Frustrated

[Guest guest]

Thank you Karma!!!!!

Love, Liz

---

On Mon, 4 Aug 2003 10:42:34 -0500 Karma <tucker@...> writes:

> Liz,

> Until you can go to the foot doctor, I would suggest you go to

> http://www.harrietcarter.com and order the phase 4 orthodics. That

> is what

> my husband uses and he swears by them. I have regular orthodics

> that were

> prescribed for me a long time ago. They really do make a

> difference.

> The phase4 orthodics cost $20.00, but in my opinion are really worth

> the

> $20.00. I have purchased two pairs for my husband (one for his work

> shoes

> and one for his tennis shoes) a pair for my 12 year old and a pair

> for my 11

> year old.

>

> Hope this helps you.

> Karma

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

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[Guest guest]

Liz, If you can figure out a way, I will send you the $20.00. I know you

probably don't want to post your address, but can you think of another way tot

get it to me so I could mail it to you? Your sister in Christ, Connie

Re: Frustrated

Liz,

Until you can go to the foot doctor, I would suggest you go to

http://www.harrietcarter.com and order the phase 4 orthodics. That is what

my husband uses and he swears by them. I have regular orthodics that were

prescribed for me a long time ago. They really do make a difference.

The phase4 orthodics cost $20.00, but in my opinion are really worth the

$20.00. I have purchased two pairs for my husband (one for his work shoes

and one for his tennis shoes) a pair for my 12 year old and a pair for my 11

year old.

Hope this helps you.

Karma

Frustrated

> I'm soooo frustrated :-o

>

> I'm having problems with my leg making it difficult to exercise the way

> that I want to. :-( I would love to be able to walk and do LL together at

> least 5 days a week. However until I can go to a foot doctor or find a

> good shoe store that knows about feet problems that sells good walking

> shoes that can help me figure out the correct shoes that will help my

> flat feet from causing problems with my leg when I walk I have to be very

> careful. We don't have decent insurance right now or extra money to spend

> on expensive shoes because of Steve being out of work so I just have to

> live with it for awhile. I walked 3 days in a row last week and I've paid

> for it all weekend. I'm hoping to be able to walk while doing LL 2 or 3

> days this week, not in a row, but I don't know. Aaahhh!!!! :-o

>

> Thanks for listening!!!!

> Love, Liz

>

>

[Guest guest]

Lizzy

I ordered these also. My son used them for a while for sports until he healed

his foot from an injury. I tried them but I had a hard time getting use to them

It is worth a shot.

Best regards and blessings

R

Sorry for your frustration you are doing awesome

Re: Frustrated

Thank you Karma!!!!!

Love, Liz

---

On Mon, 4 Aug 2003 10:42:34 -0500 Karma <tucker@...> writes:

> Liz,

> Until you can go to the foot doctor, I would suggest you go to

> http://www.harrietcarter.com and order the phase 4 orthodics. That

> is what

> my husband uses and he swears by them. I have regular orthodics

> that were

> prescribed for me a long time ago. They really do make a

> difference.

> The phase4 orthodics cost $20.00, but in my opinion are really worth

> the

> $20.00. I have purchased two pairs for my husband (one for his work

> shoes

> and one for his tennis shoes) a pair for my 12 year old and a pair

> for my 11

> year old.

>

> Hope this helps you.

> Karma

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

[Guest guest]

I can relate, Liz. In my case, I have very high arches and wear prescribed

orthotics every day.

Karma, do you know if they work for high arches, too? And do they fit in

regular shoes pretty well? There's not a whole lot of info about them on

the websites I saw.

Thanks!

Darlene

Frustrated

>

>

> > I'm soooo frustrated :-o

> >

> > I'm having problems with my leg making it difficult to exercise the way

> > that I want to. :-( I would love to be able to walk and do LL together

at

> > least 5 days a week. However until I can go to a foot doctor or find a

> > good shoe store that knows about feet problems that sells good walking

> > shoes that can help me figure out the correct shoes that will help my

> > flat feet from causing problems with my leg when I walk I have to be

very

> > careful. We don't have decent insurance right now or extra money to

spend

> > on expensive shoes because of Steve being out of work so I just have to

> > live with it for awhile. I walked 3 days in a row last week and I've

paid

> > for it all weekend. I'm hoping to be able to walk while doing LL 2 or 3

> > days this week, not in a row, but I don't know. Aaahhh!!!! :-o

> >

> > Thanks for listening!!!!

