headaches

March 7, 2004

> From: " Salvo251 " <salvo251@...>

> Subject: headaches

>

> I have only been diagnosed with Samter's recently, although I have

> been treated for all the symptoms for years. For the past month I

> have been experiencing excruiating headaches, for which of course, I

> can not take aspirin related products. I usually suffer for as long

> as I can and then take a prescription painkiller. The painkiller only

> takes the edge off and makes me not care that I have a headache. I

> have had Samter's for at least 6 years and have never experienced

> this. Is this something apart from Samter's that I should be

> investigating, or does everyone else have this also? Any input would

> be helpful....

>

Other members here have talked about headaches, but there seems to be little

real data on Samters and headaches.

With respect to painkillers FOR those headaches, it sounds like you may be a

candidate for desensitization to ASA.

Check out:

samters/files/Desensitization-V2.html

Ken West

March 9, 2004

I'm learning that when I have bad headaches or ones that don't go away for awhile, I am suffering from a sinus infection.

Tami

headaches

I have only been diagnosed with Samter's recently, although I have been treated for all the symptoms for years. For the past month I have been experiencing excruiating headaches, for which of course, I can not take aspirin related products. I usually suffer for as long as I can and then take a prescription painkiller. The painkiller only takes the edge off and makes me not care that I have a headache. I have had Samter's for at least 6 years and have never experienced this. Is this something apart from Samter's that I should be investigating, or does everyone else have this also? Any input would be helpful....

April 7, 2004

I HAVE TERRIBLE ITCHING ALONG WITH HEADACHES--I AM NOT ON ANY MEDS, WHICH LEADS ME TO BELIEVE THAT IT IS THE HEP C.

KAREN

April 7, 2004

Very strange!!

April 9, 2004

Hey Sheila & Group,

Did the email/post I sent back on vitamins

yesterday come through? I didn't see it post -

maybe I missed it?

Hippity -0 - Hoppity!

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January 23, 2005

Hi Vicki

Headaches are fairly normal and can become quite ferocious. Most of it is probably reflected pain from the stuff that is going on in your ear. It may get a little worse in the coming weeks but the surgery will sort it out. It would do no harm to let your doctor know about any developing symptoms though. Good luck.

Phil

Hi thereI am awaiting surgery for my c-toma which hopefully will be next month. However at the moment I keep getting slight earache and a headache almost everyday!Are the headaches related to the c-toma at all?

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January 29, 2005

I never had headaches while on aspirin and rarely had any type of

pain. I basically never needed to take painkillers in the seven

years I was on it. Now, there is something called NSAID rebound

where once you are off the drugs you may need more of them to get

pain-free. I don't know what you mean about the effectiveness -- do

you mean in terms of the Samters the aspirin will be less effective

or in terms of the pain relief? For the Samters I personally found

it to be completely effective over the seven years I took it.

Others may have different experiences, but that was mine.

Hope this helps

Lori

November 21, 2005

I use a headache tablet that's suitable for sinus otherwise no relief.

I also tend to get headaches if there's a storm coming.

headaches

What type of experiences have people had with headaches? constant headache,

I mean.

Headache that never goes away. Also, I am allergic to Tylenol, in addition

to being

sensitive to aspirin and ibuprofen. What other pain relief for headache is

safe for people

with samter's? Thanks.........

November 22, 2005

Jordan, Luckily headaches are not a big problem for me. But every once in a while I get aches from a cold or flu and need to take something. Just this weekend, I picked up some little bug and took some Tylenol Gel Tabs/Caps whatever. Anyway, my asthma kicked up a bit with a scratchy throat and more coughing than before I took the dang pills. I discoverd it wasn't the acetaminophen causing the reaction, it was the bloody Red dye #40 used on the outside of the pill "to distinguish the product from competitors" (from their website) I was so mad that this wasn't listed on the package anywhere. I had a friend get me a store brand of acetaminophen, plain white tablets, took several doses over the next day or so, and I felt much better, no aches, no allergic/sensitivity reaction. Found out auite a bit about this red dye and the relationship to it and asthma and many other

ailments.jordanarbenz <jordan.arbenz@...> wrote: What type of experiences have people had with headaches? constant headache, I mean. Headache that never goes away. Also, I am allergic to Tylenol, in addition to being sensitive to aspirin and ibuprofen. What other pain relief for headache is safe for people with samter's? Thanks.........

