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Organic carrots

Joanna

Jodi_L_Elenteny@... wrote:

There was a question awhile back asking about a vegetarian source Of

Vitamin A. I didn't see a response to it. I am curious myself what can be

used for children besides cod liver oil.

Any ideas?

Jodi

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You can definitely juice carrots and that's probably an excellent way to

administer this. But you will find pills of Beta Carotene as well.

Take care,

Meryl

Re: Vitamin A

----- Original

Beta Carotone converts to vitamin A.

Yes but how would you do a medicinal/special dose for illness--how

much and what form??? Does it come in a pill or liquid form (I'm

picuturing myself juicing carrots!)

Jen

Jackie Noel

www.sagaciousairedales.com

www.sagaciousdogcountry.com

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You can definitely juice carrots and that's probably an excellent way to

administer this. But you will find pills of Beta Carotene as well.

Meryl--thaks so much. Do you have a recommended dosage of Vit. A for body

weight or age to use for a bad illness? I keep hearing how it's so important

and I've heard all the recommended amounts for Vit. C thrown around. Just want

to be prepared.

L.

Proud mom to Autumn 1-13-97 & Zoe 8-8-00

Take care,

Meryl

Re: Vitamin A

----- Original

Beta Carotone converts to vitamin A.

Yes but how would you do a medicinal/special dose for illness--how

much and what form??? Does it come in a pill or liquid form (I'm

picuturing myself juicing carrots!)

Jen

Jackie Noel

www.sagaciousairedales.com

www.sagaciousdogcountry.com

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The following statement is from the Encyclopedia of Nutritional Supplements,

by T. Murray, N.D.

" Intent of use determines dosage ranges for vitamin A. For general health

purposes, a dosage of 5,000 I.U. for men and 2,500 for women appears

reasonable. During an acute viral infection, a single oral dosage of 50,000

I.U. for one or two days is safe even in infants. "

also:

" Supplementing the diet with beta-carotene does not produce any significant

toxicity despite its use in very high doses in the treatment of numerous

photosensitive disorders. "

Acute viral infections will deplete vitamin A as well as vitamin C. Using

high doses of these vitamins is a good idea, as long as it's only done

short-term.

Jane Sheppard

Healthy Child Online

http://www.healthychild.com

Find out how crib mattresses can cause baby deaths:

http://www.healthychild.com/cribdeathcause.htm

No more chronic infections, allergies, or sickly kids. Groundbreaking new

report provides extensively researched, practical information on what you

can do inexpensively at home to boost your child's immune system to prevent

disease:

http://www.healthychild.com

_

> ________________________________________________________________________

>

> Message: 14

> Date: Tue, 4 Jun 2002 16:52:03 -0500

> From: " & Troy Lucas " <lucasjt@...>

> Subject: Re: Vitamin A

>

>

> ----- Original

> Beta Carotone converts to vitamin A.

>

> Yes but how would you do a medicinal/special dose for

> illness--how much and what form??? Does it come in a pill or

> liquid form (I'm picuturing myself juicing carrots!)

>

> Jen

>

> Jackie Noel

> www.sagaciousairedales.com

> www.sagaciousdogcountry.com

>

>

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Megsen's work found that she only had success in treating autism after

the fact, with Cod Liver Oil Vitamin A (which can be gotten in mercury free

cod form in US) I can't remember the comapny offhand. Anyone??????

Sheri

At 08:27 AM 06/05/2002 +1000, you wrote:

>You can definitely juice carrots and that's probably an excellent way to

>administer this. But you will find pills of Beta Carotene as well.

>

>Take care,

>Meryl

>

> Re: Vitamin A

>

>

>

> ----- Original

> Beta Carotone converts to vitamin A.

>

> Yes but how would you do a medicinal/special dose for illness--how

>much and what form??? Does it come in a pill or liquid form (I'm

>picuturing myself juicing carrots!)

>

> Jen

>

> Jackie Noel

> www.sagaciousairedales.com

> www.sagaciousdogcountry.com

>

>

>

>

>

>

>

>

>

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At 06:40 PM 06/04/2002 -0500, you wrote:

>

>

> You can definitely juice carrots and that's probably an excellent way to

> administer this. But you will find pills of Beta Carotene as well.

> Meryl--thaks so much. Do you have a recommended dosage of Vit. A for

body weight or age to use for a bad illness? I keep hearing how it's so

important and I've heard all the recommended amounts for Vit. C thrown

around. Just want to be prepared.

> L.

> Proud mom to Autumn 1-13-97 & Zoe 8-8-00

More info on Vitamin A and Megsen's work on my measles page

http://www.nccn.net/~wwithin/measles.htm

--------------------------------------------------------

Sheri Nakken, R.N., MA

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@...

(go to http://www.paypal.com) or by mail

PO Box 1563 Nevada City CA 95959 530-740-0561 Voicemail in US

http://www.nccn.net/~wwithin/vaccine.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE

DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

CEU's for nurses, Books & Multi-Pure Water Filters

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Guest guest

Sorry I missed this the first time.

My naturopath gave me the following:

" Vitamin A Mulsion " by Professional Formulas, PO Box 80085, Portland, OR

97280.

I haven't used it, but have it on hand just in case I need it.

