Need Help

August 20, 1999

is this fatale? I have the number

August 20, 1999

lol I did it AGAIN! lolllllllllllllllllll

August 21, 1999

I did and am currently looking for it to assist you. What I do recall is

it's thru Zohar Entertainment which is located in the White Plains area

(area code 914), the woman's name was /Laurie. Sorry I couldn't be

more helpful, but I'll keep looking.

----------

>From: Sir64@...

>dwarfismonelist

>Subject: need help

>Date: Fri, Aug 20, 1999, 10:56 PM

>

> From: Sir64@...

>

> does anyone have info on the snow white and 7 dwarfs new york city halloween

> job....please reply....thank you....

>

> ---------------------------

January 19, 2000

Thanks for everyones posts. I don't think that they helped much. Here is her

response:

>The main problem that I have with most of these reports is that is just

>what they are, reports. Anyone can do research and make it sound in their

>favor. What I really want are cold hard facts and not just from different

>areas. I want to know how many humans have been infected, how many were

>vacinated etc from all over not juxt specific areas. I live by a major

>port. I also work at a Market that is visited by people from all over the

>world. Even if the risk is low here, does not mean that someone will not

>come to my booth and visit give me, Tom or the baby something. To me, just

>because a disease is rare does not mean that it will not come back. Yes I

do agree that vaccines that contain Mercury, Aluminum and formaldihyde can

be dangerous, but there are alternatives. I can buy them from out of state

where this is not used. Also these very substances are found in so many

things that we use daily, including water. Bottled water sometimes as well.

Not that it makes it OK, but.....

As far as breastfeeding antibodies. Yes the child is getting my antibodies,

but I can still get any of these diseases, which means that so can he. As

for changing diapers, I have not read that stat anywhere as of yet.

Yes getting the disease naturally will give you a lifelong immunity, but

especially for infants and children some do not live through it.

As for the statistics in the articles that you gave me. I have read

different statistics in different articles. I need to find a unbias

refference.

Here are some opposing stats that I have found.

Out of the 2.4 million doses of polio vaccine given in the US every year

there are fewer than 10 cases in a year. In some country's where there is

not vaccine, it is still running rampid.

Lapsing in measles vaccine. Between 1989-1991 there was a measles epidemic

amoung preschoolers which caused a number of deaths and children with

permanent brain damage most were not vaccinated. Similar outbreaks of

pertussis struck Japan and the United Kingdom in the 1970s after

immunizations declined.

No vaccines don't work 100% of the time but on a non bias report on a kids

health site they claim 85%-95% effectiveness. So who do I believe? Also in

most cases where the child still got the disease, it severity was extremely

lessened and not as life threatening.

Here is a whooping cough stat that I found. A child who has not been

immunized against whooping cough has a 1 in 3,000 chance of getting

whooping cough; in contrast, a child who has received the vaccine has a 1 in

2 million chance of having neurological side effects from the vaccine.

As far as the baby not being in day care, he will actually in a worse

enviroment as I stated above. The Market is a world market and he will have

a higher chance of getting pretty much anything.

I need to stop here. I want to say that I really appreciate your advice,

but I am still very much leaning toward vaccination of most things. I will,

however contact that women that you told me about and see what she has to

say. Maybe she can change my mind, but so far the risks of not getting most

vaccines are worse. While I understand that your hubby did the right thing

and kept his wound cleaned correctly, I would say that he was very lucky. I

have seen the results of no tetnus shot even when everything was done

correctly. Just because you are cut by something rusty does not mean

that you will get tetnus. To me, not taking the precaution is like saying

well, I smoked throughout all my pregnancy's and nothing went wrong so I

believe that it is OK to smoke while I am pregnant. I was told this, truly.

I also have a scientist friend who is very supportive of vaccinations. He

is like me, very consious, but I tend to agree with him that most are

nessecary. I am sorry if I have upset you with what I am saying. I jsut

felt that I needed to tell you my feelings on the subject. I guess you

would say that I am on the other side of the coin. I dont' mean to offend

you, I respect your choices. I will say, however, that if you find info

that is truly non bias and just tells the facts without taking a side, I

would be very interested in hearing it. Thanks again,

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

April 17, 2000

CDC FAST STATS:

http://www.cdc.gov/nchs/fastats/fastats.htm#P

DATA WAREHOUSE:

http://www.cdc.gov/nchs/datawh.htm

HTH,

>From: " Mom2Q " <Mom2Q@...>

>Reply-Vaccinationsegroups

> " Vaccine Info " <vaccineinfoonelist>, " Vaccination Mailing List "

><vaccinationsonelist>

>Subject: Need help

>Date: Sun, 16 Apr 2000 12:31:00 -0600

>

>I'm writing an article and need numbers of deaths from the measles, mumps

>and rubella for the last few years. Does anyone have the link at the CDC

>for these numbers? I have the CDC site that lists reported cases but it

>does not say if anyone died from these diseases.

