Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Tina... Good for you for taking charge! My daughter Aimee is about to turn 11 months old and just got her helmet last week. Its not to late but its something that should be done quickly. We have CIGNA insurance and we are having to send in an appeal letter because they have denied to cover the cost of this....however I am confident that we will win.....I am sure someone here can help you with your particular ins. Also please take a look in the files section at egroups to see about ins. stuff....Good luck tomorrow..... Domi ----- Original Message ----- From: " Tina Rizzo " <tinarizzo@...> <plagiocephalyegroups> Sent: Monday, December 04, 2000 10:23 PM Subject: new subscriber > Hi, > > I'm new to this group as well as being new to the word plagiocephaly! I > have a 9 month old daughter with a misshapen head. Her pediatrician has > pretty much dismissed it as anything to act upon, but I feel otherwise. It's > not severe, but it definitely exists. And now I learn that this is > something that needs to be addressed right away because of her age. I was > fortunate enough to get an appointment with a neurosurgeon for tomorrow, > but still really feel like I need some info. I'm also concerned about > whether my insurance (Blue Cross PPO) will cover this if it's considered > cosmetic. > > Any feedback? > > Tina Rizzo > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Tina: My baby got her helmet at 9 months old and we have seen great progress. You are not too late and it is great that you could get in with a neurosurgeon so quickly. I do not have BC/BS, but I have seen posts from others that say has paid in some situations and denied in others. One way or the other, you will probably have to do some work to get your insurance carrier to pay. I would suggest you check out the CAPPS website (stands for Craniosynostosis and Positional Plagiocephaly Support) One of our egroup members (Jaya) has posted some outstanding information on that webpage. It is a very good place to start gathering information and getting answers to the million questions floating around in your mind at this time. You have come to the right place. The people here can help you with just about ANY question you might - they are great!!!!!!! That webpage is: www.CAPS2000.org I would say to go with your gut feeling. A mother's instinct is rarely wrong - it's too bad more pediatricians don't realize that!! (Most of the people here have had peds tell them not to worry, the problem will correct itself!) Good luck and keep us posted. Marci (Mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Tina, 's been in her DOC band since 10/13. Her ped STILL insists she would've " rounded out on her own " . My standard advice? Trust YOUR " mommy instinct " . Becky & (5/4/00, banded since 10/13/00) Plano, TX Tina Rizzo wrote: > > Hi, > > I'm new to this group as well as being new to the word plagiocephaly! I > have a 9 month old daughter with a misshapen head. Her pediatrician has > pretty much dismissed it as anything to act upon, but I feel otherwise. It's > not severe, but it definitely exists. And now I learn that this is > something that needs to be addressed right away because of her age. I was > fortunate enough to get an appointment with a neurosurgeon for tomorrow, > but still really feel like I need some info. I'm also concerned about > whether my insurance (Blue Cross PPO) will cover this if it's considered > cosmetic. > > Any feedback? > > Tina Rizzo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Barbara, Did I understand you correctly...that your asthma gets better in the cold? Are you sure you have asthma? The reason I ask this is because this is quite similar to what my 4 yr. old son was doing and it was thought that he had asthma too. Although, when I talked to one of the experts regarding this toxic mold problem I found out the true asthma DOES NOT get better in cold, it typically gets much worse. I was told that it is most likely some sort of lung problem, but maybe not asthma. Just something to think about. Of course, this person had not seen my son yet, but found it strange that he was being diagnosed with asthma if his lungs got BETTER in the cold...totally backwards is what he said. He explained that it was more similar to " croup " ...this made perfect sense too because that is what he kept originally being diagnosed as, but then the local doc. (who doesn't have a clue what they're dealing with) said it must be asthma because you can't have repeated croup....well, that's true essentially, but asthma may not have been correct either. To any of you: Please correct me if you know any of this information to be wrong. I'm mainly going by what one of the doctors told me and also based on my medical transcription training (that is what little of it I got finished before I was forced from my home due to mold). Best wishes to you. Sincerely, Beverly --- Raisyl@... wrote: > Hello, > > Thanks to Barb Herskowitz for reading a post of mine > on an MCS website > about my worsening asthma. I hope this group can > help me avoid what I > am sure are unecessary