> > Love, Liz

>

[Guest guest]

Hello Sweet Liz,

It sounds like there are many of us with feet that don't want to cooperate with

us.

I was recently out of town setting up a new Life Lift Health Center for my sweet

daughter Amber and my sweet baby sister to run. I ran around so much that my

feet had to be taped they were so blistered. It was terrible. The worst part was

that I have some real problems and I think it was from too many too cute, girly

shoes in my past. Those high heels are not good in the long run. It is terrible

when it hurts just to take a step. My heart goes out to you/ I will say a prayer

for your sweet little feet.

As usual our dear, precious Karma is right on top of things because I bought

some of the same shoe inserts that Karma is talking about and I LOVE them.

I really hope they help.

I use them in all of my shoes. I put little tape strips in my sandals or they

will slip out. They really do make a big difference.

I hope you feel better sweet girl.

Rashelle

> Liz,

> Until you can go to the foot doctor, I would suggest you go to

> http://www.harrietcarter.com and order the phase 4 orthodics. That is

what

> my husband uses and he swears by them. I have regular orthodics that were

> prescribed for me a long time ago. They really do make a difference.

> The phase4 orthodics cost $20.00, but in my opinion are really worth the

> $20.00. I have purchased two pairs for my husband (one for his work shoes

> and one for his tennis shoes) a pair for my 12 year old and a pair for my

11

> year old.

>

> Hope this helps you.

> Karma

> Frustrated

>

>

> > I'm soooo frustrated :-o

> >

> > I'm having problems with my leg making it difficult to exercise the way

> > that I want to. :-( I would love to be able to walk and do LL together

at

> > least 5 days a week. However until I can go to a foot doctor or find a

> > good shoe store that knows about feet problems that sells good walking

> > shoes that can help me figure out the correct shoes that will help my

> > flat feet from causing problems with my leg when I walk I have to be

very

> > careful. We don't have decent insurance right now or extra money to

spend

> > on expensive shoes because of Steve being out of work so I just have to

> > live with it for awhile. I walked 3 days in a row last week and I've

paid

> > for it all weekend. I'm hoping to be able to walk while doing LL 2 or 3

> > days this week, not in a row, but I don't know. Aaahhh!!!! :-o

> >

> > Thanks for listening!!!!

> > Love, Liz

>

[Guest guest]

Ok ladies I really need your help!!! I had my bone scan t,hen last week I had an MRI done on my ankle and foot. It doesn't look good and of course me feeling pity for myself, I have eaten everything in sight!

Then my mom calls me everyday to update me on her weight lost and I get more frustrated. She had that surgery where she doesn't eat anymore. I am very happy for her because she has gone from 400 lbs to 275 right now. She is constantly bragging the she is gonna be thinner than me which makes me even more mad.

So I need your help to get me motivated to get back on track. I haven't even weighed myself, that's how much self pity I'm in.

~dd

(screaming at the top of my lungs))

[Guest guest]

>I had my bone scan t,hen last week

> I had an MRI done on my ankle and foot. It doesn't look good

Osteoporosis or something else?

What's your doc doing for it?

> >She is

> constantly bragging the she is gonna be thinner than me which makes me

even

> more mad.

Want to send her some web sites with WLS horror stories, including memorials

to people who died, either on the operating table or soon afterwards?

> So I need your help to get me motivated to get back on track.

Start by writing out a food plan and sticking to it. Even if you have a

chocolate bar written down, it's a plan and should help keep you from

binging on 10 chocolate bars. Keep a food journal and include *how* you feel

and why you're eating, and look it over frequently. Sometimes seeing that

you ate a bag of chips because you felt angry will stop you from doing it a

second time.

Drink your water.

Do exercises from a chair - maybe treat yourself to 's Sit Tight

tape.

And drink even more water.

I haven't

> even weighed myself, that's how much self pity I'm in.

Don't! What good would it do, anyway? Just continue a healthy eating plan

from now, and in a month or so hop on the scale and see where you are, if

you want. Ignore the numbers on the scale until you get back into your

routine.

