my update

December 17, 2007

Andy,

There is nothing anyone can say to you at this time to take your pain

and sadness away. It doesn't make sense to lose someone as young as

your son. Please know that you and your family are in my thoughs and

prayers during this most difficult time. I hope the good memories and

happy times you had with your son will comfort you in the coming days.

Love,

in NY

RE: My update

achalasia

> This was due to be an update of joy but its turned to complete

> sadness. My

> Son has been quite poorly with a bowel infection and had two

> months in

> hospital. Result being he had his colon removed and one of those

> Stoma bags

> fitted for his waste. He came out only 2 weeks ago fighting fit but

> yesterday morning was taken back to hospital with septicaemia -

> severe blood

> poisoning.

>

> He died at 3am this morning. He would have been 22 on Christmas

> Day which he

> shares with his Mum being born on her 21st. What a Christmas this

> is going

> to be. Is there any justice out there... You can imagine the tears

> at the

> moment.

>

> Andy

>

> Yorkshire, England

>

> My good news would have been that I have got an appointment for my

> Xylotomyin January, just 5 weeks away. God knows what state I will

> be in....

>

December 17, 2007

Kris

Thanks for your kind comments. I just don’t know what to

say about your position – I suppose the only plus point is that you have

some time to do things and go places etc etc. Our loss was just so sudden and

unexpected.

There is just no justice in the World...

Andy

From: The Kovalciks

[mailto:mkovalci@...]

Sent: 16 December 2007 13:21

achalasia

Subject: Re: RE: My update

Andy,

I am too a new member. My heart goes out to you over

the loss of your son, Chris. Losing a child is unbearable.

Unfortunately I will lose my daughter within the next year or so (she has

a progressive mitochondrial disease (www.caringbridge.org/visit/ellie)).

I am grieving over the loss already. Mito friends who have lost

their children all say to remember the good times, the smiles and the little

details of their person. Try not to dwell on the medical side of it.

My heart is broken for you...please let us know if there is

anything we can do for you, Andy. We're hear to listen and support.

God Bless,

kk

Kris Kovalcik

mkovalci@...

www.caringbridge.org/visit/ellie

www.umdf.org

On Dec 15, 2007, at 7:23 PM, Millie wrote:

Dear Andy,

I am a new member of this group and

just wanted to let you know that I will keep you and your family in my

prayers. I can partially understand your feelings as my son almost died 2

years ago from an infection on his heart valve.

Remember the good times and the fun

and laughter and joy of having him for 22 years, and don't be afraid to cry -

but don't dwell on the sorry remember the best times. Take care and don't

worry about celebration of the season, celebrate your son's life.

Millie - VA

Haigh <andy.haigh@...> wrote:

This was due to be an update of

joy but its turned to complete sadness. My Son has been quite poorly with a

bowel infection and had two months in hospital. Result being he had his colon

removed and one of those Stoma bags fitted for his waste. He came out only 2

weeks ago fighting fit but yesterday morning was taken back to hospital with

septicaemia – severe blood poisoning.

He died at 3am this morning. He

would have been 22 on Christmas Day which he shares with his Mum being born on

her 21st. What a Christmas this is going to be. Is there any justice

out there... You can imagine the tears at the moment.

Andy

Yorkshire, England

My good news would have been that

I have got an appointment for my Xylotomy in January, just 5 weeks away. God

knows what state I will be in....

Be a better friend, newshound, and

know-it-all with Mobile. Try

it now.

December 17, 2007

,

Your thoughts and comments seem to be the general idea and that

is to remember the good times of which there were many – I will take this

advice onboard and hopefully it will help me through the bad times of which I

am sure there will be a few, not too many though I hope.

Andy

From: tracylb@...

[mailto:tracylb@...]

Sent: 17 December 2007 00:59

achalasia

Subject: Re: RE: My update

Andy,

There is nothing anyone can say to you at this time to take your pain

and sadness away. It doesn't make sense to lose someone as young as

your son. Please know that you and your family are in my thoughs and

prayers during this most difficult time. I hope the good memories and

happy times you had with your son will comfort you in the coming days.

