Questions

[Guest guest]

Heidi, unless the big pharma puppets have even made the flu shot mandatory, for which parents can take out an exemption, I fail to understand why any person would voluntarily have toxins injected into his or her bloodstream, in particular since ethical (yes, there are still plenty of those around) researchers and physicians have been pointing out over and over again that flu vaccinations are totally useless and ineffective and in fact are causing the flu. Apart from thimerosal, there are all the other lovely adjuvants, e.g. aluminium, formaldehyde, anti-freeze, etc. that accumulate in the brain and compromise the immune system.

http://www.newswithviews.com/Ciola/greg.htm

http://www.organicconsumers.org/articles/article_3400.cfm

Ingrid Blank

-----Original Message-----From: no-forced-vaccination [mailto:no-forced-vaccination ]On Behalf Of elevatordance Sent: Montag, 7. Januar 2008 00:08no-forced-vaccination Subject: RE: questions

Hi all,

We are preparing to speak to Gov Corzine here in NJ at a town hall meeting next week. Can anyone point us to reference material regarding the volume of flu shot and how it is distributed to each state? I want to find out how many Non Thimerosal containing flu shots will be available in our state this winter. Is that possible? Does the CDC know?

thanks,

Heidi

mom to 13 yo dx with Autism

From: "citizenspetition" <dr.laibow@...>Reply-no-forced-vaccination To: no-forced-vaccination Subject: Re: Introduction - Deborah DelpDate: Sun, 06 Jan 2008 20:33:45 -0000

Deborah, thank you for sharing your story with us. We need to hearfrom all the group members to understand better the plague of autism,learning disorders, etc. that appear to accompany the "public healthbenefits" that have been claimed for vaccination.Regarding your question about Codes, a couple months ago we asked thehundreds of thousands of people on the Natural Solutions FoundationeAlert list what health freedom issues concerned them the most. Byfar, Codex and forced drugging/vaccinations were the main concerns.The main focus of Foundation activities will remain Codex, so thisforum was formed to cover the other main issue - forceddrugging/vaccination. Please join or stay on the NSF eAlert system tocontinue receiving information about Codex and related issues. So, thank you for being active in these important issues!Ralph Fucetola JD, Trustee>> > My name is Deborah Delp and I reside with my husband (20 years) and two> children in central PA. I have 2 beautiful childrenm my DD is 13 and is> cyber-schooled via PAVCS (www.pavcs.org <http://www.pavcs.org> ). She> was diagnosed in third grade with ADHD (a close cousin to Autism) and of> course the standard (though in many cases unwarrented) ODD. My DS was> diagnosed in 2000 ( at the age of three) with Austism. I later> discovered (June 2001) that what it truly was is mercury posioning. A> year later (November 2001) he was also diagnosed with ADHD. He goes to> the best autism support program that I think Pennsylvania has to offer.> The school is called the VISTA school. Their website is:> www.thevistaschool.com <http://www.thevistaschool.com> .> > With our daughter we tried (with no success or adverse effects) two of> the standard treatments for ADHD. Concerta made her sad all the time> (the adverse effect being depression). Then we switched her to Adderall> with no beneficial (though no negatives either) results. She has since> been drug free. In addition to the ADHD diagnosis when she was 6 she was> diagnosed with allergies and at the age of 10 (2004) she was also> diagnosed with asthma. Our doctor told us then that the meds given to> her for the allergies is probably what triggered the asthma as well.> > Our son takes nothing but supplements to help combat the effects of the> mercury posioning he received from his vaccinations. Between the> supplements and the programs at Vista he is getting so much better.> > I am a firm believer of no forced vaccines (actually no vaccines at all> would be my preference) and in turn; am a HUGE supporter of Ron > (for many other reasons BESIDES his stance on vaccines).> > At any rate I have a question: Is there a group to stop the codex> push as well as this group? Anway this is my introduction and thanks for> approving me.> > Be At Peace,> Deborah A Delp> Mother of:> (13, Mercury Toxic)> JR (10 VERY Mercury Toxic)> E-Mail Me @ vaccines_r_toxic@...> <mailto:vaccines_r_toxic@...>> > Autism-Hope Website> www.autism-hope.150m.com <http://www.autism-hope.150m.com>> > Autism & Vaccinations> autism_and_vaccinations> <autism_and_vaccinations>> > PAVCS Central Pennsylvania> PAVCS_Central_PA> <PAVCS_Central_PA>> > MY SPACE> http://www.myspace.com/ladygrace924> <http://www.myspace.com/ladygrace924>> > CafeMom> http://www.cafemom.com/home/LadyGrace924> <http://www.cafemom.com/home/LadyGrace924>> > > "It's Not Enough 2 act Like We Care;> > WE MUST CARE ENOUGH TO ACT...!!!">

