Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 HI! My son is 11 years old. He has polyarticular JRA. We have tried NSAIDs, methotrexate, Enbrel and Humira with no success. Now he is on methotrexate and Cellcept. Has anyone had experience with cellcept? So, far there has been no improvement. Also, should I limit any sport activities? He plays a lot of sports but also pays with swollen joints and a lot of pain. If he's willing to put up with the pain, is it OK for him to play? Thanks! Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi, can't help with the Cellcept, but I think it has been discussed here before, so hopefully someone will respond. As for sports, we were always told to let play what he feels he can. The only thing Chris' first rheumy ever told us was if the arthritis was in his hips she would have restricted him from sports with a lot of running as that could speed degeneration of the joint. But that was not a problem for him and he played baseball and volleyball as long as he could stand it. Michele (18,spondy) JRA and Cellcept HI! My son is 11 years old. He has polyarticular JRA. We have tried NSAIDs, methotrexate, Enbrel and Humira with no success. Now he is on methotrexate and Cellcept. Has anyone had experience with cellcept? So, far there has been no improvement. Also, should I limit any sport activities? He plays a lot of sports but also pays with swollen joints and a lot of pain. If he's willing to put up with the pain, is it OK for him to play? Thanks! Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Lori, Our doctors have always allowed my daughter to play whatever she would like as long as it doesn't hurt. Of course it never hurts while playing, only afterwards. When my daughter was first diagnosed, her wrist was completely stiff. Our doctor told her no cartwheels. But now it is fine, and she can do anything, and everything. She plays hockey, figure skates, dances, plays soccer, golf ....and just about anything else she wants. Some days you can tell because she is quite tired. I can't help you with your medicines. My daughter is currently on Pheldine, folic acid, methotrexate, and humira. That is the combination that did the trick for her. I would ask have you tried Remacaid yet? Even though it is in the same category as the Enbrel and Humira, there are different factors, and just maybe that is the trick. Unfortunately it is a game with all of them. Good Luck! and Allie (9 poly) ________________________________ From: [mailto: ] On Behalf Of tltjk17 Sent: Wednesday, March 08, 2006 2:49 PM Subject: JRA and Cellcept HI! My son is 11 years old. He has polyarticular JRA. We have tried NSAIDs, methotrexate, Enbrel and Humira with no success. Now he is on methotrexate and Cellcept. Has anyone had experience with cellcept? So, far there has been no improvement. Also, should I limit any sport activities? He plays a lot of sports but also pays with swollen joints and a lot of pain. If he's willing to put up with the pain, is it OK for him to play? Thanks! Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Lori, My son is in realy good control and we see the JRA chair for CARRA.His name is J Lovell. The only thing to date is absolutely no gymnastics at a highly competative level.It's in his genes.At 4 they wanted my family to move out of state so I could train 6 hrs a day. has no fear of hights,climbs his way into the rafters of his home made fort and swings a good 7 feet off the ground. Football was not a total no no but a bad idea,it seams like all players spend atleast part of a season on the bench due to a joint injury. Swimming at a competative level was Lovells first choice but baseball,basketball,soccer and martial arts was all ok. No experiance with Cellcept but I do know for Lupas patiants it's safer then Cytoxin with as good results for nephritis.It's a fairly newer drug so not too many kids are on it as of yet. Remicade infusions are another option,it's a stronger TNF inhibitor then Enbrel but around the same as Humira.Many studies have shown that a person can respond to another TNF drug even if 1 of the others failed. Is your son maxed out on the MTX which is usualy 25mg as a shot not oral? Oral MTX has a deminished absorbant rate that can change from week to week depending on what the child ate.With the sub q injections they absorb the whole dose.Just something to possibly think about. Depending on where you live Cincinnati Childrens is doing a study on Abatacept with poly kids which effects the T cells.There may be other sites doing the study also. We live 307 miles away from there but LOVE them .We are no longer in a clinical study but our PPO lets us go there the same as in Nashville who I hate. I hope you find that magic coctail! Love,hugs and prayers Becki and 7 systemic Quote Link to comment Share on other sites More sharing options...
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