Love,

in NY

RE: My update

achalasia

> This was due to be an update of joy but its turned to complete

> sadness. My

> Son has been quite poorly with a bowel infection and had two

> months in

> hospital. Result being he had his colon removed and one of those

> Stoma bags

> fitted for his waste. He came out only 2 weeks ago fighting fit but

> yesterday morning was taken back to hospital with septicaemia -

> severe blood

> poisoning.

>

> He died at 3am this morning. He would have been 22 on Christmas

> Day which he

> shares with his Mum being born on her 21st. What a Christmas this

> is going

> to be. Is there any justice out there... You can imagine the tears

> at the

> moment.

>

> Andy

>

> Yorkshire, England

>

> My good news would have been that I have got an appointment for my

> Xylotomyin January, just 5 weeks away. God knows what state I will

> be in....

>

December 17, 2007

Dear Kris,

I am so sad to read this, I have two young children of my own and to

think of what you are going through just breaks my heart. My heart

truly goes out to you and to Andy also. I will keep you and your

beautiful daughter in my prayers.

Florida

> > This was due to be an update of joy but its turned to complete

> > sadness. My Son has been quite poorly with a bowel infection and

had

> > two months in hospital. Result being he had his colon removed

and

> > one of those Stoma bags fitted for his waste. He came out only 2

> > weeks ago fighting fit but yesterday morning was taken back to

> > hospital with septicaemia – severe blood poisoning.

> > He died at 3am this morning. He would have been 22 on Christmas

Day

> > which he shares with his Mum being born on her 21st. What a

> > Christmas this is going to be. Is there any justice out there...

You

> > can imagine the tears at the moment.

> > Andy

> > Yorkshire, England

> > My good news would have been that I have got an appointment for

my

> > Xylotomy in January, just 5 weeks away. God knows what state I

will

> > be in....

> >

> > Be a better friend, newshound, and know-it-all with

Mobile.

> > Try it now.

> >

>

January 27, 2008

Hey Izzie:

It sounds like your plate is very full right now. I'm glad for the most part

your back is better. The sitting for too long thing is hard. I can relate to

that one. As far as your hand goes that's a harder one. I'm not sure there is

much you can do for tendinitis...bummer.

Hoping your studying goes well and someone comes through with some books for

you. The insurance issue ticks me off. What are they waiting for?? You

certainly don't sound like you have great quality of life right now and if you

had insurance you could get some help and I can't understand what the problem

is. Keep hanging tough (to use Donna's motto). And you are absolutely right

about the spirituality that can get me through just about anything.

Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

my update

It's raining hard for san diego... lol.

My spine is much better than it was back in November however, it's proving

to be a consistent problem now in terms of added pain. My low back is having

major stiffness issues and if I sit the 'wrong' way, the pain will be quite

severe in my outter hips and low back. I guess that is the sciatica issue.

The MS contin masks over the pain so I can deal with it but when I have

breakthrough pain, that area is the first area to bother me. My mom was

helping me by lotioning my legs and when she would lift my right leg, the

back pain is quite significant and stiff. On top of that, my thumb ligament

palm area continues to be puffy and difficult. It's def. a ligament issue

and if i put pressure on it like press my thumb on something... the pain is

quite bad. The doctor last said it's tendonitis butthat doesnt mean much to

me in terms of what to do about it. I have all of my other pain but back,

neck and hands are proving to be the most annoying.

My medical situation is crazy. I have a lto of referals out there but

actually being able to get approvals to see the doctos is a whole different

story. I just dont have the energy to 'run' them down with repeated phone

calls. I haven't heard a word from SSI people and my lawyer said she will

write a letter to the judge asking for an update since the office hasn't

responded to phone calls. She mentioned the need to be cautious as we don't

want to 'anger the judge' so not sure what to make of all of that.

Right Now, I'm trying to get a hold of some books to prepare for the GRE

(Graduate record exam). I don't have the $$ to get them and I frequently see

people selling some study materials for GRE on Craigslist but so far, no one

has been willing to donate them. I guess I can understand that but I keep

trying because I just can't afford the prep programs and such. I hope that

depearment of rehabilitation will help me latter on but right now they are

not because they want me to try and find a job first to proove that i can't

work in it and need more education.. than they will look to help me with

graduate school. However if I go job hunting, I will screw up the SSI thing

which Department of Rehab also wanted me to apply for and thinks I should

get because they dont feel I can work under my current situation.