>

>Thanks,

>

>List Owner

>Mom2Q@...

>

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

December 15, 2000

Jess is freeing herself from a cold--by giving it to me!--so I don't have

any real words of wisdom at this moment. I do recall a poem that was in one

of the Tidewater DSS newsletters a couple of years ago that I especially

liked--something about a boy who had been " born into the mainstream " and how

it was such a natural thing--might ask Cheryl?

Judi

Need help

HI

This has been a great month (so far lol I don't want to jinx it lol) Sara

had

a sleep over with a friend from school to celebrate her Birthday the first

weekend. She and (her buddy who also has ds) had the whole night

planned.......movies, popcorn, late night lol On that Friday I received a

call from her Resource teacher asking if she could take the two out for

dinner, to celebrate Sara's Bday and her great week of behavior Sara

called it date night Heehee The rest of the month followed with good

behavior

at school, only one small incident lol

Today was the Christmas class program, Sara's 2nd grade teacher worked with

all of this kids and then the kids performed a play for the parents. Sara

had

a line " P......is for people who we love to see!! " She didn't make a mistake

All of the kids helped Sara get in the positions she was supposed to be

in, it was wonderful to see Inclusion at work. I was a bit fearful to be in

this group of parents, I heard early in the year they wanted Sara out of

there but today they were soooooo proud of Sara For you newbies Sara

was the first child in this school who had a more profound disability, all

others were LD labels. Now this school has 13 kids with labels such as

Sara's.

Inclusion and acceptance is moving very slowly. Sara's been blessed to have

Reg Ed teachers who have wanted her BUT there are other children in the

school who are facing resistance teachers complaining, not behaving in an

accepting manner

Sara Resource teacher is meeting next week with the school staff...all of

the

teachers. She is desperately trying to educate her peers on Inclusion. She

asked me if I had any wise words or info she could take to this faculty

meeting, something on a simple level to reach these teachers. I told her I

would go to the best support I have (you all and make a plea for the

right

words. Quoting the Law means very little to them, they need something more

targeted to the heart. If any of you have any wise words, words that might

reach some that don't understand please send them my way. I'm passing my

book

" More Than Shared Classrooms " to Sara's teacher lol it's been awhile since I

read it lol Ill have to refresh myself on it too lol Mike Remus is the

author

and I've met this very passionate man here at a workshop. I wish he could

make a visit to our school, I know he could reach them.

I'm going to spend this weekend looking for the right gift for this

wonderful

teacher, she walked into her job mid stream but has finally reached many of

our kids, now I will help her reach her peers

Thank you for any help, I don't want this school to end up like other

schools

Ive read about. They welcomed Sara, included her and I don't want them to

lose the vision they started with

Kathy mom to Sara 9

December 16, 2000

Kathy,

was the first in our school to start inclusion, too. The emotional

toll on us can be pretty rough. I always felt it was better to talk about

the humane side of inclusion. Kids belong with kids. And how people have

the right to know and accept differences, etc. has had a wonderful

experience in life. She has true friends and gets invited to play, for

parties, and sleepovers. Every teacher she has ever had has expressed

gratitude for having her in their class (even when they were very hesitant at

first). I also let the teachers know that is okay to be scared and make

mistakes. I am scared about letting my daughter go and have to trust them.

I tell them that they are a good teacher and as such are capable of helping

all children learn and grow. If they have questions or need help, ask. I

also let them know that I will be an advocate for them, too. It is so

important for a teacher to feel supported and that if I can help them with

something to let me know. (Sometimes it is easier to get things done coming

from a parent vs a teacher.) I have lots of papers about inclusion but feel

talking usually gets the point across. I do sometimes follow up the

discussion with some papers to them. Hope this helps. One thing to remember

is that we won't convince everyone that this is the right thing to do for

your child.

is now in 7th grade and has always been fully included. We recently

moved to CA and I am now having to work with a new staff and principal. I am

going thru some of the same things I did for kindergarten!!!! I hate going

through it again but I know it is what is best for my daughter and ultimately

it will be good for other children as well.

