Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 hi...same story here...my daughter is 10 now, and was just started on felbatol, im keeping my fingers crossed. can you please tell me what supplements you give your son? thanks sarah Schiera <schieratwins@...> wrote: hi , My name is , my 5 yo son has complex partials that secondary generalize. Your story sounded a LOT like mine. My son was so incredibly bright at age 2... then he just slowly started to slip away. By 3 1/2 we were just dumbfounded as to what was going on with him. A few months later we began to see the seizures. is now on his 6th med. Nothing else has worked. Not the VNS, the diet or any other combo of meds. 4 months ago we started taking him to a naturopath to hopefully get his body healthy again. He's on about 12 supplements a day. As recent as 2 months ago, his epileptologist scheduled a hospital stay to begin testing for surgery options. 6 weeks ago was when we added the 12th supplement. He woke up the very next day returned to us. Previously he wasn't going 10 seconds without having some type of seizure activity. Oct 23rd, instead of having presurgery testing, he had a routine EEG. It was normal. Competely normal. is still on felbatol. I do believe it's helping, but I also believe that the supplements we're giving him have gotten his body healthy and are now allowing the meds to work. currently receives OT, speech and music therapy through the school system. He's making strides at recovering every single day. But, he's still functioning as if he were 3 or so. I have faith that he will fully recover though. Keep up your fight for your son. Miracles do happen. Best of luck to you, Quote Link to comment Share on other sites More sharing options...
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