update

[Guest guest]

Yeah, Tammie ..

Glad to hear no rheumatoid arthritis... seems lots of symptoms do come from

the hep c...

fairing well here on the living with hep c trip,

Dawn

[Guest guest]

Doctors and all their rules...I just hate that they think they have

the right to determine how and when you get the results to tests.

And it's always a long wait when you're waiting for critical test results.

Good news about the RH...

Tatezi

I had the biopsy done on the 4th of this month and will not be

> able to get the results until the 15th. The doc is out of the office

> and they will not give the results over the phone.

[Guest guest]

Good for you Faiv !!!!!!!!!! Bravo, glad you are doing so well !!!!!

Dana

> Hi Guys,

> I am still on half a pill (0.5) Lex in the evening. Feeling a bit

better, less headaches, les

> anxiety. I have been aboe to cut down on the xanax significantly.

Not exactly bursting with

> energy though I must say...

> Best,

> Faiv

[Guest guest]

Hi Evel,

Do you live in Rochester? Are you active in the BIG CI group there? Craig and

Jackie Carpenter's group?

I met Jackie at the UNYCIC dessert party last summer.

That's neat that your brother is going thru a CI eval. I hope things go

smoothly for him!

Good luck with your surgery!! Are you having it done in Rochester, or Buffalo,

or where?

S.

