A few questions

[Guest guest]

How do I get additional information on the recent " discoveries " in Hepatitis

C. Studies, tests, control/management, transmitting, etc.?

Thanks

Kim

Welcome to Hepatitis Conelist

>Hello,

>

>Welcome to the list. Please take a moment to review this message.

>

>This list has been created to help those who have been diagnosed with

Hepatitis

>C. It can be a very confusing and devastating time in your life. I hope

this

>list can serve as an informational platform as well as be a place to get

support

>from others who may be experiencing the same feelings.

>

>I hope you enjoy!!!!!

>

>

[Guest guest]

,

Congratulations on your implant date. It will be here before you know

it. Let's see if we can address your questions.

You will be implanted with the Nucleus contour. The straight array is

not being implanted any longer. You may even be implanted with the

soft tip array which is new to the contour. I would ask the surgeon

about this when you go for your pre-surgery appointment.

If your insurance approved two processors..you can have two of the

same kind or one of each. That is your choice so if you are

considering a BWP - please be sure to let the audiologist know that

you would like one of each before they are ordered. The BWP -

although not as convenient to wear - has many great features and

allows four programs. Most people today prefer the BTE and perhaps

this is why your center is only ordering it but here again, this is

something you need to discuss with them. Talk to the audiologist and

make the decision for yourself. With your BTE..you will also get to

choose which color you want.

The CI definitely works for age-related hearing loss. I have seen

several very successful implantees who had the implant done in their

mid to upper 70's. They have really enjoyed the return of quality of

life their restored hearing thru the technology of the cochlear

implant. I don't know how old you are but I am quite certain that

you will be very happy with your decision. I know it was one of the

best I ever made for myself.

Alice

[Guest guest]

Alice,

Thanks so much for answering my questions. I do have one more,

though, now. I can't seem to figure in my head where the microphone

is located on the BWP. I know the magnet part is just like the one

on the BTE, only the cord is longer to attach to the BWP on your

waist or in your pocket, right? So the where is the microphone if

there's nothing behind your ear?

I am only 26 (don't anyone get mad at me, though, when I say that it

sometimes feels old because I haven't done as many of the things I

wanted to by now), but my grandpa is 81 and has been HOH as long as

I can remember. He finally has a hearing aid that he wears full-

time now, but that tooks years of trial and error. I was thinking

he might be interested in the CI if all goes well with mine.

I agree that this is the right decision for me. I am trying to keep

my expectations realistic, but at the same time, I am completely

confident that this will work for me.

Take care,

> If your insurance approved two processors..you can have two of the

> same kind or one of each. That is your choice so if you are

> considering a BWP - please be sure to let the audiologist know

that

> you would like one of each before they are ordered. The BWP -

> although not as convenient to wear - has many great features and

> allows four programs. Most people today prefer the BTE and perhaps

> this is why your center is only ordering it but here again, this

is

> something you need to discuss with them. Talk to the audiologist

and

> make the decision for yourself. With your BTE..you will also get

to

> choose which color you want.

>

> The CI definitely works for age-related hearing loss. I have seen

> several very successful implantees who had the implant done in

their

> mid to upper 70's. They have really enjoyed the return of quality

of

> life their restored hearing thru the technology of the cochlear

> implant. I don't know how old you are but I am quite certain that

> you will be very happy with your decision. I know it was one of

the

> best I ever made for myself.

>

> Alice

[Guest guest]

,

On the BWP headpiece, there is also a small piece that

hooks over your ear. There is where you will find the

microphone. The BWP earpiece is smaller than the one

on BTE but the mic is just as powerful.

Alice

--- sing2phins <sing2phins@...> wrote:

> Alice,

>

> Thanks so much for answering my questions. I do

> have one more,

> though, now. I can't seem to figure in my head

> where the microphone

> is located on the BWP. I know the magnet part is

> just like the one

> on the BTE, only the cord is longer to attach to the

> BWP on your

> waist or in your pocket, right? So the where is the

> microphone if

> there's nothing behind your ear?

>

> I am only 26 (don't anyone get mad at me, though,

> when I say that it

> sometimes feels old because I haven't done as many

> of the things I

> wanted to by now), but my grandpa is 81 and has been

> HOH as long as

> I can remember. He finally has a hearing aid that

> he wears full-

> time now, but that tooks years of trial and error.

> I was thinking

> he might be interested in the CI if all goes well

> with mine.

>

> I agree that this is the right decision for me. I

> am trying to keep

> my expectations realistic, but at the same time, I

> am completely

> confident that this will work for me.

