question for

[Guest guest]

hi and ,

Although I have bilateral CI's, I still use my Braille display

extensively. Jaws will not pronounce many words correctly, and with my

Braille display there is no doubt. I can also copy poems from my Braille

display. I could never accomplish this by merely using jaws.

I am sure you wish to make full use of your CI and that is commendable.

Many people on this list are making use of there CI's and also use closed

captions and some even read lips for clarity. Don't be ashamed of your

Braille display! Larry

Question for

> ,

>

> Did you notice an improvement (I.e. efficiency) in your ability to use a

> screen reader after your first CI? I'm now using Jaws exclusively even

> though I still have my Braille display connected to my computer. I'm

> trying

> to resist the temptation of using it except for editing purposes. I know

> my

> posts probably aren't as error-free as they used to be when I used a

> Braille

> display, but I really want to develop my CI hearing as much as possible

> even

> though one ear may always be better than the other.

>

>

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activated: 3/1/06

>

>

>

>

>

>

>

>

[Guest guest]

Larry,

has the right idea here, by not using her braille display, she will

indeed be moving forward. Relying on braille, closed captioning and the

like is fine but does slow down one's progress.

*---* *---* *---* *---* *---*

I wrote a few children's books...not on purpose.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

[Guest guest]

,

Yes, there is better clarity with bilaterals. I noticed it is best after a

MAPping and over time the words become less clear that another MAPping is

needed. I find the Freedom overcomes the weaker 3G, and I must keep the

Freedom a tad bit louder than the 3G for clarity. I always have used Jaws to

receive info on the computer.

[Guest guest]

Hi ,

You are right about the loud volume. The last mapping was about two weeks

ago, and I am already at the maximum. It happened again two mappings ago, or

three months ago, and it took two weeks to maximize the volume. I keep

increasing the volume when I can't hear a certain sound from my Ipod or the DVD

movie. I sent an email to my audiologist for her advice.

Kent

--Mekutochi

Left Ear -- Cochlear Nucleus Freedom

Implanted: August 15, 2005

Activated: August 23, 2005

Right Ear -- Pending

<wdywms@...> wrote:

I noticed it is best after a MAPping and over time the words become less clear

that another MAPping is needed. I find the Freedom overcomes the weaker 3G, and

I must keep the Freedom a tad bit louder than the 3G for clarity.

--Mekutochi

Left Ear -- Cochlear Nucleus Freedom

Implanted: August 15, 2005

Activated: August 23, 2005

Right Ear -- Pending

__________________________________________________

[Guest guest]

Kent,

A couple of thoughts...

I purposely ask my Audiologist to give me " excess " capacity in the volume

department in case I ever need it. I like my normal volume to be in the 5

range. I have never found any need to ever increase it as it is quite loud when

at level 9.

As I just had my one year appt last week, I'm still adjusting to the new map.

However, yesterday I realized that the sounds didn't sound quite right and

somewhat distorted (I did start to notice this earlier but not enough to do

anything about it). My Audi did mentioned to me that I need to change the

microphone cover as it looked a little " dirty " underneath. Well, I forgot about

it but yesterday I was reminded that I need to change it. So, I did and lo and

behold, sound clarity again! It was like night and day. Those Freedom

microphones are really sensitive. I just wanted to remind the Freedom users

that those covers can last for a while but then lose their effectiveness in the

long run. I typically found that I can get a max of six months with the covers.

Dale

Kent Trader <mekutochi@...> wrote:

Hi ,

You are right about the loud volume. The last mapping was about two weeks

ago, and I am already at the maximum. It happened again two mappings ago, or

three months ago, and it took two weeks to maximize the volume. I keep

increasing the volume when I can't hear a certain sound from my Ipod or the DVD

movie. I sent an email to my audiologist for her advice.

Kent

--Mekutochi

Left Ear -- Cochlear Nucleus Freedom

Implanted: August 15, 2005

Activated: August 23, 2005

Right Ear -- Pending

<wdywms@...> wrote:

I noticed it is best after a MAPping and over time the words become less clear

that another MAPping is needed. I find the Freedom overcomes the weaker 3G, and

I must keep the Freedom a tad bit louder than the 3G for clarity.

