Back again

December 31, 2006

Hi Alan, I forgot the Year so I wish you a Happy New Year again :-) SusieSuzanne Snyder <juneflower63@...> wrote: Hi Alan, I'm glad

everything working out for you I wish you a Happy New :-) Susiembwebman <mbwebman > wrote: Hi Lindy Lou,Thanks, I needed that hug. I got the official measurments yesterdaythat they will be sending to the Surgeon. Left Knee 124-degreesactive, 129-degrees flex & 0 degrees extension. Right Knee 127active, 131-degrees passive felx and -2 degrees flex. So I'm gettingthere. With any luck I can go back to work in 2-weeks. Happy NewYear to all.Alan B.>> that's GREAT news, Alan! Happy New Year!> Hugs,> Lindy Lou> Right THR 1/22/2007> > Hello Everyone,> Well the forced compression procedure was done successfully. I'm now> hovering at 125 degrees with assistance and 115 on my own. The> swelling is starting to go back down and so is the pain. I'll be> visiting more often again now. I have to go ice again so see you all> later.> Happy New Year to All,> Alan B.>

January 1, 2007

Hi Alan, I'm glad everything went well for you I hope you had a nice New Year :-) Susiembwebman <mbwebman@...> wrote: Hello Everyone,Well the forced compression procedure was done successfully. I'm

nowhovering at 125 degrees with assistance and 115 on my own. Theswelling is starting to go back down and so is the pain. I'll bevisiting more often again now. I have to go ice again so see you alllater.Happy New Year to All,Alan B.

September 2, 2007

Hello Anita

Glad to have you back with us and glad it is with . Don't worry

about not being able to contribute very much, we understand, but hope

that if you ever need us, we will be here for you. Keep popping in

occasionally and letting us know how you are.

Luv - Sheila

>

> Hi Sheila and everybody,

> feels good to be back here again and hope all goes well here this

time.

> I've not been around on the forum very much recently due to several

> private things, but pop in every now and then to see what's going on.

> Hope it is ok in the future as well to be a member although not very

> active.

> I want to take this opportunity to say a big thank you to Sheila & Co

> for all the hard work you do trying to help people with thyroid

> problems.

> Wishing you all good health.

> Anita

>

September 3, 2007

Receiving you loud and clear Graham, over and out.

Luv nne

Hi All,Just a test note!Graham

April 16, 2008

I have had Hep C since I was 13 or possibly younger...my mother thinks it was

earlier,

because I had significant changes in my health after I was stung by a whole

hive of

bees when I was 6. I also had an emergency surgery around 13, and that is

where

the doctors I have seen tend to place the blame. (never did any drugs, or had

tattoos,

or piercings etc..)

Genotype 1b, so I have not considered any treatments. Given the possible

side effects,

I did not feel it would be beneficial enough to take the risk. And I don't

have a lot of

negative symptoms to deal with..primarily fatigue and really dry skin, slow

digestion.

There are so many things we can do on our own to keep ourselves pretty

healthy in

spite of it, so that is where my focus is as far as " treatment " goes.

Traditional treatments are not cures..they only provide a remission period.

This was explained in great detail to me by my gastro. He believes in

treating

EVERY patient regardless of their health or genotype. And he has a few

patients

that have had undetectable viral loads for a few years...but none that have

cleared

permanently.

As far as the biopsy goes...I had one, and it wasn't difficult or painfull or

anything like that.

It was a few years ago, but the doctor I have now doesnt like to do them for

fear of

pushing surface pathogens into the organ system. (like staph) and he finds

ultrasound

to be just as " telling " as far as determining the amount of scarring...and it

also gives

a good picture of the blood flow to your liver.

He does however like to do an upper GI once a year.

I would think if you feel fine, and are otherwise actively taking care of

yourself...you

could certainly put your thoughts about treatment lower on your list of

priorities for

now, and enjoy being a grandma!

