Re: DD Molly age 6 w/Poly JRA use Dr.Gibbas in ATL

[Guest guest]

Greetings _Nikki and Molly - we have used Dr. Gibbas on the weekend when she

was on call. Never met her only talked on the phone. She was very helpful

and understanding to our daughters needs. We use Dr. Larry Volger from

Emory. Our daughter is Systemic and was dx in Feb 2004. We will be at the

conference - hopefully we will meet. Sandi Ken and Hunter (7 Systemic)

[Guest guest]

I live in Kansas, but I know what you mean about " interesting " doctors. Our

first rheumatologist preached the use of hot/cold packs, excersizes, wax baths

along w/ the usual meds. Then, she quit and the next Dr. said he was " just like

the first Dr. " ,but he also said that the hot/cold packs,etc. would just make

things worse! I was so confused,but after talking to a trusted cardiologist

friend I realized that Drs. in general still do not really understand arthritis

and other like conditions. Our third and current Rheum. is great and works quite

well w/ my daughter. Elaney has poly and it affects her jaw, L fingers, L knee,

L ankle. She is taking Voltaren(Diclofenac), mtx tabs, Folic Acid, and

Prednisone. Elaney is 12 yrs, how old is Molly? Does she have a hard time taking

her meds? Elaney used to , but things are better now that she is older.--

and Elaney(12 w/ poly) and Elyssa(7)

just_mommy_nikki <nikki-@...> wrote:

Our Into.......Molly started having problems at 15 months old and was

dx by 24 months. We live in Alabama but travel to Atlanta for our

rhuemy. We spent a few years getting crappy care at our Children's

Hospital till I searched out the doctor in Atlanta. Molly has taken

Naprosyn, mtx liguid, mtx injections, and currently on

Diclofenac,Pepcid and Malox.

Her involved joints are neck, knees, hips,ankles,a few toes.

I am interested to see if anyone else sees Dr. Gibbas she is a

" interesting " doctor. We do strecthing 2 times a day to help her

tight muscles. So glad school is out because getting moving that early

was so hard on Molly.I just found out about AJAO Conference I am

trying to make arrangements to go I know it would be a great learning

time for us. Thanks for reading.

[Guest guest]

just a quick reply -

I am age 36 diagnosed at age 3 - we (me hubby and daughter) live in

Alabama also - what part Alabama?

love, prayers and blessings,

[Guest guest]

>,

> just a quick reply -

> I am age 36 diagnosed at age 3 - we (me hubby and daughter)

live in

> Alabama also - what part Alabama?

>

>

>

> love, prayers and blessings,

>

>

>

>

>

>

>

[Guest guest]

Nice to meet you too.

We live 80 miles north of B'ham in Winston County.(which is west of Cullman

(City & County). Our daughter plays tball and cheers for Elem school.

We are going to AJAO also - hope to meet y'all there.

Have you met/dealt with th B'ham branch of AF? We are going to AJAO on

acholarship provided by them - Blair Newman is awesome (even though we've never

met

in person LOL)

love, prayers and blessings,

(age 36 poly since age 3)

wife to Greg 17 years

Mommy to Destiny 5

[Guest guest]

--Hi Nikki and Holly,

Welcome to the group. AJAO is an awesome event and well worth the

trip. I hope you can make it.

hugs Helen and (8,systemic)

- In , " just_mommy_nikki " <nikki-@...>

wrote:

>

> Our Into.......Molly started having problems at 15 months old and was

> dx by 24 months. We live in Alabama but travel to Atlanta for our

> rhuemy. We spent a few years getting crappy care at our Children's

> Hospital till I searched out the doctor in Atlanta. Molly has taken

> Naprosyn, mtx liguid, mtx injections, and currently on

> Diclofenac,Pepcid and Malox.

> Her involved joints are neck, knees, hips,ankles,a few toes.

> I am interested to see if anyone else sees Dr. Gibbas she is a

> " interesting " doctor. We do strecthing 2 times a day to help her

> tight muscles. So glad school is out because getting moving that

early

> was so hard on Molly.I just found out about AJAO Conference I am

> trying to make arrangements to go I know it would be a great learning

> time for us. Thanks for reading.

>

[Guest guest]

Hello,

We see Dr Gibas also, r has systemic JRA and was diagnosed at 18months.

He is now 8yrs old. We lived out in Ca when first diagnosed, lived in Tn for a

while(awful treatment at vanderbelt) then moved to central Ga about 2yrs ago.

Interesting is a great way to describe Dr Gibas. At first i was hesitate but we

get along quite well with her and she is always there when i need a quick

explanation and help. I do find if you have other kids its better not to bring

them with you, her patience is not the best, luckily r is a very calm child,

his brother (2) is quite opposite and I find we get alot more done if he stays

home.