FareChase - Search multiple travel sites in one click.

November 23, 2005

I get horrible headaches that Tylenol won't touch. I am fine on Tylenol. My problem is getting a doctor to give me something stronger.

E.F.

-- RE: headaches

I use a headache tablet that's suitable for sinus otherwise no relief.I also tend to get headaches if there's a storm coming.-----Original Message-----From: samters [mailto:samters ] On Behalf OfjordanarbenzSent: Tuesday, 22 November 2005 1:52 PMsamters Subject: headachesWhat type of experiences have people had with headaches? constant headache,I mean. Headache that never goes away. Also, I am allergic to Tylenol, in additionto being sensitive to aspirin and ibuprofen. What other pain relief for headache issafe for people with samter's? Thanks.........

November 26, 2005

I also have headaches every day. Are your headaches mostly above your eyes? I too am allergic to Tylenol and all otc pain meds. As far as pain meds, I take Demerol 2-3 times a week and drink beer on the other days. I don't allow myself to take either before 4 pm because of the addictive side effects of both. It's a pathetic lifestyle but I can't deal with the headaches. I'm also seeing a chiropractor to see if that will help.

Tami

headaches

What type of experiences have people had with headaches? constant headache, I mean. Headache that never goes away. Also, I am allergic to Tylenol, in addition to being sensitive to aspirin and ibuprofen. What other pain relief for headache is safe for people with samter's? Thanks.........

November 26, 2005

Tami don’t say you have a pathetic

lifestyle if you drink beer or take painkillers etc. I think most of us

do things that if not alleviating the pain of a headache will reach out for

something that at least dulls it. You get to a point in your life where

you put up with so much and then look for alternatives. I take sleeping tablets

probably once a week because the pain I sometimes get makes me ‘not the

nicest’ person to live with at times and more so when I’m

overtired. The chiropractor might be able to help, I’ve had some

relief. I’ve also tried a naturopath as well.

From: samters [mailto:samters ] On Behalf Of Tami Klumpyan

Sent: Sunday, 27 November 2005

7:37 AM

samters

Subject: Re: headaches

I also have headaches every day. Are your headaches

mostly above your eyes? I too am allergic to Tylenol and all otc pain

meds. As far as pain meds, I take Demerol 2-3 times a week and drink beer

on the other days. I don't allow myself to take either before 4 pm

because of the addictive side effects of both. It's a pathetic lifestyle

but I can't deal with the headaches. I'm also seeing a chiropractor to

see if that will help.

Tami

headaches

What type of experiences have people had with headaches? constant

headache, I mean.

Headache that never goes away. Also, I am

allergic to Tylenol, in addition to being

sensitive to aspirin and ibuprofen. What

other pain relief for headache is safe for people

with samter's? Thanks.........

November 28, 2005

I don't think it's a pathetic lifestyle, but I also would not say that

it is very helpful, especially the beer. Maybe you are reacting to

the beer on a low level that is not obvious but is perpetuating your

headaches because of its effect on the sinuses.

Lori

February 18, 2006

I had headaches a couple of days recently. I don't know what from, Lex

or something else.

February 18, 2006

Hi ,

Have you considered talking to your doc about tension headaches or even

migraines? I know that a few of people that I have come into contact with,

including myself, suffer from migraines. I never had a problems with headaches

or migraines when I started with Lexapro, but unfortunately I am now on a

preventative med to help with my migraines. I never had any luck with Cephadyn.

Hope you get some relief soon,

Zenda

jessica_glamour <mayfieldfan_19@...> wrote:

I have been on Lexapro 10mg for several months now and doing well.

Sometimes I think I need to be raised to 20mg. I am now getting really

horrible headaches at work and at home. I believe them to be tension

headaches. My doctor gave me some samples of Cephadyn and they don't

kick them. I asked if I could take two and she said yes. They are 50mg

of Butalbital and 650mg Acetaminophen. Two helped my headache but I

still felt a dry ache. Have any of you experienced headaches like this.

They have been coming on and off for 4 weeks! I'm so frustrated.

