working

[Guest guest]

Hey ,

I know I've been really quite for a long time. Always so busy with uni

and such. Just finished this semester now, so got a couple of months

off. Yey! Maybe I'll actually post a bit here again. Andy (my bf) is

great. I don't know if I've mentioned it before, but we're getting

married this summer, July 6th (also having a handfastening on

Midsummer's Eve).

When did you first find out you were a psychic? As a healer, do you work

with visualization as I guess SMA gets in the way of a more physical

approach? How many helpers (spiritual ones) do u have? I find such

things so fascinating!

MM

Gunn (aka Misty)

[Guest guest]

On 26 May 2002, at 23:09, Gunn Aas wrote:

> I don't know if I've mentioned it before, but we're getting

> married this summer, July 6th (also having a handfastening on

> Midsummer's Eve).

Hi Gunn

Are your wedding plans all coming together nicely? What's a

handfastening? I haven't heard of that before.

TuftySue

Wanna E Me? sue@...

Wanna See Me? http://www.tuftysue.co.uk

[Guest guest]

Hey Sue,

The wedding-plans are going well. Only a bit over å month to go now! A

handfastening is a pagan wedding seremony/ritual. For me this will in

many ways be my true wedding, tho not in the eyes of the law..

BB

Gunn (Aka Misty)

[Guest guest]

hmmm let me look into this Tufty, I feel an ass kicking coming on!! Ill get

some facts for you but you see as well as my own 'proper' job I work at

UNISON (dont mess with me in in a union!) so i can get access to stuff about

law and entitlement which i will get to you. I cant see that they can

discriminate just because u want and need to be self employed. Ill be in

touch. Also, have you contacted the erm Princes Trust?? I know people have

found them very helpful and supportive to disabled people wanting to set up

business on their own.

Take care

xx

[Guest guest]

Hi

Things are slowly progressing with my business but the Job Centre or

should I say the DEA there isn't being much help. When I had my

first appointment with her she told me all about Access To Work,

Disabled Tax Credit, other funds they have that could help me get

into work etc but now I actually need money she says I don't

qualify. She told me they paid for a woman's driving lessons and

test so she could become a mobile hair dresser. I asked for money

to pay for advertising, business cards, phone calls, webspace, that

kind of thing but they said they don't have funds to " set up " businesses.

They obviously has something if they will pay for driving lessons!

> Also, i wanted to add in on this just so you know what ur

> entitled to, Access to work (make contact thru the job centre) can help out

> both financially (they pay for my PA to assist me in the loo at lunchtime and

> take me to and from work) and in buying equipment. So if you need a brand

> spanking new scanner for ur business then go forth and apply!!

I do need a new computer (this is old and slow) and I was lead to believe

I would be able to get that kind of equipment thru ATW but because I am

going to be self employed they seem to change the rules. I obviously can't

work without a decent PC, so what am I supposed to do?

Do you know all the rules for Access To Work? Do self employed people

have the same rights as people working for a somebody else?

TuftySue

Wanna E Me? sue@...

Wanna See Me? http://www.tuftysue.co.uk

[Guest guest]

Debby,

This is a problem a lot of us face, having to give up a career in order

to take care of our children with disabilities. That is part of the reason

that teaching appeals to me. Because the schedule would coincide with my kid's.

Otherwise who will be there to watch Brook after school, summer, winter break,

spring break, etc. I used to be the office manager of a pediatric group for

9 years before Brook was born and had to quit to take care of all of his

needs. Can you hire someone to watch Jordan after school for you? I hope you

can

work it out so that you can both get what you need. I wonder if someone would

start an after school program for kids with disabilities how that would work

out? There is definitely a need there. There aren't enough of those around.

Marisa,

Miles 16, Brook 13, Genevieve 5

[Guest guest]

Marisa,

Funny you should mention after school program for kids with

disabilities... my ds support group coordinator was talking about that at

our last meeting. She wants to become certified with the county. I've

offered to assist in any way I can. I also sent her a long email last

night regarding some ideas I have on a non-profit org for us. She is on

vacation at the moment. I can't wait until she gets back to see if she

is interested in moving on some of the ideas.

