Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 No i'm a popcorn nut also never get's stuck and can eat as much as you want with no guilt. I'm also hooked on fudgesickles-40 cal each ----gooooooooood. This is making me hungery lol belinda Mills <techgurl88@...> wrote: popcorn now?) In Texas280/215/160 http://www.tracyslapband.com -----Original Message-----From: [mailto: ] On Behalf Of BSent: Sunday, July 17, 2005 7:17 PM Subject: Re: hair lossI'm having serious hair loss right now too. I invested in a hairpiece, rather than a full wig. It is exactly the same color as my hair, and it's the same length too. It covers the crown area and attaches with what are called toupee clips. No one - not even my partner - can tell I have it on. I paid nearly US$200 for it, but it was worth every penny! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 , I could have swore I read somewhere that corn and popcorn aren't really good for the band, or hard to swallow, with the band, I guess that is not true, since you eat it, and you are loosing a ton of weight, oh and on the protein drinks, don't but on line or at least not at a web site called bariactriceating.com (something like that) I bought a sample pack paid about 30.00 for samples of 20 different kinds and flavors from this web site, and even though the web site stated they sell nothing but the best, and the best tasting protein drinks (THEY LIED) I can't even choke them down, one almost made me puke, I have only tried four different flavors but when I emailed the lady asking if I could return the rest, she basically said no, that her protein are good, and she has had 20,000 satisfied customers, but wouldn't refund One customer who was dissatisfied, I believe that is very poor business. ANyways, thanks for letting me vent, I believe it's best to stick with the ISOPURE its not the best, but at least it is drinkable. Tracie B. in Texas. Re: hair loss I'm having serious hair loss right now too. I invested in a hairpiece, rather than a full wig. It is exactly the same color as my hair, and it's the same length too. It covers the crown area and attaches with what are called toupee clips. No one - not even my partner - can tell I have it on. I paid nearly US$200 for it, but it was worth every penny! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Truthfully, I didn't bother with the Sally's clip on type.... My hair is falling out all over, but it's the crown that ends up showing it. The clip on pony tail won't disguise it at all. I'm wearing this hair piece as a normal part of my attire now, so that as my hair thins out more (and I imagine it will continue for a while) no one will notice and start spreading rumours that I have AIDS (Jamaica is a small country, and my partner is fairly well-known, so people watch me. They've noticed, of course, my rapid weight loss, but I just say that I don't eat much!) My hair loss only recently started too. It's just disgusting to have hair literally in and on everything. I'm like a dog shedding. I drink about 90 grams of protein a day, and I take a slew of vitamins. I honestly don't eat much, so I don't worry much about *what* I eat. I can eat such a tiny amount of food, that I figure it doesn't matter if my fish is fried, ya know? I don't snack, and I don't graze, and overall I eat good, lean protein, but I don't stress over it. I get my protein powders from www.vitalady.com. All of the powders she sells are " good " protein powders - but the taste is very individual. I advise ordering lots of samples before investing in a tub-o-protein that you end up gagging on :-) I L-O-V-E popcorn.... I love it even more if it's coated in the yummy artificial-butter-flavored-grease you get at the theater! I save that for an occasional treat though :-) -------------------------------------------- in Jamaica (yep, the island!) Lap RNY, 50cm; Feb 5, 2005 Dr. Alberto Aceves; Mexicali, Mexico 243/181/150 -------------------------------------------- At 09:56 PM 07/18/2005, you wrote: >Hmmm, I went into Sally's Beauty Supply here the other day and looked at the >hair pieces, the ones you can clamp on to a pony tail. I also wanted to >mention that my hair loss didn't start until about a month ago. I am still >looking ok, meaning I don't have any bald spots but it is really driving me >crazy to keep finding hair everywhere. (Curtis said I need to wear a net at >all times LOL) I am taking extra zinc, trying to get in at least 70-80 grams >of protein (hard!) and taking a multivitamin now. , can you tell me >again one of those protein drinks you order online that has the most >protein? I am thinking I can drink at least one in replace of my regular >popcorn snack. (BTW , am I the only one addicted to popcorn now?