Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Also MMS is a oxidant for that reason I would dose high on C 2 hours after my last dose of MMS1. For MMS2 medication and vitamins will not matter. MMS2 is calcium hypochlorite when activated with water makes hypochlorous acid , which is what the immune system uses to fight disease. http://www.puricore.com/technology_humanbody.aspx http://www.mms2.org/ > > > > > > >>> > > > > > > >>>>When you move, you have to prevent them from... > > > > > > >>> > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Buy mms2 or mms1 anywhere you like, my best experiences is with keavys corner. http://keavyscorner.com/index.php?main_page=index & cPath=61 > > > > > > > >>> > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > >>> > > > > > > > >> > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Thanks -- after spending 5 days in the psych unit after going to my PCP I am not ready to go to another doctor right now. They think you are delusional. On Tue, Dec 13, 2011 at 8:51 PM, Elissa <elissarachel@...> wrote: Dismissed by my primary care dr. too. Ended up in tears with him patronizing me more...didn't see him again. Lyme doctors were great to me though! Hang in there. You just have to find the right dr. On Dec 13, 2011 8:45 PM, " healinghope " <mfrreman@...> wrote: Also taking daily baths with MMS1 helps while taking internally. Use no soap with the bath just MMS. I scrubbed good with lye soap in shower, and shampooed with lye, then rinsed well and soaked. > > > > > >> > > What Dr. prescribes ... > > > *From:* " Goldstein@ " <Goldstein@>> > > *To:* bird mites > > > *Sent:* Tuesday, December 6, 2011 5:03 PM > > > *Sub...> > > **bird mites > > > *Sent: *Tuesday, December 6, 2011 1:01:30 PM > > > *S...> > > *An:* " bird mites " <bird mites > > > > *Gesendet:* 1:30 Die...> > > *To:* bird mites > > > *Sent:* Monday, December 5, 2011 5:22 PM > > > *Subje... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I would also add MSM to your MMS treatment, these are very different, both are oxidants. MSM is a derived of DMSO and Epsom salt is a derived of MSM. I took mine with Vitamin C 2 hours after my last dose of MMS1. I also take flower of sulfur.Make sure the flower of sulfur is USP grade. http://www.pennherb.com/sulphur http://www.falconblanco.com/health/msm/faq.html > > > > > > >>> > > > > > > >>>>When you move, you have to prevent them from... > > > > > > >>> > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 http://www.arthritis-msm-supplements.com/faq.htm http://www.enzymestuff.com/epsomsalts.htm > > > > > > > >>> > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > >>> > > > > > > > >> > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Not sure if I can take MSM due to the intolerances I have, but I eat some garlic everyday.On Tue, Dec 13, 2011 at 9:09 PM, healinghope <mfrreman@...> wrote: I would also add MSM to your MMS treatment, these are very different, both are oxidants. MSM is a derived of DMSO and Epsom salt is a derived of MSM. I took mine with Vitamin C 2 hours after my last dose of MMS1. I also take flower of sulfur.Make sure the flower of sulfur is USP grade. http://www.pennherb.com/sulphur http://www.falconblanco.com/health/msm/faq.html > > > > > > >>> > > > > > > >>>>When you move, you have to prevent them from... > > > > > > >>> > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I would also make MSM water use this water to make liquid soap. Here is also a recipe to use MMS1 and MSM to make a drink with water. It is bitter but a fungal germ killer. http://www.cancertutor.com/faq/faq_MSM.html > > > > > > > > >>> > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > >>> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 how about flower of sulfur internally, or epsom salt baths, you will absorb the magnesium sulfate., > > > > > > > > >>> > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > >>> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Where do you get flowers of sulfur?On Tue, Dec 13, 2011 at 9:22 PM, healinghope <mfrreman@...> wrote: how about flower of sulfur internally, or epsom salt baths, you will absorb the magnesium sulfate., > > > > > > > > >>> > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > >>> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 http://www.pennherb.com/sulphur > > > > > > > > > > >>> > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > >>> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 This guy sells the sulfur wafers, and a skin cream. http://morgone.com/Lemon-Cream-of-Tartar-TM-with-Sulfur-30SulfurTabs.htm http://morgone.com/main.sc;jsessionid=1BBD8A6D93C66FD8F44AA9ECF6CB28DD.qscstrfrn\ t02 > > > > > > > > > > > >>> > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > >>> > > > > > > > > > > > >> > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I also while infested infected would blend flower of sulfur with a small amount of olive oil and then use blender or mixer and blend into liquid lye soap for body and hair. > > > > > > > > > > >>> > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > >>> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Did you feel really bad with MMS? But sometimes things can't get any worse...On Tue, Dec 13, 2011 at 9:25 PM, healinghope <mfrreman@...> wrote: http://www.pennherb.com/sulphur > > > > > > > > > > >>> > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > >>> > > > > > > > > > > >> > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I will be curious to see if Bert's new spray is MMS1, or 2? I am ready to release my new Spray for retail sale. Testing has taught us that it is most effective when used after showering and left on for at least 2 hours. It is a significant step toward a permanent solution. http://morgone.com/main.sc;jsessionid=1BBD8A6D93C66FD8F44AA9ECF6CB28DD.qscstrfrn\ t02 > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I took the hefty protocol, if you pulse and go slow it will be easier. Getting over this is no picnic, it will be tougher in the beginning then you will start to strengthen and the beast will slowly let go, and the infestation. For me this was a infection and infestation. > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 nope his spray is herbs and aloe vera. wow not cheap either! A blend of oils and aloe vera that help cleanse skin. http://morgone.com/2-Cup-Refill-of-Berts-Body-Spray-2xBodySpray01.htm > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Thanks for the encouragement. I'm tired of living like this right now, and wanting to get better. I wish I could explain the sensitivities I have to things -- there are so many things I just cannot eat or take -- I start to feel really nervous, myt toes or hands swelll, then sometimes I can't sleep. I have never heard of whatever is going on with that. No one seems to understand -- I'm sure a doctor would think I have a loose screw. On Tue, Dec 13, 2011 at 9:36 PM, healinghope <mfrreman@...