my update

[Guest guest]

You know its crazy I have lived here all my life and have never been to Fan

fare. I have always wanted to go to Demos. I have heard such good things about

that restaurant. I just do not get downtown at all anymore. The only times I

have been down there in the last 10 years have been for the occasional class

when I was still working and when we took in a Titan's game.

Kim

Re: My update

Hey Kim, I am right above Chattanooga. I live in Cleveland, TN. but I always

use Chatt. as a reference point since most people are familiar with it. Good

to hear from you and know that you are at least somewhat close to me in

Tenn.

Hello! I'm still fairly new - I haven't posted very much so far but I

usually read all of the postings I receive. I will be having surgery

this coming Wed., Dec. 17th. I had said in a previous posting that I've

had Spinal Fluid leaks and a collection of fluid in my cervical (neck)

area for more than two years. This was the result of trying to revise

the stimulator and the neurosurgeon just messed me up. I've had these

headaches and problems ever since but no one would even attempt to help

me. I'm in now with a Spinal Specialist below Atlanta, Ga. I have to

travel at least 4 hours to get there. He will be hopefully fixing the

leaks and I am having the stimulator left out. It has caused me more

trouble than it's been worth. This is my 4th surgery in 2 1/2 years

with the stimulator.

Also, I have finally gotten a date for my disability hearing. It

will be Jan. 13th. I am happy to have FINALLY gotten a date. It has

been such a long wait and am praying that this will work out for me.

I have had RSD for 3 years. A lot of the treatments I've received

haven't worked and I have to deal with crappy Pain Mgt. doctors & nurse

practitioners.

Thanks for being there!

[Guest guest]

Glad to hear all is well!!!!

>

> Hey all - I am still out of town but am posting from my sisters computer in

WV. I had a barium swallow on thurs. and it shows my new E is nice and straight

and narrow. No real scarring or tightening at my anastamosis but there was some

narrowing at the opening in my diaphragm so I did get some dilating there but no

laser treatment was necessary. they did double up my prilosec for the next 3

months and I'm not sure why yet. I was still out of it when Dr. L's minion came

to talk about my scope so I emailed his office and should know something soon.

> otherwise, all is well.

>

> - in NC

> achalasia free since Jan. '08

>

[Guest guest]

Meghan

 

I had my implant on 6-60. Medicare will cover most of the cost. I have a

spreadsheet showing the charges and what Medicare and my secondary insurance

covered. Let me know if you want a copy as an attachment to an email.

 

Ken Fla

From: cdeafiem <itzhanson_fan@...>

Subject: my update

Date: Wednesday, August 26, 2009, 8:13 PM

 

Finally have Medicaid, and have copied the card and faxed it to Rocky Mountain

Ear Center. The surgeon's assistant is going to find out about the coverage and

whatnot for me, then from there, if Medicaid is definitely for sure covering the

implant, we should be able to schedule a surgery date.

Now I'm just wondering how long it'll take to hear whether or not Medicaid will

approve.. heh.

Meghan

http://cdm85. blogspot. com

[Guest guest]

Hi Ken,

How are you doing? Did your balance problems resolve?

Best regards,

Jim

>

>

> From: cdeafiem <itzhanson_fan@...>

> Subject: my update

>

> Date: Wednesday, August 26, 2009, 8:13 PM

>

>

>  

>

>

>

> Finally have Medicaid, and have copied the card and faxed it to Rocky Mountain

Ear Center. The surgeon's assistant is going to find out about the coverage and

whatnot for me, then from there, if Medicaid is definitely for sure covering the

implant, we should be able to schedule a surgery date.

>

> Now I'm just wondering how long it'll take to hear whether or not Medicaid

will approve.. heh.

>

> Meghan

> http://cdm85. blogspot. com

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

It's so wonderful to hear that you are doing so well!  Even better still what a

great relationship you have with the doc that implanted your scs. 

I am discouraged when I hear such poor judgment coming from Dr's such as your

GP.  It's not enough to suffer with acute pain everyday, you also have to fight

with some dr's about getting the relief you so need and deserve.  And now you

are burdened with having to find a new dr. on top of everything!  Preposterous!

My thoughts and warm wishes and prayers are with you.  You have my support!!!

