pain in hips and legs

[Guest guest]

This most likely is not a FMS thing. It could be coming from your Low back ESP if you have spinal stenosis, or a bulging disc that is putting some pressure on a nerve root. Another possibility could be a condition called Polymyalgia rheumatica. To name a couple of conditions. I find that so many with Fibromyalgia, mark up any pain they have to FMS when indeed it could be another problem. I have both of the problems mentioned above and I have the same problem with my legs. I recently had a EMG done that showed that I am developing a neuropathy, even though I am not a diabetic. Sandie -- Pain in hips and legs I find that in addition to the constant fatigue and overall pain of FM, I can only stand or walk about 45 minutes to an hour, then the very painful aching starts in my legs and hips. The pain can last for 6-8 hours even though I am now lying down or sitting. I wear only flat shoes that support my feet with good arch support. I don't see this symptom mentioned very often when I read about the symptoms of FM. Does anyone else have this problem? If so, any success in dealing with it? Thank you for your help.

[Guest guest]

If you have had a hysterectomy, only part of what follows is

applicable.

I have had surgery for those symptoms a couple of times. And I am

being tested to determine if I am ready for another round of

surgery. What the Ob/gyn surgeons found through laporoscopy (surgery

through the belly button) and hysteroscopy (surgery through the

cervix) was an abundant growth of abnormal tissue and endometrial

tissue both inside the uterus and all over my abdominal wall

(muscles, not fat) including my ureters (the tubes coming from the

kidneys that are covered only by connective tissue inside the female

pelvis. It's much, much more than endometriosis. But it is much

easier to spoon-feed the skeptical physicians if you stick to terms

they can understand, such as endometriosis. If you have a modern-day

gyno, you can probably deliver the heavy stuff.

My problems with both legs and pelvis was that one of the ligaments

holding my uterus in place, attached at the bottom to abdominal wall

and at the top to the uterus had a huge fibroid on the under side.

It was hard to detect, so the first surgeon that performed an

endometrial ablation missed it. He did a wonderful job of

obliterating the nerve endings that were causing my other pain, even

on the pelvic floor, where he was surprised to find so much

endometrial tissue growing.

I have never had children.

The second surgeon knew exactly what he was looking for. But by

then, I was passing out, on really heavy pain meds, lame most of the

time. And my cervix was completely closed, abnormal growth of tissue

had blocked the opening. Some gynos (I saw 3 of them before I took

the plunge this second time around) thought I had ovarian cancer

because one hip would swell to triple its size for several days

after any activity at all. I was still swimming quite a bit. And I

was a litigation paralegal. So, I lifted 30 pound boxes on a daily

basis. And I am a very small person, about 105 pounds.

The second surgeon said he did not understand how I was still

upright and walking with all of the tissue and obvious pain that it

caused. I explained that I wasn't walking at all, in the end. A

civilian ambulance had to carry me off the Navy base to the nearest

civilian hospital.

I think in this modern age, one of the first things you can do is

have a " hysterogram " . It is a tiny microscope that goes up through

the cervix to have a look around in the uterus. If the tissue growth

is abundant, then the doctor will also do a sonogram to detect dark

spots all over your abdominal wall and pelvic floor.

If you have already had a hysterectomy, the tissue growth and pain

does not stop, necessarily. Most female Gulf War vets who chose

hysterctomies are sorry they did so, because they do not have the

energy, and they are deficient on all the hormones that their

ovaries used to provide. They still have swelling in the pelvic

floor, pain in the legs, etc. and ad nauseam.

This time, because my female organs are healthy and hysterectomy is

not an option, I am testing for Mycoplasma hominis. It is a

biological weapon that the U.S. military designed for population

control. It is detected through the urine, and Quest Diagnostics

Laboratories has offered the test for about 5 years. I do not like

to use other laboratories, because other labs usually can't get the

basic CFIDS/Gulf War Illness tests right.

But options to the urine test are nasal swab or pharyngeal (throat)

swab on a presrved slide. Quest Diagnostics does not offer these

tests. But it fully indicates that Mycoplasma hominis is an airborne

pathogen. Obviously men don't get sick from it. But your daughters

and grand-daughters can be struck down by it.

[Guest guest]

--Well,I have the same problem but I can't stand or walk that long.

Even laying down is hard for me ,I can't seem to get my body

comforatable enoenough to even get a good night of sleep. I do

everything by setting my timmer for 15 min. and then resting till the

pain is better and the I go for it again. I also have IBS,arthritus and

migraines. I have pills for it all but they just get me through the day

and not even that usually. So hoping to find ideas on this site. It

seems to be a very caring group of people. My problem tonoight is I

feel like I am getting stuck by pins all over at different times. this

is a new thing only started 2 days ago.

I can use all the help I can get. Leah T.

In dominie , " sscohen2 " <sscohen2@...> wrote:

>

> I find that in addition to the constant fatigue and overall pain of

> FM, I can only stand or walk about 45 minutes to an hour, then the

> very painful aching starts in my legs and hips. The pain can last for

> 6-8 hours even though I am now lying down or sitting. I wear only

> flat shoes that support my feet with good arch support. I don't see

> this symptom mentioned very often when I read about the symptoms of

> FM. Does anyone else have this problem? If so, any success in

> dealing with it?