> wrote: I took the hefty protocol, if you pulse and go slow it will be easier. Getting over this is no picnic, it will be tougher in the beginning then you will start to strengthen and the beast will slowly let go, and the infestation. For me this was a infection and infestation. > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 By the way, since I have no bites and otherwise look " normal " no one really believes me anyway -- at least no one in my family -- mother, brothers, sister-in-laws, nieces. It is hard keeping it all in as you know...thanks for listening. On Tue, Dec 13, 2011 at 9:49 PM, <terelynjon@...> wrote: Thanks for the encouragement. I'm tired of living like this right now, and wanting to get better. I wish I could explain the sensitivities I have to things -- there are so many things I just cannot eat or take -- I start to feel really nervous, myt toes or hands swelll, then sometimes I can't sleep. I have never heard of whatever is going on with that. No one seems to understand -- I'm sure a doctor would think I have a loose screw. On Tue, Dec 13, 2011 at 9:36 PM, healinghope <mfrreman@...> wrote: I took the hefty protocol, if you pulse and go slow it will be easier. Getting over this is no picnic, it will be tougher in the beginning then you will start to strengthen and the beast will slowly let go, and the infestation. For me this was a infection and infestation. > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Me too! I stayed only 2 nights. What did they do for you during the 5 days there? Unbelievable. One thing I learned from that experience, and my Lyme doc to be coached me by phone- had never even met me- he said whatever you do don't talk about bugs, don't even say the word- bug. Boy was he right. I never brought up the springtails I had seen on me, the psychiatrist said he would discharge me after my first meeting with him.Aandraya On Dec 13, 2011, at 8:05 PM, <terelynjon@...> wrote: Thanks -- after spending 5 days in the psych unit after going to my PCP I am not ready to go to another doctor right now. They think you are delusional. On Tue, Dec 13, 2011 at 8:51 PM, Elissa <elissarachel@...> wrote: Dismissed by my primary care dr. too. Ended up in tears with him patronizing me more...didn't see him again. Lyme doctors were great to me though! Hang in there. You just have to find the right dr. On Dec 13, 2011 8:45 PM, "healinghope" <mfrreman@...> wrote: Also taking daily baths with MMS1 helps while taking internally. Use no soap with the bath just MMS. I scrubbed good with lye soap in shower, and shampooed with lye, then rinsed well and soaked. > > > > > >> > > What Dr. prescribes ... > > > *From:* "Goldstein@" <Goldstein@>> > > *To:* bird mites > > > *Sent:* Tuesday, December 6, 2011 5:03 PM > > > *Sub...> > > **bird mites > > > *Sent: *Tuesday, December 6, 2011 1:01:30 PM > > > *S...> > > *An:* "bird mites " <bird mites > > > > *Gesendet:* 1:30 Die...> > > *To:* bird mites > > > *Sent:* Monday, December 5, 2011 5:22 PM > > > *Subje... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Have you done the Igenix Lyme test or seen a Lyme literate doc? They won't think you're crazy. Nervousness, swelling, insomnia are symptoms they hear about all day long. AandrayaOn Dec 13, 2011, at 8:58 PM, <terelynjon@...> wrote: By the way, since I have no bites and otherwise look "normal" no one really believes me anyway -- at least no one in my family -- mother, brothers, sister-in-laws, nieces. It is hard keeping it all in as you know...thanks for listening. On Tue, Dec 13, 2011 at 9:49 PM, <terelynjon@...> wrote: Thanks for the encouragement. I'm tired of living like this right now, and wanting to get better. I wish I could explain the sensitivities I have to things -- there are so many things I just cannot eat or take -- I start to feel really nervous, myt toes or hands swelll, then sometimes I can't sleep. I have never heard of whatever is going on with that. No one seems to understand -- I'm sure a doctor would think I have a loose screw. On Tue, Dec 13, 2011 at 9:36 PM, healinghope <mfrreman@...> wrote: I took the hefty protocol, if you pulse and go slow it will be easier. Getting over this is no picnic, it will be tougher in the beginning then you will start to strengthen and the beast will slowly let go, and the infestation. For me this was a infection and infestation. > > > > > > > > > > > > >>> > > > > > > > > > > > > >>>>When you move, you have to prevent them from... > > > > > > > > > > > > >>> > > > > > > > > > > > > >> > > > > > > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------ > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Thanks I felt humiliated by that doctor ( I even asked to see that one as I thought he would be nicer than the other doctor there !)I'm off work for 3 weeks from Friday, so I'm going to start my own internals - using oil of oregano with olive leaf extract, msm and vitamins.It's a shame you couldn't take that nice flat - although I would have thought wooden floors may have been better ? - I hope the next flat is nice, you deserve it after such an horrendous time.Take careKaz x From: christine french <karmakatmeow@...> bird mites Sent: Tuesday, December 13, 2011 11:59 PM Subject: Re: Anti-Fungals O h kaz Sorry he such an insensitive doctor!:-( I understand ur sadness I was angry at my doc too Not willing give me anything internal. As no proof Think will buy permethrin cream if can get over counter Or online Taking pau d arco herb ...higher nature... Candi clear It hurtful not taken seriously Saw wonderful flat tonite Cudnt take cos wooden floors n fabric make too worried Have take less nice one May be week or so before csn move Drivin me crazy here bloody evil insects!:-( Tc Ck x On Tue, Dec 13, 2011 23:06 GMT Keogh wrote: >Hi Krys & Aandraya > >Thankyou for your support, it's so nice to know that others know exactly what you are going through.. > >I think it may be a little too late to say I've been bitten by a tick to that doctor, as I told him today it would have been caused by the mites :0/ > > >Anyway, I don't want to see him anymore - when I move I will be changing my doctor, although when I've calmed down a bit I will write a letter of complaint. > >I will look online for the doxy - I already take B complex, but will look into the other supplements as well. > >Thanks again > >kaz x > > > >________________________________ > From: Krys Brennand <krys109uk@...> >bird mites >Sent: Tuesday, December 13, 2011 10:18 PM >Subject: Re: Anti-Fungals > > > >Dear Kaz, > > >Reading about GPs like yours just makes me so cross. The arrogance of some of these doctors ( & vets for that matter). It sounds like they treated you just like my mother's GPs treated her. Don't be scared of standing up to them & telling them they're wrong. Don't worry about upsetting them, after all they're not worried about upsetting you. >You could put in an official complaint to your local health authority. The health authority won't want you to complain & will give you a load of nonsense, but your GP will start to jump through hoops. When I started kicking up a fuss over the treatment of my mother, all of a sudden the GPs started doing what I'd been trying to get them to do for months. > >As far as approaching GPs, if one knows they're not going to take one seriously if one tells the truth, then make it something they have to take seriously. It's a means to an end & if you have to say you were bitten by a tick in the New Forest in order to make them give you a Lyme Test, then do it. Don't give them the chance to say you're wrong or make you feel stupid; go in there with all the info & tell them precisely what you want. Be confident; be assertive. > >Wishing you all the best, >Krys > > >On 13 December 2011 15:18, Keogh <kazk1@...