Re: Re: Hundreds of Seizures a day -- Cindy

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I can't get this video to play. Any suggestions?

On Nov 29, 2008, at 2:49 PM, B. wrote:

> Hi ,

> My 14 year old daughter (long thought to be PDD-NOS...) was recently

> diagnosed as autistic and epileptic -- 1 doctor prescribed Lamictal

> and another prescribed zonegran -- I am not anti-medication, but I

> always try any natural route first. In any case, the website below

> was recently brought omy attention and I started trying this

> technique for about a week or so and now my daughter is not having

> any seizures -- she has " moments " that look like they might develop

> into a seizure so I try to get her to sit down to prevent injury, and

> before she can even sit, the moment just passes and she's back to

> herself -- these moments are less and less frequent and less and less

> severe. It's simple and cheap -- nothing to lose. It might work for

> you, too.

> http://www.viddler.com/explore/THRiiiVE/videos/34/

>

> With best wishes,

>

>

>

> >

> > Our son is having hundreds of seizures a day. They were very rare

> and

> > mild before he started keppra. Then we switched to Depakote because

> > he was getting worse and discovered that they were now hundreds a

> day.

> > The Depakote did nothing and he even seemed worse. We spent 3 days

> > in the hospital to detox him of depakote and now he seems about the

> > same maybe a small bit worse but he is now sleep deprived. The

> > doctors want him to start taking zonagram. We want to start a low

> > glycemic diet instead. Any input or insight into what we should or

> > could do next. He has failed 2 drugs. We have heard good things

> > about lamictal but the doctors say it will take too long to get into

> > his system and see any type of improvement. Is that a good enough

> > reason to not use it. what if that is the drug that will help him?

> > what if the low glycemic diet is all he needs and they keep

> medicating

> > him. And when do you stop trying new meds. What do you do when no

> > med helps and no diet helps. There telling us there is only a 4%

> > chance any med or diet will help him at this point. they don't even

> > know what type/kind of epilepsy it is. Just constant spiking all

> day

> > even evening, can't walk, speech is terrible, not learning. What do

> > we do?

> >

>

>

>