Re: newbie -

[Guest guest]

Hi ,

My special needs daughter had " absentee " seizures and we didn't know

it until her teacher's aid mentioned it to us. We still didn't see

them after she brought it to our attention so we just figured she

was 'starring off into space' and who doesn't do that occasionally?

Sorry to say but she did develop full blown seizures. We thought

they were due to other medical problems which were not being

properly addressed by the doctors.

(I did not know of this site at that time or things would likely be

different today).

We did not medicate her as we were hoping to address those problems

and solve them without the use of drugs. They wanted to drug her

after her very first seizure but we refused.(age 13) She was

seizure free for 3 years, three years of medication she didn't need.

But unfortunately she did begin to seizure again at around 16 years.

Even then we didn't resort to drugs as we were still trying to solve

the other issues that we felt were 'bringing on' the seizures. None

of the drug doctors had any alternatives or suggestions to try

before resorting to drugs. Eventually after a " status " seizure we

did start her on 100mg(x2) of Lamictal.

That's when I found this site and discovered so many alternatives to

at least try before resorting to drugs.

you will have to go back and read past posts as there is a

WEALTH of information on this site.

Key supplements, Lobelia, diet changes etc etc etc etc. Especially

at the " start " of seizure activity. It's all in here. I really

beleive if I had known then what I know now, we would not have her

on medication today. You've got your work cut out for you.

Does your son get constipated? If so get that in working order. Pay

attention to the foods he eats in case that's part of the patturn.

Also, make sure he stays away from junk foods and neurotoxins like

aspartame, MSG,splenda etc. Your computer is an invaluable tool.

It's a daunting task but it's worth it.

My advice would be to get yourself a little notebook and start

writing down all the different things you hear or read about.

GOOD LUCK.

Sophie

PS... don't feel guilty it's negitive energy just start researching!

We also ended up taking our daughter to a Naturopath as they get the

idea of addressing all issues and working towards solving them not

just masking it with medication.

>

> We are new to the world of seizures and so am frantically trying

to find any/all info I can to help. ( 14) has autism and had a

petit mal seizure( absence?) last wednesday. We are thinking now

that he may have had more in the past but we didnt recognize them as

seizures so add a heap of guilt to a new dx and you can imagine the

state we are all in...sigh....The dr scheduled an EEG but no meds

till we see if he has a recurrance. No sign of anything yet except

that Josh is sick of us following him around looking in his eyes all

the time..LOL...

> I have TONS of questions but dont want to overload

everyone..lol..any sites you can recommend for a beginner? can these

small seizures 'evolve " into grand mal ones? are there obvious

triggers to avoid or does that vary person to person?

> Thanks in advance for any help.

> mary

> May you have warm words on a cold evening,

> a full moon on a dark night,

> and a smooth road all the way to your door.

>

>

[Guest guest]

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just went hysterical, cuz although I know nothing about this, I knew it was NOT good! I feel like he handed me a death dentence and a Scarlet Letter! PLEASE, I need some friends I can talk to, and I need some education. I heard I'm going to die a painful death from this, is that true, am I going to die?????? AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

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