Sandy from Alaska

http://www.vaccinationnews.com

http://www.whale.to

http://www.nccn.net/~wwithin/vaccine.htm

http://www.909shot.com

http://www.redflagsweekly.com

http://www.thinktwice.com

http://home.san.rr.com/via/

http://www.mercola.com

ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED

HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED

AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO

BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE. THE

DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE

AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR

HEALTH CARE PROVIDER.

Vitamin A

There was a question awhile back asking about a vegetarian source Of

Vitamin A. I didn't see a response to it. I am curious myself what can

be

used for children besides cod liver oil.

Any ideas?

Jodi

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  • 2 months later...

Fish liver oil and eggs (the yolk) are good sources for vitamin A.

Being an oil soluble vitamin, vitamin A is not as quickly lost from

the body so taking high dosages for too long can create an excess

condition. Vitamin A is synthesized in the body from Beta-carotene.

Beta-carotene is water soluble and is eliminated from the body much

quicker. Also, the body creates vitamin A from beta carotene on an

as needed basis.

Food sources are your best source for vitamins since the food that

they are found in usually contains other nutrients essential for the

proper use of the vitamin.

The downside is that many people w/ FMS/CFIDS are not fully

assimilating the nutrients from food, most likely due to imbalances

in the digestive system.

All the best,

Jim

Fibromyalgia: A Hypothesis of Etiology

http://www.xmission.com/~total/temple/index.html

> Hi all!

> I would like to know if you take vitamn A supplement? What about

dosage?

> thanks.

> Nil

>

>

>

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  • 4 months later...

> Hi all,

>

> Do many of you take vitamin A?Is it necessary to take it?

> Thanks.

> Nil

>

====================================================

I take 20,000 I.U. of vitamin A / day, by injection.

I cannot take it by mouth, as it causes my skin to

burn. But, a lot of things cause my skin to burn.

I get my injectable A from College Pharmacy. As far as

I know, they are the only ones who carry an aqeous, thus

easily injectable form of vitamins A and E. The A and E

can be put in the same solution, along with D3. That is

how I take mine. 20,000 I.U. A, 100 E, 200 D3 (the amount of

E that can be put in an injection is pretty much limited

to 100 I.U., otherwise it gets very thick and difficult to

inject, voice of experience there).

I believe taking these have helped me over the last 4 years.

Dr. Cheney has me on it now for a special purpose, as

he wants me to take more vitamin A, but as I said, I

cannot take it be mouth.

Best,

Zippy

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  • 1 month later...

Hi all,

I’m a new member from Midland, Texas. I’ve been looking through the archives and through Karl’s

excellent website and truly appreciate the chance to share knowledge with other

victims of Samters Triad. I have probably learned more in the past few weeks

than I had ever known before about this illness. I’m currently 55 and

have had polyps/aspirin sensitivity for about 12-13 years. Prior to about

1989-90, I was not aware of any allergy to aspirin and only had “hay

fever” each fall. I had my first endoscopic sinus surgery in 1997 and my

second in 2000. I actually did not develop any asthma symptoms until after my

first surgery (except after taking aspirin). Like many of you, I keep getting

sinus infections and losing my sense of taste and smell. Since my last surgery,

I once went over 5 months without an infection. Most of the time, however, I

lose my smell and get infections back within a month or two of ending a medrol

dosepack (predisone) + antibiotic treatment. I have not tried Kenalog

injections, but I have noticed longer periods of smell and taste after having

Medrol shots – as opposed to oral Prednisone.

A couple of years ago, I found that I had developed

osteoporosis as a result of frequent prednisone treatments. However, Fosamax

and Calcium supplements have now caused a reversal of the bone loss. For the

past 5 years I have been taking allergy shots which have dramatically reduced

my allergic symptoms from pollen, etc. However, the reduction of allergy

symptoms has not led to a reduction in the incidence of sinus infections.

Since my first surgery, I have irrigated

my sinuses with saltwater using a Waterpik with a Grossan Tip. http://www.sinus-relief.com/whatsirr.html

For the past year, I have irrigated at

least once a day. My Allergy Dr. believes the irrigation helps keep my frontal sinuses draining

and, thus, should prevent development of infections. My ENT, however, is

concerned that irrigation can easily introduce bacteria to the sinuses. To be

cautious, I use only distilled water and weekly washout the waterpik with a

mild solution of bleach. To me, the whole exercise is refreshing, especially

early in the morning and also after cutting the grass or doing other dusty work

outside.

I have recently tried the XCLEAR xylitol

nasal spray, but can’t really say that it has reduced my infections. The

other “basket of drugs” that I currently take includes Zyrtec, Singulair

and Flonase. My ENT has recommended that I use the Flonase while in the “Mecca” (head down) position so that the spray is directed toward

my polyps.

Since discovering this egroup, I have

become very interested in learning more about aspirin desensitization/therapy. That

might be something I try next. I would love to hear from any of you who have

had improved smell and taste after aspirin therapy.

Thanks and good luck to all.

Jim Brown

Vitamin A

Keep in mind that it is possible to

OD on Vitamin A.

Re:

Digest Number 241

I haven't heard of No-Phenol enzymes - could you give

me more details? On

another list people are extolling the virtues of

vitamin A supplements in

the form of codliver oil for asthma... has anyone

had success with this?

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Jim,

What's the Website to which you referred -- can't find it in the

thread.

