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Hello Di,

I have 2 reasons why you may be gaining weight. Is it almost that time of

the month? That could cause you to put on a couple of lbs. Another

thought is that you're probably adding some muscle mass, you also can

gain a couple of lbs. from that. I wouldn't worry about it. Just keep on

breathing and drinking lots of water and you'll being seeing results

before you know it. Your day is coming, just be consistent. :-)

Love, Liz

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  • 1 year later...

We've been told that it can take up to 6 months of infusions before a change can

be seen. Was she pre-medicated for the

infusion? It might be that the pre-meds calmed down her system enough to lower

her temp.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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We've been told that it can take up to 6 months of infusions before a change can

be seen. Was she pre-medicated for the

infusion? It might be that the pre-meds calmed down her system enough to lower

her temp.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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No, she wasn't pre-medicated. Our doctor told us we would know in 30 days

if it worked.

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah, 2 and Leah (May 11th, 2001)

Rebekah as IgA and IgG deficiency--final diagnosis pending

Re: How long?

We've been told that it can take up to 6 months of infusions before a

change can be seen. Was she pre-medicated for the

infusion? It might be that the pre-meds calmed down her system enough to

lower her temp.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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No, she wasn't pre-medicated. Our doctor told us we would know in 30 days

if it worked.

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah, 2 and Leah (May 11th, 2001)

Rebekah as IgA and IgG deficiency--final diagnosis pending

Re: How long?

We've been told that it can take up to 6 months of infusions before a

change can be seen. Was she pre-medicated for the

infusion? It might be that the pre-meds calmed down her system enough to

lower her temp.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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those doctors were hem/onc right? I wish you luck on the 30 day remedy but

wouldn't count on it. Also if she's sick

I'd call the nurse and ask for advice.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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  • 3 years later...
Guest guest

Of course there are, or else it would have no color, right?

How Long?

> Hi everybody, I have a quick question.

> I have a friend who is diabetic and I

> want her to try Kombucha. I have let

> a batch of tea go for five weeks now.

> I bought stevia to put in it,but my

> question is are there any nutrients

> left in the tea? The reports that I

> have read say that Russian scientists

> say I think it was 17-18 days kombucha

> had the best nutrients in it. So does

> that mean my tea at five weeks has no

> good stuff left? Thanks Olivia.

>

>

>

>

>

>

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  • 1 year later...
  • 4 months later...

Should be taken out by now...when was your follow up appointment scheduled for?sharralin <cheralin@...> wrote: Could you please tell me how long the gel packing needs to stay in after surgery? My surgery was two weeks ago and the presure of the packing is quite bothersome.thanks,cherie

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Could you please tell me how long the gel packing needs to stay in

after surgery? My surgery was two weeks ago and the presure of the

packing is quite bothersome.

thanks,

Hi Cherie

Two to three weeks would seem about right. Gel packing as far as I can

recall is meant to self-dissolve. Some of it will work its way out of the

ear of naturally and some of it will probably by cleaned out by the surgeon

on your next post-op visit.

Phil

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Mine has always been taken out at 3 weeks postop.

Some comes out on it's own, but some has to be cleaned

out. It is bothersome, at least the gel is a big

advancement from the old packing that seemed like hard

gauze and itched like CRAZY!

--- sharralin <cheralin@...> wrote:

> Could you please tell me how long the gel packing

> needs to stay in

> after surgery? My surgery was two weeks ago and the

> presure of the

> packing is quite bothersome.

> thanks,

> cherie

>

>

>

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  • 3 months later...
Guest guest

,

This Disease can pop up anytime and Symptoms can be small or large.

Just keep a eye on it. Since your child is already taking a Steroid. This may suppress the Symptoms as well.

RobbinSee what's free at AOL.com.

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Guest guest

,

That's a good question. I don't know the answer but I've heard it

can be weeks, to months to years. Since your little guy has been

diagnosed and is being treated, he may be able to put it off for

quite a while. All kids are different, I just hope he never develops

the joint issues. Hoping he is doing well right now.

((hugs))

Tracey and Madi 2yr systemic

>

> Does anyone know how long a child can have systemic JRA without

joint

> pain? He has had about 4 flares since August06 and is currently on

> Prednisolone. Thanks, & Bubba16mo. systemic JRA

>

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  • 3 weeks later...
Guest guest

,

I am way behind in catching up on posts - and I didn't look to see if you'd had many responses to your question - so forgive me if I am repeating what you have already been told.  I am so far behind in posts, that I am not trying to respond to too many, but since my son was diagnosed with systemic onset when he was almost 5, I thought I'd respond to your question.

 

According to the textbooks/literature, children with systemic onset JRA can have systemic symptoms for up to a year before the joint pain/arthritis symptoms present themselves.  This in itself contributes to the difficulty with dianosis, as so many of the systemic symptoms are similar to other diseases or illnesses. 

had joint pain 24 hours before his first documented systemic symptoms, which is unusual - though looking back on the year previous he had other episodes that were diagnosed and treated as something else - which could have been early systemic symptoms, particularly a kidney disorder, as well as unexplained rashes and fevers, that were determined to be viral.  The treatment for the kidney disorder is steriods sometimes cylcosporine ( is currently on both for his JRA) , which would have controlled the flare of more severe systemic symptoms at the time.  When first experienced joint pain, the subsequent systemic symptoms where his worse ever.

