. She even > attempted to reach my regular > > GP for another referral to a different > hospital/gastro dr. who is familiar > > with EDS as well, and he is on vacation for the > next 2 weeks! I am losing > > weight and growing weaker by the hour. I can > literally feel the life > > ebbing away from my body. I lack the physical and > emotional strength to > > locate a gastro dr. with some knowledge of EDS who > can see me SOON and DO > > SOMETHING, lest I literally die. The trip to > Toledo with my son took the > > last bit of strength and determination I > possessed, but I don't regret it > > for a second. I live in Sulphur Springs, TX, > which is about 75-80 miles > > from the Dallas-Ft. Worth area. With God's help > (which I will desperately > > require), I am willing to travel anywhere if I can > get the right help in > > time to save my life......for my sons' sakes if > not my own. There is no > > possible way I could exaggerate this nor over > dramatize it. I am truly > > fading fast, and I don't have time to lose. If > anyone can help me locate a > > gastro dr. with EDS knowledge who can and will do > a colonoscopy next week, > > please email me. If it wasn't a matter of life or > death, I wouldn't ask. > > The many stomach meds I'm on are not helping > nearly enough to save me. > > Again, if you can help me find a dr., I thank you. > > Love, > > Get more from the Web. FREE MSN Explorer > download : > > http://explorer.msn.com > > > > > {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} > */*\* */*\* */*\* */*\* */*\* */*\* */*\* > RAINBOW ANGELS TO > PROTECT YOU !! > > > <body > background= " http://home.talkcity.com/CupidsCt/wackydoodles/rainbowangelbg.jpg " > > bgcolor= " white " text= " #800080 " > > > > <div align= " center " ></div> > > > <div align= " center " ></div> > > <div align= " center " >~Rainbow Angel~</div> > > <div align= " center " ></div><bgsound > src= " http://home.talkcity.com/MemoryLn/wackydoodles2/rainbow.mid " > > > > > > > > > > angelbear1129@... > > > > [Non-text portions of this message have been > removed] > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- Scheduled Daily Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to > the list you receive. > 2) Daily Digest - sends you 25 messages in one > single email for you to browse. This is an excellent > option if you receive alot of email. > 3) Web only/No mail - means that you can pop into > groups at your convenience and receive no > email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 I agree!!!! There is obviously bleeding...this is life threatening!!! Get to the city, get to a major hospital...let them help you find a good gastro dr. You need help NOW!!!!! SueH --- angelbear1129@... wrote: > , > If you are this bad then I would be getting Lennie > NOW, to take you to the > BIG city to an ER there and get some help !!! They > will NOT let you go if > you are in such bad shape!!! If they do then go to > a different one till you > get the help you need!!! > DO IT TONIGHT!!!!!!!!!!!!!!!!!!!!!!!!!!!!! > ((((((((((( Very Worried Hugs ))))))))))) > Helen > > > Dear trusted friends and family, > > > > I write this because I need medical help NOW and > am having an extremely > > hard time finding the appropriate dr(s). I saw a > gastro dr. today. He is > > from Longview, TX, but comes here to Sulphur > Springs every so often. This > > is a small hospital, a small town. This dr. > seemed to want to rush and > > gloss over my many multiple SERIOUS health > problems and issues which must > > be contendedwith in order for me to undergo a > colonoscopy. He did agree > > that I need one ASAP, preferably next week before > my school starts again, > > and before my physical condition worsens further. > Due to my Ehlers-Danlos > > Syndrome, it MUST be done under general > anesthetic, not loca. EDS patients > > do not always respond to local. A good personal > example is when I had a > > c-section with in 1985. They gave me a > routine spinal (way before > > my EDS Dx), and it didn't take. I felt the entire > horrific procedure, and > > it caused both me and to go into shock, > both our body temps to fall > > to 95, and we both almost died. He was whisked > away to neonatal ICU, and I > > was cared for separately. He was also premature > by 6-6 1/2 weeks. When > > the gastro dr. sent me to visit with the > anesthesiologist, he just sent me > > round in a big, energy