~ Utah

________________________________

From: <radiant.salubrity@...>

Stimulator

Sent: Wed, October 21, 2009 2:02:32 AM

Subject: My Update

 

Hi All,

I had my 6 week check up today with my Dr since my implant was done.

He was very happy with everything. I told him probably not as happy as I have

been since the implant was turned on. I still have some residue pain over the

left hip area. We decided to wait another 3 months to see how it goes. If it

doesn't settle down he's going to " bling " me again.

He said seeing as I already have the hardware in place - now we just

" accessorise " I love my DR .........

After the trouble I have had with my local GP, he told me to go find another DR

..... the one I'm seeing shouldn't be allowed to practise medicine. My local GP

refused to give me any more pain medication because he said now I have the

stimulator implanted there was no need for any more medication and it would even

fix my Athritis pain as well. Needless to say I agree with my Stim Dr ......

Hope everyone is going well, your pain is at a managable level and your smiles

warm up the room.

Warm Cheers

[Guest guest]

Hey ,

Thank you for that. He is truly awesome.

My original Nuerosurgeon that I had that did most of my back ops for me

actually reffered me to him after he couldn't help me anymore. I must

admit that it is not often that you get a specialist that actually

admits he can't help you further and refers you onto someone that he

knows can. I considerr myself to have been very lucky in the specialists

that I have had. They have been so wonderful. My SCS Specialist has been

a source of inspiration for me. Even the day of the surgery I suffered a

severe migraine reaction to the pain killers they had given me in the pc

drug line. He came in at 2 am in the morning and sat with me until he

worked out what had caused the migraine and never left until it had

subsided. Turned out I was allergic to the pain killer. He administered

another pain killer and gave it to me every 20 mins until the migraine

stopped. I have a fantastic Eon rep as well. She is marvellous. I live

500 km's from the hospital where I had it done. When I had the break

through pain, she was the one that organised drugs for me through our

chemist because the local GP didn't believe the pain I was in. Just

unfortunate that the new GP I will be seeing is an extra 40km's away,

but he also is a wonderful guy. After alot of the stories I have heard

from people on here I consider myself to be very fortunate indeed. My

Eon rep is willing to talk to the new GP as well. The new GP is

extremley interested in the SCS, he has a few patients that he thinks

will benefit from it as well. I have agreed to be a support person for

people in the country area near me that may need any help or just to

have someone to talk to it about owing to the vast distance from Perth

to the country area where I live. I think when you have been through the

hammer mill so to speak, you can do so much by helping other people get

to a better situation in their lives as well. As Sue, one of the other

moderators on here says, If you have to tell your story a hundred times,

it doesn't matter, as long as you hope that 1 person may be helped from

it.

May I add it is nice getting to know you as well.

Warm Cheers

[Guest guest]

,

It's wonderful when you can allow the pain and disruption of a chronic pain

illness to actually bare fruit in another persons life.  I know that being a

support to someone else is something that makes me feel like I have a purpose

and all of the suffering isn't for nothing.  I know that to be true for me and

it's apparent by your response that it's your truth as well.

I too have an incredible team of physicians working with me.  I can't tell you

what a blessing it has been finding them.  My Dr. is so supportive and REAL!!! 

He is down to earth and doesn't blow happy smoke, he just say's like it is while

being compassionate and empathetic all the while.  His PA's and NP's are

outstanding!!!  I see them when I go in for my medication adjustments and

refills.  They are truly cream of the crop.

I do hope you have a lovely day, .  Thanks for responding and of course

it's a wonderful gift to get to know you as well.

~ Utah

________________________________

From: <radiant.salubrity@...>

Stimulator

Sent: Wed, October 21, 2009 8:46:33 AM

Subject: Re: My Update

 

Hey ,

Thank you for that. He is truly awesome.

