new and need help

[Guest guest]

Hello, My name is Barbara Baker and we used Cranial Technologies clinic in Dallas for my son Korben!! Here is the phone number for them: 972-239-3555!! Their address is 6750 Hillcrest Plaza, Dallas Texas 75230!! I hope that this will help you!! Good Luck!!

Barbara Baker

mom of Marshall And Korben

Korben DOCband Grad!!

[Guest guest]

Dee where are you in Louisiana and how far a drive are you to Memphis or little rock?

I am going to email you personally but here are some links you might want to check out.........

Find a Preferred Physician: Search by Location

DOC

Orthomerica

I would check both sites to see if there is a doc or star band provider that might be close to you also check for a DR that is plagio friendly that you could see. If you have a long trip to either provider I can help you get free airfare through angel flight here is there link and I will be happy to tell you more about them

The Air Care Alliance

beck

[Guest guest]

Hi Dee & welcome to our group!

We're glad you have found us. Congratulations on your new

daughter We had another member a while back who also had an

adopted daughter from China with plagio as well. There's a great

search at www.plagiocephaly.org that locates Drs in states. I've

copied and pasted what I found in LA.

>>>>>Preferred Physician: G.E. Ghali, DDS, MD

specialty:

address: Louisiana State University Medical Center

1501 Kings Highway

City: Shreveport

State: LA

Province, Territory

or Non-US State:

Zip/postal code: 71130

Country: USA

Telephone number: 318-675-6101

Physician's Website

(if available): <<<<<

Hopefully this Dr is near you and will be able to help you & your

daughter.

I can't remember seeing any members from Louisiana in our group

before.

Let us know what you find out and if you are able to get an appt with

a Dr.

Good luck & welcome again.

Debbie abby's mom DOCGrad

MI

> Hi! My name is Dee Sullivan. I have a 9 month old daughter that I

> adopted from China 1 month ago. The back of her head is flat,

> especially the right side. I have looked around for information

> about a doctor that deals with plagio in Louisiana, but have not

had

> any luck. Is there anyone on this list from Louisiana? If there

> is, do you have any advice about who to see? I have been in touch

> with someone in the Dallas area and have a number to call for help

> there, but if there is someone that could help us that is closer to

> home it would be better.

>

> Dee Sullivan, Mom to Min Sullivan ( Beth)

[Guest guest]

Hi, Dee, my name is Corina. There is increasing awareness in the medical community, but it is slow. My pediatrician never even mentioned it tho I kept asking about my son's flat head. The usual specialist that deals with it is a neurosurgeon (doesn't mean surgery) and/or a craniofacial specialist. A pediatrician with knowledge could easily write the prescription for it, but many won't cuz they don't feel equipped (read knowledgeable enough) to do so. Then you have basically 2 choices:

1. Contact Cranial Technologies who does the DOC Band

2. Take the prescription to an orthotist who will do the casting and send it off to OrthoAmerica, which will make and send back the STAR Band. There are pros and cons to both.

My experience so far here in TX is that the DOC band costs more (about $3000, but it includes ALL the follow-up visits). Also, you have to travel to them frequently for casting, fitting, and adjustments. However, if you check out Air Care Alliance at www.aircarall.org, you can find assistance on the flying part. The folks at CT are very knowledgeable, they really know there stuff, and success is high because it is the ONLY thing they do.

Option 2 is the orthotist I mentioned. The advantage is you don't have to travel and it's cheaper all around. But some concerns are that you want an orthotist with LOTS of experience with plagio and the bands. Ask to see before and after photos. My orthotist used to actually build his own until CT petitioned the FDA to change the classification, which wiped out all competition from the smaller businesses, leaving only CT and Ortho America.

Further considerations: Check with your pediatrician and see if he/she is comfortable writing the prescription for a band. Check with your insurance company to make sure they will pay (if you read messages on this board and if you go to the plagiocephaly website you'll see how for many this is a BIG struggle.) Some companies require a precertification, so check with them.

As you can see there are pros and cons to both routes. But you're on the right track visiting this website and the plagio one. Good luck!!