Ky meds- enbrel,mthx,naproxen and prednisone

we have tried remicade, cyclosproin, arava, along with many joint injections

and steroid pulses.

we are trying to make arrangement to go to the conference, it would be a shame

to missed especially since its so close this year.

I would love for r to meet other kids with arthritis.

Good luck,

Pamela

hburger64 <hburger64@...> wrote:

--Hi Nikki and Holly,

Welcome to the group. AJAO is an awesome event and well worth the

trip. I hope you can make it.

hugs Helen and (8,systemic)

- In , " just_mommy_nikki " <nikki-@...>

wrote:

>

> Our Into.......Molly started having problems at 15 months old and was

> dx by 24 months. We live in Alabama but travel to Atlanta for our

> rhuemy. We spent a few years getting crappy care at our Children's

> Hospital till I searched out the doctor in Atlanta. Molly has taken

> Naprosyn, mtx liguid, mtx injections, and currently on

> Diclofenac,Pepcid and Malox.

> Her involved joints are neck, knees, hips,ankles,a few toes.

> I am interested to see if anyone else sees Dr. Gibbas she is a

> " interesting " doctor. We do strecthing 2 times a day to help her

> tight muscles. So glad school is out because getting moving that

early

> was so hard on Molly.I just found out about AJAO Conference I am

> trying to make arrangements to go I know it would be a great learning

> time for us. Thanks for reading.

>

[Guest guest]

> >

> > Our Into.......Molly started having problems at 15 months old and was

> > dx by 24 months. We live in Alabama but travel to Atlanta for our

> > rhuemy. We spent a few years getting crappy care at our Children's

> > Hospital till I searched out the doctor in Atlanta. Molly has taken

> > Naprosyn, mtx liguid, mtx injections, and currently on

> > Diclofenac,Pepcid and Malox.

> > Her involved joints are neck, knees, hips,ankles,a few toes.

> > I am interested to see if anyone else sees Dr. Gibbas she is a

> > " interesting " doctor. We do strecthing 2 times a day to help her

> > tight muscles. So glad school is out because getting moving that

> early

> > was so hard on Molly.I just found out about AJAO Conference I am

> > trying to make arrangements to go I know it would be a great learning

> > time for us. Thanks for reading.

> >

>

>

>

>

>

>

>

>

[Guest guest]

hello,

that is funny. i had forgotten our last visit we took all the kids (3

youngest 3months) because we were going to chattanooga afterwards. dr gibas

visits macon once a month and we try to book all of our app't there, the rooms

are alot nicer down here. she would like us to come up to atl but i usually bok

down here. she really is a good doctor, i usually just dont pay attention to her

and send my wild one to the nurse for candy, i use to also carry a notebook

with all the questions i had for her and any new meds i had read about. when we

moved down here, kyler needed a walker to get around and his doctor in tn had

wanted to put him n a wheelchair. gibas could not believe it and has worked with

us to get him mobile and lower his meds.

i have a feeling she has no kids and lives a really quite life.

pamela

just_mommy_nikki <nikki-@...> wrote:

> >

> > Our Into.......Molly started having problems at 15 months old and was

> > dx by 24 months. We live in Alabama but travel to Atlanta for our

> > rhuemy. We spent a few years getting crappy care at our Children's

> > Hospital till I searched out the doctor in Atlanta. Molly has taken

> > Naprosyn, mtx liguid, mtx injections, and currently on

> > Diclofenac,Pepcid and Malox.

> > Her involved joints are neck, knees, hips,ankles,a few toes.

> > I am interested to see if anyone else sees Dr. Gibbas she is a

> > " interesting " doctor. We do strecthing 2 times a day to help her

> > tight muscles. So glad school is out because getting moving that

> early

> > was so hard on Molly.I just found out about AJAO Conference I am

> > trying to make arrangements to go I know it would be a great learning

> > time for us. Thanks for reading.

> >

>

>

>

>

>

>

>

>

[Guest guest]

Hi Nikki and Pamela,

I read your posts with Amazement. I understand the Dr needs to

concentrate on the patient. But I also understand if you are a Pediatric that

means

dealing with kids. Enjoy being around kids. When went to Vogler when I

had my Niece. Vogler and was always keeping a lookful eye on My

Niece. She was under a year old. She watched Vogler and examine

then wanted to play with . Not one time did either say anything. Both

would play ball with my Niece. I took my Nice with us everywhere. To the PT

and OT and she had fun just playing and doing what had to do and

watching her. Gibbas is a lot Different though.

Robbin