Questions

[Guest guest]

Have a lawyer...

In a message dated 1/23/2010 10:36:30 A.M. Mountain Standard Time,

borlan9191962@... writes:

Good Afternoon Group.

I have a question for the group members who have experience with Social

Security Disability. I am at the 2nd stage-reconsideratiI have a question for

the group members who have experience with Social Security Disability. I

am at the 2nd stage-reconsiderati<WB

I filed originally due to many spinal issues as well as a compromised

liver and severe drug sensitivity (can't take pain meds. or hardly any other

meds.). My Orthopedists says I am not a candidate for surgery. He wrote and

submitted a narrative to SS stating that I am disabled permananly and why. I

have other issues such as severe arthritis in hands and knees, etc.

How should I handle this appointment.How should I handle this

appointment.<WBR>? Should I bring up issues or just answer their direct

questions? Is

there anything I should or shouldn't do?

I'm sure there are many out there who are now or will be going through

this same situation. Disability veterans we need your expert advice.

Thanks,

Jane H.

[Guest guest]

Have a lawyer...

In a message dated 1/23/2010 10:36:30 A.M. Mountain Standard Time,

borlan9191962@... writes:

Good Afternoon Group.

I have a question for the group members who have experience with Social

Security Disability. I am at the 2nd stage-reconsideratiI have a question for

the group members who have experience with Social Security Disability. I

am at the 2nd stage-reconsiderati<WB

I filed originally due to many spinal issues as well as a compromised

liver and severe drug sensitivity (can't take pain meds. or hardly any other

meds.). My Orthopedists says I am not a candidate for surgery. He wrote and

submitted a narrative to SS stating that I am disabled permananly and why. I

have other issues such as severe arthritis in hands and knees, etc.

How should I handle this appointment.How should I handle this

appointment.<WBR>? Should I bring up issues or just answer their direct

questions? Is

there anything I should or shouldn't do?

I'm sure there are many out there who are now or will be going through

this same situation. Disability veterans we need your expert advice.

Thanks,

Jane H.

[Guest guest]

I'm a coco water fan but out here its expensive! Where do you get yours from?

Sent via BlackBerry by AT & T

Questions

Hi,

My name is Pamela and I am practically addicted to coconut water. In less

than 6 weeks on it, I have improved my blood sugar levels, my A1c reading,

my cholesterol levels, my blood pressure, my energy level, my attitude and,

last but not least, beat a flu in 24-hours that debilitated two friends for

10 days each!

I want to learn everything I can about raw coconuts and there are some gaps

in my coconut-education. I am looking for answers to the following

coconut-related questions:

1. Have coconuts actually been used intravenously? If so - when and

where? How (trocar directly in coconut or drained and then put in IV bags)?

Which coconuts?

2. How many types of coconuts are there? Green, brown, white, etc.?

(Boy, the white ones are hard to open!)

3. Are all coconuts equal in nutritional value?

4. Is the pink/purple mold harmful, helpful, or neither?

5. Does adding lime to the coconut enrich the nutrition or is it a

Jamaican-urban-legend?

6. How can you tell when the Thai coconuts have been sprayed with

formaldehyde (it is to prevent mold)?

7. Are there any educational books on coconuts?

I am interested in any info on coconuts you would like to share. I

Best Regards,

Pamela

[Guest guest]

> 5. Does adding lime to the coconut enrich the nutrition or is it a

Jamaican-urban-legend?

Mix that with Jamaican white rum..and seriously,who cares ? LOL

Where do you get the coconut water..most find it hard to get. Id have it

everyday if i could get it fresh and not expensive.

[Guest guest]

I am surprised coconut water helped with your blood sugar as coconut

water has lots of carbs.

Coconut water was used for IV during WW-II in the pacific by US military.

I throw out any coconuts with mold.

Alobar

On Mon, May 3, 2010 at 1:45 PM, pam <cocapf@...> wrote:

>

> Hi,

>

>

>

> My name is Pamela and I am practically addicted to coconut water. In less

> than 6 weeks on it, I have improved my blood sugar levels, my A1c reading,

> my cholesterol levels, my blood pressure, my energy level, my attitude and,

> last but not least, beat a flu in 24-hours that debilitated two friends for

> 10 days each!

>

>

>

> I want to learn everything I can about raw coconuts and there are some gaps

> in my coconut-education. I am looking for answers to the following

> coconut-related questions:

>

>

>

> 1.       Have coconuts actually been used intravenously? If so - when and

> where? How (trocar directly in coconut or drained and then put in IV bags)?

> Which coconuts?