Corina Hyer

[Guest guest]

Hi Dee,

Where in Louisiana are you? Several people have already mentioned Cranial Technologies in Dallas, and that's where we went, but there is also a place in Houston that does DOC bands. Maybe it is closer to you. They have already done close to 200 bands this year in Houston, so they have experience. Starbands are also available in Dallas now, but they are so new here that I wouldn't recommend them. The folks at CT told me that they have had several "transfers" from them to CT, so that doesn't so too good. Who were you told to see in Dallas? We saw Dr. Day - the experience has been mixed, but the overall outcome for us was fantastic. My twins had moderate/severe plagio and got fantastic correction. Good luck with your search.

Gail, Sam and Sara's mom, front page stars this month and DOC grads

P.S. I have a niece that was adopted from China when she was almost 3 years old and her head is really flat. Fortunately for her she has TONS of hair and I never really noticed until I actually learned about plagio myself.

New and Need Help

Hi! My name is Dee Sullivan. I have a 9 month old daughter that I adopted from China 1 month ago. The back of her head is flat, especially the right side. I have looked around for information about a doctor that deals with plagio in Louisiana, but have not had any luck. Is there anyone on this list from Louisiana? If there is, do you have any advice about who to see? I have been in touch with someone in the Dallas area and have a number to call for help there, but if there is someone that could help us that is closer to home it would be better. Dee Sullivan, Mom to Min Sullivan ( Beth)For more plagio info

[Guest guest]

> My orthotist used to actually build his own until CT petitioned

the FDA to change the classification, which wiped out all

competition from the smaller businesses, leaving only CT and Ortho

America.

>

This is not true. I believe the FDA surprised CT by requiring

approval. I read this on their website, I think, or some website

before making our decision as we were considering a local helmet.

There are many local helmets that are also FDA approved. You can

find a list of them in the files section.

Dane's mom DOC Grad

BTW- I am offline for the most part with pneumonia. I am FINE, just

laying around and chillin'! LOL!

[Guest guest]

Hi Dee and welcome! Congratulations on your adoption of

Beth! I see that Debbie has already cut and paste some

information about a dr in LA. I can't remember ever seeing

anyone from LA in our group either, but you could try searching

the message archive. Use the keyword Louisianna. You might

also check out www.orthomerica.com and see if they have any

orthos in your area that make STARbands. They might be able to

suggest a specialist in your area that sees babies with plagio.

Best of luck with that and please let us know if we can you in any

other way. I'm glad you have joined us.

Marci (Mom to )

Oklahoma

> Hi! My name is Dee Sullivan. I have a 9 month old daughter

that I

> adopted from China 1 month ago. The back of her head is flat,

> especially the right side. I have looked around for information

> about a doctor that deals with plagio in Louisiana, but have not

had

> any luck. Is there anyone on this list from Louisiana? If there

> is, do you have any advice about who to see? I have been in

touch

> with someone in the Dallas area and have a number to call for

help

> there, but if there is someone that could help us that is closer

to

> home it would be better.

>

> Dee Sullivan, Mom to Min Sullivan ( Beth)

[Guest guest]

Hi Dee,

Welcome to the group! My sister's best friend just adopted a little girl from China about 2 months ago! I applaud your efforts at giving this little one a great life too! Does have full rotation in both directions? Check to see if she can turn her head all the way, both ways, by using a toy and tracking. A child at my son's pt was dx with plagio first, and then at 10 months old, with torticollis, so it can go undetected with an unknowledgeable Doctor. Ask your ped to address this, and refer you to pt if this is a concern. Try to repo off that spot as much as possible, but if its severe, you may want to seek helmet therapy while time is still on your side to effectively treat the plagio. Let us know what your ped says regarding tort, and please keep us posted on how things are going. Good luck!

' Mom

[Guest guest]

>>>This is not true. I believe the FDA surprised CT by requiring approval. I read this on their website, I think, or some website before making our decision as we were considering a local helmet. There are many local helmets that are also FDA approved. You can find a list of them in the files section.

, I'm sorry but your info is faulty. CT DID petition the FDA. Here's the link to the actual "Final Ruling." If you read it you will see CT mentioned as the petitioner several times. I don't want to badmouth them cuz I know they are very successful at what they do, but they did eliminate ALOT of the competition because, as I've researched I've discovered that it costs a lot of money and time to get the Section 513 (f)(2) clearance. So many orthotists in smaller areas simply quit making them. So, unless they spend the money and time to get the clearance, their only option is to cast/fit it themselves, send the cast off to STAR Band and then follow thru the treatment themselves.