--Mekutochi

Left Ear -- Cochlear Nucleus Freedom

Implanted: August 15, 2005

Activated: August 23, 2005

Right Ear -- Pending

__________________________________________________

[Guest guest]

,

What was your bilateral experience like in the beginning when the Freedom's

volume was softer than the 3G? Right now I'm finding the Freedom to be a

little softer than the 3G even after I switch programs, but this hasn't had

a negative effect on my speech understanding in quiet. At the moment my audi

has my Freedom set to four program slots on volume which is working well for

me. I'm sure as I become more adept at listening, she will gradually add

other features such as Beam and Whisper.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

[Guest guest]

>

> , I'm getting an error message whenever I try to put in my

> username and password. Maybe you could provide me with an answer to

> this misalignment.

>

Which place? Provide the URL so I know, I'm running several user base

forums.

Also what is your user name?

[Guest guest]

http://aspergershosting.com/aspieadults/profile.php?mode=activate & u=4 & act_key=60636b nicknathaninfortuna <nathaninfortuna@...> wrote: >> , I'm getting an error message whenever I try to put in my > username and password. Maybe you could provide me with an answer to > this misalignment.>Which place? Provide the URL so I know, I'm running several user baseforums.Also what is your user name?

Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Ok try again, I switch the setting as to not have members confirm via e-mail. You will have to re-create the account.Nick <drumthis2001@...> wrote: , I'm getting an error message whenever I try to put in my username and password. Maybe you could provide me with an answer to this misalignment.New Songhttp://www.aspergershosting.com/audio/Onwah.wma

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

I only got as far as being able to see the forum. But it doesn't seem to recognise my name when trying to log in. Is this a different forum from the advocacy forum I just joined? Do I need a new user name for this one?

Inger

Re: Question for

Ok try again, I switch the setting as to not have members confirm via e-mail.

You will have to re-create the account.Nick <drumthis2001@...> wrote:

, I'm getting an error message whenever I try to put in my username and password. Maybe you could provide me with an answer to this misalignment.New Songhttp://www.aspergershosting.com/audio/Onwah.wma

New Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Yes a different one entirely... Asperality.com will forward to this one..http://www.aspergershosting.com/aspieadults/U.N: aspieP.W: kindInger Lorelei <inglori@...> wrote: I only got as far as being able to see the forum. But it doesn't seem to recognise my name when trying to log in. Is this a different forum from the advocacy forum I just joined? Do I need a new user name for this one? IngerNew Songhttp://www.aspergershosting.com/audio/Onwah.wma

New Messenger with Voice. Call regular phones from your PC for low, low rates.

[Guest guest]

Hi ,

I believe that we started with either 5 or 7 drops 3 times a day,

and we saw immediate reaction in two kids. With Josh, it started

with a rash and runny nose, slurring speech, etc. My oldest (6yo)

NT son showed no signs of any problems, and never did through out

his course of OLE. My daughter had made the best progress. Since

she was much smaller and younger, we had to cut her dose to about 25

drops.

When healing regression symptoms would start fading in each child,

we added a few more drops until we saw more healing regression with

both kids. With Josh, we worked our way up to 45 drops which was

around the maximum (calculated) dose for a 50 lb child(1/3 the max

adult dose). So you really do not have to increase it just to

increase it, but increase it as symptoms start to fade to continue

the healing regression. That seemed to be extrememly effective for

us, especially with my daughter, who I consider to have recovered

from this.

Hope this helps,

>

> ,

>

> I am reading back over your posts on OLE and how you slowly added

it in till you came to your max dose of 45 drops-600 mg (15 drops

three times a day). Can you tell me how many drops you started the

first day and how you stair stepped it up. Also, did your children

have an immediate reaction after day one of OLE.

>

> We just did day 1 of Vitamin A, so far so good....haven't seen

anything yet though. We are starting OLE on Wednesday (have to do

some lab work over the weekend and can't add the OLE until we get

that done). So far he is tolerating Virastop with just cold sores

cropping up.

>

> Thanks for all your help to this group.