> wrote: > > >>Hi Everybody >> >> >>I went to see my doctor today to ask him about tests for lyme and co infections.. He totally dismissed what I was saying, by telling me that if I had lyme I would ' be on a life support machine ' by now - he said lyme is only in North America and all but non existent in the UK. >> >> >>I went on to say I think bird mites are attracted to me possibly due to fungus and he said he will not prescribe itraconazole or any other medication for that matter... >> >> >>By this time I was in tears.. I tried to hold them in, but it all got too much - and then I couldn't stop. >> >> >>He said that I need absolute proof of what I have got before prescribing any medication at all. >> >> >>When my 10 minutes was up he said ' I have a queue of people out there waiting to see me so you had better go'. I was in bits and he didn't give a damn. >> >> >>Needless to say, I am very low at the moment with it all.. >> >> >>Thanks for listening >> >> >>Kaz x >> >> >> >>________________________________ >> From: Aandraya <aandraya@...> >>"bird mites " <bird mites > >>Sent: Monday, December 12, 2011 11:49 PM >>Subject: Re: Anti-Fungals >> >> >> >> >>Kaz- >>Don't bother to get the coinfection tests, waste of money and the infections don't show up, they are diagnosed based on symptoms. DO make sure he orders the IGENIX Labs Lyme western blot- #188 and #189 ONLY, ($198). It is not necessary to get the other Lyme panels. If your doc has never used this lab and doesn't have a lab kit you need to call Igenix and they'll send you the kit with the Fed Ex box to send the blood back. If your doctor can diagnose you clinically in the meantime, better. Do a trial run of Bactrim, Doxy and Itraconazole... And see how you respond. Is he an LLMD? >> >> >>Aandraya >> >> >> >> >>On Dec 12, 2011, at 4:35 PM, Keogh <kazk1@...> wrote: >> >> >> >>>Hi Aandraya >>> >>> >>>I've got my appointment tomorrow with doctor - I will ask to be tested for lyme and any other infections I may have - I also want to start itraconazole to see if that helps - did you find that helped with your recovery ? >>> >>> >>>Kaz x >>> >>> >>> >>> >>>________________________________ >>> From: Aandraya <aandraya@...> >>>"bird mites " <bird mites > >>>Sent: Monday, December 12, 2011 3:44 AM >>>Subject: Re: Anti-Fungals >>> >>> >>> >>>Any MD, Naturopathic docs in some states and nurse practitioners can prescribe Rx antifungals. >>>Aa >>> >>> >>> >>> >>>On Dec 11, 2011, at 5:17 PM, Linds J <lj_mom11@...> wrote: >>> >>> >>> >>>>What Dr. prescribes anti-fungals? Aggi- Did you realize you had a fungus after getting better on the anti-fungals and less mites? >>>> >>>> >>>> >>>>From: "Goldstein@..." <Goldstein@...> >>>>bird mites >>>>Sent: Tuesday, December 6, 2011 5:03 PM >>>>Subject: Re: Re: moving >>>> >>>> >>>> >>>>Aggi, >>>> >>>> >>>>I think I need to be on that one too. I've been on Candex, an over the counter fungal and I have noticed a decrease in any sensations. Itraconazole would probably do even better. However, my liver enzymes are getting higher and higher and I think my doctor wants me to go off all meds and maybe even supplemets for a while to let liver rest and recuperate. >>>> >>>> >>>>I wonder if Candex is available in GB for ? >>>> >>>> >>>> >>>> >>>>From: "Aggi Assmann" <aggi_assmann@...> >>>>bird mites >>>>Sent: Tuesday, December 6, 2011 1:01:30 PM >>>>Subject: Re: Re: moving >>>> >>>> >>>> >>>> >>>>Hi Linds, I am not even taking the sulfur caps any longer. The only med I am taking for 2 months now is the anti-fungal, called Itraconazole 100 mg caps. I take one cap in the morning and one on the night. The mites do get less and less interested in me since, I am making continious improvement, so for me I definitely have a fungus in my body. I will keep taking it until I feel completely mite-free. >>>> >>>> >>>> >>>>Von: Linds J <lj_mom11@...> >>>>An: "bird mites " <bird mites > >>>>Gesendet: 1:30 Dienstag, 6.Dezember 2011 >>>>Betreff: Re: Re: moving >>>> >>>> >>>> >>>>Aggi- Glad to hear you are enjoying life again. What are doing to treat internally besides the sulfur capsules? >>>> >>>> >>>> >>>>From: Aggi <aggi_assmann@...> >>>>bird mites >>>>Sent: Monday, December 5, 2011 5:22 PM >>>>Subject: Re: moving >>>> >>>> >>>> >>>>You are welcome , >>>>Yes, sulphur capsules 1000 mg internally (pure sulphur with no additives, 2 caps in the morning and 2 caps on the night) to make yourself untasty for the mites. Mites do not like sulfur! >>>>Got it online. Find the link if you are interested. Company called Kaja Health. >>>>I did not move and kept all my belongings because I realised that I was the source of the problems and must treat myself first and foremost as noone else around got the mites of me. >>>>Wasted 1 1/2 years trying to clean my environment only. >>>>After having started the anti-fungus treatment, everything changed big time. Did not even know that I had a fungus. Was in perfect healthy condition when the mitemare started back in July 2009. >>>>I do not have a tumble dryer. Washed everything hot with detergent plus Dettol plus ironing as hot as possible. >>>>Dry cleaning did not kill my mites ! >>>>Kept dirty clothes in a sealed container until washing. >>>>Did > not wash all my furniture, pics, decoration stuff, just did floors, walls and ceilings with a Swifter mop. >>>>Hoovered (bag-less Dyson!) couches and floors daily and sprayed the couch with isopropyl alcohol 70% daily. Sprinkled DE on the mattress everytime I changed sheets. Daily in the beginning, once a week now. >>>>Been to 4 dermatologists, they only treated the bites, stating "we are no pest controllers". Had 4 different pest control companies working for me. They fumigated the offices where it all started with bird's nest on the roof 4 times using Permethrin. Did not do anything. Fumigated my car... no difference !! Did not waste my money on them in my home after that. Kept reading this forum and learnt everyday. These guys have saved my life !! >>>>I am not completely mite-free, but am enjoying an almost normal life again. It is possible ! Keep the faith and stay in touch with us. >>>>We're all here to help with pleasure ! >>>> >>>> >>>>> >>> >>>>> > >>>>When you move, you have to prevent them from... >>>>> >>> >>>>> >> >>>>> >> >>>>> > >>>>> > >>>>> > >>>>> >------------------------------------ >>>>> > >>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 How are u feeling today kaz? Yeah horid to not be taken seriously!:-( Yeah on major anti fungal things too Tho had spray feet wi insecticide saltidin yestrday V woried permanently on toes Have get permethrin cream tmoro Use al oer body then week later as elissa said Stay away from karma as toxic to them Oh not lookin forward to that O kaz if wasnt for mites lovely flat b ideal but cant take a chance Too many soft furnishings The one im goin to in a week has linoleam floor Well carpet bein replaced jan An wil get own bed n seats Have play safe N karma sick often so only place I can go Feel ill Its so horid:-( Birdmites :-( Shall give u new number when I phone Tc x On Wed, Dec 14, 2011 09:46 GMT Keogh wrote: >Thanks > >I felt humiliated by that doctor ( I even asked to see that one as I thought he would be nicer than the other doctor there !) > >I'm off work for 3 weeks from Friday, so I'm going to start my own internals - using oil of oregano with olive leaf extract, msm and vitamins. > >It's a shame you couldn't take that nice flat - although I would have thought wooden floors may have been better ? - I hope the next flat is nice, you deserve it after such an horrendous time. > >Take care > >Kaz x > > > >________________________________ > From: christine french <karmakatmeow@...