My Orthotist told me that prior to CT's petition he used to make his own, do all the adjustments, etc. But after the Final Ruling in CT's favor, the prices of bands went up and competition went down. Again, I'm not trying to badmouth CT, but I call them as I see them. In their minds they probably were trying to save patients from incompetent treatment, but unfortunately it wiped out many competent people. As far as the business side, it was a great move on their part.

Sorry so long, but I wanted to clarify the info. I'd be happy to discuss this further if you like or we can let "dead dogs lie." :-)

Oh, BTW, TJ has an appointment with a neurosurgeon the 18th, I pray that his sutures aren't closed so we can get him in a band ASAP!

Hey, has anyone had to have their holiday pictures taken with the helmet? I'm just curious if you took the helmet off or left it on?

Well, I better shorten this now. :=)

Corina

[Guest guest]

In a message dated 11/22/2002 10:21:33 AM Eastern Standard Time, taime@... writes:

But they are in it for the children. Many here

can attest to that.

I have to agree that CT is not in it just for money. So many of us moms wonder if our babies need second bands...and it would be easy for them to make more money and say yes...but so many times they say it's not necessary and they wouldn't recommend it. They also are honest if they feel a baby doesn't need a band at all...so if they were in it just for money...when someone asked them if a band is necessary they would always say yes and they don't.

[Guest guest]

,

I agree about CT being very honest- they sent me home when my son was 3 months to exhaust repositioning efforts, when they could have very easily said, yes, lets cast him now! And time again I too have read that CT did not recommend a band or a second band. I really feel from experience, that CT has integrity about their work, and the children they treat. I think they get a bum rap because this treatment is still being argued as cosmetic, and some may feel that they are seeking $$$ for something that is not necessary, when in fact, if they became more educated about plagio, they would know that its a corrective device much like braces. I still say, even if someone's best argument to me is that this treatment is only cosmetic (which obviously I disagree with), I think its still as important to have a symmetrical face and ears- and if they don't think so, they should start a new quest to stop all dentists from putting braces on, those crooked teeth will still chomp food being crooked, but I don't see anyone holding Dentists accountable for the $5000 people will plunk down for braces. Sorry, getting on a rant now!

' Mom

[Guest guest]

I went for taking the Christmas pictures with Jenna's helmet off. It was a picture with all 3 kids. I will probably take her some where else and get a picture of just her with her helmet on. We have a digital camera and have taken many pics with her helmet on. I don't know why but I wanted the picture with all 3 kids helmet free. I think so i could see her hair and face better. You could probably take some with it off and some with it on. i would have done that but 2 out of the 3 were noy cooperating.

Angie

Re: New and Need Help

>>>This is not true. I believe the FDA surprised CT by requiring approval. I read this on their website, I think, or some website before making our decision as we were considering a local helmet. There are many local helmets that are also FDA approved. You can find a list of them in the files section.

, I'm sorry but your info is faulty. CT DID petition the FDA. Here's the link to the actual "Final Ruling." If you read it you will see CT mentioned as the petitioner several times. I don't want to badmouth them cuz I know they are very successful at what they do, but they did eliminate ALOT of the competition because, as I've researched I've discovered that it costs a lot of money and time to get the Section 513 (f)(2) clearance. So many orthotists in smaller areas simply quit making them. So, unless they spend the money and time to get the clearance, their only option is to cast/fit it themselves, send the cast off to STAR Band and then follow thru the treatment themselves.

My Orthotist told me that prior to CT's petition he used to make his own, do all the adjustments, etc. But after the Final Ruling in CT's favor, the prices of bands went up and competition went down. Again, I'm not trying to badmouth CT, but I call them as I see them. In their minds they probably were trying to save patients from incompetent treatment, but unfortunately it wiped out many competent people. As far as the business side, it was a great move on their part.

Sorry so long, but I wanted to clarify the info. I'd be happy to discuss this further if you like or we can let "dead dogs lie." :-)

Oh, BTW, TJ has an appointment with a neurosurgeon the 18th, I pray that his sutures aren't closed so we can get him in a band ASAP!

Hey, has anyone had to have their holiday pictures taken with the helmet? I'm just curious if you took the helmet off or left it on?