>

> Take care,

>

>

>

>

> > If your insurance approved two processors..you can

> have two of the

> > same kind or one of each. That is your choice so

> if you are

> > considering a BWP - please be sure to let the

> audiologist know

> that

> > you would like one of each before they are

> ordered. The BWP -

> > although not as convenient to wear - has many

> great features and

> > allows four programs. Most people today prefer the

> BTE and perhaps

> > this is why your center is only ordering it but

> here again, this

> is

> > something you need to discuss with them. Talk to

> the audiologist

> and

> > make the decision for yourself. With your

> BTE..you will also get

> to

> > choose which color you want.

> >

> > The CI definitely works for age-related hearing

> loss. I have seen

> > several very successful implantees who had the

> implant done in

> their

> > mid to upper 70's. They have really enjoyed the

> return of quality

> of

> > life their restored hearing thru the technology of

> the cochlear

> > implant. I don't know how old you are but I am

> quite certain that

> > you will be very happy with your decision. I know

> it was one of

> the

> > best I ever made for myself.

> >

> > Alice

>

>

>

[Guest guest]

:

Regarding BTE/BWP or 2 BTE's.... My clinic asked me my preference. I

picked 1 BTE/1BWP because I want to try both, even though I suspect that I

will end up with the BTE eventually. Others have told me that using the

BWP is easier for " training " during the first few months to be able to see

the dials, etc., as you work through your initial mappings and constantly

explore with the sensitivity or volume.

Anne

_________________________________________________________________

STOP MORE SPAM with the new MSN 8 and get 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

,

As far as getting two bte's or the bwp and a bte, it's really a

personal choice. Not sure what you are getting but I know the Nucleus

bwp has 4 program slots on it and this feature is handy if you want

all the programs in one spot; but with two bte's which hold 2

programs each, both can be mapped to hold two different programs on

each giving you a choice of 4 programs to choose from also.

I think if I had the choice of which two processors to receive, I'd

take two bte's if Iwas going to wear the bte, that way if youhave a

problem with one, you have an identical for backup.It's your choice!

Best of luck.

Hugs,

Silly

[Guest guest]

Kat,

No shaling here. LOL You will get a year's supply of batteries

(VARTA). You will get all 12 colors of the battery and coil covers.

The silver is the color of the unit itself. I love silver, its the

best choice. LOL

Your audie will work with yuh and map you with whatever he/she

thinks is best, but tis not carved in stone, so no fear there.

*---* *---* *---* *---* *---*

Mermaid mathematicians wear algae-bras.

--Anonymous

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.attbi.com/~rlclark77/

[Guest guest]

As far as I know, you still get the batteries.

The battery and head coil covers come with all the stuff you get.

The speech strategy you start with doesn not in any way reflect or determine

the speech strategy you will end up with so have fun playing around with

everything!!

In a message dated 6/18/2003 11:58:39 PM Eastern Standard Time,

jandkdewitt@... writes:

>

> With my Nucleus:

> Will I get a year's worth of batteries or was that a one time deal?

>

> When I get my 3G will will I get the colored covers? (I asked for a

> silver one).

>

> Is it standard to start with a certain speech strategy or does it all

> depend on your thresh hold and such?

>

[Guest guest]

> I'm sure all these are somewhere in the group but I couldn't find

any so figured I'd just post.

>

Thanks for the help! I wasn't sure if I should put in an order for

batteries or wait to see if I get any. I'm so excited I can't sit

still. I hope this was a good decision (getting a CI). I know it

doesn't cure my deafness but I was struggling so bad anything would

be good.

One of my biggest goals is being able to converse with my children

better. Especially my daughter she's five and gets so frustrated at

me sometimes for having to repeat or missing what she says (like the

dog died instead of the dog's inside) LOL. We live 20 minutes from a

larger city with grocery stores, Walmart and such. It would be nice

on drives home to be able to use that time to converse with them,

find out how they are doing in school, ect. Right now I just sit

there or have to strain with a seat belt on to see their faces in the

back seat.

Anyways, gotta work on the yard some more. I grow better weeds than

flowers LOLOLOL.

Kat

[Guest guest]

nobody's ever reported reactions with intake of anything. I suspect

drugs might be an issue.

use stainless steel cotter pins or old utensils wrapped with black

tape and covered with cloth, etc if you don't want aluminum.

Stainless is deluxe, I like it the best. Hunt around and come up

with something to use, let us know were always looking for novel

electrodes. I thought a desert fork would be good, using the handle

for the electrode, wrapping the wires in the tines, covering most of

it with tape, and the exposed part with cloth..or stainless pot

scrubber, etc. You can even use just rolls of cloth with an

alligator clip, it will reduce the current a bit, but could be good.