>

> 2.       How many types of coconuts are there? Green, brown, white, etc.?

> (Boy, the white ones are hard to open!)

>

> 3.       Are all coconuts equal in nutritional value?

>

> 4.       Is the pink/purple mold harmful, helpful, or neither?

>

> 5.       Does adding lime to the coconut enrich the nutrition or is it a

> Jamaican-urban-legend?

>

> 6.       How can you tell when the Thai coconuts have been sprayed with

> formaldehyde (it is to prevent mold)?

>

> 7.       Are there any educational books on coconuts?

>

>

>

> I am interested in any info on coconuts you would like to share. I

>

>

>

>

>

> Best Regards,

> Pamela

>

[Guest guest]

I buy fresh Thai coconuts. They are in the Asian markets and most health

food stores ($1-2 each). I pop them open and stick a straw into them. I

don't buy packaged coconut water because it is pasteurized and usually has

sugar in it. I like the raw/natural coconut water.

Best Regards,

Pamela Coca

949.495.5347

From: Coconut Oil

[mailto:Coconut Oil ] On Behalf Of k8teeth

Sent: Monday, May 03, 2010 10:56 PM

Coconut Oil

Subject: Re: Questions

> 5. Does adding lime to the coconut enrich the nutrition or is it a

Jamaican-urban-legend?

Mix that with Jamaican white rum..and seriously,who cares ? LOL

Where do you get the coconut water..most find it hard to get. Id have it

everyday if i could get it fresh and not expensive.

[Guest guest]

The best price is at Asian grocery stores. Usually about $1 each. Look for

the young Thai coconuts - the husk has been trimmed to a flat bottom, round

sides and a pointed top. Check the bottom of each one for: pink or purple

spots, large cracks, sogginess - all signs of a bad coconut. Save your

receipts. Even if you pick carefully, you will get 1 in every 5 that is bad.

So next time you buy them, show your receipt and get the bad ones replaced.

They take 6-8 weeks to ship to the US from Thailand so there are always

going to be some bad ones.

Best Regards,

Pamela Coca

949.495.5347

From: Coconut Oil

[mailto:Coconut Oil ] On Behalf Of

cocheesie420@...

Sent: Monday, May 03, 2010 10:17 PM

Coconut Oil

Subject: Re: Questions

I'm a coco water fan but out here its expensive! Where do you get yours

from?

Sent via BlackBerry by AT & T

Questions

Hi,

My name is Pamela and I am practically addicted to coconut water. In less

than 6 weeks on it, I have improved my blood sugar levels, my A1c reading,

my cholesterol levels, my blood pressure, my energy level, my attitude and,

last but not least, beat a flu in 24-hours that debilitated two friends for

10 days each!

I want to learn everything I can about raw coconuts and there are some gaps

in my coconut-education. I am looking for answers to the following

coconut-related questions:

1. Have coconuts actually been used intravenously? If so - when and

where? How (trocar directly in coconut or drained and then put in IV bags)?

Which coconuts?

2. How many types of coconuts are there? Green, brown, white, etc.?

(Boy, the white ones are hard to open!)

3. Are all coconuts equal in nutritional value?

4. Is the pink/purple mold harmful, helpful, or neither?

5. Does adding lime to the coconut enrich the nutrition or is it a

Jamaican-urban-legend?

6. How can you tell when the Thai coconuts have been sprayed with

formaldehyde (it is to prevent mold)?

7. Are there any educational books on coconuts?

I am interested in any info on coconuts you would like to share. I

Best Regards,

Pamela

[Guest guest]

Hi,

My son is now eight and had his surgery nearly two years ago. Time does fly.

His hearing was better before the surgery, so he know wears a hearing aid. It

makes such a difference to his life. He also uses an FM system in school. The

teacher wears a microphone, and it feeds straight into the hearing aid. I

My son, hasn't had any issues with learning to read, so I can't comment there.

He wasn't too bad about the anaesthetic. The main issue was with the IV. He

tried to pull it out, but we explained it to him and he calmed down. He didn't

care about the bandage around his head, he was too worried about the IV.

Is there a sedative that they can give her after the op? I am not sure if it is

possible, but I would ask the surgeon to see what they can do.

>

> My seven year old daughter has cholesteatomas in both ears. Her hearing is

very poor. She is scheduled to have surgery in the next month or so. I was

wondering if any of you have had problems with hearing after surgery and what

types of devices you use to help you? My daughter has also not learned to read.

I am thinking it is because she can not hear the sounds clearly enough to be

able to learn to read. Have any of you experienced this with your children.