Well, I better shorten this now. :=)

Corina

For more plagio info

[Guest guest]

In a message dated 11/22/02 12:06:27 PM Eastern Standard Time, rella1234@... writes:

,

I agree about CT being very honest- they sent me home when my son was 3 months to exhaust repositioning efforts, when they could have very easily said, yes, lets cast him now! And time again I too have read that CT did not recommend a band or a second band. I really feel from experience, that CT has integrity about their work, and the children they treat. I think they get a bum rap because this treatment is still being argued as cosmetic, and some may feel that they are seeking $$$ for something that is not necessary, when in fact, if they became more educated about plagio, they would know that its a corrective device much like braces. I still say, even if someone's best argument to me is that this treatment is only cosmetic (which obviously I disagree with), I think its still as important to have a symmetrical face and ears- and if they don't think so, they should start a new quest to stop all dentists from putting braces on, those crooked teeth will still chomp food being crooked, but I don't see anyone holding Dentists accountable for the $5000 people will plunk down for braces. Sorry, getting on a rant now!

' Mom

CIndy, It's perfectly alright to rant... if you look at it like this, its a little easier to put how very important treating our children is..

'Cosmetic' procedures are to improve something that is otherwise normal... 'Corrective' is to correct an abnormality, something that it not normal... treating plagio is 'corrective' not cosmetic... sure, it is altering the physical image, but it's correcting something that is NOT RIGHT... i've already had to argue that with several of my non-momy friends... for some reason they think it's not necessary... kkudos to CT for being responsible and caring more about the kids than the money... if only every company that deals with the health and well being of children were like that! needless to say this has given me a totally new perspecitve on plastic surgeons, since the doc who prescribed tiernan's helmet was a plastic surgeon... guess not all of them are just out to make a buck...

stephanie

[Guest guest]

Corina-

Sorry, but your information is faulty. Sounded like your original

post was an attack in the first place. Maybe it was just me? Never

saw the link you mentioned.

When the FDA originally started investigating cranial orthosis, they

were not petitioned. Perhaps what you are thinking of was when the

classification was changed. I believe that was petitioned to make

insurance claims a little easier.

Local helmets still can be relatively inexpensive. My cousin got

one for $500 and we have many members getting them from $500-$1500.

Sorry, but it seems as though your orthotist has a chip on his

shoulder and is giving you some uninformed information.

I called the FDA a couple of weeks ago. The man with whom I spoke

said that if a helmet hasn't yet been approved, they can still be

used, the parents would have to sign a waiver stating they

understood the helmet was experimental. As I mentioned before you

can check out the many different type of helmets/bands that are FDA

approved in the files section.

Sorry if this sounds defensive, but people are always ragging on CT

and it irritates me. They were so helpful to us and I can assure you

they are not money hungry, selfish people. They want to do right

for the children. When you're the best, people are always trying to

knock you down.

I can probably come up with some links by this evening to prove my

case.

We took Dane's pictures with his band on. I am a realist and prefer

to remember things the way they happen. I even had his apnea

monitor leads in his 3 month pictures! Besides, he looked so darn

cute in it that I couldn't take it off

Good luck at the CT scan. Fingers and toes crossed for you

Dane's mom DOC Grad

> >>>This is not true. I believe the FDA surprised CT by requiring

approval. I read this on their website, I think, or some website

before making our decision as we were considering a local helmet.

There are many local helmets that are also FDA approved. You can

find a list of them in the files section.

>

> , I'm sorry but your info is faulty. CT DID petition the

FDA. Here's the link to the actual " Final Ruling. " If you read it

you will see CT mentioned as the petitioner several times. I don't

want to badmouth them cuz I know they are very successful at what

they do, but they did eliminate ALOT of the competition because, as

I've researched I've discovered that it costs a lot of money and

time to get the Section 513 (f)(2) clearance. So many orthotists in

smaller areas simply quit making them. So, unless they spend the

money and time to get the clearance, their only option is to

cast/fit it themselves, send the cast off to STAR Band and then

follow thru the treatment themselves.

>

> My Orthotist told me that prior to CT's petition he used to make

his own, do all the adjustments, etc. But after the Final Ruling in

CT's favor, the prices of bands went up and competition went down.