[Guest guest]

i am not sure that you can get reliable information on this question.

i have been hearing stories about doctors claiming their vaccine

doses are mercury free but if they took the time to read the insert

labels (those long sheets in minute print), mercury is still there.

further, i am told that claims can be made of 'no mercury' if the

amount is below a certain level.

and we know that the flu vaccine has mercury in it as a 'preservative.'

so i think the issue one of credibility about the spin that is put out.

i also think that the concern needs to be vaccines, not just some of

the adjuvants. the very idea of vaccines, themselves, is contrary to

health. as i understand them, they are bits of foreign protein, grown

on various cultures, injected into the blood stream in order to avoid

several stages of the natural immune system which would most likely

attack them as toxic matter and try to eject them from the body.

the other aspect of vaccines is that they work by creating a chronic

low grade form of the illness which creates a sensitivity in the body.

this can result in the development of various allergies as well as

weakening the immune system; ie, chronic ear and respiratory

infections, antibiotics and resultant asthma. andrew wakefield, in

england was professionally destroyed when all he did was raise the

question about finding measles virus in the gut of autistic children.

so, for me, the quesion is one of credibility and lack of 'science'

that surrounds the vaccine drug pushing.

[Guest guest]

i am not sure that you can get reliable information on this question.

i have been hearing stories about doctors claiming their vaccine

doses are mercury free but if they took the time to read the insert

labels (those long sheets in minute print), mercury is still there.

further, i am told that claims can be made of 'no mercury' if the

amount is below a certain level.

and we know that the flu vaccine has mercury in it as a 'preservative.'

so i think the issue one of credibility about the spin that is put out.

i also think that the concern needs to be vaccines, not just some of

the adjuvants. the very idea of vaccines, themselves, is contrary to

health. as i understand them, they are bits of foreign protein, grown

on various cultures, injected into the blood stream in order to avoid

several stages of the natural immune system which would most likely

attack them as toxic matter and try to eject them from the body.

the other aspect of vaccines is that they work by creating a chronic

low grade form of the illness which creates a sensitivity in the body.

this can result in the development of various allergies as well as

weakening the immune system; ie, chronic ear and respiratory

infections, antibiotics and resultant asthma. andrew wakefield, in

england was professionally destroyed when all he did was raise the

question about finding measles virus in the gut of autistic children.

so, for me, the quesion is one of credibility and lack of 'science'

that surrounds the vaccine drug pushing.

[Guest guest]

Just so everyone is clear: I have no intention of getting a vaccine for me or anyone in my family. Unfortunately, there is no leverage regardiing the safety of vaccines themselves, believe me, I know all about the toxins in them and I don't believe they are safe. But the mainstream medical community and the politicians that run our state believe that they are. All I can do right now to fight this issue is to point out that we are injecting mercury into our 6 month olds which is a known neurotoxin. That is where this question is coming from.

From: "tamarque0" <tamarque@...>Reply-no-forced-vaccination To: no-forced-vaccination Subject: Re: questionsDate: Mon, 07 Jan 2008 12:18:39 -0000

i am not sure that you can get reliable information on this question.i have been hearing stories about doctors claiming their vaccinedoses are mercury free but if they took the time to read the insertlabels (those long sheets in minute print), mercury is still there.further, i am told that claims can be made of 'no mercury' if theamount is below a certain level.and we know that the flu vaccine has mercury in it as a 'preservative.'so i think the issue one of credibility about the spin that is put out.i also think that the concern needs to be vaccines, not just some ofthe adjuvants. the very idea of vaccines, themselves, is contrary tohealth. as i understand them, they are bits of foreign protein, grownon various cultures, injected into the blood stream in order to avoidseveral stages of the natural immune system which would most likelyattack them as toxic matter and try to eject them from the body. the other aspect of vaccines is that they work by creating a chroniclow grade form of the illness which creates a sensitivity in the body.this can result in the development of various allergies as well asweakening the immune system; ie, chronic ear and respiratoryinfections, antibiotics and resultant asthma. andrew wakefield, inengland was professionally destroyed when all he did was raise thequestion about finding measles virus in the gut of autistic children.so, for me, the quesion is one of credibility and lack of 'science'that surrounds the vaccine drug pushing.