sucking circle. The anes > dr. took a good look at > > me, looked up EDS, listened to my patient and > detailed medical history and > > problems, and said he was very uncomfortable and > afraid to put me to sleep > > for ANY reason. This is a small place, and he > would have no back up to > > step in. Among his many valid concerns were first > that my cervical spine > > is very unstable and in need of a second cervical > fusion beneath the first. > > He feared compressing my spinal cord with the > breathing tube and > > paralyzing me (very possible). Another concern > was my fragile skin and my > > defective veins which don't support IV's well at > all. I don't have > > Vascular EDS, but I do have vascular > components...so does . I am > > stuck in a horrible, life threatening Catch 22. > Yesterday on a dr.'s > > scale, I weighed 87. This morning on a dr.'s > scale, I weighed 86. I still > > have bloody stools and diahrrea and great > difficulty keeping food in my > > stomach. This has been a deadly downward spiral > since I contracted a > > bacterial infection in my intestines from food > poisoning in May > > 2001....which sent my Irritable Bowel Syndrome > spinning waaaaaaay out of > > control. I was so weak by the time they had me > walk down long hallways at > > the hospital and talk to various people, I needed > a wheelchair to get back > > to the lobby. The EMT who showed up with one > insisted that the hospital > > social worker accompany us because he was afraid I > would collapse/die/etc. > > on him! She did so. A kind woman. She even > attempted to reach my regular > > GP for another referral to a different > hospital/gastro dr. who is familiar > > with EDS as well, and he is on vacation for the > next 2 weeks! I am losing > > weight and growing weaker by the hour. I can > literally feel the life > > ebbing away from my body. I lack the physical and > emotional strength to > > locate a gastro dr. with some knowledge of EDS who > can see me SOON and DO > > SOMETHING, lest I literally die. The trip to > Toledo with my son took the > > last bit of strength and determination I > possessed, but I don't regret it > > for a second. I live in Sulphur Springs, TX, > which is about 75-80 miles > > from the Dallas-Ft. Worth area. With God's help > (which I will desperately > > require), I am willing to travel anywhere if I can > get the right help in > > time to save my life......for my sons' sakes if > not my own. There is no > > possible way I could exaggerate this nor over > dramatize it. I am truly > > fading fast, and I don't have time to lose. If > anyone can help me locate a > > gastro dr. with EDS knowledge who can and will do > a colonoscopy next week, > > please email me. If it wasn't a matter of life or > death, I wouldn't ask. > > The many stomach meds I'm on are not helping > nearly enough to save me. > > Again, if you can help me find a dr., I thank you. > > Love, > > Get more from the Web. FREE MSN Explorer > download : > > http://explorer.msn.com > > > > > {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} > */*\* */*\* */*\* */*\* */*\* */*\* */*\* > RAINBOW ANGELS TO > PROTECT YOU !! > > > <body > background= " http://home.talkcity.com/CupidsCt/wackydoodles/rainbowangelbg.jpg " > > bgcolor= " white " text= " #800080 " > > > > <div align= " center " ></div> > > > <div align= " center " ></div> > > <div align= " center " >~Rainbow Angel~</div> > > <div align= " center " ></div><bgsound > src= " http://home.talkcity.com/MemoryLn/wackydoodles2/rainbow.mid " > > > > > > > > > > angelbear1129@... > > > > [Non-text portions of this message have been > removed] > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- Scheduled Daily Chats at > /chat > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator > email: -owner > > Subscription Details:- > 1) Individual email - means that every email sent to > the list you receive. > 2) Daily Digest - sends you 25 messages in one > single email for you to browse. This is an excellent > option if you receive alot of email. > 3) Web only/No mail - means that you can pop into > groups at your convenience and receive no > email. > > To modify your subscription settings please visit:- > /join > > To subscribe or unsubscribe please email:- > -subscribe > -unsubscribe > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 In a message dated 6/10/2004 12:42:33 PM Eastern Standard Time, frinh@... writes: > I'm on day 4 of a cleanse with OxyPowder. The normal dose is 10 > capsules, but I started with 5 then 5 then 6 and last night 7. Hi Tina, It's the " master cleanse " that recommends 10 caps for 7 days (twice a year) for Oxy-powder. One would only do this when you know you can be home and near a bathroom for a whole week. Even then, I would suggest caution in taking that amount, because everyone is different. Before a flush, however, they recommend 6 caps per night for 4 nights only. Usually, by lunchtime, you should be pretty much flushed for the day, or at least for bowel movements to have slowed down. For maintenance, the recommended dose is 5 caps every other day. Or, if you prefer, you can spread it out to alternating nights of 2 caps one night and 3 the next, which is what I do, because I find that higher dose a bit too much for my normal daily routines. Personally, I find regularity and stool softening is my aim, rather than constantly flushing. You may find 1 or 2 caps is enough, but it's probably wise to avoid more than 5 caps in any two-day period for maintenance purposes. The other thing to take into consideration is body weight and type. These can only be 'recommended' doses and each person is so unique. I started off on a smaller dose (2 caps per night) to see how my body would react, first, rather than attempting the master cleanse right off. I haven't done a Master Cleanse, subsequently, because I find that that pre-flush dose (4 days on 6 caps) is really enough to thoroughly flush me out and I've had quite enough of the running by day 4, too. You've done 4 days, now, so as Vince says, it would be wise to allow your body a rest, particularly if you were aiming to flush on day 5. It's recommended to not take any supplements on flush day and then only use the Epsoms in its place. Definitely, never take Epsoms and Oxy-powder together on the same day. I didn't resume the maintenance does of the Oxy-powder till a few days after my flushing and found that worked well. Lethargy and dizziness can also be dehydration symptoms and, while the Oxypowder shouldn't dehydrate you on its own, in combination with other things like detoxing and perspiring heavily (through exercise and hot weather) may induce these symtpoms. As Vince said, just take a few days break from the Oxy-powder, then resume on a lesser dose when you feel better. Your intuition was right to keep flushing your system with lots of fresh, clean water....and Vince's suggestions of gatoraid and water, with a little pure seasalt are excellent, just to make sure you're getting all the hydration you need to detox. I've found the Oxy-powder is a wonderful product, but it may not be suitable for everyone. I just listen to my body each day and decide what it's telling me to do, rather than just going with the recommended guidelines. Less is oftentimes more. Hope this helps you some and you feel better soon! Blessings, n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Hi Tina, Sorry to hear about the urgency problem. If you have a fiber supplement you can take a dose or two to help absorb the toxins in your system that have been stirred up. This should help your lethargy and dizziness. Do you hve any Psillium seed hulls around? This will also help stop the loose bowels to a reasonable level. Definitely don't take the same dose tomorrow Cut way back or take a day off. This will give your body time to catch up with all this good detox going on. I'd try gatorade or sea salt and water (1 teaspoon of sea salt to a gallon of water: drink several glasses a day) to get moisture back into your body. It can't hurt and may help. Hope you feel way better real soon. Vince > I'm on day 4 of a cleanse with OxyPowder. The normal dose is 10 > capsules, but I started with 5 then 5 then 6 and last night 7. This > morning I just can't get out of the bathroom, I keep having to rush > back in. And I feel awful, I'm really weak and feel very lethargic > and dizzy. My question is, is there something I can eat to " perk me > up " a little. Power bar? Gatorade? sugar? etc > > Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 My understanding is that prolonged diarrhea will cause a deficiency in potassium, which is probably found to some extent in gatorade but probably not that much. The dizzyness may be a result of the lost electrolytes so taking a potassium supplement (or something like potato peel potassium