Re: Hundreds of Seizures a day -- Cindy

November 29, 2008

Hi ,

My 14 year old daughter (long thought to be PDD-NOS...) was recently

diagnosed as autistic and epileptic -- 1 doctor prescribed Lamictal

and another prescribed zonegran -- I am not anti-medication, but I

always try any natural route first. In any case, the website below

was recently brought omy attention and I started trying this

technique for about a week or so and now my daughter is not having

any seizures -- she has " moments " that look like they might develop

into a seizure so I try to get her to sit down to prevent injury, and

before she can even sit, the moment just passes and she's back to

herself -- these moments are less and less frequent and less and less

severe. It's simple and cheap -- nothing to lose. It might work for

you, too.

With best wishes,

>

> Our son is having hundreds of seizures a day. They were very rare

and

> mild before he started keppra. Then we switched to Depakote because

> he was getting worse and discovered that they were now hundreds a

day.

> The Depakote did nothing and he even seemed worse. We spent 3 days

> in the hospital to detox him of depakote and now he seems about the

> same maybe a small bit worse but he is now sleep deprived. The

> doctors want him to start taking zonagram. We want to start a low

> glycemic diet instead. Any input or insight into what we should or

> could do next. He has failed 2 drugs. We have heard good things

> about lamictal but the doctors say it will take too long to get into

> his system and see any type of improvement. Is that a good enough

> reason to not use it. what if that is the drug that will help him?

> what if the low glycemic diet is all he needs and they keep

medicating

> him. And when do you stop trying new meds. What do you do when no

> med helps and no diet helps. There telling us there is only a 4%

> chance any med or diet will help him at this point. they don't even

> know what type/kind of epilepsy it is. Just constant spiking all

day

> even evening, can't walk, speech is terrible, not learning. What do

> we do?

>

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