July 5, 2006

had headaches in the past - but they were related to the pred and

cyclosporine combination - he began having severe headaches soon after we added

the cyclosporine, a visit to the ER after calling the rheumy revealed that

had high blood pressure - which was a side affect of both medications -

he has been on Lisinopril for blood pressure ever since (almost 5 years). He

rarely has headaches now. He was on Naproxen for a very short time - I don't

recall headaches being an issue then - but he did have severe stomach problems

with it, that his Zantac didn't help. (He is now on Prevacid - which could have

made the difference I guess with the Naproxen.). Good luck with figuring out

what is going on. I don't think I would want to be giving Excedrin

Migraine on a regular basis.

Val

Rob's Mom (8,systemic)

headaches

I was reading some posts from abut a month ago regarding some kids getting

headaches. Hannah has been getting headaches every evening for the last week.

Does well during the day..sometimes wakes up with slight headache, but gets

better with Tylenol.

She is 8 1/2 weeks into taking 250mg Naproxen twice daily (she was on a lower

dose before that, but it did not help). Could this be the cause? Anyone have

experience with this on Naproxen. Her headaches are severe and sometimes she has

nausea and slight dizziness. The ped recommended trying Exedrin Migraine, but I

hate giving that to her ever day. He also said that Nexium can cause headaches.

I hope that is not the cause its the only reflux med that has worked for her.

I'd love to hear your experience. I do have a call into the rheumy on other

issues and will ask when they call back, but may not be until Friday.

Beth Yohnk

Happy Thoughts..Be Well

July 5, 2006

Beth,

While Aundrea was on Naproxen she had nausea, severe dizziness and

headaches...We tried a few other NSAIDS and in the higher doses the

same problems would return...I suppose the only way you would know

if the source of the headaches is from Naproxen is to not give it to

her and see if the other symptoms go away...If naproxen is the cause

then it seems that finding a better pain medication would be more

sensible rather than adding the excedrin migraine..(especially on a

daily basis!)

I know its hard right now, but you will eventually find the right

mix of meds with hopefully the least amount of side effects.

(Aundrea 10 systemic jra)

>

> I was reading some posts from abut a month ago regarding some kids

getting headaches. Hannah has been getting headaches every evening

for the last week. Does well during the day..sometimes wakes up

with slight headache, but gets better with Tylenol.

>

> She is 8 1/2 weeks into taking 250mg Naproxen twice daily (she

was on a lower dose before that, but it did not help). Could this

be the cause? Anyone have experience with this on Naproxen. Her

headaches are severe and sometimes she has nausea and slight

dizziness. The ped recommended trying Exedrin Migraine, but I hate

giving that to her ever day. He also said that Nexium can cause

headaches. I hope that is not the cause its the only reflux med

that has worked for her.

>

> I'd love to hear your experience. I do have a call into the

rheumy on other issues and will ask when they call back, but may not

be until Friday.

>

> Beth Yohnk

> Happy Thoughts..Be Well

>

July 5, 2006

-Nick went though a bout of headaches every day but it was when he

was 1st on indomethacin. I dont recall any headaches while on

naprosyn, that just did a number on his tummy after about 6 months.

Im not sure i would want to give excedrin migraine on a daily basis.

I think its better to find the root cause and change that than just

covering up the headache with another drug. Just my opinion.

hugs Helen and (8,systemic)

-- In , Beth Yohnk <yohnkmom@...> wrote:

>

> I was reading some posts from abut a month ago regarding some kids

getting headaches. Hannah has been getting headaches every evening

for the last week. Does well during the day..sometimes wakes up

with slight headache, but gets better with Tylenol.

>

> She is 8 1/2 weeks into taking 250mg Naproxen twice daily (she

was on a lower dose before that, but it did not help). Could this

be the cause? Anyone have experience with this on Naproxen. Her

headaches are severe and sometimes she has nausea and slight

dizziness. The ped recommended trying Exedrin Migraine, but I hate

giving that to her ever day. He also said that Nexium can cause

headaches. I hope that is not the cause its the only reflux med

that has worked for her.

>

> I'd love to hear your experience. I do have a call into the

rheumy on other issues and will ask when they call back, but may not

be until Friday.

>

> Beth Yohnk

> Happy Thoughts..Be Well

>

July 7, 2006

Yuk, migraines! I also get them quite frequently and also take Imitrex. I

usually cut them in half and if I catch the headache early it works! Good luck!

Donna

July 7, 2006

Headaches are the pits.