> Hi all,

> I'm a new member from Midland, Texas. I've been looking through the

> archives and through Karl's excellent website and truly appreciate

the

> chance to share knowledge with other victims of Samters Triad. I

have

> probably learned more in the past few weeks than I had ever known

before

> about this illness. I'm currently 55 and have had polyps/aspirin

> sensitivity for about 12-13 years. Prior to about 1989-90, I was not

> aware of any allergy to aspirin and only had " hay fever " each fall.

I

> had my first endoscopic sinus surgery in 1997 and my second in

2000. I

> actually did not develop any asthma symptoms until after my first

> surgery (except after taking aspirin). Like many of you, I keep

getting

> sinus infections and losing my sense of taste and smell. Since my

last

> surgery, I once went over 5 months without an infection. Most of the

> time, however, I lose my smell and get infections back within a

month or

> two of ending a medrol dosepack (predisone) + antibiotic treatment.

I

> have not tried Kenalog injections, but I have noticed longer

periods of

> smell and taste after having Medrol shots - as opposed to oral

> Prednisone.

>

> A couple of years ago, I found that I had developed osteoporosis as

a

> result of frequent prednisone treatments. However, Fosamax and

Calcium

> supplements have now caused a reversal of the bone loss. For the

past 5

> years I have been taking allergy shots which have dramatically

reduced

> my allergic symptoms from pollen, etc. However, the reduction of

allergy

> symptoms has not led to a reduction in the incidence of sinus

> infections.

>

> Since my first surgery, I have irrigated my sinuses with saltwater

using

> a Waterpik with a Grossan Tip.

> http://www.sinus-relief.com/whatsirr.html

> For the past year, I have irrigated at least once a day. My Allergy

Dr.

> believes the irrigation helps keep my frontal sinuses draining and,

> thus, should prevent development of infections. My ENT, however, is

> concerned that irrigation can easily introduce bacteria to the

sinuses.

> To be cautious, I use only distilled water and weekly washout the

> waterpik with a mild solution of bleach. To me, the whole exercise

is

> refreshing, especially early in the morning and also after cutting

the

> grass or doing other dusty work outside.

>

> I have recently tried the XCLEAR xylitol nasal spray, but can't

really

> say that it has reduced my infections. The other " basket of drugs "

that

> I currently take includes Zyrtec, Singulair and Flonase. My ENT has

> recommended that I use the Flonase while in the " Mecca " (head down)

> position so that the spray is directed toward my polyps.

>

> Since discovering this egroup, I have become very interested in

learning

> more about aspirin desensitization/therapy. That might be something

I

> try next. I would love to hear from any of you who have had improved

> smell and taste after aspirin therapy.

> Thanks and good luck to all.

>

> Jim Brown

>

> Vitamin A

>

> Keep in mind that it is possible to OD on Vitamin A.

> Re: Digest Number 241

>

> I haven't heard of No-Phenol enzymes - could you give me more

details?

> On

> another list people are extolling the virtues of vitamin A

supplements

> in

> the form of codliver oil for asthma... has anyone had success with

this?

>

>

>

>

>

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Marcie,

Marcie,

If you mean my reference to the Water Pik irrigator, here it is:

http://www.sinus-relief.com/whatsirr.html

There are numerous articles on the web about Dr. Grossan and his various

products. The irrigator is the only thing I've tried.

Jim

Vitamin A

>

> Keep in mind that it is possible to OD on Vitamin A.

> Re: Digest Number 241

>

> I haven't heard of No-Phenol enzymes - could you give me more

details?

> On

> another list people are extolling the virtues of vitamin A

supplements

> in

> the form of codliver oil for asthma... has anyone had success with

this?

>

>

>

>

>

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  • 1 year later...
  • 3 months later...

If you'll forgive my saying so, I would be a little careful, bg, about

taking promotional blurb at face value. Fortunately, there is a full text

meta-analysis on A toxicity available free at

http://www.ajcn.org/cgi/content/full/78/6/1152

The study is entitled " Water-miscible, emulsified, and solid forms of

retinol supplements are more toxic than oil-based preparations " .

Some bedtime reading for you, though the increased toxicity seems to be

due to higher plasma levels. I take micellisd A myself, so I'm not against

it, but it pays to know the risks.

Rob

----- Original Message -----

From: " bsgttx " <bsgttx@...>

Doris,

After learning I needed the Bio-AE-mulsion type Vitamin A, I found

it at a chiropractor's office where my mother lived at the time.

Later, a pharmacist where I live ordered it for me from Biotics

Research Corporation. It is OTC, but you must get it from a

healthcare professional. It is not sold in health stores.

I posted several messages to the group telling about specific

problems I had when I began taking it. If you are registered with

and can go to the group site, these are the message numbers:

Message Numbers: 72682 (tells about the emulsified and why it does

not have the toxicity of other Vitamin A's),

72672,72659. Also, 72632 (this information came out just a few days

into 2005 -- about Vitamin A being a cure for lymphoma cancer).

If you can't go to the site to read the archived messages, let me

know and I'll forward them to you. I won't have my computer for two

weeks after tomorrow.

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,

Thanks for your concern. It is appreciated. However, I'm not

taking any promotional blurb as guidance. I was guided to taking

the A-emulsion type by a very experienced physician 10 years ago,

and it did an outstanding job for me. I also have learned how much

and how often I can safely take the AE-mulsion.