I wish you all the best,

Val

Rob's Mom (9,systemic)

HOW LONG?

Does anyone know how long a child can have systemic JRA without joint

pain? He has had about 4 flares since August06 and is currently on

Prednisolone. Thanks, Bubba16mo. systemic JRA

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Guest guest

Val, Thank you for responding to my question. I feel a sense of guilt because my son has not had any joint problems and listening to everyones struggles it seems that everyone has had some sort of joint pain. Don't get me wrong my little Bubba has endured more than his fair share of pain and then some. I just feel that I can't relate with a lot of the parents here. His rheumy/immunologist is sending us to Cincinnatti to get a second opinion. Thinking this may be something called HLH. He has been sick off and on for almost a year now and I am scared that his little body may not be able to handle much more. Thanks and God Bless, Rae HOW LONG?Does anyone know how long a child can have systemic JRA without joint pain? He has had about 4 flares since August06 and is currently on Prednisolone. Thanks, Bubba16mo. systemic JRAAOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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Guest guest

-

Please don't ever apologize for putting your son's struggles out there. We are all in the this battle together - whether they are going though a lot of flare's or just one.

Hang in there - I hope he feels some relief soon.

Alia and Caroline, age 5, poly and uveitisSee what's free at AOL.com.

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  • 5 months later...

Tildy,

Now I was younger as I'm 44 and had my TKR when I was 43 but I'm overweight so that slowed some recovery. It certainly got better each day. At one month, I felt like I could move ok on my own without much help for anything except driving. I had my right knee done so I couldn't drive until 7 weeks out and it hurt some for the first week or so. At two months out I got on a plane, walked through two big airports and a large hotel for a seminar I had to attend for work so I was in pretty good shape though I would put my compression hose (knee-high version) on in the evenings to deal with swelling.

I know I was still icing my knee from time to time many months out so continue to do that for him. I think about 5 months out I really started being happy about all this but I felt fine about it earlier than that.

-----Original Message-----From: Joint Replacement [mailto:Joint Replacement ]On Behalf Of carafe4039Sent: Monday, December 03, 2007 6:52 PMJoint Replacement Subject: how long?

My husband, 65, had a total knee replacement three weeks ago. He also had a stroke last March, so his recovery may be slower, but I wondered about your experience. How long before you who have had TKRs were able to say "wow, I'm glad I did that!" It's way harder than his hip (17 years ago) and we knew that going in, but it's way harder than we even imagined. Very tired, seems to him like forever before he'll feel like himself.He had trouble being able to take pain meds, and is now on darvocet and ultram. Not as effective as some, but doing OK for him. Tildy

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  • 2 months later...

Loviator, we've been at it since April / May of 2007. They have

really died out since I started using the epsom salt sprays

everywhere. It's " almost " under control. A few more weeks of

cleaning, spraying and having the cats treated and I think we'll have

it whipped... or at least I'm praying that's what will happen!

Good luck to you and yours.

>

> I'm wondering how common it is for these things to just die out.

This

> forum has 65 members and it seems a lot of them haven't been in the

> forum for a while. I wonder if this means they beat the mites?

>

> On my blog,http://mitescentral.blogspot.com , I have an incident

list

> near the bottom on the right hand bar. A lot of the people have

the

> exact same symptoms as I do (and I assuming you guys too), but then

you

> don't hear about them. Surely they have not been destroyed?

>

> Another thing that hits me about the incidents is that

the " experts " on

> the expert forums always say something totally wacky and have no

idea

> what is going on with the inquirer. If we have tens of people,

even

> hundreds going through this, why do they have no idea about

invisible

> bugs, biting,crawling, bites, and sleepless nights. Even the

> selectivity of hosts.

>

> I've been struggling with this for 4 months now. How long have you

> struggled?

>

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Dear Loviatar 3, I just read your blog and think that you have good insight and information to all of us. This "disease" is the damnest thing and I for one want to see the end of it! Jean

Never miss a thing. Make your homepage.

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  • 3 weeks later...
Guest guest

That is considered the maintenance dose so in my opinion forever.

HOW LONG?

> hi,

> how long is it safe to take iodoral 25mg without any test or problem.

>

>

> ------------------------------------

>

>

>

>

>

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Guest guest

thank you,

sima

>

> That is considered the maintenance dose so in my opinion forever.

>

>

>

>

> HOW LONG?

>

>

> > hi,

> > how long is it safe to take iodoral 25mg without any test or

problem.

> >

> >

> > ------------------------------------

> >

> >

> >

> >

> >

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  • 1 year later...

I find it takes about 2-3 hours for the Pred to kick in for my son. I usually

give Motrin too because that seems to act faster and between the two the fever's

gone until next cycle. One or two times we've experienced a low grade

fever(101s) about 8-12 hours after but with one more dose of Motrin it's gone.

Some people here have posted that they need a 2nd dose on occasion, but I've

found for my son it's usually something else when a second dose of Pred is

required.

Hope that helps,

Vivian

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