Above the neck, we don't know what's ok, have heard " don't over do

it " dc can be damaging if overdone on brain synapses. Look: the

doctors are doing it with 4 times more current than we are...you

decide, you report, you research like the rest of us. this hasn't

hurt anyone seriously yet, it's been 3 years, 1150 members. I

scream when things are egregiously in error like using 9v without a

limit resistor, using metal on skin (or worse, subcutaneously

without a limit resistor). You have the basic device if used as

shown should be a workable range of damage to microbes vs anything

else. I like you have done this. What are you researching? we

want to know results. Fungus on toes does respond, but it's hardy

and needs lots of time, and lots of dosing regularly to reduce it.

Antifungal creams were better in my case. Using two rags and

pushing toes into them for a few hours might be a good one to try...

Most medical people find this " scary " they have all these horror

images. Electronics people find it almost silly. The current

levels are so low it's ridiculous.

What I think is you have to build it right, and not break the gross

rules, then you have a very safe device. 6v should be very safe.

but not if you stick a couple of hypos in you and connect the

battery to them, that is a dead short, and you will fry. Using on

skin, you get a resistance that protects you. Using with cloth on

skin and you are not ever going to be in trouble except itchy skin

from overuse..big deal.

So, perhaps the knowledge barrier is between medicine (watch out,

you fool, that could kill you), and electronics (electricity is

cool, but how could it ever kill anything using this lower powered

device?).

bG

>

>

> Ok, now that I have my handy little apprentice godzilla and will

be

> making the regular godzilla soon, I've got a few questions ...

>

> 1) How diligent are most folks here about making sure not to take

> any supplements, herbs, coffee, etc.. before zilling? I take a

> variety of sups. throughout the day, and have a moderate smoking

> habit (working on it..) and an on again, off again coffee habit.

It

> is often impossible for me to zill first thing in the morning, but

I

> worry about doing it at nighttime with all that stuff in my system.

>

> 2) Any handy tips on something I can use to make pads besides

> aluminum foil? I have way high levels of aluminum in my body

already

> and am uncomfortable using aluminum even if the amount absorbed

would

> be minimal. I guess the best thing to do is to walk around the

> hardware store looking for small metal sheets.

>

> 3) I'm constantly confused by what seems like conflicting advice

> about treating dental/sinus issues. Is it ok to use the

apprentice

> godzilla (6 volt) above the neck or not? Is the 9-volt with 15k

> resistor more powerful than the apprentice godzilla, or less?

>

> 4) I've been experimenting with zilling what I think is a fungal

> infection on my big toe. I've read through the archives about

prior

> experiments doing this (and attempts to treat infected toenails),

and

> I understand that the results aren't always spectacular. That's

> ok ... I'm just experimenting/playing around. I thought it might

be

> more effective if I applied some of the baking soda and water

> solution to the top of the toe, but (and here's where I display my

> electronic ignorance) I'm not sure if this would risk shorting the

> battery. I assume that it would...

>

> Whew. Well, as always, any help or clarification is appreciated.

> You guys are doing amazing things here.

[Guest guest]

nobody's ever reported reactions with intake of anything. I suspect

drugs might be an issue.

use stainless steel cotter pins or old utensils wrapped with black

tape and covered with cloth, etc if you don't want aluminum.

Stainless is deluxe, I like it the best. Hunt around and come up

with something to use, let us know were always looking for novel

electrodes. I thought a desert fork would be good, using the handle

for the electrode, wrapping the wires in the tines, covering most of

it with tape, and the exposed part with cloth..or stainless pot

scrubber, etc. You can even use just rolls of cloth with an

alligator clip, it will reduce the current a bit, but could be good.

Above the neck, we don't know what's ok, have heard " don't over do

it " dc can be damaging if overdone on brain synapses. Look: the

doctors are doing it with 4 times more current than we are...you

decide, you report, you research like the rest of us. this hasn't

hurt anyone seriously yet, it's been 3 years, 1150 members. I

scream when things are egregiously in error like using 9v without a

limit resistor, using metal on skin (or worse, subcutaneously

without a limit resistor). You have the basic device if used as

shown should be a workable range of damage to microbes vs anything

else. I like you have done this. What are you researching? we

want to know results. Fungus on toes does respond, but it's hardy

and needs lots of time, and lots of dosing regularly to reduce it.

Antifungal creams were better in my case. Using two rags and

pushing toes into them for a few hours might be a good one to try...

Most medical people find this " scary " they have all these horror

images. Electronics people find it almost silly. The current

levels are so low it's ridiculous.

What I think is you have to build it right, and not break the gross

rules, then you have a very safe device. 6v should be very safe.

but not if you stick a couple of hypos in you and connect the

battery to them, that is a dead short, and you will fry. Using on

skin, you get a resistance that protects you. Using with cloth on

skin and you are not ever going to be in trouble except itchy skin

from overuse..big deal.