Another question I was also wondering how your children tolerated waking up for

anesthesia. The past three times she has been under anesthesia she has came out

of it angry. pulling out IVs and throwing anything in sight. The nurses are

very rude and firm with her refusing to take off her IVs and any other devices

that she wants immediately removed. She then will pull them out herself. I know

that nurses are just doing there jobs but I as a parent do not know how to

handle this. Allyssa will throw a two to three hour tantrum after her surgery

until she falls asleep in exhaustion. This will be her worst surgery yet and I

am dreading the after math of this one. I am afraid she sill hurt her self

worse when she can not remove the bandage on her ear. I know this is alot of

questions and I do not know anyone that has this diease to talk to.

> from Redding, California

>

[Guest guest]

Hi

My 6yo had his 2nd surgery to remove ctoma on March 3. His hearing has been worse after each surgery. He is getting his hearing aid & FM in July, we are all very excited about it.

Because he has hearing loss in one ear only, his reading has developed well. But it would be very difficult with hearing loss in both ears. I know that depending on the level of loss certain sounds can't be heard at all! Hopefully when she has recovered she will be able to get aids & extra help from her teacher & catch up with her reading skills. My advice as a teacher of chn of this age is to read to her as much as possible. The same sex parent is the greatest influence, so let her see you reading also. Her school should be able to give you lots of tips to help.

Joe wakes up vomiting a lot after surgery, even short ones. I phoned the anaesthesiologist before the surgery to ask whether anything could be done (It is the worst part of the surgery for him). This last surgery he didn't vomit at all! I know this is very different, but they should be aware of the different affects . Make sure he/she knows & request that the nurses in recovery are also aware. It is not just a case of bad behaviour - good luck

Donna

From: amandawood03 <amandawood03@...>cholesteatoma Sent: Tue, 15 June, 2010 7:24:10 AMSubject: Questions

My seven year old daughter has cholesteatomas in both ears. Her hearing is very poor. She is scheduled to have surgery in the next month or so. I was wondering if any of you have had problems with hearing after surgery and what types of devices you use to help you? My daughter has also not learned to read. I am thinking it is because she can not hear the sounds clearly enough to be able to learn to read. Have any of you experienced this with your children. Another question I was also wondering how your children tolerated waking up for anesthesia. The past three times she has been under anesthesia she has came out of it angry. pulling out IVs and throwing anything in sight. The nurses are very rude and firm with her refusing to take off her IVs and any other devices that she wants immediately removed. She then will pull them out herself. I know that nurses are just doing there jobs but I as a parent do not know how to handle this. Allyssa will throw a

two to three hour tantrum after her surgery until she falls asleep in exhaustion. This will be her worst surgery yet and I am dreading the after math of this one. I am afraid she sill hurt her self worse when she can not remove the bandage on her ear. I know this is alot of questions and I do not know anyone that has this diease to talk to. from Redding, California

[Guest guest]

,

I understand that she may not be aware of what she is doing when she

comes out of the anesthesia, but try talking to your daughter before the

surgery and let her know what she will be feeling like and tell her how

important it is for her to wake up and remain calm - explain the IV's,

etc.. Maybe somewhere in her subconscious you will be able to remind

her of that conversation when she wakes up. Also, be sure you discuss

your concerns with the anesthesiologist.

My daughter had dyslexia and didn't learn to read until she was 11 or

12. She does fine now (she is 21) and you would never know she had a

problem. There can be many things that affect reading. The first thing

to do is to get the physical issues taken care of. Then if she is still

having problems you can begin looking into other issues. Don't panic.

I know at age 7 she is behind the other children, but she still has

plenty of time to catch up. Once they start reading they progress very

quickly. I've since received training for reading remediation and have

tutored many children and adults. The " trick " is to find the specific

problem she is having, everyone is different. I wouldn't be too

concerned until you get the hearing situation resolved. Feel free to

email me specific questions about reading and I will try to answer.

You can find more information about my situation here:

http://www.clarkresourcecenter.com (It's still under construction and I

haven't had much time to put into the web site - let me know if anything

glitches. I hope it is ok to post the link.)

Jan

> My seven year old daughter has cholesteatomas in both ears. Her

> hearing is very poor. She is scheduled to have surgery in the next

> month or so. I was wondering if any of you have had problems with

> hearing after surgery and what types of devices you use to help you?

