posted our photo album

[Guest guest]

Hello all,

I finally figured out how to post some pictures...took me over an

hour but I finally had success (except for the sideways picture of

alex and drea...to tired to try to figure out how to fix that

one)! :-) I posted some of me and Aundrea and her brother and

also a pic of the rash that Aundrea is now getting on her hands. It

comes and goes. Interestingly enough, she now has joint pain in her

fingers...The doc had noticed swelling in her finger joints but it

wasn't til a couple of weeks later that she complained of stiffness

and pain.

Alia, I loved the picture of Caroline in her dance costume.

reminded me of when Aundrea was in dance. She has taken a break but

recently started talking about wanting to join again.

Beth, I saw Hannah's pictures..The rash she has on her cheeks is

very similar to what happens to Aundrea following sun exposure...Do

some reading on photosensitivity. Aundreas legs also get the

blotchy rash often following a warm bath or shower. Try to

encourage Hannah to wear a large floppy hat when outdoors to protect

her face, tons of sunblock and reapply every hour..you may want to

purchase uv protective swimsuit and coverup..I ordered thru lands

end and they were reasonably priced and work great.

(aundrea 10 systemic jra)