[Guest guest]

What do you mean by, " it doesn't look good " ? Will it never heal? Will it

take a long time to heal? Will your walking be altered or restricted by

braces, canes, splints, etc? Are you unable to bear weight on it at all?

Secondly, the good thing about hitting bottom is that you want to go up. Is

there a food plan you want to try, or is there one that has worked for you

in the past?

Kim

>From: Dawn Duran <dawn.duran@...>

>Reply-100-plus

> " '100-plus ' " <100-plus >

>Subject: RE: frustrated

>Date: Mon, 8 Sep 2003 14:14:09 -0700

>

> Ok ladies I really need your help!!! I had my bone scan t,hen last

>week

>I had an MRI done on my ankle and foot. It doesn't look good and of course

>me feeling pity for myself, I have eaten everything in sight!

>

>Then my mom calls me everyday to update me on her weight lost and I get

>more

>frustrated. She had that surgery where she doesn't eat anymore. I am very

>happy for her because she has gone from 400 lbs to 275 right now. She is

>constantly bragging the she is gonna be thinner than me which makes me even

>more mad.

>

>So I need your help to get me motivated to get back on track. I haven't

>even weighed myself, that's how much self pity I'm in.

>

>

>

>~dd

>

>(screaming at the top of my lungs))

>

>

>

>

_________________________________________________________________

Get a FREE computer virus scan online from McAfee.

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

> Ok ladies I really need your help!!! I had my bone scan t,hen

last week

> I had an MRI done on my ankle and foot. It doesn't look good

I'm sorry to hear about that! What did the MRI show?

and of course

> me feeling pity for myself, I have eaten everything in sight!

Yep... sounds like something I would do! You need to realize that

eating everything you want is not helping anyone, as a matter of fact

it may be harmful to yourself.

>

> Then my mom calls me everyday to update me on her weight lost and I

get more

> frustrated. She had that surgery where she doesn't eat anymore. I

am very

> happy for her because she has gone from 400 lbs to 275 right now.

She is

> constantly bragging the she is gonna be thinner than me which makes

me even

> more mad.

Maybe you need to tell your mom " ya know mom that is great, and I'm

so happy for you because you have done well, but right now I have

other medical problems that are going on and I need to focus on

getting that taken care of at the moment, and I need to focus on

myself so I can eventually be able to tell you how much weight I've

lost and then you can be proud of me " I don't know how well

something like that would work, but it may be worth a shot.

>

> So I need your help to get me motivated to get back on track. I

haven't

> even weighed myself, that's how much self pity I'm in.

I think it was Sue that suggested waiting a month or so after you've

been eating better and then step on to see where you are at. It may

be better for yourself since you seem to be in a place that if it

shows a big gain it may be more likely to eat more then start eating

healthy.

Let us know how you are doing!

a

[Guest guest]

Kim

At this point all I know right now is that I will have surgery (if everything looks good) they will just go in and scrap fragments from between the bones. (if it looks bad) I will then have nuts and bolts holding my ankle together. I guess part of the reason of my binging is that I am so scared. I have never been sick at all. The only time I was ever in the hospital was to have babies. And of course I made my mom stay with me and told my husband to go home. With having 2 teenage boys and a 3 year old girl reality set in. We went to the Washington fair Saturday and me who usually out walks everyone could only walk for about an hour before I was in tears. I can't even image it being any worse.

And with all of the support here I AM going to do better. I started eating better last night and tonight I am going to plan my menu for the rest of the week.

Again thank you all for being here and listening to me vent yesterday!

~dd

RE: frustrated>Date: Mon, 8 Sep 2003 14:14:09 -0700>> Ok ladies I really need your help!!! I had my bone scan t,hen last >week>I had an MRI done on my ankle and foot. It doesn't look good and of course>me feeling pity for myself, I have eaten everything in sight!>>Then my mom calls me everyday to update me on her weight lost and I get >more>frustrated. She had that surgery where she doesn't eat anymore. I am very>happy for her because she has gone from 400 lbs to 275 right now. She is>constantly bragging the she is gonna be thinner than me which makes me even>more mad.>>So I need your help to get me motivated to get back on track. I haven't>even weighed myself, that's how much self pity I'm in.>>>>~dd>>(screaming at the top of my lungs))>>>>_________________________________________________________________Get a FREE computer virus scan online from McAfee. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963To unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe:100-plus/join

[Guest guest]

Sue,

I just wanted to tell you I appreciate everything you do on this list!