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 HI LADIES IM NEW TO THE GROUP BUT ABOUT THE PROTEIN DRINKS MY SISTER HAD THE RNY AND SHE WAS DRINKING THE ADVANTAGE SHAKES THEY COME IN DIFFERENT FLAVORS STRAWBERRY CHOCOLATE AND MOCHA SHE ORIGINAL WAS SUPPOSED TO BE DRINKING THEM BUT THEY WERE GOOD TO ME AND I START DRINKING THEM WITH SKIM MILK OVER ICE AND ITS ACTUALLY NOT BADtkbartek@... wrote: , I could have swore I read somewhere that corn and popcorn aren't really good for the band, or hard to swallow, with the band, I guess that is not true, since you eat it, and you are loosing a ton of weight, oh and on the protein drinks, don't but on line or at least not at a web site called bariactriceating.com (something like that) I bought a sample pack paid about 30.00 for samples of 20 different kinds and flavors from this web site, and even though the web site stated they sell nothing but the best, and the best tasting protein drinks (THEY LIED) I can't even choke them down, one almost made me puke, I have only tried four different flavors but when I emailed the lady asking if I could return the rest, she basically said no, that her protein are good, and she has had 20,000 satisfied customers, but wouldn't refund One customer who was dissatisfied, I believe that is very poor business. ANyways, thanks for letting me vent, I believe it's best to stick with the ISOPURE its not the best, but at least it is drinkable. Tracie B. in Texas. Re: hair loss I'm having serious hair loss right now too. I invested in a hairpiece, rather than a full wig. It is exactly the same color as my hair, and it's the same length too. It covers the crown area and attaches with what are called toupee clips. No one - not even my partner - can tell I have it on. I paid nearly US$200 for it, but it was worth every penny! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 LOL I am glad I am not the only one. And If Dr A comes back and says no to popcorn, I might just have to disobey him LOL. In Texas 280/215/160 http://www.tracyslapband.com From: [mailto: ] On Behalf Of Belinda Spoonemore Sent: Tuesday, July 19, 2005 11:43 AM Subject: RE: hair loss No i'm a popcorn nut also never get's stuck and can eat as much as you want with no guilt. I'm also hooked on fudgesickles-40 cal each ----gooooooooood. This is making me hungery lol belinda Mills <techgurl88@...> wrote: popcorn now?) In Texas 280/215/160 http://www.tracyslapband.com Re: hair loss I'm having serious hair loss right now too. I invested in a hairpiece, rather than a full wig. It is exactly the same color as my hair, and it's the same length too. It covers the crown area and attaches with what are called toupee clips. No one - not even my partner - can tell I have it on. I paid nearly US$200 for it, but it was worth every penny! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Hi ne, I just have a question for you..when did your hair loss start and how long did it last? I'm coming up on 4 months and I know that some people start losing right around this time and some dont start losing their hair till their 6 months out..I'm wondering how long this whole thing lasts before it finally stops? Thankyou and have a wonderful ,blessed turkey day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Hi TJ, I had hair loss, it seemed like a whole lot to me but others all said they couldnt notice. At first I started taking extra vitamins and using special hair tonics. I continued losing my hair so I stopped using everything let it run its course and it stopped on its own and my hair at 23 months out, has all grown back. My guess is dont worry about it, and go with your gut ignore it and enjoy your weight loss! Take care and Happy Thanksgiving! ne in NC > > Well, I'm normal in hair loss if not weight loss. > > I need input from post-ops. I know what we can take, what we can use > but I'm curious if anyone has chosen to ignore the hair loss and let > it self-correct without supplements? > > Pills are nauseating me and if I can avoid adding more I may. > > I know it's my choice, I know what the choices are, but if anyone has > made the choice to just wait it out without supplements, I'd > appreciate hearing your experience before I decide to go bald. > > Thanks! > > Tj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Hi TJ - I am one who chose to ride it out without supplements. When my hair started thinning (at about 4-1/2 months out), my solution was to cut my former pageboy into a short pixie and enjoy my long-envied liberation. JamiGoldWing > > Well, I'm normal in hair loss if not weight loss. > > I need input from post-ops. I know what we can take, what we can use > but I'm curious if anyone has chosen to ignore the hair loss and let > it self-correct without