My original Nuerosurgeon that I had that did most of my back ops for me

actually reffered me to him after he couldn't help me anymore. I must

admit that it is not often that you get a specialist that actually

admits he can't help you further and refers you onto someone that he

knows can. I considerr myself to have been very lucky in the specialists

that I have had. They have been so wonderful. My SCS Specialist has been

a source of inspiration for me. Even the day of the surgery I suffered a

severe migraine reaction to the pain killers they had given me in the pc

drug line. He came in at 2 am in the morning and sat with me until he

worked out what had caused the migraine and never left until it had

subsided. Turned out I was allergic to the pain killer. He administered

another pain killer and gave it to me every 20 mins until the migraine

stopped. I have a fantastic Eon rep as well. She is marvellous. I live

500 km's from the hospital where I had it done. When I had the break

through pain, she was the one that organised drugs for me through our

chemist because the local GP didn't believe the pain I was in. Just

unfortunate that the new GP I will be seeing is an extra 40km's away,

but he also is a wonderful guy. After alot of the stories I have heard

from people on here I consider myself to be very fortunate indeed. My

Eon rep is willing to talk to the new GP as well. The new GP is

extremley interested in the SCS, he has a few patients that he thinks

will benefit from it as well. I have agreed to be a support person for

people in the country area near me that may need any help or just to

have someone to talk to it about owing to the vast distance from Perth

to the country area where I live. I think when you have been through the

hammer mill so to speak, you can do so much by helping other people get

to a better situation in their lives as well. As Sue, one of the other

moderators on here says, If you have to tell your story a hundred times,

it doesn't matter, as long as you hope that 1 person may be helped from

it.

May I add it is nice getting to know you as well.

Warm Cheers

__________________________________________________

[Guest guest]

Wow,

It seems as if all is going well. Good luck with the waiting to do all the bits.

That can also be a bit frustrating, but definitely exciting! The end result is

worth it.

Altha

My Update

Hi everyone,Sorry I haven't posted in awhile. It has been so busy here. When I

went for the testing, they informed me that we had to do a hearing aid test, I

told them that my doctor said that i was beyond the help of hearing aids and

that they would not work. She then showed my husband and I the 3 different types

of Cochlear Implants and told us that we decided on the one we wanted. She also

gave me some pamplets with DVDs to watch. My husband and I decided on the

Nuecleus 5. The young lady that we met with told us that she needed to meet with

my doctor about whether or not we had to do the hearing aid test & balance test

since I have Vertigo and that she would get back with me. She contacted me about

a week later and said that the doctor was unable to meet with her due to a

family emergency so she gave the notes she took to his nurse and that she (the

nurse) would give it to him and that she (the nurse) would be contacting me to

let me know what he decides.

Well, the nurse contacted me this past Thursday (March 4) and said my doctor

has turned all my paperwork over to the surgeon that will be doing the surgery

for the Cochlear Implant and that his office will be contacting me to set up an

appointment. so now I am just waiting to hear from the surgeons office. I am

wondering now if they will bypass both the hearing aid & balance test, and go

ahead and schedule the CT Scan, then the surgery.

Once I find out, I will let you all know.

[The entire original message is not included]

[Guest guest]

I can remember the waiting with my husband also.  His doctor kept telling him

it wasn't time to get the CI done.... then finally out of the blue, when we went

in for a visit, he said that if that was what we wanted to have done, he would

send us for the evaluations, and have the MRI done.  He was a candidate, and

now after two CI's, we say that he has bionic ears.....  it has made such a

change in his life being able to hear and communicate with everyone.

 

 

From: Altha Reinecke <altha.reinecke@...>

Subject: RE: My Update

Date: Sunday, March 7, 2010, 10:01 PM

 

Wow,

It seems as if all is going well. Good luck with the waiting to do all the bits.

That can also be a bit frustrating, but definitely exciting! The end result is

worth it.

Altha

My Update

Hi everyone,Sorry I haven't posted in awhile. It has been so busy here. When I

went for the testing, they informed me that we had to do a hearing aid test, I

told them that my doctor said that i was beyond the help of hearing aids and

that they would not work. She then showed my husband and I the 3 different types

of Cochlear Implants and told us that we decided on the one we wanted. She also

gave me some pamplets with DVDs to watch. My husband and I decided on the

Nuecleus 5. The young lady that we met with told us that she needed to meet with

my doctor about whether or not we had to do the hearing aid test & balance test

since I have Vertigo and that she would get back with me. She contacted me about

a week later and said that the doctor was unable to meet with her due to a

family emergency so she gave the notes she took to his nurse and that she (the

nurse) would give it to him and that she (the nurse) would be contacting me to

let me know what he

decides.