The reason I have posted the articles here was that I wanted others

to be aware of the very real possibility that they may, too, may be

deficient in Vitamin A -- as many people with chronic illness and

its side effects are. I believe this group to be intelligent; and

with a wide range of information, they are capable of figuring out,

with their healthcare professionals, if this is something they

should look into.

I'm curious, are you a nutritionist, or physician, or other

medically trained person? If so, would you please share that

information with us?

bg

> If you'll forgive my saying so, I would be a little careful, bg,

about

> taking promotional blurb at face value. Fortunately, there is a

full text

> meta-analysis on A toxicity available free at

>

> http://www.ajcn.org/cgi/content/full/78/6/1152

>

> The study is entitled " Water-miscible, emulsified, and solid forms

of

> retinol supplements are more toxic than oil-based preparations " .

>

> Some bedtime reading for you, though the increased toxicity seems

to be

> due to higher plasma levels. I take micellisd A myself, so I'm not

against

> it, but it pays to know the risks.

>

> Rob

>

> ----- Original Message -----

> From: " bsgttx " <bsgttx@c...>

>

> Doris,

>

> After learning I needed the Bio-AE-mulsion type Vitamin A, I found

> it at a chiropractor's office where my mother lived at the time.

> Later, a pharmacist where I live ordered it for me from Biotics

> Research Corporation. It is OTC, but you must get it from a

> healthcare professional. It is not sold in health stores.

>

> I posted several messages to the group telling about specific

> problems I had when I began taking it. If you are registered with

> and can go to the group site, these are the message numbers:

>

> Message Numbers: 72682 (tells about the emulsified and why it does

> not have the toxicity of other Vitamin A's),

> 72672,72659. Also, 72632 (this information came out just a few

days

> into 2005 -- about Vitamin A being a cure for lymphoma cancer).

>

> If you can't go to the site to read the archived messages, let me

> know and I'll forward them to you. I won't have my computer for

two

> weeks after tomorrow.

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Hi bg,

I had hoped that by trailing my coat a bit, I could tempt you into a

spirited discussion about the meta-analysis. You could have pointed out:

1) it was funded by a drug firm and he who pays the piper, calls the tune;

2) emulsified and micellised A still avoided hepatoxicity;

3) it doesn't say by how much these forms produced higher plasma and

hepatic levels, so we can't tell whether the toxicity is higher or lower

per unit increase;

4) osteopoenia risks might well be much lower for those whose intakes of

calcium, magnesium and vit D have been optimised;

5) more subtle this one, but sensitivity to nutritional supplements varies

widely. By relying on reported overdoses, they are probably skewing the

study, by accident or design, towards those who are unrepresentatively

sensitive, thus producing safe intake figures that are lower than the

average person could safely take and much lower than those, like many of

us who have naturally low levels because of conversion difficulties,

could take.

You ask me to share my background. I was an insurance underwriter and CEO

before the DD struck in 85. I have applied myself diligently to

understanding the reasons why and I think I've succeeded. I've been at

this for a very long time, in the case of fibrinolytics, twice as long as

anyone else. This is my fifth winter of posting here and in that time I've

done my best to answer many of the questions that relate to my fields of

interest, but to be honest, it's getting a bit repetitive and I formed a

new group called oxidative_stress to concentrate on these areas in the

hope that we could build up some specialist knowledge. If you'd like to

know more, you can find us at:

oxidative_stress

I have written extensive concise notes on my work Here is a brief summary

that I've just written for the group.

For well over a decade, I had all of the core symptoms that are associated

with CFS, but as a result of these treatments, I have made a major

recovery from them. The musculoskeletal pain of FMS, which had much

earlier antecedents, has been more stubborn but has improved, especially

in my legs. Recent studies into central pain sensitisation have provided

one explanation for the inability of sufferers to reverse the pain aspects

of the condition. However, in my experience, neuralgia, especially

involving sensitivity to cold and particularly common with the trigeminal

nerve because the face is the hardest area to keep warm, can be a

prominent feature and I think real progress will require a better

understanding of local pain conditions like myofascial pain and repetition

strain injuries. " Widespread " the pain may be, but in the case of

gradual-onset sufferers, it is not " diffuse " , as introductions to studies

usually recite. There is typically a persisting pattern of local

distribution and each of the many sites of pain has a history of

development following overuse.

Since the medical profession were unable to help, from 85 onwards, I spent

hours of every day in studying my symptoms, trying to work out what the

underlying physiological problems might be that could explain them and

link them together, and exploring possible ways of testing my hypotheses

and developing treatments. If I had not done so, I would have lost the use

of my legs entirely. (Medics who say that patients who think about

something else get better quicker have not understood that these are the

less badly affected. The severely affected have no choice but to be

mindful of their difficulties.) In three important areas, namely

hypofibrinolysis and magnesium and antioxidant therapies, I was several

years ahead of anyone else and in some ways still am. As far as I am

aware, no one else has made a major recovery from FMS after being so ill

for so long and no one else has yet managed to make antioxidant therapy

really work.

The key to it was realising that most people's approach to treatment is

fundamentally wrong. Doctors look for what will ease the symptoms and

people frequently report on discussion groups that they tried x but

stopped because they felt worse. Well, there are good reasons and bad

reasons for feeling worse and it pays to distinguish between them.