> >bird mites >Sent: Tuesday, December 13, 2011 11:59 PM >Subject: Re: Anti-Fungals > > > >O h kaz >Sorry he such an insensitive doctor!:-( >I understand ur sadness >I was angry at my doc too >Not willing give me anything internal. >As no proof >Think will buy permethrin cream if can get over counter >Or online >Taking pau d arco herb ...higher nature... >Candi clear >It hurtful not taken seriously >Saw wonderful flat tonite >Cudnt take cos wooden floors n fabric make too worried >Have take less nice one >May be week or so before csn move >Drivin me crazy here bloody evil insects!:-( >Tc >Ck x >On Tue, Dec 13, 2011 23:06 GMT Keogh wrote: > >>Hi Krys & Aandraya >> >>Thankyou for your support, it's so nice to know that others know exactly what you are going through.. >> >>I think it may be a little too late to say I've been bitten by a tick to that doctor, as I told him today it would have been caused by the mites :0/ >> >> >>Anyway, I don't want to see him anymore - when I move I will be changing my doctor, although when I've calmed down a bit I will write a letter of complaint. >> >>I will look online for the doxy - I already take B complex, but will look into the other supplements as well. >> >>Thanks again >> >>kaz x >> >> >> >>________________________________ >> From: Krys Brennand <krys109uk@...> >>bird mites >>Sent: Tuesday, December 13, 2011 10:18 PM >>Subject: Re: Anti-Fungals >> >> >> >>Dear Kaz, >> >> >>Reading about GPs like yours just makes me so cross. The arrogance of some of these doctors ( & vets for that matter). It sounds like they treated you just like my mother's GPs treated her. Don't be scared of standing up to them & telling them they're wrong. Don't worry about upsetting them, after all they're not worried about upsetting you. >>You could put in an official complaint to your local health authority. The health authority won't want you to complain & will give you a load of nonsense, but your GP will start to jump through hoops. When I started kicking up a fuss over the treatment of my mother, all of a sudden the GPs started doing what I'd been trying to get them to do for months. >> >>As far as approaching GPs, if one knows they're not going to take one seriously if one tells the truth, then make it something they have to take seriously. It's a means to an end & if you have to say you were bitten by a tick in the New Forest in order to make them give you a Lyme Test, then do it. Don't give them the chance to say you're wrong or make you feel stupid; go in there with all the info & tell them precisely what you want. Be confident; be assertive. >> >>Wishing you all the best, >>Krys >> >> >>On 13 December 2011 15:18, Keogh <kazk1@...> wrote: >> >> >>>Hi Everybody >>> >>> >>>I went to see my doctor today to ask him about tests for lyme and co infections.. He totally dismissed what I was saying, by telling me that if I had lyme I would ' be on a life support machine ' by now - he said lyme is only in North America and all but non existent in the UK. >>> >>> >>>I went on to say I think bird mites are attracted to me possibly due to fungus and he said he will not prescribe itraconazole or any other medication for that matter... >>> >>> >>>By this time I was in tears.. I tried to hold them in, but it all got too much - and then I couldn't stop. >>> >>> >>>He said that I need absolute proof of what I have got before prescribing any medication at all. >>> >>> >>>When my 10 minutes was up he said ' I have a queue of people out there waiting to see me so you had better go'. I was in bits and he didn't give a damn. >>> >>> >>>Needless to say, I am very low at the moment with it all.. >>> >>> >>>Thanks for listening >>> >>> >>>Kaz x >>> >>> >>> >>>________________________________ >>> From: Aandraya <aandraya@...> >>> " bird mites " <bird mites > >>>Sent: Monday, December 12, 2011 11:49 PM >>>Subject: Re: Anti-Fungals >>> >>> >>> >>> >>>Kaz- >>>Don't bother to get the coinfection tests, waste of money and the infections don't show up, they are diagnosed based on symptoms. DO make sure he orders the IGENIX Labs Lyme western blot- #188 and #189 ONLY, ($198). It is not necessary to get the other Lyme panels. If your doc has never used this lab and doesn't have a lab kit you need to call Igenix and they'll send you the kit with the Fed Ex box to send the blood back. If your doctor can diagnose you clinically in the meantime, better. Do a trial run of Bactrim, Doxy and Itraconazole... And see how you respond. Is he an LLMD? >>> >>> >>>Aandraya >>> >>> >>> >>> >>>On Dec 12, 2011, at 4:35 PM, Keogh <kazk1@...> wrote: >>> >>> >>> >>>>Hi Aandraya >>>> >>>> >>>>I've got my appointment tomorrow with doctor - I will ask to be tested for lyme and any other infections I may have - I also want to start itraconazole to see if that helps - did you find that helped with your recovery ? >>>> >>>> >>>>Kaz x >>>> >>>> >>>> >>>> >>>>________________________________ >>>> From: Aandraya <aandraya@...> >>>> " bird mites " <bird mites > >>>>Sent: Monday, December 12, 2011 3:44 AM >>>>Subject: Re: Anti-Fungals >>>> >>>> >>>> >>>>Any MD, Naturopathic docs in some states and nurse practitioners can prescribe Rx antifungals. >>>>Aa >>>> >>>> >>>> >>>> >>>>On Dec 11, 2011, at 5:17 PM, Linds J <lj_mom11@...> wrote: >>>> >>>> >>>> >>>>>What Dr. prescribes anti-fungals? Aggi- Did you realize you had a fungus after getting better on the anti-fungals and less mites? >>>>> >>>>> >>>>> >>>>>From: " Goldstein@... " <Goldstein@...> >>>>>bird mites >>>>>Sent: Tuesday, December 6, 2011 5:03 PM >>>>>Subject: Re: Re: moving >>>>> >>>>> >>>>> >>>>>Aggi, >>>>> >>>>> >>>>>I think I need to be on that one too. I've been on Candex, an over the counter fungal and I have noticed a decrease in any sensations. Itraconazole would probably do even better. However, my liver enzymes are getting higher and higher and I think my doctor wants me to go off all meds and maybe even supplemets for a while to let liver rest and recuperate. >>>>> >>>>> >>>>>I wonder if Candex is available in GB for ? >>>>> >>>>> >>>>> >>>>> >>>>>From: " Aggi Assmann " <aggi_assmann@...> >>>>>bird mites >>>>>Sent: Tuesday, December 6, 2011 1:01:30 PM >>>>>Subject: Re: Re: moving >>>>> >>>>> >>>>> >>>>> >>>>>Hi Linds, I am not even taking the sulfur caps any longer. The only med I am taking for 2 months now is the anti-fungal, called Itraconazole 100 mg caps. I take one cap in the morning and one on the night. The mites do get less and less interested in me since, I am making continious improvement, so for me I definitely have a fungus in my body. I will keep taking it until I feel completely mite-free. >>>>> >>>>> >>>>> >>>>>Von: Linds J <lj_mom11@...