update

[Guest guest]

What are the photos under? I didn't see anything entitled Linn.

>

> I just posted some pictures of Granger and I from Christmas of last year to

Christmas of this year.

>

> This surgery was life changing for us. Granger has lost 77lb's and I have lost

107lb's. We had the sleeve done by Dr Aceves one hour apart on April 28th 2009.

It was the best thing that we have done in a long time.

>

> -Linn

>

[Guest guest]

The pictures are amazing.  It's great to see another husband wife team who had it done, although my husband waited 6 weeks to see how tough it was.

Congrats again!

Joyce

On Thu, Dec 17, 2009 at 10:44 AM, linnboyd <lboyd@...> wrote:

 

I just posted some pictures of Granger and I from Christmas of last year to Christmas of this year.This surgery was life changing for us. Granger has lost 77lb's and I have lost 107lb's. We had the sleeve done by Dr Aceves one hour apart on April 28th 2009. It was the best thing that we have done in a long time.

-Linn

[Guest guest]

Penny,

It is good to hear that you are doing well... Thanks for the compliments we feel so much better and that is better than the looks part of it!

The album is under Linn and Granger or Granger and Linn I forget which.

Thanks,

Linn

From: [ ] On Behalf Of Penny Storey [prstorey@...]

Sent: Thursday, December 17, 2009 2:07 PM

Subject: RE: Update

Linn and Granger you look GREAT!!! I’m down 86.5 lbs. I need to get some pictures posted. I will soon.

Penny

From: [mailto: ]

On Behalf Of linnboyd

Sent: Thursday, December 17, 2009 12:45 PM

Subject: Update

I just posted some pictures of Granger and I from Christmas of last year to Christmas of this year.

This surgery was life changing for us. Granger has lost 77lb's and I have lost 107lb's. We had the sleeve done by Dr Aceves one hour apart on April 28th 2009. It was the best thing that we have done in a long time.

-Linn

No virus found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.427 / Virus Database: 270.14.111/2570 - Release Date: 12/17/09 08:30:00

[Guest guest]

Hey litter mate! Congrats on the baby! I just posted a minute ago in

response to somebody else so I won't bore the group all over again. Just wanted

to say hi!

:-) Kathy in VA

7/4/06

297/147

________________________________

From: dimndznprlz01 <teacher4la@...>

Sent: Thu, November 12, 2009 5:22:54 PM

Subject: Update

 

Hi, My name is and I had my Mgb almost 3 1/2 years ago. Currently I am

28 weeks pregnant. Last time I checked in i was only 7 weeks. The baby is doing

fine but I've been put on bedrest. My cervix is not all that they would like it

to be. So far so good on most everything els. I still have iron transfusions

once a month to help with iron absorbsion. My blood sugar has been ok. I have

trouble with high and low blood sugar. My new love for Mike n Ikes probably

doesn't help... My weight has slowly climbed. I've gained about 15 lbs so far.

Bed rest and candy doesn''t help though.

I would love to hear from you guys. It seems though that the emails have slowed

down again. The last posts to go through were Oct 3rd. today is Nov 12th. I

thought things were going to be different. Sorry, I have to gripe because the

forum is my only connection to other mgbers. When the emails are not dispersed,

I'm cut off from anyone that understands. I hope the emails start coming through

again.

in Or

Dr. R

25 min

7 ft

338/169

[Guest guest]

Fingers are crossed for you Alice!

From: ALICE A <alice@...>

Subject: Update

Date: Sunday, April 18, 2010, 8:06 AM

 

Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

I started this group several years ago to provide support to individuals seeking

information about hearing loss and the Cochlear Implant. Never did I realize how

much I would need your support thru those years. I really need it now. I'm sure

this is my last chance but it's one I didn't expect and a chance I'm eager for

with hopes of success and a re-entry into the world of sound.

We are going for activation early in July. This will give me 6 weeks to heal. I

think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

Alice

http://www.. net

[Guest guest]

Alice,

Its payback time, yuh know. You created the list to offer support to so

many people and now we are here for you. Just over a month to go, then a

block party and then turn on day. Could not be more fun, eh?

