Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Lida, The wrist and heel test for " normal " (I hate to use that word!) women can be accurate, but not for us. In the States the insurance companies try to cheap-out and use those for bone density. They are not accurate for hip and spine health. My heel and wrist show I'm completely normal....NOT true. I insisted on having a full scan bone density test at 50 and urge all scoliotic women to. You might tell your doctor that osteop runs in your family-it may be a white lie, but it gets you the right test. The tests I have had for 12 years showed osteopenia (the first step to osteoporosis) and spinal fusion is still possible at that stage. So at least we had a warning, but it wasn't found that it was really osteoporosis until I was on the table. My surgeon was shocked, but he had seen this before. One of his surgery patients was only in her 40's . His plan then was to sew us up, put us in the care of an encronologist (sp?) for monitoring, and start Fosamax. After a set time he'd then go back in. The osteoporosis wouldn't be gone, but enough bone would be formed and using BMP the fusion could work is the plan. Having a hip xray density scan might work as well as a full scan, but mine are curved as well from my S curve. It would be just as easy to do a full body scan as the hip. Jolene **************Life should be easier. So should your homepage. Try the NEW AOL.com. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Dereise, You can not get osteoporosis where the spine is fused because the rods and bone fusion are solid. Where the rods aren't placed there could still be a problem. And hips could still be at risk. I, too, could never take calcium w/o gut/bowel problems but now I can. Why, I have no idea what has changed other than I started at a very low dose. Obviously my attempt of keeping my calcium levels high enough from cheese/yogurt/milk wasn't enough...and I love those foods. Be sure to take Vitamin D supplements-women seem to be very low in that and my endocrinologist says I can't get too much. Oh, and stop drinking all sodas....it's not the caffeine or sugar is the culprit, it's the phosphoric acid. I really suspect that we with scoliosis have a bone/calicum problem to begin with. Doctors never think to measure young girls bone density or calcium levels. And how do we keep children/tweens/teens to limit their soda intake....impossible. Jolene **************Life should be easier. So should your homepage. Try the NEW AOL.com. (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Just a little piece of info I read--prunes are supposed to be one of the best bone hardening foods. I don't remember why exactly, but I figure, why not? It's good for constipation that goes with pain meds, and it's got other great benefits. Bone hardening I hadn't figured on. But you might want to check it out. ________________________________ From: Dereise <dereise1958@...> Scoliosis Treatment Sent: Monday, December 1, 2008 12:00:55 AM Subject: Re: osteoporosis I'm glad this subject has been brought up. Do any of you out there have osteoporosis that have had fusion? I can't take calcium but I get plenty of yogurt and cheese to eat. I've really thought about so many times what happens with all the metal if you get osteoporosis. I getted scared sometimes thinking about it but I try and put it away especially now that I don't have insurance for now. Thanks, Dereise. > > > , Sara, and Lida.... > > > My spine has just been giving me a painful time the last 10 years. My fusion > in 1960 was too short and after being in denial I needed another fusion I > finally agreed 2 years ago. Unfortunately, I waited too long and I have > osteoporosis so surgery had to be stopped short. That's is why I'm an > advocate for women to not wait until they are 50 to have it. Learn from me. > Osteoporosis did not show on any of my bone density scans for the last 12 > years. The machines are not calculated for curved spines so the laser does > not read the bone accurately. > > > > Jolene > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Thanks for this, Jolene. I was fused in 1984 + instrumentation. I have my bone densitometry results from 2001. It says: " Only L4 and L5 were evaluatable due to the gross deformity and previous surgery. However, these vertebrae are clearly normal for a woman of this age, as is indeed the hip. There is no evidence of osteoporosis. " That was 7 yrs ago and things may have changed of course. Lida in London Re: osteoporosis Lida, The wrist and heel test for " normal " (I hate to use that word!) women can be accurate, but not for us. In the States the insurance companies try to cheap-out and use those for bone density. They are not accurate for hip and spine health. My heel and wrist show I'm completely normal....NOT true. I insisted on having a full scan bone density test at 50 and urge all scoliotic women to. You might tell your doctor that osteop runs in your family-it may be a white lie, but it gets you the right test. The tests I have had for 12 years showed osteopenia (the first step to osteoporosis) and spinal fusion is still possible at that stage. So at least we had a warning, but it wasn't found that it was really