Anyone who has had a serious organic disorder for many years will have a

huge backlog of healing and repair. In the late eighties, my walking was

limited to 300 yards a day and I used to say that the most remarkable

aspect was how low pain levels were in my legs when I was resting, whereas

anyone whose repair metabolism was working normally and whose legs were

that bad would be in a lot of pain. The problem was that my body did not

have what it needed for repair. I used to say that if I could provide what

was needed, I would know it because the pain would increase, and I was

right. There are many paradoxes in these conditions - what I call the hall

of mirrors. The reason I have succeeded is that I have understood those

paradoxes.

The severity of my illness made this sustained level of application very

hard but also meant that my body would respond very clearly to therapeutic

inputs. In particular, my levels of environmental and metabolic toxins

were so high that any improvement in antioxidant status or tissue

perfusion would bring the very strong reaction that I have described as

soon as the agent(s) reached the tissues. Similar reactions, though not

necessarily as strong, have been reported by numerous people with FMS

taking guaifenesin, undenatured whey, MSM, ALA, NAC and other detoxifying

agents.

I was the perfect guinea pig and I used this to test and make thorough

notes on over 200 agents and then test them in combination to establish

optimum doses for each of those that proved worth taking. Given the

millions of different combinations, it would take an eternity to do this

by conventional blinded trials, which is why no one has done it or ever

will. Our hunter-gatherer ancestors, collecting handfuls of wild leaves,

berries and roots, would have consumed numerous phytochemical antioxidants

that are largely absent from a modern diet. Trials of just a few major

antioxidants are doomed to failure because a much larger number is

required to get the electron transport chain humming. The doses are

usually far too high as well, which means first, that the many

redox-sensitive metabolic processes that go on in the body can be

seriously disrupted and secondly, without suitable reducing agents, some

of the antioxidants can become pro-oxidant.

Interestingly, it was the antioxidants that enabled me to optimise the

fibrinolytics and homocysteine metabolisers. Reducing the coating of

fibrin on my blood vessel walls would increase tissue perfusion and the

transport of antioxidants in and toxins out, thus producing a

detoxification surge. Reducing homocysteine would counter the pro-oxidant

environment that Hcy produces, thus enabling the antioxidants to work, and

also counter vasoconstriction, thus again increasing tissue perfusion. The

strong reaction that was so reliable an indicator was produced by

intermediate toxins as detoxification pathways were activated. Further, by

using the signs such as eyes and eyelid redness and the skin eruptions

that are produced when toxins are being released from tissues faster than

they can be removed by the bloodstream, I could make the process more

objective and not dependent on how I felt.

I think FMS has proved so difficult for the medical profession because of

the limitations of scientific method, which has enabled great advances but

works only if a problem can be broken down into small enough pieces. It

cannot be used to solve problems where a large number of variables are

interconnected and so many areas of complexity are poorly understood.

However, if my research has provided valuable information that could not

have been arrived at by scientific method, it has itself one obvious

limitation. I always stress that these illnesses are multifactorial, but

even those cases primarily due to hypercoagulation and toxification will

be different because of the individual variations in biochemistries and

other genetic susceptibilities, nutritional needs and actual dietary

intakes, and exposure to toxins and other stressors. This means that if

others wish to follow my regime, they will have to adapt it to their own

needs using methods similar to mine.

Co-morbidity of FMS and hypercoagulation is increasingly recognised,

though there are different kinds and the extent to which they are

genetically determined and the extent to which they either precede FMS or

are aggravated by it will vary. Sufferers with a family history of

coagulative or atherosclerotic cardiovascular disease and/or a low ESR

would be likely to benefit from improving fibrinolysis and reducing

homocysteine, though no one should simply assume that he or she has this

problem. All should take medical advice, including those already diagnosed

and taking medication.

As to antioxidant therapy and detoxification, though, it would be

impossible to live anywhere today without encountering environmental

toxins, and as industrialisation increases the problem far beyond what

humans have evolved to cope with, it is only to be expected that more and

more people will find their bodies cannot cope. Indeed, it could well be

that the reasons for the female preponderance among sufferers include a

much higher exposure to synthetic compounds in household chemicals and

cosmetics as well as a greater female susceptibility to immune disorders.

Certainly, anyone who is sensitive to cigarette smoke, vehicle exhaust

fumes, alcohol or formaldehyde outgassing is a good candidate for

antioxidant therapy. Not everyone will benefit as much as I have, but

unlike many other therapeutic approaches, the worst that taking modest

doses of a broad spread of antioxidants can lead to is that the

individual's general health will improve.

Best wishes,

Rob

----- Original Message -----

From: " bsgttx " <bsgttx@...>

,

Thanks for your concern. It is appreciated. However, I'm not

taking any promotional blurb as guidance. I was guided to taking

the A-emulsion type by a very experienced physician 10 years ago,

and it did an outstanding job for me. I also have learned how much

and how often I can safely take the AE-mulsion.

The reason I have posted the articles here was that I wanted others

to be aware of the very real possibility that they may, too, may be

deficient in Vitamin A -- as many people with chronic illness and

its side effects are. I believe this group to be intelligent; and

with a wide range of information, they are capable of figuring out,

with their healthcare professionals, if this is something they

should look into.