Contradiction much??? So I feel that well.. .at least on my part, I would

like to try and prepare for the GRE as best as I can on my own until I get

further assistance. If anyones knows anyone that has taken the GRE and has

study materials they might be willing to donate.. send them my way!!

The primary graduate program I'm looking at is the MSW or MSW/MPH which is

the Masters in Social Work and Masters in Public Health joint program both

at the very near by San Diego State University. The MSW program there is

well regarded and I don't know myu chances of acceptance there but it's my

primary goal as it's very close to me and an excellent program. My original

goal was to get my PhD in counseling psychology but due to my health and

many other things, I just don't feel this is a rational goal any longer.

This program doesn't put a major emphasis on the GRE but I need to do well

to have an overall excellent package to get accepted into one of these

programs. I still hven't settled on which one. Besides psychology, public

health is a major interest of mine as I took some classes as a undergrad and

absolutely loved it. Still, to do the joint program, it's a little longer in

time and more intense but might also make me happier than just the MSW alone

which Im still having some issues with. I want to be a psychotherapist but

ive never been a fan of social work because of politics. However, we have

those everywhere, right?

That's about all for now.. just trying to manage daily and pull myself up

out of this rather insane depression I have been fighting. I'm doing a lot

of work in behavioral activation and working on issues from childhood with a

therapist. It's a pain really but I feel that since I want to become a

therapist, I need all of the healing and closure that I can get in order to

be helpful/useful to others.

I'm working hard on my Spirtuality because I find much comfort and strength

there.

Izzie

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

January 28, 2008

Hey

could you get the GRE materials at the library or even some online? I

don't know- just thinking as I write?

Jinny (11 pauci)

On Sun, 27 Jan 2008 19:44:28 -0800 (PST) Beth Yohnk

<yohnkmom@...> writes:

> Hey Izzie:

> It sounds like your plate is very full right now. I'm glad for the

> most part your back is better. The sitting for too long thing is

> hard. I can relate to that one. As far as your hand goes that's a

> harder one. I'm not sure there is much you can do for

> tendinitis...bummer.

>

> Hoping your studying goes well and someone comes through with some

> books for you. The insurance issue ticks me off. What are they

> waiting for?? You certainly don't sound like you have great quality

> of life right now and if you had insurance you could get some help

> and I can't understand what the problem is. Keep hanging tough (to

> use Donna's motto). And you are absolutely right about the

> spirituality that can get me through just about anything.

>

> Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

>

> Sending prayers & happy thoughts,

> Beth :-)

>

> my update

>

> It's raining hard for san diego... lol.

>

> My spine is much better than it was back in November however, it's

> proving

> to be a consistent problem now in terms of added pain. My low back

> is having

> major stiffness issues and if I sit the 'wrong' way, the pain will

> be quite

> severe in my outter hips and low back. I guess that is the sciatica

> issue.

> The MS contin masks over the pain so I can deal with it but when I

> have

> breakthrough pain, that area is the first area to bother me. My mom

> was

> helping me by lotioning my legs and when she would lift my right

> leg, the

> back pain is quite significant and stiff. On top of that, my thumb

> ligament

> palm area continues to be puffy and difficult. It's def. a ligament

> issue

> and if i put pressure on it like press my thumb on something... the

> pain is

> quite bad. The doctor last said it's tendonitis butthat doesnt mean

> much to

> me in terms of what to do about it. I have all of my other pain but

> back,

> neck and hands are proving to be the most annoying.

>

> My medical situation is crazy. I have a lto of referals out there

> but

> actually being able to get approvals to see the doctos is a whole

> different

> story. I just dont have the energy to 'run' them down with repeated

> phone

> calls. I haven't heard a word from SSI people and my lawyer said she

> will

> write a letter to the judge asking for an update since the office

> hasn't

> responded to phone calls. She mentioned the need to be cautious as

> we don't

> want to 'anger the judge' so not sure what to make of all of that.

