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My eight year old just finished her second surgery, she had to have the hearing bones removed in November, now they put them back in and she is doing fine. One week past surgery and she is fine, one day of pain, then nothing. She would be glad to share and email your daughter. Her email address is sierravaught@.... paulaann92 <paulaann92@...> wrote:

Hello,This web site has been a great information source and emotional support as I can see we're not in this alone. My daughter is 7 years old and has a c-toma behind one of her ear drums. We are lucky because the c-toma is located low and not near the hearing bones. She is to have surgery in October to remove the c-toma and "prop up" her collasped ear drum. Although we have explained everything involved to her, she is (of course) upset at the thought of another procedure. Is there anyone out there with a son or daughter with a similar condition who could become my daughter's "pen pal"? I think it would help her a lot to talk to someone her own age about what's going on and what's coming up.Thank you everybody.

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  • 3 months later...

Chad,

I'm no expert about money matters, but I would talk to the Doctor and

the hospital about the cost of the surgery. I've found that many

without insurance can get their medical bills reduced just by

asking. Also, some hospitals will put you on a monthly payment plan

with no interest.

Alli

>

> Well, I am having a 3rd surgery to remove the Cholesteatoma from my

> ear. The first two were on my right ear. This time it is on my left

> ear. I will still have a 4th surgery to remove an inclusive cyst on

my

> right ear. So, on the 14th, I will have a Tempano Mastoidectomy and

> prothesis done to reconstruct my left ear.

>

> Just curious, I just recently gotten insurance, but the insurance

> company will not cover it because it is a pre-existing condition.

The

> surgery from what research I have done will cost me between 10

thousand

> and 12 thousand-granted that everything goes well. I was wondering

if

> you have any suggestions on how I can help pay for this surgery. I

take

> it that the best option will be to budget for it, consolidate with

a

> debt management group and pay it that way, or, I can be more

unorthodox

> and start an online site asking for donations to pay for the

surgery?

> Anyway, look forward to your reply.

>

> Chad

>

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  • 2 weeks later...

Chad,

Don't know what state you live in but most states will help with

medical bills for those who are low income or without health

insurance. Also, University teaching hospitals often waive fees.

Good luck!

>

> Well, I am having a 3rd surgery to remove the Cholesteatoma from

my

> ear. The first two were on my right ear. This time it is on my

left

> ear. I will still have a 4th surgery to remove an inclusive cyst

on my

> right ear. So, on the 14th, I will have a Tempano Mastoidectomy

and

> prothesis done to reconstruct my left ear.

>

> Just curious, I just recently gotten insurance, but the insurance

> company will not cover it because it is a pre-existing condition.

The

> surgery from what research I have done will cost me between 10

thousand

> and 12 thousand-granted that everything goes well. I was wondering

if

> you have any suggestions on how I can help pay for this surgery. I

take

> it that the best option will be to budget for it, consolidate with

a

> debt management group and pay it that way, or, I can be more

unorthodox

> and start an online site asking for donations to pay for the

surgery?

> Anyway, look forward to your reply.

>

> Chad

>

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Thanks for the information, I will have to check that out.

Chad

> >

> > Well, I am having a 3rd surgery to remove the Cholesteatoma from

> my

> > ear. The first two were on my right ear. This time it is on my

> left

> > ear. I will still have a 4th surgery to remove an inclusive cyst

> on my

> > right ear. So, on the 14th, I will have a Tempano Mastoidectomy

> and

> > prothesis done to reconstruct my left ear.

> >

> > Just curious, I just recently gotten insurance, but the insurance

> > company will not cover it because it is a pre-existing condition.

> The

> > surgery from what research I have done will cost me between 10

> thousand

> > and 12 thousand-granted that everything goes well. I was

wondering

> if

> > you have any suggestions on how I can help pay for this surgery.

I

> take

> > it that the best option will be to budget for it, consolidate

with

> a

> > debt management group and pay it that way, or, I can be more

> unorthodox

> > and start an online site asking for donations to pay for the

> surgery?

> > Anyway, look forward to your reply.

> >

> > Chad

> >

>

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  • 1 year later...

Hi

I have taken Tramadol slow release and also had upset stomach,

definitely best to take it along with food for that reason. I was

previously taking the version (I think it is called Ultram in the

States) which is lower dose of tramadol plus aminocetaphen (paracetamol

here in Europe) which I found actually more effective because it seems

to work faster and you can take it more often - I was told only to take

two Tramadol slow release per day and it wasn't enough. Whereas you

can take up to 8 Ultram per day I think, though don't quote me!

Hope your husband gets some relief soon.

Regards

Sharon, France

>

> My husband is having a hip replacement on the 27th. He has been in a

> lot pain for the last couple of months. Has anyone taken Tramadol

> HCI. It is a extended release pain tablet. It has made him sick to

> his stomach, and wondered if anyone else had this problem. He was

> taking it before bed and I suggested he try it right after supper on

a

> full stomach.

>

> His surgeon has said there is a possibility that he could be back to

> work in a week. He has an office job. Is this possible.