I'm curious, are you a nutritionist, or physician, or other

medically trained person? If so, would you please share that

information with us?

bg

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Hi Rob,

I don't have time to be tempted to do anything today except try to

get clothes packed for a 2-week trip.

Let me state again my reasons for posting the info on Vitamin A (Bio-

AE-Mulsion). It was because 10 years ago I was studying diligently

(reading everything that had solid science and impeccable

physicians/scientists writing it that might apply to my

circumstances)not just to try to get well, but at that time how to

survive. It was after I added the Vitamin AE-Mulsion to my

protocols that my eye problems especially began clearing up almost

immediately. I also had to use many other avenues to undo/clear up

all the things that had happened to me on the RX protocols that my

so-called " best physicians " had prescribed for me for two years --

which made me worse all the time and as I say it, I truly

almost " bit the dust. "

I'm very skeptical of most things (hype) UNTIL I learn firsthand

they have helped me tremendously or feel/know it is from a respected

source. All of us are different even then. But in my case, the

Vitamin AE-mulsion was needed, and it was a real friend to me.

And how do you all like the way it " cured " a form of cancer,

reported on since the first of January 2005?

" See " you all when I return.

bg

> Hi bg,

>

> I had hoped that by trailing my coat a bit, I could tempt you into

a

> spirited discussion about the meta-analysis. You could have

pointed out:

>

> 1) it was funded by a drug firm and he who pays the piper, calls

the tune;

>

> 2) emulsified and micellised A still avoided hepatoxicity;

>

> 3) it doesn't say by how much these forms produced higher plasma

and

> hepatic levels, so we can't tell whether the toxicity is higher or

lower

> per unit increase;

>

> 4) osteopoenia risks might well be much lower for those whose

intakes of

> calcium, magnesium and vit D have been optimised;

>

> 5) more subtle this one, but sensitivity to nutritional

supplements varies

> widely. By relying on reported overdoses, they are probably

skewing the

> study, by accident or design, towards those who are

unrepresentatively

> sensitive, thus producing safe intake figures that are lower than

the

> average person could safely take and much lower than those, like

many of

> us who have naturally low levels because of conversion

difficulties,

> could take.

>

> You ask me to share my background. I was an insurance underwriter

and CEO

> before the DD struck in 85. I have applied myself diligently to

> understanding the reasons why and I think I've succeeded. I've

been at

> this for a very long time, in the case of fibrinolytics, twice as

long as

> anyone else. This is my fifth winter of posting here and in that

time I've

> done my best to answer many of the questions that relate to my

fields of

> interest, but to be honest, it's getting a bit repetitive and I

formed a

> new group called oxidative_stress to concentrate on these areas in

the

> hope that we could build up some specialist knowledge. If you'd

like to

> know more, you can find us at:

>

> oxidative_stress

>

> I have written extensive concise notes on my work Here is a brief

summary

> that I've just written for the group.

>

>

> For well over a decade, I had all of the core symptoms that are

associated

> with CFS, but as a result of these treatments, I have made a major

> recovery from them. The musculoskeletal pain of FMS, which had much

> earlier antecedents, has been more stubborn but has improved,

especially

> in my legs. Recent studies into central pain sensitisation have

provided

> one explanation for the inability of sufferers to reverse the pain

aspects

> of the condition. However, in my experience, neuralgia, especially

> involving sensitivity to cold and particularly common with the

trigeminal

> nerve because the face is the hardest area to keep warm, can be a

> prominent feature and I think real progress will require a better

> understanding of local pain conditions like myofascial pain and

repetition

> strain injuries. " Widespread " the pain may be, but in the case of

> gradual-onset sufferers, it is not " diffuse " , as introductions to

studies

> usually recite. There is typically a persisting pattern of local

> distribution and each of the many sites of pain has a history of

> development following overuse.

>

> Since the medical profession were unable to help, from 85 onwards,

I spent

> hours of every day in studying my symptoms, trying to work out

what the

> underlying physiological problems might be that could explain them

and

> link them together, and exploring possible ways of testing my

hypotheses

> and developing treatments. If I had not done so, I would have lost

the use

> of my legs entirely. (Medics who say that patients who think about

> something else get better quicker have not understood that these

are the

> less badly affected. The severely affected have no choice but to be

> mindful of their difficulties.) In three important areas, namely

> hypofibrinolysis and magnesium and antioxidant therapies, I was

several

> years ahead of anyone else and in some ways still am. As far as I

am

> aware, no one else has made a major recovery from FMS after being

so ill

> for so long and no one else has yet managed to make antioxidant

therapy

> really work.

>

> The key to it was realising that most people's approach to

treatment is

> fundamentally wrong. Doctors look for what will ease the symptoms

and

> people frequently report on discussion groups that they tried x but

> stopped because they felt worse. Well, there are good reasons and

bad

> reasons for feeling worse and it pays to distinguish between them.

>

> Anyone who has had a serious organic disorder for many years will

have a

> huge backlog of healing and repair. In the late eighties, my

walking was

> limited to 300 yards a day and I used to say that the most

remarkable

> aspect was how low pain levels were in my legs when I was resting,

whereas

> anyone whose repair metabolism was working normally and whose legs

were

> that bad would be in a lot of pain. The problem was that my body

did not

> have what it needed for repair. I used to say that if I could

provide what

> was needed, I would know it because the pain would increase, and I

was

> right. There are many paradoxes in these conditions - what I call

the hall

> of mirrors. The reason I have succeeded is that I have understood

those

> paradoxes.