>

> Right Now, I'm trying to get a hold of some books to prepare for the

> GRE

> (Graduate record exam). I don't have the $$ to get them and I

> frequently see

> people selling some study materials for GRE on Craigslist but so

> far, no one

> has been willing to donate them. I guess I can understand that but I

> keep

> trying because I just can't afford the prep programs and such. I

> hope that

> depearment of rehabilitation will help me latter on but right now

> they are

> not because they want me to try and find a job first to proove that

> i can't

> work in it and need more education.. than they will look to help me

> with

> graduate school. However if I go job hunting, I will screw up the

> SSI thing

> which Department of Rehab also wanted me to apply for and thinks I

> should

> get because they dont feel I can work under my current situation.

> Contradiction much??? So I feel that well.. .at least on my part, I

> would

> like to try and prepare for the GRE as best as I can on my own until

> I get

> further assistance. If anyones knows anyone that has taken the GRE

> and has

> study materials they might be willing to donate.. send them my

> way!!

>

> The primary graduate program I'm looking at is the MSW or MSW/MPH

> which is

> the Masters in Social Work and Masters in Public Health joint

> program both

> at the very near by San Diego State University. The MSW program

> there is

> well regarded and I don't know myu chances of acceptance there but

> it's my

> primary goal as it's very close to me and an excellent program. My

> original

> goal was to get my PhD in counseling psychology but due to my health

> and

> many other things, I just don't feel this is a rational goal any

> longer.

> This program doesn't put a major emphasis on the GRE but I need to

> do well

> to have an overall excellent package to get accepted into one of

> these

> programs. I still hven't settled on which one. Besides psychology,

> public

> health is a major interest of mine as I took some classes as a

> undergrad and

> absolutely loved it. Still, to do the joint program, it's a little

> longer in

> time and more intense but might also make me happier than just the

> MSW alone

> which Im still having some issues with. I want to be a

> psychotherapist but

> ive never been a fan of social work because of politics. However, we

> have

> those everywhere, right?

>

> That's about all for now.. just trying to manage daily and pull

> myself up

> out of this rather insane depression I have been fighting. I'm doing

> a lot

> of work in behavioral activation and working on issues from

> childhood with a

> therapist. It's a pain really but I feel that since I want to become

> a

> therapist, I need all of the healing and closure that I can get in

> order to

> be helpful/useful to others.

>

> I'm working hard on my Spirtuality because I find much comfort and

> strength

> there.

>

> Izzie

>

> --

> " Life- Like the flutter of wings... feel your hollow wings

> rushing... " (AFI-

> Silver and Cold).

>

> my Flight in life is a metamorphosis of growth and this flutter of

> wings is

> within me awaiting to find a space to find it's flow...

>

January 28, 2008

It's a good idea...

I have gone to the library but the newer books are reference only and I

need to be able to write in them so I can work out the problems and stuff.

Know what I mean?

There are a few online sources but they aren't that great. I belong to one

but it's def. inaddequate. I belong to some applying to graduate school

communities on my Livejournal and several have asked and said the same thing

about the online places. I guess Kaplan and Princeton review have REALLY

cornered the market with their prep courses, books and such at extreme

prices but also manage to keep effective competition out of the market so I

assume this is why getting good prep is really quite difficult without them.

Thanks for the suggestions though.

Issadora

On Jan 28, 2008 5:10 AM, P Woods <woodsrp@...> wrote:

> Hey

> could you get the GRE materials at the library or even some online? I

> don't know- just thinking as I write?

> Jinny (11 pauci)

>

> On Sun, 27 Jan 2008 19:44:28 -0800 (PST) Beth Yohnk

> <yohnkmom@... <yohnkmom%40sbcglobal.net>> writes:

> > Hey Izzie:

> > It sounds like your plate is very full right now. I'm glad for the

> > most part your back is better. The sitting for too long thing is

> > hard. I can relate to that one. As far as your hand goes that's a

> > harder one. I'm not sure there is much you can do for

> > tendinitis...bummer.