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

April 16, 2008

To each person it is his own battle or struggle with Hep C. I opted for

treatment because I am 38 have 2 little adorable kids and I want to see them

graduate. My doc seems to lead me to believe it was a life or death situation if

I get the treatment and get the treatment now. I dont know if that was the truth

or not. I do am beginning to doubt some conventional treatments. But I am

pushing myself through this. Trying to be the best mom I can be which is my

priority right now. I get calls from work constantly would you come in do

admissions blah blah and it is all I can do to keep food on the table clothes

washed, clean house and 2 little boys happy. I Just cried to a financial aid

worker calling me about an old student loan for RN school. I told her I dont

know when I will be working again to start back on my nursing degree because of

my health I feel bad that I cant stop crying and feel bad when I say no to

people but I have to put my family first.

Back again

I have been diagnosed with Hep c 2-3 yrs ago. I have not done any

treatment. I feel fine. Now I find out I am going to be a grandma and

am wondering if I should start treatment or not. I havent had a biopsy

yet cuz I am chicken poop. If you felt fine would you have treatment? I

really need some input.

Thank you

April 17, 2008

Thank you for your input, it is exactly what I was thinking but

needed reassurance. Thanks for the congrats also.

Good health to you.

>

> I have had Hep C since I was 13 or possibly younger...my mother

thinks it was

> earlier,

> because I had significant changes in my health after I was stung by

a whole

> hive of

> bees when I was 6. I also had an emergency surgery around 13, and

that is

> where

> the doctors I have seen tend to place the blame. (never did any

drugs, or had

> tattoos,

> or piercings etc..)

>

> Genotype 1b, so I have not considered any treatments. Given the

possible

> side effects,

> I did not feel it would be beneficial enough to take the risk. And

I don't

> have a lot of

> negative symptoms to deal with..primarily fatigue and really dry

skin, slow

> digestion.

>

> There are so many things we can do on our own to keep ourselves

pretty

> healthy in

> spite of it, so that is where my focus is as far as " treatment "

goes.

>

> Traditional treatments are not cures..they only provide a remission

period.

> This was explained in great detail to me by my gastro. He believes

in

> treating

> EVERY patient regardless of their health or genotype. And he has a

few

> patients

> that have had undetectable viral loads for a few years...but none

that have

> cleared

> permanently.

>

> As far as the biopsy goes...I had one, and it wasn't difficult or

painfull or

> anything like that.

> It was a few years ago, but the doctor I have now doesnt like to do

them for

> fear of

> pushing surface pathogens into the organ system. (like staph) and

he finds

> ultrasound

> to be just as " telling " as far as determining the amount of

scarring...and it

> also gives

> a good picture of the blood flow to your liver.

> He does however like to do an upper GI once a year.

>

> I would think if you feel fine, and are otherwise actively taking

care of

> yourself...you

> could certainly put your thoughts about treatment lower on your

list of

> priorities for

> now, and enjoy being a grandma!

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

April 17, 2008

-Thank you for your input. It was helpful. I hope you feel better and

I wish you a long healthy life.

-- In Hepatitis C , <emily_sweethang@...>

wrote:

>

> To each person it is his own battle or struggle with Hep C. I opted

for treatment because I am 38 have 2 little adorable kids and I want

to see them graduate. My doc seems to lead me to believe it was a

life or death situation if I get the treatment and get the treatment

now. I dont know if that was the truth or not. I do am beginning to

doubt some conventional treatments. But I am pushing myself through

this. Trying to be the best mom I can be which is my priority right

now. I get calls from work constantly would you come in do admissions

blah blah and it is all I can do to keep food on the table clothes

washed, clean house and 2 little boys happy. I Just cried to a

financial aid worker calling me about an old student loan for RN

school. I told her I dont know when I will be working again to start

back on my nursing degree because of my health I feel bad that I cant

stop crying and feel bad when I say no to people but I have to put my

family first.

>

> Back again

>

> I have been diagnosed with Hep c 2-3 yrs ago. I have not done any

> treatment. I feel fine. Now I find out I am going to be a grandma

and

> am wondering if I should start treatment or not. I havent had a

biopsy

> yet cuz I am chicken poop. If you felt fine would you have

treatment? I

> really need some input.

> Thank you

>

April 18, 2008

Hearing everyone's stories is so helpful to me. I'm a

newbie to the group having found out I have Hep C last

year while I was pregnant with my daughter who just

turned one. I had a liver biopsy in January showing no

scarring but serious inflammation which my doc

believes will lead to scarring. I've opted to treat

over the summer but I do have second thoughts

sometimes. If it works and I do see SVR, how long will

the remission last? Is it worth the side effects of

the treatment seeing as I am healthy at this point?

