Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 My doctor did not use the CPM either. He said that his research showed that it can cause a dropped foot, and he doesn't take those chances with his patients. He said the same things as your doc did about the recovery. dash questions I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Dash, what's a dropped foot? I read the book that was recommended on this forum, " Total Knee Replacement & Rehabilitation. "  It was very good. in TX From: dash <dash4@...> Subject: Re: questions Joint Replacement Date: Monday, September 6, 2010, 8:06 AM  My doctor did not use the CPM either. He said that his research showed that it can cause a dropped foot, and he doesn't take those chances with his patients. He said the same things as your doc did about the recovery. dash questions I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Dash, is this the same thing as a dropped metatarsal (the ball of the foot gets badly inflamed)? If so, it happened to me after hip replacement. I used no special equipment. Had the left hip replaced last October, and since then, the ball of my right foot has been hurting. The specialist who fits one for shoes (can't remember the term) told me to wear a better tennis shoe (I wear Drews) and sold me an OTC orthotic. I can honestly say after wearing it for 2 hours, my toes feel like they're being crucified. So, I guess that means I should visit a podiatrist and see about a custom fit. Lynn LTHR 26 Oct 09 I think that maybe if women and children were in charge we would get somewhere. - Thurber Visit my art blog: http://www.adreamseyeview.blogspot.com/ From: dash <dash4@...> Subject: Re: questions Joint Replacement Date: Monday, September 6, 2010, 8:06 AM My doctor did not use the CPM either. He said that his research showed that it can cause a dropped foot, and he doesn't take those chances with his patients. He said the same things as your doc did about the recovery. dash questions I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Hi , I had the CPM machine, but did not get to use it that often. I think I may have used it twice in the four days I was in hospital. I think my results were not impacted by that small usage. If, however, I were to do it again, I would try to use it more as I actually loved the machine! Most people hate it, so if your OS doesn't demand it, it's probably OK. All the best, Joan ________________________________ From: kjc <k_j_cotten@...> TotalJointReplacement <Joint Replacement > Sent: Mon, September 6, 2010 1:41:14 PM Subject: questions I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 , I used it maybe for the first day of hospital stay and not at all after. My doctor preferred bending on my own and my recovery was fine without it. Others swear by it. I don't think it's a necessity and if your doctor doesn't normally use it there's no need for demanding it in my opinion. Good luck with the surgery, Jeff ________________________________ From: kjc <k_j_cotten@...> TotalJointReplacement <Joint Replacement > Sent: Mon, September 6, 2010 8:41:14 AM Subject: questions I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 I don't think so, but I am not an expert. A gal in my TOPS club had hip surgery done and he cut through a tendon and she has what is called a dropped foot. She walks but walks " funny " . The foot doesn't work right. I have not researched it, only relaying what the doc said. I also have flat feet and my knee surgery messed with my orthotics and I had to get new ones. It changes your body alignment. So you probably need to get in and get new orthotics and get that custom fit based on your new alignment now, would be my guess. I also have foot troubles, but they are at a minimum now after my new orthotics and getting used to them, plus I have lost about 20 pounds....so all that helps the knees and the feet too. I also had my knee replacement in Oct 09. They had to do a " release " ....of some sort on me, cut the tendon on the right side of the right knee. I had forgotten about that but the physical therapist reminded me of that and that is a possibility of why I still am having some pain. I am doing well most of the time, but I do think that I do have some scar tissue to deal with yet and I am aggressively working on that, am going to the gym now two times a week and stretching and working that knee. dash Re: questions Dash, is this the same thing as a dropped metatarsal (the ball of the foot gets badly inflamed)? If so, it happened to me after hip replacement. I used no special equipment. Had the left hip replaced last October, and since then, the ball of my right foot has been hurting. The specialist who fits one for shoes (can't remember the term) told me to wear a better tennis shoe (I wear Drews) and sold me an OTC orthotic. I can honestly say after wearing it for 2 hours, my toes feel like they're being crucified. So, I guess that means I should visit a podiatrist and see about a custom fit. Lynn LTHR 26 Oct 09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Hi , Since you trust your doc I'd go with what he said. He's not just being arbitrary but has a reason for not using it. He seems smart for sure. You'll be fine and no reason to worry yourself about this IMO. Best wishes for your surgery and rehab! Very exciting to be getting a brand new knee! Peace Jackie Jackie on Borntodrum.org Womendrummers.org Girightshotline.org 510-332-5998 On Sep 6, 2010, at 5:41 AM, kjc <k_j_cotten@...