Blood work

[Guest guest]

,

> Can anyone direct me to a doctor or laboratory in the

> San area who would draw blood work and forward

> it for testing.

Probably your best bet is the South Texas Blood and Tissue Center. It's

just east of IH-10 close to where I-10 crosses IH-410 to the northwest.

Second choice would be UTHSCSA, adjacent to the VA (FLoyd Curl south of

Wurzbach). Might be best to call the one you choose first to make sure,

and to inquire about the cost. Be sure the Boston doc has written you a

letter giving the details of how the blood is to be collected (what tubes

to use, whole blood, serum, plasma) and where and how to send it. Take the

letter or a copy with you when you get the blood drawn. The lab will do

the rest.

WE WILL WIN THIS!

Fisher, MD

LTC USAFR MC FS

(Inactive Reserve)

Seattlw, WA

---------------------------------------------------------------------------

-----

People don't see the writing on the wall

until their backs are up against it.

-- Adlai son

---------------------------------------------------------------------------

-----

[Guest guest]

What are the side effects of the anthrax shot?

Star Strider wrote:

> ,

>

> > Can anyone direct me to a doctor or laboratory in the

> > San area who would draw blood work and forward

> > it for testing.

>

> Probably your best bet is the South Texas Blood and Tissue Center. It's

> just east of IH-10 close to where I-10 crosses IH-410 to the northwest.

> Second choice would be UTHSCSA, adjacent to the VA (FLoyd Curl south of

> Wurzbach). Might be best to call the one you choose first to make sure,

> and to inquire about the cost. Be sure the Boston doc has written you a

> letter giving the details of how the blood is to be collected (what tubes

> to use, whole blood, serum, plasma) and where and how to send it. Take the

> letter or a copy with you when you get the blood drawn. The lab will do

> the rest.

>

> WE WILL WIN THIS!

>

>

> Fisher, MD

> LTC USAFR MC FS

> (Inactive Reserve)

> Seattlw, WA

> ---------------------------------------------------------------------------

[Guest guest]

>>>

From: <loethar@...>

What are the side effects of the anthrax shot?

>>

http://www.dallasnw.quik.com/cyberella/Anthrax/dover4-1.html

http://www.fedbuzz.com/vaccine/vac.html

and if logged on to onelist with e-mail address and password

/anthrax_report.pdf

--------------------

Gretchen

List owner

[Guest guest]

> What are the side effects of the anthrax shot?

I'll refer you to Gretchen's post, above.

My current hypothesis is that the anthrax immunization contains one or more

very powerful but nonspecific immune system stimulants (adjuvants), that in

susceptible people cause an intense and unremitting autoimmune response.

This response can manifest itself in its mildest form as significant

chronic fatigue. For those genetically predisposed to specific autoimmune

diseases, it manifests itself as those diseases. These can be rheumatoid

arthritis (seronegative -- my fave -- or seropositive), systemic lupus

erythematosis (SLE or " lupus " ), glomerulonephritis (autoimmune kidney

disease), and probably other autoimmune diseases as well. (We currently

don't know the full scope of the problem, and the War Department isn't

about to tell us even if it has done the right thing and carried out an

extensive epidemiologic investingation.)

The adjuvant that I suspect causes " anthrax immunization syndrome " is not

and never has been cleared for human use by the FDA or any other

RESPONSIBLE entity in the United States Federal Government. Its use in

humans is not only experimental, but illegal in the way it is administered.

Those in the War Department who authorized its use are by definition

criminals. A half century ago, we were hanging Nazi and Japanese military

physicians for performing and overseeing unconsenting and cruel human

experimentation. As is common practice, we are again embracing a double

standard. The United States is playing games with a number of countries

about their " human rights " records, and performing uninformed and

unconsenting illegal human experimentation on uniformed members of the

Armed Forces.

" Human rights " indeed. Only civilians count as " human " apparently, at

least as far as the War Department and the Supreme Court of the United

States are concerned [united States v. Stanley (483 U.S. 669 (1987))].

The anthrax immunization program is as much a travesty as it is a human

rights crime. We need a full accounting of the entire program,

identification and appropriate courts-martial for those who approved,

recommended, and administered this program. We also have to have a

thorough analysis of whatever is in the anthrax immunization, lifetime

follow-up for all those who were administered the immunization (symptomatic

or not), and lifetime remuneration for all those with disabilities

resulting from this absurd and misguided program, in addition to normal VA

disability and military retirement benefits.