> My daughter has also not learned to read. I am thinking it is because

> she can not hear the sounds clearly enough to be able to learn to

> read. Have any of you experienced this with your children. Another

> question I was also wondering how your children tolerated waking up

> for anesthesia. The past three times she has been under anesthesia she

> has came out of it angry. pulling out IVs and throwing anything in

> sight. The nurses are very rude and firm with her refusing to take off

> her IVs and any other devices that she wants immediately removed. She

> then will pull them out herself. I know that nurses are just doing

> there jobs but I as a parent do not know how to handle this. Allyssa

> will throw a two to three hour tantrum after her surgery until she

> falls asleep in exhaustion. This will be her worst surgery yet and I

> am dreading the after math of this one. I am afraid she sill hurt her

> self worse when she can not remove the bandage on her ear. I know this

> is alot of questions and I do not know anyone that has this diease to

> talk to.

> from Redding, California

[Guest guest]

Thank you for sharing your experiences with me.  My Daughters   doctor said that her hearing would improve after the surgery but that he would be removing most of the bones in her ears because of where the cholesteatoma has destroyed them.  Form your experiences I am not sure this will be the case.  The cholesteatoma on her left side is huge and she will have another surgery to reconstruct her ear.  The doctor said sometimes the skin will grow over the reconstruction and she may be  able to hear again. I hope he is right. 

On Tue, Jun 15, 2010 at 4:18 AM, <clarkdq@...> wrote:

 

,

I understand that she may not be aware of what she is doing when she

comes out of the anesthesia, but try talking to your daughter before the

surgery and let her know what she will be feeling like and tell her how

important it is for her to wake up and remain calm - explain the IV's,

etc.. Maybe somewhere in her subconscious you will be able to remind

her of that conversation when she wakes up. Also, be sure you discuss

your concerns with the anesthesiologist.

My daughter had dyslexia and didn't learn to read until she was 11 or

12. She does fine now (she is 21) and you would never know she had a

problem. There can be many things that affect reading. The first thing

to do is to get the physical issues taken care of. Then if she is still

having problems you can begin looking into other issues. Don't panic.

I know at age 7 she is behind the other children, but she still has

plenty of time to catch up. Once they start reading they progress very

quickly. I've since received training for reading remediation and have

tutored many children and adults. The " trick " is to find the specific

problem she is having, everyone is different. I wouldn't be too

concerned until you get the hearing situation resolved. Feel free to

email me specific questions about reading and I will try to answer.

You can find more information about my situation here:

http://www.clarkresourcecenter.com (It's still under construction and I

haven't had much time to put into the web site - let me know if anything

glitches. I hope it is ok to post the link.)

Jan

> My seven year old daughter has cholesteatomas in both ears. Her

> hearing is very poor. She is scheduled to have surgery in the next

> month or so. I was wondering if any of you have had problems with

> hearing after surgery and what types of devices you use to help you?

> My daughter has also not learned to read. I am thinking it is because

> she can not hear the sounds clearly enough to be able to learn to

> read. Have any of you experienced this with your children. Another

> question I was also wondering how your children tolerated waking up

> for anesthesia. The past three times she has been under anesthesia she

> has came out of it angry. pulling out IVs and throwing anything in

> sight. The nurses are very rude and firm with her refusing to take off

> her IVs and any other devices that she wants immediately removed. She

> then will pull them out herself. I know that nurses are just doing

> there jobs but I as a parent do not know how to handle this. Allyssa

> will throw a two to three hour tantrum after her surgery until she

> falls asleep in exhaustion. This will be her worst surgery yet and I

> am dreading the after math of this one. I am afraid she sill hurt her

> self worse when she can not remove the bandage on her ear. I know this

> is alot of questions and I do not know anyone that has this diease to

> talk to.

> from Redding, California

[Guest guest]

Why aren't you going to Fred Hutchinson? It is one of the BEST

CLL treatment centres.

www.fhcrc.org/

~chris

>

> My current oncon is leaving and I am not sure who will be his replacement. A

year ago he suggested being referred to the University of Washington for

consulting. He didn't mention it again although we have asked (husband). I am

58 and the current doctor thinks I have had this for about four years. I go next

week for my last appointment with him. What questions should I be asking?

> I ordered the book that was suggested here but so far it has not arrived. Does

it take longer than a month?

> Advice and or suggestions.