>

>

[Guest guest]

Hi ,

I believe that we started with either 5 or 7 drops 3 times a day,

and we saw immediate reaction in two kids. With Josh, it started

with a rash and runny nose, slurring speech, etc. My oldest (6yo)

NT son showed no signs of any problems, and never did through out

his course of OLE. My daughter had made the best progress. Since

she was much smaller and younger, we had to cut her dose to about 25

drops.

When healing regression symptoms would start fading in each child,

we added a few more drops until we saw more healing regression with

both kids. With Josh, we worked our way up to 45 drops which was

around the maximum (calculated) dose for a 50 lb child(1/3 the max

adult dose). So you really do not have to increase it just to

increase it, but increase it as symptoms start to fade to continue

the healing regression. That seemed to be extrememly effective for

us, especially with my daughter, who I consider to have recovered

from this.

Hope this helps,

>

> ,

>

> I am reading back over your posts on OLE and how you slowly added

it in till you came to your max dose of 45 drops-600 mg (15 drops

three times a day). Can you tell me how many drops you started the

first day and how you stair stepped it up. Also, did your children

have an immediate reaction after day one of OLE.

>

> We just did day 1 of Vitamin A, so far so good....haven't seen

anything yet though. We are starting OLE on Wednesday (have to do

some lab work over the weekend and can't add the OLE until we get

that done). So far he is tolerating Virastop with just cold sores

cropping up.

>

> Thanks for all your help to this group.

>

>

[Guest guest]

Hi Ellen,

Vacations are very stressful for children/young adults with disabilities

because their usual schedule and routine drop out very suddenly. Most

children and young adults with disabilities, especially if they are still in

a school setting, are used to the predictability of the school day and work

schedule. Many of our children really do not have a sense of how much time

they really have off and it may seem " endless " as the days go by. Seems

endless to parents, too! Being " cooped up " in the house due to bad weather

is hard too.

Although you may find it hard to replicate an " hour by hour " schedule like

school, it might help to have a calendar with as many things planned out as

possible, so that your son might see that ahead of time and look foward to

those special activities. That might require some pre-planning for you and

your husband to set up that kind of calendar and what you would anticipate

coming up.

Vacations can be looked upon as transitions and unless your son does not

know what he is transitioning to every day, he might find all the

unstructured time distressing. You might have to put some of your usual

activities on hold, even though this is such a busy time of the year,

knowing that your young adult will be around more, and respite is so

difficult to find for only 2 weeks.

If your son uses visuals, it might be helpful to use a social story a week

or so in advance to talk about what a vacation is, how long it will last,

what people do on vacations, offer more choices than usual for down times,

and how activities around the house might change. If parents are not used to

having their child around the house " 24/7 " , it also adds additional stress

to the parent(s). On the flip side, many children and young adults become

agitated if given too much information too far in advance of the familiy

plans.

If your son is used to getting up at a certain time, it is probably best to

keep that routine as best you can during vacations. Same for morning routine

and evening routines. Winter and Spring vacations seem to be harder than

summer, because there is no camp experience, except for a few SRAs who have

one or two day programs. Layer on holiday celebrations with family that may

or may not be familiar to your young adult. Many children find family

celebrations unsettling as there does not appear to be a beginning, middle

or end to the time period spent with family. Social stories and/or visuals

can help here again to try to rehearse and give some predictability as to

what may happen next. Many children do not know what to say at unstructured

gatherings, so rehearsing holiday greetings and giving them a part in the

holiday cooking, celebrations may help to make them feel more at ease.

Back to the respite for a moment...Might be helpful to inquire at local

colleges, SRAs, teachers and staff, to see if there are students around who

live in the area. Tapping into special education, speech and occupational

departments may help. Making a flyer, contacting the head of the department

to post an ad for respite for the holidays may just be the ticket. It may

also lead to a longer term respite relationship. Sounds like alot of work

and it is, but may be worth it in the long run.

The same thing may work for those who have children in high school or post

high school programs. Finding out who your young adult may be familiar with

and if they are looking for some holidays hours or just to " hang out " , may

provide some periodic respite for young adult and parents. High school

" Buddy programs " may be willing to take your young adult out to the Mall,

movies, watch TV together etc. Obviously, knowing the Buddies/Mentors/ Big

Brother/ Big Sister and knowing that they know how to communicate with your

child, especially behavior like waiting in lines at this time of year, will

help to put your mind at ease.

