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Lida,

The wrist and heel test for " normal " (I hate to use that word!) women can be

accurate, but not for us. In the States the insurance companies try to

cheap-out and use those for bone density. They are not accurate for hip and

spine health. My heel and wrist show I'm completely normal....NOT true.

I insisted on having a full scan bone density test at 50 and urge all

scoliotic women to. You might tell your doctor that osteop runs in your

family-it

may be a white lie, but it gets you the right test.

The tests I have had for 12 years showed osteopenia (the first step to

osteoporosis) and spinal fusion is still possible at that stage. So at least

we

had a warning, but it wasn't found that it was really osteoporosis until I was

on the table. My surgeon was shocked, but he had seen this before. One of

his surgery patients was only in her 40's .

His plan then was to sew us up, put us in the care of an encronologist (sp?)

for monitoring, and start Fosamax. After a set time he'd then go back in.

The osteoporosis wouldn't be gone, but enough bone would be formed and

using BMP the fusion could work is the plan.

Having a hip xray density scan might work as well as a full scan, but mine

are curved as well from my S curve. It would be just as easy to do a full

body scan as the hip.

Jolene

**************Life should be easier. So should your homepage. Try the NEW

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Dereise,

You can not get osteoporosis where the spine is fused because the rods and

bone fusion are solid. Where the rods aren't placed there could still be a

problem. And hips could still be at risk.

I, too, could never take calcium w/o gut/bowel problems but now I can. Why,

I have no idea what has changed other than I started at a very low dose.

Obviously my attempt of keeping my calcium levels high enough from

cheese/yogurt/milk wasn't enough...and I love those foods. Be sure to take

Vitamin D

supplements-women seem to be very low in that and my endocrinologist says I

can't get too much.

Oh, and stop drinking all sodas....it's not the caffeine or sugar is the

culprit, it's the phosphoric acid. I really suspect that we with scoliosis have

a bone/calicum problem to begin with. Doctors never think to measure young

girls bone density or calcium levels. And how do we keep children/tweens/teens

to limit their soda intake....impossible.

Jolene

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

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Just a little piece of info I read--prunes are supposed to be one of the best

bone hardening foods. I don't remember why exactly, but I figure, why not? It's

good for constipation that goes with pain meds, and it's got other great

benefits. Bone hardening I hadn't figured on. But you might want to check it

out.

________________________________

From: Dereise <dereise1958@...>

Scoliosis Treatment

Sent: Monday, December 1, 2008 12:00:55 AM

Subject: Re: osteoporosis

I'm glad this subject has been brought up. Do any of you out there

have osteoporosis that have had fusion? I can't take calcium but I

get plenty of yogurt and cheese to eat. I've really thought about so

many times what happens with all the metal if you get osteoporosis. I

getted scared sometimes thinking about it but I try and put it away

especially now that I don't have insurance for now. Thanks, Dereise.

>

> > , Sara, and Lida....

> >

> My spine has just been giving me a painful time the last 10 years.

My fusion

> in 1960 was too short and after being in denial I needed another

fusion I

> finally agreed 2 years ago. Unfortunately, I waited too long and I

have

> osteoporosis so surgery had to be stopped short. That's is why I'm

an

> advocate for women to not wait until they are 50 to have it. Learn

from me.

> Osteoporosis did not show on any of my bone density scans for the

last 12

> years. The machines are not calculated for curved spines so the

laser does

> not read the bone accurately.

> >

> > Jolene

>

> >

>

>

>

>

>

>

>

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Thanks for this, Jolene.

I was fused in 1984 + instrumentation. I have my bone densitometry results

from 2001. It says:

" Only L4 and L5 were evaluatable due to the gross deformity and previous

surgery. However, these vertebrae are clearly normal for a woman of this

age, as is indeed the hip. There is no evidence of osteoporosis. "

That was 7 yrs ago and things may have changed of course.

Lida in London

Re: osteoporosis

Lida,

The wrist and heel test for " normal " (I hate to use that word!) women can be

accurate, but not for us. In the States the insurance companies try to

cheap-out and use those for bone density. They are not accurate for hip and

spine health. My heel and wrist show I'm completely normal....NOT true.

I insisted on having a full scan bone density test at 50 and urge all

scoliotic women to. You might tell your doctor that osteop runs in your

family-it

may be a white lie, but it gets you the right test.

The tests I have had for 12 years showed osteopenia (the first step to

osteoporosis) and spinal fusion is still possible at that stage. So at least

we

had a warning, but it wasn't found that it was really osteoporosis until I

was

on the table. My surgeon was shocked, but he had seen this before. One of

his surgery patients was only in her 40's .

His plan then was to sew us up, put us in the care of an encronologist (sp?)

for monitoring, and start Fosamax. After a set time he'd then go back in.

The osteoporosis wouldn't be gone, but enough bone would be formed and

using BMP the fusion could work is the plan.

Having a hip xray density scan might work as well as a full scan, but mine

are curved as well from my S curve. It would be just as easy to do a full

body scan as the hip.

Jolene

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

(http://www.aol.

<http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000

002> com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002)

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Jolene, thanks so much! I am fused pretty much all the way down but I

had a screw loose(I know everyone in my family loves that one)at the

bottom of the fusion and had to have that taken out and as little bit

of the rod was broken off where it was. Giving up the soda will be a

very hard thing to do though. Thanks so much for the info.. Dereise...

>

> Dereise,

> You can not get osteoporosis where the spine is fused because the

rods and

> bone fusion are solid. Where the rods aren't placed there could

still be a

> problem. And hips could still be at risk.

>

> I, too, could never take calcium w/o gut/bowel problems but now I

can. Why,

> I have no idea what has changed other than I started at a very low

dose.

> Obviously my attempt of keeping my calcium levels high enough from

> cheese/yogurt/milk wasn't enough...and I love those foods. Be sure

to take Vitamin D

> supplements-women seem to be very low in that and my

endocrinologist says I

> can't get too much.

>

> Oh, and stop drinking all sodas....it's not the caffeine or sugar

is the

> culprit, it's the phosphoric acid. I really suspect that we with

scoliosis have

> a bone/calicum problem to begin with. Doctors never think to

measure young

> girls bone density or calcium levels. And how do we keep

children/tweens/teens

> to limit their soda intake....impossible.

> Jolene

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  • 2 weeks later...

I just wish they could make them tasteless. I hate the taste but I do

know that they are good for you. I tried the new kind that's in a

pouch that supposed to taste better but it didn't taste that way to

me.

> >

> > > , Sara, and Lida....

> > >

> > My spine has just been giving me a painful time the last 10

years.

> My fusion

> > in 1960 was too short and after being in denial I needed another

> fusion I

> > finally agreed 2 years ago. Unfortunately, I waited too long and

I

> have

> > osteoporosis so surgery had to be stopped short. That's is why

I'm

> an

> > advocate for women to not wait until they are 50 to have it.

Learn

> from me.

> > Osteoporosis did not show on any of my bone density scans for the

> last 12

> > years. The machines are not calculated for curved spines so the

> laser does

> > not read the bone accurately.

> > >

> > > Jolene

> >

> > >

> >

> >

> >

> >

> >

> >

> >

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  • 9 months later...

Hi,

I have been a member of this forum for a while, because my husband and I really

love coconut oil and there has been a lot of great information on this forum,

but I haven't been an active member.I have been taking care of my Mom, who has

now gone to a better place.She had Parkinsons and also suffered from

osteoporosis. I just recently came across this amazing product, that has helped

my husband, myself and our friends tremendously.I normally wouldn't be sharing

this on this forum, but the product really works with helping to strengthen

bones and enhances anything you take.I really wish I could have given this

product to my Mom.It's a unique,high quality patent-pending pearl powder.The

research behind pearl powder indicates, that pearl,among other things has the

most bio available calcium for our human body,at the DNA level.Check out the

web-site for all the information. >>> www.AncientPearlsofWisdom.com <<<

Best Wishes,

Jenn

>

> I have recently learned that my DEXA scan showed some osteoporosis.

> Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

>

> Thanks so much,

> Phyllis ( I read daily, post almost never, and appreciate it all)

>

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Osteoporosis is sometimes triggered by oxalate build up in the joints.

Oxalate problems arise when one has a leaky guy which can arise from

taking antibiotics, or from other causes. I have problems handling

oxalates in foods, so I went on a low oxalate diet with some success

in treating my arthritis.

http://www.lowoxalate.info/research.html

Many of the supplements for arthritis are ones I cannot use because

they are high oxalate.

However, I have found MSM to be remarkably good for my arthritis. I

started out taking 5 grams x 5 times a day. Once my arthritis was

helped greatly, I cut back to 2 grams x 3 times a day as a maintenance

dose. It used to be painful to wring-out wet wash, to put on a pair

of gloves (or even an oven mitt), button my shirt, or tie my shoes.

Now (on MSM) I can do all of these things. When storms approach I

get slight twinges of pain in my hands, but not nearly as bad as what

I felt previously in good weather.

http://www.healingdaily.com/conditions/MSM-for-joint-pain.htm

Some medical sites claim MSM does not work. But in their tests, they

did no use nearly enough MSM to do much good.

Alobar

On Sun, Oct 11, 2009 at 10:00 AM, hypnophyl

<phyllisfreeman@...> wrote:

> I have recently learned that my DEXA scan showed some osteoporosis.

> Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

>

> Thanks so much,

> Phyllis ( I read daily, post almost never, and appreciate it all)

>

>

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I also was diagnosed with osteoporosis from a DEXA scan, and I also had

arthritis in my knees. At the time I was eating/drinking a lot of dairy, eating

meat, pretty much eating the SAD. I was also taking calcium pills, a one-a-day

multi, many other vitamin/mineral/herb pills.

So the doctor said I needed more calcium - more calcium pills and more dairy. I

was already doing that – drinking 3 big glasses of milk a day, eating ice cream,

cheese. So I knew that wasn't the answer because why would I have gotten

osteoporosis with such a calcium-rich diet?

So I did completely opposite of what the doctor suggested - I eliminated dairy,

meat, and junk foods from my diet and also eliminated all my isolated/synthetic

pills (including the calcium) and added a line of organic whole food supplements

and whole food antioxidants. So a combination of diet and supplements, and my

bone density is greater. I no longer have osteoporosis or arthritis.

Osteoporosis is an over-acid problem. It is not a disease, it is a symptom only

- a symptom of improper diet. It is not a calcium deficiency disease, it is a

disease of excessive calcium loss. You can take all the calcium supplements you

want, but if your diet and lifestyle choices are unhealthy, or you're taking

drugs or eating foods that cause you to lose calcium, you will still lose more

calcium from your bones than you can take in through diet.

All acid producing foods (acid ash foods) such as dairy, meat, processed foods,

cooked foods, etc. produce excess acid in the body. This makes the blood too

acidic. When the blood is too acidic it takes calcium from the bones to help

neutralize it. Year after year of eating improperly sets one up for brittle

bones in a big way.

Carol

>

> I have recently learned that my DEXA scan showed some osteoporosis.

> Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

>

> Thanks so much,

> Phyllis ( I read daily, post almost never, and appreciate it all)

>

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I've reversed osteoporosis and osteoarthritis in several clients now. Chief

among their supplements was undenatured whey and selenium to increase

glutathione, following research that many age-related diseases and low immune

response are connected to low glutathione:

http://tinyurl.com/glutathione-references

Whey itself is net alkalizing so it will take care of the over-acid problem

mentioned by Carol, and the calcium in it is utilized in the normal manner

provided there is adequate vitamin D, magnesium, and boron in the diet.

On another track, all vitamin utilization and growth by cells absolutely

requires adequate HGH; it signals cells to uptake their nutrients.

Osteoarthritis, osteopenia and osteoporosis are considered to be " age related

diseases " because low HGH in the elderly impairs metabolism and nutrient uptake

as part of our planned obsolescence mandated by nature. Many age-related

diseases have been reversed, bone remineralized, cartilage and internal organs

rebuilt, using HGH in an age management program. Data here:

http://members.shaw.ca/SomaLife-gHP

Relief by cartilage regeneration or whatever is actually guaranteed by one

vendor of a real good joint supplement, Integris Corporation's Everlasting and

Everlasting support. I've seen one lady give back her wheelchair and store both

knee braces, and one bout of three months treatment with it has not had to be

repeated for nine years! The lady hikes trails now rather than crawling in pain

from bed to couch :)

Duncan

>

> I also was diagnosed with osteoporosis from a DEXA scan, and I also had

arthritis in my knees. At the time I was eating/drinking a lot of dairy, eating

meat, pretty much eating the SAD. I was also taking calcium pills, a one-a-day

multi, many other vitamin/mineral/herb pills.

>

> So the doctor said I needed more calcium - more calcium pills and more dairy.

I was already doing that – drinking 3 big glasses of milk a day, eating ice

cream, cheese. So I knew that wasn't the answer because why would I have gotten

osteoporosis with such a calcium-rich diet?

>

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Hi Alobar,

 

I have used 5,000mgs daily of MSM for a long time.  I thought that I had read

somewhere that it could help arthritis/degenerative joints.  My right hip has

been bad for a long time.  I have been putting off getting a hip replacement. 

I'm wondering if I upped that to the 5000mgs/ 5 times a day if I might finally

experience some long term relief.  I had no idea that I was taking way too small

amounts of the MSM to help with my hip.

 

Do you .. or have you ever used glucosamine with the MSM?

 

When I initially pushed myself up to the 5000 mgs, I had trouble with working

through some detox symptoms.  Do you remember ever experiencing that when you

first put yourself on the high dose MSM? 

 

Thanks,

Glo

 

 

 

 On Sun, 10/11/09, Alobar <Alobar@...> wrote:

 

Osteoporosis is sometimes triggered by oxalate build up in the joints.

Oxalate problems arise when one has a leaky guy which can arise from

taking antibiotics, or from other causes. I have problems handling

oxalates in foods, so I went on a low oxalate diet with some success

in treating my arthritis.

http://www.lowoxala te.info/research .html

Many of the supplements for arthritis are ones I cannot use because

they are high oxalate.

However, I have found MSM to be remarkably good for my arthritis. I

started out taking 5 grams x 5 times a day. Once my arthritis was

helped greatly, I cut back to 2 grams x 3 times a day as a maintenance

dose. It used to be painful to wring-out wet wash, to put on a pair

of gloves (or even an oven mitt), button my shirt, or tie my shoes.

Now (on MSM) I can do all of these things. When storms approach I

get slight twinges of pain in my hands, but not nearly as bad as what

I felt previously in good weather.

http://www.healingd aily.com/ conditions/ MSM-for-joint- pain.htm

Some medical sites claim MSM does not work. But in their tests, they

did no use nearly enough MSM to do much good.

Alobar

On Sun, Oct 11, 2009 at 10:00 AM, hypnophyl

<phyllisfreeman@ optonline. net> wrote:

> I have recently learned that my DEXA scan showed some osteoporosis.

> Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

>

> Thanks so much,

> Phyllis ( I read daily, post almost never, and appreciate it all)

>

>

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Glory wrote:

> arthritis/degenerative joints.

> My right hip has been bad for a long time. I have been putting off

> getting a hip replacement.

Have you considered trying a course or two of cetylmyristoleate (sp?)

I have seen testimonials of great results from it on other lists.

Sometimes one course does it, I've read that a few need two courses.

Healing seems to continue for months with improvement increasing all the

while for those who have success with it. Like everything it doesn't

work for everyone. But for those in whom it does work results seem to be

quite impressive, even spectacular.

Jarrow Formulas True CMO is one brand I've seen people report success with.

sol

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Hi Sol,

 

This is very interesting.  I will be doing some more research on the

cetylmyristoleate tonight.  This really does sound promising!

 

The only thing is, this type of thing is classified as an " immune modulator " . 

For whatever reason, I have it in the back of my mind that might not be good for

me.  I am hashi's and have struggled with antibodies in the past.  Does anyone

know of any health reason why a person should not take an immune modulator? 

 

I will be googling more when I have time.

 

Thank you!

Glo

 

    

> arthritis/degenerat ive joints.

> My right hip has been bad for a long time. I have been putting off

> getting a hip replacement.

Have you considered trying a course or two of cetylmyristoleate (sp?)

I have seen testimonials of great results from it on other lists.

Sometimes one course does it, I've read that a few need two courses.

Healing seems to continue for months with improvement increasing all the

while for those who have success with it. Like everything it doesn't

work for everyone. But for those in whom it does work results seem to be

quite impressive, even spectacular.

Jarrow Formulas True CMO is one brand I've seen people report success with.

sol

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Ditto that; the cetyl-myristoleate really did the trick in 18 out of 22 people I

tested it on. It doesn't protect the body much from the degenerative illness but

it does provide critical components for the joint cartilage.

Duncan

> > arthritis/degenerative joints.

> > My right hip has been bad for a long time. I have been putting off

> > getting a hip replacement.

> Have you considered trying a course or two of cetylmyristoleate (sp?)

> I have seen testimonials of great results from it on other lists.

> Sometimes one course does it, I've read that a few need two courses.

> Healing seems to continue for months with improvement increasing all the

> while for those who have success with it. Like everything it doesn't

> work for everyone. But for those in whom it does work results seem to be

> quite impressive, even spectacular.

> Jarrow Formulas True CMO is one brand I've seen people report success with.

> sol

>

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Glory wrote:

> Hi Sol,

>

> This is very interesting. I will be doing some more research on the

> cetylmyristoleate tonight. This really does sound promising!

>

> The only thing is, this type of thing is classified as an " immune

> modulator " . For whatever reason, I have it in the back of my mind

> that might not be good for me. I am hashi's and have struggled with

> antibodies in the past. Does anyone know of any health reason why a

> person should not take an immune modulator?

>

> I will be googling more when I have time.

That is interesting, Glo. I have Hashi's too (supposedly based on a

saliva test showing antibodies) but don't know the answer to your

question because it wasn't I who tried it here. My husband used it and

it didn't help him, but others I've seen post about it (another list)

really had fantastic results. Since my husband won't go to a doctor for

any reason, he doesn't actually have a diagnosis of arthritis, so maybe

he doesn't have it and that is why the CMO didn't help him.

My understanding is that the CMO is supposed to help actually regenerate

the cushioning tissues between joint surfaces, but I may be remembering

wrongly.

sol

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  • 11 months later...

Yes Ellen,

I think most people know that "Osteopenia is not a disease, it's a simple consequence of aging.......men get it, too.",but the risk increases with steroids, specially long term, the list of steroids side effects is long, cataracts is also one of them.

Regards

Chonette

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  • 3 months later...

Osteoporosis

People who have osteoporosis don't necessarily have candida, but some people who

have candida can also have osteoporosis.

Osteoporosis of the bones is like any other unhealthy part of the body, and all

failing health is caused by:

1. Lack of the correct combination of nutrients that all humans need in order to

be healthy.

2. Lack of oxygen at a cellular level.

3. Accumulation of toxins, poisons, and waste.

4. Lowered vitality (energy) due to stress, shock, injury, emotional upsets,

losses, relationship or financial worries, being unhealthy, etc.

5. Poor " Nutritional status " inherited from parents upon conception.

When the body lacks the correct combination of nutrients all human beings need

in order to be healthy their bodies will rob nutrients from its own muscles for

protein, bones for minerals, etc. in order to ensure vital organs like the

heart, liver and brain can still function.

So osteoporosis simply means the bones have been robbed of minerals so they are

not strong and will break very easily.

That's why all disease processes, including osteoporosis, are exactly the same

as healing processes the body itself creates in an effort to maintain its

health, during which the body may have to rob its own muscles, bones, etc.

The only difference for people on a healthy program is they are now progressing

towards health rather than becoming more and more unhealthy, or dis-eased,

because they are giving their body what it needs in order to " be healthy "

according to Nature's Laws on Health.

The medical field labels each and every " sign " of failing health as separate

dis-eases, illnesses, symptoms, etc., like calling bone robbing osteoporosis.

However all of them are simply " signs " the

body is working hard to maintain its health, so those " signs " are actually

normal body reactions.

In other words, they are " signs " the body is attempting to restore its own

balance.

As Florence Nightengale, the famous nurse, puts it: " There are no specific

diseases; there are [only] specific disease conditions. "

Here's some articles you might want to read which will help you understand.

Food Selection for Humans:

http://www.healingnaturallybybee.com/articles/price1.php

The Function of Foods:

http://www.healingnaturallybybee.com/articles/foods40.php

Nature's Laws on Health:

http://www.healingnaturallybybee.com/articles/nature2.php

Nature Needs No Remedy:

http://www.healingnaturallybybee.com/articles/heal16.php

Also remember that our bodies are smart enough to balance out all of its

nutrients, hormones, and even water levels, if they get what they need to do

their job.

The best in health, Bee

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  • 7 months later...

Hi Phyllis,

Don't know your age, but if you are under around 70-75 w/ osteoporosis, i'd look

into getting a celiac panel blood test run, since that can cause osteo.

(intestinal damage leads to poor absorption of calc/mag and other nutrients).

If it is that, your bones will heal when you stop eating gluten after some time.

Here's a link w/ some info on that:

http://glutenfreehealth.net/osteoporosis-and-gluten-sensitivity/

If it's not that and seems to be normal osteoporosis, all I really know is to do

weight bearing exercises as much as possible to strenthen the bones, along w/

the supps you're already taking. My holistic MD doctor does not believe it's a

good idea to do the bisphophonate drug treatments for osteoporosis.

Best,

Liz

>

> I have recently learned that my DEXA scan showed some osteoporosis.

> Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

>

> Thanks so much,

> Phyllis ( I read daily, post almost never, and appreciate it all)

>

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LOL, just realized that the orignal post was in 2009! I saw it come up and

replied to it, didn't see there were 89 messages already!!

Liz

> >

> > I have recently learned that my DEXA scan showed some osteoporosis.

> > Would you learned fellow forum members start me off with the best things to

do. I already take whey, coconut oil, calcium and magnesium, fish oils and D.

> >

> > Thanks so much,

> > Phyllis ( I read daily, post almost never, and appreciate it all)

> >

>

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