> Here are my last test results. Is there questions I should be asking?? denise

> WBC 42.0 4.0-10.7 K/uL HH

> RBC 4.45 3.6-5.0 10*6

> HEMOGLOBIN 13.5 11.4-15.5 GM/DL

> HEMATOCRIT 42 36-46 %

> MCV 94 80-98

> MCH 30 27-34

> MCHC 33 33-37 %

> RDW 12.7 8.0-18.5

> PLATELET COUNT 285 140-450 10*3

> Neutrophils, Absolute 2.00-7.30 K/uL

> Lymphocytes, Absolute 1.00-3.40 K/uL

> MONOCYTES, ABSOLUTE 0.00-0.80 K/uL

> Eosinophils, Absolute 0.0-0.5 K/ul

> Basophils, Absolute 0.0-0.2 K/uL

> NRBC/100WBC

>

[Guest guest]

That's what I want to know too! We asked a year ago when I first found out I had

this. The doc mentioned it and then no more about it. He is leaving and I will

have to deal with a new doc. That's what I'd like to know how do you get

referrals to these places? Do you just pay for it yourself if your insurance

doesn't give their okay?

denise

> >

> > My current oncon is leaving and I am not sure who will be his replacement. A

year ago he suggested being referred to the University of Washington for

consulting. He didn't mention it again although we have asked (husband). I am

58 and the current doctor thinks I have had this for about four years. I go next

week for my last appointment with him. What questions should I be asking?

> > I ordered the book that was suggested here but so far it has not arrived.

Does it take longer than a month?

> > Advice and or suggestions.

> > Here are my last test results. Is there questions I should be asking??

denise

> > WBC 42.0 4.0-10.7 K/uL HH

> > RBC 4.45 3.6-5.0 10*6

> > HEMOGLOBIN 13.5 11.4-15.5 GM/DL

> > HEMATOCRIT 42 36-46 %

> > MCV 94 80-98

> > MCH 30 27-34

> > MCHC 33 33-37 %

> > RDW 12.7 8.0-18.5

> > PLATELET COUNT 285 140-450 10*3

> > Neutrophils, Absolute 2.00-7.30 K/uL

> > Lymphocytes, Absolute 1.00-3.40 K/uL

> > MONOCYTES, ABSOLUTE 0.00-0.80 K/uL

> > Eosinophils, Absolute 0.0-0.5 K/ul

> > Basophils, Absolute 0.0-0.2 K/uL

> > NRBC/100WBC

> >

>

[Guest guest]

My child also wakes up from anesthesia very wild and very angry. I am

sorry your nurses have been rude. I would approach this with the

anesthesiologist. This is what we did. We got a great response and

extra personnel to help with her when she woke up from the next two

surgeries. I think everyone being aware that she will be ready to pull

out IV's lets them be prepared to deal with the whole situation. I

would also talk with her many times before so she knows. My daughter

did best with the sound of my voice as soon as possible. I spoke calm

but in my firm mother voice and said her name over and over and reminded

her she had surgery and that she was ok. This seems silly but really

worked well. I also said look at my eyes. You are ok. I repeated many

times. Another thing, rest easy, this is the best response for a child.

If they are not angry, that is when the anesthesiologist normally gets

worried.

Best of luck.

Melinda W. Lindberg

Ray Trucking

864-277-5234

Re: Questions

Thank you for sharing your experiences with me. My Daughters doctor

said that her hearing would improve after the surgery but that he would

be removing most of the bones in her ears because of where the

cholesteatoma has destroyed them. Form your experiences I am not sure

this will be the case. The cholesteatoma on her left side is huge and

she will have another surgery to reconstruct her ear. The doctor said

sometimes the skin will grow over the reconstruction and she may be

able to hear again. I hope he is right.

On Tue, Jun 15, 2010 at 4:18 AM, <clarkdq@...

<mailto:clarkdq@...> > wrote:

,

I understand that she may not be aware of what she is doing when

she

comes out of the anesthesia, but try talking to your daughter

before the

surgery and let her know what she will be feeling like and tell

her how

important it is for her to wake up and remain calm - explain the

IV's,

etc.. Maybe somewhere in her subconscious you will be able to

remind

her of that conversation when she wakes up. Also, be sure you

discuss

your concerns with the anesthesiologist.

My daughter had dyslexia and didn't learn to read until she was

11 or

12. She does fine now (she is 21) and you would never know she

had a

problem. There can be many things that affect reading. The first

thing

to do is to get the physical issues taken care of. Then if she

is still

having problems you can begin looking into other issues. Don't

panic.

I know at age 7 she is behind the other children, but she still

has

plenty of time to catch up. Once they start reading they

progress very

quickly. I've since received training for reading remediation

and have

tutored many children and adults. The " trick " is to find the

specific

problem she is having, everyone is different. I wouldn't be too

concerned until you get the hearing situation resolved. Feel

free to

email me specific questions about reading and I will try to

answer.

You can find more information about my situation here:

http://www.clarkresourcecenter.com

<http://www.clarkresourcecenter.com> (It's still under construction and

I

haven't had much time to put into the web site - let me know if

anything

glitches. I hope it is ok to post the link.)