> >>>>>An: " bird mites " <bird mites > >>>>>Gesendet: 1:30 Dienstag, 6.Dezember 2011 >>>>>Betreff: Re: Re: moving >>>>> >>>>> >>>>> >>>>>Aggi- Glad to hear you are enjoying life again. What are doing to treat internally besides the sulfur capsules? >>>>> >>>>> >>>>> >>>>>From: Aggi <aggi_assmann@...> >>>>>bird mites >>>>>Sent: Monday, December 5, 2011 5:22 PM >>>>>Subject: Re: moving >>>>> >>>>> >>>>> >>>>>You are welcome , >>>>>Yes, sulphur capsules 1000 mg internally (pure sulphur with no additives, 2 caps in the morning and 2 caps on the night) to make yourself untasty for the mites. Mites do not like sulfur! >>>>>Got it online. Find the link if you are interested. Company called Kaja Health. >>>>>I did not move and kept all my belongings because I realised that I was the source of the problems and must treat myself first and foremost as noone else around got the mites of me. >>>>>Wasted 1 1/2 years trying to clean my environment only. >>>>>After having started the anti-fungus treatment, everything changed big time. Did not even know that I had a fungus. Was in perfect healthy condition when the mitemare started back in July 2009. >>>>>I do not have a tumble dryer. Washed everything hot with detergent plus Dettol plus ironing as hot as possible. >>>>>Dry cleaning did not kill my mites ! >>>>>Kept dirty clothes in a sealed container until washing. >>>>>Did >> not wash all my furniture, pics, decoration stuff, just did floors, walls and ceilings with a Swifter mop. >>>>>Hoovered (bag-less Dyson!) couches and floors daily and sprayed the couch with isopropyl alcohol 70% daily. Sprinkled DE on the mattress everytime I changed sheets. Daily in the beginning, once a week now. >>>>>Been to 4 dermatologists, they only treated the bites, stating " we are no pest controllers " . Had 4 different pest control companies working for me. They fumigated the offices where it all started with bird's nest on the roof 4 times using Permethrin. Did not do anything. Fumigated my car... no difference !! Did not waste my money on them in my home after that. Kept reading this forum and learnt everyday. These guys have saved my life !! >>>>>I am not completely mite-free, but am enjoying an almost normal life again. It is possible ! Keep the faith and stay in touch with us. >>>>>We're all here to help with pleasure ! >>>>> >>>>> >>>>>> >>> >>>>>> >> >>>>When you move, you have to prevent them from... >>>>>> >>> >>>>>> >> >>>>>> >> >>>>>> > >>>>>> > >>>>>> > >>>>>> >------------------------------------ >>>>>> > >>>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Well, the psychiatrist there prescribed me Risperdal b/c they said I was " delusional. " I heard that over and over again while there. I tried the Risperdal for 1 day and it made me feel crazy, so my mother told me to just put it under my tongue and then spit it out, which I did. We had group therapy every day, so I got to listen to everyone's elses problems -- that might have helped a little. I knew from the 1st night it was a BIG MISTAKE for me to be there -- they did not believe me at all and I decided not to mention the mite problem after that. Family did visit me every night and my brother in Ohio called Sat. night and told me to not say anything, just go with the program and get the hell out of there, which I did. It was a very frightening experience and the nurses just sit around and watch you and try to control you with drugs. Very, very sad. But I'm trying to put back what is left of my life now... On Tue, Dec 13, 2011 at 11:03 PM, Aandraya <aandraya@...> wrote: Me too! I stayed only 2 nights. What did they do for you during the 5 days there? Unbelievable. One thing I learned from that experience, and my Lyme doc to be coached me by phone- had never even met me- he said whatever you do don't talk about bugs, don't even say the word- bug. Boy was he right. I never brought up the springtails I had seen on me, the psychiatrist said he would discharge me after my first meeting with him. Aandraya On Dec 13, 2011, at 8:05 PM, <terelynjon@...> wrote: Thanks -- after spending 5 days in the psych unit after going to my PCP I am not ready to go to another doctor right now. They think you are delusional. On Tue, Dec 13, 2011 at 8:51 PM, Elissa <elissarachel@...> wrote: Dismissed by my primary care dr. too. Ended up in tears with him patronizing me more...didn't see him again. Lyme doctors were great to me though! Hang in there. You just have to find the right dr. On Dec 13, 2011 8:45 PM, " healinghope " <mfrreman@...> wrote: Also taking daily baths with MMS1 helps while taking internally. Use no soap with the bath just MMS. I scrubbed good with lye soap in shower, and shampooed with lye, then rinsed well and soaked. > > >> > >> > > What Dr. prescribes ... > > > *From:* " Goldstein@ " <Goldstein@> > > > *To:* bird mites > > > *Sent:* Tuesday, December 6, 2011 5:03 PM > > > *Sub... > > > **bird mites > > > *Sent: *Tuesday, December 6, 2011 1:01:30 PM > > > *S... > > > *An:* " bird mites " <bird mites > > > > *Gesendet:* 1:30 Die... > > > *To:* bird mites > > > *Sent:* Monday, December 5, 2011 5:22 PM > > > *Subje... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Hi ,My mother finds that 98% DEET effective on her feet. Not sure whether they sell DEET that strong in UK; I usually buy a few bottles & post it over. Some of the oils such as lemon eucalyptus & geranium might help. The GP will prescribe the Lysol permethrin cream; my mother says it helps but only for a couple of days; she was using it too often. Permethrin wash for animals (also 10%) available at agricultural merchants in UK. Regards,KrysOn 14 December 2011 11:22, christine french <karmakatmeow@...> wrote: How are u feeling today kaz? Yeah horid to not be taken seriously!:-( Yeah on major anti fungal things too Tho had spray feet wi insecticide saltidin yestrday V woried permanently on toes Have get permethrin cream tmoro Use al oer body then week later as elissa said Stay away from karma as toxic to them Oh not lookin forward to that O kaz if wasnt for mites lovely flat b ideal but cant take a chance Too many soft furnishings The one im goin to in a week has linoleam floor Well carpet bein replaced jan An wil get own bed n seats Have play safe N karma sick often so only place I can go Feel ill Its so horid:-( Birdmites :-( Shall give u new number when I phone Tc x On Wed, Dec 14, 2011 09:46 GMT Keogh wrote: >Thanks > >I felt humiliated by that doctor ( I even asked to see that one as I thought he would be nicer than the other doctor there !) > >I'm off work for 3 weeks from Friday, so I'm going to start my own internals - using oil of oregano with olive leaf extract, msm and vitamins. > >It's a shame you couldn't take that nice flat - although I would have thought wooden floors may have been better ? - I hope the next flat is nice, you deserve it after such an horrendous time. > >Take care > >Kaz x > > > >________________________________ > From: christine french <karmakatmeow@...