~dd

-----Original Message-----From: Sue in NJ [mailto:susang@...]Sent: Monday, September 08, 2003 3:23 PM100-plus Subject: Re: frustrated>I had my bone scan t,hen last week> I had an MRI done on my ankle and foot. It doesn't look goodOsteoporosis or something else?What's your doc doing for it?> >She is> constantly bragging the she is gonna be thinner than me which makes meeven> more mad.Want to send her some web sites with WLS horror stories, including memorialsto people who died, either on the operating table or soon afterwards?> So I need your help to get me motivated to get back on track.Start by writing out a food plan and sticking to it. Even if you have achocolate bar written down, it's a plan and should help keep you frombinging on 10 chocolate bars. Keep a food journal and include *how* you feeland why you're eating, and look it over frequently. Sometimes seeing thatyou ate a bag of chips because you felt angry will stop you from doing it asecond time.Drink your water.Do exercises from a chair - maybe treat yourself to 's Sit Tighttape.And drink even more water. :)I haven't> even weighed myself, that's how much self pity I'm in.Don't! What good would it do, anyway? Just continue a healthy eating planfrom now, and in a month or so hop on the scale and see where you are, ifyou want. Ignore the numbers on the scale until you get back into yourroutine.To unsubscribe DO NOT send a message to the list.Please click on this link and unsubscribe:100-plus/join

[Guest guest]

> All I know right now is that I will have surgery (if everything looks

good)

> they will just go in and scrap fragments from between the bones. (if it

> looks bad) I will then have nuts and bolts holding my ankle together.

Major stuff there.

>The only time I was ever in the hospital was to have babies.

Same here, unless you want to count getting my tonsils out when I was 5. And

when I had Henry, they kicked me out in a day and a half. It would have been

24 hrs. except I hemorrhaged and needed a D & C to stop the bleeding. I know

some moms who delivered in the morning and were sent home that night.

> On a positive note........ I ate very bad yesterday afternoon but I

didn't

> want to say okay I will continue to eat this way until tomorrow so I ate a

> healthy dinner. I am going to do my best to stay on track today as well.

Good for you! Just think of it as prepping yourself for that surgery. You

should get yourself in the best possible shape physically and it should make

your post-op and rehab period afterwards go that much more smoothly.

Sue in NJ

[Guest guest]

--- Hi Eve... you do not have alot of fat left to loose. instead of

cutting down your calories and worrying about glycemic index and

making yourself crazy..why not try just simply changing your

workouts? outsmart that body of yours! I never change the way I

eat..but if I plateau I change the workout..for me..it works

immensely. It has taken me a while to learn this about my body..but I

think it will work for you. just sit back..relax..and follow bfl as

you have...nutrition wise..and maybe change those workouts. you could

try doing a split as well. back and bi's one day..tri's and calves

one day..you get my drift. and what about changing the HIIT you are

doing. remember how much you luv to swim Eve..well guess what..I have

incorporated swimming as my HIIT and it is just as effective I am

finding..maybe more so..than land exercise. since I have started

swimming my shoulders are getting rock hard. and this has only been a

couple of weeks. that is what I do for my cardio now..and I feel it

in my abs too. you know that..and I know you luv swimming. I know I

thought you said you have been doing elliptical for your cardio

didn't you? so what do you think of just changing up your workouts?

this works for me very very well. I do not think you should take out

cheat day..but changing the workouts will most likely be what gets

you over that plateau. you have heard your body get's used to

things..you have to outsmart it before it gets the best of you. Don't

worry so much about this Eve..this is an easy thing to fix and get

going again okay. Let me know what you think okay. sorry this is sooo

long. have you tried swimming for HIIT? if you need to know how to do

it or any idea how to do it ..let me know k.. I am almost 100 percent

sure this would work for you to get you off a plateau.