upstate NY

CII 5/01

~~~~~~~~~~~~~~~~~~

----- Original Message -----

From: evel339

Hi all,

I know it's been a while since I have posted.. Been busy at work,

home and riding my snowmobile )

My surgery is April 1st. We just had a family of 4 in Rochester NY

that ALL had CI's within weeks of each other.. It made the front page

of the local paper..The following day everyone was asking me if I

read it.. Since we only get the paper on weekend's I had not..Well,

someone saved me a copy and when I read it I was suprised to see that

I know the Father!) He worked part time for a friend of mine who

is the manager of Sprint Relay in NY. He taught me how to use a TTY

for the first time,and how to make a 2-line VCO call.. Great guy..He

also had the same Doctor that I have.. Also my brother is going thru

the cantidate process right now..

That's it for now.. I am sure I will have lots of time to write after

my surgery )

Cheers,

Evel

[Guest guest]

Wow..your surgery is on Thursday. You must be experiencing all the emotions

right now that go with this. I had read the story about the family in Rochester

- especially intersting since my son and his family live in the area. It's

pretty amazing and reminds me of 's family.

Good luck with your surgery. We will be anxious to hear from you when you are

able. How exciting that your brother is going thu the candidate process right

now as well. I bet he's going to be watching you very closely.

It was nice to hear from you again.

Alice

Hi all,

I know it's been a while since I have posted.. Been busy at work,

home and riding my snowmobile )

My surgery is April 1st. Evel

[Guest guest]

Thanks.. Actually i have been so busy at work I have not had a chance

to think about my surgery much.. I put in 14 hrs yesterday.. I am off

today and I Need to rest up for tomorrow.. Yes my brother is very

much like my 9 yr old daughter right now ) 50 questions everytime I

see him ) I will keep you posted..

Cheers,

Evel

> Wow..your surgery is on Thursday. You must be experiencing all the

emotions right now that go with this. I had read the story about the

family in Rochester - especially intersting since my son and his

family live in the area. It's pretty amazing and reminds me of

's family.

>

> Good luck with your surgery. We will be anxious to hear from you

when you are able. How exciting that your brother is going thu the

candidate process right now as well. I bet he's going to be watching

you very closely.

>

> It was nice to hear from you again.

>

> Alice

>

>

> Hi all,

> I know it's been a while since I have posted.. Been busy at

work,

> home and riding my snowmobile )

>

> My surgery is April 1st. Evel

>

>

>

>

>

[Guest guest]

I live in Geneseo and work in Rochester..Yes i know Craig via

emails.. Have not had the time to get together to meet in person yet,

and have not attended any events that his group has yet.. I will..

Surgery will be in Rochester with Dr. Dutcher.

Cheers,

Evel

> Hi Evel,

>

> Do you live in Rochester? Are you active in the BIG CI group

there? Craig and Jackie Carpenter's group?

> I met Jackie at the UNYCIC dessert party last summer.

>

> That's neat that your brother is going thru a CI eval. I hope

things go smoothly for him!

>

> Good luck with your surgery!! Are you having it done in

Rochester, or Buffalo, or where?

>

> S.

> upstate NY

> CII 5/01

> ~~~~~~~~~~~~~~~~~~

>

>

> ----- Original Message -----

> From: evel339

>

> Hi all,

> I know it's been a while since I have posted.. Been busy at

work,

> home and riding my snowmobile )

>

> My surgery is April 1st. We just had a family of 4 in Rochester

NY

> that ALL had CI's within weeks of each other.. It made the front

page

> of the local paper..The following day everyone was asking me if I

> read it.. Since we only get the paper on weekend's I had

not..Well,

> someone saved me a copy and when I read it I was suprised to see

that

> I know the Father!) He worked part time for a friend of mine

who

> is the manager of Sprint Relay in NY. He taught me how to use a

TTY

> for the first time,and how to make a 2-line VCO call.. Great

guy..He

> also had the same Doctor that I have.. Also my brother is going

thru

> the cantidate process right now..

> That's it for now.. I am sure I will have lots of time to write

after

> my surgery )

>

> Cheers,

> Evel

>

>

>

>

>

[Guest guest]

Hi ,

Sounds like things are a bit rough around the edges for you so stick

close and let us try to help you make it better. Do you know any of

the particulars of your mapping. If not.. ask for a print out when

you go the next time so you have the information.

What is amazing about the CI is the suddeness of how your brain can

accept the sound and make it work for the user. I'm hoping that

this is the case for you but perhaps you will be one of those who

will need to practice and persevere. We are all so different. In

fact.. I really don't know what to expect on Monday when we activate

the new implant. It is very likely to sound much different than I'm

used to and nothing like I heard a year ago. Even in the same

person, re-implanted, there is no guarantee that the sound will be

what you expect.

Let us help you because this is what we are here for. Share what

specific things sound like. Water is a given. It not a pleasant

sound when you are first hooked up. If you have an auto-

sensitivity program, you can use that to tone it down.

There are a few books on the market about CI's and it's a good idea

to read them if you haven't already. I hope you got 's

Journal because it's very well written and gives valuable

information. Be on the lookout because I too am in the process of

writing a book - sharing experiences both good and bad. The more we

can inform others, the better their understanding will be.

I'm hoping that today you will recognize some nice sounds. Maybe

some birds or a music box. Things will improve - I'm sure.

Hugs!

Alice

[Guest guest]

In a message dated 4/7/2004 7:18:38 PM Pacific Standard Time,

hobbes@... writes:

As for birds... well they just don't seem to

want to be out and singing when I get off work

give it time, it took me about a week before i started hearing crows, even

though crows are everywhere. I was told it has something to do with " teaching "

the brain what the sounds is, otherwise it " won't " tell you.