> Thank you for your help.

>

>

[Guest guest]

Hi Leah,

I have those kinds of pains in the winter. Except my pain feels like somebody filled me up with gasoline and lit a match. My doctor just increased my medications from Vicodin (brand name necessary) 5/500 to Vicodin 10/660 hp. It's the opiate part of the drug that diminishes the pain pricks and "torched" feeling. I suspect that these types of pain are the neurological part of the illness. Something in our brains gets switched on to tell our bodies to detect pain. And you can't switch it off very easily except through really strict diet and rigorouse exercise regimen. You have arthritis, so rigorous is out for you. I have Gulf War Illness, so rigorous is out for me.

My doctor's only concern was acetaminaphen levels on top of my migraine meds that also have acetaminaphen. It causes liver damage if taken in excess. He really likes to steer clear of Tylenol in any form. But the other drugs are so dedating that I don't get any exercise at all. And that causes even more pain and "torched" feeling. But with the increased opiate in the Vicodin HP, I take half as much. So, in the end, I am getting less acetaminaphen (Tylenol, if you will) than I was before.

Since my doctor upped my pain meds, I sleep like a baby.

[Guest guest]

This could be almost anything. I suggest checking in with your

doctor. It could be anything from bursitis to sciatica and lots of

other things.

It could even be your feet. Your doctor is the best place to start.

Barbara

>

> I find that in addition to the constant fatigue and overall pain of

> FM, I can only stand or walk about 45 minutes to an hour, then the

> very painful aching starts in my legs and hips. The pain can last for

> 6-8 hours even though I am now lying down or sitting. I wear only

> flat shoes that support my feet with good arch support. I don't see

> this symptom mentioned very often when I read about the symptoms of

> FM. Does anyone else have this problem? If so, any success in

> dealing with it?

> Thank you for your help.

>

>

[Guest guest]

Oh, this is my main problem right now. For me, it has to do with my pelvis/sacrum being out of alignment which causes muscle spasms in my hip flexors. These hip flexors (piriformis muscle) then become clenched and clamp down on nerves causing nerve pain in my hips and all down my legs. I can only sit for about ten minutes, standing about the same. If I'm moving around I'm okay. My rheum put me back on Lyrica, to my dismay, but since it actually worked this time I guess I will stay on it. It is really helping with the nerve pain in my legs. Now I just have to strengthen my core to help keep my pelvis and sacrum properly aligned and then retrain my hip flexors to stop being chronically in spasm or clenched. I had to have my alignment evaluated by a physical therapist, but a chiro could make this same eval.

Never miss a thing. Make your homepage.

[Guest guest]

I too have the same problem. However, my problem results from bulging discs in my lower back along with arthritis and stenosis..perhaps you should look into any back issues you may have..

Patti in NJ

In a message dated 2/26/2008 6:46:52 P.M. Eastern Standard Time, bfrnd@... writes:

> I find that in addition to the constant fatigue and overall pain of> FM, I can only stand or walk about 45 minutes to an hour, then the> very painful aching starts in my legs and hips. The pain can last for> 6-8 hours even though I am now lying down or sitting. I wear only> Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.

[Guest guest]

try to find a PT or PTA that has a certificate for muscle energy. Within 30 minutes you will feel amazing. The ones that are trained in muscle energy technic will put you back in alignment without manipulating your bones like Chiro's do. Muscles are stronger than bone, so if your muscles need "re-set", they will pull the bone to where they want it. Interesting stuff, and it really does work. There is a fabulous PT in Cleveland, Ohio but if you do a search maybe you can find one in your area. Good luck! Nadine Tiff <bestel63@...> wrote: Oh, this is my main problem right now. For me, it has to do with my pelvis/sacrum being out of alignment which causes muscle spasms in my hip flexors. These hip flexors (piriformis muscle) then become clenched and clamp down on nerves causing nerve pain in my hips and all down my legs. I can only sit for about ten minutes, standing about the same. If I'm moving around I'm okay. My rheum put me back on Lyrica, to my dismay, but since it actually worked this time I guess I will stay on it. It is really helping with the nerve pain in my legs. Now I just have to strengthen my core to help keep my pelvis and sacrum properly aligned and then retrain my hip flexors to stop being chronically in spasm or clenched. I had to have my alignment evaluated by a physical therapist, but a chiro could make this same eval. Never miss a thing. Make your homepage.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

have you had your B12 checked? Mine went down, and it had been fine in October. I just finished the 1 shot a week for 4 weeks, now I'm at 1 a month for a year. I get those same feelings like someone stuck an electric impulse or something to different parts of my arms and legs at different times. It can drive you batty =). Leah <ldtblue@...> wrote: --Well,I have the same problem but I can't stand or walk that long. Even laying down is hard for me ,I can't seem to get my