WE WILL WIN THIS!

Fisher, MD

LTC USAFR MC FS

(Inactive Reserve)

---------------------------------------------------------------------------

-----

People don't see the writing on the wall

until their backs are up against it.

-- Adlai son

---------------------------------------------------------------------------

-----

[Guest guest]

I understand about them needing a code but unfortunatley I don't know which

one to tell them. They are right - if the insurance company doesn't think

it is necessary they won't do it. Since you are only four months out are

you sure you need blood work done yet - I had only very basic blood work

done at 3 months and everything was normal. I don't plan on having anything

done again until the one year major testing. About the glucose tolerance

test - if there is a reason they wanted it done then I think you have to

risk the dumping. They apparently want to know what your glucose levels are

and that is the only way to get a good picture I think. Hope you are OK!

in GA

10/04/00

281.5/190.4/135-ish

blood work

> Hi everyone,

> I don't post hardly at all...but I'm always watching and reading.

I

> had my surgery on 3/8 with Dr. Quattlebaum. I went to my doctor this

morning

> and requested blood work be done to check all my levels. The nurse said

she

> needed a " code " in order for my insurance to pay. Have any of you run

into

> this? Also, they want to do a two hour glucose test on me....I tried to

> explain to them that I'm scared the glucose will make me sick....but they

> still gave it to me. Any advice?

>

> marie/Florida

> 282/205/anything under l99

>

>

>

[Guest guest]

My doctor used the code for malnutrition since that was the reason for the

blood tests...to make certain I wasn't malnourished. I have no idea what the

code was for. He wouldn't do the blood tests until 9 months however because

they were very expensive...$800 and he said it took awhile for deficiencies

to actually show up... Hope this helps.

blood work

Hi everyone,

I don't post hardly at all...but I'm always watching and reading. I

had my surgery on 3/8 with Dr. Quattlebaum. I went to my doctor this

morning

and requested blood work be done to check all my levels. The nurse said she

needed a " code " in order for my insurance to pay. Have any of you run into

this? Also, they want to do a two hour glucose test on me....I tried to

explain to them that I'm scared the glucose will make me sick....but they

still gave it to me. Any advice?

marie/Florida

282/205/anything under l99

[Guest guest]

my lab used s/p gastric bypass and malabsorption

it worked they paid...

Jeanne in NY

--- tigerchamps01@... wrote:

> Hi everyone,

> I don't post hardly at all...but I'm always

> watching and reading. I

> had my surgery on 3/8 with Dr. Quattlebaum. I went

> to my doctor this morning

> and requested blood work be done to check all my

> levels. The nurse said she

> needed a " code " in order for my insurance to pay.

> Have any of you run into

> this? Also, they want to do a two hour glucose test

> on me....I tried to

> explain to them that I'm scared the glucose will

> make me sick....but they

> still gave it to me. Any advice?

>

> marie/Florida

> 282/205/anything under l99

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

http://www.clos.net/one_year_followup.htm

Blood Work

I will be having my 2 year postop physical in a couple of weeks. I

need to find a copy of that list of bloodwork the RR wants us to

have.

I am sure it is still on his website, but I can't find it. Can

anyone

help me with this.

Thanks & Happy Thanksgivign to all!

[Guest guest]

Thanks!

I bookmarked it this time-- that should help next year.

> http://www.clos.net/one_year_followup.htm

>

> Blood Work

>

>

> I will be having my 2 year postop physical in a couple of weeks. I

> need to find a copy of that list of bloodwork the RR wants us to

> have.

> I am sure it is still on his website, but I can't find it. Can

> anyone

> help me with this.

>

> Thanks & Happy Thanksgivign to all!

>

>

>

>

>

[Guest guest]

Janet,

Go to the online manual and you will find the information. It is a few pages

after the post-op diet.

Debbie C

5/6/02 384/282

[Guest guest]

My thought would be to see him. Don't forget that hepatologists are also

gastroenterologists first. He probably help you with your gastro problems.

JMHO,

Marilyn

Blood work

Hi,

I just had some bloodwork done by my neurologist so he could see

what some medication options might be for me.

My alt/ast were both normal, never had that happen...

but, my Albumin was low, for the second time now.

I'm having a lot of gastro problems, acid reflux, etc. Just don't

feel like eating.

I can't go on tx because last time it excellerated my motor neuron

disease.

Is there any reason to bother hepatologist over this stuff? I'm not

sure what he could do even if I did go to see him.

Thomson

[Guest guest]

Did you get the normal reference ranges? J.

Blood work

My daughter has had blood done that her doctor is

concerned about.

Does anyone have any comments on the following counts?

ana 1:320

wht bld cell 4.2

lymphocyte 1.2

neutrophil 1.6

b12 116

C3 .77

Any help would be appreciated

Thanks

[Guest guest]

Yes, most

ana 1:320 1:040

lymphocyte 1.2 1.4-----4

neutrophil 1.6 2------8

b12 116 139

C3 .77 .09----1.9

Doug

wrote:

> Did you get the normal reference ranges? J.

> Blood work

>

> My daughter has had blood done that her doctor is

> concerned about.

> Does anyone have any comments on the following counts?

> ana 1:320

> wht bld cell 4.2

> lymphocyte 1.2

> neutrophil 1.6

> b12 116

> C3 .77

> Any help would be appreciated

>

> Thanks

>

>

[Guest guest]

Which parts concerned the doctor and for what reason? Are the ana

(antinuclear antibodies) and b12 range numbers (single) bottom normal? The

lymphocyte and neutrophil numbers look below range by a bit. I have a

diabetic child, so I always grill our HMO advice line people on the test

numbers and ranges when I call for test results and sometimes have to ask

the docs about something. I don't know what C3 is but that looks almost

midrange. Nobody is posting much but it's the weekend. Have you tried to

get more information from the doctor (or his nurse) on what these numbers

tell him and/or can you question the lab? J.

Re: Blood work

Yes, most

ana 1:320 1:040

lymphocyte 1.2 1.4-----4

neutrophil 1.6 2------8

b12 116 139

C3 .77 .09----1.9

Doug

[Guest guest]

Hi ,

Thanks for the info we really appreciate it.

The Doctor has suspicions that is might be Lupus

which was mentioned in the information that you

sent me.

She is very upset and I imagine it will be a slow

diagnosis.

thanks again

Doug

wrote:

> Which parts concerned the doctor and for what reason? Are the ana

> (antinuclear antibodies) and b12 range numbers (single) bottom normal? The

> lymphocyte and neutrophil numbers look below range by a bit. I have a

> diabetic child, so I always grill our HMO advice line people on the test

> numbers and ranges when I call for test results and sometimes have to ask

> the docs about something. I don't know what C3 is but that looks almost

> midrange. Nobody is posting much but it's the weekend. Have you tried to

> get more information from the doctor (or his nurse) on what these numbers

> tell him and/or can you question the lab? J.

> Re: Blood work

>

> Yes, most

> ana 1:320 1:040

> lymphocyte 1.2 1.4-----4

> neutrophil 1.6 2------8

> b12 116 139

> C3 .77 .09----1.9

>

> Doug

>

>

[Guest guest]

How old is your daughter and has she had any particular chemical exposure?

I have read that lupus is more common in women who work in beauty salons,

etc. I look at a serious health condition as a temporary place in time at

which point one can nutritionally (and with various treatments) reverse the

situation towards health. Here is a site with a lupus protocol:

http://www.curezone.com/dis/1.asp?C0=216 J.

Re: Blood work

Hi ,

Thanks for the info we really appreciate it.

The Doctor has suspicions that is might be Lupus

which was mentioned in the information that you

sent me.

She is very upset and I imagine it will be a slow

diagnosis.

thanks again

Doug

[Guest guest]

My daughter is 35 and has not been exposed to any

chemicals that I know of.

Thanks for the site I will check it out.

Doug

wrote:

> How old is your daughter and has she had any particular chemical exposure?

> I have read that lupus is more common in women who work in beauty salons,

> etc. I look at a serious health condition as a temporary place in time at

> which point one can nutritionally (and with various treatments) reverse the

> situation towards health. Here is a site with a lupus protocol:

> http://www.curezone.com/dis/1.asp?C0=216 J.

>

> Re: Blood work

>

> Hi ,

> Thanks for the info we really appreciate it.

> The Doctor has suspicions that is might be Lupus

> which was mentioned in the information that you

> sent me.

> She is very upset and I imagine it will be a slow

> diagnosis.

> thanks again

>

> Doug

>

>

[Guest guest]

Hi

Congratulations on 's good blood counts.

