I need help/advice immediately!

[Guest guest]

Kaylee had a visit to Duke to see her rheumy on Aug 2nd, she was

scheduled for the 18th, but due to continuing pain in her neck, legs

and arms. they moved it up. Well, they say they don't see any active

arthritis and don't understand her pain, unless it is growing pains,

well I thought okay, maybe it is. However, now I don't think so at

all. We have noticed that her left foot is quite a bit wider than

her right foot and she is still complaining of her neck hurting and

from time to time her chest. I am concerned that there may be

something there that they haven't thought about or considered. Her

labs were good, but have had some abnormal ones the past few months.

What can I do to put my mind at ease about these things, do I take

her to her ped or do i call her rheumy which at this point i don't

think will do any good. Do i request some tests or what. I know

there has to be some reason her the pain she has. Her meds can't be

increased any as she is on the highest dosage she can have for her

weight. She takes methotrexate once a week and Enbrel twice a week

along with Mobic daily and tylenol. She also does Prevacid and a

multi-vitamin with folic acid. She has been complaining more with

her stomach as well.

Can you guys help me? I read posts daily, but rarely post myself. I

use the info you guys post and it has been very helpful.

Please help me. I am getting more and more upset as I am reading

things that could be.

Thanks,

and Kaylee,3,4 August 30, poly