We are anxious to see this thru!

Quote of the nanosecond. . .

Life's more painless for the brainless.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

Update

> Just a quick update from me - My HMO insurance approved the " out of area "

> surgery with a great deal of help from the CI Center this past week so we

> are go for the 5/25 date. They had originally turned me down. I really

> didn't think I would be posting a message like this a few months ago. It's

> amazing how quickly things can change.

>

> I started this group several years ago to provide support to individuals

> seeking information about hearing loss and the Cochlear Implant. Never

> did I realize how much I would need your support thru those years. I

> really need it now. I'm sure this is my last chance but it's one I didn't

> expect and a chance I'm eager for with hopes of success and a re-entry

> into the world of sound.

>

> We are going for activation early in July. This will give me 6 weeks to

> heal. I think this is a good length of time considering everything. My

> birthday falls within the dates for my activation. I can't imagine a

> better birthday present than the gift of sound. All I am hoping for is the

> ability to read lips easier. Just a little sound would be so welcome. It's

> pretty amazing how each of us sets our expectations. At this point, I

> really don't want much.

>

> Alice

> http://www..net

>

>

>

> ------------------------------------

>

>

[Guest guest]

Wishing you the very best, Alice! You are such an inspiration and beautiful

person. I hope you'll be hearing again very soon.

Hugs,

a

[Guest guest]

Dear Alice - Prayers going 24/7 for you to get something back after giving

so much! Jackie )

[Guest guest]

You will be in my prayers Alice.  I look forward to your updates as you go

through this process, and wish you all the very best.

 

________________________________

From: ALICE A <alice@...>

Sent: Sun, April 18, 2010 10:06:43 AM

Subject: Update

 

Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

I started this group several years ago to provide support to individuals seeking

information about hearing loss and the Cochlear Implant. Never did I realize how

much I would need your support thru those years. I really need it now. I'm sure

this is my last chance but it's one I didn't expect and a chance I'm eager for

with hopes of success and a re-entry into the world of sound.

We are going for activation early in July. This will give me 6 weeks to heal. I

think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

Alice

http://www.. net

[Guest guest]

Alice I wish you the best in your surgery. I for one have certainly

benefited from the feedback this group provides even though do not post often.

Hope and pray your surgery is a success this time.

Betty Lynch

Bilateral Freedom

Falmouth, MA

[Guest guest]

Alice

I don't know you well.  But I know well enough that you are loved b all.  I wish

you only the best in a hearingi world.  Prayers going up for you.

Have a great day!

Debbie Cole

[Guest guest]

Alice, I will keep you on my prayer list. No one deserves a successful outcome

more than you do. You are the best. Love, Judy

>

> Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

>

> I started this group several years ago to provide support to individuals

seeking information about hearing loss and the Cochlear Implant. Never did I

realize how much I would need your support thru those years. I really need it

now. I'm sure this is my last chance but it's one I didn't expect and a chance

I'm eager for with hopes of success and a re-entry into the world of sound.

>

> We are going for activation early in July. This will give me 6 weeks to heal.

I think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

>

> Alice

> http://www..net

>

[Guest guest]

Alice, I want to join the many people who are sending thoughts and prayers. i

discovered this group almost a year ago, when i was considering CI surgery but

was scared to death and about ready to give up the idea and stick with the

familiar world of deafness. you personally and many others in the group really

got me through it and helped me to change my life more than i thought possible.

i am very grateful to you, and wish you the very best.

>

>

> From: ALICE A <alice@...>

> Subject: Update

>

> Date: Sunday, April 18, 2010, 8:06 AM

>

>

>  

>

>

>

> Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

>

> I started this group several years ago to provide support to individuals

seeking information about hearing loss and the Cochlear Implant. Never did I

realize how much I would need your support thru those years. I really need it

now. I'm sure this is my last chance but it's one I didn't expect and a chance

I'm eager for with hopes of success and a re-entry into the world of sound.

>

> We are going for activation early in July. This will give me 6 weeks to heal.

I think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

>

> Alice

> http://www.. net

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Alice, you may not want much, but WE all want the best and most for you.