I realize these are the same questions many probably

ask themselves.

Anyway, thanks to all for keeping this group going.

All the best,

--- Aprilcupcake@... wrote:

> I have had Hep C since I was 13 or possibly

> younger...my mother thinks it was

> earlier,

> because I had significant changes in my health after

> I was stung by a whole

> hive of

> bees when I was 6. I also had an emergency surgery

> around 13, and that is

> where

> the doctors I have seen tend to place the blame.

> (never did any drugs, or had

> tattoos,

> or piercings etc..)

>

> Genotype 1b, so I have not considered any

> treatments. Given the possible

> side effects,

> I did not feel it would be beneficial enough to take

> the risk. And I don't

> have a lot of

> negative symptoms to deal with..primarily fatigue

> and really dry skin, slow

> digestion.

>

> There are so many things we can do on our own to

> keep ourselves pretty

> healthy in

> spite of it, so that is where my focus is as far as

> " treatment " goes.

>

> Traditional treatments are not cures..they only

> provide a remission period.

> This was explained in great detail to me by my

> gastro. He believes in

> treating

> EVERY patient regardless of their health or

> genotype. And he has a few

> patients

> that have had undetectable viral loads for a few

> years...but none that have

> cleared

> permanently.

>

> As far as the biopsy goes...I had one, and it wasn't

> difficult or painfull or

> anything like that.

> It was a few years ago, but the doctor I have now

> doesnt like to do them for

> fear of

> pushing surface pathogens into the organ system.

> (like staph) and he finds

> ultrasound

> to be just as " telling " as far as determining the

> amount of scarring...and it

> also gives

> a good picture of the blood flow to your liver.

> He does however like to do an upper GI once a year.

>

> I would think if you feel fine, and are otherwise

> actively taking care of

> yourself...you

> could certainly put your thoughts about treatment

> lower on your list of

> priorities for

> now, and enjoy being a grandma!

>

> **************Need a new ride? Check out the largest

> site for U.S. used car

> listings at AOL Autos.

>

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

> [Non-text portions of this message have been

> removed]

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

April 18, 2008

I am a 50 yr old woman who contracted the Hep C during open heart operation in

1960. I have had the virus for over 46 years and didn't find out until last

year, through the American Red Cross. I had a liver biopsy and it can back at

stage 1 fibrosis (mild scaring). I decided to start treatment in Sept. 07. I

am going through the 48 week treatment. PegIntron .4 mm once a week injection

and 5 Ribetrol (Ribavirin 200MG) per day. I have the flu like symptoms and I

have the joint and muscle pain. I had extremely dry skin, brusing, hair loss

and no appetite. I decided treatment because of my age and the stage that I was

in. At the 6 month mark, the virus shows " undetected in the blood " ! That was

such great news. I still have to continue the treatment until August of 08.

Everytime I feel sorry for myself, I go to the St. Judes Children's network and

I realize how very blessed I am. I have lived over 1/2 of my lifetime, and it's

been a very good life. Some of those

kids won't make it to age 10. May god bless you. Please take care of

yourself. This is a very good support group.

Block <blockowitz@...> wrote: Hearing everyone's stories is

so helpful to me. I'm a

newbie to the group having found out I have Hep C last

year while I was pregnant with my daughter who just

turned one. I had a liver biopsy in January showing no

scarring but serious inflammation which my doc

believes will lead to scarring. I've opted to treat

over the summer but I do have second thoughts

sometimes. If it works and I do see SVR, how long will

the remission last? Is it worth the side effects of

the treatment seeing as I am healthy at this point?

I realize these are the same questions many probably

ask themselves.

Anyway, thanks to all for keeping this group going.

All the best,

--- Aprilcupcake@... wrote:

> I have had Hep C since I was 13 or possibly

> younger...my mother thinks it was

> earlier,

> because I had significant changes in my health after

> I was stung by a whole

> hive of

> bees when I was 6. I also had an emergency surgery

> around 13, and that is

> where

> the doctors I have seen tend to place the blame.