drugs and suffering. > > I have MCS and toxic encephalopathy from multiple > pesticide exposures. > I also have asthma from these exposures and from > being working sick > buildings with no outside air vented in (the law > only requires 10 % and > my offices did not even get that much). > > My last exposures to pesticides both at home and > office finished me off > and I am now disabled. While living in my father's > house (his wife's > actually) for three months I was unable to breathe > there - they have > steam heat which has always been fine for me, but > have a mold problem in > their basement and keep the house hermetically > sealed to save on heating > bills. > > I kept to a single bedroom and closed off the > heating vent, while > keeping an air purifier on and a window wide open. > In the rest of the > house I wore a particle mask. > > I am now in a new apartment near the water and the > outside air quality > is great! No mask needed outdoors. When I moved > in, I did not detect > any mold odors on this second floor of a two family > house. However, in > my second week of living here, the asthma started up > again. Each room > has two steam radiators (no vents permitting air > from other floors up > however). I started using an inhaler and wear a mask > outside the > bedroom. In the bedroom, a window is open and a > Care2000 hums 24/7 but > I am still smelling musty odor and my asthma seems > to worsen/lighten > depending upon the heat situation. Last night, in > desperation, I put > heavy duty aluminum foil over the radiators and > staved off frostbite > (this is NY) with a small ceramic electric heater. > My lungs were better > in less than an hour! If it works again tonight, I > will ask the > landlord to show me how to shut off the radiators. > > Questions: > 1. Why would hot water/steam heat bother me now? > 2. Will heated aluminum foil be a short-term problem > for me? > 3. Does anyone know a good brand of electic heater I > could buy for a > large bedroom. My ceramic heater is better for a > smaller room like my > sitting/tv room. > > Any assistance you can render will be appreciated. > BTW - the worst > damage done to me was while I was under > accommodation plans at work and > with a previous landlord (new tenants refused to > follow his guidelines > about protecting me). People don't believe we can > be harmed by these > things they cannot see! > > Barbara > > http://community.webtv.net/Raisyl/PHOENIXRISING > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 I probably have RADS. Barbara http://community.webtv.net/Raisyl/PHOENIXRISING Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 Hello everyone!! I have just subscribed to this group, although many of you may know me from other saline support groups. However, I just wanted to let those of you who don't know me that I am a survivor of saline implants. I had mine placed in Oct '96 and they were McGhan textured. I had them removed in Feb because of multiple health problems, including lupus, fibromyalgia, degenerative disk disease, Raynaud's, & Sjogren's. In addition, I had a stroke, open heart surgery, and a cervical spinal fusion. The latter all occurred in the period of 1 yr. I am only 31 yrs old. I had my implants sent to Pierre Blais after explantation, and the findings were astonishing. One of my implants had a slow leak, the other had leaked silicone from the capsule and my ps had to do some serious scraping to remove silicone pieces, and both implants grew out Staph epi, Aspergillis niger, and Aspergillis bouffardi. In addition, I found out that the particular style of McGhan's I had were defective, were manufactured incorrectly, and that the valve was not proportioned right. Pierre said that I had the implants removed shortly before there would have been separation of key pieces, leading to rapid deflation (within hrs) followed by a severe infective episode, more than likely fighting for my life. For this reason, I am bringing a lawsuit against McGhan, and 4 other women have joined me in my fight. I invite any woman who has or had McGhan saline implants to join me in the lawsuit. I have made the decision to do my best to educate women on the dangers of implants, and help them make an informed decision. Because I am a registered nurse, I also have the medical knowledge some women need and desire, as well as the knowledge needed to work with insurance companies to get the surgery covered. I have been able to help many women successfully get their insurance to pay for the surgery by educating them on how to deal with and speak to their insurance company, and I have written many letters to insurance companies explaining the importance of getting implants removed. Because I am also a legal nurse consultant, insurance companies tend to listen to what I have to say. So, for anyone out there who needs help or info please feel free to contact me with any questions or concerns you may have. You may contact me here, or at my personal email Cvrn8@.... Sincerely, e, RN, BSN, LNC Quote Link to comment Share on other sites More sharing options...
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