Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 I wonder the same thing. Who will take care of them. My dd seems so normal to most people,(she is not) so who will give her special care? Who will watch out for her? How old is your child? Boy or Girl? On Nov 28, 2008, at 11:13 PM, cindyosullivan wrote: > Is there any hope that a cure is on the horizon for epilepsy? Can stem > cell research be the answer? It always seems so grim. The doctors > seem to know only as much as us. They always say they know so little > about the brain. And they can't even tell us what type of epilepsy our > son has. Why no push to help these chilren? Our son also has > hemophilia and the doctors are always so grim about that too. There > will never be a cure or improvement in our son's lifetime is what they > tell us. Isn't that awful negative. Does no one care? Is ther not > enough money to be made curing these disorders/diseases? Just > questions running through my mind while I sit here wondering how my > baby boy is going to live with this awful thing having hundreds of > uncontrollable seizures a day. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 There are those who would tell you you should teach your son to embrace,and celebrate his epilepsy,because that is part of his neurodiversity. http://leftbrainrightbrain.co.uk/?p=488 http://christianforums.com/showthread.php?p=49340777 From: cindyosullivan <cindyosullivan@...> Subject: [ ] Is there any hope? Date: Friday, November 28, 2008, 10:13 PM Is there any hope that a cure is on the horizon for epilepsy? Can stem cell research be the answer? It always seems so grim. The doctors seem to know only as much as us. They always say they know so little about the brain. And they can't even tell us what type of epilepsy our son has. Why no push to help these chilren? Our son also has hemophilia and the doctors are always so grim about that too. There will never be a cure or improvement in our son's lifetime is what they tell us. Isn't that awful negative. Does no one care? Is ther not enough money to be made curing these disorders/diseases? Just questions running through my mind while I sit here wondering how my baby boy is going to live with this awful thing having hundreds of uncontrollable seizures a day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2008 Report Share Posted November 30, 2008 Sorry, but that is insanity to me.... This is dangerous stuff- not some personality issue... From: cindyosullivan <cindyosullivan> Subject: [ ] Is there any hope? Date: Friday, November 28, 2008, 10:13 PM Is there any hope that a cure is on the horizon for epilepsy? Can stem cell research be the answer? It always seems so grim. The doctors seem to know only as much as us. They always say they know so little about the brain. And they can't even tell us what type of epilepsy our son has. Why no push to help these chilren? Our son also has hemophilia and the doctors are always so grim about that too. There will never be a cure or improvement in our son's lifetime is what they tell us. Isn't that awful negative. Does no one care? Is ther not enough money to be made curing these disorders/diseases? Just questions running through my mind while I sit here wondering how my baby boy is going to live with this awful thing having hundreds of uncontrollable seizures a day. Quote Link to comment Share on other sites More sharing options...
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