Jan

> My seven year old daughter has cholesteatomas in both ears.

Her

> hearing is very poor. She is scheduled to have surgery in the

next

> month or so. I was wondering if any of you have had problems

with

> hearing after surgery and what types of devices you use to

help you?

> My daughter has also not learned to read. I am thinking it is

because

> she can not hear the sounds clearly enough to be able to learn

to

> read. Have any of you experienced this with your children.

Another

> question I was also wondering how your children tolerated

waking up

> for anesthesia. The past three times she has been under

anesthesia she

> has came out of it angry. pulling out IVs and throwing

anything in

> sight. The nurses are very rude and firm with her refusing to

take off

> her IVs and any other devices that she wants immediately

removed. She

> then will pull them out herself. I know that nurses are just

doing

> there jobs but I as a parent do not know how to handle this.

Allyssa

> will throw a two to three hour tantrum after her surgery until

she

> falls asleep in exhaustion. This will be her worst surgery yet

and I

> am dreading the after math of this one. I am afraid she sill

hurt her

> self worse when she can not remove the bandage on her ear. I

know this

> is alot of questions and I do not know anyone that has this

diease to

> talk to.

> from Redding, California

[Guest guest]

I'm in Canada (Vancouver) and I don't know the specific ins and outs of the

U.S. medical insurance.

As I understand it, you can only go to hospitals that your insurer approves? I

would

contact Fred Hutch and find out how to get a referral there and see who their

insurers

are.

I'm sure someone on this list could be of help to you. Since your doc is leaving

might be a good time to make the move

~chris

> > >

> > > My current oncon is leaving and I am not sure who will be his replacement.

A year ago he suggested being referred to the University of Washington for

consulting. He didn't mention it again although we have asked (husband). I am

58 and the current doctor thinks I have had this for about four years. I go next

week for my last appointment with him. What questions should I be asking?

> > > I ordered the book that was suggested here but so far it has not arrived.

Does it take longer than a month?

> > > Advice and or suggestions.

> > > Here are my last test results. Is there questions I should be asking??

denise

> > > WBC 42.0 4.0-10.7 K/uL HH

> > > RBC 4.45 3.6-5.0 10*6

> > > HEMOGLOBIN 13.5 11.4-15.5 GM/DL

> > > HEMATOCRIT 42 36-46 %

> > > MCV 94 80-98

> > > MCH 30 27-34

> > > MCHC 33 33-37 %

> > > RDW 12.7 8.0-18.5

> > > PLATELET COUNT 285 140-450 10*3

> > > Neutrophils, Absolute 2.00-7.30 K/uL

> > > Lymphocytes, Absolute 1.00-3.40 K/uL

> > > MONOCYTES, ABSOLUTE 0.00-0.80 K/uL

> > > Eosinophils, Absolute 0.0-0.5 K/ul

> > > Basophils, Absolute 0.0-0.2 K/uL

> > > NRBC/100WBC

> > >

> >

>

[Guest guest]

My goodness, it should take a couple of days. Call 800 500 9097, ask for Izumi, tell her Balan asks for her help to send you the Red Book pronto.

Your numbers are just fine. Stay on watch and wait. There appears to be no need for treatment unless you have huge lymph nodes or are feeling ill.

You should get a blood test every six months to see if things are changing. You should report frequent infections.

A good place to be in Washington is the Fred Hutchinson Cancer Center in Seattle. Dr. Maloney.

In a message dated 6/15/2010 6:11:42 P.M. Eastern Daylight Time, denickite@... writes:

My current oncon is leaving and I am not sure who will be his replacement. A year ago he suggested being referred to the University of Washington for consulting. He didn't mention it again although we have asked (husband). I am 58 and the current doctor thinks I have had this for about four years. I go next week for my last appointment with him. What questions should I be asking? I ordered the book that was suggested here but so far it has not arrived. Does it take longer than a month? Advice and or suggestions. Here are my last test results. Is there questions I should be asking?? denise WBC 42.0 4.0-10.7 K/uL HHRBC 4.45 3.6-5.0 10*6 HEMOGLOBIN 13.5 11.4-15.5 GM/DL HEMATOCRIT 42 36-46 % MCV 94 80-98 MCH 30 27-34 MCHC 33 33-37 % RDW 12.7 8.0-18.5 PLATELET COUNT 285 140-450 10*3 Neutrophils, Absolute 2.00-7.30 K/uL Lymphocytes, Absolute 1.00-3.40 K/uL MONOCYTES, ABSOLUTE 0.00-0.80 K/uL Eosinophils, Absolute 0.0-0.5 K/ul Basophils, Absolute 0.0-0.2 K/uL NRBC/100WBC

[Guest guest]

- get your GP to refer you to Fred Hutch. Better then U of Wash.