osteoporosis until I was on the table. My surgeon was shocked, but he had seen this before. One of his surgery patients was only in her 40's . His plan then was to sew us up, put us in the care of an encronologist (sp?) for monitoring, and start Fosamax. After a set time he'd then go back in. The osteoporosis wouldn't be gone, but enough bone would be formed and using BMP the fusion could work is the plan. Having a hip xray density scan might work as well as a full scan, but mine are curved as well from my S curve. It would be just as easy to do a full body scan as the hip. Jolene **************Life should be easier. So should your homepage. Try the NEW AOL.com. (http://www.aol. <http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000 002> com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 Jolene, thanks so much! I am fused pretty much all the way down but I had a screw loose(I know everyone in my family loves that one)at the bottom of the fusion and had to have that taken out and as little bit of the rod was broken off where it was. Giving up the soda will be a very hard thing to do though. Thanks so much for the info.. Dereise... > > Dereise, > You can not get osteoporosis where the spine is fused because the rods and > bone fusion are solid. Where the rods aren't placed there could still be a > problem. And hips could still be at risk. > > I, too, could never take calcium w/o gut/bowel problems but now I can. Why, > I have no idea what has changed other than I started at a very low dose. > Obviously my attempt of keeping my calcium levels high enough from > cheese/yogurt/milk wasn't enough...and I love those foods. Be sure to take Vitamin D > supplements-women seem to be very low in that and my endocrinologist says I > can't get too much. > > Oh, and stop drinking all sodas....it's not the caffeine or sugar is the > culprit, it's the phosphoric acid. I really suspect that we with scoliosis have > a bone/calicum problem to begin with. Doctors never think to measure young > girls bone density or calcium levels. And how do we keep children/tweens/teens > to limit their soda intake....impossible. > Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 I just wish they could make them tasteless. I hate the taste but I do know that they are good for you. I tried the new kind that's in a pouch that supposed to taste better but it didn't taste that way to me. > > > > > , Sara, and Lida.... > > > > > My spine has just been giving me a painful time the last 10 years. > My fusion > > in 1960 was too short and after being in denial I needed another > fusion I > > finally agreed 2 years ago. Unfortunately, I waited too long and I > have > > osteoporosis so surgery had to be stopped short. That's is why I'm > an > > advocate for women to not wait until they are 50 to have it. Learn > from me. > > Osteoporosis did not show on any of my bone density scans for the > last 12 > > years. The machines are not calculated for curved spines so the > laser does > > not read the bone accurately. > > > > > > Jolene > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 Hi, I have been a member of this forum for a while, because my husband and I really love coconut oil and there has been a lot of great information on this forum, but I haven't been an active member.I have been taking care of my Mom, who has now gone to a better place.She had Parkinsons and also suffered from osteoporosis. I just recently came across this amazing product, that has helped my husband, myself and our friends tremendously.I normally wouldn't be sharing this on this forum, but the product really works with helping to strengthen bones and enhances anything you take.I really wish I could have given this product to my Mom.It's a unique,high quality patent-pending pearl powder.The research behind pearl powder indicates, that pearl,among other things has the most bio available calcium for our human body,at the DNA level.Check out the web-site for all the information. >>> www.AncientPearlsofWisdom.com <<< Best Wishes, Jenn > > I have recently learned that my DEXA scan showed some osteoporosis. > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > Thanks so much, > Phyllis ( I read daily, post almost never, and appreciate it all) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2009 Report Share Posted October 11, 2009 Osteoporosis is sometimes triggered by oxalate build up in the joints. Oxalate problems arise when one has a leaky guy which can arise from taking antibiotics, or from other causes. I have problems handling oxalates in foods, so I went on a low oxalate diet with some success in treating my arthritis. http://www.lowoxalate.info/research.html Many of the supplements for arthritis are ones I cannot use because they are high oxalate. However, I have found MSM to be remarkably good for my arthritis. I started out taking 5 grams x 5 times a day. Once my arthritis was helped greatly, I cut back to 2 grams x 3 times a day as a maintenance dose. It used to be painful to wring-out wet wash, to put on a pair of gloves (or even an oven mitt), button my shirt, or tie my shoes. Now (on MSM) I can do all of these things. When storms approach I get slight twinges of pain in my hands, but not nearly as bad as what I felt previously in good weather. http://www.healingdaily.com/conditions/MSM-for-joint-pain.htm Some medical sites claim MSM does not work. But in their tests, they did no use nearly enough MSM to do much good. Alobar On Sun, Oct 11, 2009 at 10:00 AM, hypnophyl <phyllisfreeman@...> wrote: > I have recently learned that my DEXA scan showed some osteoporosis. > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > Thanks so much, > Phyllis ( I read daily, post almost never, and appreciate it all) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 I also was diagnosed with osteoporosis from a DEXA scan, and I also had arthritis in my knees. At the time I was eating/drinking a lot of dairy, eating meat, pretty much eating the SAD. I was also taking calcium pills, a one-a-day multi, many other vitamin/mineral/herb pills. So the doctor said I needed more calcium - more calcium pills and more dairy. I was already doing that – drinking 3 big glasses of milk a day, eating ice cream, cheese. So I knew that wasn't the answer because why would I have gotten osteoporosis with such a calcium-rich diet? So I did completely opposite of what the doctor suggested - I eliminated dairy, meat, and junk foods from my diet and also eliminated all my isolated/synthetic pills (including the calcium) and added a line of organic whole food supplements and whole food antioxidants. So a combination of diet and supplements, and my bone density is greater. I no longer have osteoporosis or arthritis. Osteoporosis is an over-acid problem. It is not a disease, it is a symptom only - a symptom of improper diet. It is not a calcium deficiency disease, it is a disease of excessive calcium loss. You can take all the calcium supplements you want, but if your diet and lifestyle choices are unhealthy, or you're taking drugs or eating foods that cause you to lose calcium, you will still lose more calcium from your bones than you can take in through diet. All acid producing foods (acid ash foods) such as dairy, meat, processed foods, cooked foods, etc. produce excess acid in the body. This makes the blood too acidic. When the blood is too acidic it takes calcium from the bones to help neutralize it. Year after year of eating improperly sets one up for brittle bones in a big way. Carol > > I have recently learned that my DEXA scan showed some osteoporosis. > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > Thanks so much, > Phyllis ( I read daily, post almost never, and appreciate it all) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 I've reversed osteoporosis and osteoarthritis in several clients now. Chief among their supplements was undenatured whey and selenium to increase glutathione, following research that many age-related diseases and low immune response are connected to low glutathione: http://tinyurl.com/glutathione-references Whey itself is net alkalizing so it will take care of the over-acid problem mentioned by Carol, and the calcium in it is utilized in the normal manner provided there is adequate vitamin D, magnesium, and boron in the diet. On another track, all vitamin utilization and growth by cells absolutely requires adequate HGH; it signals cells to uptake their nutrients. Osteoarthritis, osteopenia and osteoporosis are considered to be " age related diseases " because low HGH in the elderly impairs metabolism and nutrient uptake as part of our planned obsolescence mandated by nature. Many age-related diseases have been reversed, bone remineralized, cartilage and internal organs rebuilt, using HGH in an age management program. Data here: http://members.shaw.ca/SomaLife-gHP Relief by cartilage regeneration or whatever is actually guaranteed by one vendor of a real good joint supplement, Integris Corporation's Everlasting and Everlasting support. I've seen one lady give back her wheelchair and store both knee braces, and one bout of three months treatment with it has not had to be repeated for nine years! The lady hikes trails now rather than crawling in pain from bed to couch Duncan > > I also was diagnosed with osteoporosis from a DEXA scan, and I also had arthritis in my knees. At the time I was eating/drinking a lot of dairy, eating meat, pretty much eating the SAD. I was also taking calcium pills, a one-a-day multi, many other vitamin/mineral/herb pills. > > So the doctor said I needed more calcium - more calcium pills and more dairy. I was already doing that – drinking 3 big glasses of milk a day, eating ice cream, cheese. So I knew that wasn't the answer because why would I have gotten osteoporosis with such a calcium-rich diet? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009  Hi Alobar,  I have used 5,000mgs daily of MSM for a long time. I thought that I had read somewhere that it could help arthritis/degenerative joints. My right hip has been bad for a long time. I have been putting off getting a hip replacement. I'm wondering if I upped that to the 5000mgs/ 5 times a day if I might finally experience some long term relief. I had no idea that I was taking way too small amounts of the MSM to help with my hip.  Do you .. or have you ever used glucosamine with the MSM?  