- thanks, debby

___________________________________________________________________--

Debby,

This is a problem a lot of us face, having to give up a career in

order

to take care of our children with disabilities. That is part of the

reason

that teaching appeals to me. Because the schedule would coincide with my

kid's.

Otherwise who will be there to watch Brook after school, summer, winter

break,

spring break, etc. I used to be the office manager of a pediatric group

for

9 years before Brook was born and had to quit to take care of all of his

needs. Can you hire someone to watch Jordan after school for you? I

hope you can

work it out so that you can both get what you need. I wonder if someone

would

start an after school program for kids with disabilities how that would

work

out? There is definitely a need there. There aren't enough of those

around.

Marisa,

Miles 16, Brook 13, Genevieve 5

[Guest guest]

,

Everyone recovers at different rates. Some folks have been able to

return to work after a week or so and others a bit longer.

As for hearing on the phone after surgery.. If you are only having

one ear implanted, you will still have the other ear for the phone.

I'm not saying for sure, but since you still do talk on the phone..

let the audiologist and surgeon know this... they may implant your

worst ear and you would be able to talk on the phone with the good

ear between surgery and activation.

I only have one ear implanted and that ear lost all it's residual

hearing after the surgery. I didn't have much hearing in my other

ear though so wasn't able to use a hearing aid for that.

Be sure to write these questions down and present them to the ci

audiologist or surgeon.

Hope this helps some.

Hugs

Silly MI

In , " nnjl97 " <nnjl97@y...> wrote:

> Please bear with these what may sound like stupid questions, but

> honestly can help me when/if to have the ci.. How long have you had

> to

> stay out of work when this is done? I am guessing that between the

> time

> of the surgery and the time of activation you have no hearing. My

job

> is working on the telephone and if I am not able to do that for a

> while

> then I need to let my company know asap so they can make other

> arrangements. I do not work July and August, but many have told me

> not

> to wait that long to have it done. Of which I agree.. But I also

> cannot

> afford to risk my job by not being able to work. Right now the

> ampliphied telephone helps mostly. Though the stress is quite

high.

> Many thanks for all your help.

>

[Guest guest]

Hi,

I had my surgery on September 28 and was hooked up on October 26. I couldn't

work during that time because I couldn't hear enough to teach. I went back to

work around the second week in November so all told I was out about 6 weeks.

Save those sick days folks!! LOL

Working

Please bear with these what may sound like stupid questions, but

honestly can help me when/if to have the ci.. How long have you had

to

stay out of work when this is done? I am guessing that between the

time

of the surgery and the time of activation you have no hearing. My job

is working on the telephone and if I am not able to do that for a

while

then I need to let my company know asap so they can make other

arrangements. I do not work July and August, but many have told me

not

to wait that long to have it done. Of which I agree.. But I also

cannot

afford to risk my job by not being able to work. Right now the

ampliphied telephone helps mostly. Though the stress is quite high.

Many thanks for all your help.

[Guest guest]

In a message dated 8/12/2006 5:06:27 A.M. Eastern Standard Time,

adelem@... writes:

a job that will not add further stress to my brain. Hmmm.does one like this

exist?

DP....

HA... you let me know when you find it, ok? I wanna work there too! I

think you're right as far as you stress level going up because all you've been

doing is dealing with kids & the OCD over the summer. I'm sure that would

stress anyone out. Hopefully your son won't have a problem starting up school

&

it will give you a little break.

I quit my part time job when things started getting bad for my daughter.

Our evenings were SO bad, I couldn't get anything done. That's what was so

hard for me. Then I would leave for work the next day & the house was a mess,

laundry still wasn't done, etc. I would have to stay up until past midnight

to getting anything substantial done around the house because every minute my

daughter was up was spent on her, showering, bathroom, getting pjs on, etc

etc. The stress on our (husband & me) relationship was outrageous too. By the

time I was done with DD, there was NOTHING left for us (emotionally,

physically, etc) I was in melt-down mode myself.