[Guest guest]

Just so everyone is clear: I have no intention of getting a vaccine for me or anyone in my family. Unfortunately, there is no leverage regardiing the safety of vaccines themselves, believe me, I know all about the toxins in them and I don't believe they are safe. But the mainstream medical community and the politicians that run our state believe that they are. All I can do right now to fight this issue is to point out that we are injecting mercury into our 6 month olds which is a known neurotoxin. That is where this question is coming from.

From: "tamarque0" <tamarque@...>Reply-no-forced-vaccination To: no-forced-vaccination Subject: Re: questionsDate: Mon, 07 Jan 2008 12:18:39 -0000

i am not sure that you can get reliable information on this question.i have been hearing stories about doctors claiming their vaccinedoses are mercury free but if they took the time to read the insertlabels (those long sheets in minute print), mercury is still there.further, i am told that claims can be made of 'no mercury' if theamount is below a certain level.and we know that the flu vaccine has mercury in it as a 'preservative.'so i think the issue one of credibility about the spin that is put out.i also think that the concern needs to be vaccines, not just some ofthe adjuvants. the very idea of vaccines, themselves, is contrary tohealth. as i understand them, they are bits of foreign protein, grownon various cultures, injected into the blood stream in order to avoidseveral stages of the natural immune system which would most likelyattack them as toxic matter and try to eject them from the body. the other aspect of vaccines is that they work by creating a chroniclow grade form of the illness which creates a sensitivity in the body.this can result in the development of various allergies as well asweakening the immune system; ie, chronic ear and respiratoryinfections, antibiotics and resultant asthma. andrew wakefield, inengland was professionally destroyed when all he did was raise thequestion about finding measles virus in the gut of autistic children.so, for me, the quesion is one of credibility and lack of 'science'that surrounds the vaccine drug pushing.

[Guest guest]

Heidi,

For technical information, it might help to contact F Kennedy, Jr. go to his website and if you need more information regarding non thimerisol vaccines, he will know..he has been a life saver for us...he is an attorney for the environment but has worked continually to show the lies that the FDA and drug companies are still printing...specifically the scientist(docs) who wrote the last test reports on thimerisol....Bobby K pointed out that these Docs are former employees of the drug companies who make the vaccines...i went to CVS pharmacy and forced them to show me the vaccine and yes thimerisol is in their vaccines...Dr. Debbie Lang

[no-forced-vaccinat ion] Re: Introduction - Deborah DelpDate: Sun, 06 Jan 2008 20:33:45 -0000

Deborah, thank you for sharing your story with us. We need to hearfrom all the group members to understand better the plague of autism,learning disorders, etc. that appear to accompany the "public healthbenefits" that have been claimed for vaccination.Regarding your question about Codes, a couple months ago we asked thehundreds of thousands of people on the Natural Solutions FoundationeAlert list what health freedom issues concerned them the most. Byfar, Codex and forced drugging/vaccinatio ns were the main concerns.The main focus of Foundation activities will remain Codex, so thisforum was formed to cover the other main issue - forceddrugging/vaccinatio n. Please join or stay on the NSF eAlert system tocontinue receiving information about Codex and related issues. So, thank you for being active in these important issues!Ralph Fucetola JD,

Trustee>> > My name is Deborah Delp and I reside with my husband (20 years) and two> children in central PA. I have 2 beautiful childrenm my DD is 13 and is> cyber-schooled via PAVCS (www.pavcs.org <http://www.pavcs. org> ). She> was diagnosed in third grade with ADHD (a close cousin to Autism) and of> course the standard (though in many cases unwarrented) ODD. My DS was> diagnosed in 2000 ( at the age of three) with Austism. I later> discovered (June 2001) that what it truly was is mercury posioning. A> year later

(November 2001) he was also diagnosed with ADHD. He goes to> the best autism support program that I think Pennsylvania has to offer.> The school is called the VISTA school. Their website is:> www.thevistaschool. com <http://www.thevista school.com> .> > With our daughter we tried (with no success or adverse effects) two of> the standard treatments for ADHD. Concerta made her sad all the time> (the adverse effect being depression). Then we switched her to Adderall> with no beneficial (though no negatives either) results. She has since> been drug free. In addition to the ADHD diagnosis when she was 6 she was> diagnosed with allergies and at the age of 10 (2004) she was also> diagnosed with asthma. Our doctor told us then that the meds given to> her for the allergies is probably what triggered the