In a message dated 6/15/2010 8:02:12 P.M. Eastern Daylight Time, denickite@... writes:

That's what I want to know too! We asked a year ago when I first found out I had this. The doc mentioned it and then no more about it. He is leaving and I will have to deal with a new doc. That's what I'd like to know how do you get referrals to these places? Do you just pay for it yourself if your insurance doesn't give their okay?denise> >> > My current oncon is leaving and I am not sure who will be his replacement. A year ago he suggested being referred to the University of Washington for consulting. He didn't mention it again although we have asked (husband). I am 58 and the current doctor thinks I have had this for about four years. I go next week for my last appointment with him. What questions should I be asking? > > I ordered the book that was suggested here but so far it has not arrived. Does it take longer than a month? > > Advice and or suggestions. > > Here are my last test results. Is there questions I should be asking?? denise > > WBC 42.0 4.0-10.7 K/uL HH> > RBC 4.45 3.6-5.0 10*6 > > HEMOGLOBIN 13.5 11.4-15.5 GM/DL > > HEMATOCRIT 42 36-46 % > > MCV 94 80-98 > > MCH 30 27-34 > > MCHC 33 33-37 % > > RDW 12.7 8.0-18.5 > > PLATELET COUNT 285 140-450 10*3 > > Neutrophils, Absolute 2.00-7.30 K/uL > > Lymphocytes, Absolute 1.00-3.40 K/uL > > MONOCYTES, ABSOLUTE 0.00-0.80 K/uL > > Eosinophils, Absolute 0.0-0.5 K/ul > > Basophils, Absolute 0.0-0.2 K/uL > > NRBC/100WBC> >>

[Guest guest]

What is the red book? Thanks.Charlotte

Life's not always fair. Sometimes you can get a splinter even sliding down a rainbow. ~Terri Guillemets

[Guest guest]

We published a disease specific book on CLL via the Lymphoma Research Foundation. It had been distributed to patients and doctors. If you want one just call the LRF office in LA 800 500 9097 and they will mail it to you. Spread the word. You can also download it from our website www.cllinfogroup.org

In a message dated 6/16/2010 9:45:53 P.M. Eastern Daylight Time, charlotte402@... writes:

What is the red book? Thanks.

Charlotte

Life's not always fair. Sometimes you can get a splinter even sliding down a rainbow. ~Terri Guillemets

[Guest guest]

FYI, that 800 number to ask for a copy of the red book is no longer active.Charlotte

Life's not always fair. Sometimes you can get a splinter even sliding down a rainbow. ~Terri Guillemets

[Guest guest]

800 500 9976

In a message dated 6/17/2010 10:31:07 A.M. Eastern Daylight Time, charlotte402@... writes:

FYI, that 800 number to ask for a copy of the red book is no longer active.

Charlotte

Life's not always fair. Sometimes you can get a splinter even sliding down a rainbow. ~Terri Guillemets

[Guest guest]

hi Jen,

I started investigating the HCG protocal in 2007, I have had several

conversations with my doctor who is also a good friend. Despite several long

conversations and even evidence that it works, he refuses to support me

clinically. I tell you this so that you don't get your hopes up to much if your

doctor shoots you down.

As for doing it on your own. It really is very simple and losing 100lbs is

possibe with commitment from you for YOU!

I know there are several people who have used sublingual, but all evidence

suggests the best way is injections. For myself, I do it in 20 seconds, no big

deal.

I hope you do find the support and answers you are looking for.

Jodie

>

> I am looking into doing the HCG diet. Is it better to do the sublingual or

shots? Should I start it first with a doc then do it on my own or is there

enough info out there to do it myself? At this point I am wanting to lose around

100 lbs. I am looking into ordering it from the Pharmacy Escrow site. Just

needing some guidance from those that are in the know.

>

> Thanks,

> Jen

>

[Guest guest]

Sort of funny...I am going to a bariatric doctor for the HCG. He is helping me because I'd already lost 50 pounds before I went to see him. He thought that the HCG might be the answer. So, here I am 29 days later down 20 more pounds. Flip side of that is I went to my family doctor yesterday for a checkup and, after telling me how great I was doing for losing weight and, then, after finding out about the HCG was APPALLED! We had quite a discussion about it.

