Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 My brother ( now 15 yrs old ) got his first seizure when he was 11 yrs old. He has been taking medicines and sometimes it misses too. He has got too weak and his height is 6 feet and very skinny. he cant even walk properly nowadays. Any Advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 My son is 16 and his seizures started at 13. He has never been on meds and we have managed them through diet, detox, supplementing his adrenal and thyroid, and everything else under the sun. He went to two different chiropractors that thought that they could help and they did to a degree. Austin was tired and weak most of the time and couldn't seem to hold up his growing frame. Finally, we found a neurological chiropractor that has been nothing less then amazing. When she first heard that we were coming in she thought that she couldn't help us, because she thought that he had epilepsy for 16 years. We only see her every three week and she thinks that he will be seizure free in a few months. Austin is now full of energy and able to do his school work quickly. He does eye exercises on the computer every two hour and that's basically it, but it is strengthening his brain. Who would have ever thought that so little could do so much. My doctor is Dr. at _www.shastafamilychiropractic.com_ (http://www.shastafamilychiropractic.com) . I would think about getting your brother off the meds and find him a chiropractor that specializes in neurology. After three years of doing everything under the sun and spending lots of money, I found help just a couple of miles away and without spending an arm and a leg. I hope that this is helpful info to you, for I know how difficult and heart breaking it is for the whole family. May the Lord bless you, **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Get him to a naturopathic dr. And get him off the medication by titrating him off of them. Start researching on google all that you can regarding natural supplementation and seizures. Rae Lynne [ ] Serious case My brother ( now 15 yrs old ) got his first seizure when he was 11 yrs old. He has been taking medicines and sometimes it misses too. He has got too weak and his height is 6 feet and very skinny. he cant even walk properly nowadays. Any Advice? Messages in this topic (1) Reply (via web post) | Start a new topic [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 I would be careful taking off the medication...definitely agree with Rae Lynne on seeking out a naturopathic Doctor immediately though - they should be able to help. > > Get him to a naturopathic dr. And get him off the medication by titrating him off of them. Start researching on google all that you can regarding natural supplementation and seizures. > > Rae Lynne > > [ ] Serious case > > My brother ( now 15 yrs old ) got his first seizure when he was 11 yrs > old. He has been taking medicines and sometimes it misses too. He has > got too weak and his height is 6 feet and very skinny. he cant even > walk properly nowadays. Any Advice? > > > Messages in this topic (1) Reply (via web post) | Start a new topic > > > [The entire original message is not included] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2008 Report Share Posted September 5, 2008 , just wondering if thyroid and adrenal support initally had any effect on his seizures? To a point? Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2008 Report Share Posted September 5, 2008 Completely agree that's why I stated to titrate off the meds. You should NEVER titrate off medication, especially anti seizure meds without the supervision of a doctor. But do insist that it be done. If you think vaccines are bad what do you think the anti seizure medication is doing? It comes from the same people that are behind the vaccines and has the same things in them. Get your children off of them. Get the urine neurotransmitter testing done to see what the brain hormones are doing and what the glutamate levels are at. They will then recommend natural supplements to get those levels down so that the seizures begin to slow or stop completely. Don't stop getting answers until you have an answer for your child. Rae Lynne [ ] Serious case > > My brother ( now 15 yrs old ) got his first seizure when he was 11 yrs > old. He has been taking medicines and sometimes it misses too. He has > got too weak and his height is 6 feet and very skinny. he cant even > walk properly nowadays. Any Advice? > > > Messages in this topic (1) Reply (via web post) | Start a new topic > > > [The entire original message is not included] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Thankyou for all the replies. I got busy. his present case is stated below!!!! Patient's Name ……………………. ZUBAIR Age ………………………………………. 15 years Zubair has epilepsy which is now complicated by other problems including low calcium and magnesium, high blood pressure, anemia and acute renal failure. The reports of his hospital stay are attached. Zubair got first seizure while he was 11 years old. We took him to a general doctor and he said its weakness and nothing else. Later we took him to the best hospital of Karachi, Pakistan (Agha Khan Hospital) and there they said they want to take a test called ECG for which he will have to wake up all the night and early in the morning the test would be done. We failed to wake him up all day. Anyways the doctor of Agha Khan Hospital didn't give any medicine for epilepsy nor did they say he has epilepsy. We didn't take it seriously and thought it's a weakness. When he got another seizure we couldn't do anything as the doctors said they can't do anything nor give medicines until ECG test is performed. Someone advised us to see a neurologist and we took him their. There for the first time they said he has epilepsy and it would be cured after 3 to 5 years of medical treatment. The name of the hospital is Rabia moon memorial neurological hospital. It's a small hospital. They took his ECG too. They gave us EPIVAL syrup which was continued for the next three years. His seizures were controlled but not completely. Sometimes his one dose misses as well which according to the doctor is not good as the treatment requires accurate supply of medicine to the body. We were not satisfied with the doctor and changed a lot of doctors as the seizures were not being controlled. Sometimes when he get seizures they are so strong and coming simultaneously that we have to immediately take him to the hospital where the doctor gives him sleeping injection to stop the seizures. And later we bring him back home. He was two to three times admitted in ICU too but due to his very angry behavior and him wanting to go home makes his ICU treatment incomplete and he comes home. But in November 2007 when he was in in a seizure and in emergency room, a doctor named Dr. Naila Shebaz came to see him which later became his doctor. She gave him epival Tablets 500 mg instead of epival syrup. She even gave the same medicine Lamnet 100 mg and Bacefol Tablet with the epilepsy medicine. For six months that is from December 2007 till June 2008 he didn't get one single seizure and he was doing okay. He was very slow in school and was in the same class for three years. We have admitted him to a school called Institue of psychology behavioral IBP which is a school for special children and slow learners. Anyways he got a seizure on June 2008 which made us worried as he was doing okay. After some weeks we found one of his foot's thumb swollen and after two to three days his one foot was swollen and later two feet got swollen. We took him to a doctor who wants us to take his blood test. It didn't come normal and he advised us to take his chest X ray and other blood tests and he advised us to see a general physician. Meanwhile he got another seizure and we took him to his main Dr. Naila shebaz. She said more blood tests and advised to see a general physican. When we went to the general physician, we told them that his feet are swallon and he cannot stand up and walk. He examined him carefully and said he should be admitted to the ICU. He was in ICU for 14 days and then he came back home. The doctors say he has epilepsy low calcium and magnesium and high blood pressure. They said it's not epilepsy it's something else which they cannot figure it out. They even wanted to take his bone marrow test which later they didn't take it in order to trace the exact problem Laters Dr. Naila Shebaz advised us to see this professor Khalid Mehmood who is a doctor too. He said give him Vit. D injdection after 15 days with some other medicines. He couldn't walk for the last two to three months but now his feet are normal after the injection and medicine. But still he can't stand up and walk properly. He has got so much weak that he is too skinny. he is the tallset in family although he is the younger most child. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 I want to share with you and get advice and help. Zubair isn't walking from the last 4 months. My father say he had dehydration and loose motion when he was 15 DAYS old. So the doctor said there is a chance his kidneys got affected at tht time. He is 15 yrs old now. Last week he has been so bad. He get frightens suddenly, dont respond and even he cant hold his head. He is in ICU now under a kidney doctor, NEPHROLOGY! he is getting first dialysis now. Advice please:) Quote Link to comment Share on other sites More sharing options...
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