asthma as well.> > Our son takes nothing but supplements to help combat the effects of the> mercury posioning he received from his vaccinations. Between the> supplements and the programs at Vista he is getting so much better.> > I am a firm believer of no forced vaccines (actually no vaccines at all> would be my preference) and in turn; am a HUGE supporter of Ron > (for many other reasons BESIDES his stance on vaccines).> > At any rate I have a question: Is there a group to stop the codex> push as well as this group? Anway this is my introduction and thanks for> approving me.> > Be At Peace,> Deborah A Delp> Mother of:> (13, Mercury Toxic)> JR (10 VERY Mercury Toxic)> E-Mail Me @ vaccines_r_toxic@ ...> <mailto:vaccines_ r_toxic@. ..>> > Autism-Hope Website>

www.autism-hope. 150m.com <http://www.autism- hope.150m. com>> > Autism & Vaccinations> http://health. groups.. com/group/ autism_and_ vaccinations> <http://health. groups.. com/group/ autism_and_ vaccinations>> > PAVCS Central Pennsylvania> http://groups. / group/PAVCS_ Central_PA> <http://groups. / group/PAVCS_ Central_PA>> > MY SPACE>

http://www.myspace. com/ladygrace924> <http://www.myspace. com/ladygrace924>> > CafeMom> http://www.cafemom. com/home/ LadyGrace924> <http://www.cafemom. com/home/ LadyGrace924>> > > "It's Not Enough 2 act Like We Care;> > WE MUST CARE ENOUGH TO ACT...!!!">

[Guest guest]

Heidi,

For technical information, it might help to contact F Kennedy, Jr. go to his website and if you need more information regarding non thimerisol vaccines, he will know..he has been a life saver for us...he is an attorney for the environment but has worked continually to show the lies that the FDA and drug companies are still printing...specifically the scientist(docs) who wrote the last test reports on thimerisol....Bobby K pointed out that these Docs are former employees of the drug companies who make the vaccines...i went to CVS pharmacy and forced them to show me the vaccine and yes thimerisol is in their vaccines...Dr. Debbie Lang

[no-forced-vaccinat ion] Re: Introduction - Deborah DelpDate: Sun, 06 Jan 2008 20:33:45 -0000

Deborah, thank you for sharing your story with us. We need to hearfrom all the group members to understand better the plague of autism,learning disorders, etc. that appear to accompany the "public healthbenefits" that have been claimed for vaccination.Regarding your question about Codes, a couple months ago we asked thehundreds of thousands of people on the Natural Solutions FoundationeAlert list what health freedom issues concerned them the most. Byfar, Codex and forced drugging/vaccinatio ns were the main concerns.The main focus of Foundation activities will remain Codex, so thisforum was formed to cover the other main issue - forceddrugging/vaccinatio n. Please join or stay on the NSF eAlert system tocontinue receiving information about Codex and related issues. So, thank you for being active in these important issues!Ralph Fucetola JD,

Trustee>> > My name is Deborah Delp and I reside with my husband (20 years) and two> children in central PA. I have 2 beautiful childrenm my DD is 13 and is> cyber-schooled via PAVCS (www.pavcs.org <http://www.pavcs. org> ). She> was diagnosed in third grade with ADHD (a close cousin to Autism) and of> course the standard (though in many cases unwarrented) ODD. My DS was> diagnosed in 2000 ( at the age of three) with Austism. I later> discovered (June 2001) that what it truly was is mercury posioning. A> year later

(November 2001) he was also diagnosed with ADHD. He goes to> the best autism support program that I think Pennsylvania has to offer.> The school is called the VISTA school. Their website is:> www.thevistaschool. com <http://www.thevista school.com> .> > With our daughter we tried (with no success or adverse effects) two of> the standard treatments for ADHD. Concerta made her sad all the time> (the adverse effect being depression). Then we switched her to Adderall> with no beneficial (though no negatives either) results. She has since> been drug free. In addition to the ADHD diagnosis when she was 6 she was> diagnosed with allergies and at the age of 10 (2004) she was also> diagnosed with asthma. Our doctor told us then that the meds given to> her for the allergies is probably what triggered the

asthma as well.> > Our son takes nothing but supplements to help combat the effects of the> mercury posioning he received from his vaccinations. Between the> supplements and the programs at Vista he is getting so much better.> > I am a firm believer of no forced vaccines (actually no vaccines at all> would be my preference) and in turn; am a HUGE supporter of Ron > (for many other reasons BESIDES his stance on vaccines).> > At any rate I have a question: Is there a group to stop the codex> push as well as this group? Anway this is my introduction and thanks for> approving me.> > Be At Peace,> Deborah A Delp> Mother of:> (13, Mercury Toxic)> JR (10 VERY Mercury Toxic)> E-Mail Me @ vaccines_r_toxic@ ...> <mailto:vaccines_ r_toxic@. ..>> > Autism-Hope Website>