Anyway, that's why I quit. Of course, my dd is doing much better on meds

now & I probably could go back to work part time. I may do just that when the

school year starts up, as most my friends work & I know I'll be bored in a

matter of weeks just rattling around the house -- there's only so many projects

you can do, you know?

One suggestions, if you have any office skills - check with local real

estate agencies. I've been in & out of that business for 6-7 years now in

several

different positions - Office Runner, Agent Assistant, & most recently as

Marketing Director (<---- sounds big & important, but I just placed ads in the

paper, photographed new listings & made up the brochures on the computer).

What I liked about the industry is that the agents are VERY flexible as far as

hours & days. Most are also very understanding about family issues & if you

need a day off, it's rarely a problem. My hours were always around my kids

schedules - left for work after they were on the bus & was home before they

were. It would be a good choice for a job for anyone looking for part time.

You don't make a fortune at it, but it's a pay check.

LT

[Guest guest]

Hi Jill,

I work 8-5, Mon-Fri, and going to work was like a...vacation? break?

from home & OCD. I mean, even if were at school and I was

home (so we were apart), I think going to work would still have been

like a brief respite. Not that I wasn't talking to one of my friends

at work about OCD/, logging onto this site at lunch, looking

at OCD stuff on the web at lunch...but it kept me sane I think.

Also, I work as an office assistant in the Developmental Disabilities

dept. there and the case managers work with families, which I type

about for them, and some have far worse problems/burdens than I have

with dealing with OCD. So it helped me keep things in perspective

and count my blessings too. Didn't help when was going thru

some 1,2,3 hour episode at home, we were trying to get homework done,

I was more exhausted some days, or I was wanting to go to bed that

night and he was keeping me up, knowing I had to get up for work,

LOL, but overall having " work " to go to was " good " for me.

So, just my thoughts on it. But this is looking " back " at the worst

times, which, thankfully, we have passed and I'm not in the middle of

it anymore. has been doing well overall and I'm still

working (tho looking at other jobs with all the changes going on

where I work - NC's mental health reform!).

>

> I am struggling with the decision to go back to work. I know I am

very fortunate in that this is a matter of choice rather than of

great neccesity. I am a social worker and have been home with my

children for the past 4 years.

[Guest guest]

Hi Barbara

$7.75 per hour!!!!!!!!!!!!!!!!!!!!!!!!!!!!! That is chicken feed for you.

I do think you will find the sitting down all the time hard to take. My

doctor's wanted me to be sitting or standing no more than 15- 20 minutes at

a time.

We will keep you in prayer and hopefully your disability and SSI will come

through very quickly.

Fr. Dave

[Guest guest]

Dear Fr. Dave,

Well, for someone that doesn't have an education such as a college

degree and I only have a GED, it in reality it is not bad. That is

above what min. wage is which happens to be 5.15 an hour. And besides

I haven't worked in nearly a year, so I will take it. They did tell me

that if I seem to be a fast learner that they would increase my rate of

pay. Great motivation there.

Barbara

[Guest guest]

well hopefully after treatment ends you will get your ability to concentrate back!Jurydoctor@... wrote: In a message dated 9/29/2007 5:25:55 AM Eastern Daylight Time, Hepatitis C writes: Good luck to you - you've made it half way and that's a lot to be proud of.Are you working? _______________ nope, I am a psychologist and can't really concentrate. Amy See what's new at AOL.com and Make AOL Your Homepage. Jackie

[Guest guest]

Oh I so wish that for everyone who has had to suffer through these treatments,,, Im still waiting to get mine back,, lol,, its only been 4 1/2 years...Jurydoctor@... wrote: from your mouth to G-d's ears. amy In a message dated 9/30/2007 5:31:42 AM Eastern Daylight Time, Hepatitis C writes: working Posted by: "Jackie on"

redjaxjm redjaxjm Date: Sat Sep 29, 2007 1:23 pm ((PDT))well hopefully after treatment ends you will get your ability to concentrate back! See what's new at AOL.com and Make AOL Your Homepage. Jackie

[Guest guest]

Hello Rhonda, You can amend that IEP. Have a meeting even the week before school starts.

