Re: New to group-Question about steriod/sleep disruption

[Guest guest]

Beth,

I kept expecting to read that also takes a pm dose of the pred which

would definately explain things.

I don't recall my son having sleep problems on the pred when he was only

taking an am dose.

I hope it is just a temp thing and s old sleep pattern returns.

Hugs

Becki and 7 systemic

[Guest guest]

Madison is a night owl. Most nights she is up until at least 10:30 but

it's nothing her up to be up until midnight!!! I like my sleep but

luckily my husband doesn't require much so he stays up with her. I

don't know if it's the meds or not but I suspect it is. Madison is on

Naprosyn and Methotrexate. She came off of Prednisolone in January.

Madison too has always been a great sleeper!

Who is your doctor?

Ashlee (Madison, 3 1/2, Poly and Iritis)

New to group-Question about steriod/sleep disruption

Hi, everyone!

I'd like to introduce myself;My name is Beth Sekelik and my daughter,

,

age 5 years, was recently diagnosed with arthritis. We found a

phenomenal

pediatric rheumatologist, and are so grateful to have found him.

is

currently taking Naprosyn, Prednisolone, and just began Methotrexate.

She has always been a terrific sleeper at night(thank you God!), but

since

beginning the first two meds, her sleep has gone haywire. She is up

during

the night just about every night at least once, but sometimes, such as

last

night, 5 times. She is pleasant, not crying, not fussing, just awake.

Gradually, she gets herself back to sleep only to awaken again. She

makes it through

school, only to be exhausted when she gets home and then dozes off and

on

for a few minutes here and there during a 1-2 hour period before it's

bath

time, dinner time, and then bed.

Have any of you experienced this, and what in the world did you do if

anything, to help it? Do the sleep disruptions become a permanent part

of her

life, or is it a matter of getting adjusted to the med? What is the

average time

it takes to adjust to the steroid? She has now been on it for 3 weeks.

She

is currently on 1/2 tsp of the Pred. per day, and we give it to her in

the

a.m. after breakfast.

Any guidance or info would be greatly appreciated!

Beth, Mom to , age 5 yrs.

[Guest guest]

Hi,

Like Becki, I expected to see that was taking an evening dose - which

guaranteed a sleepless night at our house! When Robbie first flares they always

start him out with an am & pm dose to combat the am stiffness and pain - but

when we begin to taper, the evening dose is what we taper first - to improve the

sleep issue. With that said, with a high dose only in the morning - Robbie

always experiences problems sleeping- which improves as his body adjusts to the

meds - or if the dose is quite high, when we begin to taper. Insomnia is a

common complaint with steriods - even with only one am dose. Hopefully

will adjust and have less problems soon with sleep. Even now with Robbie's

sleep improved - he still has sleep issues he never had pre-diagnosis. Good

luck!

Val

Rob's Mom (8,systemic)

Re: New to group-Question about steriod/sleep disruption

Beth,

I kept expecting to read that also takes a pm dose of the pred which

would definately explain things.

I don't recall my son having sleep problems on the pred when he was only

taking an am dose.

I hope it is just a temp thing and s old sleep pattern returns.

Hugs

Becki and 7 systemic

[Guest guest]

Hi Beth,

Long story short----when my 7 year old son was first diagnosed and

put on pred (up to 40 mg split between am and pm), the pharmacist

said that we should give the pm dose closer to dinner time and not

bedtime because of possible sleeping problems. The rheumy got mad

that the pharmacist would over-ride his orders and told us to keep

the pred. 12 hours apart for am and pm doses.

anyway, I don't remember any major sleep problems either way, but it

makes sense that it is possible.

Stacia and Hunter 9 systemic, iritis

>

> Hi, everyone!

> I'd like to introduce myself;My name is Beth Sekelik and my

daughter, ,

> age 5 years, was recently diagnosed with arthritis. We found a

phenomenal

> pediatric rheumatologist, and are so grateful to have found him.

is

> currently taking Naprosyn, Prednisolone, and just began

Methotrexate.

>

> She has always been a terrific sleeper at night(thank you God!),

but since

> beginning the first two meds, her sleep has gone haywire. She is

up during

> the night just about every night at least once, but sometimes,

such as last

> night, 5 times. She is pleasant, not crying, not fussing, just

awake.

> Gradually, she gets herself back to sleep only to awaken again.

She makes it through

> school, only to be exhausted when she gets home and then dozes

off and on

> for a few minutes here and there during a 1-2 hour period before

it's bath

> time, dinner time, and then bed.

>

> Have any of you experienced this, and what in the world did you

do if

> anything, to help it? Do the sleep disruptions become a

permanent part of her

> life, or is it a matter of getting adjusted to the med? What is

the average time

> it takes to adjust to the steroid? She has now been on it for 3

weeks. She

> is currently on 1/2 tsp of the Pred. per day, and we give it to

her in the

> a.m. after breakfast.

>

> Any guidance or info would be greatly appreciated!

>

> Beth, Mom to , age 5 yrs.

>

>

>

[Guest guest]

for the steroid / sleep topic. I was on large doses of pred in 2003 and I

didn't sleep for days, literally. At this point I was also given sleeping

pills. As the pred dose decreased my sleeping abilities returned and I withdrew

the sleeping meds.....

Donna