>

>

>

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Thanks. He did take it right after he had a meal. He was up at 3am

in pain and throwing up. I was hoping this work work because he

needs to keep ahead of the pain. He does have Propoxphene N-APAP

with is generic for Darvocet-N. It does help with the pain but his

only problem is not keeping up with it. He doesn't have any pain, so

he doesn't take another pill, then before he knows it the pain is

back full force and then it takes forever before he can get it under

control. 12 more days till surgery, and he can't wait.

> >

> > My husband is having a hip replacement on the 27th. He has been

in a

> > lot pain for the last couple of months. Has anyone taken

Tramadol

> > HCI. It is a extended release pain tablet. It has made him sick

to

> > his stomach, and wondered if anyone else had this problem. He

was

> > taking it before bed and I suggested he try it right after supper

on

> a

> > full stomach.

> >

> > His surgeon has said there is a possibility that he could be back

to

> > work in a week. He has an office job. Is this possible.

> >

> >

> >

>

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Hi ,

I agree with Sharon on the pain pills, the Tramadol did nothing

for me as the Ultram works faster and you can take more per day and I

believe that it is non-narcotic also. I had my left THR on Sept 7th

and am now going on my second week at home, I also work in a office

and could go back to work next week but I believe I am going to stay

home another week, I have my laptop so I can do some of my work from

home, I would suggest that your husband plan on two weeks at home

and not push it, if he can work from home....if he can't and needs to

go back to work, we will have to make sure that he has a chair that

is HIGH enough for comfort and be able to get up and walk every hour

or more...

Gene from Oklahoma

> >

> > My husband is having a hip replacement on the 27th. He has been

in a

> > lot pain for the last couple of months. Has anyone taken

Tramadol

> > HCI. It is a extended release pain tablet. It has made him sick

to

> > his stomach, and wondered if anyone else had this problem. He

was

> > taking it before bed and I suggested he try it right after supper

on

> a

> > full stomach.

> >

> > His surgeon has said there is a possibility that he could be back

to

> > work in a week. He has an office job. Is this possible.

> >

> >

> >

>

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,

I was taking percocet before my surgery, I understand, some days I

could walk without much pain at all, and then the next time I get up

it would be everything I had to walk...so I took percocet but you

have to be careful with that, it is addictive but it works for me, I

don't know if my size is the difference or not, but I like the strong

stuff.

Gene from Oklahoma

> > >

> > > My husband is having a hip replacement on the 27th. He has

been

> in a

> > > lot pain for the last couple of months. Has anyone taken

> Tramadol

> > > HCI. It is a extended release pain tablet. It has made him

sick

> to

> > > his stomach, and wondered if anyone else had this problem. He

> was

> > > taking it before bed and I suggested he try it right after

supper

> on

> > a

> > > full stomach.

> > >

> > > His surgeon has said there is a possibility that he could be

back

> to

> > > work in a week. He has an office job. Is this possible.

> > >

> > >

> > >

> >

>

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  • 3 years later...

This is a very scary experience. I had panic attacks while I waited for my

surgery date to approach. When I went into the hospital they gave me something

to calm my nerves and apparently - was cracking jokes in the surgery room before

falling asleep. I was so nervous and had done tons of research myself online but

going through it for me was nothing like I had read about. I pain the first 2

days. My pain meds kept the pain under control as long as I took them regularly.

I only had to take half the dose prescribed as well. I cannot even begin to tell

you how much better I feel since surgery. I broke my surgery up into 2

surgeries. The first one took 2.5hrs and the 2nd took a little under 2hrs. My

ctoma was quite extensive. It was wrapped around the facial nerve. Had destroyed

the 3 bones in my ear completely, made a huge hole through my canal wall and was

working toward my brain and toward the bones in my face. I cannot even begin to

tell you how scared I was. But now that the surgery is done (both actually) I

have more energy, I am not dizzy all the time, and I feel better this thing is

finally out of me not destroying more. You will feel so relieved once the

surgery is over. The first surgery I had a difficult time with the anesthesia

wearing off. I had read many times in posts on here todrink lots of water after

surgery. I did that after my 2nd surgery and boy did it make a difference!! I

went home at 8pm that night!! Surgery was at 3pm. For me sleeping in a chaise

worked best. My head was propped and I was able to relax the rest of my body.

You will be fine. After my first surgery I was wanting to go to the next

surgery. I looked forward to it in a way. Strange huh? Just let them know you

are having some anxiety and they will keep you comfortable. That is part of

their profession :-) good luck with your surgery. Jenni

Re: upcoming surgery

Hi all

thankyou all for your messages of support I really appreciate them from all of

you, its a great comfort to know I am not the only one and there are others

going through this that can give support. Since my doctor writing to the surgeon

to push my operation forward I received a phonecall from the hospital yesterday

saying my surgery is booked for the 22nd november. Although I would like to get

my surgery done and out of the way so I can hopefully recover from this horrible

" thing " I am really nervous about the surgery. I couldnt sleep at all last

night and have another 2 weeks to go yet!! I live in south wales uk so my

surgery will be in the university hospital of wales in cardiff. I have had other

surgeries before including my tonsils being removed and exploratory ear

surgeries but I am totaly dreading this operation. I was told it could take 4-6

hours depending on how extent the cholesteatoma is and told of all the risks

that are terrifying me. If anyone has any " nice " or not horror experiences

please could i hear from you.

many thanks once again

Leeah Davies

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  • 5 months later...
Guest guest

I fell and badly injured my wrist yesterday. I found out that I have to have

surgery to repair the break. I'm dreading the drugs they'll give me - incuding

antibiotics. Do you have any recommendations of things I might do to get

through this so that my journey toward health isn't derailed completely? Thank

you.

