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Kit, you should put all your nutritional advice into a book. I've never seen

so many breakfast combos in one place. You have an amazing amount of

knowledge and useful, practical help. I have so many of your e mails pasted

in my book that soon I'll be accused of stalking you LOL! Leaner.

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  • 9 years later...
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Kristal,

I can't answer your question about what might be causing this, but can offer the

following after my own experience of 7 years of recurrent but significantly

decreasing infections.

1) Avoid using broad spectrum antibiotics. Insist that a culture and

sensitivity test be taken before antibiotics are administered. Results take 3-5

days. Often it's not possible to wait that long before treating, but if the

antibiotic is wrong then it can be changed without having to wait for more

symptoms. Sometimes there's more than one bacteria in play so symptoms will

initially subside with an antibiotic because it's effective with one bacteria

but nt the other(s).

2) Be sure this new infection is not fungal before treating it with

antibiotics. Always take a probiotic supplement, and increase the frequency

during and for 2 weeks after taking antibiotics.

3) It may be time to ramp up bathing hygiene precautions while Brett is more

vulnerable. I always only use washcloths and towels only once. Because I'm

small I get away with just one washcloth for wet and one for dry per bath;

smaller cloths keep laundry volume down. During these times I ramp up

hand-washing and glove use. I also change sheets more often, don't wear

clothing twice, scrub out orthotic equipment, and wipe down door knobs, light

switches, remote controls, phones, and computer peripherals with a 10% bleach

solution once or twice a week.

4) Increase hydration and reduce sugar.

5) If infections persist, get a referral to an Infectious Disease Specialist.

My doctor, Yenjean Hwang, has saved my life by protecting me from willy-nilly

antibiotic use.

I hope this helps!

Alana

>

> Hello! I hope everyone is well. I have a few questions that maybe someone may

be able to help with. In early April, Brett had a g-tube infection that got

really bad. Keep in mind, Brett has had only 2 minor infections in 6 years. But

it was very warm to the touch, puffy, painful and had brown pus. He was on

antibiotics and got over it. Then he got a fungal infection in the creases of

his legs around his privates from wearing diapers while he was on the

antibiotic- caused explosive bowel movements. We got cream and he got over it.

Then he came down with a cold, which he still has.....going on week 4. (And yes

we are doing IPV, postural drainage, nebs, cough assist and Bi-Pap). And

yesterday in mid day, his tube site started to look exactly like it did last

month. Needless to say I am exhausted and frustrated and just wanna freakin'

scream.

>

> BUT my question is could he have something underlying causing this? I have

been searching online trying to find info about different bacterial infections

but nothing really. Just wondering if there might be something else to all of

this. We have not changed any supplements or bathing rituals...just kind of at a

loss trying to figure out how to get this kid healthy again. Wondering if anyone

had any input...guess we will go back to the doctor again next week. Any

thoughts would be appreciated. Most of the time I feel like an old pro but kinda

lost on this...

>

> Kristal- Mom to Brett- SMA II- 10 years old

> Visit Brett @ www.our-sma-angels.com/brett

> OR www.caringbridge.org/visit/brettwilson

>

> --

> To post, send your email to smasupportgooglegroups

> For digest & archive options, visit http://groups.google.com/group/smasupport

>

>

>

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  • 8 months later...

Hi Bee,

Im wondering a few things:

1. Is avacado ok on the diet

2. Is canned tuna ok on the diet

....and third, Im wondering if I can progress while taking .50 of a

benzodiazapine. 6 months ago I began the diet very loosely and I found that I

was always exhausted and overly irritable with everyone and so at my request the

doctor prescribed Ativan while I healed. Being that I kept cheeting on my diet,

Im still taking this drug to help me feel more awake and to be civil to my

family and friends. I don't want to stay on this drug forever so I tried 2 days

without it and I felt as if gravity were pulling me back to the bed all day long

and I felt fearful of going out because I felt so sick and tired as well as

acutely annoyed at everybody. I've been steady without cheeting for about a

week now (cheeting even once worsens my symptoms on an ongoing basis). So I'm

ready to give it my all on this diet, but I want to make sure that temporarily

staying on Ativan won't hinder or altogether prevent my progress. Thanks again

Bee

Lore

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>

> Hi Bee,

>

> Im wondering a few things:

>

> 1. Is avacado ok on the diet

> 2. Is canned tuna ok on the diet

+++Hi Lore. All you need to do is check the Food List and you'll see both of

them are on it:

http://www.healingnaturallybybee.com/articles/foodslist.php

>

> ...and third, Im wondering if I can progress while taking .50 of a

benzodiazapine. 6 months ago I began the diet very loosely and I found that I

was always exhausted and overly irritable with everyone and so at my request the

doctor prescribed Ativan while I healed. Being that I kept cheeting on my diet,

Im still taking this drug to help me feel more awake and to be civil to my

family and friends. I don't want to stay on this drug forever so I tried 2 days

without it and I felt as if gravity were pulling me back to the bed all day long

and I felt fearful of going out because I felt so sick and tired as well as

acutely annoyed at everybody. I've been steady without cheeting for about a

week now (cheeting even once worsens my symptoms on an ongoing basis). So I'm

ready to give it my all on this diet, but I want to make sure that temporarily

staying on Ativan won't hinder or altogether prevent my progress. Thanks again

Bee

+++Staying on Ativan and other drugs can either slow or stop your progress.

You shouldn't stop them entirely and instead lower your doses gradually, even if

the dose size means you take them every other day, then every 3 days and so on.

It is normal to feel really bad for awhile after going off drugs because you

body will then become able to detoxify them, so you may have to endure such

symptoms in the meantime.

Bee

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