www.autism-hope. 150m.com <http://www.autism- hope.150m. com>> > Autism & Vaccinations> http://health. groups.. com/group/ autism_and_ vaccinations> <http://health. groups.. com/group/ autism_and_ vaccinations>> > PAVCS Central Pennsylvania> http://groups. / group/PAVCS_ Central_PA> <http://groups. / group/PAVCS_ Central_PA>> > MY SPACE>

http://www.myspace. com/ladygrace924> <http://www.myspace. com/ladygrace924>> > CafeMom> http://www.cafemom. com/home/ LadyGrace924> <http://www.cafemom. com/home/ LadyGrace924>> > > "It's Not Enough 2 act Like We Care;> > WE MUST CARE ENOUGH TO ACT...!!!">

[Guest guest]

Basically it tells me that I was not diagnosed for no good reason but that they were following guideline of one sort but not of another (if that makes sense).

Thanks for that Sheila, no information of dentists?

Luv nne

Does the following help nne? http://www.ganfyd.org/index.php?title=Thyroid_function_tests and http://www.bmj.com/cgi/content/full/326/7384/295

[Guest guest]

Thanks Bella, that is very helpful.

Luv nne

Hi nne,The injection that you should avoid if you have any sort of adrenal fatigue is the one with adrenaline in it. I have quite a severe reaction to adrenaline and you will know if you are the same. When I've had that injection in the past my heart rate increases, I feel dizzy, confused and faint.

[Guest guest]

Does the following help nne? http://www.ganfyd.org/index.php?title=Thyroid_function_tests and http://www.bmj.com/cgi/content/full/326/7384/295

[Guest guest]

I am not aware of any injections you should be avoiding by being hypothyroid nne. Somebody else may know this.

Luv - Sheila

I had to see my GP this morning and asked him why when the guidelines for TSH were 0.05 to 5, I had to wait until my levels went over 10 before I was given a diagnosis. He said that it would have been that my T4 was normal, I said but if your TSH was considered 'normal' that they would not test for T4 or T3. He looked at the computer, probably checking to see what they had tested for and just said, I don't know.

My question is, what exactly are the guidelines for diagnosing, is it that we have to have a problem with TSH, T4 & T3 or what, I am getting more and more confused with every day.

Also, I need to have dental treatment, there is and will not be any mercury involved so no problems there but I am not sure about what we can and cannot have being hypot as I have heard that we cannot have a general anaesthetic (don't know why and cannot find anything on the net) so can we have the normal pain killing injections at the dentist - I have to have 4 teeth out as my front teeth are crowned and they have made the teeth either side rot, I cannot go to my son's wedding looking like that LOL.

Thanks for any help, most appreciated.

Luv nne

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1211 - Release Date: 06/01/2008 11:57

[Guest guest]

Hi nne,

The injection that you should avoid if you have any sort of adrenal

fatigue is the one with adrenaline in it. I have quite a severe

reaction to adrenaline and you will know if you are the same. When

I've had that injection in the past my heart rate increases, I feel

dizzy, confused and faint.

It was simply a case of telling the Dentist that I had this problem

and she now has a note on my file that I mustn't be given that

injection. There is an alternative that doesn't contain adrenaline.

Hope this helps.

Also, I think the reason your GP made you wait so long for a

diagnosis is that they keep changing the ranges!

Luv Bella

>

> I had to see my GP this morning and asked him why when the

guidelines for

> TSH were 0.05 to 5, I had to wait until my levels went over 10

before I was

> given a diagnosis. He said that it would have been that my T4 was

normal, I said

> but if your TSH was considered 'normal' that they would not test

for T4 or

> T3. He looked at the computer, probably checking to see what

they had tested

> for and just said, I don't know.

>

> My question is, what exactly are the guidelines for diagnosing, is

it that

> we have to have a problem with TSH, T4 & T3 or what, I am getting

more and

> more confused with every day.

>

> Also, I need to have dental treatment, there is and will not be

any mercury

> involved so no problems there but I am not sure about what we can

and cannot

> have being hypot as I have heard that we cannot have a general

anaesthetic

> (don't know why and cannot find anything on the net) so can we

have the normal

> pain killing injections at the dentist - I have to have 4 teeth

out as my

> front teeth are crowned and they have made the teeth either side

rot, I cannot go

> to my son's wedding looking like that LOL.

>

> Thanks for any help, most appreciated.

>

> Luv nne

>

[Guest guest]

Hi nne,

My dentist says that I have to have a local anaesthetic without adrenaline - I think that is right, but certainly on these lines. This is probably adrenal connected.

