Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 It has been my experience that muscular spasms are a major component of Reactive Arthritis (formerly Reiters Syndrome). This is due to the typical point of inflammation being the tendons at the point they insert into the muscle and the joint. This inflammation leads to muscular spasms. I currently take the generic form of Flexeril (cyclobenzaprine), a muscle relaxer. I take 20 mg in the morning and afternoon, and 30 mg in the evening prior to going to bed. If I do not take the Flexeril, I have muscular spasms most pointedly in my lower back, thighs, calves, and hands, which pain relievers do not help. Prior to taking the Flexeril the muscular spasms in my back would literally throw me out of the bed, or at least make it very alarming for my wife. My hands often develop a life of their own with uncontrolled spasms. Several times my hands have been the dinner table entertainment, flopping around on the table. I am often unaware of the spasms in my hands. But if I try to hold my wife's hand as we go to sleep, she has to let go because my hand is in constant spasms, even with the Flexeril. The spasms are more prominent if I try to relax or go to sleep. Many on the list take muscle relaxers. There are significant side effects to some, like not being able to stay awake. I did have an adjustment period to the Flexeril, but it was quick, less than a week of any significant side effects. It would be worth talking to your doctor about the situation. Ray, moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 I guess that muscle cramps affect those of us with A.S. as well. When I wrote my first novel I kept doing regular home tasks like ironing, scrubbing, etc, anyway, repeated motions. The amount of writing led to tendonitis in my right elbow and then to the whole arm, shoulder and back of the neck, with cramps and spasms. Besides muscle relaxants there´s exercise and massage and of course, hot tub. Jacinta, A.S, 41, Portugal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Ray, would this be the same thing as cramps in the back of the calves? I get those so bad they prevent me from sleeping, they usually only come at night. I try stretching them, laying on the vibrating heat mat, hot baths, nothing helps. Diane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Randy, I should have said that better,. After having gone through that entire procedure, open heart surgery, to gain a few more years of life, I would have felt really foolish to continue smoking and thumb my nose at the doctors helping me. Here's an analogy: it would be like having the linoleum floor in your kitchen torn up and replaced with real expensive linoleum, and then walk all over it wearing golf spikes. Anyway, I just would have felt real foolish. Yours, Harv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Are you warming up and stretching? Maybe walk for 5 minutes, get off and stretch for another 5 minutes, then get back on and start your workout. Or maybe try another machine if you're at a gym. I don't belong to a gym, but it's gotten warmer out recently and I've started walking and jogging outside. My legs feel a little different because i have a lot of hills in my neighborhood. Hope you figure out what's going on! muscle cramps > For the last few months my legs cramp up on the treadmill. My left > hamstrings are always tight, 24-7, since I injured my hip last year. > 2-3 minutes into the workout the right foot from the little toe to > the heal cramps. Then at around 4-5 minutes a few more muscles cramp. > it is never the same ones somtimes a calf, sometimes a quad, > sometimes a combo. After 5 minutes I am in horrible pain. My high > point is 5mph & has been for months. I use to be able to get to 6mph. > It is soo annoying!! Any Advice?? > > Dani > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 I stretch before & after each workout. I have a treadmill at home. I have been walking out side too but have the same problem. When walking outside it is not as bad because I'm keeping the same pace. I have also tried not doing the lower body workout, Thinking that might have an affect, but it didn't change anything. After I posted this morning I thought about what you suggested. Walk 5 minutes, stretch, walk minutes, stretch. I have asked the chiropractor about this, he said 'your body is going though many changes, it is going to hurt, keep working,eventually it will stop hurting.' I have bought shoes, changed incline, yet no change. Somedays I can finish the 20 minutes but somedays I have to stop at 5 minutes. I get so mad that I just stop. I need to stay on the treadmill, go to a lower speed & keep going. Dani > Are you warming up and stretching? Maybe walk for 5 minutes, get off and > stretch for another 5 minutes, then get back on and start your workout. Or > maybe try another machine if you're at a gym. I don't belong to a gym, but > it's gotten warmer out recently and I've started walking and jogging > outside. My legs feel a little different because i have a lot of hills in > my neighborhood. > > Hope you figure out what's going on! > > > muscle cramps > > > > For the last few months my legs cramp up on the treadmill. My left > > hamstrings are always tight, 24-7, since I injured my hip last year. > > 2-3 minutes into the workout the right foot from the little toe to > > the heal cramps. Then at around 4-5 minutes a few more muscles cramp. > > it is never the same ones somtimes a calf, sometimes a