Well, the nurse contacted me this past Thursday (March 4) and said my doctor has

turned all my paperwork over to the surgeon that will be doing the surgery for

the Cochlear Implant and that his office will be contacting me to set up an

appointment. so now I am just waiting to hear from the surgeons office. I am

wondering now if they will bypass both the hearing aid & balance test, and go

ahead and schedule the CT Scan, then the surgery.

Once I find out, I will let you all know.

[The entire original message is not included]

[Guest guest]

Well, the surgeon's ofc called and scheduled my first appt for April 7. They

told my husband for us to expect to be there for atleast 3 hours. They said

they would mail me some forms to fill out and also explaining what to expect on

that day. They called last week and I haven't gotten the paperwork yet.

Can anyone tell me what happened on their first day with the surgeon?

>

>

> From: Altha Reinecke <altha.reinecke@...>

> Subject: RE: My Update

>

> Date: Sunday, March 7, 2010, 10:01 PM

>

>

>  

>

>

>

> Wow,

>

> It seems as if all is going well. Good luck with the waiting to do all the

bits. That can also be a bit frustrating, but definitely exciting! The end

result is worth it.

>

> Altha

>

> My Update

>

> Hi everyone,Sorry I haven't posted in awhile. It has been so busy here. When I

went for the testing, they informed me that we had to do a hearing aid test, I

told them that my doctor said that i was beyond the help of hearing aids and

that they would not work. She then showed my husband and I the 3 different types

of Cochlear Implants and told us that we decided on the one we wanted. She also

gave me some pamplets with DVDs to watch. My husband and I decided on the

Nuecleus 5. The young lady that we met with told us that she needed to meet with

my doctor about whether or not we had to do the hearing aid test & balance test

since I have Vertigo and that she would get back with me. She contacted me about

a week later and said that the doctor was unable to meet with her due to a

family emergency so she gave the notes she took to his nurse and that she (the

nurse) would give it to him and that she (the nurse) would be contacting me to

let me know what he

> decides.

>

> Well, the nurse contacted me this past Thursday (March 4) and said my doctor

has turned all my paperwork over to the surgeon that will be doing the surgery

for the Cochlear Implant and that his office will be contacting me to set up an

appointment. so now I am just waiting to hear from the surgeons office. I am

wondering now if they will bypass both the hearing aid & balance test, and go

ahead and schedule the CT Scan, then the surgery.

>

> Once I find out, I will let you all know.

>

> [The entire original message is not included]

>

>

[Guest guest]

Hey there...

It seems you are right behind me.

I met my Surgeon who is a darn busy guy.  He had ana ssistant come in and ask

me a few medical questions.  then the sugeon came in asked  e about prior

surgeries and do i want an implant, I said yes.  he confirmed I qualified and

that my CT and MRI were good and he see's no problems arising.  I was asked

aobut my vertigo and menieres .   Nothing really Drastic.  then I was taken

to my audiologist where she put all 3 Implants on her desk and talked aobut

them.  Advanced Bionics, medEl and Cochlear.  She says all 3 work very good. 

You select the one and color you want  i spent 2 hours there.

My appt Friday is coming up and this is with the Surgeon again.  I also will

meet the Anestheologist (SP)  I take the paper that confirms I ahd the

vaccination  needed for the surgery.  I imagine he will talk aobut the

surgery.  What to expect.

Don't be afraid.  It won't hurt when you meet your surgeon.

Have a great day!

Debbie Cole

From: shawna <cherokee0897@...>

Subject: Re: My Update

Date: Tuesday, March 16, 2010, 1:21 PM

 

Well, the surgeon's ofc called and scheduled my first appt for April 7.

They told my husband for us to expect to be there for atleast 3 hours. They

said they would mail me some forms to fill out and also explaining what to

expect on that day. They called last week and I haven't gotten the paperwork

yet.

Can anyone tell me what happened on their first day with the surgeon?

>

>

> From: Altha Reinecke <altha.reinecke@ ...>

> Subject: RE: My Update

> groups (DOT) com

> Date: Sunday, March 7, 2010, 10:01 PM

>

>

>  

>

>

>

> Wow,

>

> It seems as if all is going well. Good luck with the waiting to do all the

bits. That can also be a bit frustrating, but definitely exciting! The end

result is worth it.

