dizziness-bppv-thanks to all

[Guest guest]

I have spoken to several people about dizziness and BPPV in the last

week or so. Forgive me for forgetting everyones' names. Just to reply

to you all that have the same troubles and answered my posts, I

really appreciate it. I have been dizzy for a long time now. Starting

out with it being every once in a while to now a 24/7 thing. At first

they thought it might be anxiety. Then diabetes. Then seizures, which

I see a neurologist for. She says the tests do show some mild odd

electrical charges in the left temporal lobe that could be partial

seizures but seems to think that this is not the problem because I

have dizziness all the time. She said with seizures , they would come

and go and not be all the time. I went in for vestibular testing and

the neurologist says that the test shows dizziness due to nystagmus(

jumping of the eyes) and they think I have BPPV, that they are pretty

sure it is noy my brain causing this problem. My hearing is fine

except for the occasional full feeling that I get sometimes. So I go

to the ENT doctors and they say that it is definitely not my ears

that it must be neurological. So there I was again back at square

one. I called the neuro and told her what the ENT doctor said. I

ended up going back to the ENT doctor and now they say they think

that I have BPPV, I am doing vestibular therapy for the second time.

Epley maneuver, etc. I feel worse now than I did before I started

therapy. He hasn't given me any meds because he says they won't work

for this problem, I can't even get in the car and ride to the end of

the road without getting sick. much less drive. I fell down a flight

of stairs and tore the ligaments in both ankles. I still don't have a

diagnosis for the dizziness that has put my life at a standstill. I

have always been an active person. Now some days I do good to get out

of bed. I do have Sjogren's Syndrome which explains a lot of the

fatigue but not the dizziness according to the doctors. Sometimes

they act as if I am exaggerating. I have had several tests repeated

over and over: mri's, cat scans. x-rays, tons of blood work,

Everything came back normal. So for all of you here that have shared

your stories I really appreciate it and hope you continue to do so.

You have given me hope. And for those of you that have found

something to help this problem, no matter what it is, please let me

know. I did see some posts from some people that were having this

same problem but they were undiagnosed as I am. Any info is greatly

appreciated even if it something you think is not important to you,

it may be important to us. Sorry so long!!!! THANKS!!!!!!!Tammy in MS

[Guest guest]

Dizzyness. My son was really dizzy for 6 years. All the time. He has temporal

lobe seizures. I would not rule out that possibility. Have you tried a really

good cleanse and fast for a bit? Has helped him along with Tahitian Noni Juice.

Clayburn

Quilting by Design

www.quiltingbydesign.com

Check out my Blog for Everyday Autism

http://thepuzzleboy.blogharbor.com

Watch for my upcoming book:

The Puzzle Boy

[ ] dizziness-bppv-thanks to all

I have spoken to several people about dizziness and BPPV in the last

week or so. Forgive me for forgetting everyones' names. Just to reply

to you all that have the same troubles and answered my posts, I

really appreciate it. I have been dizzy for a long time now. Starting

out with it being every once in a while to now a 24/7 thing. At first

they thought it might be anxiety. Then diabetes. Then seizures, which

I see a neurologist for. She says the tests do show some mild odd

electrical charges in the left temporal lobe that could be partial

seizures but seems to think that this is not the problem because I

have dizziness all the time. She said with seizures , they would come

and go and not be all the time. I went in for vestibular testing and

the neurologist says that the test shows dizziness due to nystagmus(

jumping of the eyes) and they think I have BPPV, that they are pretty

sure it is noy my brain causing this problem. My hearing is fine

except for the occasional full feeling that I get sometimes. So I go

to the ENT doctors and they say that it is definitely not my ears

that it must be neurological. So there I was again back at square

one. I called the neuro and told her what the ENT doctor said. I

ended up going back to the ENT doctor and now they say they think

that I have BPPV, I am doing vestibular therapy for the second time.

Epley maneuver, etc. I feel worse now than I did before I started

therapy. He hasn't given me any meds because he says they won't work

for this problem, I can't even get in the car and ride to the end of

the road without getting sick. much less drive. I fell down a flight

of stairs and tore the ligaments in both ankles. I still don't have a

diagnosis for the dizziness that has put my life at a standstill. I

have always been an active person. Now some days I do good to get out

of bed. I do have Sjogren's Syndrome which explains a lot of the

fatigue but not the dizziness according to the doctors. Sometimes

they act as if I am exaggerating. I have had several tests repeated

over and over: mri's, cat scans. x-rays, tons of blood work,

Everything came back normal. So for all of you here that have shared

your stories I really appreciate it and hope you continue to do so.

You have given me hope. And for those of you that have found

something to help this problem, no matter what it is, please let me

know. I did see some posts from some people that were having this

same problem but they were undiagnosed as I am. Any info is greatly

appreciated even if it something you think is not important to you,

it may be important to us. Sorry so long!!!! THANKS!!!!!!!Tammy in MS