Val

so can we have the normal pain killing injections at the dentist - I have to have 4 teeth out as my front teeth are crowned and they have made the teeth either side rot, I cannot go to my son's wedding looking like that LOL.Luv nne

[Guest guest]

That is one of the things we are fighting for - better education of doctors about thyroid. Putting signs and symptoms aside, it is pointless doing tests, having guidelines if doctors do not know how to interpret them properly.

Lilian

Basically it tells me that I was not diagnosed for no good reason but that they were following guideline of one sort but not of another (if that makes sense).

[Guest guest]

I thought that if I had a high TSH and all the symptoms that I had, not least the sudden massive weight gain, that it would be a forgone conclusion that I had hypoT but obviously not with the lack of knowledge, now I wonder what the difference was in my T4 from 2000 and 2005 when I finally got diagnosed, I think I will have to ask him for copies so that I can see absolutely what they were going by.

Luv nne

That is one of the things we are fighting for - better education of doctors about thyroid.

[Guest guest]

Hi nne,

I have had extensive dental treatment over my lifetime, much since I became

hypo. My dentist, who is a friend ( we’re both bikers) says that

despite proper cleaning my teeth are the second worst in the practice, breaking

and decaying at the slightest opportunity. I take 2.5 mg prednisolone every

other day along with my thyroid meds. I have no problems with the usual novocaine

injections. Earlier this year I had a tooth extracted whilst under waking intravenous

sedation. The specialist dentist who did this suggested that I double my pred

dose on the day of the surgery. It was very successful- I have no memory of the

procedure and it healed OK ( the drug used is of the same family as rohypnol).

I have also had surgery on my foot (

2 bones cut and realigned) again awake with a numbing injection ( I believe

this is strychnine!) and did the same doubling of the dose on the day of

surgery. Again no problems.

Also, I

need to have dental treatment, there is and will not be any mercury involved so

no problems there but I am not sure about what we can and cannot have being

hypot as I have heard that we cannot have a general anaesthetic (don't know why

and cannot find anything on the net) so can we have the normal pain killing

injections at the dentist - I have to have 4 teeth out as my front teeth are

crowned and they have made the teeth either side rot, I cannot go to my son's

wedding looking like that LOL.

Thanks

for any help, most appreciated.

Luv

nne

[Guest guest]

Mike - a lot of pertinent questions - first, we'll highlight them for Dr. Furman, our medical advisor

1. I cannot comment on the MS. Perhaps someone else, or Dr. Furman, can. I have no idea how the two would interact.

2. We all know by now that early, or premature, treatment has little effect on the course of the disease. Your disease appears to have stabilized. Your counts are OK, and I understand you are not losing weight any longer. Do you have a lot of lymphadenopathy? Have you had a CT scan? That's one thing you do not mention. Doctors I know begin treatment when symptoms call for it. One theory which supports this approach is that new things are coming out every day, and the more untreated you are the more eligible you might be for some of them.

3. The odds that you'll NEVER need anything are, in my opinion, low. However, the odds that you can lead a relatively normal and long life are quite good.

4. Impossible to say. I held off as long as I could, 2-1/2 years. Others hold off for a decade. Be aware that you are playing with a disease which is sneaky, insidious, and totally unpredictable. What finally led me to TX was anemia.

5. Again, impossible to say. As I said, you might well live a normal life span. We have people on this list who have had the disease for decades. Docs will swamp you with what are known as Kaplan-Meier curves, where they'll show you statistics of survival against time, depending on a variety of different factors. These are statistics, nothing more. I HATE Kaplan-Meier curves, they serve only to make patients nuts.

6. A CBC at least every six months, if not more often. A physical exam to look for nodes, and a scan if many nodes are found through palpation. A self observation of fatigue, sweats, weight, etc.

7. No. I do not believe anyone would suggest a transplant to you, given the current circumstances. Allos do not work very well for CLL anyway.

8. No. Don't make yourself crazy. I take the liberty of speaking like this because I am also a very nervous and intense patient, a frequent pain in the a-s with my doctors.

9. Again, I cannot include the MS factor. TX is usually started with some combination of Fludarabine, Cytoxan, and Rituxan. This TX has shown itself to be very effective.

I'm sure you'll get other responses and opinions.

Best,

In a message dated 1/29/2008 5:27:32 PM Eastern Standard Time, mmcgivern@... writes:

I've had CLL/Sll for slightly over three years. Everything is quiet now, except for occasional night sweats, although my first hemotologist/oncologist wanted to start me on chemo when the illness was first diagnosed, about one year after the symptoms had started, due to the nightsweats (which were more severe then) and about a 20 pound weight loss. I'm 55 now, and was discovered to have trisomy 12. My white, red, and platelet counts are presently normal.