And I think this time you're gonna be a winner. You've suffered enough.

Glad the insurance approved you. Swine that they are.

____________________________________________________________

Penny Stock Jumping 2000%

Sign up to the #1 voted penny stock newsletter for free today!

http://thirdpartyoffers.juno.com/TGL3141/4bccecce1028decc4st02duc

[Guest guest]

I'm new here, have joined this group about some day ago. I wish you all the best

Alice!

Ervina

considering cochlear implant

________________________________

From: pyerkes <p.yerkes@...>

Sent: Tue, April 20, 2010 2:29:00 AM

Subject: Re: Update

Alice, I want to join the many people who are sending thoughts and prayers. i

discovered this group almost a year ago, when i was considering CI surgery but

was scared to death and about ready to give up the idea and stick with the

familiar world of deafness. you personally and many others in the group really

got me through it and helped me to change my life more than i thought possible.

i am very grateful to you, and wish you the very best.

>

>

> From: ALICE A <alice@...>

> Subject: Update

> groups (DOT) com

> Date: Sunday, April 18, 2010, 8:06 AM

>

>

> Â

>

>

>

> Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

>

> I started this group several years ago to provide support to individuals

seeking information about hearing loss and the Cochlear Implant. Never did I

realize how much I would need your support thru those years. I really need it

now. I'm sure this is my last chance but it's one I didn't expect and a chance

I'm eager for with hopes of success and a re-entry into the world of sound.

>

> We are going for activation early in July. This will give me 6 weeks to heal.

I think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

>

> Alice

> http://www.. net

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Alice, I wish you all the best on your journey to hearing. I greatly admire your

courage in continuing the process to regain the ability to hear. Thanks for

giving us this supportive group.

Bobbie

>

> Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

[Guest guest]

Thats wonderful news, Alice and an excellent good news start to my day. I wish

you every success in the months ahead.

I must admit, that when you posted a few months ago, about probably never being

able to hear sound again, I thought that life was terribly unfair, in its

randomness.

I think its right and proper and probably Karma too, that a person such as

yourself, who has helped so many others, by starting this group, should still

have some hope for the future.

Ted F.

>

> Just a quick update from me - My HMO insurance approved the " out of area "

surgery with a great deal of help from the CI Center this past week so we are go

for the 5/25 date. They had originally turned me down. I really didn't think I

would be posting a message like this a few months ago. It's amazing how quickly

things can change.

>

> I started this group several years ago to provide support to individuals

seeking information about hearing loss and the Cochlear Implant. Never did I

realize how much I would need your support thru those years. I really need it

now. I'm sure this is my last chance but it's one I didn't expect and a chance

I'm eager for with hopes of success and a re-entry into the world of sound.

>

> We are going for activation early in July. This will give me 6 weeks to heal.

I think this is a good length of time considering everything. My birthday falls

within the dates for my activation. I can't imagine a better birthday present

than the gift of sound. All I am hoping for is the ability to read lips easier.

Just a little sound would be so welcome. It's pretty amazing how each of us sets

our expectations. At this point, I really don't want much.

>

> Alice

> http://www..net

>

[Guest guest]

Debbie,

You first week is wonderful. You guys come to the coast and we will

have a real conversation. The birds are invited too, they make such a nice

background. LOL

Quote of the nanosecond. . .

Classified Ad:

Amana washer $100. Owned by clean bachelor who seldom washed.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

Update

> First of all I would like to thank all of you who have been so kind and

> supportive of me. It really means a lot.

>

> It is still my first week after activation. 2 days of long visits. I

> ahve 2 more coming up the first week of May.

>

> I never was talked to as a child in my family so i did not learn much

> hearing speach but i learned to speak. I am getting words here and there.

> When in the car i hear words and I tell what words I hear and he

> ahs confirmed theya re correct. I can get the weather on the radio. Last

> night we fisited a couple and when i sat down and not looking at him I

> actually understood jerry say Hi Debbie and I turned and said hello then

> turned to and said " hey, I heard him " . I was happy.