Again, I'm not trying to badmouth CT, but I call them as I see

them. In their minds they probably were trying to save patients

from incompetent treatment, but unfortunately it wiped out many

competent people. As far as the business side, it was a great move

on their part.

>

> Sorry so long, but I wanted to clarify the info. I'd be happy to

discuss this further if you like or we can let " dead dogs lie. " :-)

>

> Oh, BTW, TJ has an appointment with a neurosurgeon the 18th, I

pray that his sutures aren't closed so we can get him in a band

ASAP!

>

> Hey, has anyone had to have their holiday pictures taken with the

helmet? I'm just curious if you took the helmet off or left it on?

>

> Well, I better shorten this now. :=)

>

> Corina

[Guest guest]

In a message dated 11/22/2002 1:53:58 PM Eastern Standard Time, tinuviel@... writes:

'Corrective' is to correct an abnormality, something that it not normal... treating plagio is 'corrective' not cosmetic... sure, it is altering the physical image, but it's correcting something that is NOT RIGHT... i've already had to argue that with several of my non-momy friends...

,

I totally agree. I can't understand, when it seems very common sense to me, that the medical community would not give any credence to the idea that a misaligned ear canal, or misaligned eyes or jaw, would not create some, even if minor, type of effect on the functions of those body parts. To me, its purely logical that skewing the vision or creating the imbalance in the ear canal would play a role in how effective that body part functions. I hope over time, we won't have to argue this until we're blue in the face, and it will be widely accepted.

[Guest guest]

>My Orthotist told me that prior to CT's petition he used to make his

own, do all the adjustments, etc. But after the Final Ruling in CT's

favor, the prices of bands went up and competition went down<

I'm a little confused. Hopefully you can clarify this for me. If your

ortho made his own helmet, then why would HIS price go up just b/c CT

got FDA approval? Like Debbie said, he can still use his own helmet

and have the parents sign a paper stating they know it's not FDA

approved and therefore considered experimental. I don't think anyone

has the right to put down a company that has helped thousands upon

thousands of children. Yes, CT is a business and they have to make

business decisions. But they are in it for the children. Many here

can attest to that.

Good luck at your neuro appt. I hope all goes well. Please let us

know how it goes. What type of band will TJ be getting?

> >>>This is not true. I believe the FDA surprised CT by requiring

approval. I read this on their website, I think, or some website

before making our decision as we were considering a local helmet.

There are many local helmets that are also FDA approved. You can

find a list of them in the files section.

>

> , I'm sorry but your info is faulty. CT DID petition the

FDA. Here's the link to the actual " Final Ruling. " If you read it

you will see CT mentioned as the petitioner several times. I don't

want to badmouth them cuz I know they are very successful at what

they do, but they did eliminate ALOT of the competition because, as

I've researched I've discovered that it costs a lot of money and time

to get the Section 513 (f)(2) clearance. So many orthotists in

smaller areas simply quit making them. So, unless they spend the

money and time to get the clearance, their only option is to cast/fit

it themselves, send the cast off to STAR Band and then follow thru

the treatment themselves.

>

> My Orthotist told me that prior to CT's petition he used to make

his own, do all the adjustments, etc. But after the Final Ruling in

CT's favor, the prices of bands went up and competition went down.

Again, I'm not trying to badmouth CT, but I call them as I see them.

In their minds they probably were trying to save patients from

incompetent treatment, but unfortunately it wiped out many competent

people. As far as the business side, it was a great move on their

part.

>

> Sorry so long, but I wanted to clarify the info. I'd be happy to

discuss this further if you like or we can let " dead dogs lie. " :-)

>

> Oh, BTW, TJ has an appointment with a neurosurgeon the 18th, I pray

that his sutures aren't closed so we can get him in a band ASAP!

>

> Hey, has anyone had to have their holiday pictures taken with the

helmet? I'm just curious if you took the helmet off or left it on?