broth) may correct the problem. brian > In a message dated 6/10/2004 12:42:33 PM Eastern Standard Time, > frinh@y... writes: > > I'm on day 4 of a cleanse with OxyPowder. The normal dose is 10 > > capsules, but I started with 5 then 5 then 6 and last night 7. > > Hi Tina, > > It's the " master cleanse " that recommends 10 caps for 7 days (twice a year) > for Oxy-powder. One would only do this when you know you can be home and near a > bathroom for a whole week. Even then, I would suggest caution in taking that > amount, because everyone is different. > > Before a flush, however, they recommend 6 caps per night for 4 nights only. > Usually, by lunchtime, you should be pretty much flushed for the day, or at > least for bowel movements to have slowed down. > > For maintenance, the recommended dose is 5 caps every other day. Or, if you > prefer, you can spread it out to alternating nights of 2 caps one night and 3 > the next, which is what I do, because I find that higher dose a bit too much > for my normal daily routines. Personally, I find regularity and stool softening > is my aim, rather than constantly flushing. You may find 1 or 2 caps is > enough, but it's probably wise to avoid more than 5 caps in any two- day period for > maintenance purposes. > > The other thing to take into consideration is body weight and type. These can > only be 'recommended' doses and each person is so unique. I started off on a > smaller dose (2 caps per night) to see how my body would react, first, rather > than attempting the master cleanse right off. I haven't done a Master Cleanse, > subsequently, because I find that that pre-flush dose (4 days on 6 caps) is > really enough to thoroughly flush me out and I've had quite enough of the > running by day 4, too. > > You've done 4 days, now, so as Vince says, it would be wise to allow your > body a rest, particularly if you were aiming to flush on day 5. It's recommended > to not take any supplements on flush day and then only use the Epsoms in its > place. Definitely, never take Epsoms and Oxy-powder together on the same day. I > didn't resume the maintenance does of the Oxy-powder till a few days after my > flushing and found that worked well. > > Lethargy and dizziness can also be dehydration symptoms and, while the > Oxypowder shouldn't dehydrate you on its own, in combination with other things like > detoxing and perspiring heavily (through exercise and hot weather) may induce > these symtpoms. > > As Vince said, just take a few days break from the Oxy-powder, then resume on > a lesser dose when you feel better. Your intuition was right to keep flushing > your system with lots of fresh, clean water....and Vince's suggestions of > gatoraid and water, with a little pure seasalt are excellent, just to make sure > you're getting all the hydration you need to detox. > > I've found the Oxy-powder is a wonderful product, but it may not be suitable > for everyone. I just listen to my body each day and decide what it's telling > me to do, rather than just going with the recommended guidelines. Less is > oftentimes more. > > Hope this helps you some and you feel better soon! > > Blessings, n > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 TIna: Hi, I will add my 2 cents worth. I agree with n and VInce. In addition, when I use Epsoms ( I have not used Oxy Powder) I watch my electrolytes very carefully since dehydration makes me feel like you describe. One of the better pieces of health info I recd in my life is that in most things think about a 3 legged stool. The three legs are -- mineral corticoids, adrenal corticoids and gluco-corticoids. So when I feel like you decribe I remember the stool and begin correcting -- ok, gluco-corticoids, have I eaten recently? Do I need protein, carbs, etc,? Ok, mineral corticoids, do I need some minerals mixed in water (sea salt is good or I use a collodial mineral supplement and an ionic mineral supplement.) Sometimes a tablespoon of unsulphured molasses corrects the glucocorticoids AND mineral corticoids. Adrenal corticoids, I keep a homeopathic for that one, but rubbing your kidneys to warm them also helps the adrenals, or lying down and resting for 15-30 minutes lets them reset. Hope that helps. Dont overdo it, Tina, go slow. Rome wasnt built in a day. (Atlanta) Quote Link to comment Share on other sites More sharing options...
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