>

> Altha

>

> My Update

>

> Hi everyone,Sorry I haven't posted in awhile. It has been so busy here. When I

went for the testing, they informed me that we had to do a hearing aid test, I

told them that my doctor said that i was beyond the help of hearing aids and

that they would not work. She then showed my husband and I the 3 different types

of Cochlear Implants and told us that we decided on the one we wanted. She also

gave me some pamplets with DVDs to watch. My husband and I decided on the

Nuecleus 5. The young lady that we met with told us that she needed to meet with

my doctor about whether or not we had to do the hearing aid test & balance test

since I have Vertigo and that she would get back with me. She contacted me about

a week later and said that the doctor was unable to meet with her due to a

family emergency so she gave the notes she took to his nurse and that she (the

nurse) would give it to him and that she (the nurse) would be contacting me to

let me know what he

> decides.

>

> Well, the nurse contacted me this past Thursday (March 4) and said my doctor

has turned all my paperwork over to the surgeon that will be doing the surgery

for the Cochlear Implant and that his office will be contacting me to set up an

appointment. so now I am just waiting to hear from the surgeons office. I am

wondering now if they will bypass both the hearing aid & balance test, and go

ahead and schedule the CT Scan, then the surgery.

>

> Once I find out, I will let you all know.

>

> [The entire original message is not included]

>

>

[Guest guest]

Hi Bee,

For the past two months I have been making slow but steady progress with the

diet. Presently I have one egg drink a day and can tolerate about 2-3 Tbsp of

coconut oil. Then for dinner I usually have a meat, vegetable and some evoo on

it. This is all I can stand right now. I am almost up to getting all the

supplements in. Nausea is my main stumbling block. So, I've been taking it

slow. I've done this program before, but this time is so much harder. I crave

carbs constantly. It was suggested to me before to do the 9 day program. But,

I guess I feel overwhelmed by that. Maybe it is what I need, I don't know. My

question has to do with bowel movements. I rarely have one anymore. I'm not

bloated nor is my stool hard. It's just I think I've been going 1-2 weeks

without going, and really it's nothing big. I keep looking at the info on the

enemas and that's overwhelming for me, too. There's mental hurdle for me there,

not to mention the lack of privacy in my home. Any encouragement would be

appreciated.

Thank you for all your help, Bee and moderators.

Kathy

[Guest guest]

>

> Hi Bee,

> For the past two months I have been making slow but steady progress with the

diet. Presently I have one egg drink a day and can tolerate about 2-3 Tbsp of

coconut oil. Then for dinner I usually have a meat, vegetable and some evoo on

it. This is all I can stand right now. I am almost up to getting all the

supplements in. Nausea is my main stumbling block. So, I've been taking it

slow. I've done this program before, but this time is so much harder. I crave

carbs constantly. It was suggested to me before to do the 9 day program. But,

I guess I feel overwhelmed by that. Maybe it is what I need, I don't know. My

question has to do with bowel movements. I rarely have one anymore. I'm not

bloated nor is my stool hard. It's just I think I've been going 1-2 weeks

without going, and really it's nothing big. I keep looking at the info on the

enemas and that's overwhelming for me, too. There's mental hurdle for me there,

not to mention the lack of privacy in my home. Any encouragement would be

appreciated.

+++Hi Kathy,

To curb your carb cravings do some of these things:

http://www.healingnaturallybybee.com/articles/help3.php

Since you are not taking all of the supplements yet, it will make a big

difference when you do.

It is also important that you eat " enough food " so maybe 2 meals per day isn't

enough.

When you get nauseated take 1/4 teaspoon of baking soda mixed in non-chlorinated

water and sip it until your nausea subsides. You might also consider taking

ipeca homeopathic pills available in most health stores; take them according to

the directions (taking more doesn't help so be cautious).

Maybe you are taking too much coconut oil so I suggest you cut back on it and

take more time to increase it. There's no race to get up to the recommended

amount since it is UP to your body and how much it can handle.

I understand your back-off on doing enemas since I had such a block my Mother

had to administer my first one. After that I found it was easy to do them on my

own.

The 9-Day Program includes all liquid and pureed foods for 2 days which are so

much easier on your digestion. I suggest you only have those foods for awhile

and not do the enemas.

Some people need to be on all liquid and pureed foods for a very long time, but

it can make a big difference for digestive issues like you have. I knew a lady

in my Candida Support Group in 1987 who had to have them for 1 year.

All the best, Bee