>

> Well, I better shorten this now. :=)

>

> Corina

[Guest guest]

> ,

> I agree about CT being very honest- they sent me home when my son

was 3

> months to exhaust repositioning efforts, when they could have very

easily

> said, yes, lets cast him now! And time again I too have read that

CT did not

> recommend a band or a second band. I really feel from experience,

that CT

> has integrity about their work, and the children they treat. I

think they

> get a bum rap because this treatment is still being argued as

cosmetic, and

> some may feel that they are seeking $$$ for something that is not

necessary,

> when in fact, if they became more educated about plagio, they would

know that

> its a corrective device much like braces. I still say, even if

someone's

> best argument to me is that this treatment is only cosmetic (which

obviously

> I disagree with), I think its still as important to have a

symmetrical face

> and ears- and if they don't think so, they should start a new quest

to stop

> all dentists from putting braces on, those crooked teeth will still

chomp

> food being crooked, but I don't see anyone holding Dentists

accountable for

> the $5000 people will plunk down for braces. Sorry, getting on a

rant now!

>

> ' Mom

AMEN - VERY well said

Debbie Abby's mom DOCGrad

MI

[Guest guest]

Corina,

We did some pics with the helmet on and some with it off. My

favorite pic of her is one we took when she was wearing her

helmet and we had a big Christmas bow stuck on top. She has

her eyes closed and her head kind of bowed and she looks like

she's praying. Very cute. I would say do whatever you are

comfortable with.

Marci :-)

> >>>This is not true. I believe the FDA surprised CT by

requiring approval. I read this on their website, I think, or some

website before making our decision as we were considering a

local helmet. There are many local helmets that are also FDA

approved. You can find a list of them in the files section.

>

> , I'm sorry but your info is faulty. CT DID petition the

FDA. Here's the link to the actual " Final Ruling. " If you read it you

will see CT mentioned as the petitioner several times. I don't

want to badmouth them cuz I know they are very successful at

what they do, but they did eliminate ALOT of the competition

because, as I've researched I've discovered that it costs a lot of

money and time to get the Section 513 (f)(2) clearance. So many

orthotists in smaller areas simply quit making them. So, unless

they spend the money and time to get the clearance, their only

option is to cast/fit it themselves, send the cast off to STAR Band

and then follow thru the treatment themselves.

>

> My Orthotist told me that prior to CT's petition he used to make

his own, do all the adjustments, etc. But after the Final Ruling in

CT's favor, the prices of bands went up and competition went

down. Again, I'm not trying to badmouth CT, but I call them as I

see them. In their minds they probably were trying to save

patients from incompetent treatment, but unfortunately it wiped

out many competent people. As far as the business side, it was

a great move on their part.

>

> Sorry so long, but I wanted to clarify the info. I'd be happy to

discuss this further if you like or we can let " dead dogs lie. " :-)

>

> Oh, BTW, TJ has an appointment with a neurosurgeon the

18th, I pray that his sutures aren't closed so we can get him in a

band ASAP!

>

> Hey, has anyone had to have their holiday pictures taken with

the helmet? I'm just curious if you took the helmet off or left it

on?

>

> Well, I better shorten this now. :=)

>

> Corina

[Guest guest]

<<<The man with whom I spoke

said that if a helmet hasn't yet been approved, they can still be

used, the parents would have to sign a waiver stating they

understood the helmet was experimental.>>>

This is exactly what happened in our situation. My daughter wore

a locally made helmet which only cost us a total of $750. We had

to sign a waiver because the FDA approval was pending at the

time wore her helmet. We also signed a agreement for

to participate in a research study to try and help get FDA

approval.

Marci

> > >>>This is not true. I believe the FDA surprised CT by

requiring

> approval. I read this on their website, I think, or some website

> before making our decision as we were considering a local

helmet.

> There are many local helmets that are also FDA approved.

You can

> find a list of them in the files section.

> >

> > , I'm sorry but your info is faulty. CT DID petition the

> FDA. Here's the link to the actual " Final Ruling. " If you read it

> you will see CT mentioned as the petitioner several times. I

don't

> want to badmouth them cuz I know they are very successful at

what

> they do, but they did eliminate ALOT of the competition

because, as

> I've researched I've discovered that it costs a lot of money and

> time to get the Section 513 (f)(2) clearance. So many orthotists

in

> smaller areas simply quit making them. So, unless they

spend the

> money and time to get the clearance, their only option is to

> cast/fit it themselves, send the cast off to STAR Band and then

> follow thru the treatment themselves.

> >

> > My Orthotist told me that prior to CT's petition he used to

make

> his own, do all the adjustments, etc. But after the Final Ruling

in

> CT's favor, the prices of bands went up and competition went

down.