Lee

[Guest guest]

In a message dated 4/7/2004 10:49:45 PM Pacific Standard Time,

rlclark77@... writes:

Go outside early in the morning, that is usually when the birds

sing (talk? gossip?)the most.

you mean " natural alarm clock " ? jk Good thing we don't have to wake up to

them.

Lee

[Guest guest]

In a message dated 4/7/2004 11:13:16 PM Pacific Standard Time,

rlclark77@... writes:

Actually, I would not mind the birds as my alarm clock. LOL

wow,, you mind waking up at 5am?? me.. a late one!..... rather wake at 9am.

Lee

[Guest guest]

Hi Alice, yes things are a bit rough, but livable at the moment. One thing

I have noticed is that voices tend to drop in volume by evening. I was

talking to my neighbor and noticed it so switched to the P2 but it made her

voice more hollow sounding. As for birds... well they just don't seem to

want to be out and singing when I get off work Guess if it isn't

raining this weekend I might get a chance. I will be getting a new

mapping when I go back the 29th (got an email from the audi telling me

that) and she thinks it will help alot. Will be nice when things are not

so many beeps and whooses

susan & hobbes

michigan

At 02:28 PM 4/7/2004 +0000, you wrote:

>Hi ,

>

>Sounds like things are a bit rough around the edges for you so stick

>close and let us try to help you make it better. Do you know any of

>the particulars of your mapping. If not.. ask for a print out when

>you go the next time so you have the information.

>

>What is amazing about the CI is the suddeness of how your brain can

>accept the sound and make it work for the user. I'm hoping that

>this is the case for you but perhaps you will be one of those who

>will need to practice and persevere. We are all so different. In

>fact.. I really don't know what to expect on Monday when we activate

>the new implant. It is very likely to sound much different than I'm

>used to and nothing like I heard a year ago. Even in the same

>person, re-implanted, there is no guarantee that the sound will be

>what you expect.

>

>Let us help you because this is what we are here for. Share what

>specific things sound like. Water is a given. It not a pleasant

>sound when you are first hooked up. If you have an auto-

>sensitivity program, you can use that to tone it down.

>

>There are a few books on the market about CI's and it's a good idea

>to read them if you haven't already. I hope you got 's

>Journal because it's very well written and gives valuable

>information. Be on the lookout because I too am in the process of

>writing a book - sharing experiences both good and bad. The more we

>can inform others, the better their understanding will be.

>

>I'm hoping that today you will recognize some nice sounds. Maybe

>some birds or a music box. Things will improve - I'm sure.

>

>Hugs!

>Alice

[Guest guest]

,

Go outside early in the morning, that is usually when the birds

sing (talk? gossip?)the most.

*---* *---* *---* *---* *---*

" I want to share something with you - the three sentences that will

get you through life. Number one, 'cover for me.' Number two, 'oh,good

idea, boss. Number three, 'it was like that when I got here.' "

--Homer Simpson

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

Oh I heard bluejays with my HA's. so crows will be not much difference

susan & hobbes

At 10:21 PM 4/7/2004 -0400, you wrote:

>In a message dated 4/7/2004 7:18:38 PM Pacific Standard Time,

>hobbes@... writes:

>As for birds... well they just don't seem to

>want to be out and singing when I get off work

>

>give it time, it took me about a week before i started hearing crows, even

>though crows are everywhere. I was told it has something to do with

> " teaching "

>the brain what the sounds is, otherwise it " won't " tell you.

>

>Lee

>

>

>

[Guest guest]

Lee,

Actually, I would not mind the birds as my alarm clock. LOL

Gotta be better than radio, who'd want to wake up to the likes of Rush

or ?

*---* *---* *---* *---* *---*

No one is listening until you make a mistake.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

Well Lee, truth be told, we usually dont get up til about 8. LOL

Then I gotta get up and take the doggie out to do her thing and while

she is doing that, I listen to the birds. Such a life, eh?

*---* *---* *---* *---* *---*

I saw Elvis. He sat between me and Bigfoot on the UFO.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

and that is when I am at work it is still a bit cold here in the

mornings, I am waiting for it to warm up a bit. I did take a walk this

afternoon but couldnt tell if I was hearing anything. am going to wait

until a friend is with me so they can let me know if there are any birds ...

susan & hobbes

michigan

At 07:28 PM 4/7/2004 -0700, you wrote:

>,

> Go outside early in the morning, that is usually when the birds

>sing (talk? gossip?)the most.

>

>*---* *---* *---* *---* *---*

> " I want to share something with you - the three sentences that will

>get you through life. Number one, 'cover for me.' Number two, 'oh,good

>idea, boss. Number three, 'it was like that when I got here.' "

>--Homer Simpson

> & Gimlet (Guide Dawggie)

>Portland, Oregon

>N24C 3G 8/2000 Hookup

>rlclark77@...

><http://home.comcast.net/~rlclark77/>http://home.comcast.net/~rlclark77/

>

>

>

>

>

[Guest guest]

I wake up to neither.. I have a shake awake... if I had to use the radio

the neighbors would be waking up to the same thing

susan & hobbes

michigan

At 10:55 PM 4/7/2004 -0700, you wrote:

>Lee,

> Actually, I would not mind the birds as my alarm clock. LOL

>Gotta be better than radio, who'd want to wake up to the likes of Rush

>or ?

[Guest guest]

,

Be your luck you get the gossipers, the cuckoos and crows. LOL I

just got wind chimes and sit out on the balcony sometimes while

reading Harry Potter. Ahh the life of Riley. Oh I am so sorry, you

say its still cold there?

(dont mind this fella, he is just a punny guy doncha know)

*---* *---* *---* *---* *---*

" If we don't succeed, we run the risk of failure. "

--Al Gore

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

very cold... just got back from a walk and was bundled up. But still love

it Harry Potter? I need to see if the newest book is out in paperback

yet so I can read it.

susan & hobbes

michigan

At 09:54 PM 4/8/2004 -0700, you wrote:

>,

> Be your luck you get the gossipers, the cuckoos and crows. LOL I

>just got wind chimes and sit out on the balcony sometimes while

>reading Harry Potter. Ahh the life of Riley. Oh I am so sorry, you

>say its still cold there?

>

>(dont mind this fella, he is just a punny guy doncha know)

>*---* *---* *---* *---* *---*

> " If we don't succeed, we run the risk of failure. "

>--Al Gore

> & Gimlet (Guide Dawggie)

>Portland, Oregon

>N24C 3G 8/2000 Hookup

>rlclark77@...

><http://home.comcast.net/~rlclark77/>http://home.comcast.net/~rlclark77/

>

>

>

>

>

[Guest guest]

Cold? I am about to drag my fans out! 5 books. Book 5 is a

monster I hear. Prolly wont get to that this year unless I learn to

speed read, hehehe.

*---* *---* *---* *---* *---*

A smile is the same in any language.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

[Guest guest]

Be careful getting on a plan for Maui with a coil of wire.

jackson

update

Here's an update from the friend who got good relief of his back pain with

my 12v, 8 " , 50' of #12 double wire coil magnet pulserl:

" Dick: My son has been in a lot of pain and oxycoden has not brought any

relief. I just put the coil on his ankle and did a treatment and the pain

was gone imediately. He has to leave Tuesday to go back to Maui, where he

lives, and he was asking me if you had a harness made and for sale and

without the battery. I would like to get one for him. If none are

available, would you make one for me and I will send it to him at a later

date. I will pay for the parts and labor. Let me know right away if you

will.

Jim "

Note: His son has stress fractures in both feet that have not healed for

some time. The md put one foot in a cast to see if immobilization would

help. It was his other foot that was giving him pain, but he said that it

worked on the one in the cast also. My thought is that possibly the magnetic

pulsing could also promote healing of the fractures. He said that he could

feel the pulsing in the bones and muscles. He will keep me posted, and I

will send him the link to our group, so he can join and research the

experiments.

Dick

The group's main page has a menu to the left, with photos of Godzilla devices

and other things useful in research. These are free to members. Membership is

free, but you agree to be on your own, not take our freedom of speech as medical

advice. We are not doctors! Repeat, we are ordinary lay people, not experts,

not healthy officials, or geniuses of any kind. The information on this group

is not intended as medical advice. Most group members are NOT doctors or health

authorities. Please do not request medical advice, lest anyone get into trouble

out of human compassion. There are huge fines and issues currently involved

with unlicensed medical advice. The group is only here to share experiences

according to the theme of the group, namely testing if electrical stimulus might

inactivate microbes, as it seems to have done in the Einstein Medical College

labs. We are interested in your results, but cannot say anything a! bout

repeatability, or whether this might have medical benefits. Thanks, for your

understanding, good luck researching. --bG

[Guest guest]

Hi ,

It's great to hear how is progressing and it sounds like she

is right there where many 2 year olds are. You are right in saying

it's sometimes difficult to decipher what any 2 year old is

saying .. they vary greatly and this is true for hearing children

too. I have a 2 1/2 yr old grandson living with me and some days

he's clear as a bell, the next he'll be jabbering who knows what.

Give this little gal some time and I'll bet by the time she's in

Kindergarten she'll be right on schedule with her peers.

I'm so happy you now have the chance to share your story with others

so they can see how much has benefited in such a short time.

I hope all continues to go well for you and your " little genius "

<smiles>

Please keep in touch and let us know how things are going.

I love these success stories.

Hugs,

Silly MI

In , " tahoetreefort " <tahoetreefort@y...>

wrote:

> I have not posted in a while about 's progress, so here

goes...

>

> We continue to be very happy with our decision to implant ,

> who is now 2½. She has been " turned on " for 4½ months now and

> actually has auditory receptive language, just amazing. Last week

at

> AVT she pointed out 17 of 18 pictures of the words the thereapist

> said, these are equal amounts of 1, 2 and 3 syallable words. Her

> therapist calls her a genius!

>

> She now says about 10 words, most people might not understand her,

> but isn't this common for a hearing child?

>

>>

> Mom to

> N24C

[Guest guest]

> Hey Everyone....Just spoke to Nina and is getting ready to

go

> into surgery in about 30 minutes. He is pretty nervous and they

have

> given him something to relax him.

> Nina said she will dispatch me when he is out of surgery and I will

> post an update here.

>

> I told her to let him know we are all thinking of him and praying

for

> him.

>

> Maggie

Ohhh wonderful Maggie! Glad to hear so far so good! Hey I posted a

few pictures look under " Debi " in photos. Next time you talk to

Nina, tell her I said Hey and give Dr. A a hug for me! hahah! Keep

us posted on !

[Guest guest]

Trish,

One of the things that I have seen after someone has had a cochlear implant is

the rapid loss of fear and an wonderful increase in amount of confidence they

feel about themselves. So many of us use this confidence to speak before groups

and share the miraculous changes that have taken place because the implant

allows us to be more in tune with those around us. I'm so glad to see that you

have experieced this already but more excited for your new abilities to hear and

enjoy things that so many take for granted. These events bring new experiences

and great pleasure. They are CI moments and we love hearing about them. No

matter how small they may seem to some, they are not small accomplishments to

us.

Enjoy your day today. You've earned every bit of this.

Alice

>

> Over the past week I have been in great demand.  Everyone wants to test my

hearing and I'm having a ball.  This past thursday I went to a CI group meeting

where I spoke to the group about my experiences with the CI.  Stood at the front

of the room with a microphone.  Trish