Kathi

In , " Eve " <eck@p...> wrote:

>

>

> I'm getting frustrated because it seems that I am having a hell of a

> time losing anymore bodyfat :/ I do my HIIT, I have even reduced my

> calorie intake(looking to burn more fat and retain the muscle I

have)

> and I feel like I am almost at a stand still. I even try and keep

> away from high glycemic carbs most of the time and eat more veggies

> etc and more fish than chicken/other meats. I drink my water.

>

> :/

[Guest guest]

Hi Eve,

What is your current menu now? What is your bodyfat? Are you still

doing vanilla BFL? I cut out free day a long time ago and did notice

some difference. I maintain my bodyfat between 16-18%.

Understanding

>

>

> I'm getting frustrated because it seems that I am having a hell of a

> time losing anymore bodyfat :/ I do my HIIT, I have even reduced my

> calorie intake(looking to burn more fat and retain the muscle I have)

> and I feel like I am almost at a stand still. I even try and keep

> away from high glycemic carbs most of the time and eat more veggies

> etc and more fish than chicken/other meats. I drink my water.

>

> :/

[Guest guest]

> --- Hi Eve... you do not have alot of fat left to loose. instead of

> cutting down your calories and worrying about glycemic index and

> making yourself crazy..why not try just simply changing your

> workouts?

Doing all of this isn't actually driving me crazy, you get used to it.

My workout routine is actually more intensive then the regular BFL

stuff and has been for about 3 weeks(for weights anyway) so it has

just recently changed and I plan on changing it sometime mid november.

> try doing a split as well. back and bi's one day..tri's and calves

> one day..you get my drift. and what about changing the HIIT you are

I'm doing a 3 day split now instead of 2 days split which I find is

working my muscles a lot more .

> thought you said you have been doing elliptical for your cardio

> didn't you? so what do you think of just changing up your workouts?

> this works for me very very well. I do not think you should take out

> cheat day..but changing the workouts will most likely be what gets

> you over that plateau. you have heard your body get's used to

> things..you have to outsmart it before it gets the best of you. Don't

> worry so much about this Eve..this is an easy thing to fix and get

> going again okay. Let me know what you think okay. sorry this is sooo

> long. have you tried swimming for HIIT? if you need to know how to do

> it or any idea how to do it ..let me know k.. I am almost 100 percent

> sure this would work for you to get you off a plateau.

Having done a lot of swimming for a few months at intervals, I know

that swimming wasn't doing it for me as far as raising metabolism. A

simple test was done when I moved from that to HIIT outside the water

and saw results.

I know I just have to keep going at it and eventually it will come but

cripes I am getting impatient I mean my ultimate goal is to be a

lot more muscular as in leaning towards serious bodybuilding without

competing but I wonder how long it will take me to even look like I've

" started " (I wouldn't mind being slightly ripped like ).

[Guest guest]

> Hi Eve,

>

> What is your current menu now? What is your bodyfat? Are you still

> doing vanilla BFL? I cut out free day a long time ago and did notice

> some difference. I maintain my bodyfat between 16-18%.

>

> Understanding

>

I just recently went back to eating to 40/40/20 compared to the

55(carbs)/20 fat/rest protein that my nutrionist suggested. The only

part of the original bfl that I am no longer doing is the weights

which is now a 3 day split wih 2-3 exercises per muscle groups.

A typical day menu would be something like this

M1: 4-5 egg whites, 1/3 cup of oatmeal with 1tbsp sugar free maple syrup

M2: Half a nitrotech bar with water

M3: Salad with cucumber, mushrooms and a can of chunk light tuna in

water. Dressing is 1tbsp of flax oil a little balsamic vinegar and spices

M4: Half a nitrotech bar with water

M5: Salad or veggies with fish

M6: Usually a protein shake with a few strawberries added.

I eat the nitrotech bars because they are convenient to have around

and I have a bunch left, I plan on picking up a few RDI's sometime

today. For lunch I'll sometimes have some shrimp instead of tuna.

I try and stay away from starchy foods but I do have whole grain bread

and whole wheat pasta every now and then.

The one thing I haven't been taking a lot of lately is l-glutamine.

I don't know but it " seems " like this menu is fine and I have been

eating this way for 3 weeks or so.