> (never did any drugs, or had

> tattoos,

> or piercings etc..)

>

> Genotype 1b, so I have not considered any

> treatments. Given the possible

> side effects,

> I did not feel it would be beneficial enough to take

> the risk. And I don't

> have a lot of

> negative symptoms to deal with..primarily fatigue

> and really dry skin, slow

> digestion.

>

> There are so many things we can do on our own to

> keep ourselves pretty

> healthy in

> spite of it, so that is where my focus is as far as

> " treatment " goes.

>

> Traditional treatments are not cures..they only

> provide a remission period.

> This was explained in great detail to me by my

> gastro. He believes in

> treating

> EVERY patient regardless of their health or

> genotype. And he has a few

> patients

> that have had undetectable viral loads for a few

> years...but none that have

> cleared

> permanently.

>

> As far as the biopsy goes...I had one, and it wasn't

> difficult or painfull or

> anything like that.

> It was a few years ago, but the doctor I have now

> doesnt like to do them for

> fear of

> pushing surface pathogens into the organ system.

> (like staph) and he finds

> ultrasound

> to be just as " telling " as far as determining the

> amount of scarring...and it

> also gives

> a good picture of the blood flow to your liver.

> He does however like to do an upper GI once a year.

>

> I would think if you feel fine, and are otherwise

> actively taking care of

> yourself...you

> could certainly put your thoughts about treatment

> lower on your list of

> priorities for

> now, and enjoy being a grandma!

>

> **************Need a new ride? Check out the largest

> site for U.S. used car

> listings at AOL Autos.

>

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

April 19, 2008

How wonderful to have the good news that your virus is undetectable! I

remember when I received the first report and it made it all worth while.

Best wishes for the rest of your tx weeks...August isn't that far away :-)

Dorothy

_____

From: Hepatitis C

[mailto:Hepatitis C ] On Behalf Of l williams

Sent: Friday, April 18, 2008 9:44 AM

Hepatitis C

Subject: Re: Back again

I am a 50 yr old woman who contracted the Hep C during open heart operation

in 1960. I have had the virus for over 46 years and didn't find out until

last year, through the American Red Cross. I had a liver biopsy and it can

back at stage 1 fibrosis (mild scaring). I decided to start treatment in

Sept. 07. I am going through the 48 week treatment. PegIntron .4 mm once a

week injection and 5 Ribetrol (Ribavirin 200MG) per day. I have the flu like

symptoms and I have the joint and muscle pain. I had extremely dry skin,

brusing, hair loss and no appetite. I decided treatment because of my age

and the stage that I was in. At the 6 month mark, the virus shows

" undetected in the blood " ! That was such great news. I still have to

continue the treatment until August of 08. Everytime I feel sorry for

myself, I go to the St. Judes Children's network and I realize how very

blessed I am. I have lived over 1/2 of my lifetime, and it's been a very

good life. Some of those

kids won't make it to age 10. May god bless you. Please take care of

yourself. This is a very good support group.

April 24, 2008

My doctor had the same opinion. Do this or else. You have to take it

day by day, minute by minute. Good luck with your treatment. I've been

there. A good habit to get into even after treatment, is drinking alot

of water! Flush that nasty stuff out of ya.

April 24, 2008

My doctor had the same opinion. Do this or else. You have to take it

day by day, minute by minute. Good luck with your treatment. I've been

there. A good habit to get into even after treatment, is drinking alot

of water! Flush that nasty stuff out of ya.

May 29, 2008

>

> I use to belong to this group, and am back again. I had great

success

> with the spinal stimulator (Medtronix) but got severe irritation from

> the generator in my buttocks. So they had to move it to the tummy

and

> it has never worked since then properly. I am going in next Thursday

> for " a revision " as the leads have moved. They will put in new

> wires/leads and a new generator. Here is hoping it works again as I

> got 50% relief the first time.

>

> Each of these 3 times have been as an out patient procedure.

requiring

> 30-40 stitches.