Kathy

December 16, 2000

In a message dated 12/16/00 11:08:19 AM Central Standard Time,

CKEverett@... writes:

<< I am scared about letting my daughter go and have to trust them.

I tell them that they are a good teacher and as such are capable of helping

all children learn and grow. If they have questions or need help, ask. >>

It can be scary at first. was in a group from the CP

organization for awhile, a social group. They attended various activities

and things. There were people in that group who were so physically disabled

that you wondered how they even survived. The thing is it is hard to know

how to relate to someone like that till you get to know them a bit. I guess

some people feel that way with our kids. There was one man in the group,

they had adapted a wheelchair for him so that he laid in it and his body was

so twisted, his feet went one way and his arms the other and he was

completely helpless. Yet, when he talked he sounded normal, had at least an

almost normal mind. When things start to get me down I think of him, what it

would be like to live like that with a normal mind. Boy, have I got it good!

Jessie

December 16, 2000

<< The emotional

toll on us can be pretty rough. >>

Oh, this is so true!! And it seems every year we have to start all over

again, no matter how successful it has been in the past. In 2nd grade

Maverick had a teacher who requested him, other than that it has been an

uphill battle every step of the way! This year we are even having to fight

with a principal, (sp ed degree, ex- sp ed director) who feels that he

doesn't belong in the reg ed classroom.

I KNOW that it is best for Maverick and others to follow, just am frustrated

that the others aren't following! It's hard to convince the school that

Maverick isn't getting " special " treatment when all the other kids with sp

needs are " doing fine " in the self-contained classrooms and their parents are

perfectly happy with it!!

December 17, 2000

There is a poem in Perske's " Circle of Friends " and I believe the title is

Why Not Me?? It is about inclusion. I think that they need to know that

inclusion helps the peers become more caring, compassionate human beings.

What more could an educator do?

Elaine

Need help

>

> HI

>

> This has been a great month (so far lol I don't want to jinx it lol) Sara

> had

> a sleep over with a friend from school to celebrate her Birthday the first

> weekend. She and (her buddy who also has ds) had the whole night

> planned.......movies, popcorn, late night lol On that Friday I received a

> call from her Resource teacher asking if she could take the two out for

> dinner, to celebrate Sara's Bday and her great week of behavior Sara

> called it date night Heehee The rest of the month followed with good

> behavior

> at school, only one small incident lol

>

> Today was the Christmas class program, Sara's 2nd grade teacher worked

with

> all of this kids and then the kids performed a play for the parents. Sara

> had

> a line " P......is for people who we love to see!! " She didn't make a

mistake

> All of the kids helped Sara get in the positions she was supposed to be

> in, it was wonderful to see Inclusion at work. I was a bit fearful to be

in

> this group of parents, I heard early in the year they wanted Sara out of

> there but today they were soooooo proud of Sara For you newbies Sara

> was the first child in this school who had a more profound disability, all

> others were LD labels. Now this school has 13 kids with labels such as

> Sara's.

>

> Inclusion and acceptance is moving very slowly. Sara's been blessed to

have

> Reg Ed teachers who have wanted her BUT there are other children in the

> school who are facing resistance teachers complaining, not behaving in

an

> accepting manner

>

> Sara Resource teacher is meeting next week with the school staff...all of

> the

> teachers. She is desperately trying to educate her peers on Inclusion. She

> asked me if I had any wise words or info she could take to this faculty

> meeting, something on a simple level to reach these teachers. I told her I

> would go to the best support I have (you all and make a plea for the

> right

> words. Quoting the Law means very little to them, they need something more

> targeted to the heart. If any of you have any wise words, words that might

> reach some that don't understand please send them my way. I'm passing my

> book

> " More Than Shared Classrooms " to Sara's teacher lol it's been awhile since

I

> read it lol Ill have to refresh myself on it too lol Mike Remus is the

> author

> and I've met this very passionate man here at a workshop. I wish he could

> make a visit to our school, I know he could reach them.