Do not leave that meeting without a copy of the IEP. Don't wait to be mailed.

As parents are a part of the team decision and make sure all goals are what you intend for

her curriculum to be worked on. If fieldtrip or work day is out in public, deny it. Request

for her to stay at the school and work on her curriculum (not babysitting).

Make sure in IEP goals each subject is broken down to exactly what they should be working on.

Ex. Math count by 5's up to the #100.

Goals to include self help skills, sp, use of aug. device, ABLLS-R items if not completed,

gross motor, & etc. Hope this helps.

Y

From: Rhonda Irvin <rhondarvn@...>autism Sent: Thursday, July 2, 2009 4:57:34 PMSubject: WORKING

Hi,

I have a questions for families that their child is out of high school.. Does your autistic child hold a job? Maddie is turning 14 this month, and during her IEP in May we had to do the transition section fo her IEP. Well, and I said at this time we can't see Maddie holding a job - she is just too unstable and inconsistent. (She is diagnosed with moderatet/severe MR, autism, and now bipolar which we still don't have 100% under control - bad evening so far). The school will not listen to me - all they keep going on about is how they can get her to get a job and make money. First off, we didn't adopt Maddie for her to make money for us.. Second, I think putting her in the work environment is going to make my life more complicated trying to deal with all the unknowns, etc. The school says I'm not being realistic, but I'm the one thinking they aren't being realistic. I got a copy of the IEP in

the mail and under her goal for transition they listed parents want Maddie to get employment - sigh:( I wanted listed that we would continue to work on educational goals such as reading, money, telling time, etc (stuff she would use in day to day life) and to work on life skills to help her live as independently as possible.

Thanks.

Rhonda

[Guest guest]

In the little town that my mom lives there is a girl that has moderate MR and downs. She takes specialized transport to a local boutique/ tourist shop where she folds their shirts and lines up all the bottles and item etc. She loves having a job she is 30+ and still lives at home with her parents and goes into work a few hours everyday. It gives the parents some time off and also allows the child to be more independent. I think it gives them something to do and something they fill like they are accomplishing.

Holly

From: Rhonda Irvin <rhondarvn@...>Subject: WORKINGautism Date: Thursday, July 2, 2009, 5:57 PM

Hi,

I have a questions for families that their child is out of high school.. Does your autistic child hold a job? Maddie is turning 14 this month, and during her IEP in May we had to do the transition section fo her IEP. Well, and I said at this time we can't see Maddie holding a job - she is just too unstable and inconsistent. (She is diagnosed with moderatet/severe MR, autism, and now bipolar which we still don't have 100% under control - bad evening so far). The school will not listen to me - all they keep going on about is how they can get her to get a job and make money. First off, we didn't adopt Maddie for her to make money for us. Second, I think putting her in the work environment is going to make my life more complicated trying to deal with all the unknowns, etc. The school says I'm not being realistic, but I'm the one thinking they aren't being realistic. I got a copy of the IEP in

the mail and under her goal for transition they listed parents want Maddie to get employment - sigh:( I wanted listed that we would continue to work on educational goals such as reading, money, telling time, etc (stuff she would use in day to day life) and to work on life skills to help her live as independently as possible.

Thanks.

Rhonda

[Guest guest]

Hi,I don't have an asd child this age, mine is 7 but I used to work in spec ed and I can tell you why they push "work"(at least from my experience here is a CA school) The workshops for dev. disabled kids have work that most kids, no matter what their challenge, can do. For that "work" they are paid a certain amount per hour. The way they used to figure wage was: the amount of work that a nt would do for that wage compared to the amount of work that the dd client could do. You divide one into the other and get a % of the work, and then a % of the wage (which cannot go below a certain amount which is different for each state). The idea is that after high school (which in CA is 22) kids will transition to workshops. They will no longer be in an educaational setting. So the school sets up a "transition