> >bird mites >Sent: Tuesday, December 13, 2011 11:59 PM >Subject: Re: Anti-Fungals > > > >O h kaz >Sorry he such an insensitive doctor!:-( >I understand ur sadness >I was angry at my doc too >Not willing give me anything internal. >As no proof >Think will buy permethrin cream if can get over counter >Or online >Taking pau d arco herb ...higher nature... >Candi clear >It hurtful not taken seriously >Saw wonderful flat tonite >Cudnt take cos wooden floors n fabric make too worried >Have take less nice one >May be week or so before csn move >Drivin me crazy here bloody evil insects!:-( >Tc >Ck x >On Tue, Dec 13, 2011 23:06 GMT Keogh wrote: > >>Hi Krys & Aandraya >> >>Thankyou for your support, it's so nice to know that others know exactly what you are going through.. >> >>I think it may be a little too late to say I've been bitten by a tick to that doctor, as I told him today it would have been caused by the mites :0/ >> >> >>Anyway, I don't want to see him anymore - when I move I will be changing my doctor, although when I've calmed down a bit I will write a letter of complaint. >> >>I will look online for the doxy - I already take B complex, but will look into the other supplements as well. >> >>Thanks again >> >>kaz x >> >> >> >>________________________________ >> From: Krys Brennand <krys109uk@...> >>bird mites >>Sent: Tuesday, December 13, 2011 10:18 PM >>Subject: Re: Anti-Fungals >> >> >> >>Dear Kaz, >> >> >>Reading about GPs like yours just makes me so cross. The arrogance of some of these doctors ( & vets for that matter). It sounds like they treated you just like my mother's GPs treated her. Don't be scared of standing up to them & telling them they're wrong. Don't worry about upsetting them, after all they're not worried about upsetting you. >>You could put in an official complaint to your local health authority. The health authority won't want you to complain & will give you a load of nonsense, but your GP will start to jump through hoops. When I started kicking up a fuss over the treatment of my mother, all of a sudden the GPs started doing what I'd been trying to get them to do for months. >> >>As far as approaching GPs, if one knows they're not going to take one seriously if one tells the truth, then make it something they have to take seriously. It's a means to an end & if you have to say you were bitten by a tick in the New Forest in order to make them give you a Lyme Test, then do it. Don't give them the chance to say you're wrong or make you feel stupid; go in there with all the info & tell them precisely what you want. Be confident; be assertive. >> >>Wishing you all the best, >>Krys >> >> >>On 13 December 2011 15:18, Keogh <kazk1@...> wrote: >> >> >>>Hi Everybody >>> >>> >>>I went to see my doctor today to ask him about tests for lyme and co infections.. He totally dismissed what I was saying, by telling me that if I had lyme I would ' be on a life support machine ' by now - he said lyme is only in North America and all but non existent in the UK. >>> >>> >>>I went on to say I think bird mites are attracted to me possibly due to fungus and he said he will not prescribe itraconazole or any other medication for that matter... >>> >>> >>>By this time I was in tears.. I tried to hold them in, but it all got too much - and then I couldn't stop. >>> >>> >>>He said that I need absolute proof of what I have got before prescribing any medication at all. >>> >>> >>>When my 10 minutes was up he said ' I have a queue of people out there waiting to see me so you had better go'. I was in bits and he didn't give a damn. >>> >>> >>>Needless to say, I am very low at the moment with it all.. >>> >>> >>>Thanks for listening >>> >>> >>>Kaz x >>> >>> >>> >>>________________________________ >>> From: Aandraya <aandraya@...> >>> " bird mites " <bird mites > >>>Sent: Monday, December 12, 2011 11:49 PM >>>Subject: Re: Anti-Fungals >>> >>> >>> >>> >>>Kaz- >>>Don't bother to get the coinfection tests, waste of money and the infections don't show up, they are diagnosed based on symptoms. DO make sure he orders the IGENIX Labs Lyme western blot- #188 and #189 ONLY, ($198). It is not necessary to get the other Lyme panels. If your doc has never used this lab and doesn't have a lab kit you need to call Igenix and they'll send you the kit with the Fed Ex box to send the blood back. If your doctor can diagnose you clinically in the meantime, better. Do a trial run of Bactrim, Doxy and Itraconazole... And see how you respond. Is he an LLMD? >>> >>> >>>Aandraya >>> >>> >>> >>> >>>On Dec 12, 2011, at 4:35 PM, Keogh <kazk1@...> wrote: >>> >>> >>> >>>>Hi Aandraya >>>> >>>> >>>>I've got my appointment tomorrow with doctor - I will ask to be tested for lyme and any other infections I may have - I also want to start itraconazole to see if that helps - did you find that helped with your recovery ? >>>> >>>> >>>>Kaz x >>>> >>>> >>>> >>>> >>>>________________________________ >>>> From: Aandraya <aandraya@...> >>>> " bird mites " <bird mites > >>>>Sent: Monday, December 12, 2011 3:44 AM >>>>Subject: Re: Anti-Fungals >>>> >>>> >>>> >>>>Any MD, Naturopathic docs in some states and nurse practitioners can prescribe Rx antifungals. >>>>Aa >>>> >>>> >>>> >>>> >>>>On Dec 11, 2011, at 5:17 PM, Linds J <lj_mom11@...> wrote: >>>> >>>> >>>> >>>>>What Dr. prescribes anti-fungals? Aggi- Did you realize you had a fungus after getting better on the anti-fungals and less mites? >>>>> >>>>> >>>>> >>>>>From: " Goldstein@... " <Goldstein@...> >>>>>bird mites >>>>>Sent: Tuesday, December 6, 2011 5:03 PM >>>>>Subject: Re: Re: moving >>>>> >>>>> >>>>> >>>>>Aggi, >>>>> >>>>> >>>>>I think I need to be on that one too. I've been on Candex, an over the counter fungal and I have noticed a decrease in any sensations. Itraconazole would probably do even better. However, my liver enzymes are getting higher and higher and I think my doctor wants me to go off all meds and maybe even supplemets for a while to let liver rest and recuperate. >>>>> >>>>> >>>>>I wonder if Candex is available in GB for ? >>>>> >>>>> >>>>> >>>>> >>>>>From: " Aggi Assmann " <aggi_assmann@...> >>>>>bird mites >>>>>Sent: Tuesday, December 6, 2011 1:01:30 PM >>>>>Subject: Re: Re: moving >>>>> >>>>> >>>>> >>>>> >>>>>Hi Linds, I am not even taking the sulfur caps any longer. The only med I am taking for 2 months now is the anti-fungal, called Itraconazole 100 mg caps. I take one cap in the morning and one on the night. The mites do get less and less interested in me since, I am making continious improvement, so for me I definitely have a fungus in my body. I will keep taking it until I feel completely mite-free. >>>>> >>>>> >>>>> >>>>>Von: Linds J <lj_mom11@...> >>>>>An: " bird mites " <bird mites > >>>>>Gesendet: 1:30 Dienstag, 6.Dezember 2011 >>>>>Betreff: Re: Re: moving >>>>> >>>>> >>>>> >>>>>Aggi- Glad to hear you are enjoying life again. What are doing to treat internally besides the sulfur capsules? >>>>> >>>>> >>>>> >>>>>From: Aggi <aggi_assmann@...