> >

> > Hoping your studying goes well and someone comes through with some

> > books for you. The insurance issue ticks me off. What are they

> > waiting for?? You certainly don't sound like you have great quality

> > of life right now and if you had insurance you could get some help

> > and I can't understand what the problem is. Keep hanging tough (to

> > use Donna's motto). And you are absolutely right about the

> > spirituality that can get me through just about anything.

> >

> > Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines

> >

> > Sending prayers & happy thoughts,

> > Beth :-)

> >

> > my update

> >

> > It's raining hard for san diego... lol.

> >

> > My spine is much better than it was back in November however, it's

> > proving

> > to be a consistent problem now in terms of added pain. My low back

> > is having

> > major stiffness issues and if I sit the 'wrong' way, the pain will

> > be quite

> > severe in my outter hips and low back. I guess that is the sciatica

> > issue.

> > The MS contin masks over the pain so I can deal with it but when I

> > have

> > breakthrough pain, that area is the first area to bother me. My mom

> > was

> > helping me by lotioning my legs and when she would lift my right

> > leg, the

> > back pain is quite significant and stiff. On top of that, my thumb

> > ligament

> > palm area continues to be puffy and difficult. It's def. a ligament

> > issue

> > and if i put pressure on it like press my thumb on something... the

> > pain is

> > quite bad. The doctor last said it's tendonitis butthat doesnt mean

> > much to

> > me in terms of what to do about it. I have all of my other pain but

> > back,

> > neck and hands are proving to be the most annoying.

> >

> > My medical situation is crazy. I have a lto of referals out there

> > but

> > actually being able to get approvals to see the doctos is a whole

> > different

> > story. I just dont have the energy to 'run' them down with repeated

> > phone

> > calls. I haven't heard a word from SSI people and my lawyer said she

> > will

> > write a letter to the judge asking for an update since the office

> > hasn't

> > responded to phone calls. She mentioned the need to be cautious as

> > we don't

> > want to 'anger the judge' so not sure what to make of all of that.

> >

> > Right Now, I'm trying to get a hold of some books to prepare for the

> > GRE

> > (Graduate record exam). I don't have the $$ to get them and I

> > frequently see

> > people selling some study materials for GRE on Craigslist but so

> > far, no one

> > has been willing to donate them. I guess I can understand that but I

> > keep

> > trying because I just can't afford the prep programs and such. I

> > hope that

> > depearment of rehabilitation will help me latter on but right now

> > they are

> > not because they want me to try and find a job first to proove that

> > i can't

> > work in it and need more education.. than they will look to help me

> > with

> > graduate school. However if I go job hunting, I will screw up the

> > SSI thing

> > which Department of Rehab also wanted me to apply for and thinks I

> > should

> > get because they dont feel I can work under my current situation.

> > Contradiction much??? So I feel that well.. .at least on my part, I

> > would

> > like to try and prepare for the GRE as best as I can on my own until

> > I get

> > further assistance. If anyones knows anyone that has taken the GRE

> > and has

> > study materials they might be willing to donate.. send them my

> > way!!

> >

> > The primary graduate program I'm looking at is the MSW or MSW/MPH

> > which is

> > the Masters in Social Work and Masters in Public Health joint

> > program both

> > at the very near by San Diego State University. The MSW program

> > there is

> > well regarded and I don't know myu chances of acceptance there but

> > it's my

> > primary goal as it's very close to me and an excellent program. My

> > original

> > goal was to get my PhD in counseling psychology but due to my health

> > and

> > many other things, I just don't feel this is a rational goal any

> > longer.

> > This program doesn't put a major emphasis on the GRE but I need to

> > do well

> > to have an overall excellent package to get accepted into one of

> > these

> > programs. I still hven't settled on which one. Besides psychology,

> > public

> > health is a major interest of mine as I took some classes as a

> > undergrad and

> > absolutely loved it. Still, to do the joint program, it's a little

> > longer in

> > time and more intense but might also make me happier than just the

> > MSW alone

> > which Im still having some issues with. I want to be a

> > psychotherapist but

> > ive never been a fan of social work because of politics. However, we

> > have

> > those everywhere, right?