When I initially pushed myself up to the 5000 mgs, I had trouble with working through some detox symptoms. Do you remember ever experiencing that when you first put yourself on the high dose MSM?  Thanks, Glo     On Sun, 10/11/09, Alobar <Alobar@...> wrote:  Osteoporosis is sometimes triggered by oxalate build up in the joints. Oxalate problems arise when one has a leaky guy which can arise from taking antibiotics, or from other causes. I have problems handling oxalates in foods, so I went on a low oxalate diet with some success in treating my arthritis. http://www.lowoxala te.info/research .html Many of the supplements for arthritis are ones I cannot use because they are high oxalate. However, I have found MSM to be remarkably good for my arthritis. I started out taking 5 grams x 5 times a day. Once my arthritis was helped greatly, I cut back to 2 grams x 3 times a day as a maintenance dose. It used to be painful to wring-out wet wash, to put on a pair of gloves (or even an oven mitt), button my shirt, or tie my shoes. Now (on MSM) I can do all of these things. When storms approach I get slight twinges of pain in my hands, but not nearly as bad as what I felt previously in good weather. http://www.healingd aily.com/ conditions/ MSM-for-joint- pain.htm Some medical sites claim MSM does not work. But in their tests, they did no use nearly enough MSM to do much good. Alobar On Sun, Oct 11, 2009 at 10:00 AM, hypnophyl <phyllisfreeman@ optonline. net> wrote: > I have recently learned that my DEXA scan showed some osteoporosis. > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > Thanks so much, > Phyllis ( I read daily, post almost never, and appreciate it all) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Glory wrote: > arthritis/degenerative joints. > My right hip has been bad for a long time. I have been putting off > getting a hip replacement. Have you considered trying a course or two of cetylmyristoleate (sp?) I have seen testimonials of great results from it on other lists. Sometimes one course does it, I've read that a few need two courses. Healing seems to continue for months with improvement increasing all the while for those who have success with it. Like everything it doesn't work for everyone. But for those in whom it does work results seem to be quite impressive, even spectacular. Jarrow Formulas True CMO is one brand I've seen people report success with. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Hi Sol,  This is very interesting. I will be doing some more research on the cetylmyristoleate tonight.  This really does sound promising!  The only thing is, this type of thing is classified as an " immune modulator " . For whatever reason, I have it in the back of my mind that might not be good for me. I am hashi's and have struggled with antibodies in the past. Does anyone know of any health reason why a person should not take an immune modulator?  I will be googling more when I have time.  Thank you! Glo      > arthritis/degenerat ive joints. > My right hip has been bad for a long time. I have been putting off > getting a hip replacement. Have you considered trying a course or two of cetylmyristoleate (sp?) I have seen testimonials of great results from it on other lists. Sometimes one course does it, I've read that a few need two courses. Healing seems to continue for months with improvement increasing all the while for those who have success with it. Like everything it doesn't work for everyone. But for those in whom it does work results seem to be quite impressive, even spectacular. Jarrow Formulas True CMO is one brand I've seen people report success with. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Ditto that; the cetyl-myristoleate really did the trick in 18 out of 22 people I tested it on. It doesn't protect the body much from the degenerative illness but it does provide critical components for the joint cartilage. Duncan > > arthritis/degenerative joints. > > My right hip has been bad for a long time. I have been putting off > > getting a hip replacement. > Have you considered trying a course or two of cetylmyristoleate (sp?) > I have seen testimonials of great results from it on other lists. > Sometimes one course does it, I've read that a few need two courses. > Healing seems to continue for months with improvement increasing all the > while for those who have success with it. Like everything it doesn't > work for everyone. But for those in whom it does work results seem to be > quite impressive, even spectacular. > Jarrow Formulas True CMO is one brand I've seen people report success with. > sol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Glory wrote: > Hi Sol, > > This is very interesting. I will be doing some more research on the > cetylmyristoleate tonight. This really does sound promising! > > The only thing is, this type of thing is classified as an " immune > modulator " . For whatever reason, I have it in the back of my mind > that might not be good for me. I am hashi's and have struggled with > antibodies in the past. Does anyone know of any health reason why a > person should not take an immune modulator? > > I will be googling more when I have time. That is interesting, Glo. I have Hashi's too (supposedly based on a saliva test showing antibodies) but don't know the answer to your question because it wasn't I who tried it here. My husband used it and it didn't help him, but others I've seen post about it (another list) really had fantastic results. Since my husband won't go to a doctor for any reason, he doesn't actually have a diagnosis of arthritis, so maybe he doesn't have it and that is why the CMO didn't help him. My understanding is that the CMO is supposed to help actually regenerate the cushioning tissues between joint surfaces, but I may be remembering wrongly. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2010 Report Share Posted October 1, 2010 Yes Ellen, I think most people know that "Osteopenia is not a disease, it's a simple consequence of aging.......men get it, too.",but the risk increases with steroids, specially long term, the list of steroids side effects is long, cataracts is also one of them. Regards Chonette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Osteoporosis People who have osteoporosis don't necessarily have candida, but some people who have candida can also have osteoporosis. Osteoporosis of the bones is like any other unhealthy part of the body, and all failing health is caused by: 1. Lack of the correct combination of nutrients that all humans need in order to be healthy. 2. Lack of oxygen at a cellular level. 3. Accumulation of toxins, poisons, and waste. 4. Lowered vitality (energy) due to stress, shock, injury, emotional upsets, losses, relationship or financial worries, being unhealthy, etc. 5. Poor " Nutritional status " inherited from parents upon conception. When the body lacks the correct combination of nutrients all human beings need in order to be healthy their bodies will rob nutrients from its own muscles for protein, bones for minerals, etc. in order to ensure vital organs like the heart, liver and brain can still function. So osteoporosis simply means the bones have been robbed of minerals so they are not strong and will break very easily. That's why all disease processes, including osteoporosis, are exactly the same as healing processes the body itself creates in an effort to maintain its health, during which the body may have to rob its own muscles, bones, etc. The only difference for people on a healthy program is they are now progressing towards health rather than becoming more and more unhealthy, or dis-eased, because they are giving their body what it needs in order to " be healthy " according to Nature's Laws on Health. The medical field labels each and every " sign " of failing health as separate dis-eases, illnesses, symptoms, etc., like calling bone robbing osteoporosis. However all of them are simply " signs " the body is working hard to maintain its health, so those " signs " are actually normal body reactions. In other words, they are " signs " the body is attempting to restore its own balance. As Florence Nightengale, the famous nurse, puts it: " There are no specific diseases; there are [only] specific disease conditions. " Here's some articles you might want to read which will help you understand. Food Selection for Humans: http://www.healingnaturallybybee.com/articles/price1.php The Function of Foods: http://www.healingnaturallybybee.com/articles/foods40.php Nature's Laws on Health: http://www.healingnaturallybybee.com/articles/nature2.php Nature Needs No Remedy: http://www.healingnaturallybybee.com/articles/heal16.php Also remember that our bodies are smart enough to balance out all of its nutrients, hormones, and even water levels, if they get what they need to do their job. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2011 Report Share Posted September 23, 2011 Hi Phyllis, Don't know your age, but if you are under around 70-75 w/ osteoporosis, i'd look into getting a celiac panel blood test run, since that can cause osteo. (intestinal damage leads to poor absorption of calc/mag and other nutrients). If it is that, your bones will heal when you stop eating gluten after some time. Here's a link w/ some info on that: http://glutenfreehealth.net/osteoporosis-and-gluten-sensitivity/ If it's not that and seems to be normal osteoporosis, all I really know is to do weight bearing exercises as much as possible to strenthen the bones, along w/ the supps you're already taking. My holistic MD doctor does not believe it's a good idea to do the bisphophonate drug treatments for osteoporosis. Best, Liz > > I have recently learned that my DEXA scan showed some osteoporosis. > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > Thanks so much, > Phyllis ( I read daily, post almost never, and appreciate it all) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2011 Report Share Posted September 23, 2011 LOL, just realized that the orignal post was in 2009! I saw it come up and replied to it, didn't see there were 89 messages already!! Liz > > > > I have recently learned that my DEXA scan showed some osteoporosis. > > Would you learned fellow forum members start me off with the best things to do. I already take whey, coconut oil, calcium and magnesium, fish oils and D. > > > > Thanks so much, > > Phyllis ( I read daily, post almost never, and appreciate it all) > > > Quote Link to comment Share on other sites More sharing options...
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