>

> The severity of my illness made this sustained level of

application very

> hard but also meant that my body would respond very clearly to

therapeutic

> inputs. In particular, my levels of environmental and metabolic

toxins

> were so high that any improvement in antioxidant status or tissue

> perfusion would bring the very strong reaction that I have

described as

> soon as the agent(s) reached the tissues. Similar reactions,

though not

> necessarily as strong, have been reported by numerous people with

FMS

> taking guaifenesin, undenatured whey, MSM, ALA, NAC and other

detoxifying

> agents.

>

> I was the perfect guinea pig and I used this to test and make

thorough

> notes on over 200 agents and then test them in combination to

establish

> optimum doses for each of those that proved worth taking. Given the

> millions of different combinations, it would take an eternity to

do this

> by conventional blinded trials, which is why no one has done it or

ever

> will. Our hunter-gatherer ancestors, collecting handfuls of wild

leaves,

> berries and roots, would have consumed numerous phytochemical

antioxidants

> that are largely absent from a modern diet. Trials of just a few

major

> antioxidants are doomed to failure because a much larger number is

> required to get the electron transport chain humming. The doses are

> usually far too high as well, which means first, that the many

> redox-sensitive metabolic processes that go on in the body can be

> seriously disrupted and secondly, without suitable reducing

agents, some

> of the antioxidants can become pro-oxidant.

>

> Interestingly, it was the antioxidants that enabled me to optimise

the

> fibrinolytics and homocysteine metabolisers. Reducing the coating

of

> fibrin on my blood vessel walls would increase tissue perfusion

and the

> transport of antioxidants in and toxins out, thus producing a

> detoxification surge. Reducing homocysteine would counter the pro-

oxidant

> environment that Hcy produces, thus enabling the antioxidants to

work, and

> also counter vasoconstriction, thus again increasing tissue

perfusion. The

> strong reaction that was so reliable an indicator was produced by

> intermediate toxins as detoxification pathways were activated.

Further, by

> using the signs such as eyes and eyelid redness and the skin

eruptions

> that are produced when toxins are being released from tissues

faster than

> they can be removed by the bloodstream, I could make the process

more

> objective and not dependent on how I felt.

>

> I think FMS has proved so difficult for the medical profession

because of

> the limitations of scientific method, which has enabled great

advances but

> works only if a problem can be broken down into small enough

pieces. It

> cannot be used to solve problems where a large number of variables

are

> interconnected and so many areas of complexity are poorly

understood.

>

> However, if my research has provided valuable information that

could not

> have been arrived at by scientific method, it has itself one

obvious

> limitation. I always stress that these illnesses are

multifactorial, but

> even those cases primarily due to hypercoagulation and

toxification will

> be different because of the individual variations in

biochemistries and

> other genetic susceptibilities, nutritional needs and actual

dietary

> intakes, and exposure to toxins and other stressors. This means

that if

> others wish to follow my regime, they will have to adapt it to

their own

> needs using methods similar to mine.

>

> Co-morbidity of FMS and hypercoagulation is increasingly

recognised,

> though there are different kinds and the extent to which they are

> genetically determined and the extent to which they either precede

FMS or

> are aggravated by it will vary. Sufferers with a family history of

> coagulative or atherosclerotic cardiovascular disease and/or a low

ESR

> would be likely to benefit from improving fibrinolysis and reducing

> homocysteine, though no one should simply assume that he or she

has this

> problem. All should take medical advice, including those already

diagnosed

> and taking medication.

>

> As to antioxidant therapy and detoxification, though, it would be

> impossible to live anywhere today without encountering

environmental

> toxins, and as industrialisation increases the problem far beyond

what

> humans have evolved to cope with, it is only to be expected that

more and

> more people will find their bodies cannot cope. Indeed, it could

well be

> that the reasons for the female preponderance among sufferers

include a

> much higher exposure to synthetic compounds in household chemicals

and

> cosmetics as well as a greater female susceptibility to immune

disorders.

> Certainly, anyone who is sensitive to cigarette smoke, vehicle

exhaust

> fumes, alcohol or formaldehyde outgassing is a good candidate for

> antioxidant therapy. Not everyone will benefit as much as I have,

but

> unlike many other therapeutic approaches, the worst that taking

modest

> doses of a broad spread of antioxidants can lead to is that the

> individual's general health will improve.

>

> Best wishes,

>

> Rob

>

>

>

> ----- Original Message -----

> From: " bsgttx " <bsgttx@c...>

>

> ,

>

> Thanks for your concern. It is appreciated. However, I'm not

> taking any promotional blurb as guidance. I was guided to taking

> the A-emulsion type by a very experienced physician 10 years ago,

> and it did an outstanding job for me. I also have learned how much

> and how often I can safely take the AE-mulsion.

>

> The reason I have posted the articles here was that I wanted others

> to be aware of the very real possibility that they may, too, may be

> deficient in Vitamin A -- as many people with chronic illness and

> its side effects are. I believe this group to be intelligent; and

> with a wide range of information, they are capable of figuring out,

> with their healthcare professionals, if this is something they

> should look into.