> >>>>>bird mites >>>>>Sent: Monday, December 5, 2011 5:22 PM >>>>>Subject: Re: moving >>>>> >>>>> >>>>> >>>>>You are welcome , >>>>>Yes, sulphur capsules 1000 mg internally (pure sulphur with no additives, 2 caps in the morning and 2 caps on the night) to make yourself untasty for the mites. Mites do not like sulfur! >>>>>Got it online. Find the link if you are interested. Company called Kaja Health. >>>>>I did not move and kept all my belongings because I realised that I was the source of the problems and must treat myself first and foremost as noone else around got the mites of me. >>>>>Wasted 1 1/2 years trying to clean my environment only. >>>>>After having started the anti-fungus treatment, everything changed big time. Did not even know that I had a fungus. Was in perfect healthy condition when the mitemare started back in July 2009. >>>>>I do not have a tumble dryer. Washed everything hot with detergent plus Dettol plus ironing as hot as possible. >>>>>Dry cleaning did not kill my mites ! >>>>>Kept dirty clothes in a sealed container until washing. >>>>>Did >> not wash all my furniture, pics, decoration stuff, just did floors, walls and ceilings with a Swifter mop. >>>>>Hoovered (bag-less Dyson!) couches and floors daily and sprayed the couch with isopropyl alcohol 70% daily. Sprinkled DE on the mattress everytime I changed sheets. Daily in the beginning, once a week now. >>>>>Been to 4 dermatologists, they only treated the bites, stating " we are no pest controllers " . Had 4 different pest control companies working for me. They fumigated the offices where it all started with bird's nest on the roof 4 times using Permethrin. Did not do anything. Fumigated my car... no difference !! Did not waste my money on them in my home after that. Kept reading this forum and learnt everyday. These guys have saved my life !! >>>>>I am not completely mite-free, but am enjoying an almost normal life again. It is possible ! Keep the faith and stay in touch with us. >>>>>We're all here to help with pleasure ! >>>>> >>>>> >>>>>> >>> >>>>>> >> >>>>When you move, you have to prevent them from... >>>>>> >>> >>>>>> >> >>>>>> >> >>>>>> > >>>>>> > >>>>>> > >>>>>> >------------------------------------ >>>>>> > >>>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Hi krys Did they burrow into ur mums feet? Did she just put lysol etc on her feet not rest o body? N for how long? The crawling sensation on my thighs v upseting too I realy dont know how people cope long term I really dont!:-( On Wed, Dec 14, 2011 18:11 GMT Krys Brennand wrote: >Hi , >My mother finds that 98% DEET effective on her feet. Not sure whether they >sell DEET that strong in UK; I usually buy a few bottles & post it over. >Some of the oils such as lemon eucalyptus & geranium might help. >The GP will prescribe the Lysol permethrin cream; my mother says it helps >but only for a couple of days; she was using it too often. Permethrin wash >for animals (also 10%) available at agricultural merchants in UK. >Regards, >Krys > >On 14 December 2011 11:22, christine french <karmakatmeow@...>wrote: > >> >> >> How are u feeling today kaz? >> Yeah horid to not be taken seriously!:-( >> Yeah on major anti fungal things too >> Tho had spray feet wi insecticide saltidin yestrday >> V woried permanently on toes >> Have get permethrin cream tmoro >> Use al oer body then week later as elissa said >> Stay away from karma as toxic to them >> Oh not lookin forward to that >> O kaz if wasnt for mites lovely flat b ideal but cant take a chance >> Too many soft furnishings >> The one im goin to in a week has linoleam floor >> Well carpet bein replaced jan >> An wil get own bed n seats >> Have play safe >> N karma sick often so only place I can go >> Feel ill >> Its so horid:-( >> Birdmites :-( >> Shall give u new number when I phone >> Tc x >> >> On Wed, Dec 14, 2011 09:46 GMT Keogh wrote: >> >> >Thanks >> > >> >I felt humiliated by that doctor ( I even asked to see that one as I >> thought he would be nicer than the other doctor there !) >> > >> >I'm off work for 3 weeks from Friday, so I'm going to start my own >> internals - using oil of oregano with olive leaf extract, msm and vitamins. >> > >> >It's a shame you couldn't take that nice flat - although I would have >> thought wooden floors may have been better ? - I hope the next flat is >> nice, you deserve it after such an horrendous time. >> > >> >Take care >> > >> >Kaz x >> > >> > >> > >> >________________________________ >> > From: christine french <karmakatmeow@...> >> >bird mites >> >Sent: Tuesday, December 13, 2011 11:59 PM >> >Subject: Re: Anti-Fungals >> > >> > >> > >> >O h kaz >> >Sorry he such an insensitive doctor!:-( >> >I understand ur sadness >> >I was angry at my doc too >> >Not willing give me anything internal. >> >As no proof >> >Think will buy permethrin cream if can get over counter >> >Or online >> >Taking pau d arco herb ...higher nature... >> >Candi clear >> >It hurtful not taken seriously >> >Saw wonderful flat tonite >> >Cudnt take cos wooden floors n fabric make too worried >> >Have take less nice one >> >May be week or so before csn move >> >Drivin me crazy here bloody evil insects!:-( >> >Tc >> >Ck x >> >On Tue, Dec 13, 2011 23:06 GMT Keogh wrote: >> > >> >>Hi Krys & Aandraya >> >> >> >>Thankyou for your support, it's so nice to know that others know exactly >> what you are going through.. >> >> >> >>I think it may be a little too late to say I've been bitten by a tick to >> that doctor, as I told him today it would have been caused by the mites :0/ >> >> >> >> >> >>Anyway, I don't want to see him anymore - when I move I will be >> changing my doctor, although when I've calmed down a bit I will write a >> letter of complaint. >> >> >> >>I will look online for the doxy - I already take B complex, but will >> look into the other supplements as well. >> >> >> >>Thanks again >> >> >> >>kaz x >> >> >> >> >> >> >> >>________________________________ >> >> From: Krys Brennand <krys109uk@...> >> >>bird mites >> >>Sent: Tuesday, December 13, 2011 10:18 PM >> >>Subject: Re: Anti-Fungals >> >> >> >> >> >> >> >>Dear Kaz, >> >> >> >> >> >>Reading about GPs like yours just makes me so cross. The arrogance of >> some of these doctors ( & vets for that matter). It sounds like they treated >> you just like my mother's GPs treated her. Don't be scared of standing up >> to them & telling them they're wrong. Don't worry about upsetting them, >> after all they're not worried about upsetting you. >> >>You could put in an official complaint to your local health authority. >> The health authority won't want you to complain & will give you a load of >> nonsense, but your GP will start to jump through hoops. When I started >> kicking up a fuss over the treatment of my mother, all of a sudden the GPs >> started doing what I'd been trying to get them to do for months. >> >> >> >>As far as approaching GPs, if one knows they're not going to take one >> seriously if one tells the truth, then make it something they have to take >> seriously. It's a means to an end & if you have to say you were bitten by a >> tick in the New Forest in order to make them give you a Lyme Test, then do >> it. Don't give them the chance to say you're wrong or make you feel stupid; >> go in there with all the info & tell them precisely what you want. Be >> confident; be assertive. >> >> >> >>Wishing you all the best, >> >>Krys >> >> >> >> >> >>On 13 December 2011 15:18, Keogh <kazk1@...