> wrote: > I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. > > in TX > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 I'm having my right knee replaced tomorrow and I already have my CPM machine set up and ready to go as soon as I get home, I will use it until I can get up and start walking around by myself, I loved the machine!!!!! I was on it for 2 hours before pt and I think it helped loosen up the knee for the exercises. Good thoughts and prayers would be appreciated. My surgery is at 7:30 in the morning so I'll be out of commission for a few days maybe weeks, just according to how everything goes!!!! I'll be in the hosp Wed thru Sat. Talk to you all later. Banks From: kjc <k_j_cotten@...> Subject: questions " TotalJointReplacement " <Joint Replacement > Date: Monday, September 6, 2010, 7:41 AM  I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 , Best of luck with the surgery and hoping for a quick recovery. Jeff ________________________________ From: Banks <lindabandcompany@...> Joint Replacement Sent: Tue, September 7, 2010 1:26:56 PM Subject: Re: questions I'm having my right knee replaced tomorrow and I already have my CPM machine set up and ready to go as soon as I get home, I will use it until I can get up and start walking around by myself, I loved the machine!!!!! I was on it for 2 hours before pt and I think it helped loosen up the knee for the exercises. Good thoughts and prayers would be appreciated. My surgery is at 7:30 in the morning so I'll be out of commission for a few days maybe weeks, just according to how everything goes!!!! I'll be in the hosp Wed thru Sat. Talk to you all later. Banks From: kjc <k_j_cotten@...> Subject: questions " TotalJointReplacement " <Joint Replacement > Date: Monday, September 6, 2010, 7:41 AM I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 Thanks Jeff, it is appreciated!!!! Banks From: kjc <k_j_cotten@...> Subject: questions " TotalJointReplacement " <Joint Replacement > Date: Monday, September 6, 2010, 7:41 AM  I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM, but it is available at the hospital. Do I demand it? My doctor is board certified and actually use to teach at Syracuse medical school. I've heard he does 100s of these a year. He says that studies show that patients that do/do not use the machine have the same results in 6 months. in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 nope, some people say it feels good. any current? micro-current you can't feel it. it's , remember? germs feel it. I have already shocked myself many times using other devices, and came up with this one precisely so you do not have to do that. when you build it, just follow the steps. wetting sponges, if they are new, rinse out in warm plain water and squeeze to remove the store freshness stuff they put into them to keep them from drying out or smelling bad. Once clean (please don't go nuts cleaning them), wring out as much water as you can with a good squeeze by hand. They should be moist but not dripping. the last step is connecting wires to battery. but it really does not matter if it's last or first. It's just that bare wires can touch and spark freaking people out. It's actually kind of funny and harmless, kids would love it. lighten up. storing. keep sponges separated. if they touch it will slowly very slowly drain your precious battery. if you put the whole thing on a small area of a shelf or table, just put a plastic bag down and place sponges apart on the bag. Battery can go anywhere. I will post today about adding a meter to the unit, to make it sweeter and sexier. It will also serve as an " on/off " switch, so this separation drill won't be needed. It will work just the same but you will have to turn the meter on for any current to flow into the sponges. The meter will also give you very precise control over how much current is used. I THINK this is a great idea, but of course all our successes so far did not even use a meter, and it worked like the bomb that it is for germs. Still, it's a nice touch to have a real, honest to goodness meter in there to show you what's going on exactly. Another good use of the meter is that, in answer to your first question, " does it hurt " which is the thing everyone wants to know, especially me since I am standing here being responsible for it, the most common reaction to this device, this here " godzilla " , is that they cannot feel anything..they wonder if the battery was dead and the store sold them one with no life in it. If you use with tap water in the sponges as the " last rinse " , you will likely find it very mild, almost imperceptible. Using it for around 20-30 minutes, reversing positions of the sponges every 5 or so, should be about right for " one session " then repeat several hours later and you are mostly done. However, for nastier infections, or quicker application times, you can add a pinch (really tiny pinch) of baking soda to a cup or so of water, and put sponges (one by one) into it and wring it out. This you WILL feel in some way. Everyone's body will carry more or less current, so if you are very conductive you will feel it more, less conductive, then hardly feel it at all. IF too harsh with pinch of baking soda, try rinsing in plain water and squeeze out ONCE. Retry, repeat till it's just perceptible. But... a meter tells you all that right away, plus you get to sling around the bull about your current numbers for various things you can cure with it. heh heh. enjoy; bG > > Does it hurt to use? > > When you wind the wire around the battery spring posts is there any electrical current flowing at that time. > > Are rubber gloves good for working on the Godzilla? > > When you store, do you take apart the Godzilla or somehow store intact? > > At what point to you dampen the sponges, etc.? How? > > Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2010 Report Share Posted December 18, 2010 nope, some people say it feels good. any current? micro-current you can't feel it. it's , remember? germs feel it. I have already shocked myself many times using other devices, and came up with this one precisely so you do not have to do that. when you build it, just follow the steps. wetting sponges, if they are new, rinse out in warm plain water and squeeze to remove the store freshness stuff they put into them to keep them from drying out or smelling bad. Once clean (please don't go nuts cleaning them), wring out as much water as you can with a good squeeze by hand. They should be moist but not dripping. the last step is connecting wires to battery. but it really does not matter if it's last or first. It's just that bare wires can touch and spark freaking people out. It's actually kind of funny and harmless, kids would love it. lighten up. storing. keep sponges separated. if they touch it will slowly very slowly drain your precious battery. if you put the whole thing on a small area of a shelf or table, just put a plastic bag down and place sponges apart on the bag. Battery can go anywhere. I will post today about adding a meter to the unit, to make it sweeter and sexier. It will also serve as an " on/off " switch, so this separation drill won't be needed. It will work just the same but you will have to turn the meter on for any current to flow into the sponges. The meter will also give you very precise control over how much current is used. I THINK this is a great idea, but of course all our successes so far did not even use a meter, and it worked like the bomb that it is for germs. Still, it's a nice touch to have a real, honest to goodness meter in there to show you what's going on exactly. Another good use of the meter is that, in answer to your first question, " does it hurt " which is the thing everyone wants to know, especially me since I am standing here being responsible for it, the most common reaction to this device, this here " godzilla " , is that they cannot feel anything..they wonder if the battery was dead and the store sold them one with no life in it. If you use with tap water in the sponges as the " last rinse " , you will likely find it very mild, almost imperceptible. Using it for around 20-30 minutes, reversing positions of the sponges every 5 or so, should be about right for " one session " then repeat several hours later and you are mostly done. However, for nastier infections, or quicker application times, you can add a pinch (really tiny pinch) of baking soda to a cup or so of water, and put sponges (one by one) into it and wring it out. This you WILL feel in some way. Everyone's body will carry more or less current, so if you are very conductive you will feel it more, less conductive, then hardly feel it at all. IF too harsh with pinch of baking soda, try rinsing in plain water and squeeze out ONCE. Retry, repeat till it's just perceptible. But... a meter tells you all that right away, plus you get to sling around the bull about your current numbers for various things you can cure with it. heh heh. enjoy; bG > > Does it hurt to use? > > When you wind the wire around the battery spring posts is there any electrical current flowing at that time. > > Are rubber gloves good for working on the Godzilla? > > When you store, do you take apart the Godzilla or somehow store intact? > > At what point to you dampen the sponges, etc.? How? > > Thanks again > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2010 Report Share Posted December 25, 2010 We were told to withhold for fever and big infections like the flu. If is on MTX no MTX until the stomach bug clears. Sorry to hear she is sick on Christmas and hope she gets over it quickly. Love and hugs, Becki and 12 SoJRA ________________________________ From: " veristroud@... " <veristroud@...> Sent: Sat, December 25, 2010 3:20:40 PM Subject: questions What are the rules for Enbrel when a kiddo is sick? I know that if she is running a fever I am not to give it to her but are there other things to watch for. I will call her rheumy on Monday to touch base with them, but thought if anyone had time this weekend to post it would be appreciated. I think she has head cold and stomach flu. No fever yet, i am watching for that. Will keep her hydrated and pray that she does not get too sick. Here we are on Christmas Day and she was up for just about 2 1/2 hours before going back to bed. I hope everyone else is well this weekend and painfree. Have a wonderful Merry Christmas. Veri & Jaye 16 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2010 Report Share Posted December 26, 2010 Poor baby, sick on Christmas. I just hold the drug until they are better. My kids never have problems fighting the infection, but tend to pick up every bug going around. Maybe she'll get over this quickly! Audra 14 poly 07 Peyton 12 poly 08 > > > What are the rules for Enbrel when a kiddo is sick? I know that if > > Veri & Jaye 16 poly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2010 Report Share Posted December 28, 2010 No MTX or Enbrel with fevers...as for other illnesses...our rheumy prefers we defer the decisions to 's pediatrician. He is currently on antibiotics for two weeks due to a severe sinus infection...poor kiddo never even told me he had a headache...and the pediatrician said yes to the MTX and Enbrel. Our pedi and rheumy work well together so I guess that helps. Hope she's feeling much, much better by now! All the best, & , 7, poly plus a bunch of other 'stuff' Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2010 Report Share Posted December 28, 2010 Thanks to you all for your notes and your thoughts and prayers for Jaye. Yesterday she began feeling better. I do not think she had a fever with the yuck she had. She and I both ended up with the stomach flu for two days, she just felt miserable. I on the other hand lost all I had taken in and ran a fever. Not fun. We are doing better now. I did not get a chance to call the rheumy yesterday but will call today and talk to them. I hope you had a wonderful Christmas. Veri & Jaye 16 poly Re: questions No MTX or Enbrel with fevers...as for other illnesses...our rheumy prefers we defer the decisions to 's pediatrician. He is currently on antibiotics for two weeks due to a severe sinus infection...poor kiddo never even told me he had a headache...and the pediatrician said yes to the MTX and Enbrel. Our pedi and rheumy work well together so I guess that helps. Hope she's feeling much, much better by now! All the best, & , 7, poly plus a bunch of other 'stuff' Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Hello! I use coconut oil on my face along with my face cream. I just use about the size of a pencil eraser. I put that in the palm of my hand first as the heat melts the coconut oil. Add the cream and a drop or two of essential oil, then apply to my face. I also eat it. I mix 3-4 T. coconut oil, 1 t. cocoa and a healthy sweetener. I never use artificial. I use stevia or, a new one for me, erythritol. Stevia has a bit of an odd taste. Erythritol is yummy! I also add a drop of peppermint essential oil. Enjoy! Deb On Wed, Feb 16, 2011 at 10:14 AM, Rhonda Sonby <rsonby@...> wrote: > > > Hi All, > > I have been lurking for a while and have a few questions. Does coconut oil > really help with losing weight? If so how do you use it for that? Also, I > have extremely dry skin, in fact I am only 51 but my skin especially on my > legs look like they belong to a 70 year old very wrinkly. So I am wondering > if coconut oil would help with this and if so whats the best way of using > it > for that purpose? I'm already using it as a moisturizer. > > I also think it would be great to hear what changes in your body you have > noticed using coconut oil and how you use it. > > Thanks, > > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 hello, got any more info on the erythritol? like what it is made from and what form it is in and where you get it?... thanks, d > > > Hi All, > > I have been lurking for a while and have a few questions. Does coconut oil > really help with losing weight? If so how do you use it for that? Also, I > have extremely dry skin, in fact I am only 51 but my skin especially on my > legs look like they belong to a 70 year old very wrinkly. So I am wondering > if coconut oil would help with this and if so whats the best way of using > it > for that purpose? I'm already using it as a moisturizer. > > I also think it would be great to hear what changes in your body you have > noticed using coconut oil and how you use it. > > Thanks, > > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 I bought it from Long Life Unlimited.com It's called " Smart Sweet " . I'm writing from the container: " Erythritol is a naturally occurring sweetener found in a variety of foods like melons, grapes, pears, mushrooms, wine and cheese. It is also found in small amounts in the human body. It's 70% as sweet as sugar with zero calories. Low glycemic index. Does not promote tooth decay. GMO Free. All natural. " Deb On Thu, Feb 17, 2011 at 9:15 AM, Don <hooty304@...