supplements? > > Pills are nauseating me and if I can avoid adding more I may. > > I know it's my choice, I know what the choices are, but if anyone has > made the choice to just wait it out without supplements, I'd > appreciate hearing your experience before I decide to go bald. > > Thanks! > > Tj > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Morning , My hair loss did start around 4 months and lasted gosh at least until the 14th month BUT I had a huge weight loss of 175 pounds. My girlfriend had surgery the same time as me, started losing hair about the 5th month and around the 12 month stopped losing hair, she lost 77 pounds. Not sure if the weigh loss can be tied in with it, that was just info I am giving as to the possible reason for the loss of hair for the long period for me. It was about the time I stopped losing weight that my hair loss stopped. I was so freaky about this and asked so many questions and bottom line, dont worry it wont be bad at all. Guess what I lost another pound today!!! 23 months out!!! This is so wonderful! Have a Happy Thanksgiving Sweetie!! ne > > Hi ne, I just have a question for you..when did your hair loss start > and how long did it last? I'm coming up on 4 months and I know that some people > start losing right around this time and some dont start losing their hair > till their 6 months out..I'm wondering how long this whole thing lasts before > it finally stops? Thankyou and have a wonderful ,blessed turkey day! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 , Nothing to thank me for sweetie! I just dont want you worrying about something that is out of our control and also for the most part very likely no one other than you will notice!! Hope you had a wonderful Thanksgiving, I am on my way out the door to go shopping....... Love the holidays! This year no huffing and puffing like the big bad wolf just to go shopping. I have plenty of shopping energy! Happy Holidays! ne > > OH THANKYOU GEORGENE! I do worry because my hair is a little thin already > but I can deal with it as long as I continue to lose. Congrats on the pound > lost! Isn't this so cool?? HAPPY THANKSGIVING to you and yours.. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 I didn't start losing any hair until after the 8 mo mark. But then I lost it quickly. Don't think anyone else noticed but I certainly did. I just let it go and it has started growing back. In order to let the new growth catch up, I had my hair cut short and I have received so many compliments I may keep it short for a while. Never fear, it will start growing back. And I have several friends who have had the surgery too . . .none of us is bald. The hair loss only happens for a short period of time and then it starts to grow back! fairywebmother2000 <fairywebmother2000@...> wrote: Well, I'm normal in hair loss if not weight loss. I need input from post-ops. I know what we can take, what we can use but I'm curious if anyone has chosen to ignore the hair loss and let it self-correct without supplements? Pills are nauseating me and if I can avoid adding more I may. I know it's my choice, I know what the choices are, but if anyone has made the choice to just wait it out without supplements, I'd appreciate hearing your experience before I decide to go bald. Thanks! Tj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 When I saw the hair loss question my heart just sunk … Im glad you daughter isn't experiencing it and Its more of an informational question.. We are dealing with the aftermath of Belles hair loss now and its really hard. Belle started losing hers after about four or five months and backing down on the Methotrexate didn't really have any affect for my girl. She has been totally off it since July 26th and she still hasn't started to begin to regain even a quarter of what she lost. Hers came out as large strands but no clumps , she was lucky enough to have VERY thick hair originally so for the longest time you couldn't notice ~ now there is no hiding the fact that she a problem. I asked her today whether she felt she needed to see a special " hair Doctor " and she said not yet , she still has hope that it will come back as before but at this point its not looking so good. Teri ( Belle 12 in two days !!! , Psoriatic Arthritis ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 Teri, I'm sorry that Belle, too, has to deal with hair loss. It has been almost two years since 's hair loss became easily noticeable. At one point she had only a couple of small areas of hair left on her head. She chose at first to wear a hat, then something called a " hiphat " (a hat or scarf with hair built in) and then finally made the decision to wear a wig. She has about 75% of her head covered with hair now~~ FINALLY! ~~ but of course there's no guarantee it will stay. We initially thought that 's hair loss was an adverse reaction to a medication (not methotrexate, by the way) but I now believe that the medication was the trigger for the hair loss (alopecia). Does that make sense? Since you asked Belle about seeing a " hair doctor " , I suspect you're wondering if Belle does, indeed, have alopecia. A dermatologist would be the one to make that diagnosis and there are pediatric dermatologists around. Unfortunately, there are no treatments guaranteed to work, though there are plenty of treatments to try. did try a couple and finally decided she was through with all of them. They weren't working for her so she saw no reason to continue. She was in 7th grade at the time, so only a little older than Belle is now. Hang in there~~ I believe we are blessed with very strong children and they will be just fine in spite of, or perhaps because of, the things they have had to handle at a young age. Liz _____ From: [mailto: ] On Behalf Of branx4 Sent: Friday, October 27, 2006 6:47 PM Subject: Re: hair loss When I saw the hair loss question my heart just sunk . Im glad you daughter isn't experiencing it and Its more of an informational question.. We are dealing with the aftermath of Belles hair loss now and its really hard. Belle started losing hers after about four or five months and backing down on the Methotrexate didn't really have any affect for my girl. She has been totally off it since July 26th and she still hasn't started to begin to regain even a quarter of what she lost. Hers came out as large strands but no clumps , she was lucky enough to have VERY thick hair originally so for the longest time you couldn't notice ~ now there is no hiding the fact that she a problem. I asked her today whether she felt she needed to see a special " hair Doctor " and she said not yet , she still has hope that it will come back as before but at this point its not looking so good. Teri ( Belle 12 in two days !!! , Psoriatic Arthritis ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Gosh Liz, I never put two and two together .. maybe it wasnt the MTX but that medication was the trigger for the hair loss . It makes me wonder ???? I think I will do some research today. Thanks for the info ! Teri ( Belle 12 in ONE day ,Psoriatic Arthritis) > > Teri, > > I'm sorry that Belle, too, has to deal with hair loss. It has been almost > two years since 's hair loss became easily noticeable. At one point she > had only a couple of small areas of hair left on her head. She chose at > first to wear a hat, then something called a " hiphat " (a hat or scarf with > hair built in) and then finally made the decision to wear a wig. She has > about 75% of her head covered with hair now~~ FINALLY! ~~ but of course > there's no guarantee it will stay. We initially thought that 's hair > loss was an adverse reaction to a medication (not methotrexate, by the way) > but I now believe that the medication was the trigger for the hair loss > (alopecia). Does that make sense? > > Since you asked Belle about seeing a " hair doctor " , I suspect you're > wondering if Belle does, indeed, have alopecia. A dermatologist would be the > one to make that diagnosis and there are pediatric dermatologists around. > Unfortunately, there are no treatments guaranteed to work, though there are > plenty of treatments to try. did try a couple and finally decided she > was through with all of them. They weren't working for her so she saw no > reason to continue. She was in 7th grade at the time, so only a little older > than Belle is now. > > Hang in there~~ I believe we are blessed with very strong children and they > will be just fine in spite of, or perhaps because of, the things they have > had to handle at a young age. > > Liz > > > > _____ > > From: [mailto: ] On Behalf > Of branx4 > Sent: Friday, October 27, 2006 6:47 PM > > Subject: Re: hair loss > > > > > When I saw the hair loss question my heart just sunk . Im glad you > daughter isn't experiencing it and Its more of an informational > question.. We are dealing with the aftermath of Belles hair loss now and > its really hard. Belle started losing hers after about four or five > months and backing down on the Methotrexate didn't really have any > affect for my girl. She has been totally off it since July 26th and she > still hasn't started to begin to regain even a quarter of what she > lost. Hers came out as large strands but no clumps , she was lucky > enough to have VERY thick hair originally so for the longest time you > couldn't notice ~ now there is no hiding the fact that she a > problem. I asked her today whether she felt she needed to see a special > " hair Doctor " and she said not yet , she