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Guest guest

>

> I fell and badly injured my wrist yesterday. I found out that I have to have

surgery to repair the break. I'm dreading the drugs they'll give me - incuding

antibiotics. Do you have any recommendations of things I might do to get

through this so that my journey toward health isn't derailed completely? Thank

you.

+++Hi ,

I injured my wrist a few years ago too, so I understand how it feels.

First, do not take the antibiotics since they are poisonous to your body and

will only make it work harder to detoxify them along with trying to heal itself,

which you do not need to go through.

In order to satisfy the doctor just calmly take the prescription for antibiotics

and do not get it filled by the drug store.

To help your body heal until the day of surgery, take extra vitamin C. Your

usual daily dose is 4,000 mg vitamin C spread into 3 meals per day, so start

taking 6,000 mg extra per day, spread between 3 meals (2,000 mg each meal), in

addition to 4,000 mg = 10,000 mg total.

As soon after surgery as possible, take 4,000 mg vitamin C one time all at once

with food, and then take 1,000 mg every hour while you are awake, for 7 days. If

you get loose stools at any time lower your hourly dose by 250 mg. After 7 days,

go back to taking your usual 4,000 mg daily.

If you need help with the pain now, before surgery, mix oil of oregano 50/50

with extra virgin olive oil in a dropper bottle. If you can rub it in okay

without it hurting that is good.

If you cannot rub it in, soak a piece of gauze or cotton square large enough to

cover the area, with the mixture, and tape it on. Apply warm, not hot heat, for

1/2 hour, preferably wet heat to help make it sink into your skin.

Heat soothes pain and it also increases inflammation. Doctors will tell you not

to use heat for awhile after an injury or surgery, however, your own body

increases inflammation in order to heal itself, so warm heat will not do any

harm, but it should not be hot either.

If your surgery is delayed, keep replenishing the gauze as needed and apply warm

heat 1/2 hour.

Also sniff frequently on the original oil of oregano bottle to help get the

fumes up into your head which can help with the pain centers there.

Not only will oil of oregano help heal the area, but it is also as powerful of a

pain killer as morphine, but do not take it internally.

For pain you can also try taking white willow bark capsules, available at the

health store, with food; take it according to the label on the bottle.

If white willow bark isn't strong enough now or after having surgery, you can

take Tylenol since your body will detoxify it, but it is best to avoid it since

it can interfere with healing, but also you shouldn't have to suffer too much

with the pain.

You might have to take prescribed pain killing medicine for awhile, but try to

get off it as soon as possible because they interfere with healing.

After surgery apply the 50/50 mixture of oil of oregano too, and apply warm, not

hot, heat to help it sink in for 1/2 hours, and so on, and sniff on the oil of

oregano bottle.

I hope that helps, Bee

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Guest guest

Thank you for the very helpful advice. I'm afraid, though, that the surgeon or

whoever will give me IV antibiotics pre- and post- surgery. Any suggestions

about how to handle this?

Thanks so much.

> >

> > I fell and badly injured my wrist yesterday. I found out that I have to

have surgery to repair the break. I'm dreading the drugs they'll give me -

incuding antibiotics. Do you have any recommendations of things I might do to

get through this so that my journey toward health isn't derailed completely?

Thank you.

>

> +++Hi ,

>

> I injured my wrist a few years ago too, so I understand how it feels.

>

> First, do not take the antibiotics since they are poisonous to your body and

will only make it work harder to detoxify them along with trying to heal itself,

which you do not need to go through.

>

> In order to satisfy the doctor just calmly take the prescription for

antibiotics and do not get it filled by the drug store.

>

@@ Snip

- unnecessary text edited out

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Guest guest

Hi ,

Tell them not to give them to you! It's your body and your choice. Tell them

you're allergic .. anything .. to not have to have antibiotics pumped into your

system. It's poison.

Group Moderator

>

> Thank you for the very helpful advice. I'm afraid, though, that the surgeon

or whoever will give me IV antibiotics pre- and post- surgery. Any suggestions

about how to handle this?

> Thanks so much.

>

>

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Guest guest

>

> Thank you for the very helpful advice. I'm afraid, though, that the surgeon

or whoever will give me IV antibiotics pre- and post- surgery. Any suggestions

about how to handle this?

+++Hi ,

You do have a choice, so if you decide not to stand your ground on this, your

health will suffer needlessly. Talk to your doctor beforehand and sign any kind

of waiver or agreement you have to, so they won't put antibiotics or other drugs

in the IV.

Bee

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