Guest guest Posted November 28, 2008 Report Share Posted November 28, 2008 Our son is having hundreds of seizures a day. They were very rare and mild before he started keppra. Then we switched to Depakote because he was getting worse and discovered that they were now hundreds a day. The Depakote did nothing and he even seemed worse. We spent 3 days in the hospital to detox him of depakote and now he seems about the same maybe a small bit worse but he is now sleep deprived. The doctors want him to start taking zonagram. We want to start a low glycemic diet instead. Any input or insight into what we should or could do next. He has failed 2 drugs. We have heard good things about lamictal but the doctors say it will take too long to get into his system and see any type of improvement. Is that a good enough reason to not use it. what if that is the drug that will help him? what if the low glycemic diet is all he needs and they keep medicating him. And when do you stop trying new meds. What do you do when no med helps and no diet helps. There telling us there is only a 4% chance any med or diet will help him at this point. they don't even know what type/kind of epilepsy it is. Just constant spiking all day even evening, can't walk, speech is terrible, not learning. What do we do? Quote Link to comment Share on other sites More sharing options...
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