> >

> > That's about all for now.. just trying to manage daily and pull

> > myself up

> > out of this rather insane depression I have been fighting. I'm doing

> > a lot

> > of work in behavioral activation and working on issues from

> > childhood with a

> > therapist. It's a pain really but I feel that since I want to become

> > a

> > therapist, I need all of the healing and closure that I can get in

> > order to

> > be helpful/useful to others.

> >

> > I'm working hard on my Spirtuality because I find much comfort and

> > strength

> > there.

> >

> > Izzie

> >

> > --

> > " Life- Like the flutter of wings... feel your hollow wings

> > rushing... " (AFI-

> > Silver and Cold).

> >

> > my Flight in life is a metamorphosis of growth and this flutter of

> > wings is

> > within me awaiting to find a space to find it's flow...

> >

August 1, 2008

That's sound painfully and very unpleasant. Glad you saw your Dr. and are

getting it taken care of.

Thanks for posting a follow-up.

Gloria

August 1, 2008

Maybe you won't need surgery! I dislocated my kneecap in January, after

coming back from a tradeshow where I had walked miles and miles. I have

had a hip replacement on the other side, but had arthritis in the affected

knee.

The physical therapist came to my house every day for the first two weeks,

and then 3 days a week for 2 more weeks. I faithfully did my exercises and

it worked out fine - no surgery!! I still wear a strap on that knee but

otherwise no problem. I know how painful it is - sorry you have to go thru

this,

I wish you the best!

Barbara

> My knee cap is dislocating on the knee that was replaced on July 2..

> They took xrays and saw the knee dislocated.

> They wrapped my knee in ace bandages with a portable splint.

> I was told not to bend it till I see the Dr hopefully on Wednesday.

> I think it will need surgery. There has to be a reason why this is

> happening

> Well that is about it till I see the Dr

> Thank you so much for all your replies You all are so sweet

> Hugs

> Faye

>

August 2, 2008

wow faye, that is too bad about your knee. i worried about this

happening to me also. i had TKR on July 3rd and so far things are going

well. i am walking with a cane and my PT wants me to ditch that pretty

soon. i walk without it at home but need the support when i am out. I

still feel like i limp when I walk and i am trting to walk more

normally but I know with time it will happen. i wish you luck on your

recovery.

Louise in MN

From: Faye <mms.crazy1@...>

Subject: My Update

Joint Replacement

Date: Friday, August 1, 2008, 8:09 PM

My knee cap is dislocating on the knee that was replaced on July 2..

They took xrays and saw the knee dislocated.

They wrapped my knee in ace bandages with a portable splint.

I was told not to bend it till I see the Dr hopefully on Wednesday.

I think it will need surgery. There has to be a reason why this is happening

Well that is about it till I see the Dr

Thank you so much for all your replies You all are so sweet

Hugs

Faye

August 3, 2008

Wow Your Doing Great Wish That was me my knee replacement was jan..still have

pain feel like glass in knee, sounds like captain crunch when i bend it ...Tigs

From: Faye <mms.crazy1gmail (DOT) com>

Subject: [Total_Joint_ Replacement] My Update

Total_Joint_ Replacement

Date: Friday, August 1, 2008, 8:09 PM

My knee cap is dislocating on the knee that was replaced on July 2..

They took xrays and saw the knee dislocated.

They wrapped my knee in ace bandages with a portable splint.

I was told not to bend it till I see the Dr hopefully on Wednesday.

I think it will need surgery. There has to be a reason why this is happening

Well that is about it till I see the Dr

Thank you so much for all your replies You all are so sweet

Hugs

Faye

August 3, 2008

On 8/3/2008 2:40:26 PM, kimberly houghton (bouncingtiggger@...) wrote:

> Wow Your Doing Great Wish That was me my knee replacement was jan..still

> have pain feel like glass in knee, sounds like captain crunch when i bend

> it ...Tigs

Tigs

Have you had x-rays? One lady I knew had a similar thing and part of the

replacement had broken. What does your Dr. say?