>

> I'm curious, are you a nutritionist, or physician, or other

> medically trained person? If so, would you please share that

> information with us?

>

> bg

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Why doesn't anyone just take cod liver oil?? Wouldn't that be a

natural form versus processed?? As for toxicity, the WHO gives shots

of 100,000 at 6 month intervals to children in developing countries.

My understanding is 5,000 IU daily is acceptable dosage. -- anne

> If you'll forgive my saying so, I would be a little careful, bg,

about

> taking promotional blurb at face value. Fortunately, there is a

full text

> meta-analysis on A toxicity available free at

>

> http://www.ajcn.org/cgi/content/full/78/6/1152

>

> The study is entitled " Water-miscible, emulsified, and solid forms

of

> retinol supplements are more toxic than oil-based preparations " .

>

> Some bedtime reading for you, though the increased toxicity seems

to be

> due to higher plasma levels. I take micellisd A myself, so I'm not

against

> it, but it pays to know the risks.

>

> Rob

>

> ----- Original Message -----

> From: " bsgttx " <bsgttx@c...>

>

> Doris,

>

> After learning I needed the Bio-AE-mulsion type Vitamin A, I found

> it at a chiropractor's office where my mother lived at the time.

> Later, a pharmacist where I live ordered it for me from Biotics

> Research Corporation. It is OTC, but you must get it from a

> healthcare professional. It is not sold in health stores.

>

> I posted several messages to the group telling about specific

> problems I had when I began taking it. If you are registered with

> and can go to the group site, these are the message numbers:

>

> Message Numbers: 72682 (tells about the emulsified and why it does

> not have the toxicity of other Vitamin A's),

> 72672,72659. Also, 72632 (this information came out just a few days

> into 2005 -- about Vitamin A being a cure for lymphoma cancer).

>

> If you can't go to the site to read the archived messages, let me

> know and I'll forward them to you. I won't have my computer for two

> weeks after tomorrow.

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  • 9 months later...

Hi Mikael

Nioce to meet yopu briefly at the conference too. Would have been better if I had remembered to set my alarm and arrived on time at the coference never mind next time. Re your question. definately didnt cope with the CLO either. Sometimes I fiond it a bit tricky figuring out what the problem is with Becky but this is probably one of the few things I can say for certain wasnt good.

Will maybe try again in a few months. We ahve stopped quite a few things recently because of her excessive peeing. I attribute that to the movicol irritating her as its better without that but also need to go completely LOD. We are phasing this is just now. is doing real good just now and its not often I say that!!!

Keep ya all posted.

Luv caroline

xxxx

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We didn't particullary see an increase in stimming, no. In fact

Epsom salts are the most calming and focusing thing that Tom

responds to really. They make him open, calm and interactive.

Yes send more European conferences, particularly with such a great

line up. Really good experience. (and great bar)

Steph

>

> Have any of you experienced large increases in stimming (mainly

occular) as a result of either Vitamin A, Epsom Salts or omega 3's.

We've been increasing ' doses of each of these recently and

have seen some serious increase in stimming alongside. We think its

the Vitamin A in the Nordic Naturals but can't be sure. (We're only

giving 2 x 5ml of the Arctic CLO, despite having been recommended to

go to three). We had a similar experience with CLO last year

although at that time we were also doing high doses of vit B's, came

off both which resolved the stimming, but could not pin it down to

either at the time.

> Thanks

> Mikael

>

> PS. It was great to see many of you at the Edinburgh conference.

It would certainly be great if conferences around Europe could be a

regular affair as they are in the US. We'll definitely stay for the

extracurricular (bar) activities next time!

>

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Thanks for your comments on the Vit A / CLO. stimming is already settling down after removing it. Will try an omega supp that does not have so much Vit A in and see what happens.

Have any of you tried high dose Vit A to go for viruses? What was the effect on stimming of doing this?

Mikael

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  • 4 months later...
Guest guest

Ingrid,

I agree with you on this and I like most of what I see on WAP. I guess

nothing is perfect, huh? Except breastmillk!

Sheri B.

---------------------------------

Use Photomail to share photos without annoying attachments.

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  • 1 year later...

Usually about 70% of Vitamin A in multivitamin supplements is in the form of b-carotene. It is the all-rac form of Vitamin A that you need to watch the levels on, but the levels are set for normal individuals, not those being treated for deficiency or those who are malabsorbing. If it takes a higher level to maintain her serum retinol, she may just need a higher does than others.

I would also check retinol binding protein...it transports the A for storage.

Jeanne Blankenship, MS RD

Sacramento, CA

-------------- Original message from ODonnell <jlod2@...>: --------------

Hi All,

I have a pt that is on vitamin A supplementation, her levels came back slightly low:306. I had her on 10,000 IU's for about 3 months, brought it back up, she went off of it and then it dropped again. She recently purchased a mvi which as 3500 IU's vitamin A along with a 8000 IU vitamin tablet. My question is, will this be too much? I know vitamin A can be toxic if consumed in large amounts but since she had a malabsorptive surgery, can she have a little more? If any of you could get back to me that would be great. I have always been taught that 10,000 IU's is the upper limit. Thank you,

O'Donnell RD, LD

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