>

> Audie, Brook has told me the important thing is to try not to get

> everything right now but at least one or 2 worods. I feel I'm doing well.

>

> In the afternoon yesterday I turned on MTV Classic Rock station and was

> bopping to Zeppelein and AC/DC. I can hear the music great but not the

> words.

>

> Conversation has always been impossible for me.

>

> I will pray that in the future I can understand a conversation.

>

>

>

> ------------------------------------

>

>

[Guest guest]

Thanks robert.

We'll have lunch somewhere.

Have a great day!

Debbie Cole

[Guest guest]

Awesome, Debbie! You are ahead of the scale, honestly! Just think how

much better it is going to get! Jackie )

[Guest guest]

Debbie - you have had an incredible first week!!  I'm really impressed with how

well you are doing already!  You've got the right attitude...be happy with the

little things...and soon the little things will amount up to some really big

improvements!  Some things will take time, but they will come for you, for

sure!

Continue to post your progress!  And enjoy.  What I did for my rehab

was hooked my CI up directly to a MP3 player and listened to my favorite

station.  Over time I gradually picked up more and more words and understanding

music, and now I'm starting to get more and more words from songs which I never

was able to do when I was younger.  You may want to consider doing something

like this, if you enjoy listening to the radio.

You are doing fantastically well!

 

________________________________

From: Deborah <deborah_anne419@...>

Sent: Sun, April 25, 2010 10:30:58 AM

Subject: Update

 

First of all I would like to thank all of you who have been so kind and

supportive of me. It really means a lot.

It is still my first week after activation. 2 days of long visits. I ahve 2 more

coming up the first week of May.

I never was talked to as a child in my family so i did not learn much hearing

speach but i learned to speak. I am getting words here and there. When in the

car i hear words and I tell what words I hear and he ahs confirmed theya

re correct. I can get the weather on the radio. Last night we fisited a couple

and when i sat down and not looking at him I actually understood jerry say Hi

Debbie and I turned and said hello then turned to and said " hey, I heard

him " . I was happy.

Audie, Brook has told me the important thing is to try not to get everything

right now but at least one or 2 worods. I feel I'm doing well.

In the afternoon yesterday I turned on MTV Classic Rock station and was bopping

to Zeppelein and AC/DC. I can hear the music great but not the words.

Conversation has always been impossible for me.

I will pray that in the future I can understand a conversation.

[Guest guest]

Carol - I'm really sorry to hear about your trouble.

You did everything you possibly could, I know.

Please do consider the newer Gastric sleeve also. It is a very good option for

some people - no one procedure is right for everyone.

and please keep in touch!

Sandy r

>

> hi sandy,

>

> my band was removed - doc said my stomach was contorted and up under the liver

attached. he had to cut the liver to pull the stomach back down into place. no

wonder i had so many problems.

>

> going to have gastric bypass in august.

>

> carol krey

>

[Guest guest]

Shea,

When you come to the realization that for you normal means moments of feeling

great and moments of flare it's not always a happy moment. I remember being your

age and thinking how unfair it was that I couldn't have a life that didn't

involve massive amounts of pain and medications that could potentially cause

horrible side effects. However, I came to realize (which I think you have too)

that everyone has something in their life that makes their journey more

difficult some have less and some have more but it is just part of what shapes

you to be who you are. I can see that this experience of having JIA although

painful and horrible as it is has also helped to shape you into an incredibly

loving, giving and compassionate young woman. JIA brings many hardships but it

also brings many gifts; the people you meet, the person you become, and the

courage you grow. You will achieve many amazing things in your life, that I am

sure of, and yes some of those things

will be tarnished a bit by flares and some days will work out perfect but in

the long run you will look back at those accomplishments and remember you did

that despite the JIA. You are an amazing person! Keep up the good work.