plan" That plan sets goals for the student to reach in increments so they will be able to transition to a workshop. In your IEP you can still make sure they set up time for instructional educational assistance, but they will also encourage you to begin thinking about "beyond high school". Depending on how your daughter transitions, they may be concerned to begin the transition sooner so it is not such a difficult time for her once she graduates. If she has several years to think about workshop and gets in the "swing" of workshop, it will be much easier on her emotionally. It will also teach her some independence and she will learn about work ethic, cooperation, responsibility and all those things.However, overall, you must do what you think is best for her. In my school we always encouraged the parents to visit the workshops and get first-hand knowledge of them, the staff and the clients they

served. That way you can see how it fits with your daughter. Hope this helps explain some of the schools thinking.From: Rhonda Irvin <rhondarvn@...>Subject: WORKINGautism Date: Thursday, July 2, 2009, 2:57 PM

Hi,

I have a questions for families that their child is out of high school.. Does your autistic child hold a job? Maddie is turning 14 this month, and during her IEP in May we had to do the transition section fo her IEP. Well, and I said at this time we can't see Maddie holding a job - she is just too unstable and inconsistent. (She is diagnosed with moderatet/severe MR, autism, and now bipolar which we still don't have 100% under control - bad evening so far). The school will not listen to me - all they keep going on about is how they can get her to get a job and make money. First off, we didn't adopt Maddie for her to make money for us. Second, I think putting her in the work environment is going to make my life more complicated trying to deal with all the unknowns, etc. The school says I'm not being realistic, but I'm the one thinking they aren't being realistic. I got a copy of the IEP in the

mail and under her goal for transition they listed parents want Maddie to get employment - sigh:( I wanted listed that we would continue to work on educational goals such as reading, money, telling time, etc (stuff she would use in day to day life) and to work on life skills to help her live as independently as possible.

Thanks.

Rhonda

[Guest guest]

Rhonda,

Why are they doing that at age 14?? She should have some years left yet to work on other things. J is 21 now and going into a day program. He can vacum, and load up the pop machines but he will still need one on one. Lois

WORKING

[Guest guest]

I know another parent (whose child is older) told me they try to push them to get working by the time they are 16/17 years old. That way at 18, they give them a diploma and out they go vs. educating them until they are 21 years old.

From: lois noland <jlois@...>Subject: Re: WORKINGautism Date: Thursday, July 2, 2009, 9:56 PM

Rhonda,

Why are they doing that at age 14?? She should have some years left yet to work on other things. J is 21 now and going into a day program. He can vacum, and load up the pop machines but he will still need one on one. Lois

WORKING

[Guest guest]

Here in land they have the person go to age 21. JJ is 21 and will be 22 in Oct. He just finished his last year at school. Lois

Re: WORKING

[Guest guest]

Here in land they have the person go to age 21. JJ is 21 and will be 22 in Oct. He just finished his last year at school. Lois

Re: WORKING

[Guest guest]

Here in land they have the person go to age 21. JJ is 21 and will be 22 in Oct. He just finished his last year at school. Lois

Re: WORKING

[Guest guest]

I have a question. I was wondering if I will still get the full effects of this

program while still working a full time job and such. I'm sure others are as

well. However, I was wondering if others are in the same boat. Thanks for any

help.

-Mike

[Guest guest]

Hi Mike,

What kind of work do you do?

I used to do construction, which was hard labor. At the end of the day, I felt

like I worked out in the gym all day doing all the exercises incorrectly. I had

a soar back and I was exhausted all the time. On top of that the loud noise from

the power tools really rattled my head even though I wore ear protection. It was

a stressful job and I think it slowed my healing. I got out of the construction

industry completely and now I work a quiet indoor job. But, I am on my feet all

day long so I get a little exercise, which is good.

You can definitely work while doing this program, but you don't want to wear out

your body to the point of exhaustion everyday like I did.

Josh

>

> I have a question. I was wondering if I will still get the full effects of

this program while still working a full time job and such. I'm sure others are

as well. However, I was wondering if others are in the same boat. Thanks for any

help.

>

>

> -Mike

>