I started getting them years ago. My Mother in law would call them the

Sick headache. I was put on many medications but nothing worked. One doctor

tried me on what was a muscle relaxant called Parafon forte. High dose and it

did help. He also told me if I ever ran out of this drug to get something that

dilated the vessels. My aunt takes the Imitrex also and I have thought about

trying it but not yet. I was even put on what you would call whacky weed

lolol This also helped. 4 years ago I got a real bad one but in a busy life

as we all know can mean no time for yourself. I would take 4 or 5 aspirins at

a time. Eventually the headaches would go away. I know I had to have had 40

aspirins in me before the day was over. Ok that was dangerous. My sister get's

on to me doing this. It was cheap at the Dollar store 200 for a dollar so I

use them. Today I feel one coming on and right to the aspirins I go taking 4

at a time and it works. has them but she can't take aspirins.

You know when you have these type headaches you feel if you can just

throw up you would feel better. I am wondering if it has something to do with

the foods we eat. I do know 's headaches use to be caused by MSG in the

food. Check out this on the web. They have taken foods with MSG in it out of

the schools here. Stress will give you a headache in a heartbeat. I know us

Moms get this a lot worrying over the kids. Remember this though. When Mom is

sick who cares for the kids? Ummm Mom still does if she can. Mom's got

attitude to lolol.

Robbin

July 7, 2006

Beth,

I hope that the Imitrex works for Hannah's headaches. My daughter Krisite Jo

started having migraines at the age of 7 and we had to put her on Imitrex

shortly after that. The one thing I learned quickly was to be sure that she got

it as soon as I knew it was a " bad one " , otherwise she would throw up if I gave

her the medicine once it was hurting pretty bad. And at the price of $20 per

pill that was just a bit too much for me. My Jaye was also put on Imitrex

for her headaches but I am still convinced hers were more seizure related and

not migraines and hers generally did not get near as bad.

As for the frustration of the rashes Hannah is having. I understand how

irritating it is when the doctors are just trying to convince you that another

doctor needs to take care of it. Jaye had a day when her entire foot

turned purple. We talked with the Peditrician she said it was the arthritis, the

rheumy was adament that it was not arthritis related but she thought it was

thyroid, the Endocrinologist was also convinced it was arthritis. We spent

several hours in the Emergency Room and the ER doctor also was convinced it was

arthritis. The Peditrician even came to the ER to see us to examine her.

Eventually after the Ped and the Rheumy actually talked on the phone together

they did decide that it was " probably " arthritis. Fortunatly it has never

happend again and I pray it never does. But the frustration of no one knowing

and everyone pointing the other way is hard to deal with.

As you get so frustrated, take a deep breath and know that you are doing the

very best you can for Hannah. Because you will never stop being her mom nor will

you ever stop being her advocate. I think that every single one of us here on

this list can relate to your frustration.

Veri & Jaye 12 poly

headaches

Thanks to everyone who responded to Hannah's headaches. She saw the ped today

who diagnosed her with migraines. Gong to try Imitrex (25mg) to see if she gets

relief from that.

Also heard from the rheumy regarding her rashes. No surprise to me, but as usual

she does not feel they are joint related. Said to check with the ped (which I

did, which why I called her in the first place), or take her to derm. Not going

to happen. I will not subject Hannah to another doc for a rash that I know only

happens when she's in the sun and goes away when she's inside for a few hours.

Sorry I if I sound a little angry, I am sooo frustrated by all this that I'm

just not sure where we will go from here. Hannah has her bone scan and then an

appt to see the rheumy in the next few weeks and I won't do anything until that

visit. Maybe I should be asking her what is appropriate to report and I what I

should ignore. I'm starting to second guess everything that comes up with Hannah

and I do not like the way that feels. I also know as her mother something is

wrong with her and I'm feeling very upset right now.

Thanks for listening.

Beth Yohnk

Happy Thoughts..Be Well

July 7, 2006

Veri:

Thank you. I am much calmer today. Our family is just having one of those

weeks and I guess I got a little overwhelmed yesterday. I even asked my mom

today if she would ask her rheumy to look at Hannah. He is not a pediatric

rheumy, but has been seeing my mom & my sister for adult RA for many years. I

would at least like his opinion on Hannah, even if he does not feel comfortable

treating her. The significant family history with RA is why I get so worried

about Hannah.

Thanks for the words of support. Hope you have a great weekend.

veristroud@... wrote: