RE: Wheat and other allergies

[Guest guest]

So what do people eat when they are allergic to grains? I bought some brown

rice pasta (which costs an arm and a leg) and still eat my oat bran, banana

and almond mix in the morning. It seems as if wheat is in just about

everything. I miss my whole grain bread -- seems as if wheat flour is a

staple in all whole grain breads. The brown rice pasta is okay, but not as

enjoyable as my whole wheat pasta. *sigh* I still struggle with eating

fruits and raw veggies daily. I do like them, but they take forever to

prepare and eat. I should just throw them all in a blender and drink my

food.

But -- I am enjoying not doubling over in pain though. I love getting up in

the morning and not having to run to the bathroom to empty my bladder to

alleviate pain. Silly little things like that... My PCP is aware of what

I've done, but my GI doc isn't. I suppose I should call him in the morning

and find out just what to do.

After the length of time I've spent figuring I would die like this, I don't

want to screw around eating the wrong things or playing with mixes any more.

JoyceB

-----Original Message-----

From: gallstones [mailto:gallstones ] On

Behalf Of Lori

Sent: Sunday, June 05, 2005 2:05 PM

gallstones

Subject: Wheat and other allergies

I also have to avoid wheat like the plague. I generally avoid most grains

except for the occasoinal once a month treat, but wheat seems to be the

biggest villain. I had serious digestive issues which is why I have trouble

with most grains.

I've never had a problem with flax but I never started using it until years

after I gave up the wheat.

I wonder if anyone who has successfully expelled stones had some of their

food allergies go away. I sure do miss pizza. :-)

I remember I used to live off of bread (my favorite food group) but in my

adult years it sure did start causing a whole host of problems.

Lori

[Guest guest]

Considering my experience with the medical profession, prepare to be

disappointed by anything your GI doctor tells you. If you listen to anyone, it

needs to be your own body. I'm sure there are good doctors out there. I've yet

to meet one (although I have a pretty good naturopath).

Yes, it's hard giving up the one food item that seems to be in everything,

especially if it happens to be a favorite food. I did it years ago and I will

tell you that although I'm still in an uphill battle for optimal health, it sure

beats the heck out of how I used to feel. At least the steepness of the slope

has gotten much more gentle and the climb is easier. I still try it every now

and then to see if anything's changed -- nope. It hasn't. Wheat is an

abominable food for those of us who have a sensitivity to it. Unfortunately,

it's also yummy -- it really takes a commitment to say no to wheat (plus, for me

it has been highly addictive).

I eat brown and wild rice in small portions. That's about it. Other than that,

it's veggies, fruits and meat and a little unpasteurized dairy. I probably

could try some quinoa (sp?) or millet, but I am not big into cooking and baking

and try to keep things simple.

You have to decide whether you want to die a slow and agonizing death or, on the

other hand, eat what you want, and feel much, much (much!!!!!!) better and eat

the foods that enables you to heal yourself.

Yes, I miss pasta and wheat products horribly. But what I don't miss is how

chronically sick I used to be. I guess the desire to feel good finally

outweighed the desire to eat what I enjoyed.

Lori

----- Original Message -----

From: JoyceB

gallstones

Sent: Sunday, June 05, 2005 12:59 PM

Subject: RE: Wheat and other allergies

My PCP is aware of what

I've done, but my GI doc isn't. I suppose I should call him in the morning

and find out just what to do.

[Guest guest]

I have been off wheat/corn/rice/potato/quinoa/spelt/rye/etc since 1999 - and

have substituted ground almonds for flour when making bread, pancakes, cookies

etc.

The diet is in the book called Breaking the Vicious Cycle by Elaine Gotytscahll

and you can find more info at www.scdiet.com or www.scdiet.org

JoyceB <crwriter@...> wrote:

So what do people eat when they are allergic to grains? I bought some brown

rice pasta (which costs an arm and a leg) and still eat my oat bran, banana

and almond mix in the morning. It seems as if wheat is in just about

everything. I miss my whole grain bread -- seems as if wheat flour is a

staple in all whole grain breads. The brown rice pasta is okay, but not as

enjoyable as my whole wheat pasta. *sigh* I still struggle with eating

fruits and raw veggies daily. I do like them, but they take forever to

prepare and eat. I should just throw them all in a blender and drink my

food.

But -- I am enjoying not doubling over in pain though. I love getting up in

the morning and not having to run to the bathroom to empty my bladder to

alleviate pain. Silly little things like that... My PCP is aware of what

I've done, but my GI doc isn't. I suppose I should call him in the morning

and find out just what to do.

After the length of time I've spent figuring I would die like this, I don't

want to screw around eating the wrong things or playing with mixes any more.

JoyceB

-----Original Message-----

From: gallstones [mailto:gallstones ] On

Behalf Of Lori

Sent: Sunday, June 05, 2005 2:05 PM

gallstones

Subject: Wheat and other allergies

I also have to avoid wheat like the plague. I generally avoid most grains

except for the occasoinal once a month treat, but wheat seems to be the

biggest villain. I had serious digestive issues which is why I have trouble

with most grains.

I've never had a problem with flax but I never started using it until years

after I gave up the wheat.

I wonder if anyone who has successfully expelled stones had some of their

food allergies go away. I sure do miss pizza. :-)

I remember I used to live off of bread (my favorite food group) but in my

adult years it sure did start causing a whole host of problems.

Lori

[Guest guest]

One of the ladies in my raw milk co-op was talking about this book and how the

diet has really made a difference in her son's behavior. I don't recall what

his challenge was, some form of autism, but he's talking and saying sentences

for the first time in his life and sleeping normally ... etc.

I wish I had found out about this book when during the time of year I was

actually making a good living (eyes crossed).

:-) Will get it soon.

Lori

----- Original Message -----

From: Pawlenko

gallstones

Sent: Wednesday, June 08, 2005 8:58 AM

Subject: RE: Wheat and other allergies

The diet is in the book called Breaking the Vicious Cycle by Elaine

Gotytscahll and you can find more info at www.scdiet.com or www.scdiet.org

[Guest guest]

Well -- I did talk to my GI guy last night and I have to go back on wheat

for a few weeks in order to have some blood tests. He did admit that the

gold standard for celiac testing is a small bowel biopsy, and I know he's

wishing he did that when he scoped my stomach several weeks ago. He saw

nothing gross when he was in there, but admitted that it does not mean I

don't have celiac disease.

He does listen pretty intently since a friend of mine -- a psychologist --

wrote my PCP (with a CC to him) a " what the Hell are you doing? " letter. I

got the feeling all these doctors were thinking my symptoms were all in my

head (go figure with blood in my stool) or were stress related. I even went

to MGH and got the same runaround there.

It's been one Hell of a year or so, but I'm glad it's over. *crossing

fingers* It's amazing how much you can forgive these dorks when you can

laugh and smile again without bending over in pain.

JoyceB