My current hemotologist/oncologist, Dr. Tallman at Northwestern, is a great doctor and a good man. However, I sometimes feel that he wants to shield me so that I don't become a nervous wreck. I do have a high strung kind of personality.

Here are some questions I have:

1) Because I have multiple sclerosis, how would that affect my treatment if and when I need to start chemo?

2) Would it make any sense to start some sort of treatment, not chemo, before my disease gets more active?

3) What are the odds that I'll never need chemo and lead a relatively normal life?

4) My disease first manifested itself in October 2004, although I wasn't diagnosed until August 2005. What are the odds that I'll be needing treatment sooner rather than later?

5) From the start of chemo, how long does the average patient live, and how many bouts of chemo do you generally go through before the end?

6) If you were me, what tests and treatment would you insist on?

7) What's the most aggressive treatment that I could presently undergo, e.g., "mini-allo" stem cell transplant? (To Dr. Tallman: Do you have experience doing this procedure?) Would it make sense to pursue such treatment now when I'm healthy rather than wait for the disease to manifest itself? Of course, this gets back to how likely the disease will manifest itself, and given my age even if the treatment is successfulwould it meaningfully increase my longevity? Discuss...

8) Notwithstanding my current apparent health, should we redo a FISH test, as well as ckeck for my current CD 38 expression, and a possible ZAP-70 test?

9) If I have do undergo chemo (is "when" a better way to put it?), what drugs would I likely start me on (remember, I have M.S.)?

Thanks.

Mike McGivern

mmcgivern@...

Start the year off right. Easy ways to stay in shape in the new year.

[Guest guest]

The Rhogam shot is for the + or - part of the blood type. Because you are B-

and your husband is O+, there is a chance you could have a child who is

either... B-, B+, O-, O+. Its been a loooong time since I've read anything more

about it though, so perhaps one of the other members can explain why its

needed. (I'm - and so is dh, so I've not had one since my oldest was born 13

years

ago - I didn't know better)

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

I believe this depends on if you are a BB or a BO. Your husband is an O so he

has two O's, and can only pass O's down. If you are a BO, you could pass down

the O. That would give you an O child. I don't think the minus or plus makes a

difference.

Winnie

Questions

Vaccinations

> I am 11 weeks pregnant and decided not to get Rhogam this time

> around.

> I do wonder however if I could even have a child that is

> anything other

> than B-. I have 3 children and they are all B- just like me.

> My

> husband is O+. Does anybody understand/know if it is even

> possible for

> me to have a child that would not be B-.

>

> Also, I have read a bit about metal fillings in your teeth not

> being

> healthy. I don't have any fillings but I do have a perminant

> retainer

> behind my bottom teeth. Should I get this removed?

>

> I really do appreciate all of the information I get from this

> network

> of people helping with questions and posting helpful links.

>

> Adelyn

>

>

[Guest guest]

At 02:40 AM 2/19/2008 EST, you wrote:

>The Rhogam shot is for the + or - part of the blood type. Because you are

B-

>and your husband is O+, there is a chance you could have a child who is

>either... B-, B+, O-, O+. Its been a loooong time since I've read anything

more

>about it though, so perhaps one of the other members can explain why its

>needed. (I'm - and so is dh, so I've not had one since my oldest was born

13 years

>ago - I didn't know better)

See my webpages

http://www.wellwithin1.com/rhogam.htm

>

--------------------------------------------------------

Sheri Nakken, former R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

Voicemail US 530-740-0561

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm or

http://www.wellwithin1.com/vaccine.htm

Vaccine Dangers On-Line courses - http://www.wellwithin1.com/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line courses - http://www.wellwithin1.com/homeo.htm

NEXT CLASSES start by email February 13 & 14

[Guest guest]

adelynwithers wrote:

>I am 11 weeks pregnant and decided not to get Rhogam this time around.

>I do wonder however if I could even have a child that is anything other

>than B-. I have 3 children and they are all B- just like me. My

>husband is O+.

>

I'm sure you've already taken a gander at Sheri's pages and pages of

info on Rhogam, but wanted to let you know that even if you were

considering the rhogam shot, if ALL your previous pregnancies resulted

in - babies, then there would be no need for the shot until after you

deliver your first + baby. According to the way they used to

teach/explain Rh- factor, it was the + baby in the mother with - blood

that started up the reaction. This reaction would only affect future

pregnancies.