> wrote: > > > hello, > got any more info on the erythritol? > like what it is made from and what form it is in > and where you get it?... > thanks, > d > > > > > > > > > Hi All, > > > > I have been lurking for a while and have a few questions. Does coconut > oil > > really help with losing weight? If so how do you use it for that? Also, I > > have extremely dry skin, in fact I am only 51 but my skin especially on > my > > legs look like they belong to a 70 year old very wrinkly. So I am > wondering > > if coconut oil would help with this and if so whats the best way of using > > it > > for that purpose? I'm already using it as a moisturizer. > > > > I also think it would be great to hear what changes in your body you have > > noticed using coconut oil and how you use it. > > > > Thanks, > > > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 Rhonda, I too have been dealing with some dry skin issues even though I eat coconut oil every day. I then muscle tested and realized that I was deficient in essential fatty acids and now take an omega 3 supplement. I muscle tested different brands to see which my body accepted as some were weak and others strong. My skin is softer now after taking the omega 3 for several weeks. I have also been oil pulling, but I am not sure if that has any effect on dry skin or not. Deborah > > > > > > > Hi All, > > > > I have been lurking for a while and have a few questions. Does coconut oil > > really help with losing weight? If so how do you use it for that? Also, I > > have extremely dry skin, in fact I am only 51 but my skin especially on my > > legs look like they belong to a 70 year old very wrinkly. So I am wondering > > if coconut oil would help with this and if so whats the best way of using > > it > > for that purpose? I'm already using it as a moisturizer. > > > > I also think it would be great to hear what changes in your body you have > > noticed using coconut oil and how you use it. > > > > Thanks, > > > > Rhonda > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Thank You!! Deb and Deborah for your reply I will definitely be trying those things out! Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Hi Lu...I can't answer any of your questions, but I can tell you that I too have a history of BC and liver enzymes can be all over the place for no apparent reason. Getting over a cold; exercising before the blood test; a hangover; lots of things which have nothing to do with BC can elevate them. So try not to worry. Take care,BarbFOn Fri, Feb 18, 2011 at 1:10 PM, Lu Brown <brown6267@...> wrote: Hi,I am a 4 1/2 year breast cancer survivor. I have been taking 50 - 100 mg Iodoral/Lugols for 3 1/2 years. I recently went to a 6-month checkup with my oncologist, and everything is fine except, for the first time, my liver enzymes were medium - high. In the past, my liver enzymes were in fine shape. As a result, my oncologist has scheduled me for a CT scan of the abdomen in two weeks. I have not told my oncologist that I have been taking Iodoral and the companion nutrients for the last several years because he would freak out. Also, in the last month, I started taking milk thistle since I have read on this forum that it helps clean out the liver. I have been slowly gaining weight over the last several years (approximately 15 pounds), and I thought the milk thistle would help the liver since I have been taking Iodoral and Tamoxifen. I stopped taking Tamoxifen in 10/2010. I did not tell my oncologist that I started taking milk thistle either. I am feeling great so the only reason the CT scan is being ordered is because of the higher liver enzyme test. My questions:Since I take Iodoral, will I have any problems with drinking the chalky radioactive iodine for the CT scan?Will the radioactive iodine cause me to get sick since I am already taking Iodoral? Should I tell them that I am taking Iodoral?Should I stop taking Iodoral until after the CT scan?Should I tell them that I am taking Milk thistle? I have stopped taking the milk thistle until all of the tests are complete. Does that sound OK? Would taking milk thistle cause the liver enzymes to increase? Is is possibly a temporary thing like beginning Iodoral and the TSH increasing?Any comments would be greatly appreciated.Thanks in advance for your comments/feedback, Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 Lu,I had sky high liver enzymes from a blocked common bile duct to my liver and 2 surgeries. I was one number down from needing a transplant on bilirubin. Surgery helped correct the cause but my liver was enlarged and unhappy according to chiropractors, PT and acupuncture and blood tests. Milk thistle never raised my enzyme levels in the next 3 years and when I went off it they would bounce up so silymarin kept them from getting worse for me. Dieting and doing the metagenics ultra clear ph shake and advaclear