Since there are so many young adults at home over the holidays, you may want

to network with other families for a movie date or restaurant outing with

one or more parent in tow. Might give the other parent some needed time away

to be with their spouse or give attention to other children and other family

matters.

It is easy for me to say to try and put a positive spin on the idea of

vacation, and you can put a positive spin on it, but it will be a rocky ride

at times.

Adults with disabilities may also experience some of the same difficulties,

but maybe to a lesser degree and they might have less time off from a job

and be expected to work regular hours except for Christmas and New Years.

Hope that helps. Looking foward to hearing from other parents, too.

>From: " ellenbronfeld " <egskb@...>

>Reply-IPADDUnite

>IPADDUnite

>Subject: Question for

>Date: Mon, 04 Dec 2006 22:47:04 -0000

>

>Hi :

>I am always very concerned during the holidays because when Noah is

>not fully " programmed " with school, special rec. and our usual social

>outings, things can get pretty ugly in our house. Like so many young

>adults on the spectrum, Noah does not entertain himself all that well

>and when he gets bored listening to music or watching videos he will

>often be pretty obnoxious and get into " trouble " to get our attention.

>The stress level can rise pretty quickly if my husband and I have

>things to do around the house and cannot get Noah out as much as he

>would like. I know you cannot produce an " instant respite worker " but

>do you have any advice for how to cope with the two week holiday break?

>Thanks.

>Ellen

>

_________________________________________________________________

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[Guest guest]

The calendar idea for Noah is a very good one...I will start putting that together now so he has something to look at the day vacation starts.

Thanks!

Ellen

Ellen Garber Bronfeldegskb@...

Question for >Date: Mon, 04 Dec 2006 22:47:04 -0000>>Hi :>I am always very concerned during the holidays because when Noah is>not fully "programmed" with school, special rec. and our usual social>outings, things can get pretty ugly in our house. Like so many young>adults on the spectrum, Noah does not entertain himself all that well>and when he gets bored listening to music or watching videos he will>often be pretty obnoxious and get into "trouble" to get our attention.>The stress level can rise pretty quickly if my husband and I have>things to do around the house and cannot get Noah out as much as he>would like. I know you cannot produce an "instant respite worker" but>do you have any advice for how to cope with the two week holiday break?>Thanks.>Ellen>_________________________________________________________________All-in-one security and maintenance for your PC. Get a free 90-day trial! http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://clk.atdmt.com/MSN/go/msnnkwlo0050000001msn/direct/01/?href=http://www.windowsonecare.com/?sc_cid=msn_hotmail

[Guest guest]

In our tradition (Roman Catholic) we have a ministry called SPRED (Special Religious Education). There is a SPRED center in Bridgeport and many parishes around the Chicago archdiocese host SPRED groups. Each group comprises persons with special needs and 1:1 "helper" catechists. The groups fall into 5 year age spans (eg 6-10 years, 11-16 years, 17-21 year and 22 and older). The groups meet for experience-based activity-worship sessions, but also respresent a collective presense in the parish, which may hold a SPRED style liturgy in the general parish every so often. In addition, the SPRED center has weekly liturgies and once a month liturgies that bring together all the area SPRED groups. In these liturgies, all families and guests are comfortable with people with special needs and do not look askanse if those persons walk or even run around, make different vocalizations, etc. More importantly, the people with special needs are key players within the liturgy.

Although SPRED was developed by and for Roman Catholics, the approach could be used easily by other faith traditions. The point is that it is worship and faith sharing that is based on the experiential more than the intellectual and the small faith groups are designe both to provide a "safe" place for individuals with DD and ED to worship and share, but also to help them and their families integrate into their home congregation. If you are interested, check out the website: www.spred.org

>> Hi :> I am curious about your thoughts and everyone elses experiences about > the religious traditions and celebrations at holiday time.> Noah can be either very mellow and appropriate at Synagogue or he can > be running around, shutting doors, organizing books, cleaning lint off > the floor, etc...How do other families cope? I can tell you that I > take Noah to Synagogue on a regular basis (almost every Friday night) > and that has made a significant difference in his behavior over time > because his comfort level is so high. But, my husband still, pretty > much refuses to come with us, because Noah just might misbehave and > embarrass him. > Ellen>

[Guest guest]

Thanks for the information andra. I have heard wonderful things about

the SPRED progam throughout the last 15+ years from families who have felt

that it helped to integrate them into their Church community.