Gloria

December 4, 2008

Ultraclear makes me pee right away & a lot so I assume it worksbut it is quite expensive in my view.AliOn Dec 4, 2008, at 7:49 PM, Donna Iler wrote:Just thought I would share my recent story. I have been taking 50 mg of iodine for about 4 months, with all the companion nutrients, had some detox for a week or so. I feel better in general, more energy, no change in weight or grey hair liked I had hoped. I upped my dosage to 75 mg 2 weeks ago since I had not had much in detox. I had a headache for 2 days, and developed a cough – would hit suddenly, and was kind of squeaky, and would produce wads of junk. This is my body’s way of sinus stuff it seems. About 11 years ago I had whooping cough, and since then instead of getting a runny or stuffy nose, it just drains into my lungs and I cough it up. That lasted almost the 2 weeks and has now stopped. No major changes in how I feel, just waiting for more healing. I can feel my liver, so need to do a cleanse. I bought the stuff for Hulda ’s, but just havent’ been able to take the time to take a day for feeling bad with the final clear out. I am thinking of getting the UltraClear Plus instead since it seems that it clears the liver without having to take special time. Am I right on that? Donna in IL

December 12, 2008

Dede, I wish u tons n tons of luck at ur disability hearing. Bummed that the SCS

didn't work for you. I am curious though... How did u find out about the spinal

fluid? Is of because yours is cervical? What tests did they run to discover the

fluid leak?

I have been getting these horrible unexplained headaches. Every other day to

everyday. They r excruciating and no amount of Meds are helping them. It hurts

my neck n my entire head. Kinda like migraines, but worse...they don't go away.

Just looking at possibilities for cause.

Thanks, Deanna

Sent from my iPhone

On Dec 12, 2008, at 4:25 PM, " dedecalfee " <dedecalfee@...> wrote:

Hello! I'm still fairly new - I haven't posted very much so far but I

usually read all of the postings I receive. I will be having surgery

this coming Wed., Dec. 17th. I had said in a previous posting that I've

had Spinal Fluid leaks and a collection of fluid in my cervical (neck)

area for more than two years. This was the result of trying to revise

the stimulator and the neurosurgeon just messed me up. I've had these

headaches and problems ever since but no one would even attempt to help

me. I'm in now with a Spinal Specialist below Atlanta, Ga. I have to

travel at least 4 hours to get there. He will be hopefully fixing the

leaks and I am having the stimulator left out. It has caused me more

trouble than it's been worth. This is my 4th surgery in 2 1/2 years

with the stimulator.

Also, I have finally gotten a date for my disability hearing. It

will be Jan. 13th. I am happy to have FINALLY gotten a date. It has

been such a long wait and am praying that this will work out for me.

I have had RSD for 3 years. A lot of the treatments I've received

haven't worked and I have to deal with crappy Pain Mgt. doctors & nurse

practitioners.

Thanks for being there!

December 13, 2008

Deanna, Your headaches sound a lot like mine. After enduring these for over 2

years, having to fight every step of the way to get someone to listen to me, it

finally came to light that spinal leaks were the culprit. I had a cervical

myelogram with 3-D imaging followed by a CT to evaluate for leaks. It was

extremely painful but the doctor told me that day that I had spinal leaks and a

pocket of fluid about the size of a golf ball. I know when there is a puncture

in the dura, it is natural to have a headache for a short time while it heals

up. However, not all of them heal up. I know after the myelogram was done, my

headaches were worse for a few days, then it went back to just being my " normal

horrific daily headache. " My leaks are being hidden from view by the leads.

That's the reason I have to have the leads removed to fix them. I've been

through so much with the surgeries, etc. that I feel like I can't take much more

and that's one reason I told him to

just leave everything out. I'm scared but I know The Lord will help me. My

headaches are better when I'm laying down, worse when I'm up. Sometimes my whole

head hurts even down the back of my neck. I take meds but they don't help. I'm

hoping that after I heal, they will get better. If you have these symptoms (and

I do know you can get headaches even if you've had the procedure in the lumbar

area), you may want to ask your doctor about it. If the symptoms aren't normal

and you know something's wrong, sometimes you have to keep after it until

someone listens. That's been my case. No one would listen. Eventually my stim

rep did and was able to get me in with Dr. Banit. I'm in the Chatt. area and no

other doctors wanted to even see me. Sorry to be so long but it really has been

a long battle. Good luck!!