's are up some but the white count is still stubborn, at 2.5. We

are confident with the right combination of prayer, diet, and medicine, all

of the counts will come up.

Once again, thanks for sharing the good news about .

Dad to , Kristi, (all three Down syndrome and with 9

different diagnoses) and (Cri du chat and neurological and behavioral

issues)

Husband to C. in Mo.

Uncle Daddy to and in Calif.

Blood work

> Well, with all the talk on here lately about celiac I finally got around

to taking to have blood work done. The doctor called today and said

everything looks great. Whew! He said that even his cholesterol is great,

considering all the chicken fingers and french fries he has consumed in his

lifetime!

> I had put this blood work off because when we got blood drawn from him

years ago it took many, many people to hold him down and frankly, I couldn't

take the drama. Don and I took him last week to a lab near our home and he

was FANTASTIC! I couldn't believe it! He kept saying, " I'm very brave,

Mom " LOL. He whimpered everytime he took a peek at the needle in his arm,

but he sat still with only one nurse holding his arm still and me and dad

praising him the whole time!

> His reward.........at his request.....2 Egg McMuffins and hash browns!

> Jackie, Mom to 16ds, 13, and Bradley 10

>

>

[Guest guest]

In a message dated 8/18/2004 1:45:45 AM Eastern Daylight Time,

t1d1r1d1@... writes:

Well, I got the results of my latest test and my white count is

dropping again. He is going to let me go another 2 weeks before

another blood test, but I would imagine that I will be back on the

neupogen (sigh).

I keep telling myself to be thankful for the medicine, but I will not

plan anything for the month that I will be on it (can't stand it any

longer than that). I have been feeling better than in a long time

since I have been off of the neupogen. I don't know if it is because

I hurt so very bad while on it, or if things are just making my body

work better? Could the meds actually be working this fast?

Anyway, I have 2 weeks to enjoy and maybe, just maybe, the count will

not drop again. That is my prayer anyway.

Thanks for listening.

<><TammieD><>

And we will pray along with you. More nausea, we don't need. I have enough

of it with the HCV alone.

Anne

[Guest guest]

In a message dated 8/18/2004 1:45:45 AM Eastern Daylight Time,

t1d1r1d1@... writes:

Well, I got the results of my latest test and my white count is

dropping again. He is going to let me go another 2 weeks before

another blood test, but I would imagine that I will be back on the

neupogen (sigh).

I keep telling myself to be thankful for the medicine, but I will not

plan anything for the month that I will be on it (can't stand it any

longer than that). I have been feeling better than in a long time

since I have been off of the neupogen. I don't know if it is because

I hurt so very bad while on it, or if things are just making my body

work better? Could the meds actually be working this fast?

Anyway, I have 2 weeks to enjoy and maybe, just maybe, the count will

not drop again. That is my prayer anyway.

Thanks for listening.

<><TammieD><>

And we will pray along with you. More nausea, we don't need. I have enough

of it with the HCV alone.

Anne

[Guest guest]

Dear Kim

My Doctor does blood work every 3-6 months, more often if he is still ill.

She never wants it to go beyond the 6 month mark.

Amy

Mom to cvid 6 yrs

Blood Work

>Hello all!

>

>I was wondering...my immunologist would see and order blood work

>every 6 months since his diagnosis 4 years ago. Sadly, my Dr. passed

>away suddenly and the new immunologist that took over our case only

>wants to see us once a year and blood work once a year.

>

>I am just curious, how often do you all follow-up with your Drs. and

>how often is blood work drawn. I, of course, am more comfortable with

>every 6 months because that is how it was done from the beginning.

>Change is always difficult, so I was hoping to get an idea of what is

>standard.

>

>The increased risk of cancers always concerned me and bloodwork every

>6 months made me feel a little better.

>

>I don't post too often, but I want to welcome all the new members to

>the site. You have found a wonderfully supportive group of people

>that really do " get it " . I know for me, my circle of friends and

>family, although very supportive, don't really understand the way

>everyone here does. I can't say how many times someone on this site

>expresses my exact thoughts. Welcome to you!

>

>Kim, Mom to (8) CVID

>

>

>

>

>

>

>

>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>To unsubscribe -unsubscribegroups (DOT)

>To search group archives go to:

/messages

>

[Guest guest]

Macey goes every 4 months.

Ursula Holleman

mom to (12 yrs old) and Macey (10 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

Amy and Ursula,

Thanks for your reply...I just wondered what a standard amount of time was

between check-ups and bloodwork. is pretty healthy now, had about 6

breakthrough infections throughout the year, all mild and resolved easily with a

change in the antibiotic (he takes augmentin twice a day, every day). He did,

however, have elevated liver enzymes over the past couple years, but not too

high. Saw a gastro and he was not concerned unless the numbers went over 100.

He does complain regularly (several times a week) of being tired. (Is that

common??) That always worries me, I am always afraid something is brewing, then

nothing...just tired. I will discuss this all with the Drs. this month. Also

complains of leg pain...((growing pains??? is there such a thing?)) My other

two complain of leg pain also.

Just curious.

Thanks again. Kim, Mom to - CVID

Blood Work

> Hello all!

>

> I was wondering...my immunologist would see and order blood

> work

> every 6 months since his diagnosis 4 years ago. Sadly, my Dr.

> passed

> away suddenly and the new immunologist that took over our case

> only

> wants to see us once a year and blood work once a year.

>

> I am just curious, how often do you all follow-up with your Drs.

> and

> how often is blood work drawn. I, of course, am more comfortable

> with

> every 6 months because that is how it was done from the beginning.

>

> Change is always difficult, so I was hoping to get an idea of what

> is

> standard.

>

> The increased risk of cancers always concerned me and bloodwork

> every

> 6 months made me feel a little better.

>

> I don't post too often, but I want to welcome all the new members

> to

> the site. You have found a wonderfully supportive group of people

> that really do " get it " . I know for me, my circle of friends and

> family, although very supportive, don't really understand the way

> everyone here does. I can't say how many times someone on this

> site

> expresses my exact thoughts. Welcome to you!

>

> Kim, Mom to (8) CVID

>

>

>

>

>

>

>

[Guest guest]

In a message dated 5/2/2005 7:59:10 P.M. Eastern Daylight Time,

knmb2@... writes:

He does complain regularly (several times a week) of being tired. (Is that

common??) That always worries me, I am always afraid something is brewing,

then nothing...just tired. I will discuss this all with the Drs. this month.

Also complains of leg pain...((growing pains??? is there such a thing?))

My other two complain of leg pain also.

Yes, being tired is very common. Britt also has leg pains, especially if she

is sick. When it's time for her IVIG they hurt pretty bad also. There is

also a such thing as growing pains though.

I would think they would want to keep close eye on Chris's liver though.

Janet, Mom to Brittany, CVID, age 14

[Guest guest]

In a message dated 5/3/2005 10:45:29 AM Central Standard Time,

BBsmart2@... writes:

> He does complain regularly (several times a week) of being tired. (Is

> that

> common??) That always worries me, I am always afraid something is brewing,

> then nothing...just tired. I will discuss this all with the Drs. this

> month.

> Also complains of leg pain...((growing pains??? is there such a thing?))

> My other two complain of leg pain also.

>

Janet:

gets tired, she calls it " droopy " . Somewhat to my shame, I'm always on

the lookout for fake illnesses for attention, especially when she doesn't have

any visible symptoms (fever, congestion, cough, sick-looking). But then I'll

feel terrible when I sort of *test* her and she passes -- I'll mention gently

that if she's sick her friend can't come over or ask if she's too sick to walk

to the corner store together for a treat -- and she'll actually be too droopy

for those special opportunities which I know she'd never give up willingly.

Ooops.

She has had a LOT of these little periods in Kindergarten, tired and droopy,

maybe a low grade temp here and there, not interested in normal activity. No

other symptoms. One thing I've noticed is if I look at her soft palate with a

flashlight I'll see these tiny clear vesicles. Sometimes she'll have palpable

nodes under her jaw. She will usually say she does not have a sore throat. So

I'm thinking with her it's a minor virus, I just don't know why she seems to

keep getting the same thing over and over. One of the first things I check when

she's not feeling well is her mouth. When she has a bacterial infection she'll

often have a strawberry-looking tongue. That's how I found the vesicles, or

maybe I was looking for petechiae on her soft palate when somebody in

Kindergarten had strep.

The nurse made me pick her up from school today for this very thing! She was

droopy and exhausted, her eyes looked like she had to have a fever of 102 (the

nurse's comment), but she had no fever at all.

(mom to , age 6, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 2-1/2, more dairy intolerant but wonderfully

healthy!)