Re: Re: OT: back brace woes!

[Guest guest]

Helen,

I wish she could but it is really only designed to wear when laying down and

she needs to wear it for at least 8 hours at a time. I am almost wishing we had

the day brace instead. But, with the arthritis, maybe it would be worse. Thanks

for thinking about us.---

hburger64 <hburger64@...> wrote:

,

Im sorry to hear Elaney is struggling with her back brace. I can

only imagine what it must be like to sleep in it.

Do you think she would wear it more if she were to wear it when shes

around the house, like on lazy weekends, in the evening before bed.

I guess any time you can get her to wear it is better than none...

im not much help huh! sorry.

hugs Helen and (9,systemic)

>

> Elaney is having a terrible time getting used to her back brace

for

> scoliosis. Her arthritis makes it a bit harder to get comfortable.

One

> night she was itchy from head to toe so I did not make her wear

the

> brace. (I have no idea why she was itchy but it was gone by the

next

> morning.) Her bedtime routine now is kinda funny. She straps on

the

> brace, then we tuck stuffed animals in appropriate places. She

puts a

> bear under her R leg and a dog under her L arm and a huge white

tiger

> behind her back. She looks like she is sleeping in a zoo! She

usually

> goes to sleep then wakes up an hour later in pain. At that point I

let

> her take it off. I have thought about just getting rid of the

brace but

> am afraid of what will happen if she doesn't wear it. She is

skeletally

> immature and has a lot of growing left. Now her curve is at 33

degrees

> and a growth spurt could make it worse. If it got bad enough I

think

> she would need surgery. They brace when a curve is between 25 and

44

> degrees. She does need heart surgery in the future and I do not

want to

> add back surgery ever. Parenting is really, really hard.---

&

> Elaney(12 poly)

>

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