body comforatable enoenough to even get a good night of sleep. I do everything by setting my timmer for 15 min. and then resting till the pain is better and the I go for it again. I also have IBS,arthritus and migraines. I have pills for it all but they just get me through the day and not even that usually. So hoping to find ideas on this site. It seems to be a very caring group of people. My problem tonoight is I feel like I am getting stuck by pins all over at different times. this is a new thing only started 2 days ago.I can use all the help I can get. Leah T.In dominie , "sscohen2" <sscohen2@...> wrote:>> I find that in addition to the constant fatigue and overall pain of> FM, I can only stand or walk about 45 minutes to an hour, then the> very painful aching starts in my legs and hips. The pain can last for> 6-8

hours even though I am now lying down or sitting. I wear only> flat shoes that support my feet with good arch support. I don't see> this symptom mentioned very often when I read about the symptoms of> FM. Does anyone else have this problem? If so, any success in> dealing with it?> Thank you for your help.> >

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi bee,

Heidi here again with a question reagarding the pain I am experinceing in my

hip and my legs mostly my lower ligamnets. Seems to get better on drier days

but still my mobility is limited and with me not wanting to take much pain meds

I am having a hard time dealing with the pain because of my low pain tolerance.

I have put the vit A back in my diet the past 5 days and it is somewhat better.

I am only up to two table spoons of coconut oil and I am not able to get any

organic meat or unpaturized milk or butter.

So I only can walk somedays but since I work part time I need to be flexible to

clean and bend. doing my deep breathing but only works for the pain while I am

doing that. what can I do I never had hip pain or injury before cannot

understand why I am experiencing this. I have been on the diet for over 6 months

but have cheated in between and have stayed on it clean for over three weeks.

Your advise will greatly be appreciated.

Heidi

[Guest guest]

>

> Hi bee,

>

> Heidi here again with a question regarding the pain I am experiencing in my

hip and my legs mostly my lower ligaments. Seems to get better on drier days

but still my mobility is limited and with me not wanting to take much pain meds

I am having a hard time dealing with the pain because of my low pain tolerance.

I have put the vit A back in my diet the past 5 days and it is somewhat better.

I am only up to two tablespoons of coconut oil and I am not able to get any

organic meat or unpasteurized milk or butter.

So I only can walk somedays but since I work part time I need to be flexible to

clean and bend. doing my deep breathing but only works for the pain while I am

doing that. what can I do I never had hip pain or injury before cannot

understand why I am experiencing this. I have been on the diet for over 6 months

but have cheated in between and have stayed on it clean for over three weeks.

Your advise will greatly be appreciated.

++Hi Heidi,

Damp weather can increase some kinds of symptoms in some people. Also, there is

no dairy like milk, on this program, except butter. So you should only be

having butter.

It is not necessary to have organic meats and unpasteurized raw butter either.

They are healthier, but you still get important nutrients from non-organic

sources. It is more important to eat non-organic sources than to avoid them

because you cannot get the ideal healthier meats and butter.

The reason you have pain, weakness, and are having difficulty walking and moving

is because toxins that have moved into those areas, which happens to most people

when their body is not yet able to detoxify itself like it should. It means the

toxins are mobilized (moving) but they have not been detoxified yet.

You say you put Vitamin A back in your diet recently, however you need to be

taking vitamin A, along with omega 3 and vitamin D (in cod liver oil

supplements) every day since all of those nutrients work together with the other

supplements and the foods on my list, in order to heal and detoxify your body.

Since you did it with diet; what food did you add to put vitamin A back in?

Clean, without cheating, for 3 weeks, may not be long enough depending upon how

much you consumed while cheating, how often, and what kind of food you ate.

Are you taking all of the supplements? They are very important because all of

the nutrients in the foods and the supplements work together to help your body

detoxify and heal itself.

You can do some natural things to help with your pain, which are mainly those

that help your body detoxify, as explained in this article:

http://www.healingnaturallybybee.com/articles/detox.php

You should definitely be taking an Epsom salt baths per day and doing coffee

enemas as listed in that article.

Also you can take megadoses of vitamin C for 2 weeks, in addition to your usual

dose (4,000 mg daily) starting with 4,000 mg taken all at once and only one time

immediately. Then take 1,000 mg every hour while you are awake to bowel

tolerance (loose stools). When you get loose stools take a little less every

hour, i.e. 200 mg, and so on. Every time you get loose stools take less vitamin

C per hour. At the end of two weeks gradually lower your extra doses to 4,000 mg

daily that you were taking before.

You can also use natural substances to help with pain:

1) Take White Willow Bark, available in capsules at your health store, and take

them according to the label, with food. It is the natural form of aspirin.

2) Mix oil of oregano 50/50 with extra virgin olive oil in a dropper bottle. Rub

it into the areas that give you the most pain, and if possible apply warm, not

hot heat, for 1/2 hour to help it sink into your skin.

3) Also sniff frequently on the original oil of oregano bottle to help get the

fumes up into your head which can help with the pain centers there. Not only

will oil of oregano help heal the area, but it is also as powerful of a pain

killer as morphine, but do not take it internally.

The best in health, Bee