So, perhaps the knowledge barrier is between medicine (watch out,

you fool, that could kill you), and electronics (electricity is

cool, but how could it ever kill anything using this lower powered

device?).

bG

>

>

> Ok, now that I have my handy little apprentice godzilla and will

be

> making the regular godzilla soon, I've got a few questions ...

>

> 1) How diligent are most folks here about making sure not to take

> any supplements, herbs, coffee, etc.. before zilling? I take a

> variety of sups. throughout the day, and have a moderate smoking

> habit (working on it..) and an on again, off again coffee habit.

It

> is often impossible for me to zill first thing in the morning, but

I

> worry about doing it at nighttime with all that stuff in my system.

>

> 2) Any handy tips on something I can use to make pads besides

> aluminum foil? I have way high levels of aluminum in my body

already

> and am uncomfortable using aluminum even if the amount absorbed

would

> be minimal. I guess the best thing to do is to walk around the

> hardware store looking for small metal sheets.

>

> 3) I'm constantly confused by what seems like conflicting advice

> about treating dental/sinus issues. Is it ok to use the

apprentice

> godzilla (6 volt) above the neck or not? Is the 9-volt with 15k

> resistor more powerful than the apprentice godzilla, or less?

>

> 4) I've been experimenting with zilling what I think is a fungal

> infection on my big toe. I've read through the archives about

prior

> experiments doing this (and attempts to treat infected toenails),

and

> I understand that the results aren't always spectacular. That's

> ok ... I'm just experimenting/playing around. I thought it might

be

> more effective if I applied some of the baking soda and water

> solution to the top of the toe, but (and here's where I display my

> electronic ignorance) I'm not sure if this would risk shorting the

> battery. I assume that it would...

>

> Whew. Well, as always, any help or clarification is appreciated.

> You guys are doing amazing things here.

[Guest guest]

Hi Bob --

Thanks for the reply. Some comments below.

> nobody's ever reported reactions with intake of anything. I

suspect

> drugs might be an issue.

I'm glad to hear that. I'll stop being a wuss about it, and see how

it goes then

>

> use stainless steel cotter pins or old utensils wrapped with black

> tape and covered with cloth, etc if you don't want aluminum.

I'm using the SS cotter pins for the wrist/ankle style electrodes,

but wasn't sure about material for pads large enough to be placed

over the abdomen. I was thinking that I would need to use something

metallic as large as the pad itself (ie. the aluminum foil discs),

but realize now that I can just use any size electrode (your

suggestion of a fork sounds like a good one) and put it in the middle

of the cloth. Thanks.

> Above the neck, we don't know what's ok, have heard " don't over do

> it " dc can be damaging if overdone on brain synapses. Look: the

Ok. Just wasn't sure if using the apprentice godzilla, specifically,

in this way was a hard and fast 'no no'.

> else. I like you have done this. What are you researching? we

> want to know results. Fungus on toes does respond, but it's hardy

> and needs lots of time, and lots of dosing regularly to reduce

it.

I will definately report results back to the group. Mostly I intend

to use it for general blood cleaning (a la Beck). After using it in

this way for a little while, I will also be trying it with pads over

the abdomen and, later still, pads over the liver area like those

with Hep-C do. I get ticklish creepy-crawly feelings in these areas

from time to time. I have a pretty large variety of health problems,

probable lyme, etc.. and am trying to 'lighten the load'. I was

particularly interested in seeing the reports of unexpected benefit

for the prostate -- sure could use some of that!

Thanks again.

[Guest guest]

Hi Bob --

Thanks for the reply. Some comments below.

> nobody's ever reported reactions with intake of anything. I

suspect

> drugs might be an issue.

I'm glad to hear that. I'll stop being a wuss about it, and see how

it goes then

>

> use stainless steel cotter pins or old utensils wrapped with black

> tape and covered with cloth, etc if you don't want aluminum.

I'm using the SS cotter pins for the wrist/ankle style electrodes,

but wasn't sure about material for pads large enough to be placed

over the abdomen. I was thinking that I would need to use something

metallic as large as the pad itself (ie. the aluminum foil discs),

but realize now that I can just use any size electrode (your

suggestion of a fork sounds like a good one) and put it in the middle

of the cloth. Thanks.

> Above the neck, we don't know what's ok, have heard " don't over do

> it " dc can be damaging if overdone on brain synapses. Look: the

Ok. Just wasn't sure if using the apprentice godzilla, specifically,

in this way was a hard and fast 'no no'.

> else. I like you have done this. What are you researching? we

> want to know results. Fungus on toes does respond, but it's hardy

> and needs lots of time, and lots of dosing regularly to reduce

it.

I will definately report results back to the group. Mostly I intend

to use it for general blood cleaning (a la Beck). After using it in

this way for a little while, I will also be trying it with pads over

the abdomen and, later still, pads over the liver area like those

with Hep-C do. I get ticklish creepy-crawly feelings in these areas

from time to time. I have a pretty large variety of health problems,

probable lyme, etc.. and am trying to 'lighten the load'. I was

particularly interested in seeing the reports of unexpected benefit

for the prostate -- sure could use some of that!

Thanks again.

[Guest guest]

you bet, ho, this will probably provide some things you'd like.

bob

>

>

> Hi Bob --

>

> Thanks for the reply. Some comments below.

>

> > nobody's ever reported reactions with intake of anything. I

> suspect

> > drugs might be an issue.

>

> I'm glad to hear that. I'll stop being a wuss about it, and see

how

> it goes then

>

> >

> > use stainless steel cotter pins or old utensils wrapped with

black

> > tape and covered with cloth, etc if you don't want aluminum.

>

> I'm using the SS cotter pins for the wrist/ankle style electrodes,

> but wasn't sure about material for pads large enough to be placed

> over the abdomen. I was thinking that I would need to use

something

> metallic as large as the pad itself (ie. the aluminum foil discs),

> but realize now that I can just use any size electrode (your

> suggestion of a fork sounds like a good one) and put it in the

middle

> of the cloth. Thanks.

>

> > Above the neck, we don't know what's ok, have heard " don't over

do

> > it " dc can be damaging if overdone on brain synapses. Look: the

>

> Ok. Just wasn't sure if using the apprentice godzilla,

specifically,

> in this way was a hard and fast 'no no'.

>

> > else. I like you have done this. What are you researching? we

> > want to know results. Fungus on toes does respond, but it's

hardy

> > and needs lots of time, and lots of dosing regularly to reduce

> it.

>

> I will definately report results back to the group. Mostly I

intend

> to use it for general blood cleaning (a la Beck). After using it

in

> this way for a little while, I will also be trying it with pads

over

> the abdomen and, later still, pads over the liver area like those

> with Hep-C do. I get ticklish creepy-crawly feelings in these

areas

> from time to time. I have a pretty large variety of health

problems,

> probable lyme, etc.. and am trying to 'lighten the load'. I was

> particularly interested in seeing the reports of unexpected

benefit

> for the prostate -- sure could use some of that!

>

> Thanks again.

[Guest guest]

Most knowledgable people on this board recommend against taking supplements

before zilling. Beck warned against zilling after eating garlic.

From my own experience, and certainly not as a recommendationto others, I

have almost always zilled after taking supplements, prescription meds and

garlic, and never noticed any problems.

It would just be too much trouble for me to try to time the taking of

supplements and zilling, but that's just me. Since we are experimenting on

ourselves, we are responsible for whatever happens to us.

Dick

a few questions

>

>

>

> Ok, now that I have my handy little apprentice godzilla and will be

> making the regular godzilla soon, I've got a few questions ...

>

> 1) How diligent are most folks here about making sure not to take

> any supplements, herbs, coffee, etc.. before zilling? I take a

> variety of sups. throughout the day, and have a moderate smoking

> habit (working on it..) and an on again, off again coffee habit. It

> is often impossible for me to zill first thing in the morning, but I

> worry about doing it at nighttime with all that stuff in my system.

>

> 2) Any handy tips on something I can use to make pads besides

> aluminum foil? I have way high levels of aluminum in my body already

> and am uncomfortable using aluminum even if the amount absorbed would

> be minimal. I guess the best thing to do is to walk around the

> hardware store looking for small metal sheets.

>

> 3) I'm constantly confused by what seems like conflicting advice

> about treating dental/sinus issues. Is it ok to use the apprentice

> godzilla (6 volt) above the neck or not? Is the 9-volt with 15k

> resistor more powerful than the apprentice godzilla, or less?

>

> 4) I've been experimenting with zilling what I think is a fungal

> infection on my big toe. I've read through the archives about prior

> experiments doing this (and attempts to treat infected toenails), and

> I understand that the results aren't always spectacular. That's

> ok ... I'm just experimenting/playing around. I thought it might be

> more effective if I applied some of the baking soda and water

> solution to the top of the toe, but (and here's where I display my

> electronic ignorance) I'm not sure if this would risk shorting the

> battery. I assume that it would...

>

> Whew. Well, as always, any help or clarification is appreciated.

> You guys are doing amazing things here.

>

>

>

>

>

>

>

>

>

>

>

>

> The group's main page has a menu to the left, with photos of Godzilla

> devices and info. This is a discussion, free speech forum, not medical

> advice. All info is free to members. Membership is free, but by joing,

> you agree to hold harmless the posters, including moderator, from damages

> from anything you find here whether jointly, severally, or individually.

> We are interested in your results, but cannot say anything about

> repeatability, or whether this might have medical benefits. Thanks, for

> your understanding, good luck researching. --bG

>

[Guest guest]

Tracey - systemics are all different in how they respond to therapy - but I

will tell you how our daughter responded. She was on prelone for 14 months

before we could get her off. Our doctors monitored her every 3 to 4 weeks

with physical exams for the first year. The first year we chose to use oral

MTX

and the effectiveness was not what our doctors wanted. So he told us it was

either change to MTX injections or start Enbrel. We opted to do the MTX

injections and she has done great. Her sed rate stayed normal for almost 8

months and then winter came and she had some issues and the sed rate went up

again. But on the whole she is doing great - We always monitor her labs. We

watch the SED rate/White blood count/Hemogloblin and the Liver function test

and platelet count. I know that the MTX is a scary drug to use - but it has

given our daughter her life back. Hunter is back to ballet and climbing trees

- two years ago she was so sick she had to crawl to something. What symptoms

led your doctors to dx systemic? Sandi Ken Hunter (7 Systemic)

[Guest guest]

--Tracey.,

SED rates are very strange things... they can be up when nothings

going on, and they can be normal when the child is having obvious

problems.

The problem with the SED is that its a very generic test. Theres a

lot of things that can cause it to go up thats not related to the

JRA including a little cold. I really try not to dwell too much on

labs results, especially the SED. How Nick is acting and feeling are

much better indicators to me.

hugs Helen and (8,systemic)

- In , " ztaimw " <nsigns@...> wrote:

>

> Hi everyone, just wanted a few opinions from your experiences.

Our

> daughter has been on prelone and mtx for 2 months now, and her

> swelling is better, her walking is better, her standing up is

better,

> so most everything physically is better. (Except maybe some jaw

> swelling, only I can't tell if it's that or the puffiness from the

> prelone!) My question is why doesn't her sed rate continue to

come

> down also? Do your drs. tell you your children's lab results? Is

it

> wrong to expect the sed rate to come down this soon? Does it ever

> come down? Does a high sed rate mean there is damage going on?

How

> do you know if the inflammation isn't affecting organs? (Our

daughter

> had an echo done the first visit and was ok.) I'm just a bit

confused

> (and obviously logically minded) about the whole thing. I've

heard

> that there can be swelling without an elevated sed rate, but can

it be

> the opposite? Thanks for your help-oh one more question, what

other

> options are there out there for meds for a 1 year old other than

> mtx?

>

> Thanks again,

> Tracey mom to Madi 14mo systemic

>

[Guest guest]

In a message dated 5/27/06 10:50:01 AM Central Daylight Time, nsigns@...

writes:

> My question is why doesn't her sed rate continue to come

> down also? Do your drs. tell you your children's lab results? Is it

> wrong to expect the sed rate to come down this soon? Does it ever

> come down? Does a high sed rate mean there is damage going on? How

> do you know if the inflammation isn't affecting organs? (Our daughter

> had an echo done the first visit and was ok.) I'm just a bit confused

> (and obviously logically minded) about the whole thing. I've heard

> that there can be swelling without an elevated sed rate, but can it be

> the opposite? Thanks for your help-oh one more question, what other

> options are there out there for meds for a 1 year old other than

> mtx?

>

> Tracey,

> Tough questions but good questions.

> SED rate is tricky and any inflimation in the body can elevate it...

> infection,allergies,bug bites,etc

Each child is also differant and presents differantly.My sons SED rate was

109 after only 20 days from the very first thing.Once starting Prelone

droping to the mid 40's.

I have a folder and keep copies of everything especialy lab results.If you

ask they have to give.

The SED will drop once the MTX starts to work and keep droping as the disease

gets under better control. went from 109 highest and 1 lowest and has

maintained a 3 for over 3 1/2 yrs.

Chronic inflimation can cause damage over many years but with todays medicine

it is much more unlikely.

The whole high SED ,a little pain and low SED, a whole lot of pain is

correct.Have them do a CRP if they are not already.It stands for C-Reactive

Protein

and is more stable and accurate.

Don't realy know the last question.A friend of mine, 3 miles away,who's

daughter got sick(systemic) at 15 months and diagnosed at 18 months was started

on

Ibuprofen,Prelone and MTX.Then about 5-6 months later Cyclosporine.Then Enbrel

not too long after turning two.She is now 7 so they know more now.

You have most definately come to the right place for information.

Hugs

Becki and 7 systemic

[Guest guest]

I would suspect the broccoli for the gas not the mashed potatoes. When your

stomach doesn't feel good go lay down on your right side and that helps the

food leave the stomach because our new stomachs empty to the right. God Bless

you.

Hugs,

Dr. Rutledge

5/17/06

246/200.5/140

high/today/goal

34 minutes/6 ft. by-pass

[Guest guest]

I would say the culprit there was probably the broccoli Sue! I love it but

it tortures me so, bad gas pains and diarreaha within an hour of eating it.

in Fla

[Guest guest]

Hi Sue

Yup, I am bothered by mashed potatoes too - and I don't have a gallbladder

either!

I get the same kind of pain, and feel as though I'm going to vomit. Never

do, and the pain (agony!) does go away in time, as it did with you.

I now don't take a chance on eating mashed potatoes at all.

I have been finding lately that protein has been giving me some nausea, even

plain baked chicken.

Antone else got these " mysteries of the MGB life " ? lol

Slowish loser here too, but really I don't mind, I figure when you're an

'old girl' like me, slower is probably better, because of skin-looseness

issues. My batwings & tube-sock boobs are there to tesify to it!

Bur still & all, I'm NOT complaining!!!!! Not EVER! I do feel much better,

and I know darned well that I am so much healthier.

I am super-grateful.

Love to everyone.

Sandie

Dr Doroghazi

Jan. 17, 2006

283.5 / 209 / hoping for the best (lol)

>From: " " <sueshearts@...>

>Reply-

>

>Subject: A Few Questions

>Date: Sun, 13 Aug 2006 13:17:39 -0000

>

>Hey everyone,

>

>Has anyone had difficulties with eating mashed potatoes? Last night

>I had some masheed potatoes and a piece of chicken, and broccoli.

>After eating I had right upper quadrant pain in my upper abdomen,

>and subsequent diarrhea and terrible gas, and gas pains. I'm happy

>to report that all of this subsided in a few short hours, but it did

>worry me. In case you're wondering, my gallbladder is not the

>culprit as it has been surgically absent from the bod since 1990.

>I'm careful to avoid things like rice which expand in the pouch or

>the small intestine. Oddly enough, I'm able to tolerate bread as

>long as I eat slowly. The pain was almost enough for me to call Dr.

>R, but due to the lateness of the hour I didnt want to bother him,

>especially since I figured it would probably subside.

>

>Well, aside from losing slowly, I'm doing ok. At the appointment

>with my primary care physician, by his scale it showed I was down by

>8 lbs. Ahh yes, and by his scale it weighs me at 181 lbs (clothed

>of course). My scale had said 177-178, sans clothing.

>This morning after waking my weight was 175, prior to eating or

>drinking, which went up of course after eating and drinking. (ee

>gads someone needs to take my scales away from me LOL). Oh, the doc

>says that my bad cholesterol is well under 200, but by NIH standards

>it should be 70, and that we need to elevate my good cholesterol. I

>dont remember the numbers from my labs though. Blood sugar is good

>too, so hopefully the impaired glucose tolerance is under control.

>

>I've been a little down lately and seeminly very tired. I've been

>considering maybe I need to be back on the patch...but doggone it

>I'm allergic to the adhesive. Then I think...well maybe just

>working the night shift is the culprit.

>

>Okay...so thanks for listening to my ramblings.

>

>Hugs to all,

>Sue

>

>

>

>

>

>

[Guest guest]

In my experience your problem is the broccoli, not the potatoes. I love

broccoli, but it is a real gas producer.

I had a funny incident the other day. We're at the beach and I'm sharing a

bedroom with my 9-year old son. We went to bed at the same time and I had some

gas (rather noisy!) My son, with his head under the pillow, asked what I'd had

for dinner. I told him that I thought it wasn't what I'd had for dinner, but

maybe the granola bar I'd had at lunch. With a goofy grin on his face he asked

me if maybe I might be granola-intolerant. Too funny.

:-) Kathy in VA

-------------- Original message --------------

From: " " <sueshearts@...>

Hey everyone,

Has anyone had difficulties with eating mashed potatoes? Last night

I had some masheed potatoes and a piece of chicken, and broccoli.

After eating I had right upper quadrant pain in my upper abdomen,

and subsequent diarrhea and terrible gas, and gas pains. I'm happy

to report that all of this subsided in a few short hours, but it did

worry me. In case you're wondering, my gallbladder is not the

culprit as it has been surgically absent from the bod since 1990.

I'm careful to avoid things like rice which expand in the pouch or

the small intestine. Oddly enough, I'm able to tolerate bread as

long as I eat slowly. The pain was almost enough for me to call Dr.

R, but due to the lateness of the hour I didnt want to bother him,

especially since I figured it would probably subside.

Well, aside from losing slowly, I'm doing ok. At the appointment

with my primary care physician, by his scale it showed I was down by

8 lbs. Ahh yes, and by his scale it weighs me at 181 lbs (clothed

of course). My scale had said 177-178, sans clothing.

This morning after waking my weight was 175, prior to eating or

drinking, which went up of course after eating and drinking. (ee

gads someone needs to take my scales away from me LOL). Oh, the doc

says that my bad cholesterol is well under 200, but by NIH standards

it should be 70, and that we need to elevate my good cholesterol. I

dont remember the numbers from my labs though. Blood sugar is good

too, so hopefully the impaired glucose tolerance is under control.

I've been a little down lately and seeminly very tired. I've been

considering maybe I need to be back on the patch...but doggone it

I'm allergic to the adhesive. Then I think...well maybe just

working the night shift is the culprit.

Okay...so thanks for listening to my ramblings.

Hugs to all,

Sue

[Guest guest]

So funny! Kids are so cute

>

> In my experience your problem is the broccoli, not the potatoes. I

love broccoli, but it is a real gas producer.

>

> I had a funny incident the other day. We're at the beach and I'm

sharing a bedroom with my 9-year old son. We went to bed at the same

time and I had some gas (rather noisy!) My son, with his head under

the pillow, asked what I'd had for dinner. I told him that I thought

it wasn't what I'd had for dinner, but maybe the granola bar I'd had

at lunch. With a goofy grin on his face he asked me if maybe I might

be granola-intolerant. Too funny.

>

> :-) Kathy in VA

>

> -------------- Original message --------------

> From: " " <sueshearts@...>

> Hey everyone,

>

> Has anyone had difficulties with eating mashed potatoes? Last

night

> I had some masheed potatoes and a piece of chicken, and broccoli.

> After eating I had right upper quadrant pain in my upper abdomen,

> and subsequent diarrhea and terrible gas, and gas pains. I'm happy

> to report that all of this subsided in a few short hours, but it

did

> worry me. In case you're wondering, my gallbladder is not the

> culprit as it has been surgically absent from the bod since 1990.

> I'm careful to avoid things like rice which expand in the pouch or

> the small intestine. Oddly enough, I'm able to tolerate bread as

> long as I eat slowly. The pain was almost enough for me to call

Dr.

> R, but due to the lateness of the hour I didnt want to bother him,

> especially since I figured it would probably subside.

>

> Well, aside from losing slowly, I'm doing ok. At the appointment

> with my primary care physician, by his scale it showed I was down

by

> 8 lbs. Ahh yes, and by his scale it weighs me at 181 lbs (clothed

> of course). My scale had said 177-178, sans clothing.

> This morning after waking my weight was 175, prior to eating or

> drinking, which went up of course after eating and drinking. (ee

> gads someone needs to take my scales away from me LOL). Oh, the

doc

> says that my bad cholesterol is well under 200, but by NIH

standards

> it should be 70, and that we need to elevate my good cholesterol.

I

> dont remember the numbers from my labs though. Blood sugar is good

> too, so hopefully the impaired glucose tolerance is under control.

>

> I've been a little down lately and seeminly very tired. I've been

> considering maybe I need to be back on the patch...but doggone it

> I'm allergic to the adhesive. Then I think...well maybe just

> working the night shift is the culprit.

>

> Okay...so thanks for listening to my ramblings.

>

> Hugs to all,

> Sue

>

>

>

>

>

[Guest guest]

Arianne, I can't address the bend over since I only had one but unless

you have them both done at once (very brave in my book)one will have

healed enough to allow you to bend. The no cross-over rule is usually

lifted by your surgeon once you are healed. Some surgeons never give

permission for that or to break that 90 degree rule but if you ask

around here you will find that many people cross their legs and tie

their shoes just fine after a while.

Deb

>

> I guess these questions would pertain to those of you who have had

both hips replaced.

> How do you bend over? Do you keep both legs straight, or bend your

knees? Do you put

> one foot behind the other, or keep both feet apart, but side by side?

> As for sleeping, I have read here that you should not cross one leg

over the other. Is this

> just until restrictions are lifted, or forever?

> How do you cut your toe nails?

> Arianne

>

[Guest guest]

> How do you cut your toe nails?

** You start tiny stretches toward them. My first excitement was putting a

sock on without a reacher, and second was trimming my toenails, which

happened for the first time a couple of days ago at almost 6 weeks out.

Sounds silly, but it was very exciting for me!

I lean over as usual. I've not noticed a difference, once I'd come along

enough to be able to do that......2-3 weeks, I think. I've always been able

to touch my toes, and didn't want to lose that. With an anterior approach,

bending forward isn't such a big deal.

Just keep moving - it's so important.

Barb Young, THR 2-13-07,

very active 63 years