quad, > > sometimes a combo. After 5 minutes I am in horrible pain. My high > > point is 5mph & has been for months. I use to be able to get to 6mph. > > It is soo annoying!! Any Advice?? > > > > Dani > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 > For the last few months my legs cramp up on the treadmill. My left > hamstrings are always tight, 24-7, since I injured my hip last year. > 2-3 minutes into the workout the right foot from the little toe to > the heal cramps. Then at around 4-5 minutes a few more muscles cramp. > it is never the same ones somtimes a calf, sometimes a quad, > sometimes a combo. After 5 minutes I am in horrible pain. My high > point is 5mph & has been for months. I use to be able to get to 6mph. > It is soo annoying!! Any Advice?? > > Dani I don't really have any idea what could cause this, but if you get low on potassium it can lead to muscle cramps. Try taking a supplement for a while and see if it helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 Salt/electrolyte depletion caused by excess water can sometimes cause cramping as well. But, so can under hydrating. MN C1 W2 D1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Last week I was so upset with my legs that I hardly worked out at all. My legs use to not cramp & I use to run twice as fast. This week I am just going to take it easy and concentrate more on stretching than on working out. This morning I alternated 5 minutes of total body stretching with 5 minutes of 2 mph on the treadmill. I was on the tredmill for a total of 20 miutes. On Friday I bought a foot massager. It is one of those that looks like 2 slippers hook together & it vibrates. I have been using while sitting at the computer & watching tv. My feet & calves already feel better. Today I'm going to the chiropractor & get a massage. I'm also going to watch my Potassium intake for the next few days. I will also drink more water. If you can think of anything else let me know Dani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Dani, That sounds really frustrating! One thing that helped me with muscle spasms was having a personal trainer at the gym stretch me REALLY GOOD. Not sure if that is realistic for you -- I think you workout at home? Anyway, it's a long shot, but I thought I would mention it just in case. I think having the trainer stretch me worked better than stretching on my own because he did it on a table, and also could stretch/hold my legs in positions I couldn't do myself. He's done it a few times for me [once when I kind of pulled some muscles in my back, so Stasia, this might work for you too?] Here are a few web site that talk about muscle cramps and how to heal them. http://orthoinfo.aaos.org/fact/thr_report.cfm? Thread_ID=270 & topcategory=Sports http://www.betterbodz.com/library/muscle_cramps.html http://www.nlm.nih.gov/medlineplus/ency/article/003193.htm Hope you are back to 100% soon! F > Last week I was so upset with my legs that I hardly worked out at > all. My legs use to not cramp & I use to run twice as fast. > > This week I am just going to take it easy and concentrate more on > stretching than on working out. > > This morning I alternated 5 minutes of total body stretching with 5 > minutes of 2 mph on the treadmill. I was on the tredmill for a total > of 20 miutes. > > On Friday I bought a foot massager. It is one of those that looks > like 2 slippers hook together & it vibrates. I have been using while > sitting at the computer & watching tv. My feet & calves already feel > better. > > Today I'm going to the chiropractor & get a massage. I'm also going > to watch my Potassium intake for the next few days. I will also drink > more water. If you can think of anything else let me know > > Dani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 In a message dated 1/3/2006 10:17:09 PM Eastern Standard Time, pfourier@... writes: My BTO relatives have had their share of annoying nocturnal leg cramps, including myself. Does anyone know what is the root cause? How are your potassium levels? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Ivory soap? I would suggest extra calcium. dalmudlee <pfourier@...> wrote: Happy New Year! My BTO relatives have had their share of annoying nocturnal leg cramps, including myself. Does anyone know what is the root cause? Recently I've been told to use marjoram oil for this muscle problem along with placing a bar of Ivory soap at the foot of the bed. Any comments or suggestions? Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 I have heard of those things also but I usually find it is a deficiency of magnesium. Have you tried it? Kathy dalmudlee <pfourier@...> wrote: Happy New Year! My BTO relatives have had their share of annoying nocturnal leg cramps, including myself. Does anyone know what is the root cause? Recently I've been told to use marjoram oil for this muscle problem along with placing a bar of Ivory soap at the foot of the bed. Any comments or suggestions? Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi I get those cramps quite regularly and they are nasty. I have to somehow get out of bed, if they happen there, and stamp and walk out the cramps. They start in the feet then rythmicly go up and down the muscles in the whole leg. It seems I do not have to do anything to cause them, they just happen and the pain is way off the chart. The feelings of those cramps stays in the muscles for more than a few days. Last night I felt one coming on so got out of bed and walked around to prevent it getting to full force. It worked this time. Even had it happen to me while sitting on the toilet. I ended up on the floor with both legs in those rythmic cramps. They figure that some of the bony growth and spurs from the AS in my fused SI Joints press on the nerves and get it started. Have also had an attack of numbness going down my legs from the waist level, very weird feeling. Thought I would loose feeling in my legs. I didn't, but now am very careful how I sit anywhere and what position I sleep in. I am just happy that they have found the right combination of meds to greatly reduce the pain. Interesting is that they decided on Voltaren which is really an old medication in the NSAID Library. Blessings and safe travel. Fr. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 , the shot to your eye area was most likely a steroid shot. When you stop the Pred Drops too soon, your uveitis has a chance to produce more inflammatory cells. It seems your eye doctor is doing the correct thing. I've had quite a few steroid shots to the eye area. If the cells get into the vitreous area, that area is like a jell substance and it takes longer for the steroid med to work. The iris area is more liquid. With my chronic uveitis, I've had to put the eye drops in every hour for a bad flare-up. You must taper the drops very carefully as if you go off the meds too soon, the cells will multiply rapidly. Is your doctor giving you the dilating drops, too? Did he mention the stage your uveitis is? A 3-4 is considered high. How often are you using the Pred drops? How is your ocular pressure doing? Sorry to hear you are having so much trouble. It is such a " pain in the eye), isn't it? There is a jell ointment for night time use. You might ask for that, instead of setting the alarm clock during sleep time. Just some thoughts. About the muscle cramps, it is very common among us. I have the same problem as you do. If we over tax the muscles at one session, your muscles can go into spasms. If I walk too much, like walking on hard surfaces (like Mall shopping) the next few nights I get those terrible muscle cramps like you mentioned. There is really nothing you can do right away for these cramps...as you said, they last only for a few seconds or minutes. I take flexeril for these type of spasms. I get them in my scapula which can last for a few days. That's when I take the flexeril and it helps greatly. Skelaxin (sp?), Soma work the same way. I just find Flexeril works better for me. You might ask your doctor about getting Rx. If ever you get those spasms in your neck...it helps, too. I wouldn't take it on a long term basis. My warmest regardds to you, too. Connie (granny) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 In a message dated 6/3/2006 1:41:42 A.M. Eastern Daylight Time, dewi@... writes: Last night I felt one coming on so got out of bed and walked around to prevent it getting to full force. It worked this time. Right Dave. I forgot to mention walking in my last post to Dave. Like you, I feel them coming on...sometimes just sitting. I guess that sciatic nerve is on the verge most of the time for both of us. My husband usually comes to the rescue and rubs the butt area where that nerve comes from the spine and down to the leg, and that helps, too. Glad the neurontin (or what ever you are taking) is working for you. I was on Neurontin for a week or so...and I just couldn't handle it. My speech was slurring and felt my brain was altered and dizzy all the time.It really did help the nerve pain though. Couldn't think straight, which happens to me even without the added drug! :-( Old timers disease. Funny how meds can effect us individually. Glad you are feeling better. Best regards, Connie (granny) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 In a message dated 6/3/2006 4:06:02 P.M. Eastern Daylight Time, sillyhil@... writes: My sister in law's grandmother told me about it. I guess all the folks where she lives use this " old wives tale " method for their cramps and it works. Sounds like my grandmother, bless her heart. She swore that it was a cup of tea that caused all my pregnancies. " tee " hee. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 Hi guys... I know that this will sound weird....I sleep with a bar of soap (hotel size) under my fitted sheet on my bed... I never take it out. I was having really bad cramp in my calves and feet at night. I have not had one since I have had the soap in my bed. Not sure why it works but it has for me. My sister in law's grandmother told me about it. I guess all the folks where she lives use this " old wives tale " method for their cramps and it works. AS BJ/Dewi <dewi@...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 Thanks Connie While I managed to catch a cramp coming on, this morning was different, it got me out of bed. Some days you can't win. But the cramp was short lived. I do have some nerve impingement on my left sciatic nerve so they are watching it quite closely. I just pray it does not become a surgical emergency. Yep, I am feeling better, but feeling so, I tend to overdo whatever I am doing and pay the price a day or so later. I have to learn to pace myself a bit better. But I am glad I did cut all the grass earlier this week as the heat has been high until at least 9 PM at night. Then there is only an hour or so of daylight left. That is one of the joys of living this far north and west, the days get very long in springtime with the sun setting after 9:30 at night. This gives us a measure of daylight stretching to almost 11:00 PM. Bad for raising children if you move here with them from the East. Blessings to all Fr. Dave PS finally understand what they mean by the " Golden Years " of life after 65. The folks that look after you and supply your needs, get all the gold. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 wrote: Hi guys... I know that this will sound weird....I sleep with a bar of soap (hotel size) under my fitted sheet on my bed... hmmmmmmm.............................not one I have heard about. But that is not strange as I never really new my grandmothers on either side of the family. However, being a grandfather 9 times over I will have to add that to my list of home remedies. Seems grandchildren ask about these. They even ask if there were dinosaur's around when I was a kid.....I tell them no, but there were a lot of dragons, witches and warlocks around along with pirates. Fr. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 I have been having them often now. Just have to be soooo careful about stretching when i first wake up especially. Also I suddenly developed a problem with it felt like my SI joint.. like the whole area was going into spasm when I turned a certain way. I had to walk with little mincing steps for a couple of days. It seems to have cleared p a little but I can feel flashes ot pain in there someway yet. Liz Kilpatrick On the banks of the Mighty Mississippi River, Davenport,IA/Quad cities ~~~~~~ " People will forget what you said, people will forget what you did, but people will never forget how you made them feel. " ~~~~~~~ Maya Angelou ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 the ratio of calcium to magnesium that the body needs is 2/1. thats twice the calcium as the magnesium.If I dont supplement the magnesium I dont get enough and at night if I stretch my legs I get cramps.If you supplement calcium at 1000mgs a day ,you should be taking 500mgs of Magnesium .If you get too much magnesium you will get loose stools. raise the ammount of magnesium gradually.Sometimes potasium deficiency is the cause if the cramping as well. IN NC Sally <sally.hoffman@...> wrote: Hi all The weather has turned alot colder here. As soon as the cold hits my feet or legs i get muscle cramps. The bedsocks have now made an appearance. I've started taking the cayenne which should be helping my circulation but I wondered if this is a magnesium deficiency or is it just due to thyroid problems. I get this problem every year and just walking into the cold garage wearing socks and slippers my feet and calves start to cramp. I take magnesium in my multi but no extra as i'm worried about mineral imbalance. I do eat lots of nuts and seeds which supply magnesium Any thoughts anyone. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi I've got high tissue calcium so have been told to not supplement calcium although i do in my multi. I'm getting another hair mineral test done in January so will see how things are then. I did have a decrease in potassium on the last one but they said that could be a result of the elimination process because calcium and copper exhibit antagonistic effects upon potassium retention and if these were being mobilized in the tissues for removal it can contribute to a temporary potassium deficiency. So they took it as a potentially good sign. That was quite awhile ago and i stopped taking their supplements because they were mega expensive after taking them for 6 months, so i don't know what's going on but i'm frightened about imbalance that's why i only take vits/mins in multi, formulas etc. I think i might take some extra magnesium to see how i feel. I used to take epsom salt baths and still have half a bag in the garage so that might be a better way, although some people don't agree it is absorbed through the skin. There was a product on the magnesium forum i looked at awhile back to get levels up quickly but reluctant to do anything extreme until i've had some results. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Leg cramping can also be due to oxalate build up on muscles. I got rid of most all leg cramping by going on a low oxalate diet and by taking Calcium Citrate before each meal. Alobar On 12/4/06, Sally <sally.hoffman@...> wrote: > Hi all > > The weather has turned alot colder here. As soon as the cold hits my > feet or legs i get muscle cramps. The bedsocks have now made an > appearance. > I've started taking the cayenne which should be helping my circulation > but I wondered if this is a magnesium deficiency or is it just due to > thyroid problems. I get this problem every year and just walking into > the cold garage wearing socks and slippers my feet and calves start to > cramp. I take magnesium in my multi but no extra as i'm worried about > mineral imbalance. I do eat lots of nuts and seeds which supply > magnesium > Any thoughts anyone. > Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 dont know if it is relavent in your situation, but when I was praegnant I would get a charlie horse in the morning when I stretched if I forgot to take my cod liver oil for a couple days in a row. (sometimes I just would get sick of taking supplements and let it slide) As soon as I got on it faithfully again and would keep the clo going down my throat the charlie horses would cease just my experience warmly,,,,jill Quote Link to comment Share on other sites More sharing options...
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