capsules at 5pm and mini fast for 3 weeks, while continuing 50 mg of iodine cut my liver enzymes in half and helped my kidney tests too. Iodine, ALA, DIM, DMG, ldn and TMG have helped me fight weight and almost totally normal enzymes finally. I have lost the 45 pounds that came quickly when liver was out of whack and lost 40 more beyond that. I keep thinking getting the weight off will help my bones behave-ribs from a drunk driver. I also had 4 breast lumps that thermography and ultrasound think are okay but those supplements were said to help in addition to iodine which the thermography family practice nurse also believes in and passes out information on Dr. Brownstein. She is creating CDs to fight BC for patients but those aren't published yet and I don't know when the MDs will finish their editing for her. PamOn Fri, Feb 18, 2011 at 10:10 AM, Lu Brown <brown6267@...> wrote: Hi,I am a 4 1/2 year breast cancer survivor. I have been taking 50 - 100 mg Iodoral/Lugols for 3 1/2 years. I recently went to a 6-month checkup with my oncologist, and everything is fine except, for the first time, my liver enzymes were medium - high. In the past, my liver enzymes were in fine shape. As a result, my oncologist has scheduled me for a CT scan of the abdomen in two weeks. I have not told my oncologist that I have been taking Iodoral and the companion nutrients for the last several years because he would freak out. Also, in the last month, I started taking milk thistle since I have read on this forum that it helps clean out the liver. I have been slowly gaining weight over the last several years (approximately 15 pounds), and I thought the milk thistle would help the liver since I have been taking Iodoral and Tamoxifen. I stopped taking Tamoxifen in 10/2010. I did not tell my oncologist that I started taking milk thistle either. I am feeling great so the only reason the CT scan is being ordered is because of the higher liver enzyme test. My questions:Since I take Iodoral, will I have any problems with drinking the chalky radioactive iodine for the CT scan?Will the radioactive iodine cause me to get sick since I am already taking Iodoral? Should I tell them that I am taking Iodoral?Should I stop taking Iodoral until after the CT scan?Should I tell them that I am taking Milk thistle? I have stopped taking the milk thistle until all of the tests are complete. Does that sound OK? Would taking milk thistle cause the liver enzymes to increase? Is is possibly a temporary thing like beginning Iodoral and the TSH increasing?Any comments would be greatly appreciated.Thanks in advance for your comments/feedback, Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 My guess is that it is better to have your body full of GOOD iodine going in, so your organs don't try to hang on to any of the BAD iodine. I would also take EXTRA vitamin C & milk thistle after it is over, to help your body throw off the gunk.Don't know what to say about the milk thistle. It helps your liver to throw off crud, but I don't know what it would do to a liver enzyme test... It MIGHT have elevated your enzymes while trying to help you throw off toxins. Any NEW thing you add to the mix can cause temporary fluctuations in test values, so I would try not to freak out over it. I wouldn't THINK it would affect the scan at all, since the scan is looking for structural problems, but I am hardly an expert on that.I think your enzymes are likely to go up any time your body is trying to deal with toxins. And we are exposed to toxic stuff all the time -- often without even knowing it. If your neighbor sprayed poison in his yard before you were up, you could have breathed it walking to your car. Your liver would automatically kick in to try to get rid of it. One of the biggest weapons doctors have to control patients is FEAR. If you are pregnant & the doc is trying to control you, he will talk about dead babies. If you have cancer & the doc is trying to control you, he will talk about metastasis. They never talk about the worst possible side effects of their actions, only the worst possible result if you don't obey them. They use this because it is so EFFECTIVE, even if you know the game. Fear is your enemy. When the buffalo herd is afraid, it thunders over a cliff. Watch for cliffs.AnneOn Feb 18, 2011, at 10:10 AM, Lu Brown wrote: Hi,I am a 4 1/2 year breast cancer survivor. I have been taking 50 - 100 mg Iodoral/Lugols for 3 1/2 years. I recently went to a 6-month checkup with my oncologist, and everything is fine except, for the first time, my liver enzymes were medium - high. In the past, my liver enzymes were in fine shape. As a result, my oncologist has scheduled me for a CT scan of the abdomen in two weeks. I have not told my oncologist that I have been taking Iodoral and the companion nutrients for the last several years because he would freak out. Also, in the last month, I started taking milk thistle since I have read on this forum that it helps clean out the liver. I have been slowly gaining weight over the last several years (approximately 15 pounds), and