With Love,

(MCTD, 25)

From: Shea Reasoner <sheareasoner1@...>

Subject: update

Date: Wednesday, July 21, 2010, 5:40 AM

 

Hey everyone I know that most of you know how I have been doing but I just

wanted to give a solid update. Well, I have 3 requests and it's the busiest

Knots of Hope has ever been. There's now chat room on the website and it's all

been a great success. I am so thankful for all of the blanket people. The kids

are adorable and they sound awesome. I am so happy to be able to work with these

kids. I was able to attend a lovely arthritis camp in Winder Georgia, it was an

amazing. I am so happy to write this update because I have something positive to

say. As you guys know it was always, flare, flare, flare. Now, things are well,

normal. If feels so weird typing that, I am so used to telling people that I

just want to be normal. I went to my pain doctor, we now know that my brain is

so used to giving me pain, that it goes overboard. When I first saw my pain

doctor I was at a low point. She only saw me when I was crying 24/7. I had to

use a chair to get up on the exam table, because it hurt to bad to jump up. I

hopped up on the table and Dr. Venable looked amazed. She Thought I was doing so

well that she brought in 4 different doctors, to show off I guess. I went to see

the rhuemy and thumbs up from her. It's so crazy, I get settled and there's

good news every where and......BOOM a flare. I am so used to that now I will

never be able to really enjoy regular life, because it will always be on the

back burner. This will be the first time i have ever typed this but, the huge

announcement on the video was that I am going to see my congressman in the fall.

I am so excited and I can't wait to tell him about your amazing kids. I know

that I am not the only kid that needs to be spoken for at this meeting. Right

now, the government spends 9.8 million dollars on research. But that's only $32

for each kid. So, I have no clue what I am going to say! Feed my brain ideas!!

Pretend like I am handing you play doh, help me mold it!

(ps never tell your kids to be creative, tell them to do something that only

they could think of)

(pps that was from a study in a magazine)

Thanks!!

Shea Reasoner

[Guest guest]

Beautifully said . You are a prime example of living your life to the

fullest even with having JA. When I hear of how well you, in addition to the

many other young adults here, are living and going on in spite of this disease,

I am in awe. I hope that Shea and the other teens and tweens here take your

advice to heart. You are all truly a role models.

I just realized the new name!! Congrats on your wedding! Any place to see some

pics? How did it all go? Hugs, Michele

..

________________________________

From: [mailto: ] On Behalf Of

Codianne

Sent: Wednesday, July 21, 2010 9:46 AM

Subject: Re: update

Shea,

When you come to the realization that for you normal means moments of feeling

great and moments of flare it's not always a happy moment. I remember being your

age and thinking how unfair it was that I couldn't have a life that didn't

involve massive amounts of pain and medications that could potentially cause

horrible side effects. However, I came to realize (which I think you have too)

that everyone has something in their life that makes their journey more

difficult some have less and some have more but it is just part of what shapes

you to be who you are. I can see that this experience of having JIA although

painful and horrible as it is has also helped to shape you into an incredibly

loving, giving and compassionate young woman. JIA brings many hardships but it

also brings many gifts; the people you meet, the person you become, and the

courage you grow. You will achieve many amazing things in your life, that I am

sure of, and yes some of those things

will be tarnished a bit by flares and some days will work out perfect but in the

long run you will look back at those accomplishments and remember you did that

despite the JIA. You are an amazing person! Keep up the good work.

With Love,

(MCTD, 25)

From: Shea Reasoner <sheareasoner1@...<mailto:sheareasoner1%40>>

Subject: update

<mailto: %40>

Date: Wednesday, July 21, 2010, 5:40 AM

Hey everyone I know that most of you know how I have been doing but I just

wanted to give a solid update. Well, I have 3 requests and it's the busiest

Knots of Hope has ever been. There's now chat room on the website and it's all

been a great success. I am so thankful for all of the blanket people. The kids

are adorable and they sound awesome. I am so happy to be able to work with these

kids. I was able to attend a lovely arthritis camp in Winder Georgia, it was an

amazing. I am so happy to write this update because I have something positive to

say. As you guys know it was always, flare, flare, flare. Now, things are well,

normal. If feels so weird typing that, I am so used to telling people that I

just want to be normal. I went to my pain doctor, we now know that my brain is

so used to giving me pain, that it goes overboard. When I first saw my pain

doctor I was at a low point. She only saw me when I was crying 24/7. I had to

use a chair to get up on the exam table, because it hurt to bad to jump up. I

hopped up on the table and Dr. Venable looked amazed. She Thought I was doing so

well that she brought in 4 different doctors, to show off I guess. I went to see

the rhuemy and thumbs up from her. It's so crazy, I get settled and there's

good news every where and......BOOM a flare. I am so used to that now I will

never be able to really enjoy regular life, because it will always be on the

back burner. This will be the first time i have ever typed this but, the huge

announcement on the video was that I am going to see my congressman in the fall.