> Again, I'm not trying to badmouth CT, but I call them as I see

> them. In their minds they probably were trying to save patients

> from incompetent treatment, but unfortunately it wiped out

many

> competent people. As far as the business side, it was a great

move

> on their part.

> >

> > Sorry so long, but I wanted to clarify the info. I'd be happy to

> discuss this further if you like or we can let " dead dogs lie. " :-)

> >

> > Oh, BTW, TJ has an appointment with a neurosurgeon the

18th, I

> pray that his sutures aren't closed so we can get him in a band

> ASAP!

> >

> > Hey, has anyone had to have their holiday pictures taken with

the

> helmet? I'm just curious if you took the helmet off or left it on?

> >

> > Well, I better shorten this now. :=)

> >

> > Corina

[Guest guest]

Hi, I'm having pain in the the gallbladder liver area with the

accompanying upper body pain. I also have constipation and very

light colored stools. So went to the doctor and got blood tests,

scans, etc but nothing bad showed up. The doctor had no answers for

me so I'm hoping you guys can help me. I looked into a gallbladder

liver cleanse but can't do it cause of my hypoglycemia. Any advice

would be appreciated. Right now i'm taking beta plus by biotics

research and was wondering if a coffee enema will be of any help?

[Guest guest]

Hi youngjaem,

You are certainly welcome here on this list, but it sounds like you

would be better served on the bowlcleanse list. Your bowel

problems are the cause of any number of problems and should be

addressed first. Your liver can't work right without your bowels

working correctly.

Best Regards,

Vince

--- In gallstones , " youngjaem " <youngjaem@y...>

wrote:

>

> Hi, I'm having pain in the the gallbladder liver area with the

> accompanying upper body pain. I also have constipation and very

> light colored stools. So went to the doctor and got blood tests,

> scans, etc but nothing bad showed up. The doctor had no answers

for

> me so I'm hoping you guys can help me. I looked into a

gallbladder

> liver cleanse but can't do it cause of my hypoglycemia. Any

advice

> would be appreciated. Right now i'm taking beta plus by biotics

> research and was wondering if a coffee enema will be of any help?

[Guest guest]

Thanks everyone for the replies? What exactly is considered a bowel

cleanse? I have done Oxypowder is that considered a bowel cleanse

or do you have to get a colonic or do a P & B shake?

[Guest guest]

Hi Vicki,

I don't know of a Doctor in CA as I am on the East Coast, but my family was

also very severely ill from mold exposue and we went to Dr Lieberman in

ton SC. He has been treating chemically ill(because that's what we

are ) patients for over 30 +yrs. His office might be able to tell you of a

Physician in the CA area. The clinic is www.coem.com.Also check out

www.AAEM.com (American Academy Environmental Medicine0 it will give you

doctors across the country. I know it is extremely frustrating to be told

that " mold doesn't make you severly ill " unfortunatley conventional medicine

is way behind the times-especially here in the US. These doctors I mentioned

will completely understand your situation and better than that be able to

help you get well again.

Take care and Good Luck, this is a great group and you will find help here.

Meng.

On Fri, May 1, 2009 at 12:24 AM, Vicki <vicki1021@...> wrote:

>

>

> Hi all,

>

> My name is Vicki and I live in Elk Grove, Ca, near Sacramento, CA. We had a

> " toxic mold " home... Lowe's mis installed a washing machine in our home in

> 2005... 9 months later after our walls could no longer handle to soak in the

> water, the water started showing itself around the machine. For 2

[Guest guest]

There is a great Doctor in Santa Barbra, Dr Jannette Hope. Has immesred

herself in treating mold patients and is doing a great job at it. I would

highly recommend her or Dr Gray in Arizona for the west coast.

K

Meng <moldsick@...> wrote:

Hi Vicki,

I don't know of a Doctor in CA as I am on the East Coast, but my family was

also very severely ill from mold exposue and we went to Dr Lieberman in

ton SC. He has been treating chemically ill(because that's what we

are ) patients for over 30 +yrs. His office might be able to tell you of a

Physician in the CA area. The clinic is www.coem.com.Also check out

www.AAEM.com (American Academy Environmental Medicine0 it will give you