>From: " andra Conroy " <larchechicago@...>

>Reply-IPADDUnite

>IPADDUnite

>Subject: Re: Question for

>Date: Wed, 06 Dec 2006 23:59:45 -0000

>

>

>In our tradition (Roman Catholic) we have a ministry called SPRED

>(Special Religious Education). There is a SPRED center in Bridgeport

>and many parishes around the Chicago archdiocese host SPRED groups.

>Each group comprises persons with special needs and 1:1 " helper "

>catechists. The groups fall into 5 year age spans (eg 6-10 years, 11-16

>years, 17-21 year and 22 and older). The groups meet for

>experience-based activity-worship sessions, but also respresent a

>collective presense in the parish, which may hold a SPRED style liturgy

>in the general parish every so often. In addition, the SPRED center has

>weekly liturgies and once a month liturgies that bring together all the

>area SPRED groups. In these liturgies, all families and guests are

>comfortable with people with special needs and do not look askanse if

>those persons walk or even run around, make different vocalizations,

>etc. More importantly, the people with special needs are key players

>within the liturgy.

>

>Although SPRED was developed by and for Roman Catholics, the approach

>could be used easily by other faith traditions. The point is that it is

>worship and faith sharing that is based on the experiential more than

>the intellectual and the small faith groups are designe both to provide

>a " safe " place for individuals with DD and ED to worship and share, but

>also to help them and their families integrate into their home

>congregation. If you are interested, check out the website:

>www.spred.org <http://www.spred.org>

>

>

>

>

>

>

>

> >

> > Hi :

> > I am curious about your thoughts and everyone elses experiences about

> > the religious traditions and celebrations at holiday time.

> > Noah can be either very mellow and appropriate at Synagogue or he can

> > be running around, shutting doors, organizing books, cleaning lint off

> > the floor, etc...How do other families cope? I can tell you that I

> > take Noah to Synagogue on a regular basis (almost every Friday night)

> > and that has made a significant difference in his behavior over time

> > because his comfort level is so high. But, my husband still, pretty

> > much refuses to come with us, because Noah just might misbehave and

> > embarrass him.

> > Ellen

> >

>

>

_________________________________________________________________

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[Guest guest]

Good evening Ellen,

How hard this can be sometimes. Is Noah's behavior very different during

holiday services than a regular Friday night service? Many holiday services

are very long depending on the holiday. Depending on the holiday, there are

long stretches of sitting and long stretches of standing. How do members of

your congregation feel about Noah's " running around, " and organizing books?

I am sure that you have given them some information about ASD and why he

might need to do these things.

I am wondering if the congregation can give Noah a " job " to do. Since he

like to organize books, maybe he can give the prayer books out to people at

the beginning of the service and collect the different ones during the

services and finally organize and put them away at the end. That would allow

him to participate in the service as well as having something to keep busy

with throughout. He might also be able to organize the talliot(prayer

shawls) by size. They always need to be folded, so he could be doing double

duty with folding items. Maybe, he can then fold laundry at home, maybe he

does this already. Could he help to get the kiddush items ready (delicious

goodies eaten after services are over). That would be a lovely social

activity to engage him more with people and Dad.

Maybe, he could do any of those things with your husband, so that they are

actively participating together. If your husband does not go to services as

often as you do, he may be less comfortable with the members of the

congregation or the service. I do not know. The congregants may not have

trouble with Noah's behavior at all. If they do, sounds like they would have

said something to you by now.

Does Noah have to sit throughout the whole service? Maybe, given some

choices, he could do some of these other things. Seems perfectly acceptable

in most Jewish congregations to " take a break " and just hang out in the

lobby for awhile because the service can be long as well as the fact that

you may not see some of these folks during the week and it may afford a good

opportunity for some brief socialization.

Can he also have religious honors such as opening and closing the Ark?

Perhaps he does this already.