I thought the milk thistle would help the liver since I have been taking Iodoral and Tamoxifen. I stopped taking Tamoxifen in 10/2010. I did not tell my oncologist that I started taking milk thistle either. I am feeling great so the only reason the CT scan is being ordered is because of the higher liver enzyme test.My questions:Since I take Iodoral, will I have any problems with drinking the chalky radioactive iodine for the CT scan?Will the radioactive iodine cause me to get sick since I am already taking Iodoral?Should I tell them that I am taking Iodoral?Should I stop taking Iodoral until after the CT scan?Should I tell them that I am taking Milk thistle? I have stopped taking the milk thistle until all of the tests are complete. Does that sound OK?Would taking milk thistle cause the liver enzymes to increase? Is is possibly a temporary thing like beginning Iodoral and the TSH increasing?Any comments would be greatly appreciated.Thanks in advance for your comments/feedback, Lu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 In answer to a couple of your questions.Elevated liver enzymes indicate that there is inflammation and damage to the liver cells. Liver enzymes are normally contained within the liver cells, and only when the cells are damaged and/or inflamed, do the enzymes leak into the blood stream. This can occur from a number of things: fatty liver, alcohol excess, certain meds such as long term antibiotics, and pain killers, oral synthetic hormone replacement, viral infections of the liver such as hepatitis C & B, auto-immune hepatitis, hemochromatosis, primary biliary cirrhosis, exposure to toxic chemicals such as insecticides, pesticides, organic solvents and unhealthy diet. Liver cells are very resilient and with a very healthy diet and good supplements they will repair and the enzyme levels will slowly come down over time in the case of simple fatty liver. This may take months. It is also not uncommon for the enzyme levels to fluctuate up and down before they decrease. Tamoxifen can cause liver enzymes to be elevated. Not only can it elevate liver enzymes but it can elevate cholesterol and calcium levels. The aching and soreness that some present while on Tamoxifen can actually be caused by the elevated calcium. Once Tamoxifen is discontinued, cholesterol and liver enzymes will usually come down to normal.Milk Thistle usually helps enzyme levels to come down. However, all possibilities should be checked. A good quality milk thistle can make a huge difference.Since you are a cancer survivor, I would also suggest researching the amount of radiation that one receives from a CT scan. Radiation is a known cause of cancer. You may want to ask if an ultrasound can be performed first. They do pick up cysts and tumors and thus will indicate if further testing is needed. If the doctor balks at an ultrasound (many do because a CT scan is much, much more expensive) and you decide that the scan is the route to take, it is always wise to let your doctor know exactly what you are taking (meds and supplements) before any type of procedure.Be WellDr.L From: iodine [mailto:iodine ] On Behalf Of Lu BrownSent: Friday, February 18, 2011 12:10 PMiodine Subject: Questions Hi,I am a 4 1/2 year breast cancer survivor. I have been taking 50 - 100 mg Iodoral/Lugols for 3 1/2 years. I recently went to a 6-month checkup with my oncologist, and everything is fine except, for the first time, my liver enzymes were medium - high. In the past, my liver enzymes were in fine shape. As a result, my oncologist has scheduled me for a CT scan of the abdomen in two weeks. I have not told my oncologist that I have been taking Iodoral and the companion nutrients for the last several years because he would freak out. Also, in the last month, I started taking milk thistle since I have read on this forum that it helps clean out the liver. I have been slowly gaining weight over the last several years (approximately 15 pounds), and I thought the milk thistle would help the liver since I have been taking Iodoral and Tamoxifen. I stopped taking Tamoxifen in 10/2010. I did not tell my oncologist that I started taking milk thistle either. I am feeling great so the only reason the CT scan is being ordered is because of the higher liver enzyme test.My questions:Since I take Iodoral, will I have any problems with drinking the chalky radioactive iodine for the CT scan?Will the radioactive iodine cause me to get sick since I am already taking Iodoral?Should I tell them that I am taking Iodoral?Should I stop taking Iodoral until after the CT scan?Should I tell them that I am taking Milk thistle? I have stopped taking the milk thistle until all of the tests are complete. Does that sound OK?Would taking milk thistle cause the liver enzymes to increase? Is is possibly a temporary thing like beginning Iodoral and the TSH increasing?Any comments would be greatly appreciated.Thanks in advance for your comments/feedback, Lu Quote Link to comment Share on other sites More sharing options...
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