still has hope that it > will come back as before but at this point its not looking so good. > > Teri ( Belle 12 in two days !!! , Psoriatic Arthritis ) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 Ok so I did a little bit of research and what I found made me run in find Belle . After our kids get to a certain age they start to take more control of their medication ( that is what her DR wants from her ) and so my daughter being the stubborn kid that she is has decided to only take her med's when she hurts. I can tell her until Im blue in the face to take her med's twice a day every day but … the DR wants her to be in control. As long as she is doing OK , he said that her trying to figure this out for herself is healthy and she will learn how important the meds are. So what I found was that Sulfasalazine has been used as a treatment for Alopecia . I figured that even if her hair loss was simply the results from the Methotrexate , the Sulfasalazine that she is suppose to take twice daily might help … if she would actually take it ! Well , she just took it and I didn't even have to pin her to the ground , YAY ! Teri > > > > Teri, > > > > I'm sorry that Belle, too, has to deal with hair loss. It has been > almost > > two years since 's hair loss became easily noticeable. At one > point she > > had only a couple of small areas of hair left on her head. She > chose at > > first to wear a hat, then something called a " hiphat " (a hat or > scarf with > > hair built in) and then finally made the decision to wear a wig. > She has > > about 75% of her head covered with hair now~~ FINALLY! ~~ but of > course > > there's no guarantee it will stay. We initially thought that > 's hair > > loss was an adverse reaction to a medication (not methotrexate, by > the way) > > but I now believe that the medication was the trigger for the hair > loss > > (alopecia). Does that make sense? > > > > Since you asked Belle about seeing a " hair doctor " , I suspect you're > > wondering if Belle does, indeed, have alopecia. A dermatologist > would be the > > one to make that diagnosis and there are pediatric dermatologists > around. > > Unfortunately, there are no treatments guaranteed to work, though > there are > > plenty of treatments to try. did try a couple and finally > decided she > > was through with all of them. They weren't working for her so she > saw no > > reason to continue. She was in 7th grade at the time, so only a > little older > > than Belle is now. > > > > Hang in there~~ I believe we are blessed with very strong children > and they > > will be just fine in spite of, or perhaps because of, the things > they have > > had to handle at a young age. > > > > Liz > > > > > > > > _____ > > > > From: [mailto: ] On > Behalf > > Of branx4 > > Sent: Friday, October 27, 2006 6:47 PM > > > > Subject: Re: hair loss > > > > > > > > > > When I saw the hair loss question my heart just sunk . Im glad you > > daughter isn't experiencing it and Its more of an informational > > question.. We are dealing with the aftermath of Belles hair loss > now and > > its really hard. Belle started losing hers after about four or five > > months and backing down on the Methotrexate didn't really have any > > affect for my girl. She has been totally off it since July 26th and > she > > still hasn't started to begin to regain even a quarter of what she > > lost. Hers came out as large strands but no clumps , she was lucky > > enough to have VERY thick hair originally so for the longest time > you > > couldn't notice ~ now there is no hiding the fact that she a > > problem. I asked her today whether she felt she needed to see a > special > > " hair Doctor " and she said not yet , she still has hope that it > > will come back as before but at this point its not looking so good. > > > > Teri ( Belle 12 in two days !!! , Psoriatic Arthritis ) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2006 Report Share Posted October 28, 2006 has been having some problems with his scalp that has started causing hair loss. He's had a recurrant fungal infection that looks like cradle cap. At one point it got into the hair shafts and he was put on an antibiotic for it that meant he had to stop taking mtx and Enbrel for a while. This, of course, put him into a flare. He still is getting some flakes on his scalp, kind of yellowish, so we're using a prescription shampoo. It is causing a few bald spots, though very small ones. Misty & (8, systemic) > > > When I saw the hair loss question my heart just sunk … Im glad you > daughter isn't experiencing it and Its more of an informational > question.. We are dealing with the aftermath of Belles hair loss now and > its really hard. Belle started losing hers after about four or five > months and backing down on the Methotrexate didn't really have any > affect for my girl. She has been totally off it since July 26th and she > still hasn't started to begin to regain even a quarter of what she > lost. Hers came out as large strands but no clumps , she was lucky > enough to have VERY thick hair originally so for the longest time you > couldn't notice ~ now there is no hiding the fact that she a > problem. I asked her today whether she felt she needed to see a special > " hair Doctor " and she said not yet , she still has hope that it > will come back as before but at this point its not looking so good. > > Teri ( Belle 12 in two days !!! , Psoriatic Arthritis ) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Teri, I'm sure you've noticed this in your research, but alopecia is also an auto-immune disease. My oldest daughter was diagnosed with it two summers ago. Coincidently, this was also the summer we were searching for a diagnosis for who is the one who has arthritis. We feel hers was brought on by stress and exhaustion. That particular summer, I could have counted the nights she slept in her own bed on both my hands, I believe. In her case, I'd say after about 15 to 18 months, she stopped losing hair. She had very thick hair to begin with, and the noticeable loss was confined to a few specific areas. Of course, the growth back in those spots has not yet caught up with the rest of her hair, so she's still careful how she styles her hair. I know it's been mentioned here about how auto-immune diseases tend to be related. And I remember reading somewhere when I was researching JRA that chances of it were increased if other auto-immune diseases existed in your immediate family. My oldest daughter and my youngest son also have eczema (also an auto-immune disease). And has recently had a spot on his face a couple of times (for a long length of time) that I suspect is eczema. The only thing that makes it go away is the Protopic that my others use for their eczema. Marsha (, 10, pauci) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I think this was very good subject to talk about. I think people think about but are unsure how to bring it up. I am glad it was brought and address. It is something. I have thought about....Terri Re: hair loss Teri, I'm sure you've noticed this in your research, but alopecia is also an auto-immune disease. My oldest daughter was diagnosed with it two summers ago. Coincidently, this was also the summer we were searching for a diagnosis for who is the one who has arthritis. We feel hers was brought on by stress and exhaustion. That particular summer, I could have counted the nights she slept in her own bed on both my hands, I believe. In her case, I'd say after about 15 to 18 months, she stopped losing hair. She had very thick hair to begin with, and the noticeable loss was confined to a few specific areas. Of course, the growth back in those spots has not yet caught up with the rest of her hair, so she's still careful how she styles her hair. I know it's been mentioned here about how auto-immune diseases tend to be related. And I remember reading somewhere when I was researching JRA that chances of it were increased if other auto-immune diseases existed in your immediate family. My oldest daughter and my youngest son also have eczema (also an auto-immune disease). And has recently had a spot on his face a couple of times (for a long length of time) that I suspect is eczema. The only thing that makes it go away is the Protopic that my others use for their eczema. Marsha (, 10, pauci) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I just got off the phone with the nurse and she seems to think that belle hair loss might not be a methotrexate side affect or Alopecia but something else ... Just what we need ! Well , Im going to think and pray on it before jumping in to have Belle see a dermatologist . Another Doctor , another idea , another med ~ Maybe we ( me ) are just not giving her hair a chance to fill back in , I know everyone is different and they all react differently to med's . So for now I will do some more research on my own but yes I think your right about bringing this out into the open. I almost feel bad about worrying about such a small insignificant thing as " hair " , Belle feels great today and life is pretty darn normal. But our kids go through so much stuff pain, Dr's appointments , drugs , surgery ~ wouldn't you think they could at least be able to keep their hair ! Teri ( mom to 12 year old Belle !!!! ) > > I think this was very good subject to talk about. I think people think about but are unsure how to bring it up. I am glad it was brought and address. It is something. I have thought about....Terri > Re: hair loss > > > Teri, > > I'm sure you've noticed this in your research, but alopecia is also an > auto-immune disease. My oldest daughter was diagnosed with it two summers > ago. Coincidently, this was also the summer we were searching for a > diagnosis for who is the one who has arthritis. > > We feel hers was brought on by stress and exhaustion. That particular > summer, I could have counted the nights she slept in her own bed on both my > hands, I believe. In her case, I'd say after about 15 to 18 months, she > stopped losing hair. She had very thick hair to begin with, and the > noticeable loss was confined to a few specific areas. Of course, the growth > back in those spots has not yet caught up with the rest of her hair, so > she's still careful how she styles her hair. > > I know it's been mentioned here about how auto-immune diseases tend to be > related. And I remember reading somewhere when I was researching JRA that > chances of it were increased if other auto-immune diseases existed in your > immediate family. My oldest daughter and my youngest son also have eczema > (also an auto-immune disease). And has recently had a spot on his > face a couple of times (for a long length of time) that I suspect is eczema. > The only thing that makes it go away is the Protopic that my others use for > their eczema. > > Marsha (, 10, pauci) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Terri, Hair is probably one of the most important things in a preteens life. They are just starting to be more aware of their looks and appearance is at an all time high at this age....You have every reason to be concerned about hair just as much as would over any other side effects...Its not an insignificant thing in the minds of our children. In fact I believe that the appearance changes that our kids go thru in dealing with prednisone puffiness, hair loss, limps, contracted joints is as potentially devestating to their self esteem as joint damage is to their phsyical health...Both are valid concerns and have every right to be addressed! I wonder how it is that they think its possibly unrelated to mtx...Just curious as to what their process was in ruling out mtx or perhaps they are trying to rule out other things. I hope you get some answers at the derm visit and that things turn around for Belle soon! (Aundrea 11 systemic jra/gerd) > > > > I think this was very good subject to talk about. I think people think > about but are unsure how to bring it up. I am glad it was brought and > address. It is something. I have thought about....Terri > > Re: hair loss > > > > > > Teri, > > > > I'm sure you've noticed this in your research, but alopecia is also an > > auto-immune disease. My oldest daughter was diagnosed with it two > summers > > ago. Coincidently, this was also the summer we were searching for a > > diagnosis for who is the one who has arthritis. > > > > We feel hers was brought on by stress and exhaustion. That particular > > summer, I could have counted the nights she slept in her own bed on > both my > > hands, I believe. In her case, I'd say after about 15 to 18 months, > she > > stopped losing hair. She had very thick hair to begin with, and the > > noticeable loss was confined to a few specific areas. Of course, the > growth > > back in those spots has not yet caught up with the rest of her hair, > so > > she's still careful how she styles her hair. > > > > I know it's been mentioned here about how auto-immune diseases tend to > be > > related. And I remember reading somewhere when I was researching JRA > that > > chances of it were increased if other auto-immune diseases existed in > your > > immediate family. My oldest daughter and my youngest son also have > eczema > > (also an auto-immune disease). And has recently had a spot on > his > > face a couple of times (for a long length of time) that I suspect is > eczema. > > The only thing that makes it go away is the Protopic that my others > use for > > their eczema. > > > > Marsha (, 10, pauci) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 One thing that I was told would help was to take Zinc losenges. I bought chewables at GNC. I can't really tell you if it worked or not but I didn't lose any hair. HOWEVER, I have tons of hair anyway so I'm not a good one to ask. The Zinc is what a dermatologist friend of mine told me to use if I was scared of losing hair. Others can tell you more. Jenni DOB 2/23/06 247/140/145 4 fills 3 unfillsmrsdash1966 <kristen@...> wrote: I understand that some have had alot of hair loss after the band. Ialready have hair loss now...tons of it from my last baby almost 3 yearsago, my hair is so thin that I have to wear a clip in hair piece. Thisconcerns me as to if this is going to be more of a problem after gettingthe band. Can anyone help me with this? Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 It's due to the anesthesia we get during surgery as people getting surgery for any reason tend to have this problem at a rate of about 70%. Each person has their own cures such as additional protein, additional Biotin, additional anything. Truth is, it will grow back when it grows back if you are one to lose hair due to anesthesia. You can consume extra protein, vitamins, or minerals but it is still going to grow back at the same rate it would without the " cures " people have Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Bipley, how is the Bumble & Bumble working for you? I used to use their thickening shampoo & conditioner. Not sure if it thickened, but I loved the way it smelled. I'm willing to try the Density at this point. Last week my hairdresser was combing out my hair and she looked me straight in the eye, held up a big ball of hair that came out in the comb and said " now THIS is a problem. " I already have super fine, thin blonde hair and my efforts to outwit the anesthesia hair loss monster are failing bigtime. :-( Setje DOB 3/15/07 250/206/142 > > > > I understand that some have had alot of hair loss after the band. I > > already have hair loss now...tons of it from my last baby almost 3 years > > ago, my hair is so thin that I have to wear a clip in hair piece. This > > concerns me as to if this is going to be more of a problem after getting > > the band. Can anyone help me with this? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Setje... I really like it a great deal. I can't say it is responsible for hair growth just yet but (not sure if I can explain this) it seems to have brought out the peach fuzz that is growing back. I went to a friend's house and made her look at my head. ;o) She's a hair stylist. She said there was nothing, no regrowth. I used the Bumble & Bumble products and two weeks later I was over there anyway and she looked and said there was plenty of peach fuzz. Now, we all know hair does not regrow THAT fast, but the only thing I can think of is that it brought out what was there and now I can see it. I have noticed that my scalp itches but not like " dry scalp " itchy but more like " healing surgical wounds " itchy. Not sure if that make sense. I don't care what brought out the peach fuzz, I'm going to keep using this stuff but I'm telling you... it's REALLY expensive! I got mine for free through my nephew's fiance but I'll be buying it after I use the first set. I'd be careful about buying it on ebay as there are lots of fakes, especially from outside the US. Go to a shop locally that does hair and buy it directly from them. Since it is a " treatment " vs. basic hair care Bumble & Bumble does not sell to distributors, only directly to shops. So if you buy outside of a shop just be careful. I like the company and everything I have learned about it (Bumble & Bumble). I think after I don't need the Density Therapy anymore I'll still stick to their brand. I had never heard of it before recently. One downside is that it smells like medicine while you are using it. It's not super stinky but it's not pleasing either. However, after my hair is dry I can't smell anything. It doesn't burn like Nioxin does. BTW, I have some Nioxin conditioner that I used once if anyone wants it. First come first serve. On 7/2/07, setjesusannah <Setje@...> wrote: Bipley, how is the Bumble & Bumble working for you? I used to use their thickening shampoo & conditioner. Not sure if it thickened, but I loved the way it smelled. I'm willing to try the Density at this point. Last week my hairdresser was combing out my hair and she looked me straight in the eye, held up a big ball of hair that came out in the comb and said " now THIS is a problem. " I already have super fine, thin blonde hair and my efforts to outwit the anesthesia hair loss monster are failing bigtime. :-(SetjeDOB 3/15/07250/206/142> >> > I understand that some have had alot of hair loss after the band. I> > already have hair loss now...tons of it from my last baby almost 3 years> > ago, my hair is so thin that I have to wear a clip in hair piece. This> > concerns me as to if this is going to be more of a problem after getting> > the band. Can anyone help me with this? > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Bipley, you got the prickly peach fuzz! Ain't it the best? There's a spa down the road here that carries the full line of Bumble & Bumble products and I'm going to try this Density stuff. There are some things I'm willing to pay for, like hair care products and air conditioning. Setje Quote Link to comment Share on other sites More sharing options...
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