I am so excited and I can't wait to tell him about your amazing kids. I know

that I am not the only kid that needs to be spoken for at this meeting. Right

now, the government spends 9.8 million dollars on research. But that's only $32

for each kid. So, I have no clue what I am going to say! Feed my brain ideas!!

Pretend like I am handing you play doh, help me mold it!

(ps never tell your kids to be creative, tell them to do something that only

they could think of)

(pps that was from a study in a magazine)

Thanks!!

Shea Reasoner

[Guest guest]

Thank you so much !!

Shea Reasoner

________________________________

From: Codianne <lecodianne@...>

Sent: Wed, July 21, 2010 10:45:48 AM

Subject: Re: update

Shea,

When you come to the realization that for you normal means moments of feeling

great and moments of flare it's not always a happy moment. I remember being your

age and thinking how unfair it was that I couldn't have a life that didn't

involve massive amounts of pain and medications that could potentially cause

horrible side effects. However, I came to realize (which I think you have too)

that everyone has something in their life that makes their journey more

difficult some have less and some have more but it is just part of what shapes

you to be who you are. I can see that this experience of having JIA although

painful and horrible as it is has also helped to shape you into an incredibly

loving, giving and compassionate young woman. JIA brings many hardships but it

also brings many gifts; the people you meet, the person you become, and the

courage you grow. You will achieve many amazing things in your life, that I am

sure of, and yes some of those things

will be tarnished a bit by flares and some days will work out perfect but in the

long run you will look back at those accomplishments and remember you did that

despite the JIA. You are an amazing person! Keep up the good work.

With Love,

(MCTD, 25)

From: Shea Reasoner <sheareasoner1@...>

Subject: update

Date: Wednesday, July 21, 2010, 5:40 AM

Hey everyone I know that most of you know how I have been doing but I just

wanted to give a solid update. Well, I have 3 requests and it's the busiest

Knots of Hope has ever been. There's now chat room on the website and it's all

been a great success. I am so thankful for all of the blanket people. The kids

are adorable and they sound awesome. I am so happy to be able to work with these

kids. I was able to attend a lovely arthritis camp in Winder Georgia, it was an

amazing. I am so happy to write this update because I have something positive to

say. As you guys know it was always, flare, flare, flare. Now, things are well,

normal. If feels so weird typing that, I am so used to telling people that I

just want to be normal. I went to my pain doctor, we now know that my brain is

so used to giving me pain, that it goes overboard. When I first saw my pain

doctor I was at a low point. She only saw me when I was crying 24/7. I had to

use a chair to get up on the exam table, because it hurt to bad to jump up. I

hopped up on the table and Dr. Venable looked amazed. She Thought I was doing so

well that she brought in 4 different doctors, to show off I guess. I went to see

the rhuemy and thumbs up from her. It's so crazy, I get settled and there's

good news every where and......BOOM a flare. I am so used to that now I will

never be able to really enjoy regular life, because it will always be on the

back burner. This will be the first time i have ever typed this but, the huge

announcement on the video was that I am going to see my congressman in the fall.

I am so excited and I can't wait to tell him about your amazing kids. I know

that I am not the only kid that needs to be spoken for at this meeting. Right

now, the government spends 9.8 million dollars on research. But that's only $32

for each kid. So, I have no clue what I am going to say! Feed my brain ideas!!

Pretend like I am handing you play doh, help me mold it!

(ps never tell your kids to be creative, tell them to do something that only

they could think of)

(pps that was from a study in a magazine)

Thanks!!

Shea Reasoner