> wrote: >> >> >> >> >> >>>Hi Everybody >> >>> >> >>> >> >>>I went to see my doctor today to ask him about tests for lyme and co >> infections.. He totally dismissed what I was saying, by telling me that if >> I had lyme I would ' be on a life support machine ' by now - he said lyme >> is only in North America and all but non existent in the UK. >> >>> >> >>> >> >>>I went on to say I think bird mites are attracted to me possibly due to >> fungus and he said he will not prescribe itraconazole or any other >> medication for that matter... >> >>> >> >>> >> >>>By this time I was in tears.. I tried to hold them in, but it all got >> too much - and then I couldn't stop. >> >>> >> >>> >> >>>He said that I need absolute proof of what I have got before >> prescribing any medication at all. >> >>> >> >>> >> >>>When my 10 minutes was up he said ' I have a queue of people out there >> waiting to see me so you had better go'. I was in bits and he didn't give a >> damn. >> >>> >> >>> >> >>>Needless to say, I am very low at the moment with it all.. >> >>> >> >>> >> >>>Thanks for listening >> >>> >> >>> >> >>>Kaz x >> >>> >> >>> >> >>> >> >>>________________________________ >> >>> From: Aandraya <aandraya@...> >> >>> " bird mites " <bird mites > >> >>>Sent: Monday, December 12, 2011 11:49 PM >> >>>Subject: Re: Anti-Fungals >> >>> >> >>> >> >>> >> >>> >> >>>Kaz- >> >>>Don't bother to get the coinfection tests, waste of money and the >> infections don't show up, they are diagnosed based on symptoms. DO make >> sure he orders the IGENIX Labs Lyme western blot- #188 and #189 ONLY, >> ($198). It is not necessary to get the other Lyme panels. If your doc has >> never used this lab and doesn't have a lab kit you need to call Igenix and >> they'll send you the kit with the Fed Ex box to send the blood back. If >> your doctor can diagnose you clinically in the meantime, better. Do a >> trial run of Bactrim, Doxy and Itraconazole... And see how you respond. >> Is he an LLMD? >> >>> >> >>> >> >>>Aandraya >> >>> >> >>> >> >>> >> >>> >> >>>On Dec 12, 2011, at 4:35 PM, Keogh <kazk1@...> wrote: >> >>> >> >>> >> >>> >> >>>>Hi Aandraya >> >>>> >> >>>> >> >>>>I've got my appointment tomorrow with doctor - I will ask to be tested >> for lyme and any other infections I may have - I also want to start >> itraconazole to see if that helps - did you find that helped with your >> recovery ? >> >>>> >> >>>> >> >>>>Kaz x >> >>>> >> >>>> >> >>>> >> >>>> >> >>>>________________________________ >> >>>> From: Aandraya <aandraya@...> >> >>>> " bird mites " <bird mites > >> >>>>Sent: Monday, December 12, 2011 3:44 AM >> >>>>Subject: Re: Anti-Fungals >> >>>> >> >>>> >> >>>> >> >>>>Any MD, Naturopathic docs in some states and nurse practitioners can >> prescribe Rx antifungals. >> >>>>Aa >> >>>> >> >>>> >> >>>> >> >>>> >> >>>>On Dec 11, 2011, at 5:17 PM, Linds J <lj_mom11@...> wrote: >> >>>> >> >>>> >> >>>> >> >>>>>What Dr. prescribes anti-fungals? Aggi- Did you realize you had a >> fungus after getting better on the anti-fungals and less mites? >> >>>>> >> >>>>> >> >>>>> >> >>>>>From: " Goldstein@... " <Goldstein@...> >> >>>>>bird mites >> >>>>>Sent: Tuesday, December 6, 2011 5:03 PM >> >>>>>Subject: Re: Re: moving >> >>>>> >> >>>>> >> >>>>> >> >>>>>Aggi, >> >>>>> >> >>>>> >> >>>>>I think I need to be on that one too. I've been on Candex, an over >> the counter fungal and I have noticed a decrease in any sensations. >> Itraconazole would probably do even better. However, my liver enzymes are >> getting higher and higher and I think my doctor wants me to go off all meds >> and maybe even supplemets for a while to let liver rest and recuperate. >> >>>>> >> >>>>> >> >>>>>I wonder if Candex is available in GB for ? >> >>>>> >> >>>>> >> >>>>> >> >>>>> >> >>>>>From: " Aggi Assmann " <aggi_assmann@...> >> >>>>>bird mites >> >>>>>Sent: Tuesday, December 6, 2011 1:01:30 PM >> >>>>>Subject: Re: Re: moving >> >>>>> >> >>>>> >> >>>>> >> >>>>> >> >>>>>Hi Linds, I am not even taking the sulfur caps any longer. The only >> med I am taking for 2 months now is the anti-fungal, called Itraconazole >> 100 mg caps. I take one cap in the morning and one on the night. The mites >> do get less and less interested in me since, I am making continious >> improvement, so for me I definitely have a fungus in my body. I will keep >> taking it until I feel completely mite-free. >> >>>>> >> >>>>> >> >>>>> >> >>>>>Von: Linds J <lj_mom11@...> >> >>>>>An: " bird mites " <bird mites > >> >>>>>Gesendet: 1:30 Dienstag, 6.Dezember 2011 >> >>>>>Betreff: Re: Re: moving >> >>>>> >> >>>>> >> >>>>> >> >>>>>Aggi- Glad to hear you are enjoying life again. What are doing to >> treat internally besides the sulfur capsules? >> >>>>> >> >>>>> >> >>>>> >> >>>>>From: Aggi <aggi_assmann@...> >> >>>>>bird mites >> >>>>>Sent: Monday, December 5, 2011 5:22 PM >> >>>>>Subject: Re: moving >> >>>>> >> >>>>> >> >>>>> >> >>>>>You are welcome , >> >>>>>Yes, sulphur capsules 1000 mg internally (pure sulphur with no >> additives, 2 caps in the morning and 2 caps on the night) to make yourself >> untasty for the mites. Mites do not like sulfur! >> >>>>>Got it online. Find the link if you are interested. Company called >> Kaja Health. >> >>>>>I did not move and kept all my belongings because I realised that I >> was the source of the problems and must treat myself first and foremost as >> noone else around got the mites of me. >> >>>>>Wasted 1 1/2 years trying to clean my environment only. >> >>>>>After having started the anti-fungus treatment, everything changed >> big time. Did not even know that I had a fungus. Was in perfect healthy >> condition when the mitemare started back in July 2009. >> >>>>>I do not have a tumble dryer. Washed everything hot with detergent >> plus Dettol plus ironing as hot as possible. >> >>>>>Dry cleaning did not kill my mites ! >> >>>>>Kept dirty clothes in a sealed container until washing. >> >>>>>Did >> >> not wash all my furniture, pics, decoration stuff, just did floors, >> walls and ceilings with a Swifter mop. >> >>>>>Hoovered (bag-less Dyson!) couches and floors daily and sprayed the >> couch with isopropyl alcohol 70% daily. Sprinkled DE on the mattress >> everytime I changed sheets. Daily in the beginning, once a week now. >> >>>>>Been to 4 dermatologists, they only treated the bites, stating " we >> are no pest controllers " . Had 4 different pest control companies working >> for me. They fumigated the offices where it all started with bird's nest on >> the roof 4 times using Permethrin. Did not do anything. Fumigated my car... >> no difference !! Did not waste my money on them in my home after that. Kept >> reading this forum and learnt everyday. These guys have saved my life !! >> >>>>>I am not completely mite-free, but am enjoying an almost normal life >> again. It is possible ! Keep the faith and stay in touch with us. >> >>>>>We're all here to help with pleasure ! >> >>>>> >> >>>>> >> >>>>>> >>> >> >>>>>> >> >> >>>>When you move, you have to prevent them from... >> >>>>>> >>> >> >>>>>> >> >> >>>>>> >> >> >>>>>> > >> >>>>>> > >> >>>>>> > >> >>>>>> >------------------------------------ >> >>>>>> > >> >>>>>> > Quote Link to comment Share on other sites More sharing options...
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