>

> -Anne

> SF Bay Area

>

doesnty sound like your having the best of times with you unit, i hope

your revission goes well and you finaly get the relief that you nees,

please keep in touch, get me at karloutram@...

karl xx

May 29, 2008

-Anne,

I am from the SF Bay Area also. Who is your doctor? Wouldnt it be a kick if we

had the same doctor? I live in Fairfield, but I see my doctor in Oakland or

Lafayette. I have also seen many other doctors throughout the bay area over the

last 6 years.

I had to have my leads adjusted also and it was a wonderful choice. The

stimulator kept grabbing my abdomen and rib area which was causing me more pain

than it was helping me.

Cant wait to hear where you are from and your doctors name.

Deanna

back again

I use to belong to this group, and am back again. I had great success

with the spinal stimulator (Medtronix) but got severe irritation from

the generator in my buttocks. So they had to move it to the tummy and

it has never worked since then properly. I am going in next Thursday

for " a revision " as the leads have moved. They will put in new

wires/leads and a new generator. Here is hoping it works again as I

got 50% relief the first time.

Each of these 3 times have been as an out patient procedure. requiring

30-40 stitches.

-Anne

SF Bay Area

June 24, 2008

Wonderful Molly, we miss you! Connie

-------------- Original message --------------

From: " mollynevarez " <mollynevarez@...>

I had just started back and hubby got sick . When he is sick he

requires care 24/7 , he is doing better now so hopefull i can be here

awhile now lol.

Molly : O )

June 24, 2008

Connie i have missed this wonderfull group of ladies also.

Molly : O )

>

> Wonderful Molly, we miss you! Connie

>

> -------------- Original message --------------

> From: " mollynevarez " <mollynevarez@...>

> I had just started back and hubby got sick . When he is sick he

> requires care 24/7 , he is doing better now so hopefull i can be here

> awhile now lol.

> Molly : O )

>

June 9, 2009

>

> It's been a while since I posted here, and I doubt many of you will remember

me, so I'll briefly recap.

>

> I've had ME for 21 years, beginning to suspect a thyroid problem 9 years ago.

I had the experience I am sure you all recognise, of being fobbed off and most

emphatically not helped by doctors, no matter how ill I was.

>

> Blood tests over the years showed my TSH rising and my T4 falling, until it

finally fell off the bottom of the scale and I found a doctor who agreed I was

hypoT & needed thyroxine.

t

HI Rosiebin

I do hope that this works for you but I feel I should let you know that I have a

similar problem to yours and also was told in 2003 by a doctor in Bolton that I

also had borrelia and co-infections and that was the reason I was ill and it

wasn't due to a severe thyroid/adrenal problem.

I therefore took various antibiotics and Samento for nearly a year but actually

got worse because my gut was completely messed up by all the antibiotics.

It turns out it was the worst thing I could have done because I was encouraged

to lower my steroid to 10mg day which was completely the wrong thing for me

because of my history and severe adrenal insufficiency and eventually literally

collapsed completely with 2 -type episodes.

Last year I had a recognised test called the MELISA test done through a German

lab to see if indeed I did have any borrelia and it came back completely

negative. I spoke to the doctor in charge of the lab and explained that

borrelia had been detected in my blood and she said that this just wasn't

legitimate at all because borrelia never lives in the blood, once bitten they go

off and lie undetected in various organs and body tissues. She told me to be

very wary of anybody who uses live blood microscopy to diagnose borrelia.

I completely recognise that some people do have Lymes disease and the symptoms

are very similar but I think its important to have a genuine test before one

goes down that route because my experience and that of many other ME sufferers

was that they went down an expensive and not pleasant route of long term

antibiotics which actually made us worse. That is not to say that you won't be

helped by this treatment because a very small nunmber of people are but I

thought I should let you know about my experience of this particular doctor and

I know I wasn't alone of having no benefit from the antibiotics and everybody

ended up with severe Candida like symptoms which I still have to a much lesser

degree.

Pam

June 9, 2009

I too saw the same doctor and had the live blood microscopy test

which showed I tested positive for borrelia - but never quite got the name of

the particular borrelia I had. I too was recommended Samento but never went so

far as the high dose antibiotics. I knew this was NOT my problem and also knew

that every single person who went to the same doctor tested positive for

borrelia. There was a long, long discussion with many members of the UK

About.com Thyroid forum at that time.