>

> I'm going to spend this weekend looking for the right gift for this

> wonderful

> teacher, she walked into her job mid stream but has finally reached many

of

> our kids, now I will help her reach her peers

>

> Thank you for any help, I don't want this school to end up like other

> schools

> Ive read about. They welcomed Sara, included her and I don't want them to

> lose the vision they started with

>

> Kathy mom to Sara 9

>

September 25, 2001

Sorry to be a pest...can anyone give me the phone number for Medstay?

thanks.

Flo

September 25, 2001

1-877-MEDSTAY is the number.

Goodluck!

in ARk

January 3, 2002

> Hello Dear Everyone,

> I am looking for personal historic records, (journals, letters,

> pictures, etc.) written by people with dwarfism during the late

> 1800's and early 1900's.

While we would like to think that LP's have enjoyed a long history

of opportunity, the truth of the matter is they haven't. This is not

to say that in the era you have selected there was not individual

LP's that may have found success in many different occupations. One

such person that comes to mind would be the artist, Henri de

Toulouse-Lautrec. Although it could be argued that even he was not

in the true sense of the word a dwarf.

In previous eras, such as the 15th century, LP's often found favor

in the courts of nobility and sometimes held positions of esteem.

However, by the time period you are referencing, this was no longer

the case. The LP's of this era, with exceptions noted, found their

security in the various incarnations of the travelling sideshow or

performace troupes and stationary exhibition halls. While this is an

unfortunate circumstance, it should be remembered that social

awareness for the physically challenged was many years in the

future. For the most part through the turn of the century until the

late 1960's and early 1970's when the social conscience began to

develop, LP's were mostly limited to these kinds of exhibitional

activities; i.e. sideshows, wrestling, minor movie roles, etc., with

an exception during the Second World War where many LP's found

employment in the aviation manufacturing industry and other such

positions where a person of short stature had an advantage over an

average sized person.

To accurately portray an LP character such as you have described in

the time period given would be similar to portraying an African

American of the same period in many senses. You would have to show

an extremely limited opportunity and an intense amount of resistance

toward the character. I am sure this is not what you probably are

looking for in the character, but historically this would be most

accurate. To find a célébrité du jour role model, one would have to

turn to someone such as Sherwood Stratton, aka General Tom

Thumb to understand the role LP's played at this time in society.

Hope this has given some nexus for thought...

Maurice

April 12, 2002

I would recomend Hopkins University down that way. Not sure which state

but I am certain it is in either land or Delaware. I live in Minnesota

now, moved here from NJ. My father in law is in Philly, he does internal

medicine. When I was diagnosed he spoke to some people in Neuro-Otolargy(sp?)

and they recomennded s Hopkins. I never went there, went to the U of M

instead only because it is right here, didnt want to travel back east for

surgery. Hope this helps.

Scot

April 12, 2002

i have suffered dizziness on and off for some years now....i dont have

c-toma, but my dizziness is caused by my ears...labyrinthitis.

one has to wonder if your ears aren't causing it?.......what is????

my thoughts are with you and i hope you get something sorted real quick.

regards

julie

April 12, 2002

poorblnde

well, that's a horror.

First question...what kind of insurance or ppo or whatever do you have?

cause that can be limiting and annoying.

while i don't really know any good doctors, i will tell you that johns

hopkins is the number one ear hospital in the country according to USNews.

So if all else fails, check out their website and find a doctor there who

does ear stuff.

Also, for the last " ear infection " diagnosis, did the doctor use a

microscopic otoscope? that's not the usual hand held instrument he uses,

but a big free-standing one that looks like a microscope on a big arm.

Cause if the MD didn't use it, then you should scream at him.

http://www.hopkinsmedicine.org/otolaryngology/ is the website for the

johns hopkins otolaryngology department. check out their faculty, and

then check out the otology section. then call or email these doctors, ask

them who is best to talk to about cholesteatoma, and then if you can't get

them, ask them who does cholesteatoma surgeries in the area; ask them for

a recommendation.

or you could check out www.chole2000.org, which is a conference on

cholesteatoma and ear surgery. In it you can find abstracts on papers

given at the conference. if you check out the abstracts, it shows where

they work, so you could spend a few hours checking each one to find a

nearby doctor. I don't know if that's do-able, but at least you'll know

they know what a cholesteatoma is. or you could try a physician referral

service, or check out some of the

societies..http://dir./Health/Medicine/Otolaryngology/Professional_Orga\

nizations/

is a list from . they sometimes have lists of who is certified.