[Guest guest]

Hi Eve,

Your menu is pretty good but I would add in some more complex carbs

(barley, yams, etc) make sure you are eating enough to build those

muscles which will burn that fat. Honestly I would ditch the bars and

use them for emergency only. I would also suggest taking mackerel oil

one of the best EFA's out there, if you get downtown, there is health

good store that has a lemon flavoured one so no fishy taste or after

taste but you could also use Udo's or Flax. One thing that really

helped knock me off a plateau (I emailed in a panic one day) and

she suggested circuit training once in a while. Maybe try her burn

out circuit once in a while or create your own.

I know you are already in great shape so now it just tweaking the

little things!

You will get there.

Understanding

> > Hi Eve,

> >

> > What is your current menu now? What is your bodyfat? Are you

still

> > doing vanilla BFL? I cut out free day a long time ago and did

notice

> > some difference. I maintain my bodyfat between 16-18%.

> >

> > Understanding

> >

>

> I just recently went back to eating to 40/40/20 compared to the

> 55(carbs)/20 fat/rest protein that my nutrionist suggested. The

only

> part of the original bfl that I am no longer doing is the weights

> which is now a 3 day split wih 2-3 exercises per muscle groups.

>

> A typical day menu would be something like this

>

> M1: 4-5 egg whites, 1/3 cup of oatmeal with 1tbsp sugar free maple

syrup

> M2: Half a nitrotech bar with water

> M3: Salad with cucumber, mushrooms and a can of chunk light tuna in

> water. Dressing is 1tbsp of flax oil a little balsamic vinegar and

spices

> M4: Half a nitrotech bar with water

> M5: Salad or veggies with fish

> M6: Usually a protein shake with a few strawberries added.

>

>

> I eat the nitrotech bars because they are convenient to have around

> and I have a bunch left, I plan on picking up a few RDI's sometime

> today. For lunch I'll sometimes have some shrimp instead of tuna.

> I try and stay away from starchy foods but I do have whole grain

bread

> and whole wheat pasta every now and then.

>

> The one thing I haven't been taking a lot of lately is l-glutamine.

>

> I don't know but it " seems " like this menu is fine and I have been

> eating this way for 3 weeks or so.

[Guest guest]

> Are you still doing the BFL workouts by the book? If so, perhaps it's

> time for a new routine.

>

> Email me off-list if you want a specific suggestion.

>

Nope not by the book anymore. I started this new routine mid august

but with vacation and labour day weekend I haven't been able to do a

full " workout week " (3 days weights, 3 days cardio) all the time but with

that being all over, I'm now back on my schedule.

if you want to look at what I am doing now, you can find my workouts at:

http://www.sfu.ca/~eve/bfl/

[Guest guest]

> Hi Eve,

>

> Your menu is pretty good but I would add in some more complex carbs

> (barley, yams, etc) make sure you are eating enough to build those

> muscles which will burn that fat. Honestly I would ditch the bars and

> use them for emergency only. I would also suggest taking mackerel oil

> one of the best EFA's out there, if you get downtown, there is health

> good store that has a lemon flavoured one so no fishy taste or after

> taste but you could also use Udo's or Flax. One thing that really

> helped knock me off a plateau (I emailed in a panic one day) and

> she suggested circuit training once in a while. Maybe try her burn

> out circuit once in a while or create your own.

>

> I know you are already in great shape so now it just tweaking the

> little things!

>

> You will get there.

>

The reason as to why I am currently taking bars(as I used to take

shakes a lot) is more lack of planning on my part for those 2 meals :/

I personally prefer real foods but honestly, I'm not all that good

with meal ideas for the one between breakfast hour and lunch hour and

the one in mid afternoon. I only eat cottage cheese a specific way

and it is not my preferred source of protein either.

You go to fitness world don't you? What do you think of their circuit

workout, the one with the 8 weight machines and the step? I used to

do that (~1 yr ago) and it did help me lose bodyfat(8lbs of it). Maybe

do that instead of the regular HIIT?(I always thought it was

exhausting too).

[Guest guest]

Wow. , I don't know what to say! The only thing I can think of is that

maybe the IVIG was still in his system enough to skew the numbers? Plus, IVIG

only replaces the IgG's right? Did they test his complement antibodies? Or

check for any other immune issues? I think I would definitely take him someplace

for a second opinion, since clinically he does not match what they say his

" numbers " are. I certainly can understand your concern and fears!!! Praying for

all of you!

Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome,

Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe

cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9

(she

happens to also be Dyslexic), and wife/soulmate to for 10 years.

check out my website: www.geocities.com/schmidtzoo/SNAK

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

, who is treating your son -- an immunologist or a pediatrician?

I know you are scared, but you are also responsible for this child's

well-being and you have the right to have your questions answered. So,

scared or not scared, someone needs to listen to your concerns and give

you valid reasons for their theories. You need to get a copy of those

" tests " results to see what was checked and what was not. And most of

all, hang in there. There's more than one doctor out there! And it's

vitally important that you get your son the help he needs to prevent

future problems. I'm praying for you right now, for your strength and

wisdom to handle this.

In His service,

Dale

RCurk@... wrote:

[Guest guest]

Hi I can really identify with your post..though our situation is the

reverse of yours... began IVIG treatment a year ago..not really

because of her blood results (all normal or near normal)..she does

have a poor response to vaccinations esp HiB and pneumovax..but she

does eventually mount responses...she began on IVIG because of, as

her immuno put it..the clinical picture..ie multiple invasive life

threatening bacterial infections..chronic skin and ENT infections

etc etc...her doctor works very closely with us and we have agreed

to give her another year on IVIG and then give her a trial without

it with antibiotic cover....he is convinced she has an immune

deficiency he says the problems with the tests that they do are

generally quantitative..ie dealing purely with counts, perhaps more

relevant to children with OK levels but multiple infections would be

qualitative tests ie looking at what the different antibodies etc

actually do....certainly in the UK these sorts of tests are not

available for all aspects of the immune system...as he put it we

have to wait for technology to catch up!!!..BTW has been

relatively infection free on IVIG...

I totally identify with the frustration you feel...before we saw the

immunologist it took us three years to get through to the local

doctors that it was not 'normal' for a child to need IV antibiotics

nearly every month and to get first cellulitis then osteomyelitis

then meneigitis then pneumonia three times as well as needing

grommets and having tonsilitis that resulted in septicaemia four

times..........................you are right they never seem to look

at the WHOLE picture...

Can you ask for a referral elsewhere...your doctors seem really

complacent...it must be so hard for you...

Take care

Mum to Jay (8) (4..PID, IVIG and EGE G-tube neocate) Max (3

months)

> Hi everyone,

> I hope all are feeling well and the sick pumpkins are beginning to

feel

> better. I am feeling very frustrated and confused and figured you

guys can

> appreciate my feelings better than anyone else (except maybe my

husband).

> My son was on IVIG for 8 months after testing revealed that

he had a

> poor response to the pneumovax as well as some t-cell

deficiencies. He had a

> very, very long history of severe sinus and ear infections with

the last one

> being so severe that he had to do 14 days of IV antibiotics to

eradicate it. He

> had a port placed while he was inpatient for the ear infection as

well as

> having his tonsils removed. His last dose was March with the

coverage lasting

> until mid April. He was retested 2 weeks ago.

> I am frustrated for two reasons, one : his test results are all

normal now.

> Now, normally I would be cheering and jumping for joy. However,

even as

> these results are being read to me, is on 1200mg of Aug. ES

TID due to a

> severe post-op infection when they removed his port (which was

done as an

> emergency surgery because it broke and the catheter migrated into

his heart, very

> rare). Just 2 months ago he was treated for a simultaneous

cellulitis of the

> left wrist and a large oral abcess. In addition, the past week he

has developed

> the chronic chest congestion that was so bothersome pre-IVIG.

While on the

> IVIG (8 months) he had NO infections. Zero. Nil. He was the

healthiest he had

> ever been in his little life. I mean that honestly.

> Now, they tell me his tests are all normal so he is no longer any

different

> than any other child out there. They are dismissing him from

their service and

> have no intetions of repeating these test results again, UNLESS,

he is

> admitted for a serious AND unusual infection. So, they are going

to wait until my

> son is faced with a potentially life threatening illness before

they will see

> him again, and yet they say he is normal, so WHY would he develop

a serious or

> unusual infection??? Have any of you ever faced a wonderful

improvement in

> the test results and yet still had a child that was chronically

ill? I don't

> know where else to turn. It seems so many doctors rely so heavily

upon test

> results that they don't even look at the child anymore and the

quality of life

> they have.

> I have cried so many tears for this child. He has suffered so

much and yet

> no one outside of family and friends seem to acknowledge his

apparent problems.

>

>

> Ok, ok, I'm done venting. I realize there is probably little that

you can

> say or do, just wanted to share my frustrations with a group who

has been there

> and done that.

>

> PS. He is also one of those kids, that no matter how severe the

infection

> is, he does not run a fever. Not even when he had both a

cellulitis and the

> oral abcess together. He didn't even run a fever when he had pus

and blood

> dripping down his chest from the surgical infection. Now that

can't be normal.

> Can it???

>

> Thanks so much,

> Take care and God Bless,

> Curkendall

> Mommy to Annette 13 (CP, developmental delay, g-tube, Selective

Antibody

> Deficiency, asthma, HIV+, GER, IVIG x 4 years), 8

(Apparently corrected

> B-Cell dysfunction, brain tumor survivor, port-a-cath (just

removed), seizure

> disorder, severe hearing impairment, trialing off of IVIG) and

Trayvon 4 (complex

> congenital heart defects, asplenia, severe GER, strokes x 2,

malrotated

> intestine) All wonderful and sent from God.

> www.caringbridge.com/ny/my2angels

>

>

>

[Guest guest]

My advice is to hang in there and don't start over. Very few of us,

if any, are totally perfect. Make a list of small-term goals. Even

for the seminar, if you can't make/get to BFL meals, make yourself

take the best possible choices of the bad foods. Set a goal to eat 6

small meals and no snacking or something like that.

I think you can still get some great results even if the first 2

weeks are less than impressive.

Colleen

> Hello, I am so frustrated with myself!!! I am finishing off my

> second week and this week has been horrible! I am doing so

poorly!

> I know I just need to kick myself in the butt and get going.

>

> So....do I start over now that I've screwed up so bad? I don't

want

> this to ruin my 12 week session. Or should I just " buck up " and

> buckle down.

>

> This weekend I'm gone to a seminar so that's pretty much shot. But

> I'm bound and determined to get down to business on Monday. I just

> don't know if 2 weeks will ruin my results down the road.

>

>

> H E L P!!!

>

> Thanks, n

[Guest guest]

Don't give up, n. I've had some not-so-good days myself, but you only

lose if you give up. Keep going. When I eat something I shouldn't I repeat

what one of the women on L & S told me " You're only 2 1/2 hours away from

getting yourself back on track " So when you screw up with your eating, just

make the next meal clean and keep going.

Beth

----- Original Message -----

Hello, I am so frustrated with myself!!! I am finishing off my second week

and this week has been horrible! I am doing so poorly!

[Guest guest]

---Hey n!

hey..first 2 weeks...some minor mishaps..no..you definately have not

screwed up the whole challenge! you have 10 weeks left! there is

massive changes that can be made in 10 weeks. I screwed up the first

5 weeks of my last challenge but still had some progress. you will

too! alot of us have felt that way..messing up a bit..then wanting to

quit cause we think it may mess up our whole challenge..but it won't.

you stick to this and you will see things happen I promise! I am on

my fourth challenge so have been going at this awhile and I know the

ups and downs..I well..have been having some downs on this challenge

myself. we all have them. but those who keep going will succeed no

matter if they mess up a few times..or more than a few times. you

have alot of weeks left..nothing is gonna stop you so take advantage

of those great weeks you have. you won't be sorry! I can tell you

that for sure!

Kathi

In , " n " <wichilover@y...>

wrote:

> Hello, I am so frustrated with myself!!! I am finishing off my

> second week and this week has been horrible! I am doing so

poorly!

> I know I just need to kick myself in the butt and get going.

>

> So....do I start over now that I've screwed up so bad? I don't

want

> this to ruin my 12 week session. Or should I just " buck up " and

> buckle down.

>

> This weekend I'm gone to a seminar so that's pretty much shot. But

> I'm bound and determined to get down to business on Monday. I just

> don't know if 2 weeks will ruin my results down the road.

>

>

> H E L P!!!

>

> Thanks, n