That being said, I would in NO way recommend the shot *at all*! I think

it's a bunch of crap how they're pushing it on all - mothers, regardless

of the father's blood type, AND they're pushing it while pregnant as

well as afterwards. Over kill and $, if you ask me. In Europe, for the

most part, they still do it the way it was done in the late 60's and

70's here in the US.

I only wrote the first paragraph so you could have some piece of mind

just in case you're still on the fence about the shot. I, personally,

would stay a million miles away from that shot *at all costs*!

Just my $.02,

Bobbett

[Guest guest]

It is VERY possible for you to have a child that isn't B-. The way

the blood typing works is simple. You have two genes that make your

blood type and you get one from each parent you are either B0 or BB

(likely BB if all your kids are and -- blood type. B is dominant

over O so when they tell you your blood type they only say the B part

same with + being dominant over -.

When you get pregnant you pass along one of those genes to the child.

Your husband then steps in and gives the other gene and since he is

O+ then he is OO and either +- or ++ (since all your kids so far are

B- then he has to be +-). The possiblities for your children's blood

type are as follows BO or OO and -- or +- making their actual blood

type either B+, B-, O+, or O-.

That being said do not worry about the Rhogam thing. Do a little

research on Rhogam and you will see that it really is not needed often

during pregnancy because it only comes into play if your blood mixes

with the child's. There is a greater chance during delivery, but it

is still very low and at that point you have I beleive 72 hours to get

the shot before it is too late. Also the blood mixing during delivery

does not affect that chlid, but could affect any child there after if

your blood mixes during pregnancy.

My midwife insisted I get the Rhogam while pregnant the first time

because I couldn't gurantee my DH was the father of my child! I had a

terrible reaction and my son ended up being O- (I am O- too). I had

to switch to a different doc with #2 due to insurance and she gladly

did the test on my DH and simply made me sign a form saying I

understood the risks and refused the shot after we found out my DH is

O- too! Our children can only be O- so I don't have to worry about it.

Good luck and do a little web research on blood types and Rhogam to

reassure yourself.

>

> I am 11 weeks pregnant and decided not to get Rhogam this time around.

> I do wonder however if I could even have a child that is anything other

> than B-. I have 3 children and they are all B- just like me. My

> husband is O+. Does anybody understand/know if it is even possible for

> me to have a child that would not be B-.

>

> Also, I have read a bit about metal fillings in your teeth not being

> healthy. I don't have any fillings but I do have a perminant retainer

> behind my bottom teeth. Should I get this removed?

>

> I really do appreciate all of the information I get from this network

> of people helping with questions and posting helpful links.

>

> Adelyn

>

[Guest guest]

What do you want to know? I had mine last May.Judy Ferland Colorado

Joint Replacement From: cherriepiesh@...Date: Mon, 10 Mar 2008 14:17:47 -0700Subject: questions

I am suppose to have a knee replacement would like topeople that have had thissherry h__________________________________________________________Never miss a thing. Make your home page. http://www./r/hs

[Guest guest]

Hi really just want to know how bad is it

afterwards and was it worth it my knee is bone to bone

and have problems for a long time really constant pain

but also think I will have to do the other one after

because have wore it out carrying the other leg kinda

scared to do it but would like to be without pain 27/7

any advice comments would be nice thank you Sherry

--- RAYMOND L FERLAND <rayjferland@...> wrote:

>

> What do you want to know? I had mine last May.Judy

> Ferland Colorado

>

>

> Joint Replacement@...:

> cherriepiesh@...: Mon, 10 Mar 2008

> 14:17:47 -0700Subject:

> questions

>

>

>

>

> I am suppose to have a knee replacement would like

> topeople that have had thissherry

>

h__________________________________________________________Never

> miss a thing. Make your home page.

> http://www./r/hs

>

>

>

>

>

>

sherry h

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Sherry,

It does hurt after the surgery, considerably, but it's also so worth it. I was limping constantly and always in pain and without energy because it exhausted me before and now I am pain free. I mean occasionally I still get a little stiffness but I can walk for 10 hours (Disney World less than a year after surgery) and it's no big deal. My feet wear out before my knee now.

It's really doable - the recovery I mean. It gets better each day and even at two months post-op you will find yourself walking like you haven't in years.

> questions> > > > > I am suppose to have a knee replacement would like> topeople that have had thissherry>h__________________________________________________________Never> miss a thing. Make your home page.> http://www./r/hs > > > > > > sherry h__________________________________________________________Never miss a thing. Make your home page. http://www./r/hs