Then, another important thing, is to contact all of your former doctors,

probably best in writing, asking them to release your medical information

to you. Have them send a copy of all your medical files and surgical

notes, etc. and send them to you. then you bring them to whomever you are

going to next, so they can see a good history of your ear troubles.

Unfortunately i can't say much about the dizziness. I have been a bit

dizzy myself, (1 ctoma surgery in 99, need another one.) although it

hasn't been bad.

well, i hope this helps...good luck.

richard

--- poorblnde <poorblnde@...> wrote:

>

> I have had c-toma since 1995, I have had five surgeries on the

> right ear. The drs on the eastern shore of land said they did'nt

> know that much about it so after three operations they sent me to the

> university of maryland in Baltimore where the dr did a wall down

> three years ago.Now he has left and I have another dr. I am very

> uncomfortable with his decisions because just before the other dr.

> left he found c-toma in the left ear,the new dr says that it's not

> growing and to let it go. I have been having alot of dizzy spells and

> having trouble with balance. The final straw was ,I went to him two

> weeks ago and he had two students with him that did'nt bother me,but

> what did was he told me I had an ear infection in the left ear and

> did nothing not even antibiotics...instead he said that he did'nt

> think the dizziness was coming from my ears and that he would just

> keep tring medicines until something works. My problem is I don't

> know how to find another doctor in this area of land or Delaware

> that knows that much about c-toma.If you have any ideas please please

> let me know . Thank you I would even travel to new jersey if

> necessary.

>

__________________________________________________

April 12, 2002

s Hopkins is in Baltimore, land and is supposed to be one of

the best hospitals in the country. My son's doctor did his residency

there, so we feel quite comfortable with him!

Good luck!

Terri

> I would recomend Hopkins University down that way. Not sure

which state

> but I am certain it is in either land or Delaware. I live in

Minnesota

> now, moved here from NJ. My father in law is in Philly, he does

internal

> medicine. When I was diagnosed he spoke to some people in Neuro-

Otolargy(sp?)

> and they recomennded s Hopkins. I never went there, went to the

U of M

> instead only because it is right here, didnt want to travel back

east for

> surgery. Hope this helps.

> Scot

April 12, 2002

" one has to wonder if your ears aren't causing it?.......what is???? "

Here, here!!!!

Balance mechanism being in the ears.....

Good Luck!

Jane

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April 12, 2002

Re: doctors/Eastern Shore MD

I agree with the posters recommending s Hopkins, my surgeon back in NY was from there & was excellent. I live on the Eastern Shore of Virginia & had a similar problem finding an ENT. I'm not sure where in MD you are, but, FYI, I was not comfortable with the ENT in Salisbury - he and his audiologist were so very amazed that my previous ENT had done 2 surgeries and left me with so much hearing (mild loss in affected - right - ear, with greater loss in high/low frequencies). So amazed, in fact, that I immediately vowed to myself that they were never operating on my head.

I now see an ENT in Belle Haven, VA, which is about 40 min below the VA-MD line. Probably too far for you, but I really like him. Young, bright, state of the art equipment...of course, I'll reserve my final judgement until after my next surgery next month! He also treats my son for his sinus troubles and I have great confidence in him. They call the practice Chesapeake Bay ENT, it's just him, and he uses Shore Memorial Hospital in Nassawadox.

April 12, 2002

What about the DC area or its suburbs? I'm in Florida, but I grew up in the suburbs of DC (in MD) - lived there for 29 years, that area might be an option, and I know there is a member of this group from that area (Terri Potts). Maybe she would recommend her son's doctor.

-- need help

I have had c-toma since 1995, I have had five surgeries on the right ear. The drs on the eastern shore of land said they did'nt know that much about it so after three operations they sent me to the university of maryland in Baltimore where the dr did a wall down three years ago.Now he has left and I have another dr. I am very uncomfortable with his decisions because just before the other dr. left he found c-toma in the left ear,the new dr says that it's not growing and to let it go. I have been having alot of dizzy spells and having trouble with balance. The final straw was ,I went to him two weeks ago and he had two students with him that did'nt bother me,but what did was he told me I had an ear infection in the left ear and did nothing not even antibiotics...instead he said that he did'nt think the dizziness was coming from my ears and that he would just keep tring medicines until something works. My problem is I don't know how to find another doctor in this area of land or Delaware that knows that much about c-toma.If you have any ideas please please let me know . Thank you I would even travel to new jersey if necessary.

April 12, 2002

Quoting poorblnde <poorblnde@...>: