new here, lengthy history/symptoms

[Guest guest]

Bee has asked me to post this on this site in order to be able to get answers.

I know it's lengthy, I had tried to do a timeline for her cumulating to my

agonizing sx now, which happen in response to eating.

Thanks for all who read/reply )

I am having horrific sx and am new to your site, I have read through most of the

links now for your plan.

Maybe you can help me anyway, as Im having hellish internal body itch diffuse

all over, into my nerves, it's maddening. It's more of an acidic searing inside

actually that has built up for 1.5 yrs more and more, to more foods over this

time, now encompassing pretty much everything.

I am in benzodiazeine w/d recovery at 11+ months off, but quit before after a

long taper that ended 2.5 yrs ago. At that time of the last couple week of my

benzo taper,

I got very ill. it started with getting flu/ taking antibiotics for 9 days, and

all hell broke loose I was also at the end of my benzo taper which makes body

weak in w/d.

At that time, my sx were that I was sick to my stomach one by one to every food

and started having red itchy reactive skin. Mostly I had severe 24/7 nausea. I

got down to only 2 foods that didn't make me sick, oatmeal and rice. My mouth

and gut burned when I'd drink water, any water. Still does today even.

I restarted benzos as I thought I'd die and lost 30 pds in 3 months. And I

stopped oatmeal and rice, since I began reacting badly to them, rice= severe

palpitations for hours and oatmeal = burning mouth tissues and bit itchy. Most

of the sickness went away and I introduced foods back into diet. All while

trying homeopathic route and some other things.

I quit again 2 more times, but my sx becoming so intnese with internal sort of

stingy searing and itchyish type sensation inside. Seemed like allergic

reactions, but different.

Soon I started reacting to foods, despite rotating them, and eating only

vegetables and meat. I had some goat dairy, which allowed me to put on lots of

weight again, but after 3 months, it now made me sick to eat, and caused severe

gut ache and picky itch all over feeling.

I had quit dairy 7 yrs ago b/c of suspected allergy developing with racing heart

after ingesting(had quit benzos around then too) and quit fruit 6 yrs ago b/c it

made me feel stoned drugged and severe disoriented/dizzy after few bites. I

stopped all sugar then too.

I also do not eat nuts b/c of allergy - so I am concerned about coconut oil. I

cannot eat any grains b/c of severe burning tissues in mouth/GI and

palpitations, makes my body very unwell. I also cannot eat yams, peas, some

squash b/c of severe reaction of palpitaions and some dizziness. Same for

vinegar, = severe fall over dizziness.

I don't know why.

Fast forward to this January 2011 I broke my arm badly and had surgery metal

plate put in and screws. They gave me many meds I don't tolerate, and a big

dose of antibiotic.

as usual from the antibiotic, My bowels finally went firm and non odourous (was

a lovely break from odourous foul loose stools everyday), which antibiotics

always do for me, which is nice, but, for only 3 weeks, and in that time, I

became more sensitive and reactive. My gut hurt more often, which was newer

symptom now.

I tried some probiotics out of desperation in Feb, vital-10 and I seemed to

become allergic to them.

I also get hypoglycemic for about 7 years now, and i lost wieght after surgery.

It's been under control, but this too worsened and I was feeling dizzy low blood

sugar feelings all the time now.

I had tried a bit of glutamine for about a week, after gut problems getting

worse, and my hypogllycemia seemed to get much worse, this might have been the

trigger. Then I read that although good for gut, it competes with gaba in brain

and can increase hypoglycemia. Bad for me in benzodiazepine w/d where gaba

receptors already do not work right.

So now I tried to reintroduce more meats/fats to stop the hypoglycemia. I felt

great, for few days, then got severe gastritis, and refllux. my gut was

burning, that even drinking water caused bad gnawing. I got much worse

/different mouth/tongue esophagus burning on fire, and reflux.

Someone on my benzo support said it sounds not just like w/d but like candida.

I decided to read about it again as it was not a new concept to me, and I ended

up taking one candizyme enzyme.

Only one enzyme and I have horrble gut burning a hole in me pain for days and

immediately got severe diarrhea 3 hrs later as my insides churned and burned all

night.

again, I had ultra sensitive gut now.

So of course I did not take anymore of that.

I went back to the safest of foods for me, and they were not comforting.

I started getting insanely superficially itchy burning reaction from the shower,

just the heat of the water as this happens for time to time. I've had this

befre and have had to take Claritin to mellow it and stop the itch so I am able

to shower.

I took a claritin, but this time, I reacted adversely to the drug. Never before

has this happened, now I was scared. I got dizzy, rapid heart and anxiety

attacks for 2 days straight from about 1/2 hr after taking the claritin plain

allergy tablet and nothing else.

I had gotten lots of white spots all over body sunless spots after being in

florida /tanned exactly 1 year ago now. So, I had selsun blue and nizoral on

hand which I'd tried in past year to see if these were age spots or perhaps a

yeast causing this as I've read, not vitiligo, but small spots, hundred all over

legs arms and others here and there.

So, after claritin disaster, just 2 1/2 -3 weeks ago, I decided to try selsun

blue for 2 days then switched to nizoral for 12 days apply in shower let stay

for about 8 mins and rinse hoping it might alleviate skin itch as I'd thought

maybe there was a connection when I used it in the past to helping stop the

itch.

After a week on Nizoral, I then started tea tree oil 100% as I'd read about it

and it was recommned at health foods store. all over arms and legs and feet,

and back of neck for 6 days. I also tried clotrimazole cream only on forearms 2

days.

well it seems that after adding tea tree oil, though it started before, it

really ramped up new symptoms that

I got progressively more and more itchy when I ate anything. But more, a

stabbing picky itch all over and under skin. with insane tense searing feelings

all over under skin as if all muscles would seize up.

I stopped tea tree oil as no one could tell me if maybe I was absorbing it

through skin? That was about a week ago now.

Stabbing picky itches have abated a bit, but I'm still getting intense hellish

hot eczema type itch and vag itch (I didn't put anything there) and palm/sole

deep itch and mad itch all over inside like searing inside of acidic poison

after I eat anything it seems.

And my first meal of the day seems to be the hardest where as soon as I eat, I

get the flush under skin acidic crazy searing 'allergic' feeling all over which

intense agitates for 1-2 hrs. Even if I scratch my skin it either leaves white

streaks on reddened skin or red marks like dermagraphia.

All this since Jan 23/11.

I have burning over my skin a lot, which at first I thought was reawakening of

w/d benzo symptoms b/c of all the meds they gave me during surgery. I figure

tea tree oil can do this too, but I've stopped for a week now, and eating

triggers all these sx. no matter what I eat!

I find I cannot tolerate vitamins b/c of or since benzo w/d - gives me again bad

reactions, esp anxiety attacks.

I feel like I'm allergic to the world. the new itching deep in palms and soles

are scary, but that's almost the least of it!

So as you can see, I've only been eating good food for a long time.

I did introduce a bit of fruit 1+ year ago, only grapefruit, apple and pear.

but never alone or I get dizzy, and only 1/4 -1/2 fruit with meal.

I feel allergic to everything. That is the only thing to be considered bad that

I eat regularly, and i've now cut back on that, not eating any some days.

I have this all over flush burning itching acidic searing under my skin now and

seemingly in my nerve after everything/anything I ingest. My ears burn red, my

face jaw neck burns like sunburn, and all thats okay, it's really the internal

eczema itch/impending breakout hives feeling that I get diffusely all over my

entire body - like something or histamine flowing though my blood and therefore

all over my entire body.

Bee, I feel so desperate, in so so much agony. I have alittle one, 7 yr old

girl who has been through hell already with mommie being sick for as long as she

can remember. I'm a single mom.

I worry about her. She got thrush of mouth when i tried to breast feed her for

1 month, which was 7 years ago. She was on antibiotics for 3-4 x times in a row

when 3 b/c of ear infections.

she seems to be allergic to some things, sneezes lots, and very often has a low

grade fever of 99.4 or something. She is homeschooled now by me, and is often

tired, or sore. People say it's grwoing pains or b/cshe doesn't do enough, but

I sense something else.

I saw and alternative doc for awhile, the only one around here,. and she stopped

seeing us. I did iv's a few times, tried saunas, tried probiotics, some

supplemens that I reacted badly to etc, nothing cured me yet I didn't do it for

more than a few months.

I took diflucan for 2 months in beginning 2.5 yrs ago, for the burning

mouth/coated tongue, and burning to drinking water, but it did not help. Even

when I tried some diflucan after surgery, I had adverse reaction to it too now.

I have tried many things, but not longer than a few months.

I have become reactive to almost every food. especially things I used to eat a

lot of, like grains, olive oil etc.

I am desperate.

I just ate salmon, brussel sprouts and one segment of grapefruit, and after my

hot water at the end, my body went nuts for 1/2 hr and is still not okay 2 hrs

later. I have itches on skin, and during the intense stuff,

my body feels like I'm going mad with internal searing itching on every nerve

ending, within my blood, under my skin diffusely all over.

I ate bad food 2 days ago, corn chips which I NEVER eat, but was so hungry.

Understand I do not eat grains, I only tried them and had them perhaps 5 months

ago the time before, perhaps a year before this, always reacting but hoping to

tolerate for calories or emergency when I am having a low blood sugar attack.

I got severe palpitations, burning mouth, then deep rashy feeling all over under

skin all night,itchy eyes, wheezy - felt horrible. But I was full.

I don't not eat any other junk food. I was having some organic potato chips

with sea salt for a few months, b/c it was the only food for awhile, months, to

NOT give me any of the above symptoms. But now I react to those too.

Its always that intense searing crazy feeling in my legs/body nerves, I wish I

knew exactly what that was. It started midly about 1.5 yrs ago, whenI was

eating goat yogurt, and since then encompassed more and more foods. I normally

have to stop the food as it becomes way too intense. Now everytrhing I eat is

hellish with sx, it's almost my worst nightmare.

No matter how healthy I eat, or even the bad stuff, which I've only tried chips,

(no sugar, grains, dairy, packaged foods)

I am reacting more an more esp since breaking my arm/surgery. I wonder is it

the metal plate I'm reacting to?!

I am quite afraid and wondering if you've ever heard anythign like this, and

what you think is wrong?

I also cannot have fruits, yams, squash - because of very dizzy brain pressure I

get like drugged and rapid heart and palpitations.

I cannot have grains b/c of hot burning tissues, most severe palpitations (every

3rd beat for 5-6 hrs),

I react to anything I eat repeatedly.

my body cannot process any medications now - it's like everything that goes in

is poison. I get drugged stoned feeling, rapid heart, palpitaions, and anxiety

attacks from medications, breathless etc.

I was not able to tolerate vitamins even before when I was not reacting like I

am now.

Please help me if you can, I am scared and desperate.

I tried a tiny 1/16th of vital 10 probiotic yesterday with just hot water on

empty stomach, and I got crazy burning itchy all over nuts in body and had to

take a scalding hot shower which/distracted and or alleviated the intensity of

the sx. but again, firt ingestion of the day seems to be the most violent one.

I don't understand what is going on. Does this pattern sound familiar? Do

people get better from this? I feel like I'm dying in agony most of the time.

Thank you so much for your input,

Tina