Also, can the service be adapted to meet his needs (communication/visuals)

if you want him to be more engaged in the service itself? Can he also be

included with others his age if there is a young adult service in the

community to help him meet others his own age. Does Keshet (Jewish

disabilities program) offer something like this for his age group and older?

If so, there might be times when you and your husband could go together or

other times when you can all go as a family.

Just some thoughts.

Interested to know how others handle religious observance issues.

>From: " ellenbronfeld " <egskb@...>

>Reply-IPADDUnite

>IPADDUnite

>Subject: Question for

>Date: Wed, 06 Dec 2006 03:52:57 -0000

>

>Hi :

>I am curious about your thoughts and everyone elses experiences about

>the religious traditions and celebrations at holiday time.

>Noah can be either very mellow and appropriate at Synagogue or he can

>be running around, shutting doors, organizing books, cleaning lint off

>the floor, etc...How do other families cope? I can tell you that I

>take Noah to Synagogue on a regular basis (almost every Friday night)

>and that has made a significant difference in his behavior over time

>because his comfort level is so high. But, my husband still, pretty

>much refuses to come with us, because Noah just might misbehave and

>embarrass him.

>Ellen

>

_________________________________________________________________

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[Guest guest]

There is SPRED in our area, in Glenview. I know a family whose daughter has been involved for several years. It appears to be very successful and the family is quite happy with the religious education. She is 19.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Question for

In our tradition (Roman Catholic) we have a ministry called SPRED (Special Religious Education). There is a SPRED center in Bridgeport and many parishes around the Chicago archdiocese host SPRED groups. Each group comprises persons with special needs and 1:1 "helper" catechists. The groups fall into 5 year age spans (eg 6-10 years, 11-16 years, 17-21 year and 22 and older). The groups meet for experience-based activity-worship sessions, but also respresent a collective presense in the parish, which may hold a SPRED style liturgy in the general parish every so often. In addition, the SPRED center has weekly liturgies and once a month liturgies that bring together all the area SPRED groups. In these liturgies, all families and guests are comfortable with people with special needs and do not look askanse if those persons walk or even run around, make different vocalizations, etc. More importantly, the people with special needs are key players within the liturgy.

Although SPRED was developed by and for Roman Catholics, the approach could be used easily by other faith traditions. The point is that it is worship and faith sharing that is based on the experiential more than the intellectual and the small faith groups are designe both to provide a "safe" place for individuals with DD and ED to worship and share, but also to help them and their families integrate into their home congregation. If you are interested, check out the website: www.spred.org

>> Hi :> I am curious about your thoughts and everyone elses experiences about > the religious traditions and celebrations at holiday time.> Noah can be either very mellow and appropriate at Synagogue or he can > be running around, shutting doors, organizing books, cleaning lint off > the floor, etc...How do other families cope? I can tell you that I > take Noah to Synagogue on a regular basis (almost every Friday night) > and that has made a significant difference in his behavior over time > because his comfort level is so high. But, my husband still, pretty > much refuses to come with us, because Noah just might misbehave and > embarrass him. > Ellen>

[Guest guest]

OK, I'm not but I'm glad to see your post. It's me, your

bandster partner in crime from that fateful day

10/6/2006. I saw your post today and you seem discouraged but your

weight loss has been wonderful! Wow looks like you're down 40+ lbs

in 4 months. That's so great. Imagine where you would be without

your band? Remember, we should only be losing 2-3 lbs per week so

keep heart. Also, maybe it's time to add a little more " juice " to

your band, with the successful weight loss that you've had maybe

your " innards " have shrunk a little too -- not a big fill, just a

tweak.

I got discouraged because I wasn't losing (I lost 18 lbs but that's

all I could do). Then I got a fill in December and though I had some

restriction I still wasn't losing. I wanted to experience the " I

can't eat more than 4 bites syndrome " . Well, I got another feel on

1/10 and guess what, I am there!!! This is what I was looking for.

Now I'm jazzed again. I mean, if i had self control then I wouldn't

need the band to begin with right?

Anyway, hope that you are well. Keep your chin up and focused on

your accomplishments so far -- you're doing great!!!

246/221/145

>

> Hi . I have been really slowing on my loss, so I got on your

> site to look at your journal. Your journey is so inspirational to

> me! But one thing I noticed is that your weight loss was pretty

> steady and pretty continuous. HOw did you keep your weight going

> down so steady? I seem to be going down so slowly. Did you just

> really watch your cals? Did you work out alot? what are some of

> your secrets to your success? I need to get a fire going in my

> weight loss again! I did start working out again and I am back to

> watching my cals again. And I was also reading your post about

going

> on liquids after a Pb incident. I didnt realize this either. I

> think I am abusing my band a little. I have days when I can keep

> very little down, and my band is very, very picky these days. so

I

> have been pbing alot lately. almost daily sometimes. so I really

> need a butt kicking bad! I do not want to cause my band to slip

and

> ruin this whole thing I have worked so hard for. I think I pb for

a

> few different reasons..... One is because I am not the best at

eating

> slow, and two I need to chew my food way better. Old habits are so

> hard to break!

> well any butt kicking or suggestions will be helpful! :-)

> thanks,

> hugs,

>

>

[Guest guest]

Hi P,

Oh Yes! I could hardly remember my phone number and certainly not

remember where I put my car keys ( I really sholdn't have been driving)

I clearly remember my 5th day on Armour. I woke up and the sun was shining

and the world seemed clear and bright after years of grey fog- it was

wonderful and since them I haven't looked back- I now roar around on a large

motorbike and am considered a good rider.

I do however seem to need a ridiculous amount of T3 to get there- at the

moment 80mcg T3 + 3 grains Nature-throid ( seems less strong than Armour so

I needed 10mcg T3 to make it equivalent.

A few years ago I was between doc so I asked my GP for T4 and extra T3 to

replace Armour as Iwas between private docs. I almost immeditately went

foggy in my head- my OH had to gently shepherd me around until I got Armour

again.

Subject: Question for

,

Did your 'senility' go away? If so, what did you do to make that

happen? I'm asking because I'm really concerned about my poor memory

and comprehension. I still need to 'up' my T3 a bit and I'm hoping

that makes a difference, however the small amount I've taken so far

hasn't made a bit of difference to my brain fog and memory problems.

The addition of T3 has only helped to improve my energy ever so

slightly.

I would really appreciate hearing from you.

P

>

> Hi Lilian,I'm sure it is. I felt as if I was senile in my 40's on

T4, and my Daughter said I really needed a minder!!

>

>

> I think this thyroxine only must be getting to my mind first

>

>

>

> Lilian

>

>

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Thanks so much for getting back to me . It seems to have made a

huge difference to you. It was interesting to read that you reverted

back to foggy thinking while using T4 and T3. My brain is in such a

fuddle most of the time. I'll persist for a while longer on the T4 /

T3 combination, however if it doesn't do me any good, I will try NTE.

The only difference I've noticed since adding T3 to the mix is a

slight increase in energy. Brain fog hasn't lifted at all. No other

symptoms seem to have improved. The memory and comprehension problems

that I'm having are very scary and frustrating. I've always been able

to rely on my mind, even in the most stressful situations. Not being

able to do that anymore makes me feel quite sad. I yearn for my

memory to come back. My doc told me I could try NTE, but I was scared

about the T3 in it, but now I'm using a small amount of T3 and feel

fine. I need to find out how much T3 is in the NTE.

Thanks again so much for answering my questions. Finding out about

your situation has really helped me. (o:

P

>

Oh Yes! I could hardly remember my phone number and certainly not

remember where I put my car keys ( I really sholdn't have been

driving) I clearly remember my 5th day on Armour. I woke up and the

sun was shining and the world seemed clear and bright after years of

grey fog- it was wonderful and since them I haven't looked back......A

few years ago I was between doc so I asked my GP for T4 and extra T3

to replace Armour as Iwas between private docs. I almost immeditately

wentfoggy in my head- my OH had to gently shepherd me around until I

got Armour again.

[Guest guest]

Hi Ann,

It's been over a week that I had the bloodwork done, I called the

Dr. on Thursday last week and she said it had been sent to Public

Health, I'm not sure if they're the ones who do the testing or not

though. She said to wait till the middle of this week to see if

they're back yet.

I'II keep you posted

Thanks,

>

> SO wendy,  do you have Lyme disease?

> It is as you said a red rash and bulls-eye-- let me know.

> My PT had Lyme disease and they did not detect it and he was very

sick for months UNTIL HE HIMSELF had to ask for the blood test.

> He is better now but only after a heavy round of antibiotics.

> Take care and keep posting.

> Annie

> A poet is, after all, to see

>

>

>  

>

>

>

>

>

[Guest guest]

Hi Ann,

It's been over a week that I had the bloodwork done, I called the

Dr. on Thursday last week and she said it had been sent to Public

Health, I'm not sure if they're the ones who do the testing or not

though. She said to wait till the middle of this week to see if

they're back yet.

I'II keep you posted

Thanks,

>

> SO wendy,  do you have Lyme disease?

> It is as you said a red rash and bulls-eye-- let me know.

> My PT had Lyme disease and they did not detect it and he was very

sick for months UNTIL HE HIMSELF had to ask for the blood test.

> He is better now but only after a heavy round of antibiotics.

> Take care and keep posting.

> Annie

> A poet is, after all, to see

>

>

>  

>

>

>

>

>

[Guest guest]

Marie,

Title III of the ADA covers places of public accommodations and

commercial

facilities. It applies to for profit and non-profit organizations.

Tax

status does not determine ADA coverage. In order to be covered by

Title III

an organization must fit in one of the below twelve categories and

effect

commerce.

Place of public accommodation means a facility, operated by a private

entity, whose operations affect commerce and fall within at least

one of the

following categories --

(1) An inn, hotel, motel, or other place of lodging, except for an

establishment located within a building that contains not more than

five

rooms for rent or hire and that is actually occupied by the

proprietor of

the establishment as the residence of the proprietor;

(2) A restaurant, bar, or other establishment serving food or drink;

(3) A motion picture house, theater, concert hall, stadium, or other

place

of exhibition or entertainment;

(4) An auditorium, convention center, lecture hall, or other place

of public

gathering;

(5) A bakery, grocery store, clothing store, hardware store, shopping

center, or other sales or rental establishment;

(6) A laundromat, dry-cleaner, bank, barber shop, beauty shop, travel

service, shoe repair service, funeral parlor, gas station, office of

an

accountant or lawyer, pharmacy, insurance office, professional

office of a

health care provider, hospital, or other service establishment;

(7) A terminal, depot, or other station used forspecified public

transportation;

(8) A museum, library, gallery, or other place of public display or

collection;

(9) A park, zoo, amusement park, or other place of recreation;

(10) A nursery, elementary, secondary, undergraduate, or postgraduate

private school, or other place of education;

(11) A day care center, senior citizen center, homeless shelter,

food bank,

adoption agency, or other social service center establishment; and

(12) A gymnasium, health spa, bowling alley, golf course, or other

place of

exercise or recreation.

>

> Yesterday evening, my family and I went to dinner at one of our

> favorites restaurants. Our son, who has autism, enjoys

this

> place and behaves very well. The owner's grandson has Down

Syndrome

> so they seem to be more accepting than most and every effort is

> always made for Russ--we're served quickly, our table is out of

the

> way and our waitress understanding, etc. This is an upscale

> steakhouse, not a Denny's, but they really, really " get it " .

(Those

> in the south suburbs, this is Mr. Benny's--we've been to both

their

> Matteson and Mokena restaurants and BOTH have been great--Mr.

Benny

> is usually at the Mokena one and serves Russ, the 'prince',

himself.)

>

> This is not typically the case. We do dine out together once a

> month or so, and often, even when we ask for accomadations, we

don't

> get them. The service is awful or, several times, we were asked

to

> leave because Russ sometimes hums. There are stories in the news

> about children in these situations but never adults. We don't go

to

> any place we don't think he can behave, or any place really,

really

> expensive. Of course, we don't go back if we don't think the

service

> or the accommadations are not to our liking. And with the

economy,

> we may not be dining out as often anyway.

>

> I guess my question is, do restaurants have to follow the ADA? It

> is a service industry, I do understand, but what we ask for is not

> out of line or even that difficult to give us. And service is

> service--we do pay, the same as anyone.

>

> Marie, co-moderator

>