From: Nyla <our_humblepie@...> Sent: Thu, August 26, 2010 10:16:30 PMSubject: Re: Questions

hi Jen,I started investigating the HCG protocal in 2007, I have had several conversations with my doctor who is also a good friend. Despite several long conversations and even evidence that it works, he refuses to support me clinically. I tell you this so that you don't get your hopes up to much if your doctor shoots you down.As for doing it on your own. It really is very simple and losing 100lbs is possibe with commitment from you for YOU!I know there are several people who have used sublingual, but all evidence suggests the best way is injections. For myself, I do it in 20 seconds, no big deal.I hope you do find the support and answers you are looking for.Jodie>> I am looking into

doing the HCG diet. Is it better to do the sublingual or shots? Should I start it first with a doc then do it on my own or is there enough info out there to do it myself? At this point I am wanting to lose around 100 lbs. I am looking into ordering it from the Pharmacy Escrow site. Just needing some guidance from those that are in the know. > > Thanks,> Jen>

[Guest guest]

Thanks Jodie! There is a doc in town that does this so I can do that, if needed. Right now I am doing everything right - working with personal trainer twice a week and working out 2-3 other days, working with a naturopath, meditating, doing neurofeedback, eating organic foods, and taking meds my doc wants me to for help with weight loss. I see results for a little while, then my body goes back to the beginning due to it's way of dealing with stress and I het hit with another bad injury. Long story, but I had a severely high stress year due to my son becoming ill at 3 months and passing at 13 months causing me to develop PTSD since he was never truly stable and I never slept. Since then I have been doing all of the right things to lose weight with no luck as my body is having problems coming out of fight or flight mode so it is next to impossible right now to lose. I am not expecting HCG to make me skinny, but I would like to add it to my arsenal to get there with less injuries. :)JenSent from my iPhoneOn Aug 26, 2010, at 10:16 PM, Nyla <our_humblepie@...> wrote:

hi Jen,

I started investigating the HCG protocal in 2007, I have had several conversations with my doctor who is also a good friend. Despite several long conversations and even evidence that it works, he refuses to support me clinically. I tell you this so that you don't get your hopes up to much if your doctor shoots you down.

As for doing it on your own. It really is very simple and losing 100lbs is possibe with commitment from you for YOU!

I know there are several people who have used sublingual, but all evidence suggests the best way is injections. For myself, I do it in 20 seconds, no big deal.

I hope you do find the support and answers you are looking for.

Jodie

>

> I am looking into doing the HCG diet. Is it better to do the sublingual or shots? Should I start it first with a doc then do it on my own or is there enough info out there to do it myself? At this point I am wanting to lose around 100 lbs. I am looking into ordering it from the Pharmacy Escrow site. Just needing some guidance from those that are in the know.

>

> Thanks,

> Jen

>

[Guest guest]

Funny how a Bariatric Physician (who makes MONEY helping people lose weight) approve of hCG and its results. And a General Medicine Physician (who does NOT make MONEY on weight loss, prevention, or wellness) does not approve. In "healthcare" follow the money...

Just goes to show that "health care" (the sickness industry) is going to be surpassed by the WELLNESS industry!!!

From: Mish <mishstuff@...> Sent: Fri, August 27, 2010 8:48:23 AMSubject: Re: Re: Questions

Sort of funny...I am going to a bariatric doctor for the HCG. He is helping me because I'd already lost 50 pounds before I went to see him. He thought that the HCG might be the answer. So, here I am 29 days later down 20 more pounds. Flip side of that is I went to my family doctor yesterday for a checkup and, after telling me how great I was doing for losing weight and, then, after finding out about the HCG was APPALLED! We had quite a discussion about it.

From: Nyla <our_humblepie@...> Sent: Thu, August 26, 2010 10:16:30 PMSubject: Re: Questions

hi Jen,I started investigating the HCG protocal in 2007, I have had several conversations with my doctor who is also a good friend. Despite several long conversations and even evidence that it works, he refuses to support me clinically. I tell you this so that you don't get your hopes up to much if your doctor shoots you down.As for doing it on your own. It really is very simple and losing 100lbs is possibe with commitment from you for YOU!I know there are several people who have used sublingual, but all evidence suggests the best way is injections. For myself, I do it in 20 seconds, no big deal.I hope you do find the support and answers you are looking for.Jodie>> I am looking into

doing the HCG diet. Is it better to do the sublingual or shots? Should I start it first with a doc then do it on my own or is there enough info out there to do it myself? At this point I am wanting to lose around 100 lbs. I am looking into ordering it from the Pharmacy Escrow site. Just needing some guidance from those that are in the know. > > Thanks,> Jen>